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Ten tips for caregivers of a child or youth with chronic pain

https://bcch.andornot.com/en/permalink/catalog113153
Complex Pain Service. Vancouver, BC: BC Children's Hospital , 2022.
URL
http://www.cw.bc.ca/library/pdf/pamphlets/BCCH-10-Tips-Chronic-Pain.pdf
Material Type
Pamphlet
Online
This handout provides helpful tips for parents or caregivers of a child or youth with chronic pain. Also includes a recommended resource list.
  1 url  
URL
http://www.cw.bc.ca/library/pdf/pamphlets/BCCH-10-Tips-Chronic-Pain.pdf
Website Notes
Click on the link to view/print.
Alternate Title
10 tips for caregivers of a child or youth with chronic pain
Corporate Author
Complex Pain Service
Place of Publication
Vancouver, BC
Publisher
BC Children's Hospital
Publication Date
2022
Physical Description
PDF: 2 p.
Subject
Pain
Chronic Pain
Abstract
This handout provides helpful tips for parents or caregivers of a child or youth with chronic pain. Also includes a recommended resource list.
Language
English
Material Type
Pamphlet
Online
URLs
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Understanding chronic kidney disease

https://bcch.andornot.com/en/permalink/catalog122537
deLoache, Shawn, Maxwell, Kimberley. New York, NY: Jumo , 2020.
Material Type
Book
Call Number
JUNIOR FP 440 DEL 2020
Availability
1 copy, 1 available
Comic book featuring Medikidz, superhero experts on health and illness. Explains what happens inside the body when a person has chronic kidney disease. Also explains how treatments work, and why eating healthy food is important.; Ages 7-12
Author
deLoache, Shawn
Maxwell, Kimberley
Editor
Medikidz USA Inc.
Place of Publication
New York, NY
Publisher
Jumo
Publication Date
2020
Physical Description
Softcover; 11 p.
Subject
Chronic Kidney Failure
Abstract
Comic book featuring Medikidz, superhero experts on health and illness. Explains what happens inside the body when a person has chronic kidney disease. Also explains how treatments work, and why eating healthy food is important.
Ages 7-12
ISBN
9781644551561
Language
English
Material Type
Book
Call Number
JUNIOR FP 440 DEL 2020

Copies

copy 1 BC Children's and Women's Family Library Available
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Nowmaps: A tween's guide to learning about your thoughts, navigating big emotions, and being a confident kid

https://bcch.andornot.com/en/permalink/catalog124866
Siegel, Daniel J., Margolin, Deena. Eau Claire, WI: PESI Publishing , 2022.
Material Type
Book
Call Number
YOUTH GL 320 SIE 2022
Availability
1 copy, 1 available
Written by world-renowned neuropsychiatrist Dr. Dan Siegel, and Deena Margolin, LMFT, co-founder of the popular online community Big Little Feelings, NowMaps is a one-of-a-kind adventure that introduces the neuroscience of social-emotional learning in a fun, interactive way!; Using four easy-to-rem…
Alternate Title
NowMaps
Author
Siegel, Daniel J.
Margolin, Deena
Place of Publication
Eau Claire, WI
Publisher
PESI Publishing
Publication Date
2022
Physical Description
Softcover, 233 pages
Subject
Emotions
Mindfulness
Abstract
Written by world-renowned neuropsychiatrist Dr. Dan Siegel, and Deena Margolin, LMFT, co-founder of the popular online community Big Little Feelings, NowMaps is a one-of-a-kind adventure that introduces the neuroscience of social-emotional learning in a fun, interactive way!
Using four easy-to-remember tools - a pause button, a focus flashlight, an OK monitor, and a compass - tweens will learn how to create a NowMap, a snapshot of their present-moment experience, so they can navigate all of life's moments with confidence and kindness. A NowMap shows tweens where they are right now so they can decide where they want to go next.
ISBN
9921683735298
Language
English
Material Type
Book
Call Number
YOUTH GL 320 SIE 2022

