Author

Kinchlea, Daniel

Bañas, Ar-Em

Publication Date

2023

Physical Description

Paperback; [no pagination]

Subject

Autoimmune Diseases

Abstract

Written by 9-year-old Daniel Kinchlea, this story is all about the first fire dragon and their search for help. The story mirrors Daniel's own understanding of his diagnosis journey as a young child.

About the author: At one year old, Daniel was diagnosed with a rare autoinflammatory disease. Caused by one or more genetic mutations, some of Daniel's symptoms include ongoing high fevers, rashes that cover his body, a rare blood disorder called macrophage activation system, Crohn's Disease, systemic arthritis, and interstitial lung disease.

His concept for the book was inspired by his unique experience as a rare disease patient and advocate.

ISBN

9798374718621

Language

English

Material Type

Book

Call Number

JUNIOR FF 300 KIN 2023

Copies

URL

http://www.cw.bc.ca/library/pdf/pamphlets/BCCH1392_CareOfYourChildWithPacemaker_2013.pdf

Website Notes

Click on the link to view/print.

Corporate Author

Children's Heart Centre

Place of Publication

[Vancouver, BC?]

Publisher

BC Children's Hospital

Publication Date

2013

Physical Description

PDF file: 4 p.

Subject

Heart/Heart Diseases. Cardiology

Arrhythmias

Arrhythmias-Surgery. Pacemakers

Arrhythmias-Coping

Abstract

Information on how to care for a child with a pacemaker used to treat an irregular heart rhythm (arrythmia). Including: how to care for the incision; activity recommendations; signs of possible problems; travel information; environmental hazards.

Language

English

Material Type

Pamphlet

Online

Call Number

BCCH1392