Author

Leving, Jessica

Sfar, Wiem [illustrator]

Publisher

The Center for Siblings of People with Disabilities

Publication Date

2019

Physical Description

36 p.

Series

A Project of The Center for Siblings of People with Disabilities

Subject

Sibling Relationships

Siblings of Children with Disabilities

Abstract

Growing up with a sibling who has a disability can be hard. But it can also be... awesome! Based on the author's real-life experiences, this unique and touching children's book explores how siblings of kids with disabilities are special, too. Created with the support of licensed clinical social workers with the aim of helping siblings of kids with disabilities identify, express and process their feelings. This book is intended to be read with a parent or trusted adult and spark family discussions you'll keep coming back to.

For ages 3-8.

ISBN

9798618220682

Language

English

Material Type

Book

Call Number

JUNIOR GK 665 LEV 2019

Copies

Author

Knol, Faye

Place of Publication

Grand Rapids, Michigan

Publisher

William B. Eerdmans Publishing Company

Publication Date

2010

Physical Description

Softcover: 163 p.

Subject

Parenting Children with Developmental Disabilities

Parenting Children with Disabilities

Parenting Children with Physical Disabilities

Developmental Disability

Intensive Care Units-Neonatal. Infants

Abstract

David Knol was born dangerously premature and wasn?t expected to live more than a few hours. He not only survived but went on to live a life full of joy and blessing, despite severe physical and intellectual disabilities. In this memoir, David's mother shares the story of David's life and the remarkable gifts he taught those around him during his 22 years.

ISBN

9780802865434

Language

English

Material Type

Book

Call Number

GK 655 KNO 2010

Copies

URL

https://familysupportbc.com/

Place of Publication

New Westminster, BC

Subject

Parenting Children with Disabilities

Parenting Children with Physical Disabilities

Parenting Children with Developmental Disabilities

Siblings of Children with Disabilities

Abstract

The Family Support Institute of BC (FSI) is a provincial not for profit society committed to supporting families who have a family member with a disability.

This website is a featured resource in the Serious Illness Partnership Guide from Canuck Place and BC Children's Hospital.

FSI is unique in Canada and the only grass roots family-to-family organization with a broad volunteer base.

FSI's supports and services are FREE to any family.

Language

English

Material Type

Website

Online

Author

Solomon, Andrew

Place of Publication

[Toronto, ON]

Publisher

Scribner

Publication Date

2012

Physical Description

Hardcover: 702 p.

Subject

Parenting Children with Developmental Disabilities

Parenting Children with Disabilities

Relationships

Parenting

Parenting Children with Physical Disabilities

Abstract

Andrew Solomon tells the stories of parents who not only learn to deal with their exceptional children but also find profound meaning in doing so. He writes about families coping with deafness, dwarfism, Down syndrome, autism, schizophrenia, multiple severe disabilities, with children who are prodigies, who are conceived in rape, who become criminals, who are transgender. While each of these characteristics is potentially isolating, the experience of difference within families is universal, as are the triumphs of love Solomon documents in every chapter.

ISBN

9780743236713

Language

English

Material Type

Book

Call Number

GK 600 SOL 2012

Copies

Author

Johannes, Aaron

Stanfield, Susan

Place of Publication

[Vancouver, BC?]

Publisher

Spectrum Press

Publication Date

2011

Physical Description

Softcover: [108 p.]

Subject

Friendship

Social Behaviour (includes boundaries)

Social Skills

Relationships

Developmental Disability

Abstract

Authors Susan Stanfield and Aaron Johannes use their 50+ years of experience of working with folks with disabilities to offer this compendium of simple, practical strategies for expanding and deepening relationships.

The ideas were generated by folks with disabilities, their families, and those who support them. This tool book is for those interested in one of the final questions about community living: how to support folks to develop real, lasting relationships.

ISBN

9781257056446

Language

English

Material Type

Book

Call Number

CF 300 JOH 2011

Copies

Author

Williams, Keith E.