Copies

BC Children's and Women's Family Library Available
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When your child has a chronic medical illness: A guide for the parenting journey

https://bcch.andornot.com/en/permalink/catalog123817
Sileo, Frank J., Potter, Carol S. Washington, DC: American Psychological Association , 2021.
Material Type
Book
Call Number
EF 850.5 SIL 2021
Availability
1 copy, 1 available
Written by leading mental health professionals, this warm and accessible parenting book for children with chronic illnesses offers clear, practical guidance for all aspects of the journey. It is recommended by professionals at the American Diabetes Association, Invisible Disabilities Association, t…
Author
Sileo, Frank J.
Potter, Carol S.
Place of Publication
Washington, DC
Publisher
American Psychological Association
Publication Date
2021
Physical Description
Softcover; 419 pages
Subject
Coping with Chronic Illness-Children
Coping with Chronic Illness in the Family
Coping with Chronic Illness-Young Adult
Abstract
Written by leading mental health professionals, this warm and accessible parenting book for children with chronic illnesses offers clear, practical guidance for all aspects of the journey. It is recommended by professionals at the American Diabetes Association, Invisible Disabilities Association, the Crohn's Colitis Foundation, and other expert national and regional sources.
For all its joys, parenting is a complex job, and when your child has a chronic illness, the stress can feel overwhelming. When your child is diagnosed, you begin a parenting journey filled with strong emotions, difficult choices, confusing words, and interactions with numerous professionals and specialists.
You're focused on ensuring your child gets the best possible treatments for their symptoms, so it's easy to overlook or dismiss the impact the illness can have on your relationships and emotions. This book places your psychological well-being front and center, so you can be the best caregiver possible for your child.
Along with suggestions for making laughter and mindfulness part of your daily self-care routine, it offers guidance for choosing the right therapist for your family, should extra support be needed. Every family's journey with chronic illness is unique, but you don't have to go it alone.
ISBN
9781433833816
Language
English
Material Type
Book
Call Number
EF 850.5 SIL 2021

Copies

BC Children's and Women's Family Library Available
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Pain relief in labour

https://bcch.andornot.com/en/permalink/catalog112556
Department of Anesthesiology. Vancouver, BC: BC Women's Hospital + Health Centre , 2023.
URL
http://www.cw.bc.ca/library/pdf/pamphlets/BCW923_PainReliefInLabour.pdf
Material Type
Online
Handout
Call Number
BCW923
Learn about how you can manage your pain during early labour, and active labour. This handout explains the benefits and limitations of comfort measures, like touch and position. It also details benefits, risks and potential side effects of medical pain relief measures, like epidurals.
  1 image     1 url  
URL
http://www.cw.bc.ca/library/pdf/pamphlets/BCW923_PainReliefInLabour.pdf
Corporate Author
Department of Anesthesiology
Place of Publication
Vancouver, BC
Publisher
BC Women's Hospital + Health Centre
Publication Date
2023
Physical Description
PDF file: 7 p.
Subject
Childbirth
Pain Control
Pain Control-Complementary Therapies
Abstract
Learn about how you can manage your pain during early labour, and active labour. This handout explains the benefits and limitations of comfort measures, like touch and position. It also details benefits, risks and potential side effects of medical pain relief measures, like epidurals.
Language
English
Material Type
Online
Handout
Call Number
BCW923
Images
URLs
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BC Children's Hospital Comfort PACT : Pain addressed, comfort tended

https://bcch.andornot.com/en/permalink/catalog123691
Vancouver, BC: BC Children's Hospital , 2022.
URL
http://www.cw.bc.ca/library/pdf/pamphlets/BC-Childrens-Comfort-Pact.pdf
Material Type
Handout
Online
BC Children's Hospital is committed to promoting comfort at every clinical encounter.; The Comfort PACT is a protocol that includes five key pillars to promote comfort and reduce pain whenever possible. The pillars are; preparation, communication, comfort positions, alternate focus, and medication.…
  1 url  
URL
http://www.cw.bc.ca/library/pdf/pamphlets/BC-Childrens-Comfort-Pact.pdf
Place of Publication
Vancouver, BC
Publisher
BC Children's Hospital
Publication Date
2022
Physical Description
PDF; 2 pages
Subject
Pain Control-Complementary Therapies
Pain Control
Abstract
BC Children's Hospital is committed to promoting comfort at every clinical encounter.
The Comfort PACT is a protocol that includes five key pillars to promote comfort and reduce pain whenever possible. The pillars are
preparation, communication, comfort positions, alternate focus, and medication. These pillars offer different approaches and interventions.
This handout briefly explains each pillar, and tells you where to learn more.
Language
English
Material Type
Handout
Online
URLs
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Pain Squad: Mobile App (iOS)

