Author

Andrews, A.

Place of Publication

Portland, OR

Publisher

Limerence Press

Publication Date

2021

Physical Description

Paperback; 70p.; Graphic novel

Subject

Disabilities

Sex Education

Sexual Health

LGBTQ

Abstract

This easy-to-read comic book guide covers the basics of disability sexuality, common myths about disabled bodies, communication tips, and practical suggestions for having the best sexual experience possible.

ISBN

9781620106945

Language

English

Material Type

Book

Call Number

YOUTH GA 110 AND 2021

Copies

Author

Olsher, Sara

Rogers, Jenni

Place of Publication

Happy Valley, OR

Publisher

Mighty and Bright

Publication Date

2023

Physical Description

Softcover; 39 pages

Subject

Coping with Chronic Illness in the Family

Abstract

Join Mia and Stewart as they learn how bodies work, why some bodies don't always feel good, and what to do when someone they love has an illness that won't go away.

ISBN

9798986776538

Language

English

Material Type

Book

Call Number

JUNIOR EF 860 OLS 2023

Copies

Author

Kaufman, Miriam

Silverberg, Cory

Odette, Fran

Place of Publication

San Francisco, CA

Publisher

Cleis Press

Publication Date

2007

Physical Description

Softcover, 345 p.

Subject

Developmental Disabilities

Sexuality

Abstract

The Ultimate Guide to Sex and Disability is the first complete sex guide for people who live with disabilities, pain, illness, or chronic conditions. Useful for absolutely everyone, regardless of age, gender, or sexual orientation, the book addresses a wide range of disabilities - from chronic fatigue, back pain, and asthma to spinal cord injury, hearing and visual impairment, multiple sclerosis, and more.

Notes

Recommended by CCDP

ISBN

9781573443043

Language

English

Material Type

Book

Call Number

GA 110 KAU 2007

Copies

Author

Kabat-Zinn, Jon

Edition

Revised and updated edition

Publisher

Random House

Publication Date

2013

Physical Description

Softcover; 650 pages

Subject

Mindfulness

Chronic Illness

Anxiety

Abstract

Stress. It can sap our energy, undermine our health if we let it, even shorten our lives. It makes us more vulnerable to anxiety and depression, disconnection and disease. Based on Jon Kabat-Zinn's renowned mindfulness-based stress reduction program, this classic, groundbreaking work - which gave rise to a whole new field in medicine and psychology -

shows you how to use medically proven mind-body approaches derived from meditation and yoga to counteract stress, establish greater balance of body and mind, and stimulate well-being and healing. By engaging in these mindfulness practices and integrating them into your life from moment to moment and from day to day, you can learn to manage chronic pain, promote optimal healing, reduce anxiety and feelings of panic, and improve the overall quality of your life, relationships, and social networks. This second edition features results from recent studies on the science of mindfulness, a new Introduction, up-to-date statistics, and an extensive updated reading list. Full Catastrophe Living is a book for the young and the old, the well and the ill, and anyone trying to live a healthier and saner life in our fast-paced world.

ISBN

9780749958411

Language

English

Material Type

Book

Call Number

EG 225 KAB 2013

Copies

Author

Kabat-Zinn, Jon

Edition

Tenth anniversary edition

Place of Publication

New York, NY

Publisher

Random House Audio

Publication Date

2008

Physical Description

5 CD set

Subject

Mindfulness

Chronic Illness

Anxiety

Abstract

Stress. It can sap our energy, undermine our health if we let it, even shorten our lives. It makes us more vulnerable to anxiety and depression, disconnection and disease. Now, based on Dr. Jon Kabat-Zinn's renowned mindfulness-based stress reduction program, this groundbreaking audiobook shows you how to use natural, medically proven methods to soothe and heal your body, mind, and spirit.

Recommended by CCDP

Language

English

Material Type

CD

Audio

Call Number

EG 225 KAB 2008

Copies

Author

Christy, Elizabeth M.

Miller, James G. (illustrator)

Place of Publication

Denver, Colorado

Publisher

Outskirts Press, Inc.