Foxx, Richard M.

Place of Publication

Austin, Texas

Publisher

PRO-ED, Inc.

Publication Date

2007

Physical Description

Softcover: 201 p.

Subject

Feeding and Nutrition

Autism Spectrum Disorder (includes Asperger Syndrome)

Autism

Developmental Disability

Abstract

This is a two-part book written for caregivers and professionals who work with children with feeding problems. It presents behavioral interventions and approaches on solving a child's resistance to eating. * Part One was specifically written for teachers, parents, and caregivers with no prior professional experience or training on feeding problems. * Part Two was written for professionals, providing detailed information on how to apply behavioral assessment and developing individualized interventions based on a child's eating behaviors. The behavioral interventions and procedures presented in this book can also be integrated into oral motor or dysphagia therapy. Includes references and brief descriptions.

ISBN

9781416402480

Language

English

Material Type

Book

Call Number

FM 272 WIL 2007

Copies

Author

Johannes, Aaron

Reynolds, Jim

Stanfield, Susan

Place of Publication

[Vancouver, BC?]

Publisher

Spectrum Press

Publication Date

2011

Physical Description

Softcover: 198 p.

Subject

Friendship

Social Behaviour (includes boundaries)

Social Skills

Relationships

Developmental Disability

Abstract

On its own or as a companion to the book "101 Ways to Make Friends: Ideas and conversation starters for people with disabilities", this collection of strategies is for parents, leaders and teachers of all kinds. It's a book about being a friend, learning ways to make a contribution to community, and what it means to be a good friend or neighbour, son or daughter, brother or sister, etc.

ISBN

9781257060504

Language

English

Material Type

Book

Call Number

CF 300 WAY 2011

Copies

Author

Cardinal Remete, France

Place of Publication

Montreal, QC

Publisher

Multimondes Inc.

Publication Date

2016

Physical Description

Paperback, 311 p.

Subject

Chronic Illness

Coping with Chronic Illness in the Family

ISBN

9782895444916

Language

French

Material Type

Book

Call Number

EF 850 CAR 2016

Copies

Author

Martin, Sieglinde

Place of Publication

[Bethesda, MD]

Publisher

Woodbine House

Publication Date

2006

Physical Description

Softcover: 237 p.

Subject

Cerebral Palsy

Movement Disorders

Motor Development

Parenting Children with Physical Disabilities

Abstract

This book is designed for parents, therapists, and other caregivers to help young children with gross motor delays learn and practice motor skills outside of therapy sessions. Written by an experienced physical therapist who is also the mother of a child with cerebral palsy, this comprehensive guide examines the physical characteristics of cerebral palsy and similar conditions - muscle tightness and weakness, increased or decreased flexibility, abnormal reflexes, impaired sensory perception- that affect a child's ability to sit, crawl, stand, and walk.

Includes dozens of exercises with accompanying photos that parents may incorporate into daily routines at home with the guidance and support of their child's physical therapist.

Exercises address: head control, protective reactions, proper positioning, independent sitting with and without arm support, transitional movements, daily stretching, improving muscle strength and coordination, balance training, gait training.

ISBN

9781890627720

Language

English

Material Type

Book

Call Number

FM 496 MAR 2006

Copies

Author

Carter, Bryan D.

Kronenberger, William G.

Scott, Eric L.

Place of Publication

Oxford, UK

Publisher

Oxford University Press

Publication Date

2020

Physical Description

Softcover; 113 pages

Series

Programs that work

Subject

Coping with Chronic Illness Young Adult

Coping with Chronic Illness

Coping with Chronic Illness-Children

Abstract

Children and adolescents with chronic illnesses, particularly those accompanied by debilitating, painful, and/or fatiguing symptoms, face challenges that may prove disruptive to physical, psychological, and social development. Based on extensive research and clinical expertise, Children's Health and Illness Recovery Program (CHIRP) is an effective treatment program designed to build and maintain independence in young people with chronic illness.