https://bcch.andornot.com/en/permalink/catalog124821
The Hospital for Sick Children. Toronto, ON: , 2020.
URL
https://apps.apple.com/us/app/pain-squad/id929781246
Material Type
Online
The Pain Squad electronic pain diary is a tool created for kids with cancer to fight back against their pain. Developed by researchers at The Hospital for Sick Children (SickKids), this is an evidence-based pain diary that plays like a game and is recommended for children 8 to 18 years of age with …
  1 url  
URL
https://apps.apple.com/us/app/pain-squad/id929781246
Corporate Author
The Hospital for Sick Children
Place of Publication
Toronto, ON
Publication Date
2020
Physical Description
Mobile App
Subject
Children with Cancer-Coping
Coping with Pain
Abstract
The Pain Squad electronic pain diary is a tool created for kids with cancer to fight back against their pain. Developed by researchers at The Hospital for Sick Children (SickKids), this is an evidence-based pain diary that plays like a game and is recommended for children 8 to 18 years of age with cancer.
Language
English
Material Type
Online
URLs
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Pain relief during labour and birth, for people with scoliosis

https://bcch.andornot.com/en/permalink/catalog124581
Department of Anesthesiology. Vancouver, BC: BC Women's Hospital + Health Centre , 2023.
URL
http://www.cw.bc.ca/library/pdf/pamphlets/BC-Womens-Scoliosis-Labour.pdf
Material Type
Online
Handout
This handout is for people that have scoliosis and plan to give birth at BC Women's Hospital. It includes information on pain relief options during labour, for vaginal and cesarean section births.
  1 image     1 url  
URL
http://www.cw.bc.ca/library/pdf/pamphlets/BC-Womens-Scoliosis-Labour.pdf
Corporate Author
Department of Anesthesiology
Place of Publication
Vancouver, BC
Publisher
BC Women's Hospital + Health Centre
Publication Date
2023
Physical Description
PDF file: 2 pages
Subject
Scoliosis. Lordosis
Childbirth
Pain Control
Abstract
This handout is for people that have scoliosis and plan to give birth at BC Women's Hospital. It includes information on pain relief options during labour, for vaginal and cesarean section births.
Notes
Keywords: Pregnancy; childbirth; scoliosis; spinal curve; spinal curvature; curvature of spine; cobb angle
Language
English
Material Type
Online
Handout
Images
URLs
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How to minimize the pain of needle pokes with numbing cream

https://bcch.andornot.com/en/permalink/catalog123660
Acute Pain Service. Vancouver, BC: BC Children's Hospital , 2022.
URL
http://www.cw.bc.ca/library/pdf/pamphlets/BC-Childrens-Needle-Pokes-Numbing-Cream.pdf
Material Type
Handout
Online
Learn when and how to use numbing cream (EMLA, AMETOP, and other topical anesthetics).
  1 url  
URL
http://www.cw.bc.ca/library/pdf/pamphlets/BC-Childrens-Needle-Pokes-Numbing-Cream.pdf
Corporate Author
Acute Pain Service
Place of Publication
Vancouver, BC
Publisher
BC Children's Hospital
Publication Date
2022
Physical Description
PDF; 2 pages
Subject
Pain Control
Immunizations-Children
Immunizations
Blood Tests. Blood Chemistries
Abstract
Learn when and how to use numbing cream (EMLA, AMETOP, and other topical anesthetics).
Language
English
Material Type
Handout
Online
URLs
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Mind-body techniques: Helping children to cope with painful procedures : reflections and case studies by BC Children's Hospital (BCCH) staff

https://bcch.andornot.com/en/permalink/catalog123607
Kuttner, Leora, Carlson, Torie. [Vancouver], BC: BC Children's Hospital , 2022.
Material Type
Book
Call Number
FM 820 KUT 2022
Availability
2 copies, 2 available
This book features reflections and case studies by clinicians trained to use a range of mind-body techniques that have been shown, through research, to relieve pain and anxiety and to empower children and their parents to cope with distressing invasive procedures and medical interventions.
Author
Kuttner, Leora
Carlson, Torie
Place of Publication
[Vancouver], BC
Publisher
BC Children's Hospital
Publication Date
2022
Physical Description
Softcover : 29 pages
Subject
Pain Control
Mind/Body
Abstract
This book features reflections and case studies by clinicians trained to use a range of mind-body techniques that have been shown, through research, to relieve pain and anxiety and to empower children and their parents to cope with distressing invasive procedures and medical interventions.
Language
English
Material Type
Book
Call Number
FM 820 KUT 2022

