Author

Schrooten, A.F.

Markovitz, B.P.

Place of Publication

Switzerland

Publisher

Springer International Publishing AG

Publication Date

2021

Physical Description

251 pages

Subject

Coping with Chronic Illness-Children

Abstract

This book tells true and poignant stories from both sides of the physician-patient/parent relationship and provides a unique glimpse into how parents and physicians think, feel, and interact. The stories are grouped under four sections: Hope, Compassion, Communication, and Trust.

Each section includes stories contributed by parents from all across the United States and by pediatricians practicing at many of the best children's hospitals throughout the country. The parents tell of interactions with physicians that had a significant impact on them and their child and offer context and insight that promote empathy and reflection. The physicians tell of interactions with patients and families that served as learning moments in their career and promote the humanization of medicine and show there is more to a physician beyond their scientific knowledge and white coat.

The stories are edited by Barry P. Markovitz - a pediatrician specializing in critical care medicine who has been in practice for more than 20 years and by Ann F. Schrooten - the parent of a child born with a chronic complex condition who has more than 15 years of experience interacting with pediatric subspecialists and other healthcare professionals who cared for her son. The editors have written commentaries to the stories to provide an independent perspective on the events and messages conveyed and to encourage reflection, inquiry, and discussion.

In addition to being a valuable resource for pediatricians, pediatric subspecialists, nurses and other healthcare professionals, the book will also appeal to families of children living with complex medical conditions because it shares physician encounters and behaviors many have experienced in the care of their own children. By giving a voice to both parents and physicians, the goal is to create a bridge to better understanding that can improve communication, minimize conflicts, and foster trust and compassion among physicians, patients, and families.

ISBN

9783030680206

Language

English

Material Type

Book

Call Number

EF 850.5 SCH 2021b

Copies

Author

Sileo, Frank J.

Potter, Carol S.

Place of Publication

Washington, DC

Publisher

American Psychological Association

Publication Date

2021

Physical Description

Softcover; 419 pages

Subject

Coping with Chronic Illness-Children

Coping with Chronic Illness in the Family

Coping with Chronic Illness-Young Adult

Abstract

Written by leading mental health professionals, this warm and accessible parenting book for children with chronic illnesses offers clear, practical guidance for all aspects of the journey. It is recommended by professionals at the American Diabetes Association, Invisible Disabilities Association, the Crohn's Colitis Foundation, and other expert national and regional sources.

For all its joys, parenting is a complex job, and when your child has a chronic illness, the stress can feel overwhelming. When your child is diagnosed, you begin a parenting journey filled with strong emotions, difficult choices, confusing words, and interactions with numerous professionals and specialists.

You're focused on ensuring your child gets the best possible treatments for their symptoms, so it's easy to overlook or dismiss the impact the illness can have on your relationships and emotions. This book places your psychological well-being front and center, so you can be the best caregiver possible for your child.

Along with suggestions for making laughter and mindfulness part of your daily self-care routine, it offers guidance for choosing the right therapist for your family, should extra support be needed. Every family's journey with chronic illness is unique, but you don't have to go it alone.

ISBN

9781433833816

Language

English

Material Type

Book

Call Number

EF 850.5 SIL 2021

Copies

Author

Nimmo, Stephanie

Place of Publication

London, UK

Publisher

Jessica Kingsley Publishers

Publication Date

2024

Physical Description

Softcover; 272 pages

Subject

Coping with Chronic Illness-Children

Caregivers-Coping

Caregivers for a Dying Loved One

Abstract

Every parent wants the same thing: for their child to enjoy a long and fulfilling life. But what happens when things don't go according to plan? What happens when parents have to become advocates for their child's healthcare needs? Who decides what is in a child's 'best interests'?

Stephanie Nimmo faced these questions first-hand when her daughter, Daisy, was diagnosed with a life-limiting condition as a baby. Seen through the lens of Stephanie's own experiences, this sensitive book delves into the complex world of medical ethics and pediatric palliative care. From recognizing tipping points to the importance of building relationships with palliative care teams well before crisis, this book explores how medical professionals can better support families throughout their child's care.

Interviews with clinicians and snapshots from the lives of patients' families provide insight into the realities of life on both sides of the hospital bed. Compassionate explanations of the conflicting pressures in the hospital system foster understanding and help medical professionals and families work together.

ISBN

5727227010272

Language

English

Material Type

Book

Call Number

EF 850.5 NIM 2024

Copies

Author

Kuttner, Leora

Carlson, Torie

Place of Publication

[Vancouver], BC

Publisher

BC Children's Hospital

Publication Date

2022

Physical Description

Softcover : 29 pages

Subject

Pain Control

Mind/Body

Abstract

This book features reflections and case studies by clinicians trained to use a range of mind-body techniques that have been shown, through research, to relieve pain and anxiety and to empower children and their parents to cope with distressing invasive procedures and medical interventions.