This Teen and Family Workbook provides proven treatment activities designed to combat the additional stress faced by youth coping with long-term health problems. These tasks target key areas for improvement in physical functioning, school functioning, and personal functioning and support the creation of new tools for managing the impact of illness, such as stress management, coping and relaxation techniques, and communication skills. In-session and take-home activities outlined in this workbook are meant to accompany the companion CHIRP Clinician Guide. With the use of this workbook and supported by a network of clinicians, healthcare specialists, and school professionals, adolescents and their families can return to a better quality of life.

ISBN

9780190070472

Language

English

Material Type

Book

Call Number

EF 850.6 CAR 2020

Copies

Author

Carter, Bryan D.

Kronenberger, William G.

Scott, Eric L.

Brady, Christine E.

Place of Publication

Oxford, UK

Publisher

Oxford University Press

Publication Date

2020

Physical Description

Softcover; 173 pages

Series

Programs that work

Subject

Coping with Chronic Illness Young Adult

Coping with Chronic Illness

Coping with Chronic Illness-Children

Abstract

Youth with chronic illnesses face challenges that may prove disruptive to physical, psychological, and social development. Based on extensive research and clinical expertise, Children's Health and Illness Recovery Program (CHIRP) is an interdisciplinary cognitive behavioral and family systems-based treatment program designed to maximize the independent functioning of teens with chronic illness.

This Clinician Guide offers a detailed outline for implementing this manualized intervention and provides clear guidance as to the philosophy, pragmatics, and art of working with challenging pediatric conditions. Designed to accompany the CHIRP Teen and Family Workbook, this book addresses specific assessment measures and tools needed to establish a collaborative treatment team approach that incorporates the skills of the CHIRP clinician, primary and specialty care providers, and roles of other healthcare (physical therapists, occupational therapists, etc.) and educational professionals critical to the successful management and treatment of these youth.

ISBN

9780190070267

Language

English

Material Type

Book

Call Number

EF 850.6 CAR 2020b

Copies

Author

Bernhard, Toni

Place of Publication

Somerville, MA

Publisher

Wisdom Publications

Publication Date

2015

Physical Description

337 pages

Subject

Coping with Chronic Illness

Chronic Illness

Chronic Pain

Abstract

Comfort, understanding, and advice for those who are suffering?and those who care for them.

Chronic illness creates many challenges, from career crises and relationship issues to struggles with self-blame, personal identity, and isolation. Beloved author Toni Bernhard addresses these challenges and many more, using practical examples to illustrate how mindfulness, equanimity, and compassion can help readers make peace with a life turned upside down.

In her characteristic conversational style, Bernhard shows how to cope and make the most of life despite the challenges of chronic illness. Benefit from:

? Mindfulness exercises to mitigate physical and emotional pain

? Concrete advice for negotiating the everyday hurdles of medical appointments, household chores, and social obligations

? Tools for navigating the strains illness can place on relationships

Several chapters are directed toward family and friends of the chronically ill, helping them to understand what their loved one is going through and how they can help.

Humorous and empathetic, Bernhard shares her own struggles and setbacks with unflinching honesty, offering invaluable support in the search to find peace and well-being.

ISBN

9781614292487

Language

English

Material Type

Book

Call Number

EF 850 BER 2015

Copies

Author

Sileo, Frank J.

Potter, Carol S.

Place of Publication

Washington, DC

Publisher

American Psychological Association

Publication Date

2021

Physical Description

Softcover; 419 pages

Subject

Coping with Chronic Illness-Children

Coping with Chronic Illness in the Family

Coping with Chronic Illness-Young Adult

Abstract

Written by leading mental health professionals, this warm and accessible parenting book for children with chronic illnesses offers clear, practical guidance for all aspects of the journey. It is recommended by professionals at the American Diabetes Association, Invisible Disabilities Association, the Crohn's Colitis Foundation, and other expert national and regional sources.