Publication Date

2014

Physical Description

Softcover ; [18 p.], illustrations

Subject

Chronic Illness

Chronic Pain

Fibromyalgia. Fibrositis

Coping with Chronic Illness-Children

Abstract

The children of people with chronic illness and pain suffer quietly. "Why Does Mommy Hurt?" is a joyful, yet honest, portrayal of family life burdened with chronic illness. This is a delightful story told by a young boy learning to understand and cope with his mother's illness. The story creates natural opportunities for families to talk about both the symptoms of chronic illness, and how they affect family life. Even more importantly, the story puts power into the hands of the children. It also offers a helpful "Tips and Resources" section for parents! This book is appropriate for a wide-variety of illnesses associated with chronic pain, such as: Lupus, Lyme Disease, ME, CFS, Fibromyalgia, Arthritis, Multiple Sclerosis, Autoimmune Disease, and many others.

Notes

Recommended by CCDP

ISBN

9781478732969

Language

English

Material Type

Book

Call Number

JUNIOR EF 850.5 CHR 2014

Copies

Author

Kivowitz, Barbara

Weisman, Roanne

Place of Publication

Petaluma, CA

Publisher

Roundtree Press

Publication Date

2013

Physical Description

Softcover; 192 pages

Subject

Chronic Illness

Abstract

For those who find themselves at the intersection of lifetime love and overwhelming obligation, the right path is often painful and difficult to find. When illness invades the couple relationship, partners ask themselves and each other some really hard questions: "What do I want to do for this person whom I have loved for many years?" "How much of my life do I give up to take care of my beloved?" "How do I sit by my beloved's side and watch her suffer?" While writing In Sickness as in Health, authors Barbara Kivowitz and Roanne Weisman learned through interviews with many couples, as well as with medical, spiritual, legal, rehabilitation and psychological experts, that couples find their own ways to deal with illnesses and catastrophic injuries.

ISBN

9781937359133

Language

English

Material Type

Book

Call Number

EF 800 KIV 2013

Copies

URL

https://ebookcentral.proquest.com/lib/cwhbc/detail.action?docID=6578034

Author

Schrooten, A.F.

Markovitz, B.P.

Place of Publication

Switzerland

Publisher

Springer International Publishing AG

Publication Date

2021

Subject

Coping with Chronic Illness-Children

Abstract

This book tells true and poignant stories from both sides of the physician-patient/parent relationship and provides a unique glimpse into how parents and physicians think, feel, and interact. The stories are grouped under four sections: Hope, Compassion, Communication, and Trust.

Each section includes stories contributed by parents from all across the United States and by pediatricians practicing at many of the best children's hospitals throughout the country. The parents tell of interactions with physicians that had a significant impact on them and their child and offer context and insight that promote empathy and reflection. The physicians tell of interactions with patients and families that served as learning moments in their career and promote the humanization of medicine and show there is more to a physician beyond their scientific knowledge and white coat.

The stories are edited by Barry P. Markovitz - a pediatrician specializing in critical care medicine who has been in practice for more than 20 years and by Ann F. Schrooten - the parent of a child born with a chronic complex condition who has more than 15 years of experience interacting with pediatric subspecialists and other healthcare professionals who cared for her son. The editors have written commentaries to the stories to provide an independent perspective on the events and messages conveyed and to encourage reflection, inquiry, and discussion.

In addition to being a valuable resource for pediatricians, pediatric subspecialists, nurses and other healthcare professionals, the book will also appeal to families of children living with complex medical conditions because it shares physician encounters and behaviors many have experienced in the care of their own children. By giving a voice to both parents and physicians, the goal is to create a bridge to better understanding that can improve communication, minimize conflicts, and foster trust and compassion among physicians, patients, and families.

ISBN

9783030680206

Language

English

Material Type

Ebook

Call Number

EF 850.5 SCH 2021e

Author

Schrooten, A.F.

Markovitz, B.P.

