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This booklet describes the condition, including the physiology of the adrenal pathway, but it has an emphasis on practical details, such as measuring/giving salt to infants, preventing adrenal crisis, giving emergency injections, etc. There is also a section on issues for families and girls whose f…
copy 1 BC Children's and Women's Family Library | Available |
Written by 9-year-old Daniel Kinchlea, this story is all about the first fire dragon and their search for help. The story mirrors Daniel's own understanding of his diagnosis journey as a young child.; About the author: At one year old, Daniel was diagnosed with a rare autoinflammatory disease. Caus…
BC Children's and Women's Family Library | Available |