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Girls speak out: Support groups for young women with experiences of violence: Facilitator's guide

https://bcch.andornot.com/en/permalink/catalog114807
Godard, Louise, Cory, Jill, Armstrong, Naomi et all. [Vancouver, BC?]: BC Women's Hospital + Health Centre , 2016.
URL
http://www.cw.bc.ca/library/pdf/Pamphlets/girlsspeakout.pdf
Material Type
Online
Booklet
This resource provides information about violence and BC Women's Hospital and Health Centre, Girls Speak Out program, its curriculum and some recommended websites about this topic. It's aimed to support women with experiences of violence.
  1 url  
URL
http://www.cw.bc.ca/library/pdf/Pamphlets/girlsspeakout.pdf
Website Notes
Click on the link above to view/print.
Author
Godard, Louise
Cory, Jill
Armstrong, Naomi et all.
Editor
Sullivan, Lana
Pederson, Ann
Pigeon, Marguerite
Place of Publication
[Vancouver, BC?]
Publisher
BC Women's Hospital + Health Centre
Publication Date
2016
Physical Description
PDF file, 129 p., ill.
Subject
Violence Prevention
Women's Health
Abstract
This resource provides information about violence and BC Women's Hospital and Health Centre, Girls Speak Out program, its curriculum and some recommended websites about this topic. It's aimed to support women with experiences of violence.
ISBN
0000000001234
Language
English
Material Type
Online
Booklet
URLs
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Sex ed for people with I/DD

https://bcch.andornot.com/en/permalink/catalog124174
National Council on Radiation Protection and Measurements. Washington, DC: National Council on Independant Living , 2019.
URL
https://www.youtube.com/playlist?list=PLuEvYNNQ-dHeVhbyeJHx9s8oqsvBk621v
Material Type
Video
Online
This YouTube playlist includes 10 informational videos on sex education for people with intellectual and/or developmental disabilities.
  1 url  
URL
https://www.youtube.com/playlist?list=PLuEvYNNQ-dHeVhbyeJHx9s8oqsvBk621v
Corporate Author
National Council on Radiation Protection and Measurements
Place of Publication
Washington, DC
Publisher
National Council on Independant Living
Publication Date
2019
Subject
Intellectual disability
Developmental Disabilities
Sex Education
Sexuality
Abstract
This YouTube playlist includes 10 informational videos on sex education for people with intellectual and/or developmental disabilities.
Language
English
Material Type
Video
Online
URLs
Show Less

Ectopic pregnancy

https://bcch.andornot.com/en/permalink/catalog113050
[Vancouver, BC?]: BC Women's Hospital & Health Centre , 2014.
URL
http://www.cw.bc.ca/library/pdf/pamphlets/BCW933_EctopicPregancy_2014.pdf
Material Type
Handout
Online
Call Number
BCW933
This pamphlet provides information about ectopic pregnancy, including what it is, how do you know if you have an ectopic pregnancy, what tests you need, and what the treatment options are.
  1 image     1 url  
URL
http://www.cw.bc.ca/library/pdf/pamphlets/BCW933_EctopicPregancy_2014.pdf
Website Notes
Click the link to view or print.
Place of Publication
[Vancouver, BC?]
Publisher
BC Women's Hospital & Health Centre
Publication Date
2014
Physical Description
PDF: 4 p.
Subject
Women's Health. Gynecology
Pregnancy Complications
Abstract
This pamphlet provides information about ectopic pregnancy, including what it is, how do you know if you have an ectopic pregnancy, what tests you need, and what the treatment options are.
Language
English
Material Type
Handout
Online
Call Number
BCW933
Images
URLs
Show Less

Maya's special eye: Microphthalmia

https://bcch.andornot.com/en/permalink/catalog113706
Department of Pediatric Ophthalmology. [Vancouver, BC?]: BC Children's Hospital , 2015.
URL
http://www.cw.bc.ca/library/pdf/pamphlets/Maya's%20Special%20Eye_2015_Dec.pdf
Material Type
Handout
Online
  1 url  
URL
http://www.cw.bc.ca/library/pdf/pamphlets/Maya's%20Special%20Eye_2015_Dec.pdf
Website Notes
Click on the link above to view/print the pamphlet.
Corporate Author
Department of Pediatric Ophthalmology
Place of Publication
[Vancouver, BC?]
Publisher
BC Children's Hospital
Publication Date
2015
Physical Description
PDF file; 15 p.
Subject
Ophthalmologist
Eye/Eye Diseases-Children
Language
English
Material Type
Handout
Online
URLs
Show Less