Copies

Copy 1 BC Children's and Women's Family Library Available
Copy 2 BC Children's and Women's Family Library Available
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Children's Health and Illness Recovery Program (CHIRP): Teen and family workbook

https://bcch.andornot.com/en/permalink/catalog124614
Carter, Bryan D., Kronenberger, William G., Scott, Eric L. Oxford, UK: Oxford University Press , 2020.
Material Type
Book
Call Number
EF 850.6 CAR 2020
Availability
1 copy, 1 available
Children and adolescents with chronic illnesses, particularly those accompanied by debilitating, painful, and/or fatiguing symptoms, face challenges that may prove disruptive to physical, psychological, and social development. Based on extensive research and clinical expertise, Children's Health an…
Author
Carter, Bryan D.
Kronenberger, William G.
Scott, Eric L.
Place of Publication
Oxford, UK
Publisher
Oxford University Press
Publication Date
2020
Physical Description
Softcover; 113 pages
Series
Programs that work
Subject
Coping with Chronic Illness Young Adult
Coping with Chronic Illness
Coping with Chronic Illness-Children
Abstract
Children and adolescents with chronic illnesses, particularly those accompanied by debilitating, painful, and/or fatiguing symptoms, face challenges that may prove disruptive to physical, psychological, and social development. Based on extensive research and clinical expertise, Children's Health and Illness Recovery Program (CHIRP) is an effective treatment program designed to build and maintain independence in young people with chronic illness.
This Teen and Family Workbook provides proven treatment activities designed to combat the additional stress faced by youth coping with long-term health problems. These tasks target key areas for improvement in physical functioning, school functioning, and personal functioning and support the creation of new tools for managing the impact of illness, such as stress management, coping and relaxation techniques, and communication skills. In-session and take-home activities outlined in this workbook are meant to accompany the companion CHIRP Clinician Guide. With the use of this workbook and supported by a network of clinicians, healthcare specialists, and school professionals, adolescents and their families can return to a better quality of life.
ISBN
9780190070472
Language
English
Material Type
Book
Call Number
EF 850.6 CAR 2020

Copies

BC Children's and Women's Family Library Available
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Children's Health and Illness Recovery Program (CHIRP): Clinician guide

https://bcch.andornot.com/en/permalink/catalog124615
Carter, Bryan D., Kronenberger, William G., Scott, Eric L., Brady, Christine E. Oxford, UK: Oxford University Press , 2020.
Material Type
Book
Call Number
EF 850.6 CAR 2020b
Availability
1 copy, 1 available
Youth with chronic illnesses face challenges that may prove disruptive to physical, psychological, and social development. Based on extensive research and clinical expertise, Children's Health and Illness Recovery Program (CHIRP) is an interdisciplinary cognitive behavioral and family systems-based…
Author
Carter, Bryan D.
Kronenberger, William G.
Scott, Eric L.
Brady, Christine E.
Place of Publication
Oxford, UK
Publisher
Oxford University Press
Publication Date
2020
Physical Description
Softcover; 173 pages
Series
Programs that work
Subject
Coping with Chronic Illness Young Adult
Coping with Chronic Illness
Coping with Chronic Illness-Children
Abstract
Youth with chronic illnesses face challenges that may prove disruptive to physical, psychological, and social development. Based on extensive research and clinical expertise, Children's Health and Illness Recovery Program (CHIRP) is an interdisciplinary cognitive behavioral and family systems-based treatment program designed to maximize the independent functioning of teens with chronic illness.
This Clinician Guide offers a detailed outline for implementing this manualized intervention and provides clear guidance as to the philosophy, pragmatics, and art of working with challenging pediatric conditions. Designed to accompany the CHIRP Teen and Family Workbook, this book addresses specific assessment measures and tools needed to establish a collaborative treatment team approach that incorporates the skills of the CHIRP clinician, primary and specialty care providers, and roles of other healthcare (physical therapists, occupational therapists, etc.) and educational professionals critical to the successful management and treatment of these youth.
ISBN
9780190070267
Language
English
Material Type
Book
Call Number
EF 850.6 CAR 2020b

