Author

Schrooten, A.F.

Markovitz, B.P.

Place of Publication

Switzerland

Publisher

Springer International Publishing AG

Publication Date

2021

Physical Description

251 pages

Subject

Coping with Chronic Illness-Children

Abstract

This book tells true and poignant stories from both sides of the physician-patient/parent relationship and provides a unique glimpse into how parents and physicians think, feel, and interact. The stories are grouped under four sections: Hope, Compassion, Communication, and Trust.

Each section includes stories contributed by parents from all across the United States and by pediatricians practicing at many of the best children's hospitals throughout the country. The parents tell of interactions with physicians that had a significant impact on them and their child and offer context and insight that promote empathy and reflection. The physicians tell of interactions with patients and families that served as learning moments in their career and promote the humanization of medicine and show there is more to a physician beyond their scientific knowledge and white coat.

The stories are edited by Barry P. Markovitz - a pediatrician specializing in critical care medicine who has been in practice for more than 20 years and by Ann F. Schrooten - the parent of a child born with a chronic complex condition who has more than 15 years of experience interacting with pediatric subspecialists and other healthcare professionals who cared for her son. The editors have written commentaries to the stories to provide an independent perspective on the events and messages conveyed and to encourage reflection, inquiry, and discussion.

In addition to being a valuable resource for pediatricians, pediatric subspecialists, nurses and other healthcare professionals, the book will also appeal to families of children living with complex medical conditions because it shares physician encounters and behaviors many have experienced in the care of their own children. By giving a voice to both parents and physicians, the goal is to create a bridge to better understanding that can improve communication, minimize conflicts, and foster trust and compassion among physicians, patients, and families.

ISBN

9783030680206

Language

English

Material Type

Book

Call Number

EF 850.5 SCH 2021b

Copies

Author

MacNamara, Deborah

Place of Publication

Vancouver, BC

Publisher

Aona Books

Publication Date

2023

Physical Description

Soft copy; 302 pages

Subject

Feeding and Nutrition

Abstract

What does it mean to be nourished?

Nothing could be more basic than food. However, food is only one part of the concept of nourishment, but it has consumed our focus and eclipsed something far more critical for thriving - connection. We have lost sight of the fact that feeding our families is about human relationship and emotional well-being.

In Nourished, developmental and relational clinical counsellor Dr. Deborah MacNamara shows us how feeding is part of the caretaking relationship and cannot be separated from it. Informed by attachment science, developmental psychology, neuroscience, and research on human emotion, Nourished reframes our approach to providing for our kids and helps us hit the reset button on our relationship with food. After reading this seminal work, it will be impossible to ever view food as just plain food again.

As parents we need our kids to be receptive to what we offer but the road to the stomach must go through the heart. As relational and emotional creatures, our deepest hunger is one that food by itself cannot fill. In this book, Dr. MacNamara gives us the keys to transform the everyday act of feeding our children (and other loved ones) into a most fulfilling and nourishing dance of attachment. Based on developmental and relational science, qualitative research with families, counselling parents, and her own experience as a mother, in Nourished, MacNamara combines storytelling with science and puts food in its rightful place.

ISBN

9780995051249

Language

English

Material Type

Book

Call Number

BB 200 MAC 2023

Copies

Author

Charlton, Tyler

Place of Publication

New York, NY

Publisher

Roaring Brook Press

Publication Date

2023

Physical Description

Hardcover; 40 pages

Subject

Depression

Abstract

When a boy is swept up in a wave of sadness, he finds himself tumbling. But when he remembers that this sadness won't last forever, and that the wave will eventually carry him back to shore, he discovers his friends and family waiting to gently pull him out of the water and back home.

ISBN

9781250842039

Language

English

Material Type

Book

Call Number

JUNIOR CD 302 CHA 2023

Copies

Alternate Title

NowMaps Jr.

Author

Siegel, Daniel J.

