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The first fire dragon: An autoinflammatory adventure

https://bcch.andornot.com/en/permalink/catalog124569

Kinchlea, Daniel, Bañas, Ar-Em. , 2023.

Material Type: Book

Call Number: JUNIOR FF 300 KIN 2023

Availability: 1 copy, 1 available

Written by 9-year-old Daniel Kinchlea, this story is all about the first fire dragon and their search for help. The story mirrors Daniel's own understanding of his diagnosis journey as a young child.; About the author: At one year old, Daniel was diagnosed with a rare autoinflammatory disease. Caus…

Author: Kinchlea, Daniel; Bañas, Ar-Em

Publication Date: 2023

Physical Description: Paperback; [no pagination]

Subject: Autoimmune Diseases

Abstract: Written by 9-year-old Daniel Kinchlea, this story is all about the first fire dragon and their search for help. The story mirrors Daniel's own understanding of his diagnosis journey as a young child.; About the author: At one year old, Daniel was diagnosed with a rare autoinflammatory disease. Caused by one or more genetic mutations, some of Daniel's symptoms include ongoing high fevers, rashes that cover his body, a rare blood disorder called macrophage activation system, Crohn's Disease, systemic arthritis, and interstitial lung disease.; His concept for the book was inspired by his unique experience as a rare disease patient and advocate.