Copies

BC Children's and Women's Family Library Available
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Life will never be dull: The little book of autism adventures

https://bcch.andornot.com/en/permalink/catalog122737
Brownson, Deborah, Rebello-Tindall, Michelle. Jessica Kingsley Publishers , 2020.
URL
https://ebookcentral.proquest.com/lib/cwhbc/detail.action?docID=6201150
Material Type
Ebook
Call Number
FM 272 BRO 2020
This delightful book is a light-hearted, playful and sincere look at life with an autistic child. Humorous illustrations depict those unique moments that every autistic child's family will recognise, and gently remind the reader to take care of themselves and appreciate the many wonderful experienc…
  1 url  
URL
https://ebookcentral.proquest.com/lib/cwhbc/detail.action?docID=6201150
Author
Brownson, Deborah
Rebello-Tindall, Michelle
Publisher
Jessica Kingsley Publishers
Publication Date
2020
Subject
Autism Spectrum Disorder (includes Asperger Syndrome)
Abstract
This delightful book is a light-hearted, playful and sincere look at life with an autistic child. Humorous illustrations depict those unique moments that every autistic child's family will recognise, and gently remind the reader to take care of themselves and appreciate the many wonderful experiences of being a mother, father, brother or sister to an autistic person.
ISBN
9781787753235
Language
English
Material Type
Ebook
Call Number
FM 272 BRO 2020
URLs
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The Night Crossing: A Lullaby for Children on Life's Last Journey

https://bcch.andornot.com/en/permalink/catalog124013
Jones, Pia, Pimenta, Sarah. New York, NY: Routledge , 2021.
Material Type
Book
Call Number
JUNIOR GV 100.5 JON 2021
Availability
1 copy, 1 available
This beautifully illustrated and sensitive storybook is designed to be used therapeutically by professionals and caregivers supporting children with an untreatable illness. With engaging, gentle and colourful illustrations that can be used to prompt conversation, it tells the story of the final jou…
Author
Jones, Pia
Pimenta, Sarah
Place of Publication
New York, NY
Publisher
Routledge
Publication Date
2021
Physical Description
Softcover; 28 pages
Subject
Death and dying-Children
Abstract
This beautifully illustrated and sensitive storybook is designed to be used therapeutically by professionals and caregivers supporting children with an untreatable illness. With engaging, gentle and colourful illustrations that can be used to prompt conversation, it tells the story of the final journey made by a Boy with a Bear, as the Boy says his goodbyes and comes to terms with his life-ending illness.
ISBN
9780367491208
Language
English
Material Type
Book
Call Number
JUNIOR GV 100.5 JON 2021

Copies

copy 1 BC Children's and Women's Family Library Available
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Helping your child with PDA live a happier life

https://bcch.andornot.com/en/permalink/catalog124210
Running, Alice. London, UK: Jessica Kingsley Publishers , 2022.
Material Type
Book
Call Number
FM 272 RUN 2022
Availability
1 copy, 1 available
Drawing on the author's personal experience of parenting a child with PDA, this insightful and informative guide offers strategies and tips for all aspects of daily life, including sensory issues, education and negotiation. Full of advice and support, this book is not intended to provide informatio…
Author
Running, Alice
Place of Publication
London, UK
Publisher
Jessica Kingsley Publishers
Publication Date
2022
Physical Description
124 pages
Subject
Autism
Autism Spectrum Disorder (includes Asperger Syndrome)
Abstract
Drawing on the author's personal experience of parenting a child with PDA, this insightful and informative guide offers strategies and tips for all aspects of daily life, including sensory issues, education and negotiation. Full of advice and support, this book is not intended to provide information on how to change your children. Rather, it is focused on creating the type of environment that will allow children to be authentically themselves, thereby enabling them to flourish and thrive.
ISBN
9781787754850
Language
English
Material Type
Book
Call Number
FM 272 RUN 2022