Language

English

Material Type

Book

Call Number

FM 820 KUT 2022

Copies

Author

MacNamara, Deborah

Place of Publication

Vancouver, BC

Publisher

Aona Books

Publication Date

2023

Physical Description

Soft copy; 302 pages

Subject

Feeding and Nutrition

Abstract

What does it mean to be nourished?

Nothing could be more basic than food. However, food is only one part of the concept of nourishment, but it has consumed our focus and eclipsed something far more critical for thriving - connection. We have lost sight of the fact that feeding our families is about human relationship and emotional well-being.

In Nourished, developmental and relational clinical counsellor Dr. Deborah MacNamara shows us how feeding is part of the caretaking relationship and cannot be separated from it. Informed by attachment science, developmental psychology, neuroscience, and research on human emotion, Nourished reframes our approach to providing for our kids and helps us hit the reset button on our relationship with food. After reading this seminal work, it will be impossible to ever view food as just plain food again.

As parents we need our kids to be receptive to what we offer but the road to the stomach must go through the heart. As relational and emotional creatures, our deepest hunger is one that food by itself cannot fill. In this book, Dr. MacNamara gives us the keys to transform the everyday act of feeding our children (and other loved ones) into a most fulfilling and nourishing dance of attachment. Based on developmental and relational science, qualitative research with families, counselling parents, and her own experience as a mother, in Nourished, MacNamara combines storytelling with science and puts food in its rightful place.

ISBN

9780995051249

Language

English

Material Type

Book

Call Number

BB 200 MAC 2023

Copies

Author

Mouton-Odum, Suzanne

Goldfinger Golomb, Ruth

Place of Publication

Oakland, CA

Publisher

New Harbinger Publications

Publication Date

2021

Physical Description

Soft cover; 202 pages

Subject

Sensory Processing Challenges

Sensory Processing Disorder

Abstract

Imagine having the flu, while lying in a bed of ants, listening to heavy metal at high volume, and trying to do calculus. Now consider living in that body all the time. It becomes easy to understand how kids with difficulties processing and controlling sensory information can become avoidant, anxious, impatient, irritable, or oppositional.

If you have a child who has a sensory regulation issue, you may find yourself confused or frustrated by their behavior. This book will help you understand your child's behavior, as well as the root cause of their emotional outbursts, and provides an arsenal of tools to help your child self-regulate.

This book addresses the often-overlooked connection between sensory sensitivity and emotional and behavioral issues, which can often lead to a diagnosis of attention deficit/hyperactivity disorder (ADHD), an anxiety disorder, or a host of other disorders of childhood. You'll gain a better understanding of how your child's sensory sensitivity affects how they feel and act, and also learn powerful sensory regulation skills to help your child manage their emotions and improve relationships with family and friends.

Whether your child has been diagnosed with sensory processing disorder (SPD), ADHD, obsessive-compulsive disorder (OCD), oppositional defiant disorder (ODD), generalized anxiety disorder (GAD), or autism spectrum disorder (ASD), you'll find proven-effective tips and strategies for dealing with the sensory sensitivity that drives your child's emotions and behavior, and discover ways to ease tension in your home caused by your child's disorganization, oppositional behavior, refusal to eat, disruptive behavior, and anxiety.

Parenting can be challenging even when behavior is predictable and age-appropriate, and when a child has a nervous system that is dysregulated, it is even more so. With this book, you will not only learn to understand your child's behaviors, but will also learn sensory regulation skills to help your child - and your family as a whole - find some much-needed balance.

ISBN

9781684036264

Language

English

Material Type

Book

Call Number

FM 100.6 MOU 2021

Copies

Alternate Title

NowMaps Jr.

Author

Siegel, Daniel J.

Place of Publication

Eau Claire, WI

Publisher

PESI Publishing

Publication Date

2022

Physical Description

Hardcover; 55 pages

Subject

Emotional Health

Mindfulness

Abstract

Written by world-renowned neuropsychiatrist and co-author of The Whole-Brain Child, Dr. Dan Siegel, NowMaps Jr. is a delightful rhyming story that introduces kids to the neuroscience of early childhood social-emotional learning in a captivating, interactive way! Kids ages 3-6 will love this beautifully illustrated choose-your-own adventure book that whisks them off to distant lands - including a jungle, a desert, and a pirate ship - as they learn about their thoughts, feelings, and sensory experiences.