Welcome to BC Women's diabetes in pregnancy service

https://bcch.andornot.com/en/permalink/catalog114297
BC Women's Hospital - Diabetes Service. [Vancouver, BC?]: BC Women's Hospital + Health Centre , 2014.
URL
http://www.cw.bc.ca/library/pdf/pamphlets/BCW56G_GestationalDiabetes.pdf
Material Type
Pamphlet
Online
Call Number
BCW56-G
This pamphlet provides general information about BC Women's diabetes in pregnancy service, gestational diabetes and related questions and answers, suggested physical activities, nutrition during pregnancy with diabetes and blood sugar testing instructions.
  1 url  
URL
http://www.cw.bc.ca/library/pdf/pamphlets/BCW56G_GestationalDiabetes.pdf
Website Notes
Click on link above to view/print
Corporate Author
BC Women's Hospital - Diabetes Service
Place of Publication
[Vancouver, BC?]
Publisher
BC Women's Hospital + Health Centre
Publication Date
2014
Physical Description
PDF File, 15 p.
Subject
Pregnancy in Diabetes. Gestational Diabetes
Pregnancy/Childbirth. Obstetrics
Diabetes
Abstract
This pamphlet provides general information about BC Women's diabetes in pregnancy service, gestational diabetes and related questions and answers, suggested physical activities, nutrition during pregnancy with diabetes and blood sugar testing instructions.
Notes
BCW56-G
Language
English
Material Type
Pamphlet
Online
Call Number
BCW56-G
URLs
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Welcome to BC Women's diabetes in pregnancy service

https://bcch.andornot.com/en/permalink/catalog114298
BC Women's Hospital - Diabetes Service. [Vancouver, BC?]: BC Women's Hospital + Health Centre , 2016.
URL
http://www.cw.bc.ca/library/pdf/pamphlets/BCW56G-TCh_GestationalDiabetes.pdf
Material Type
Handout
Online
Call Number
BCW56-G (CH)
This pamphlet provides general information about BC Women's diabetes in pregnancy service, gestational diabetes and related questions and answers, suggested physical activities, nutrition during pregnancy with diabetes and blood sugar testing instructions.This pamphlet is in Chinese.
  1 url  
URL
http://www.cw.bc.ca/library/pdf/pamphlets/BCW56G-TCh_GestationalDiabetes.pdf
Website Notes
Click on link above to view/print
Corporate Author
BC Women's Hospital - Diabetes Service
Place of Publication
[Vancouver, BC?]
Publisher
BC Women's Hospital + Health Centre
Publication Date
2016
Physical Description
PDF File, 17 p.
Subject
Pregnancy in Diabetes. Gestational Diabetes
Pregnancy/Childbirth. Obstetrics
Diabetes
Abstract
This pamphlet provides general information about BC Women's diabetes in pregnancy service, gestational diabetes and related questions and answers, suggested physical activities, nutrition during pregnancy with diabetes and blood sugar testing instructions.This pamphlet is in Chinese.
Notes
BCW56-G (CH)
Language
Chinese
Material Type
Handout
Online
Call Number
BCW56-G (CH)
URLs
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Toddler's first steps: A best chance guide to parenting to parenting your 6-to-36 month-old child

https://bcch.andornot.com/en/permalink/catalog124166
HealthLinkBC , 2022.
URL
https://www.healthlinkbc.ca/pregnancy-parenting/toddlers-first-steps
Material Type
Website
Online
Toddler's First Steps provides trusted information on how to nurture the healthy development of your child. As your child grows, they will learn and change at an amazing speed. This resource provides guidance on how to support your child as they go through the many stages of toddlerhood and encount…
  1 url  
URL
https://www.healthlinkbc.ca/pregnancy-parenting/toddlers-first-steps
Publisher
HealthLinkBC
Publication Date
2022
Subject
Pregnancy
Toddlers
Parenting
Child Health - Diet/Nutrition
Child Development
Childcare
Abstract
Toddler's First Steps provides trusted information on how to nurture the healthy development of your child. As your child grows, they will learn and change at an amazing speed. This resource provides guidance on how to support your child as they go through the many stages of toddlerhood and encounter new experiences such as the arrival of a new baby or entering child care. You will also find information on where to find additional resources to support you and your family.
Language
English
Chinese
French
Arabic
Farsi (Persian)
Punjabi
Spanish
Tagalog
Material Type
Website
Online
URLs
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Pregnancy and Spinal Cord Injury : An information booklet for women with SCI

