Author

Carter, Bryan D.

Kronenberger, William G.

Scott, Eric L.

Brady, Christine E.

Place of Publication

Oxford, UK

Publisher

Oxford University Press

Publication Date

2020

Physical Description

Softcover; 173 pages

Series

Programs that work

Subject

Coping with Chronic Illness Young Adult

Coping with Chronic Illness

Coping with Chronic Illness-Children

Abstract

Youth with chronic illnesses face challenges that may prove disruptive to physical, psychological, and social development. Based on extensive research and clinical expertise, Children's Health and Illness Recovery Program (CHIRP) is an interdisciplinary cognitive behavioral and family systems-based treatment program designed to maximize the independent functioning of teens with chronic illness.

This Clinician Guide offers a detailed outline for implementing this manualized intervention and provides clear guidance as to the philosophy, pragmatics, and art of working with challenging pediatric conditions. Designed to accompany the CHIRP Teen and Family Workbook, this book addresses specific assessment measures and tools needed to establish a collaborative treatment team approach that incorporates the skills of the CHIRP clinician, primary and specialty care providers, and roles of other healthcare (physical therapists, occupational therapists, etc.) and educational professionals critical to the successful management and treatment of these youth.

ISBN

9780190070267

Language

English

Material Type

Book

Call Number

EF 850.6 CAR 2020b

Copies

Author

Olsher, Sara

Rogers, Jenni

Place of Publication

Happy Valley, OR

Publisher

Mighty and Bright

Publication Date

2023

Physical Description

Softcover; 39 pages

Subject

Coping with Chronic Illness in the Family

Abstract

Join Mia and Stewart as they learn how bodies work, why some bodies don't always feel good, and what to do when someone they love has an illness that won't go away.

ISBN

9798986776538

Language

English

Material Type

Book

Call Number

JUNIOR EF 860 OLS 2023

Copies

Author

Carter, Bryan D.

Kronenberger, William G.

Scott, Eric L.

Place of Publication

Oxford, UK

Publisher

Oxford University Press

Publication Date

2020

Physical Description

Softcover; 113 pages

Series

Programs that work

Subject

Coping with Chronic Illness Young Adult

Coping with Chronic Illness

Coping with Chronic Illness-Children

Abstract

Children and adolescents with chronic illnesses, particularly those accompanied by debilitating, painful, and/or fatiguing symptoms, face challenges that may prove disruptive to physical, psychological, and social development. Based on extensive research and clinical expertise, Children's Health and Illness Recovery Program (CHIRP) is an effective treatment program designed to build and maintain independence in young people with chronic illness.

This Teen and Family Workbook provides proven treatment activities designed to combat the additional stress faced by youth coping with long-term health problems. These tasks target key areas for improvement in physical functioning, school functioning, and personal functioning and support the creation of new tools for managing the impact of illness, such as stress management, coping and relaxation techniques, and communication skills. In-session and take-home activities outlined in this workbook are meant to accompany the companion CHIRP Clinician Guide. With the use of this workbook and supported by a network of clinicians, healthcare specialists, and school professionals, adolescents and their families can return to a better quality of life.

ISBN

9780190070472

Language

English

Material Type

Book

Call Number

EF 850.6 CAR 2020

Copies

URL

https://ebookcentral.proquest.com/lib/cwhbc/detail.action?docID=6578034

Author

Schrooten, A.F.

Markovitz, B.P.

Place of Publication

Switzerland

Publisher

Springer International Publishing AG

Publication Date

2021

Subject

Coping with Chronic Illness-Children

Abstract

This book tells true and poignant stories from both sides of the physician-patient/parent relationship and provides a unique glimpse into how parents and physicians think, feel, and interact. The stories are grouped under four sections: Hope, Compassion, Communication, and Trust.

Each section includes stories contributed by parents from all across the United States and by pediatricians practicing at many of the best children's hospitals throughout the country. The parents tell of interactions with physicians that had a significant impact on them and their child and offer context and insight that promote empathy and reflection. The physicians tell of interactions with patients and families that served as learning moments in their career and promote the humanization of medicine and show there is more to a physician beyond their scientific knowledge and white coat.