ISBN

9781683735328

Language

English

Material Type

Book

Call Number

JUNIOR CA 200 SIE 2022

Copies

Author

Carter, Bryan D.

Kronenberger, William G.

Scott, Eric L.

Place of Publication

Oxford, UK

Publisher

Oxford University Press

Publication Date

2020

Physical Description

Softcover; 113 pages

Series

Programs that work

Subject

Coping with Chronic Illness Young Adult

Coping with Chronic Illness

Coping with Chronic Illness-Children

Abstract

Children and adolescents with chronic illnesses, particularly those accompanied by debilitating, painful, and/or fatiguing symptoms, face challenges that may prove disruptive to physical, psychological, and social development. Based on extensive research and clinical expertise, Children's Health and Illness Recovery Program (CHIRP) is an effective treatment program designed to build and maintain independence in young people with chronic illness.

This Teen and Family Workbook provides proven treatment activities designed to combat the additional stress faced by youth coping with long-term health problems. These tasks target key areas for improvement in physical functioning, school functioning, and personal functioning and support the creation of new tools for managing the impact of illness, such as stress management, coping and relaxation techniques, and communication skills. In-session and take-home activities outlined in this workbook are meant to accompany the companion CHIRP Clinician Guide. With the use of this workbook and supported by a network of clinicians, healthcare specialists, and school professionals, adolescents and their families can return to a better quality of life.

ISBN

9780190070472

Language

English

Material Type

Book

Call Number

EF 850.6 CAR 2020

Copies

Author

Carter, Bryan D.

Kronenberger, William G.

Scott, Eric L.

Brady, Christine E.

Place of Publication

Oxford, UK

Publisher

Oxford University Press

Publication Date

2020

Physical Description

Softcover; 173 pages

Series

Programs that work

Subject

Coping with Chronic Illness Young Adult

Coping with Chronic Illness

Coping with Chronic Illness-Children

Abstract

Youth with chronic illnesses face challenges that may prove disruptive to physical, psychological, and social development. Based on extensive research and clinical expertise, Children's Health and Illness Recovery Program (CHIRP) is an interdisciplinary cognitive behavioral and family systems-based treatment program designed to maximize the independent functioning of teens with chronic illness.

This Clinician Guide offers a detailed outline for implementing this manualized intervention and provides clear guidance as to the philosophy, pragmatics, and art of working with challenging pediatric conditions. Designed to accompany the CHIRP Teen and Family Workbook, this book addresses specific assessment measures and tools needed to establish a collaborative treatment team approach that incorporates the skills of the CHIRP clinician, primary and specialty care providers, and roles of other healthcare (physical therapists, occupational therapists, etc.) and educational professionals critical to the successful management and treatment of these youth.

ISBN

9780190070267

Language

English

Material Type

Book

Call Number

EF 850.6 CAR 2020b

Copies

Author

Running, Alice

Place of Publication

London, UK

Publisher

Jessica Kingsley Publishers

Publication Date

2022

Physical Description

124 pages

Subject

Autism

Autism Spectrum Disorder (includes Asperger Syndrome)

Abstract

Drawing on the author's personal experience of parenting a child with PDA, this insightful and informative guide offers strategies and tips for all aspects of daily life, including sensory issues, education and negotiation. Full of advice and support, this book is not intended to provide information on how to change your children. Rather, it is focused on creating the type of environment that will allow children to be authentically themselves, thereby enabling them to flourish and thrive.

ISBN

9781787754850

Language

English

Material Type

Book

Call Number

FM 272 RUN 2022

Copies

Author

Rapee, Ronald M

Wignall, Ann

Spence, Susan

Cobham, Vanessa

Lyneham, Heidi

Edition

3rd edition

Place of Publication

Oakland, CA

Publisher

New Harbinger Publications

Publication Date

2022

Physical Description

Softcover; 314 pages

Subject

Anxiety. Anxiety Disorders

Abstract

With more than 150,000 copies sold, this fully revised and updated edition of the classic self-help guide for parents offers cutting-edge, proven-effective techniques for helping your child overcome anxiety and thrive.

Most children are afraid of the dark. Some fear monsters under the bed. But at least ten percent of children have excessive fears and worries―phobias, separation anxiety, panic attacks, social anxiety, or obsessive-compulsive disorder―that can hold them back and keep them from fully enjoying childhood. If your child suffers from any of these forms of anxiety, this book offers new, practical, and evidence-based proven tools that can help.