https://bcch.andornot.com/en/permalink/catalog121784
Vancouver Coastal Health Sexual Rehabilitation Service, BC Women's Hospital and Health Centre Maternal Fetal Medicine Service, Rick Hansen Institute, Spinal Cord Injury BC (SCI BC). [Vancouver, BC?]: Spinal Cord Injury Organization of BC , 2015.
URL
https://scisexualhealth.ca/wp-content/uploads/2015/05/Pregnancy-and-SCI-booklet-V7.pdf
Material Type
Booklet
Online
We have created this booklet to highlight a number of key topics for women with SCI (spinal cord injury) and their families to consider during the perinatal period, defined as the time before conceiving (pre-conception), pregnancy, labour, delivery and postpartum (the first few days and weeks after…
  1 document     1 url  
URL
https://scisexualhealth.ca/wp-content/uploads/2015/05/Pregnancy-and-SCI-booklet-V7.pdf
Corporate Author
Vancouver Coastal Health Sexual Rehabilitation Service
BC Women's Hospital and Health Centre Maternal Fetal Medicine Service
Rick Hansen Institute
Spinal Cord Injury BC (SCI BC)
Place of Publication
[Vancouver, BC?]
Publisher
Spinal Cord Injury Organization of BC
Publication Date
2015
Subject
Spinal Cord Injuries
Pregnancy/Childbirth
Prenatal Care
Postnatal Care
Abstract
We have created this booklet to highlight a number of key topics for women with SCI (spinal cord injury) and their families to consider during the perinatal period, defined as the time before conceiving (pre-conception), pregnancy, labour, delivery and postpartum (the first few days and weeks after a baby is born).
The topics covered in this guide are designed as a place to start the conversation with your health care providers as part of planning for your care.
Language
English
Material Type
Booklet
Online
Documents

Pregnancy and SCI booklet.pdf

Read PDF Download PDF
URLs
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Mirror Read: Mobile App (iOS)

https://bcch.andornot.com/en/permalink/catalog124775
Mirror Read. , No Date.
URL
https://apps.apple.com/nz/app/mirror-read/id394381695
Material Type
Online
Mirror Read transforms reading, and learning, for everyone: Teachers, Parents, Students, Reading Professionals, Researchers, and everyone from around in the world who is looking to play in reverse - in any language
  1 url  
URL
https://apps.apple.com/nz/app/mirror-read/id394381695
Corporate Author
Mirror Read
Publication Date
No Date
Physical Description
Mobile App
Subject
Perceptual Ability
Learning Differences. Learning Disabilities
Child Development
Abstract
Mirror Read transforms reading, and learning, for everyone: Teachers, Parents, Students, Reading Professionals, Researchers, and everyone from around in the world who is looking to play in reverse - in any language
Language
English
Material Type
Online
URLs
Show Less

Antepartum: Partners in patient safety: Working together to keep you safe at BC Women's Hospital

https://bcch.andornot.com/en/permalink/catalog112062
Department of Quality, Safety & Outcome Improvement. [Vancouver, BC?]: BC Women's Hospital , 2013.
URL
http://www.cw.bc.ca/library/pdf/pamphlets/BCW904_AP-PartnersInPatientSafety_2013.pdf
Material Type
Pamphlet
Online
Call Number
BCW904
A pamphlet for women staying in the Antepartum Unit at BC Women's, with 8 points about how best to take an active role in your care.
  1 image     1 url  
URL
http://www.cw.bc.ca/library/pdf/pamphlets/BCW904_AP-PartnersInPatientSafety_2013.pdf
Website Notes
Click on the link above to view/print.
Corporate Author
Department of Quality, Safety & Outcome Improvement
Place of Publication
[Vancouver, BC?]
Publisher
BC Women's Hospital
Publication Date
2013
Physical Description
PDF file: 4 p.
Subject
Patient Education
Patient Relations
Abstract
A pamphlet for women staying in the Antepartum Unit at BC Women's, with 8 points about how best to take an active role in your care.
Language
English
Material Type
Pamphlet
Online
Call Number
BCW904
Images
URLs
Show Less

