URL

http://www.cw.bc.ca/library/pdf/pamphlets/BCCH1071_CAH.pdf

Website Notes

(391KB).

Author

Kelton, Sheila

Corporate Author

Endocrinology Clinic, BC Children's Hospital

Place of Publication

[Vancouver, BC?]

Publisher

Children's & Women's Health Centre of BC

Publication Date

2012

Physical Description

Paperback, 34 P.

Subject

Congenital Adrenal Hyperplasia

Adrenal Gland. Adrenal Gland Diseases

Endocrinology

Abstract

This booklet describes the condition, including the physiology of the adrenal pathway, but it has an emphasis on practical details, such as measuring/giving salt to infants, preventing adrenal crisis, giving emergency injections, etc. There is also a section on issues for families and girls whose fetal development has been affected by excess androgens. The booklet has been written with input from parents and adult women affected by CAH.

Notes

BCCH1071

ISBN

0000000000001

Language

English

Material Type

Book

Call Number

GI 390 KEL 2012

Copies

Author

Kinchlea, Daniel

Bañas, Ar-Em

Publication Date

2023

Physical Description

Paperback; [no pagination]

Subject

Autoimmune Diseases

Abstract

Written by 9-year-old Daniel Kinchlea, this story is all about the first fire dragon and their search for help. The story mirrors Daniel's own understanding of his diagnosis journey as a young child.

About the author: At one year old, Daniel was diagnosed with a rare autoinflammatory disease. Caused by one or more genetic mutations, some of Daniel's symptoms include ongoing high fevers, rashes that cover his body, a rare blood disorder called macrophage activation system, Crohn's Disease, systemic arthritis, and interstitial lung disease.

His concept for the book was inspired by his unique experience as a rare disease patient and advocate.

ISBN

9798374718621

Language

English

Material Type

Book

Call Number

JUNIOR FF 300 KIN 2023

Copies