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The first fire dragon: An autoinflammatory adventure

https://bcch.andornot.com/en/permalink/catalog124569
Kinchlea, Daniel, Bañas, Ar-Em. , 2023.
Material Type
Book
Call Number
JUNIOR FF 300 KIN 2023
Availability
1 copy, 1 available
Written by 9-year-old Daniel Kinchlea, this story is all about the first fire dragon and their search for help. The story mirrors Daniel's own understanding of his diagnosis journey as a young child.; About the author: At one year old, Daniel was diagnosed with a rare autoinflammatory disease. Caus…
Author
Kinchlea, Daniel
Bañas, Ar-Em
Publication Date
2023
Physical Description
Paperback; [no pagination]
Subject
Autoimmune Diseases
Abstract
Written by 9-year-old Daniel Kinchlea, this story is all about the first fire dragon and their search for help. The story mirrors Daniel's own understanding of his diagnosis journey as a young child.
About the author: At one year old, Daniel was diagnosed with a rare autoinflammatory disease. Caused by one or more genetic mutations, some of Daniel's symptoms include ongoing high fevers, rashes that cover his body, a rare blood disorder called macrophage activation system, Crohn's Disease, systemic arthritis, and interstitial lung disease.
His concept for the book was inspired by his unique experience as a rare disease patient and advocate.
ISBN
9798374718621
Language
English
Material Type
Book
Call Number
JUNIOR FF 300 KIN 2023

Copies

BC Children's and Women's Family Library Available
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BC Children's Hospital. [Vancouver, BC?]: BC Children's Hospital , 2018.
URL
http://www.cw.bc.ca/library/pdf/pamphlets/BCCH1957_bluespells.pdf
Material Type
Online
Handout
Call Number
BCCH 1957
This handout gives an overview of what to do when a child has a blue spell, also known as a tet spell or hypercyanotic spell.
  1 url  
URL
http://www.cw.bc.ca/library/pdf/pamphlets/BCCH1957_bluespells.pdf
Corporate Author
BC Children's Hospital
Place of Publication
[Vancouver, BC?]
Publisher
BC Children's Hospital
Publication Date
2018
Physical Description
PDF; 1 p.
Subject
Heart/Heart Diseases-Children
Abstract
This handout gives an overview of what to do when a child has a blue spell, also known as a tet spell or hypercyanotic spell.
Language
English
Material Type
Online
Handout
Call Number
BCCH 1957
URLs
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