Partners in patient safety: Working together to keep you safe at Children's & Women's Mental Health

https://bcch.andornot.com/en/permalink/catalog112165
BC Mental Health & Addiction Services. [Vancouver, BC?]: BC Children's & BC Women's Hospitals , 2013.
URL
http://www.cw.bc.ca/library/pdf/pamphlets/PHSA319_PartnersInPatientSafety_KeepYOUSafe_2013.pdf
Material Type
Pamphlet
Online
Call Number
PHSA319
Gives information to parents and guardians on how to best work together with your child's health care team to keep your child safe during their stay at Children's & Women's Mental Health.
  1 image     1 url  
URL
http://www.cw.bc.ca/library/pdf/pamphlets/PHSA319_PartnersInPatientSafety_KeepYOUSafe_2013.pdf
Website Notes
Click on the link above to view/print.
Corporate Author
BC Mental Health & Addiction Services
Place of Publication
[Vancouver, BC?]
Publisher
BC Children's & BC Women's Hospitals
Publication Date
2013
Physical Description
PDF file: 3 p.
Subject
Consumer Health Issues
Patient Relations
Patient Education
Patient-Health Care Practitioner Relations. Doctor-Patient Relations.
Abstract
Gives information to parents and guardians on how to best work together with your child's health care team to keep your child safe during their stay at Children's & Women's Mental Health.
Language
English
Material Type
Pamphlet
Online
Call Number
PHSA319
Images
URLs
Show Less

Partners in patient safety: Working together to keep you and your baby safe at BC Women's Hospital

https://bcch.andornot.com/en/permalink/catalog112061
Department of Quality, Safety & Outcome Improvement. [Vancouver, BC?]: BC Women's Hospital & Health Centre , 2013.
URL
http://www.cw.bc.ca/library/pdf/pamphlets/BCW903_PPPartnersInPatientSafety_2013.pdf
Material Type
Pamphlet
Online
Call Number
BCW903
A pamphlet for women staying at BC Women's, with 8 points about how best to take an active role in your care.
  1 image     1 url  
URL
http://www.cw.bc.ca/library/pdf/pamphlets/BCW903_PPPartnersInPatientSafety_2013.pdf
Website Notes
Click on the link above to view/print.
Corporate Author
Department of Quality, Safety & Outcome Improvement
Place of Publication
[Vancouver, BC?]
Publisher
BC Women's Hospital & Health Centre
Publication Date
2013
Physical Description
PDF file: 4 p.
Subject
Consumer Health Issues
Patient Education
Patient Relations
Abstract
A pamphlet for women staying at BC Women's, with 8 points about how best to take an active role in your care.
Language
English
Material Type
Pamphlet
Online
Call Number
BCW903
Images
URLs
Show Less

Printing Like a Pro! A cognitive approach to teaching printing to primary school-age children: (For school staff)

https://bcch.andornot.com/en/permalink/catalog112197
Montgomery, Ivonne, Zwicker, Jill (ed.). [Vancouver, BC?]: Sunny Hill Health Centre for Children, Therapy Department , 2019.
URL
http://www.childdevelopment.ca/Libraries/Handwriting/Printing_Like_a_Pro_-_For_School_Staff.sflb.ashx
Material Type
Online
Handout
A printing program, developed by the Sunny Hill Health Research Centre Therapy Department, to support primary grade children learn the correct way to form each letter so that printing becomes easier and more automatic. This can also help to make printing neater and quicker. This printing program is…
  1 url  
URL
http://www.childdevelopment.ca/Libraries/Handwriting/Printing_Like_a_Pro_-_For_School_Staff.sflb.ashx
Website Notes
Click the link above to view or print.
Author
Montgomery, Ivonne
Zwicker, Jill (ed.)
Place of Publication
[Vancouver, BC?]
Publisher
Sunny Hill Health Centre for Children, Therapy Department
Publication Date
2019
Physical Description
PDF: 8 pages
Subject
Learning
Learning Differences. Learning Disabilities
Motor Development
Education. Schools
Abstract
A printing program, developed by the Sunny Hill Health Research Centre Therapy Department, to support primary grade children learn the correct way to form each letter so that printing becomes easier and more automatic. This can also help to make printing neater and quicker. This printing program is appropriate for all types of learners in primary grades. It was, however, developed specifically for students with motor learning challenges. It can be used one-on-one or in small group work.
Language
English
Material Type
Online
Handout
URLs
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Central venous line : What you need to know

