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11 records – page 1 of 1.

The diagnosis and management of Duchenne Muscular Dystrophy: A guide for families

https://bcch.andornot.com/en/permalink/catalog123812
Muscular Dystrophy Canada. Toronto, ON: Muscular Dystrophy Canada , 2019.
URL
https://muscle.ca/wp-content/uploads/2019/09/DMDstandardsofcare-EN.pdf
Material Type
Booklet
Online
This guide for families summarizes the results of an international consensus on the medical care of Duchenne muscular dystrophy (DMD). This effort was supported by the US Centers for Disease Control and Prevention (CDC), in collaboration with patient advocacy groups and the TREAT-NMD network. The m…
More Information
  1 url  
URL
https://muscle.ca/wp-content/uploads/2019/09/DMDstandardsofcare-EN.pdf
Corporate Author
Muscular Dystrophy Canada
Place of Publication
Toronto, ON
Publisher
Muscular Dystrophy Canada
Publication Date
2019
Subject
Muscular Dystrophy
Abstract
This guide for families summarizes the results of an international consensus on the medical care of Duchenne muscular dystrophy (DMD). This effort was supported by the US Centers for Disease Control and Prevention (CDC), in collaboration with patient advocacy groups and the TREAT-NMD network. The main document is published in Lancet Neurology.
The recommendations are based on an extensive study by 84 international experts in DMD diagnosis and care chosen to represent a broad range of specialties. They independently ?rated? methods of care used in the management of DMD to say how ?necessary?, ?appropriate? or ?inappropriate? each one was at different stages of the course of DMD. In total they considered more than 70,000 different scenarios. This allowed them to establish guidelines that the majority agreed represented the best practice for DMD care.
Language
English
Material Type
Booklet
Online
URLs
https://muscle.ca/wp-content/uploads/2019/09/DMDstandardsofcare-EN.pdf
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Understanding lab and imaging tests

https://bcch.andornot.com/en/permalink/catalog110801
The Leukemia & Lymphoma Society. White Plains, NY: The Leukemia & Lymphoma Society , 2020.
URL
https://www.lls.org/sites/default/files/2021-05/PS41_Understanding_Lab_Imaging_0120FINAL.pdf
Material Type
Booklet
Online
Availability
1 copy, 1 available
Learn more about how lab and imaging tests are used to help detect (diagnose) and treat blood cancers (types of leukemia, lymphoma, myeloma, myelodysplastic syndromes and myeloproliferative disorders). Includes tips to help keep track of test results and a handout with suggested questions to ask yo…
More Information
  1 url  
URL
https://www.lls.org/sites/default/files/2021-05/PS41_Understanding_Lab_Imaging_0120FINAL.pdf
Corporate Author
The Leukemia & Lymphoma Society
Place of Publication
White Plains, NY
Publisher
The Leukemia & Lymphoma Society
Publication Date
2020
Physical Description
PDF; 60 pages
Subject
Cancer-Diagnosis
Laboratory Tests/Values
Leukemia
Lymphoma
Abstract
Learn more about how lab and imaging tests are used to help detect (diagnose) and treat blood cancers (types of leukemia, lymphoma, myeloma, myelodysplastic syndromes and myeloproliferative disorders). Includes tips to help keep track of test results and a handout with suggested questions to ask your health provider.
Language
English
Material Type
Booklet
Online

Copies

Copy 1 BC Children's and Women's Family Library Available
URLs
https://www.lls.org/sites/default/files/2021-05/PS41_Understanding_Lab_Imaging_0120FINAL.pdf
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Understanding congenital heart defects: Written by doctors for kids

https://bcch.andornot.com/en/permalink/catalog121916
Maxwell, Kimberley, deLoache, Shawn. New York, NY: Jumo , 2018.
Material Type
Booklet
Call Number
JUNIOR FD 500 MAX 2018
Availability
1 copy, 1 available
Join Corey on his journey to learn about how the heart works, different types of congenital heart defects, and how heart defect symptoms are treated.
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Alternate Title
Medikids
Author
Maxwell, Kimberley
deLoache, Shawn
Editor
Quigley, Columba
Place of Publication
New York, NY
Publisher
Jumo
Publication Date
2018
Physical Description
Softcover; 16 p.
Series
Medikids
Subject
Congenital Heart Diseases
Abstract
Join Corey on his journey to learn about how the heart works, different types of congenital heart defects, and how heart defect symptoms are treated.
Language
English
Material Type
Booklet
Call Number
JUNIOR FD 500 MAX 2018