Copies

BC Children's and Women's Family Library Available
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What you see is not how I feel

https://bcch.andornot.com/en/permalink/catalog122316
Anderson. [Victoria, BC?]: Tellwell Talent , 2020.
Material Type
Book
Call Number
FG 375 AND 2020
YOUTH FG 275 AND 2020
Availability
3 copies, 2 available
What You See is Not How I Feel is a visually simple overview of how living with Chronic Fatigue feels. It opens conversation, clears misperceptions, and encourages understanding rather than judgement. Appropriate for children, adults, and professionals, and those with similar chronic illnesses; Fib…
Author
Anderson
Place of Publication
[Victoria, BC?]
Publisher
Tellwell Talent
Publication Date
2020
Physical Description
25 pages
Subject
Chronic Fatigue Syndrome
Abstract
What You See is Not How I Feel is a visually simple overview of how living with Chronic Fatigue feels. It opens conversation, clears misperceptions, and encourages understanding rather than judgement. Appropriate for children, adults, and professionals, and those with similar chronic illnesses; Fibromyalgia, Lyme, Multiple Sclerosis, Myalgic Encephalomyelitis, and Systemic Exertion Intolerance Disease.
ISBN
9780228819684
Language
English
Material Type
Book
Call Number
FG 375 AND 2020
YOUTH FG 275 AND 2020

Copies

copy 2 BC Children's and Women's Family Library On Loan, due Monday, March 4, 2024
copy 4 BC Children's and Women's Family Library Available
copy 1 BC Children's and Women's Family Library Available
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Shared Struggles: Stories from parents and pediatricians caring for children with serious illnesses

https://bcch.andornot.com/en/permalink/catalog124220
Schrooten, A.F., Markovitz, B.P. Switzerland: Springer International Publishing AG , 2021.
URL
https://ebookcentral.proquest.com/lib/cwhbc/detail.action?docID=6578034
Material Type
Ebook
Call Number
EF 850.5 SCH 2021e
This book tells true and poignant stories from both sides of the physician-patient/parent relationship and provides a unique glimpse into how parents and physicians think, feel, and interact. The stories are grouped under four sections: Hope, Compassion, Communication, and Trust.; Each section incl…
  1 url  
URL
https://ebookcentral.proquest.com/lib/cwhbc/detail.action?docID=6578034
Author
Schrooten, A.F.
Markovitz, B.P.
Place of Publication
Switzerland
Publisher
Springer International Publishing AG
Publication Date
2021
Subject
Coping with Chronic Illness-Children
Abstract
This book tells true and poignant stories from both sides of the physician-patient/parent relationship and provides a unique glimpse into how parents and physicians think, feel, and interact. The stories are grouped under four sections: Hope, Compassion, Communication, and Trust.
Each section includes stories contributed by parents from all across the United States and by pediatricians practicing at many of the best children's hospitals throughout the country. The parents tell of interactions with physicians that had a significant impact on them and their child and offer context and insight that promote empathy and reflection. The physicians tell of interactions with patients and families that served as learning moments in their career and promote the humanization of medicine and show there is more to a physician beyond their scientific knowledge and white coat.
The stories are edited by Barry P. Markovitz - a pediatrician specializing in critical care medicine who has been in practice for more than 20 years and by Ann F. Schrooten - the parent of a child born with a chronic complex condition who has more than 15 years of experience interacting with pediatric subspecialists and other healthcare professionals who cared for her son. The editors have written commentaries to the stories to provide an independent perspective on the events and messages conveyed and to encourage reflection, inquiry, and discussion.
In addition to being a valuable resource for pediatricians, pediatric subspecialists, nurses and other healthcare professionals, the book will also appeal to families of children living with complex medical conditions because it shares physician encounters and behaviors many have experienced in the care of their own children. By giving a voice to both parents and physicians, the goal is to create a bridge to better understanding that can improve communication, minimize conflicts, and foster trust and compassion among physicians, patients, and families.
ISBN
9783030680206
Language
English
Material Type
Ebook
Call Number
EF 850.5 SCH 2021e
URLs
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Shared Struggles: Stories from parents and pediatricians caring for children with serious illnesses