For all its joys, parenting is a complex job, and when your child has a chronic illness, the stress can feel overwhelming. When your child is diagnosed, you begin a parenting journey filled with strong emotions, difficult choices, confusing words, and interactions with numerous professionals and specialists.

You're focused on ensuring your child gets the best possible treatments for their symptoms, so it's easy to overlook or dismiss the impact the illness can have on your relationships and emotions. This book places your psychological well-being front and center, so you can be the best caregiver possible for your child.

Along with suggestions for making laughter and mindfulness part of your daily self-care routine, it offers guidance for choosing the right therapist for your family, should extra support be needed. Every family's journey with chronic illness is unique, but you don't have to go it alone.

ISBN

9781433833816

Language

English

Material Type

Book

Call Number

EF 850.5 SIL 2021

Copies

Author

Renfrew, Ruth

deLoache, Shawn

Editor

Medikidz USA Inc.

Place of Publication

New York, NY

Publisher

Jumo

Publication Date

2018

Physical Description

Softcover; 16 p.

Subject

Chronic Illness

Abstract

Comic book featuring Medikidz, superhero experts on health and illness. Explains how chronic illness can affect individuals and their families.

Language

English

Material Type

Book

Call Number

JUNIOR EF 800 REN 2018

Copies

Author

Bula, Ania

Place of Publication

Durham, North Carolina

Publisher

Pitchstone Publishing

Publication Date

2016

Physical Description

Softcover ; 224 p.

Subject

Chronic Illness

Abstract

"Drawing on her own deeply personal experiences, Ania Bula explores what it is like to live with unseen chronic disabilities. She paints a vibrant picture of what it is like to be diagnosed with two life-long debilitating conditions as a young adult and relates the challenges and frustrations of dealing with predatory alternative medicine practitioners, arrogant doctors, indifferent bureaucracies, and well-meaning friends and family who always seem to say either the wrong thing-or nothing at all. As she discovered, suddenly everyone's aunt is a health expert and everyone's fad diet a cure. Making matters worse, her physical torment quickly translated into mental stresses. Relationships became strained, while others, including all-important romantic ones, never had a chance to start at all. Wading through a constant stream of ignorance and lies, in a desperate attempt to find peace, to stop the pain, and to return to a more normal life, she submits to being stuffed with powders and magic potions, poked and prodded, and even "faith healed." With honesty and humor, she shares her journey of pain, suffering, and, ultimately, coping, both to help others gain some understanding about what it is like to live with chronic illness-and to help those who might similarly suffer feel less alone, so that they too might start living again.

"Drawing on the author's personal experiences with her own physical and mental health struggles, the book explores what it is like to live with chronic disabilities as a young adult"-- Provided by publisher

Notes

Recommended by CCDP

ISBN

9781634310734

Language

English

Material Type

Book

Call Number

EF 800 BUL 2016

Copies

Author

McClintock Greenberg, Tamara

Place of Publication

Springville, UT

Publisher

Plain Sight Publishing

Publication Date

2012

Physical Description

Softcover ; xiv, 157 p.

Subject

Chronic Illness

Abstract

"Dr. Tamara Greenberg offers hope and practical advice to those impacted by a loved one's illness with this new book., "When Someone You Love Has a Chronic Illness: Hope and Help for Those Providing Support. Inside, Dr. Greenberg provides easy-to-understand explanations for complicated feelings and behaviors and offers pragmatic strategies for coping effectively and serving your loved one in this time of need.

"Learn how to talk to someone who is ill, what not to do, how to address your loved ones who aren't taking care of themselves, how to help someone in physical pain, and more.

"Above all, Dr. Greenberg delivers important tools for managing the normal anxiety we all feel when someone we love is ill." --From back cover

ISBN

9781599559391

Language

English

Material Type

Book

Call Number

EF 800 GRE 2012

Copies

Author

Selak, Joy H.

Overman, Steven S.

Edition

2nd Ed

Place of Publication

New York

Publisher

Demos Health

Physical Description

Softcover ; xxviii, 166 p.

