URL

https://muscle.ca/wp-content/uploads/2019/09/DMDstandardsofcare-EN.pdf

Corporate Author

Muscular Dystrophy Canada

Place of Publication

Toronto, ON

Publisher

Muscular Dystrophy Canada

Publication Date

2019

Subject

Muscular Dystrophy

Abstract

This guide for families summarizes the results of an international consensus on the medical care of Duchenne muscular dystrophy (DMD). This effort was supported by the US Centers for Disease Control and Prevention (CDC), in collaboration with patient advocacy groups and the TREAT-NMD network. The main document is published in Lancet Neurology.

The recommendations are based on an extensive study by 84 international experts in DMD diagnosis and care chosen to represent a broad range of specialties. They independently ?rated? methods of care used in the management of DMD to say how ?necessary?, ?appropriate? or ?inappropriate? each one was at different stages of the course of DMD. In total they considered more than 70,000 different scenarios. This allowed them to establish guidelines that the majority agreed represented the best practice for DMD care.

Language

English

Material Type

Booklet

Online

Author

Niequist, Shauna

Publisher

Brilliance Audio

Publication Date

2016

Physical Description

MP3 CD

Subject

Mindfulness

Abstract

In a culture that values speed, efficiency, image, and busyness, some of us are aching for another way to live: more intentional, more connected. Simpler, slower, richer. Many of us have believed the myth that achievement and success bring us contentment, only to find it?s actually things like connection and meaning, not success and achievement, that provide true peace and genuine happiness.

Present Over Perfect is bestselling author Shauna Niequist?s motto for how to live a rich, engaged, and loving life in the midst of what often feels terribly messy and imperfect. Similar in format to Shauna?s previous books, Present Over Perfect is a collection of essays that focuses on the journey from frantic and tired to connected and free. Many of us find ourselves busier than we want to be, missing the sweetest moments along the way. We end up resentful and distracted, full of regret and feeling disconnected. Present Over Perfect is a hand reaching out to a new way of living - full of grace, space, and connection.

As a wife, mother, friend, and writer, Shauna shares with vulnerability and transparency about the reality of living wholly present in our relationships with our families and the others we love and inspires readers to discover their own path to this more fulfilling way to do life.

Notes

Recommended by CCDP

ISBN

9781531832056

Language

English

Material Type

Audio

Call Number

EG 225 NIE 2016

Copies

URL

http://www.cw.bc.ca/library/pdf/pamphlets/BC-Childrens-Partnership-Guide.pdf

Corporate Author

Ethics Department and Patient Partners

Place of Publication

Vancouver, BC

Publisher

BC Children's Hospital & BC Women's Hospital + Health Centre

Publication Date

2020

Physical Description

21 pages

Subject

Pain Control

Abstract

This resource from BC Children?s Hospital can support families to explore their perspectives together and incorporate ways to foster the appropriate inclusion of children in healthcare decisions.

The Partnership Guide was developed to improve the guidance, support and participation of children aged 7-14 years with serious illness. This education resource provides up to date research knowledge in the area of child participation, pediatric decision making and child-focused activities and interventions to support children with this process.

Fostering the developing autonomy of children is an essential ethical principle and this guide supports the inclusion of children in decision-making to their ability and desire, to participate in decisions that impact their health.

Language

English

Material Type

Online

Booklet

Author

Kabat-Zinn, Jon

Edition

Tenth anniversary edition

Place of Publication

New York, NY

Publisher

Random House Audio

Publication Date

2008

Physical Description

5 CD set

Subject

Mindfulness

Chronic Illness

Anxiety

Abstract

Stress. It can sap our energy, undermine our health if we let it, even shorten our lives. It makes us more vulnerable to anxiety and depression, disconnection and disease. Now, based on Dr. Jon Kabat-Zinn's renowned mindfulness-based stress reduction program, this groundbreaking audiobook shows you how to use natural, medically proven methods to soothe and heal your body, mind, and spirit.

Recommended by CCDP

Language

English

Material Type

CD

Audio

Call Number

EG 225 KAB 2008

Copies

URL

www.attainmentcompany.com/know-code

Alternate Title

Know the code at school

Corporate Author

Attainment Company, Inc.

Place of Publication

Verona, WI

Publisher

Attainment Company, Inc.

Publication Date

2005

Physical Description

Spiral bound; 161 p.; includes 1 CD of PDFs

Subject

Social Behaviour (includes boundaries)

Child Social Behaviour

Relationships

Social Skills

Education. Schools

Peer Relationships. Peer Pressure

Abstract

A social skills program for elementary students to learn appropriate behaviours during a typical school day. Ideal for students with autism or behavioural disabilities. Includes 53 relevant skills with teacher guidelines and self-monitoring checklists for students. Example skills include getting ready, transitioning, and lunch.