Place of Publication

Switzerland

Publisher

Springer International Publishing AG

Publication Date

2021

Physical Description

251 pages

Subject

Coping with Chronic Illness-Children

Abstract

This book tells true and poignant stories from both sides of the physician-patient/parent relationship and provides a unique glimpse into how parents and physicians think, feel, and interact. The stories are grouped under four sections: Hope, Compassion, Communication, and Trust.

Each section includes stories contributed by parents from all across the United States and by pediatricians practicing at many of the best children's hospitals throughout the country. The parents tell of interactions with physicians that had a significant impact on them and their child and offer context and insight that promote empathy and reflection. The physicians tell of interactions with patients and families that served as learning moments in their career and promote the humanization of medicine and show there is more to a physician beyond their scientific knowledge and white coat.

The stories are edited by Barry P. Markovitz - a pediatrician specializing in critical care medicine who has been in practice for more than 20 years and by Ann F. Schrooten - the parent of a child born with a chronic complex condition who has more than 15 years of experience interacting with pediatric subspecialists and other healthcare professionals who cared for her son. The editors have written commentaries to the stories to provide an independent perspective on the events and messages conveyed and to encourage reflection, inquiry, and discussion.

In addition to being a valuable resource for pediatricians, pediatric subspecialists, nurses and other healthcare professionals, the book will also appeal to families of children living with complex medical conditions because it shares physician encounters and behaviors many have experienced in the care of their own children. By giving a voice to both parents and physicians, the goal is to create a bridge to better understanding that can improve communication, minimize conflicts, and foster trust and compassion among physicians, patients, and families.

ISBN

9783030680206

Language

English

Material Type

Book

Call Number

EF 850.5 SCH 2021b

Copies

Author

Lorig, Kate

Holman, Halsted

Sobel, David

Laurent, Diana

Gonzalez, Virginia

Minor, Marian

Edition

Canadian Edition, 4th

Place of Publication

Boulder, CO

Publisher

Bull Publishing Company

Publication Date

2013

Physical Description

Softcover ; vii, 368 p.

Subject

Chronic Illness

Mental Health/Illness

Fatigue

Pain

Depression

Abstract

"Living a Healthy Life with Chronic Conditions is a proven self-management guide. People with chonic health conditions live most of their lives outside of hospitals and clinics. This book is designed to help them learn the information and skills to manage chronic conditions on a daily basis while doing the things they need and want to do.

"This new edition is completely redesigned for easy reading and fully updated with the latest research and information. The book is a vital resource full of practical tips, suggestions, and strategies to build confidence in managing chronic illness and symptoms, such as fatigue, pain, shortness of breath, disability, and depression. It encourages readers to develop individual approaches to setting goals, making decisions, and finding resources and support"--from Publisher.

ISBN

97819396693498

Language

English

Material Type

Book

Call Number

EF 800 LOR 2013

Copies

Author

Bernhard, Toni

Edition

Revised and updated

Place of Publication

Somerville, MA

Publisher

Wisdom Publications

Publication Date

2018

Physical Description

Softcover ; xvii, 191 p.

Subject

Chronic Illness

Emotional Health

Mental Health

Abstract

"This life-affirming, instructive and thoroughly inspiring book is a must-read for anyone who is, or who might one day be, sick. And it can also be the perfect gift of guidance, encouragement, and uplifting inspiration to family, friends, and loved ones struggling with the many terrifying or disheartening life changes that come so close on the heels of a diagnosis of a chronic condition or even life-threatening illness." --Publisher

Notes

Recommended by CCDP

ISBN

9780861716265

Language

English

Material Type

Book

Call Number

EF 800 BER 2018

Copies

Author

Cardinal Remete, France

Place of Publication

Montreal, QC

Publisher

Multimondes Inc.

Publication Date

2016

Physical Description

Paperback, 311 p.

Subject

Chronic Illness

Coping with Chronic Illness in the Family

ISBN

9782895444916

Language

French

Material Type

Book

Call Number

EF 850 CAR 2016

Copies

Author

Sotomayor, Sonia

Lopez, Rafael [ill.]