The stories are edited by Barry P. Markovitz - a pediatrician specializing in critical care medicine who has been in practice for more than 20 years and by Ann F. Schrooten - the parent of a child born with a chronic complex condition who has more than 15 years of experience interacting with pediatric subspecialists and other healthcare professionals who cared for her son. The editors have written commentaries to the stories to provide an independent perspective on the events and messages conveyed and to encourage reflection, inquiry, and discussion.

In addition to being a valuable resource for pediatricians, pediatric subspecialists, nurses and other healthcare professionals, the book will also appeal to families of children living with complex medical conditions because it shares physician encounters and behaviors many have experienced in the care of their own children. By giving a voice to both parents and physicians, the goal is to create a bridge to better understanding that can improve communication, minimize conflicts, and foster trust and compassion among physicians, patients, and families.

ISBN

9783030680206

Language

English

Material Type

Ebook

Call Number

EF 850.5 SCH 2021e

Author

Schrooten, A.F.

Markovitz, B.P.

Place of Publication

Switzerland

Publisher

Springer International Publishing AG

Publication Date

2021

Physical Description

251 pages

Subject

Coping with Chronic Illness-Children

Abstract

This book tells true and poignant stories from both sides of the physician-patient/parent relationship and provides a unique glimpse into how parents and physicians think, feel, and interact. The stories are grouped under four sections: Hope, Compassion, Communication, and Trust.

Each section includes stories contributed by parents from all across the United States and by pediatricians practicing at many of the best children's hospitals throughout the country. The parents tell of interactions with physicians that had a significant impact on them and their child and offer context and insight that promote empathy and reflection. The physicians tell of interactions with patients and families that served as learning moments in their career and promote the humanization of medicine and show there is more to a physician beyond their scientific knowledge and white coat.

The stories are edited by Barry P. Markovitz - a pediatrician specializing in critical care medicine who has been in practice for more than 20 years and by Ann F. Schrooten - the parent of a child born with a chronic complex condition who has more than 15 years of experience interacting with pediatric subspecialists and other healthcare professionals who cared for her son. The editors have written commentaries to the stories to provide an independent perspective on the events and messages conveyed and to encourage reflection, inquiry, and discussion.

In addition to being a valuable resource for pediatricians, pediatric subspecialists, nurses and other healthcare professionals, the book will also appeal to families of children living with complex medical conditions because it shares physician encounters and behaviors many have experienced in the care of their own children. By giving a voice to both parents and physicians, the goal is to create a bridge to better understanding that can improve communication, minimize conflicts, and foster trust and compassion among physicians, patients, and families.

ISBN

9783030680206

Language

English

Material Type

Book

Call Number

EF 850.5 SCH 2021b

Copies

Author

Nimmo, Stephanie

Place of Publication

London, UK

Publisher

Jessica Kingsley Publishers

Publication Date

2024

Physical Description

Softcover; 272 pages

Subject

Coping with Chronic Illness-Children

Caregivers-Coping

Caregivers for a Dying Loved One

Abstract

Every parent wants the same thing: for their child to enjoy a long and fulfilling life. But what happens when things don't go according to plan? What happens when parents have to become advocates for their child's healthcare needs? Who decides what is in a child's 'best interests'?

Stephanie Nimmo faced these questions first-hand when her daughter, Daisy, was diagnosed with a life-limiting condition as a baby. Seen through the lens of Stephanie's own experiences, this sensitive book delves into the complex world of medical ethics and pediatric palliative care. From recognizing tipping points to the importance of building relationships with palliative care teams well before crisis, this book explores how medical professionals can better support families throughout their child's care.

Interviews with clinicians and snapshots from the lives of patients' families provide insight into the realities of life on both sides of the hospital bed. Compassionate explanations of the conflicting pressures in the hospital system foster understanding and help medical professionals and families work together.