Place of Publication

Eau Claire, WI

Publisher

PESI Publishing

Publication Date

2022

Physical Description

Hardcover; 55 pages

Subject

Emotional Health

Mindfulness

Abstract

Written by world-renowned neuropsychiatrist and co-author of The Whole-Brain Child, Dr. Dan Siegel, NowMaps Jr. is a delightful rhyming story that introduces kids to the neuroscience of early childhood social-emotional learning in a captivating, interactive way! Kids ages 3-6 will love this beautifully illustrated choose-your-own adventure book that whisks them off to distant lands - including a jungle, a desert, and a pirate ship - as they learn about their thoughts, feelings, and sensory experiences.

ISBN

9781683735328

Language

English

Material Type

Book

Call Number

JUNIOR CA 200 SIE 2022

Copies

Author

Carter, Bryan D.

Kronenberger, William G.

Scott, Eric L.

Place of Publication

Oxford, UK

Publisher

Oxford University Press

Publication Date

2020

Physical Description

Softcover; 113 pages

Series

Programs that work

Subject

Coping with Chronic Illness Young Adult

Coping with Chronic Illness

Coping with Chronic Illness-Children

Abstract

Children and adolescents with chronic illnesses, particularly those accompanied by debilitating, painful, and/or fatiguing symptoms, face challenges that may prove disruptive to physical, psychological, and social development. Based on extensive research and clinical expertise, Children's Health and Illness Recovery Program (CHIRP) is an effective treatment program designed to build and maintain independence in young people with chronic illness.

This Teen and Family Workbook provides proven treatment activities designed to combat the additional stress faced by youth coping with long-term health problems. These tasks target key areas for improvement in physical functioning, school functioning, and personal functioning and support the creation of new tools for managing the impact of illness, such as stress management, coping and relaxation techniques, and communication skills. In-session and take-home activities outlined in this workbook are meant to accompany the companion CHIRP Clinician Guide. With the use of this workbook and supported by a network of clinicians, healthcare specialists, and school professionals, adolescents and their families can return to a better quality of life.

ISBN

9780190070472

Language

English

Material Type

Book

Call Number

EF 850.6 CAR 2020

Copies

Author

Carter, Bryan D.

Kronenberger, William G.

Scott, Eric L.

Brady, Christine E.

Place of Publication

Oxford, UK

Publisher

Oxford University Press

Publication Date

2020

Physical Description

Softcover; 173 pages

Series

Programs that work

Subject

Coping with Chronic Illness Young Adult

Coping with Chronic Illness

Coping with Chronic Illness-Children

Abstract

Youth with chronic illnesses face challenges that may prove disruptive to physical, psychological, and social development. Based on extensive research and clinical expertise, Children's Health and Illness Recovery Program (CHIRP) is an interdisciplinary cognitive behavioral and family systems-based treatment program designed to maximize the independent functioning of teens with chronic illness.

This Clinician Guide offers a detailed outline for implementing this manualized intervention and provides clear guidance as to the philosophy, pragmatics, and art of working with challenging pediatric conditions. Designed to accompany the CHIRP Teen and Family Workbook, this book addresses specific assessment measures and tools needed to establish a collaborative treatment team approach that incorporates the skills of the CHIRP clinician, primary and specialty care providers, and roles of other healthcare (physical therapists, occupational therapists, etc.) and educational professionals critical to the successful management and treatment of these youth.

ISBN

9780190070267

Language

English

Material Type

Book

Call Number

EF 850.6 CAR 2020b

Copies

Author

Sileo, Frank J.

Potter, Carol S.

Place of Publication

Washington, DC

Publisher

American Psychological Association

Publication Date

2021

Physical Description

Softcover; 419 pages

Subject

Coping with Chronic Illness-Children

Coping with Chronic Illness in the Family

Coping with Chronic Illness-Young Adult

Abstract

Written by leading mental health professionals, this warm and accessible parenting book for children with chronic illnesses offers clear, practical guidance for all aspects of the journey. It is recommended by professionals at the American Diabetes Association, Invisible Disabilities Association, the Crohn's Colitis Foundation, and other expert national and regional sources.

For all its joys, parenting is a complex job, and when your child has a chronic illness, the stress can feel overwhelming. When your child is diagnosed, you begin a parenting journey filled with strong emotions, difficult choices, confusing words, and interactions with numerous professionals and specialists.