https://bcch.andornot.com/en/permalink/catalog123758
Schrooten, A.F., Markovitz, B.P. Switzerland: Springer International Publishing AG , 2021.
Material Type
Book
Call Number
EF 850.5 SCH 2021b
Availability
1 copy, 1 available
This book tells true and poignant stories from both sides of the physician-patient/parent relationship and provides a unique glimpse into how parents and physicians think, feel, and interact. The stories are grouped under four sections: Hope, Compassion, Communication, and Trust.; Each section incl…
Author
Schrooten, A.F.
Markovitz, B.P.
Place of Publication
Switzerland
Publisher
Springer International Publishing AG
Publication Date
2021
Physical Description
251 pages
Subject
Coping with Chronic Illness-Children
Abstract
This book tells true and poignant stories from both sides of the physician-patient/parent relationship and provides a unique glimpse into how parents and physicians think, feel, and interact. The stories are grouped under four sections: Hope, Compassion, Communication, and Trust.
Each section includes stories contributed by parents from all across the United States and by pediatricians practicing at many of the best children's hospitals throughout the country. The parents tell of interactions with physicians that had a significant impact on them and their child and offer context and insight that promote empathy and reflection. The physicians tell of interactions with patients and families that served as learning moments in their career and promote the humanization of medicine and show there is more to a physician beyond their scientific knowledge and white coat.
The stories are edited by Barry P. Markovitz - a pediatrician specializing in critical care medicine who has been in practice for more than 20 years and by Ann F. Schrooten - the parent of a child born with a chronic complex condition who has more than 15 years of experience interacting with pediatric subspecialists and other healthcare professionals who cared for her son. The editors have written commentaries to the stories to provide an independent perspective on the events and messages conveyed and to encourage reflection, inquiry, and discussion.
In addition to being a valuable resource for pediatricians, pediatric subspecialists, nurses and other healthcare professionals, the book will also appeal to families of children living with complex medical conditions because it shares physician encounters and behaviors many have experienced in the care of their own children. By giving a voice to both parents and physicians, the goal is to create a bridge to better understanding that can improve communication, minimize conflicts, and foster trust and compassion among physicians, patients, and families.
ISBN
9783030680206
Language
English
Material Type
Book
Call Number
EF 850.5 SCH 2021b

Copies

BC Children's and Women's Family Library Available
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What happens when someone I love doesn't feel good: A book about illness that won't go away

https://bcch.andornot.com/en/permalink/catalog124827
Olsher, Sara, Rogers, Jenni. Happy Valley, OR: Mighty and Bright , 2023.
Material Type
Book
Call Number
JUNIOR EF 860 OLS 2023
Availability
2 copies, 1 available
Join Mia and Stewart as they learn how bodies work, why some bodies don't always feel good, and what to do when someone they love has an illness that won't go away.
Author
Olsher, Sara
Rogers, Jenni
Place of Publication
Happy Valley, OR
Publisher
Mighty and Bright
Publication Date
2023
Physical Description
Softcover; 39 pages
Subject
Coping with Chronic Illness in the Family
Abstract
Join Mia and Stewart as they learn how bodies work, why some bodies don't always feel good, and what to do when someone they love has an illness that won't go away.
ISBN
9798986776538
Language
English
Material Type
Book
Call Number
JUNIOR EF 860 OLS 2023

Copies

copy 1 BC Children's and Women's Family Library On Loan, due Friday, May 17, 2024
copy 2 BC Children's and Women's Family Library Available
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Help your child manage medical & surgical procedures

https://bcch.andornot.com/en/permalink/catalog123689
Health Promotion and Health Literacy Team. Vancouver, BC: BC Children's Hospital , 2022.
URL
http://www.cw.bc.ca/library/pdf/pamphlets/BC-Childrens-Helping-your-Child-Manage-Procedures.pdf
Material Type
Handout
Online
These suggestions can help you and your child manage stress before, during, and after their; procedure.; Some children may need to talk about the procedure and their coping plan several times. Other children just need to prepare once.; You know your child best. Please adapt these suggestions to sui…
  1 url  
URL
http://www.cw.bc.ca/library/pdf/pamphlets/BC-Childrens-Helping-your-Child-Manage-Procedures.pdf
Alternate Title
Help your child manage medical and surgical procedures
Corporate Author
Health Promotion and Health Literacy Team
Place of Publication
Vancouver, BC
Publisher
BC Children's Hospital
Publication Date
2022
Physical Description
PDF; 2 pages
Subject
Pain Control-Complementary Therapies
Pain Control
Abstract
These suggestions can help you and your child manage stress before, during, and after their
procedure.
Some children may need to talk about the procedure and their coping plan several times. Other children just need to prepare once.
You know your child best. Please adapt these suggestions to suit your child?s age, interests, and personality.
Language
English
Material Type
Handout
Online
URLs
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