https://bcch.andornot.com/en/permalink/catalog102673
Oncology/Haematology/BMT Department, Parenteral Therapy. Vancouver, BC: BC Children's Hospital , 2019.
URL
http://www.cw.bc.ca/Library/pdf/Pamphlets/BCCH1041_CVLWhatYouNeedtoKnow.pdf
Material Type
Handout
Online
Call Number
BCCH1041
This pamphlet looks at what a Central Venous Line (CVL) is, how it works, and why your child might need one. It also explains how doctors put a CVL in.
  1 image     1 url  
URL
http://www.cw.bc.ca/Library/pdf/Pamphlets/BCCH1041_CVLWhatYouNeedtoKnow.pdf
Alternate Title
CVL : What you need to know
Corporate Author
Oncology/Haematology/BMT Department
Parenteral Therapy
Place of Publication
Vancouver, BC
Publisher
BC Children's Hospital
Publication Date
2019
Physical Description
PDF file: 3 p.
Subject
Home Care Technology
Central Venous Catheter
Abstract
This pamphlet looks at what a Central Venous Line (CVL) is, how it works, and why your child might need one. It also explains how doctors put a CVL in.
Notes
Current as of Jan 2024
Language
English
Material Type
Handout
Online
Call Number
BCCH1041
Images
URLs
Show Less

What do I need to eat during pregnancy?

https://bcch.andornot.com/en/permalink/catalog113683
[Vancouver, BC?]: BC Women's Hospital + Health Centre , 2015.
URL
http://www.cw.bc.ca/library/pdf/pamphlets/BCW750_WhatToEatDuringPregnancy_2015.pdf
http://www.cw.bc.ca/library/pdf/pamphlets/BCW750_PrenatalNutritionCounsel_2015_Oct.pdf
Material Type
Handout
Online
Call Number
BCW750
  2 URLs  
URL
http://www.cw.bc.ca/library/pdf/pamphlets/BCW750_WhatToEatDuringPregnancy_2015.pdf
http://www.cw.bc.ca/library/pdf/pamphlets/BCW750_PrenatalNutritionCounsel_2015_Oct.pdf
Website Notes
Click on the links above to view/print the pamphlet
Link 1 is single pamphlet; link 2 is set of three.
Place of Publication
[Vancouver, BC?]
Publisher
BC Women's Hospital + Health Centre
Publication Date
2015
Physical Description
PDF files; 1 p.
Subject
Prenatal Care-Diet/Nutrition
Breastfeeding
Language
English
Material Type
Handout
Online
Call Number
BCW750
URLs
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Grandparents raising grandchildren: A legal guide

https://bcch.andornot.com/en/permalink/catalog111380
Parent Support Services Society of BC, University of Victoria School of Social Work. [Victoria, BC?]: Parent Support Services Society of BC; University of Victoria School of Social Work , 2014.
URL
www.parentsupportbc.ca/for-grandparents/
Material Type
Online
This book is of use to grandparents as well as the professionals and legal service providers that support them. It is based on interviews with nearly 200 grandparents across the; province of British Columbia who have had to deal with the issues and challenges of raising their grandchildren. It prov…
  1 url  
URL
www.parentsupportbc.ca/for-grandparents/
Corporate Author
Parent Support Services Society of BC
University of Victoria School of Social Work
Place of Publication
[Victoria, BC?]
Publisher
Parent Support Services Society of BC; University of Victoria School of Social Work
Publication Date
2014
Subject
Parenting Grandchildren
Legal Works
Abstract
This book is of use to grandparents as well as the professionals and legal service providers that support them. It is based on interviews with nearly 200 grandparents across the
province of British Columbia who have had to deal with the issues and challenges of raising their grandchildren. It provides legal information, useful tips and also lists community resources.
Language
English
Material Type
Online
URLs
Show Less

What you need to know about your PICC (Peripherally Inserted Central Catheter)

https://bcch.andornot.com/en/permalink/catalog108523
IV Home Therapy Program. [Vancouver, BC?]: BC Children's Hospital , 2020.
URL
http://www.cw.bc.ca/library/pdf/pamphlets/BCCH1383_PiccNeedToKnow.pdf
Material Type
Online
Handout
Call Number
BCCH1383
Information on what a PICC is, how to care for a PICC, and what to watch for.
  1 image     1 url  
URL
http://www.cw.bc.ca/library/pdf/pamphlets/BCCH1383_PiccNeedToKnow.pdf
Corporate Author
IV Home Therapy Program
Place of Publication
[Vancouver, BC?]
Publisher
BC Children's Hospital
Publication Date
2020
Physical Description
PDF, 4 p.
Subject
Drug Delivery Systems
Medical Equipment and Supplies (general works; includes medical devices)
Abstract
Information on what a PICC is, how to care for a PICC, and what to watch for.
Language
English
Material Type
Online
Handout
Call Number
BCCH1383
Images
URLs
Show Less