ISBN

5727227010272

Language

English

Material Type

Book

Call Number

EF 850.5 NIM 2024

Copies

Author

Olsher, Sara

Place of Publication

[Santa Rosa, CA]

Publisher

Mighty and Bright

Publication Date

2021

Physical Description

Softcover; no pagination

Series

A what about me? book - Starring Mia + Stuart

Subject

Children with Cancer-Coping for Siblings

Sibling Relationships

Abstract

Join Mia and her stuffed giraffe Stuart as they explain the science of cancer and how a loved one's diagnosis and treatment affects a kid's day-to-day life.What Happens When My Sibling Has Cancer uses bright and fun illustrations to show how cells can turn into cancer, and helps reduce confusion about how cancer treatment affects the child and their siblings.

Notes

For ages 4 - 10

ISBN

9781736611487

Language

English

Material Type

Book

Call Number

JUNIOR FE 557 OLS 2021

Copies

URL

https://ebookcentral.proquest.com/lib/cwhbc/detail.action?docID=6207056

Author

Walsh, B. Timothy.

Glasofer, Deborah R.

Edition

2nd

Publisher

Oxford University Press, Inc.

Publication Date

2020

Subject

Eating Disorders

Anorexia Nervosa

Bulimia

Parenting

Young Adults-Mental Health. Psychology

Abstract

This book is an authoritative guide to understanding and helping a teenager with anorexia nervosa, bulimia nervosa, binge eating disorder, avoidant/restrictive food intake disorder, or other eating disorders. It combines the latest science--including the newest treatments and most up-to-date research findings on eating disorders--with the practical wisdom of parents who have been in the trenches raising teens with eating disorders.

ISBN

9780190076832

Language

English

Material Type

Ebook

Call Number

BB 500 WAL 2020

URL

https://ebookcentral.proquest.com/lib/cwhbc/detail.action?docID=6002581

Author

Bryden, Pier

Szatmari, Peter

Place of Publication

Toronto, ON

Publisher

Simon & Schuster

Publication Date

2020

Subject

Mental Health

Mental Health/Illness

Parenting

Young Adults-Mental Health. Psychology

Children Mental Health

Abstract

"As parents, we worry about our children - about their physical health, performance at school, the types of friends they have, and, of course, their mental health. Every day seems to bring new and expanding issues and disorders and troubling statistics about the rise of mental illness in children and teens. It's usually obvious what to do for physical injuries like broken bones, but when it comes to our children's mental health, the answers are much less clear, and sometimes even contradictory.

"Pier Bryden and Peter Szatmari, top child and adolescent psychiatrists, are here to help. Using their combined six decades working with families and kids - and their own experiences as parents - they break down the stigma of mental health illness and walk parents through the warning signs, risk factors, prevention strategies, and the process of diagnosis and treatment for mental health challenges arising from: anxiety, substance use disorders, eating disorders, sleep disorders, depression, trauma, suicidal thoughts and behaviors, psychosis, ADHD, and autism.

"The most important thing to remember as a parent is that you and your child are not alone and there is a lot you can do to improve your child's mental health. The road ahead isn't always easy or straightforward, but start here to learn how to advocate for your child's well-being"--from the inside front cover.

ISBN

9781508257936

Language

English

Material Type

Ebook

Call Number

CD 100 BRY 2020b

Author

Bryden, Pier

Szatmari, Peter

Place of Publication

Toronto, ON

Publisher

Simon & Schuster

Publication Date

2020

Physical Description

Softcover ; ix, 271 p.

Subject

Mental Health

Mental Health/Illness

Parenting

Young Adults-Mental Health. Psychology

Children Mental Health

Abstract

"As parents, we worry about our children - about their physical health, performance at school, the types of friends they have, and, of course, their mental health. Every day seems to bring new and expanding issues and disorders and troubling statistics about the rise of mental illness in children and teens. It's usually obvious what to do for physical injuries like broken bones, but when it comes to our children's mental health, the answers are much less clear, and sometimes even contradictory.

"Pier Bryden and Peter Szatmari, top child and adolescent psychiatrists, are here to help. Using their combined six decades working with families and kids - and their own experiences as parents - they break down the stigma of mental health illness and walk parents through the warning signs, risk factors, prevention strategies, and the process of diagnosis and treatment for mental health challenges arising from: anxiety, substance use disorders, eating disorders, sleep disorders, depression, trauma, suicidal thoughts and behaviors, psychosis, ADHD, and autism.