Notes

Audience: Special and general education students, grades K–6.

See also 1) "Attainment's Know the Code at School" DVD and 2) "Attainment's Know the Code at School" social skills card games

Language

English

Material Type

Booklet

Call Number

CF 110 ATT 2005

Copies

Corporate Author

Medikidz

Place of Publication

New York, NY

Publisher

Jumo

Publication Date

2018

Physical Description

Softcover ; 16 p., illustrations

Series

Medikidz

Subject

Epilepsy

Abstract

Filled with with activities and puzzles related to epilepsy.

Language

English

Material Type

Booklet

Call Number

JUNIOR FM 470 MED 2017

Copies

URL

http://www.cw.bc.ca/library/pdf/Pamphlets/girlsspeakout.pdf

Website Notes

Click on the link above to view/print.

Author

Godard, Louise

Cory, Jill

Armstrong, Naomi et all.

Editor

Sullivan, Lana

Pederson, Ann

Pigeon, Marguerite

Place of Publication

[Vancouver, BC?]

Publisher

BC Women's Hospital + Health Centre

Publication Date

2016

Physical Description

PDF file, 129 p., ill.

Subject

Violence Prevention

Women's Health

Abstract

This resource provides information about violence and BC Women's Hospital and Health Centre, Girls Speak Out program, its curriculum and some recommended websites about this topic. It's aimed to support women with experiences of violence.

ISBN

0000000001234

Language

English

Material Type

Online

Booklet

Author

Thompson, Harry

Jata-Hall, Danielle

Sherwin, Mollie [illustrator]

Place of Publication

London, UK and Philadelphia, PA

Publisher

Jessica Kingsley Publishers

Publication Date

2022

Physical Description

Softcover; illustrated; 64 pages

Subject

Autism Spectrum Disorder (includes Asperger Syndrome)

Abstract

Welcome to my downside up life! My name is Ariana and I have something called Pathological Demand Avoidance which is a form of autism. Most people just think I'm naughty and misbehaved, but I want to show you why that's not true by telling you about what my life is like from inside my head. Come join me in understanding why I feel like I have to be in control all the time and why it's just not as simple as doing as I am told.

Recommended for children ages 7-12.

ISBN

978-1839971174

Material Type

Booklet

Call Number

JUNIIOR FM 272 THO 2022

Copies

Author

Foundation for Ichthyosis and Related Skin Types

Edition

4th edition

Place of Publication

Colmar, PA

Publisher

Foundation for Ichthyosis and Related Skin Types

Publication Date

2014

Physical Description

52 pages

Subject

Ichthyosis

Language

English

Material Type

Booklet

Call Number

FO 365 FOU 2014

Copies

URL

https://www.calm.com/app/class/Best-of-Free-Family-Friendly-Content

Corporate Author

Calm

Subject

Meditation

Mindfulness

Abstract

Free family content from Calm.com. This page features sleep stories and meditations. You do not need to download the Calm app or create an account. You can play these from your Internet browser.

Language

English

Material Type

Online

Audio

Alternate Title

Medikids

Author

Renfrew, Ruth

deLoache, Shawn

Editor

Quigley, Columba

Ferreira, Marcelo

Place of Publication

New York, NY

Publisher

Jumo

Publication Date

2018

Physical Description

Softcover; 12 p.

Series

Medikids

Subject

Diabetes

Diabetes Mellitus - Children

Diabetes Mellitus - Young Adults

Abstract

In graphic novel format, the Medikidz, superheroes from the planet Mediland, help Caitlin and Daniel understand diabetes and how it can affect them and their family.

Language

English

Material Type

Booklet

Call Number

JUNIOR FL 800 REN 2018

Copies

Author

Kabat-Zinn, Jon

Place of Publication

Boulder, CO

Publisher

Sounds True

Publication Date

2010

Physical Description

2 CDs ; 105 minutes

Subject

Pain Control-Complementary Therapies

Mindfulness

Meditation

Chronic Pain

Abstract

We know that practicing mindfulness in everyday life can help us reduce stress and cultivate deep, embodied well-being, but what about its effects on physical and emotional pain, especially when it seems overwhelming or unrelenting? Mindfulness Meditation for Pain Relief is a soothing program with guided meditations and teachings. It opens with an overview of seven fundamental attitudes we can develop to cultivate mindfulness in relationship to chronic pain and its incessant challenges, and follows with concepts and practices including: mindful breathing, working with intense sensations, befriending thoughts and emotions, finding refuge in awareness, and bringing mindfulness into every life.

Notes

Recommended by CCDP

ISBN

9781591797401

Language

English

Material Type

Audio

CD

Call Number

FM 880 KAB 2010

Copies