Guide for feeding your baby with a cleft lip and/or palate

https://bcch.andornot.com/en/permalink/catalog111020
Cleft Palate and Craniofacial Program. [Vancouver, BC?]: BC Children's Hospital , 2009.
URL
http://www.cw.bc.ca/library/pdf/pamphlets/BCCH1553_FeedingBabyWithCleftLipPalate_2009_Apr.pdf
Material Type
Handout
Online
Call Number
BCCH1553
This pamphlet provides information on breast or bottle feeding a newborn baby with a cleft lip and/or palate.
  1 image     1 url  
URL
http://www.cw.bc.ca/library/pdf/pamphlets/BCCH1553_FeedingBabyWithCleftLipPalate_2009_Apr.pdf
Corporate Author
Cleft Palate and Craniofacial Program
Place of Publication
[Vancouver, BC?]
Publisher
BC Children's Hospital
Publication Date
2009
Subject
Children with Facial Difference
Cleft Lip. Cleft Palate
Craniofacial Conditions
Breastfeeding
Abstract
This pamphlet provides information on breast or bottle feeding a newborn baby with a cleft lip and/or palate.
Notes
BCCH1553
Language
English
Material Type
Handout
Online
Call Number
BCCH1553
Images
URLs
Show Less

Quick guide to finding mental health services in BC

https://bcch.andornot.com/en/permalink/catalog113582
BC Mental Health & Substance Use Services. [Vancouver, BC?]: BC Children's Hospital , 2015.
URL
http://www.cw.bc.ca/library/pdf/pamphlets/PHSA404_QuickGuideToFindingMHServicesinBC_2015.pdf
Material Type
Handout
Online
  1 url  
URL
http://www.cw.bc.ca/library/pdf/pamphlets/PHSA404_QuickGuideToFindingMHServicesinBC_2015.pdf
Website Notes
Click on the link above to view/print.
Corporate Author
BC Mental Health & Substance Use Services
Place of Publication
[Vancouver, BC?]
Publisher
BC Children's Hospital
Publication Date
2015
Physical Description
PDF file: 2 p.
Subject
Mental Health
Language
English
Material Type
Handout
Online
URLs
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The diagnosis and management of Duchenne Muscular Dystrophy: A guide for families

https://bcch.andornot.com/en/permalink/catalog123812
Muscular Dystrophy Canada. Toronto, ON: Muscular Dystrophy Canada , 2019.
URL
https://muscle.ca/wp-content/uploads/2019/09/DMDstandardsofcare-EN.pdf
Material Type
Booklet
Online
This guide for families summarizes the results of an international consensus on the medical care of Duchenne muscular dystrophy (DMD). This effort was supported by the US Centers for Disease Control and Prevention (CDC), in collaboration with patient advocacy groups and the TREAT-NMD network. The m…
  1 url  
URL
https://muscle.ca/wp-content/uploads/2019/09/DMDstandardsofcare-EN.pdf
Corporate Author
Muscular Dystrophy Canada
Place of Publication
Toronto, ON
Publisher
Muscular Dystrophy Canada
Publication Date
2019
Subject
Muscular Dystrophy
Abstract
This guide for families summarizes the results of an international consensus on the medical care of Duchenne muscular dystrophy (DMD). This effort was supported by the US Centers for Disease Control and Prevention (CDC), in collaboration with patient advocacy groups and the TREAT-NMD network. The main document is published in Lancet Neurology.
The recommendations are based on an extensive study by 84 international experts in DMD diagnosis and care chosen to represent a broad range of specialties. They independently ?rated? methods of care used in the management of DMD to say how ?necessary?, ?appropriate? or ?inappropriate? each one was at different stages of the course of DMD. In total they considered more than 70,000 different scenarios. This allowed them to establish guidelines that the majority agreed represented the best practice for DMD care.
Language
English
Material Type
Booklet
Online
URLs
Show Less

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