"The most important thing to remember as a parent is that you and your child are not alone and there is a lot you can do to improve your child's mental health. The road ahead isn't always easy or straightforward, but start here to learn how to advocate for your child's well-being"--from the inside front cover.

ISBN

9781508257929

Language

English

Material Type

Book

Call Number

CD 100 BRY 2020

Copies

URL

http://www.cw.bc.ca/library/pdf/pamphlets/BC-Childrens-Helping-your-Child-Manage-Procedures.pdf

Alternate Title

Help your child manage medical and surgical procedures

Corporate Author

Health Promotion and Health Literacy Team

Place of Publication

Vancouver, BC

Publisher

BC Children's Hospital

Publication Date

2022

Physical Description

PDF; 2 pages

Subject

Pain Control-Complementary Therapies

Pain Control

Abstract

These suggestions can help you and your child manage stress before, during, and after their

procedure.

Some children may need to talk about the procedure and their coping plan several times. Other children just need to prepare once.

You know your child best. Please adapt these suggestions to suit your child?s age, interests, and personality.

Language

English

Material Type

Handout

Online

URL

https://crohnsandcolitis.ca/About-Crohn-s-Colitis/IBD-Journey

Corporate Author

Crohn's and Colitis Canada

Place of Publication

Toronto, ON

Publisher

Crohn's and Colitis Canada

Publication Date

2020

Subject

Crohn's Disease

Ulcerative Colitis

Inflammatory Bowel Disease

Inflammatory Bowel Disease-Coping

Abstract

The IBD Journey will strengthen your knowledge of living with Crohn?s and colitis. Here you will find information, strategies and tips to help manage your disease and make informed decisions with health care providers.

Language

English

Material Type

Website

Author

Olsher, Sara

Place of Publication

Santa Rosa, CA

Publisher

Mighty and Bright

Publication Date

2020

Physical Description

Softcover

Series

A What About Me? Book

Subject

Children with Cancer

Abstract

What Happens When a Kid Has Cancer is a book written with purpose of relieving the anxiety and confusion that comes from a child's cancer diagnosis and treatment.

What Happens When a Kid Has Cancer covers the main points of pediatric cancer, what it is and what the experience of treatment is like, and shows how it can change a kid's day. The book is great for ages 4 -10 and discusses:

- The science of cancer

- Changes to routines

- Surgery and anesthesia

- Chemotherapy

- Hair loss and hair changes

- Port, central line, and tubies

- Hospital stays

- Radiation

- Scans and blood draws

- Emotions relating to cancer

ISBN

9781734864168

Language

English

Material Type

Book

Call Number

JUNIOR FE 500 OLS 2020

Copies

URL

https://www.healthlinkbc.ca/pregnancy-parenting/toddlers-first-steps

Publisher

HealthLinkBC

Publication Date

2022

Subject

Pregnancy

Toddlers

Parenting

Child Health - Diet/Nutrition

Child Development

Childcare

Abstract

Toddler's First Steps provides trusted information on how to nurture the healthy development of your child. As your child grows, they will learn and change at an amazing speed. This resource provides guidance on how to support your child as they go through the many stages of toddlerhood and encounter new experiences such as the arrival of a new baby or entering child care. You will also find information on where to find additional resources to support you and your family.

Language

English

Chinese

French

Arabic

Farsi (Persian)

Punjabi

Spanish

Tagalog

Material Type

Website

Online

Author

Greene, Ross W.

Edition

6th ed,

Place of Publication

New York, NY

Publisher

Harper

Publication Date

2021

Physical Description

Paperback: 254 p.

Subject

Anger

Child Behaviour

Parenting

Abstract

Dr. Ross Greene, a distinguished clinician and pioneer in the treatment of kids with social, emotional, and behavioral challenges, has worked with thousands of explosive children, and he has good news: these kids aren?t attention-seeking, manipulative, or unmotivated, and their parents aren?t passive, permissive pushovers. Rather, explosive kids are lacking some crucial skills in the domains of flexibility/adaptability, frustration tolerance, and problem solving, and they require a different approach to parenting.