You're focused on ensuring your child gets the best possible treatments for their symptoms, so it's easy to overlook or dismiss the impact the illness can have on your relationships and emotions. This book places your psychological well-being front and center, so you can be the best caregiver possible for your child.

Along with suggestions for making laughter and mindfulness part of your daily self-care routine, it offers guidance for choosing the right therapist for your family, should extra support be needed. Every family's journey with chronic illness is unique, but you don't have to go it alone.

ISBN

9781433833816

Language

English

Material Type

Book

Call Number

EF 850.5 SIL 2021

Copies

Author

Averton, Niki

Perry, Nicole

Stone, Lyn [ill.]

Publisher

Phoenix Society

Publication Date

2020

Physical Description

Softcover; illustrated; no pagination

Subject

Burns - Coping

Abstract

Sara?s STEPS is designed to help preschool and elementary school-age burn survivors, their siblings, and children of burn survivors.

Young readers will learn:

- How to manage staring

- How to respond to comments from other children and adults

- How to answer questions

- How to end an uncomfortable conversation

Using Sara's story as a guide, help children develop skills to feel more confident talking about their own or their loved one?s burn injury in social situations.

ISBN

9798635396612

Language

English

Material Type

Book

Call Number

JUNIOR FO 950 AVE 2020

Copies

Alternate Title

Ollie the octopus : Loss and bereavement activity book

Author

Triesman, Karen

Peacock, Sarah [ill.]

Place of Publication

London, UK and Philadelphia, PA

Publisher

Jessica Kingsley Publishers

Publication Date

2021

Physical Description

softcover; 251 pages

Subject

Coping with Death

Grief.Bereavement

Abstract

In a magical underwater forest lived a colourful and loveable Octopus called Ollie, who loved swimming with his friends and spending time with his mum and dad, Orla and Orson the Octopuses.

Until one day, Orla started to get very sick. The doctors did everything they could to help her, but very sadly, Orla died. Ollie had so many thoughts and feelings spinning around in his head, and his heart was hurting.

This activity book has been developed by expert child Psychologist and bestselling author Dr. Karen Treisman. The first part of the book is a colourful illustrated therapeutic story about Ollie the Octopus, with a focus on Ollie making sense of and processing the loss of his mum, Orla. This is followed by a wealth of creative activities and colourful photocopiable worksheets for children and the people supporting them to explore aspects of loss, grief, death, and bereavement, and how to find ways to understand and cope with them.

The final section of the book is full of advice and practical strategies for parents, carers, and professionals on how to help children aged 5-10 to begin to understand the complex and multi-layered feelings surrounding loss and bereavement, and what they can do to help navigate them through their grief journey.

ISBN

9781787757660

Language

English

Material Type

Book

Call Number

GV 250 TRE 2021

Copies

Alternate Title

What on earth do you do when someone dies? Second edition

Author

Romain, Trevor

Verdick, Elizabeth (Editor)

Edition

second edition

Place of Publication

Minneapolis, MN

Publisher

Free Spirit Publishing

Publication Date

2023

Physical Description

paperback: 84 pages

Subject

Coping with Death

Children and Grief

Children-Coping with Death and Dying

Grief. Bereavement

Abstract

Describes the many emotions involved in dealing with the death of a loved one and discusses how to work through such a situation.

ISBN

9798765922569

Language

English

Material Type

Book

Call Number

JUNIOR GV 250 ROM 2023

Copies

Author

Nimmo, Stephanie

Place of Publication

London, UK

Publisher

Jessica Kingsley Publishers

Publication Date

2024

Physical Description

Softcover; 272 pages

Subject

Coping with Chronic Illness-Children

Caregivers-Coping

Caregivers for a Dying Loved One

Abstract

Every parent wants the same thing: for their child to enjoy a long and fulfilling life. But what happens when things don't go according to plan? What happens when parents have to become advocates for their child's healthcare needs? Who decides what is in a child's 'best interests'?

Stephanie Nimmo faced these questions first-hand when her daughter, Daisy, was diagnosed with a life-limiting condition as a baby. Seen through the lens of Stephanie's own experiences, this sensitive book delves into the complex world of medical ethics and pediatric palliative care. From recognizing tipping points to the importance of building relationships with palliative care teams well before crisis, this book explores how medical professionals can better support families throughout their child's care.