Copies

BC Children's and Women's Family Library Available
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Release the Butterfly: A Handbook for Parents & Caregivers of Children with Ichthyosis

https://bcch.andornot.com/en/permalink/catalog124005
Foundation for Ichthyosis and Related Skin Types. Colmar, PA: Foundation for Ichthyosis and Related Skin Types , 2014. 4th edition.
Material Type
Booklet
Call Number
FO 365 FOU 2014
Availability
1 copy, 1 available
More Information
Author
Foundation for Ichthyosis and Related Skin Types
Edition
4th edition
Place of Publication
Colmar, PA
Publisher
Foundation for Ichthyosis and Related Skin Types
Publication Date
2014
Physical Description
52 pages
Subject
Ichthyosis
Language
English
Material Type
Booklet
Call Number
FO 365 FOU 2014

Copies

copy 1 BC Children's and Women's Family Library Available
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Understanding stem cell transplants: Written by doctors for kids

https://bcch.andornot.com/en/permalink/catalog121421
Renfrew, Ruth, deLoache, Shawn. New York, NY: Jumo , 2018.
Material Type
Booklet
Call Number
JUNIOR FC 503 REN 2018
Join Jett on his journey through the human body to learn how stem cells work and what happens before and after an autologous or allogeneic transplant.
More Information
  1 image  
Alternate Title
Medikids
Author
Renfrew, Ruth
deLoache, Shawn
Editor
Quigley, Columba
Place of Publication
New York, NY
Publisher
Jumo
Publication Date
2018
Physical Description
Softcover; 12 p.
Series
Medikids
Subject
Transplantation
Blood Cells
Bone Marrow. Bone Marrow Diseases
Abstract
Join Jett on his journey through the human body to learn how stem cells work and what happens before and after an autologous or allogeneic transplant.
Language
English
Material Type
Booklet
Call Number
JUNIOR FC 503 REN 2018
Images
thumbnail
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I'm not upside down, I'm downside up: Not a boring book about PDA

https://bcch.andornot.com/en/permalink/catalog124651
Thompson, Harry, Jata-Hall, Danielle, Sherwin, Mollie [illustrator]. London, UK and Philadelphia, PA: Jessica Kingsley Publishers , 2022.
Material Type
Booklet
Call Number
JUNIIOR FM 272 THO 2022
Availability
1 copy, 1 available
Welcome to my downside up life! My name is Ariana and I have something called Pathological Demand Avoidance which is a form of autism. Most people just think I'm naughty and misbehaved, but I want to show you why that's not true by telling you about what my life is like from inside my head. Come jo…
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Author
Thompson, Harry
Jata-Hall, Danielle
Sherwin, Mollie [illustrator]
Place of Publication
London, UK and Philadelphia, PA
Publisher
Jessica Kingsley Publishers
Publication Date
2022
Physical Description
Softcover; illustrated; 64 pages
Subject
Autism Spectrum Disorder (includes Asperger Syndrome)
Abstract
Welcome to my downside up life! My name is Ariana and I have something called Pathological Demand Avoidance which is a form of autism. Most people just think I'm naughty and misbehaved, but I want to show you why that's not true by telling you about what my life is like from inside my head. Come join me in understanding why I feel like I have to be in control all the time and why it's just not as simple as doing as I am told.
Recommended for children ages 7-12.
ISBN
978-1839971174
Material Type
Booklet
Call Number
JUNIIOR FM 272 THO 2022

Copies

BC Children's and Women's Family Library Available
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Understanding the hospital team: Written by doctors for kids

https://bcch.andornot.com/en/permalink/catalog121424
Renfrew, Ruth, deLoache, Shawn. New York, NY: Jumo , 2018.
Material Type
Booklet
Call Number
JUNIOR GK 210 REN 2018
Availability
1 copy, 1 available
Join Jonathan on his journey to learn about all the people on his health care team who will support him before, during, and after his medical procedure.
More Information
Alternate Title
Medikids
Author
Renfrew, Ruth
deLoache, Shawn
Editor
Quigley, Columba
Place of Publication
New York, NY
Publisher
Jumo
Publication Date
2018
Physical Description
Softcover; 8 p.
Series
Medikids
Subject
Hospitals
Hospitalization
Hospitals Services
Children's Health
Children's Health-Pediatrics
Children's Hospitalization
Abstract
Join Jonathan on his journey to learn about all the people on his health care team who will support him before, during, and after his medical procedure.
Language
English
Material Type
Booklet
Call Number
JUNIOR GK 210 REN 2018