Throughout this compassionate, insightful, and practical book, Dr. Greene provides a new conceptual framework for understanding their difficulties, based on research in the neurosciences. He explains why traditional parenting and treatment often don?t work with these children, and he describes what to do instead. Instead of relying on rewarding and punishing, Dr. Greene?s Collaborative Problem Solving model promotes working with explosive children to solve the problems that precipitate explosive episodes, and teaching these kids the skills they lack.

ISBN

9780063092464

Language

English

Material Type

Book

Call Number

CD 900 GRE 2021a

Copies

URL

http://www.cw.bc.ca/library/pdf/pamphlets/BCCH-10-Tips-Chronic-Pain.pdf

Website Notes

Click on the link to view/print.

Alternate Title

10 tips for caregivers of a child or youth with chronic pain

Corporate Author

Complex Pain Service

Place of Publication

Vancouver, BC

Publisher

BC Children's Hospital

Publication Date

2022

Physical Description

PDF: 2 p.

Subject

Pain

Chronic Pain

Abstract

This handout provides helpful tips for parents or caregivers of a child or youth with chronic pain. Also includes a recommended resource list.

Language

English

Material Type

Pamphlet

Online

URL

http://www.cw.bc.ca/library/pdf/pamphlets/BC-Childrens-Partnership-Guide.pdf

Corporate Author

Ethics Department and Patient Partners

Place of Publication

Vancouver, BC

Publisher

BC Children's Hospital & BC Women's Hospital + Health Centre

Publication Date

2020

Physical Description

21 pages

Subject

Pain Control

Abstract

This resource from BC Children?s Hospital can support families to explore their perspectives together and incorporate ways to foster the appropriate inclusion of children in healthcare decisions.

The Partnership Guide was developed to improve the guidance, support and participation of children aged 7-14 years with serious illness. This education resource provides up to date research knowledge in the area of child participation, pediatric decision making and child-focused activities and interventions to support children with this process.

Fostering the developing autonomy of children is an essential ethical principle and this guide supports the inclusion of children in decision-making to their ability and desire, to participate in decisions that impact their health.

Language

English

Material Type

Online

Booklet

Author

Jones, Pia

Pimenta, Sarah

Place of Publication

New York, NY

Publisher

Routledge

Publication Date

2021

Physical Description

Softcover; 28 pages

Subject

Death and dying-Children

Abstract

This beautifully illustrated and sensitive storybook is designed to be used therapeutically by professionals and caregivers supporting children with an untreatable illness. With engaging, gentle and colourful illustrations that can be used to prompt conversation, it tells the story of the final journey made by a Boy with a Bear, as the Boy says his goodbyes and comes to terms with his life-ending illness.

ISBN

9780367491208

Language

English

Material Type

Book

Call Number

JUNIOR GV 100.5 JON 2021

Copies

URL

http://www.cw.bc.ca/library/pdf/pamphlets/BCCH_SurgeryCopingTips_Toddler.pdf

Website Notes

Click on the link above to view.

Corporate Author

Anesthetic Care Unit

Place of Publication

[Vancouver, BC?]

Publisher

BC Children's Hospital

Publication Date

2021

Physical Description

1 pdf file

Subject

Surgery

Coping with Pain

Abstract

This handout is for parents and caregivers of toddlers (age 1-2 years) having surgery at BC Children's Hospital. Learn what your toddler may find stressful, and how you can prepare your toddler for surgery.

Language

English

Material Type

Online

Handout

URL

http://www.cw.bc.ca/library/pdf/pamphlets/BCCH_SurgeryCopingTips_Preschool.pdf

Website Notes

Click on the link above to view.

Corporate Author

Anesthetic Care Unit

Place of Publication

[Vancouver, BC?]

Publisher

BC Children's Hospital

Publication Date

2021

Physical Description

1 pdf file

Subject

Surgery

Coping with Pain

Abstract

This handout is for parents and caregivers of preschool-aged children (age 3-5 years) having surgery at BC Children's Hospital. Learn what your child may find stressful, and how you can prepare your child for surgery.

Language

English

Material Type

Online

Handout