Interviews with clinicians and snapshots from the lives of patients' families provide insight into the realities of life on both sides of the hospital bed. Compassionate explanations of the conflicting pressures in the hospital system foster understanding and help medical professionals and families work together.

ISBN

5727227010272

Language

English

Material Type

Book

Call Number

EF 850.5 NIM 2024

Copies

Author

Olsher, Sara

Rogers, Jenni

Place of Publication

Happy Valley, OR

Publisher

Mighty and Bright

Publication Date

2023

Physical Description

Softcover; 39 pages

Subject

Coping with Chronic Illness in the Family

Abstract

Join Mia and Stewart as they learn how bodies work, why some bodies don't always feel good, and what to do when someone they love has an illness that won't go away.

ISBN

9798986776538

Language

English

Material Type

Book

Call Number

JUNIOR EF 860 OLS 2023

Copies

Author

Olsen, Angus

Publisher

Angus Olsen

Publication Date

2021

Physical Description

Paperback; [28p.]

Subject

Cancer - Coping

Cancer Therapy. Cancer Therapy - Combined Modalities

Children with Cancer

Children with Cancer-Coping

Abstract

My Scans is a simple book for children designed in collaboration with parents of oncology children to help with anxiety associated with scans. This book includes short descriptions of experiences associated with Ultrasounds, PET scans, CT scans and MRI scans.

ISBN

9780645151053

Language

English

Material Type

Book

Call Number

JUNIOR FE 550 OLS 2021c

Author

Boivin, Lisa

Place of Publication

Winnipeg, MB

Publisher

HighWater Press

Publication Date

2020

Physical Description

Hardcover; Non-paginated

Subject

Grief.Bereavement

Coping with Death

Indigenous

Cremation

Abstract

When the author learns of the death of her brother overseas, she embarks on a journey to bring him home. Through memories and dreams of all they shared together, she follows Dene teachings to find comfort and strength. The lyrical art and story leave readers with a universal message of hope and love.

ISBN

9781553798552

Language

English

Material Type

Book

Call Number

YOUTH GV 200 BOI 2020

Copies

Author

Young, Catherine

Harrison, Freya (ill.)

Leschnikoff, Nancy (ill.)

Fox, Christyan (ill.)

Jeffries, Stephanie (designer)

Editor

Brooks, Felicity

Place of Publication

London, UK

Publisher

Usborne Publishing

Publication Date

2020

Physical Description

Softcover; 223 pages

Subject

Promoting Health/Preventing Disease

Abstract

Written in an approachable, engaging style, this book takes a detailed and sometimes humorous look at how to have a healthy, happy lifestyle. Readers are given advice about healthy eating and exercise; managing the pressures of the teenage years; how to get enough sleep, navigate friendships and relationships, and look after their mental health. The overall aim of the book is to encourage achievable, positive lifestyle changes. All information is based on current thinking, recommendations and guidelines. Quick links take readers to further sources of information and advice if needed.

Part of the Live-5-2-1-0 collection.

ISBN

9781474982757

Language

English

Material Type

Book

Call Number

JUNIOR BA 100 YOU 2020

Copies

Author

Olsher, Sara

Place of Publication

[Santa Rosa, CA]

Publisher

Mighty and Bright

Publication Date

2021

Physical Description

Softcover; no pagination

Series

A what about me? book - Starring Mia + Stuart

Subject

Children with Cancer-Coping for Siblings

Sibling Relationships

Abstract

Join Mia and her stuffed giraffe Stuart as they explain the science of cancer and how a loved one's diagnosis and treatment affects a kid's day-to-day life.What Happens When My Sibling Has Cancer uses bright and fun illustrations to show how cells can turn into cancer, and helps reduce confusion about how cancer treatment affects the child and their siblings.

