Author

Kinchlea, Daniel

Bañas, Ar-Em

Publication Date

2023

Physical Description

Paperback; [no pagination]

Subject

Autoimmune Diseases

Abstract

Written by 9-year-old Daniel Kinchlea, this story is all about the first fire dragon and their search for help. The story mirrors Daniel's own understanding of his diagnosis journey as a young child.

About the author: At one year old, Daniel was diagnosed with a rare autoinflammatory disease. Caused by one or more genetic mutations, some of Daniel's symptoms include ongoing high fevers, rashes that cover his body, a rare blood disorder called macrophage activation system, Crohn's Disease, systemic arthritis, and interstitial lung disease.

His concept for the book was inspired by his unique experience as a rare disease patient and advocate.

ISBN

9798374718621

Language

English

Material Type

Book

Call Number

JUNIOR FF 300 KIN 2023

Copies

URL

http://www.cw.bc.ca/library/pdf/pamphlets/bcch1945_mitrofanoff_bladder_augmentation.pdf

Website Notes

Click the link to view or print.

Corporate Author

Department of Urology

Place of Publication

Vancouver, BC

Publisher

BC Children's Hospital

Publication Date

2016

Physical Description

PDF file, 6 p., ill.

Subject

Bladder/Bladder Diseases

Abstract

This is a short pamphlet about bladder augmentation and Mitrofanoff procedure and care.

Language

English

Material Type

Handout

Online

Call Number

BCCH1945

URL

http://www.cw.bc.ca/library/pdf/pamphlets/Anticholinergics_BCCH1946.pdf

Corporate Author

Department of Urology

Place of Publication

Vancouver, BC

Publisher

BC Children's Hospital

Publication Date

2017

Physical Description

PDF, 1 p.

Subject

Bladder/Bladder Diseases

Language

English

Material Type

Online

Handout