Subject

Chronic Illness

Abstract

"You DonÌt Look Sick chronicles one personÌs true-life story of illness and her physicians compassionate commentary as they journey through the four stages of chronic illnessÛGetting Sick, Being Sick, Grief and Acceptance and Living Well. The authors address such practical aspects as hiring a doctor, managing chronic pain, coping with grief and loss of function, winning battles with health and disability insurers, countering the social bias against the chronically ill, and recognizing the limitations of chronic illness care and charting a path for change and more. This warmhearted resource helps you focus on building a meaningful life as opposed to a life of frustration and fear. This book is thoroughly revised and updated based upon feedback from readers of the first edition. The authors have added a new section on Grief and Acceptance, address the passage of the Affordable Health Care Act and Dr. Overman has added practical travel tips that bring organization and focus to each phase of the journey. Designed for people at all stages of the chronic illness journey, this book is also illuminating for caregivers and loved ones"--from the Publisher

ISBN

9781936303427

Language

English

Material Type

Book

Call Number

EF 800 SEL 2013

Copies

Author

Fennell, Patricia A.

Place of Publication

Latham, New York

Publisher

Albany Health Management Publishing

Publication Date

2012

Physical Description

Softcover ; 253 p.

Subject

Chronic Illness

Abstract

This book "brings clarity and order to what feels like an unmanageable and isolating experience. It shows both those who are ill and those who care for them how to live a full and meaningful life despite undeniable difficulties. Using her extensive experience with chronic illness patients, Patricia Fennell has created an original, comprehensive, research-validated approach that considers not only the physical aspects of chronic illness, but the psychological, social, and economic aspects as well"--from the Publisher

ISBN

9780979640711

Language

English

Material Type

Book

Call Number

EF 800 FEN 2012

Copies

Author

Kivowitz, Barbara

Weisman, Roanne

Place of Publication

Petaluma, CA

Publisher

Roundtree Press

Publication Date

2013

Physical Description

Softcover; 192 pages

Subject

Chronic Illness

Abstract

For those who find themselves at the intersection of lifetime love and overwhelming obligation, the right path is often painful and difficult to find. When illness invades the couple relationship, partners ask themselves and each other some really hard questions: "What do I want to do for this person whom I have loved for many years?" "How much of my life do I give up to take care of my beloved?" "How do I sit by my beloved's side and watch her suffer?" While writing In Sickness as in Health, authors Barbara Kivowitz and Roanne Weisman learned through interviews with many couples, as well as with medical, spiritual, legal, rehabilitation and psychological experts, that couples find their own ways to deal with illnesses and catastrophic injuries.

ISBN

9781937359133

Language

English

Material Type

Book

Call Number

EF 800 KIV 2013

Copies

Author

Christy, Elizabeth M.

Miller, James G. (illustrator)

Place of Publication

Denver, Colorado

Publisher

Outskirts Press, Inc.

Publication Date

2014

Physical Description

Softcover ; [18 p.], illustrations

Subject

Chronic Illness

Chronic Pain

Fibromyalgia. Fibrositis

Coping with Chronic Illness-Children

Abstract

The children of people with chronic illness and pain suffer quietly. "Why Does Mommy Hurt?" is a joyful, yet honest, portrayal of family life burdened with chronic illness. This is a delightful story told by a young boy learning to understand and cope with his mother's illness. The story creates natural opportunities for families to talk about both the symptoms of chronic illness, and how they affect family life. Even more importantly, the story puts power into the hands of the children. It also offers a helpful "Tips and Resources" section for parents! This book is appropriate for a wide-variety of illnesses associated with chronic pain, such as: Lupus, Lyme Disease, ME, CFS, Fibromyalgia, Arthritis, Multiple Sclerosis, Autoimmune Disease, and many others.

Notes

Recommended by CCDP

ISBN

9781478732969

Language

English

Material Type

Book

Call Number

JUNIOR EF 850.5 CHR 2014

Copies