Place of Publication

New York, NY

Publisher

Penguin Random house

Publication Date

2019

Physical Description

Hardcover

Subject

Children's Health. Pediatrics

Autism Spectrum Disorder (includes Asperger Syndrome)

Diabetes

Asthma

Physical Disability. Physically Challenged

Blindness

Deafness

Dyslexia

Stuttering

Tourette Syndrome. Gilles De La Tourette Syndrome

Attention Deficit Disorder. Hyperactivity

Allergies

Down Syndrome

Abstract

Feeling different, especially as a kid, can be tough. But in the same way that different types of plants and flowers make a garden more beautiful and enjoyable, different types of people make our world more vibrant and wonderful.

In Just Ask, United States Supreme Court Justice Sonia Sotomayor celebrates the different abilities kids (and people of all ages) have. Using her own experience as a child who was diagnosed with diabetes, Justice Sotomayor writes about children with all sorts of challenges--and looks at the special powers those kids have as well. As the kids work together to build a community garden, asking questions of each other along the way, this book encourages readers to do the same: When we come across someone who is different from us but we're not sure why, all we have to do is Just Ask.

ISBN

9780525514121

Language

English

Material Type

Book

Call Number

JUNIOR GK 100 SOT 2019

Copies

URL

https://apps.apple.com/us/app/symple-symptom-tracker/id479818115

Corporate Author

Symple Health, Inc.

Publication Date

2019

Physical Description

Mobile App

Subject

Coping with Pain

Coping with Chronic Illness

Abstract

Use Symple to track how you feel, to monitor your health, and to improve your wellbeing. Designed by both clinicians and regular people, Symple is an enjoyable way to connect to better health.

Language

English

Material Type

Online

Author

Chartre, Marie-Eve

Gagne, Johanne

Place of Publication

Montreal, QC

Publisher

Éditions du CHU Sainte-Justine

Publication Date

2014

Physical Description

Paperback, 127 p.

Subject

Coping with Chronic Illness-Children

Abstract

Dès l?annonce du diagnostic, la maladie chronique d?un enfant devient « l?affaire » de toute la famille. Après le choc, chacun des membres de la cellule familiale doit traverser, à son rythme, le processus d?adaptation à un nouveau mode de vie conditionné par l?état de santé de l?enfant. Ce livre permet aux parents de mieux comprendre les étapes de ce cheminement émotionnel et social ― pour l?enfant malade, la fratrie, la famille, le couple comme pour eux-mêmes en tant qu?individus ― et d?accompagner chacun en puisant à la fois dans les ressources personnelles et extérieures dont ils peuvent bénéficier.

ISBN

9782896196678

Language

French

Material Type

Book

Call Number

EF 850.5 CHA 2014

Copies

Author

Lauder, G.R.

Massey, Roslyn

Place of Publication

Bloomington, IN

Publisher

Xlibris Corporation

Publication Date

2010

Physical Description

Softcover, 100 pages.

Subject

Reflex Sympathetic Dystrophy. Causalgia

Coping with Pain

Coping with Chronic Illness Young Adult

Pain

Abstract

This book provides clear information for teenagers who develop Complex Regional Pain Syndrome (CRPS). It can be used as a tool to aid the early recognition of CRPS and implement the necessary team approach to management. Medical terms have been explained in a way that can be easily understood. The authors asked a focus group of teenagers? which included those who have been treated for CRPS ? to provide their feedback.

ISBN

9781453589953

Language

English

Material Type

Book

Call Number

YOUTH FM 630 LAU 2010a

Copies

Alternate Title

[La vie avant, pendant et apres: Les soins palliatifs pediatriques]

Author

Humbert, Nago

Place of Publication

Montreal, QC

Publisher

CHU Sainte-Justine

Publication Date

2012

Physical Description

Paperback, 335 p.

Subject

Coping with Chronic Illness-Children

Caregiving

Abstract

volution des pratiques médicales inclut dorénavant le développement des soins palliatifs pédiatriques. En effet, la spécificité de la prise en charge des enfants et des adolescents vivant avec une pathologie pouvant menacer leur vie a été démontrée grâce à l'expertise et au travail de réflexion entrepris et soutenu par des intervenants spécialisés, autant en Amérique du Nord qu'en Europe.