Copies

BC Children's and Women's Family Library Available
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Understanding leukemia: Written by doctors for kids

https://bcch.andornot.com/en/permalink/catalog121420
Renfrew, Ruth, deLoache, Shawn. New York, NY: Jumo , 2018.
Material Type
Booklet
Call Number
JUNIOR FE 350.5 REN 2018
Availability
1 copy, 0 available
Join Charlie on his journey to learn how leukemia is diagnosed, what cancer does to the body, and what to expect with leukemia treatment.
More Information
Alternate Title
Medikids
Author
Renfrew, Ruth
deLoache, Shawn
Editor
Quigley, Columba
Place of Publication
New York, NY
Publisher
Jumo
Publication Date
2018
Physical Description
Softcover; 12 p.
Series
Medikids
Subject
Leukemia-Children
Abstract
Join Charlie on his journey to learn how leukemia is diagnosed, what cancer does to the body, and what to expect with leukemia treatment.
Language
English
Material Type
Booklet
Call Number
JUNIOR FE 350.5 REN 2018

Copies

BC Children's and Women's Family Library On Loan, due Wednesday, April 3, 2024
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Understanding type 1 diabetes: Written by doctors for kids

https://bcch.andornot.com/en/permalink/catalog121431
Renfrew, Ruth, deLoache, Shawn. New York, NY: Jumo , 2018.
Material Type
Booklet
Call Number
JUNIOR FL 800.5 REN 2018
Availability
1 copy, 1 available
Join Tim on his journey through the human body to learn more about type 1 diabetes symptoms and treatment.
More Information
Alternate Title
Medikids
Author
Renfrew, Ruth
deLoache, Shawn
Editor
Quigley, Columba
Place of Publication
New York, NY
Publisher
Jumo
Publication Date
2018
Physical Description
Softcover; 16 p.
Series
Medikids
Subject
Diabetes
Diabetes Mellitus - Children
Abstract
Join Tim on his journey through the human body to learn more about type 1 diabetes symptoms and treatment.
Language
English
Material Type
Booklet
Call Number
JUNIOR FL 800.5 REN 2018

Copies

BC Children's and Women's Family Library Available
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Understanding food allergy: Written by doctors for kids

https://bcch.andornot.com/en/permalink/catalog121432
Renfrew, Ruth, deLoache, Shawn. New York, NY: Jumo , 2018.
Material Type
Booklet
Call Number
JUNIOR FF 470 REN 2018
Availability
1 copy, 1 available
Join Lilian on her journey to learn how food allergies affect the body, steps to take to avoid allergic reactions, and what to do in an emergency.
More Information
Alternate Title
Medikids
Author
Renfrew, Ruth
deLoache, Shawn
Editor
Quigley, Columba
Place of Publication
New York, NY
Publisher
Jumo
Publication Date
2018
Physical Description
Softcover; 12 p.
Series
Medikids
Subject
Diabetes
Diabetes Mellitus - Children
Abstract
Join Lilian on her journey to learn how food allergies affect the body, steps to take to avoid allergic reactions, and what to do in an emergency.
Language
English
Material Type
Booklet
Call Number
JUNIOR FF 470 REN 2018

Copies

BC Children's and Women's Family Library Available
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Understanding type 1 diabetes in the family: Written by doctors for kids

https://bcch.andornot.com/en/permalink/catalog121350
Renfrew, Ruth, deLoache, Shawn. New York, NY: Jumo , 2018.
Material Type
Booklet
Call Number
JUNIOR FL 800 REN 2018
Availability
1 copy, 1 available
In graphic novel format, the Medikidz, superheroes from the planet Mediland, help Caitlin and Daniel understand diabetes and how it can affect them and their family.
More Information
Alternate Title
Medikids
Author
Renfrew, Ruth
deLoache, Shawn
Editor
Quigley, Columba
Ferreira, Marcelo
Place of Publication
New York, NY
Publisher
Jumo
Publication Date
2018
Physical Description
Softcover; 12 p.
Series
Medikids
Subject
Diabetes
Diabetes Mellitus - Children
Diabetes Mellitus - Young Adults
Abstract
In graphic novel format, the Medikidz, superheroes from the planet Mediland, help Caitlin and Daniel understand diabetes and how it can affect them and their family.
Language
English
Material Type
Booklet
Call Number
JUNIOR FL 800 REN 2018

Copies

Copy 1 BC Children's and Women's Family Library Available
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11 records – page 1 of 1.