Search Results - Family Support and Resource Centre

Learn more about how lab and imaging tests are used to help detect (diagnose) and treat blood cancers (types of leukemia, lymphoma, myeloma, myelodysplastic syndromes and myeloproliferative disorders). Includes tips to help keep track of test results and a handout with suggested questions to ask yo…

1 url

URL: https://www.lls.org/sites/default/files/2021-05/PS41_Understanding_Lab_Imaging_0120FINAL.pdf

Corporate Author: The Leukemia & Lymphoma Society

Place of Publication: White Plains, NY

Publisher: The Leukemia & Lymphoma Society

Publication Date: 2020

Physical Description: PDF; 60 pages

Subject: Cancer-Diagnosis; Laboratory Tests/Values; Leukemia; Lymphoma

Abstract: Learn more about how lab and imaging tests are used to help detect (diagnose) and treat blood cancers (types of leukemia, lymphoma, myeloma, myelodysplastic syndromes and myeloproliferative disorders). Includes tips to help keep track of test results and a handout with suggested questions to ask your health provider.

Language: English

Material Type: Booklet; Online

Copies

Copy 1 BC Children's and Women's Family Library

Available

URLs

https://www.lls.org/sites/default/files/2021-05/PS41_Understanding_Lab_Imaging_0120FINAL.pdf

Partnership guide: A resource to support children to understand and participate when serious illness decisions are considered

https://bcch.andornot.com/en/permalink/catalog122906

Ethics Department and Patient Partners. Vancouver, BC: BC Children's Hospital & BC Women's Hospital + Health Centre , 2020.

URL: http://www.phsa.ca/our-services-site/Documents/Partnership%20Guide%20Susan%20Poitras%20%28c%29%20July%202020.pdf

Material Type: Online; Booklet

This resource from BC Children?s Hospital can support families to explore their perspectives together and incorporate ways to foster the appropriate inclusion of children in healthcare decisions.; The Partnership Guide was developed to improve the guidance, support and participation of children ag…

1 url

URL: http://www.phsa.ca/our-services-site/Documents/Partnership%20Guide%20Susan%20Poitras%20%28c%29%20July%202020.pdf

Corporate Author: Ethics Department and Patient Partners

Place of Publication: Vancouver, BC

Publisher: BC Children's Hospital & BC Women's Hospital + Health Centre

Publication Date: 2020

Physical Description: 21 pages

Subject: Pain Control

Abstract: This resource from BC Children?s Hospital can support families to explore their perspectives together and incorporate ways to foster the appropriate inclusion of children in healthcare decisions.; The Partnership Guide was developed to improve the guidance, support and participation of children aged 7-14 years with serious illness. This education resource provides up to date research knowledge in the area of child participation, pediatric decision making and child-focused activities and interventions to support children with this process.; Fostering the developing autonomy of children is an essential ethical principle and this guide supports the inclusion of children in decision-making to their ability and desire, to participate in decisions that impact their health.

Language: English

Material Type: Online; Booklet

URLs

http://www.phsa.ca/our-services-site/Documents/Partnership%20Guide%20Susan%20Poitras%20%28c%29%20July%202020.pdf

Organ transplants: What every kid needs to know

https://bcch.andornot.com/en/permalink/catalog122263

United Network for Organ Sharing. Richmond, VA: , 2018.

URL: https://unos.org/wp-content/uploads/unos/WEKNTK.pdf

Material Type: Booklet; Ebook

Call Number: JUNIOR ED 700 UNO 2018

Availability: 1 copy, 1 available

This booklet has been created to help children and their families feel more at ease with the organ transplantation process by providing general information in an understandable format. Most importantly, it is designed to let the readers know that they are not alone and that there are other children…

1 image 1 url

URL: https://unos.org/wp-content/uploads/unos/WEKNTK.pdf

Website Notes: Click the link above to print.