Now in its third edition, Helping Your Anxious Child has been expanded and updated to include the latest research and techniques for managing child anxiety, and includes new information on helping very young children and adolescents; as well as anxiety in children with behavioral problems, learning difficulties, or medical conditions. The book offers proven-effective skills based in cognitive behavioral therapy (CBT), exposure therapy, and mindfulness and relaxation techniques to aid you in helping your child overcome intense fears and worries. You'll also find out how to relieve your child's anxious feelings while parenting with compassion.

Parents will learn:

How to help your child practice ?detective thinking? to recognize irrational worries

What to do when your child becomes frightened

How to expose your child gently and gradually to challenging situations

How to help your child learn important social skills

Also included are links to a free downloadable workbook for parents, and an activity book for kids. The kid-friendly, illustrated activity book will help your child take an active role in learning to manage their anxiety, as they learn and practice the skills outlined in Helping Your Anxious Child.

ISBN

9781684039913

Language

English

Material Type

Book

Call Number

CD 420 RAP 2022

Author

Averton, Niki

Perry, Nicole

Stone, Lyn [ill.]

Publisher

Phoenix Society

Publication Date

2020

Physical Description

Softcover; illustrated; no pagination

Subject

Burns - Coping

Abstract

Sara?s STEPS is designed to help preschool and elementary school-age burn survivors, their siblings, and children of burn survivors.

Young readers will learn:

- How to manage staring

- How to respond to comments from other children and adults

- How to answer questions

- How to end an uncomfortable conversation

Using Sara's story as a guide, help children develop skills to feel more confident talking about their own or their loved one?s burn injury in social situations.

ISBN

9798635396612

Language

English

Material Type

Book

Call Number

JUNIOR FO 950 AVE 2020

Copies

Alternate Title

Ollie the octopus : Loss and bereavement activity book

Author

Triesman, Karen

Peacock, Sarah [ill.]

Place of Publication

London, UK and Philadelphia, PA

Publisher

Jessica Kingsley Publishers

Publication Date

2021

Physical Description

softcover; 251 pages

Subject

Coping with Death

Grief.Bereavement

Abstract

In a magical underwater forest lived a colourful and loveable Octopus called Ollie, who loved swimming with his friends and spending time with his mum and dad, Orla and Orson the Octopuses.

Until one day, Orla started to get very sick. The doctors did everything they could to help her, but very sadly, Orla died. Ollie had so many thoughts and feelings spinning around in his head, and his heart was hurting.

This activity book has been developed by expert child Psychologist and bestselling author Dr. Karen Treisman. The first part of the book is a colourful illustrated therapeutic story about Ollie the Octopus, with a focus on Ollie making sense of and processing the loss of his mum, Orla. This is followed by a wealth of creative activities and colourful photocopiable worksheets for children and the people supporting them to explore aspects of loss, grief, death, and bereavement, and how to find ways to understand and cope with them.

The final section of the book is full of advice and practical strategies for parents, carers, and professionals on how to help children aged 5-10 to begin to understand the complex and multi-layered feelings surrounding loss and bereavement, and what they can do to help navigate them through their grief journey.

ISBN

9781787757660

Language

English

Material Type

Book

Call Number

GV 250 TRE 2021

Copies

Alternate Title

What on earth do you do when someone dies? Second edition

Author

Romain, Trevor

Verdick, Elizabeth (Editor)

Edition

second edition

Place of Publication

Minneapolis, MN

Publisher

Free Spirit Publishing

Publication Date

2023

Physical Description

paperback: 84 pages

Subject

Coping with Death

Children and Grief

Children-Coping with Death and Dying

Grief. Bereavement

Abstract

Describes the many emotions involved in dealing with the death of a loved one and discusses how to work through such a situation.

ISBN

9798765922569

Language

English

Material Type

Book

Call Number

JUNIOR GV 250 ROM 2023

Copies

Author

Schnackenberg, Nicole

Monzani, Benedetta

Jassi, Amita

Place of Publication

London, Eng.

Publisher

Jessica Kingsley Publishers

Publication Date

2020

Physical Description

Softcover; 237 pages

Subject

Obsessive-Compulsive Disorders

Abstract

The first book offering support for parents and carers of children and young people with Body Dysmorphic Disorder (BDD), this guidebook explains the condition as well as the impact that it may have in education settings, family life and socialisation.

The guide begins by explaining how and why BDD emerges, before moving onto an exploration of how the mental health condition presents itself emotionally, psychologically, physically and behaviourally. It then offers practical advice and guidance for parents and carers on talking to their child about BDD, seeking professional treatment, considering medication, managing social media use, working with schools to build a recovery team and more.

The Parents' Guide to Body Dysmorphic Disorder is an essential guidebook for parents of children and young people with BDD.