La recherche dans ce domaine soulève certaines problématiques particulières, à la fois sur les plans médical, psychologique, éthique, émotionnel, relationnel et spirituel. En regroupant et en explorant plusieurs d'entre elles - contexte de périnatalité ou de handicap, gestion de la douleur, poursuite de la scolarité, rôle du pédiatre et de l'infirmière, souffrance des membres de la famille et des soignants, décès à l'urgence, impacts des décisions concernant l'alimentation, les niveaux de soins et la non-réanimation, possible conflit opposant famille et équipe de soins, importance du suivi de deuil...-, ce livre contribue à donner à chaque jeune patient un encadrement global et adéquat visant la meilleure qualité de vie possible dans le respect de son développement. Référence essentielle, il témoigne de la complexité des gestes et des décisions des soignants qui, ne pouvant plus guérir la maladie, sont appelés à soulager tous les malaises du petit malade et de sa famille, y comprix ceux de l'âme.

ISBN

9782896196197

Language

French

Material Type

Book

Call Number

EF 850.5 HUM 2012 STACKS

Copies

Author

Mecklinger, Elise

Place of Publication

[Toronto, ON]

Publisher

Princess Margaret Hospital Foundation

Publication Date

2006

Physical Description

Paperback, 200 p. : ill.

Subject

Cancer-Nutritional Support. Cachexia

Cancer-Coping

Cookbooks

Abstract

A practical cookbook containing over 100 recipes to help people living with cancer to manage eating difficulties (loss of appetitie, nausea, taste changes, swallowing difficulties, diarrhea) during cancer treatment. The final chapter contains information on healthy eating after treatment.

ISBN

0978049608

Language

English

Material Type

Book

Call Number

FE 260 MEC 2006

Copies

Author

Fernando, Peter

Place of Publication

Boulder

Publisher

Shambhala Publications, Inc.

Publication Date

2016

Physical Description

Softcover ; ix, 222 p.

Subject

Mindfulness

Mind/Body

Chronic Illness

Chronic Pain

Emotional Health

Self-Concept (includes self-esteem)

Abstract

"'Let your illness be your spiritual teacher!' Make a statement like that to someone who's struggled for years with, say, rheumatoid arthritis, and be prepared for an eye roll (at best). To Peter Fernando's credit, he makes that statement, and no such impulse arises. We believe him because he's been there himself and because he backs up the statements with his own real experiences and with real wisdom from the Buddhist teachings. Fernando starts by defusing the pernicious belief that anyone is somehow responsible for their illness: you're not "wrong" for being sick. Then, having gotten past self-blame, one can begin to learn self-kindness. From there, one moves to mindfulness practices and cultivating body awareness?even if body awareness is distasteful when the body isn't behaving the way you like. Further topics include getting intimate with dark emotions (fear, despair, the scary future, frustration, grief, etc.), learning equanimity (rejoicing in the good fortune of those who don't share your suffering), cultivating healthy relationships in the midst of everything, and practical advice for living with pain. Each chapter comes with one or more practices or guided meditations for putting the teachings into practice"--from publisher.

ISBN

9781611802634

Language

English

Material Type

Book

Call Number

EF 850 FER 2016

Copies

Author

Lynne, Kira

Place of Publication

[Canada]

Publisher

Moppet Press

Publication Date

2016

Physical Description

Softcover ; xxv, 361 p.

Subject

Chronic Pain

Relationships

Dating

Abstract

"Having been told by a doctor 20 years ago that I'd never be able to have a relationship due to my chronic pain, and having proved her wrong, I've set out to write a book for those who are living with chronic pain and illness and who have given up on or are struggling with relationships.

"It is possible to live well with chronic pain and illness, and it is possible to form lasting, loving relationships. In my book I provide you with a step-by-step guide to getting the love you want, regardless of your physical condition"--from publisher.

ISBN

9780994993502

Language

English

Material Type

Book

Call Number

FM 830 LYN 2016

Copies