Corporate Author: United Network for Organ Sharing

Place of Publication: Richmond, VA

Publication Date: 2018

Physical Description: Softcover ; [16 p.], illustrations

Subject: Transplantation; Organ Donation

Abstract: This booklet has been created to help children and their families feel more at ease with the organ transplantation process by providing general information in an understandable format. Most importantly, it is designed to let the readers know that they are not alone and that there are other children who need a transplant.; Also available as an ebook.

Language: English

Material Type: Booklet; Ebook

Call Number: JUNIOR ED 700 UNO 2018

Copies

BC Children's and Women's Family Library

Available

Images

URLs

https://unos.org/wp-content/uploads/unos/WEKNTK.pdf

The diagnosis and management of Duchenne Muscular Dystrophy: A guide for families

https://bcch.andornot.com/en/permalink/catalog123812

Muscular Dystrophy Canada. Toronto, ON: Muscular Dystrophy Canada , 2019.

URL: https://muscle.ca/wp-content/uploads/2019/09/DMDstandardsofcare-EN.pdf

Material Type: Booklet; Online

This guide for families summarizes the results of an international consensus on the medical care of Duchenne muscular dystrophy (DMD). This effort was supported by the US Centers for Disease Control and Prevention (CDC), in collaboration with patient advocacy groups and the TREAT-NMD network. The m…

1 url

URL: https://muscle.ca/wp-content/uploads/2019/09/DMDstandardsofcare-EN.pdf

Corporate Author: Muscular Dystrophy Canada

Place of Publication: Toronto, ON

Publisher: Muscular Dystrophy Canada

Publication Date: 2019

Subject: Muscular Dystrophy

Abstract: This guide for families summarizes the results of an international consensus on the medical care of Duchenne muscular dystrophy (DMD). This effort was supported by the US Centers for Disease Control and Prevention (CDC), in collaboration with patient advocacy groups and the TREAT-NMD network. The main document is published in Lancet Neurology.; The recommendations are based on an extensive study by 84 international experts in DMD diagnosis and care chosen to represent a broad range of specialties. They independently ?rated? methods of care used in the management of DMD to say how ?necessary?, ?appropriate? or ?inappropriate? each one was at different stages of the course of DMD. In total they considered more than 70,000 different scenarios. This allowed them to establish guidelines that the majority agreed represented the best practice for DMD care.

Language: English

Material Type: Booklet; Online

URLs

https://muscle.ca/wp-content/uploads/2019/09/DMDstandardsofcare-EN.pdf

On the path to possibility: A guide book for children, youth and families living with cerebral palsy

https://bcch.andornot.com/en/permalink/catalog123830

Holland Bloorview Kids Rehabilitation Hospital. Toronto, ON: Holland Bloorview Kids Rehabilitation Hospital

URL: https://hollandbloorview.ca/services/programs-services/cp-booklet

Material Type: Booklet; Online

From the authors:; "Many parents ask us, What can I read about cerebral palsy? This booklet was written to answer that very question. We hope this booklet will help explain what cerebral palsy (CP) is and what supports Holland Bloorview can offer."; Note: Pages 1-15 contain general information that…

1 url

URL: https://hollandbloorview.ca/services/programs-services/cp-booklet

Corporate Author: Holland Bloorview Kids Rehabilitation Hospital

Place of Publication: Toronto, ON

Publisher: Holland Bloorview Kids Rehabilitation Hospital

Physical Description: PDF; 23 pages

Subject: Cerebral Palsy

Abstract: From the authors:; "Many parents ask us, What can I read about cerebral palsy? This booklet was written to answer that very question. We hope this booklet will help explain what cerebral palsy (CP) is and what supports Holland Bloorview can offer."; Note: Pages 1-15 contain general information that may be helpful to families outside Ontario.

Language: English

Material Type: Booklet; Online

URLs

https://hollandbloorview.ca/services/programs-services/cp-booklet

6 records – page 1 of 1.

Prev Next