ISBN

9781787751132

Language

English

Material Type

Book

Call Number

CD 800 SCH 2020

Copies

Author

Olsher, Sara

Rogers, Jenni

Place of Publication

Happy Valley, OR

Publisher

Mighty and Bright

Publication Date

2023

Physical Description

Softcover; 39 pages

Subject

Coping with Chronic Illness in the Family

Abstract

Join Mia and Stewart as they learn how bodies work, why some bodies don't always feel good, and what to do when someone they love has an illness that won't go away.

ISBN

9798986776538

Language

English

Material Type

Book

Call Number

JUNIOR EF 860 OLS 2023

Copies

Alternate Title

Ten Steps to Reducing Your Child's Anxiety on the Autism Spectrum

Author

Garnett, Michelle

Attwood, Tony

Ford, Louise

Runham, Stefanie

Cook, Julia

Place of Publication

London, Eng.

Publisher

Jessica Kingsley Publishers

Publication Date

2020

Physical Description

Softcover; 255 pages

Subject

Autism Spectrum Disorder (includes Asperger Syndrome)

Anxiety. Anxiety Disorders

Abstract

Recognising, expressing and understanding emotions helps young children make sense of their life experiences. Children diagnosed with autism can have significant difficulties with recognising and processing emotions which can lead to high levels of anxiety as they struggle to make sense of the unpredictable world around them.

The 'Fun with Feelings' programme is designed to help parents support their children with emotional regulation and to decrease anxiety. This guide is structured around 10 stages. The initial four stages prepare parents to implement the programme with their child. These stages help parents understand the causes of anxiety and provide practical strategies for creating a toolbox to reduce anxiety. The final six stages are used in conjunction with Having Fun with Feelings on the Autism Spectrum: A CBT Activity Book for Kids Age 4-8, allowing parents to support their child while working through the activity book.

Written by world-leading experts in the field, 10 Steps to Reducing Your Child's Anxiety on the Autism Spectrum provides the steppingstones for parents of young children with autism to better understand their child's emotional skill set and empower them to understand and articulate their feelings.

ISBN

9781787753259

Language

English

Material Type

Book

Call Number

FM 272 GAR 2020a

Copies

Author

Olsen, Angus

Publisher

Angus Olsen

Publication Date

2021

Physical Description

Paperback; [28p.]

Subject

Cancer - Coping

Cancer Therapy. Cancer Therapy - Combined Modalities

Children with Cancer

Children with Cancer-Coping

Abstract

My Scans is a simple book for children designed in collaboration with parents of oncology children to help with anxiety associated with scans. This book includes short descriptions of experiences associated with Ultrasounds, PET scans, CT scans and MRI scans.

ISBN

9780645151053

Language

English

Material Type

Book

Call Number

JUNIOR FE 550 OLS 2021c

Author

Boivin, Lisa

Place of Publication

Winnipeg, MB

Publisher

HighWater Press

Publication Date

2020

Physical Description

Hardcover; Non-paginated

Subject

Grief.Bereavement

Coping with Death

Indigenous

Cremation

Abstract

When the author learns of the death of her brother overseas, she embarks on a journey to bring him home. Through memories and dreams of all they shared together, she follows Dene teachings to find comfort and strength. The lyrical art and story leave readers with a universal message of hope and love.

ISBN

9781553798552

Language

English

Material Type

Book

Call Number

YOUTH GV 200 BOI 2020

Copies

Alternate Title

Make social and emotional learning stick : Practical activities to help your child manage emotions, navigate social situations and reduce anxiety

Author

Sautter, Elizabeth

Edition

2nd

Publisher

Make It Stick Publishing

Publication Date

2020

Physical Description

145 pages

Subject

Child Social Behaviour

Autism Spectrum Disorder (includes Asperger Syndrome)

Anxiety

Emotions

Attention Deficit Disorder. Hyperactivity

Abstract

Does your child experience high levels of anxiety and BIG emotions? Do they lack the confidence to seek out peers and to see others' perspectives? Do you want to help build social and emotional skills but find yourself so busy managing the meltdowns and behaviors that come from anxiety, sensitivity, ADHD, or autism that you can't find the energy and patience?

This Mom's Choice Award-winning book provides over 200 updated and easy-to-understand activities that will inspire busy parents to embrace teachable moments. Let everyday routines become opportunities for social and emotional growth by using practical, fun ideas in a user-friendly format. When you have the tools you need to help your child, you can both become more calm, confident, and connected. Because your child learns the most from YOU!

ISBN

9781641844277

Language

English

Material Type

Book

Call Number

GK 850 SAU 2020

Copies