Notes

For ages 4 - 10

ISBN

9781736611487

Language

English

Material Type

Book

Call Number

JUNIOR FE 557 OLS 2021

Copies

Author

Boivin, Lisa

Place of Publication

Winnipeg, MB

Publisher

HighWater Press

Publication Date

2021

Physical Description

Hardcover; Non-paginated

Subject

Grief.Bereavement

Children's Emotions

Coping with Death

Indigenous

Abstract

From Dene artist and bioethicist Lisa Boivin comes this healing story of hope, dreams, and the special bond between grandfather and granddaughter. When a little girl dreams about a bear, her grandfather explains how we connect with the knowledge of our ancestors through dreams. Bear, Hawk, Caribou, and Wolf all have teachings to share to help us live a good life. But when Grampa gets sick and falls into a coma, the little girl must lean on his teachings as she learns to say goodbye. Masterful prose and stunning collage weave a gentle story about life and death that will touch the hearts of children and adults alike.

Recommended for children aged 6-8.

ISBN

9781553799870

Language

English

Material Type

Book

Call Number

JUNIOR GV 200 BOI 2021

Copies

Author

Pelletier, Annie

Place of Publication

Sudbury, ON

Publisher

Independently published

Publication Date

2023

Physical Description

Softcover; 50 pages

Subject

Coping with a Sibling's Death

Pregnancy Loss. Miscarriage.

Abstract

In this inspiring story, a child tells us how they feel after losing their baby brother. Their grief journey is brought to life through illustrations, giving us a glimpse into their inner world. Helpful strategies and tips are also included.

ISBN

9798389765191

Language

English

Material Type

Book

Call Number

JUNIOR GV 259 PEL 2023

Copies

Editor

Sharman, Zena

Publisher

Arsenal Pulp Press

Publication Date

2021

Physical Description

351 p.

Subject

Transgender

Homosexuality(Gay, Lesbian Health Issues)

Abstract

What if you could trust in getting the health care you need in ways that felt good and helped you thrive? What if the health system honoured and valued queer and trans people''s lives, bodies, and expertise? What if LGBTQ+ communities led and organized our own health care as a form of mutual aid? What if every aspect of our health care was rooted in a commitment to our healing, pleasure, and liberation?

LGBTQ+ health care doesn't look like this today, but it could. This is the care we dream of.

The Care We Dream Of is not quite an essay collection, and not quite an anthology. Instead, it's a hybrid kind of book that weaves together the author's [sic] essays on topics like queering health and healing, transforming the health system, kinship, aging, and death, alongside stories, poetry and non-fiction pieces by Alexander McClelland and Zoe Dodd, Blyth Barnow, Carly Boyce, jaye simpson, Jillian Christmas, Joshua Wales, Kai Cheng Thom, Leah Lakshmi Piepzna-Samarasinha, and Sand C. Chang. The book also includes interviews with activists, health care workers and researchers whose work offers insights into what liberatory and transformative approaches to LGBTQ+ health can look like in practice. Interviewees include Anita "Durt" O'Shea (of St. James Infirmary), Dawn Serra, Hannah Kia, Ronica Mukerjee, and Sean Saifa Wall.

ISBN

9781551528601

Language

English

Material Type

Book

Call Number

GL 716 SHA 2021

Copies

Author

Lorenz, Theo Nicole

Place of Publication

London, Eng.

Publisher

Jessica Kingsley Publishers

Publication Date

2021

Physical Description

Softcover; 169 pages

Subject

Young Adults-Gender Identity & Expression

Abstract

If you're transgender, non-binary, or any other gender under the wide and wonderful trans umbrella, this book is for you. A creative journal and workbook with a difference, this book combines coloring pages celebrating trans identity, beauty and relationships, with practical advice, journaling prompts and space for reflection to promote self-affirmation and wellbeing.

Drawing on CBT and mindfulness techniques, the book covers topics including body positivity and neutrality, coming out, euphoria and dysphoria, building new friendships and navigating relationships with your friends and family, and is the go-to resource for anybody who has ever felt the pressure to conform to a singular definition or narrative.

Theo Nicole Lorenz's heart-warming and empowering illustrations of trans people will provide reassurance that you are never alone, and are a reminder to always treat yourself kindly.

ISBN

9781787753433

Language

English

Material Type

Book

Call Number

YOUTH GL 716 LOR 2021

Copies