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The diagnosis and management of Duchenne Muscular Dystrophy: A guide for families

https://bcch.andornot.com/en/permalink/catalog123812
Muscular Dystrophy Canada. Toronto, ON: Muscular Dystrophy Canada , 2019.
URL
https://muscle.ca/wp-content/uploads/2019/09/DMDstandardsofcare-EN.pdf
Material Type
Booklet
Online
This guide for families summarizes the results of an international consensus on the medical care of Duchenne muscular dystrophy (DMD). This effort was supported by the US Centers for Disease Control and Prevention (CDC), in collaboration with patient advocacy groups and the TREAT-NMD network. The m…
  1 url  
URL
https://muscle.ca/wp-content/uploads/2019/09/DMDstandardsofcare-EN.pdf
Corporate Author
Muscular Dystrophy Canada
Place of Publication
Toronto, ON
Publisher
Muscular Dystrophy Canada
Publication Date
2019
Subject
Muscular Dystrophy
Abstract
This guide for families summarizes the results of an international consensus on the medical care of Duchenne muscular dystrophy (DMD). This effort was supported by the US Centers for Disease Control and Prevention (CDC), in collaboration with patient advocacy groups and the TREAT-NMD network. The main document is published in Lancet Neurology.
The recommendations are based on an extensive study by 84 international experts in DMD diagnosis and care chosen to represent a broad range of specialties. They independently ?rated? methods of care used in the management of DMD to say how ?necessary?, ?appropriate? or ?inappropriate? each one was at different stages of the course of DMD. In total they considered more than 70,000 different scenarios. This allowed them to establish guidelines that the majority agreed represented the best practice for DMD care.
Language
English
Material Type
Booklet
Online
URLs
Show Less

Parent and family checklist: Transitioning responsibly to adult care: Youth quiz

https://bcch.andornot.com/en/permalink/catalog114701
ONTRACBC, BC Children's Hospital. [Vancouver, BC?]: BC Children's Hospital , 2016.
URL
http://www.cw.bc.ca/library/pdf/pamphlets/BCCH1942_ONTRAC_ParentFamilyChecklist.pdf
Material Type
Handout
Online
Call Number
BCCH1942
A guide for parents and families to support their youth (12-24 years old) in the planning and preparation for adulthood and adult health care.
  1 url  
URL
http://www.cw.bc.ca/library/pdf/pamphlets/BCCH1942_ONTRAC_ParentFamilyChecklist.pdf
Website Notes
Click the link to view or print.
Corporate Author
ONTRACBC
BC Children's Hospital
Place of Publication
[Vancouver, BC?]
Publisher
BC Children's Hospital
Publication Date
2016
Physical Description
PDF file, 2 p.
Subject
Youth Health
Abstract
A guide for parents and families to support their youth (12-24 years old) in the planning and preparation for adulthood and adult health care.
Notes
BCCH1942
Language
English
Material Type
Handout
Online
Call Number
BCCH1942
URLs
Show Less

Living with a central venous line (CVL)

https://bcch.andornot.com/en/permalink/catalog103198
Oncology/Hematology/BMT. [Vancouver, BC?]: BC Children's Hospital , 2019.
URL
http://www.cw.bc.ca/library/pdf/pamphlets/BCCH1044_LivingwithCVL.pdf
Material Type
Handout
Online
Call Number
BCCH1044
A pamphlet that explains how to deal with some common problems that people experience with catheters.
  1 image     1 url  
URL
http://www.cw.bc.ca/library/pdf/pamphlets/BCCH1044_LivingwithCVL.pdf
Website Notes
Click on the above link to print.
Corporate Author
Oncology/Hematology/BMT
Place of Publication
[Vancouver, BC?]
Publisher
BC Children's Hospital
Publication Date
2019
Physical Description
PDF, 5 p.
Subject
Central Venous Catheter
Abstract
A pamphlet that explains how to deal with some common problems that people experience with catheters.
Language
English
Material Type
Handout
Online
Call Number
BCCH1044
Images
URLs
Show Less

Nutrition resources for food allergy families

https://bcch.andornot.com/en/permalink/catalog121411
Division of Allergy and Immunology. [Vancouver, BC?]: BC Children's Hospital , 2019.
URL
http://www.cw.bc.ca/Library/pdf/Pamphlets/BCCH_Nutrition_Allergy.pdf
Material Type
Online
Handout
Call Number
BCCW00007
This pamphlet lists places to find high-quality information online. It also explains how to find a dietitian, and how a dietitian can help with food allergies in children.
  1 image     1 url  
URL
http://www.cw.bc.ca/Library/pdf/Pamphlets/BCCH_Nutrition_Allergy.pdf
Website Notes
Click on the above link to view.
Corporate Author
Division of Allergy and Immunology
Place of Publication
[Vancouver, BC?]
Publisher
BC Children's Hospital
Publication Date
2019
Physical Description
PDF file: 3 p.
Subject
Allergies-Diet Therapy
Abstract
This pamphlet lists places to find high-quality information online. It also explains how to find a dietitian, and how a dietitian can help with food allergies in children.
Language
English
Material Type
Online
Handout
Call Number
BCCW00007
Images
URLs
Show Less

Research clinical trials: A pamphlet for patients and families

https://bcch.andornot.com/en/permalink/catalog113721
BC Children's Hospital. [Vancouver, BC?]: BC Children's Hospital , 2015.
URL
http://www.cw.bc.ca/library/pdf/pamphlets/BCCH1907_ResearchClinicalTrials_2015.pdf
Material Type
Handout
Online
Call Number
BCCH1907
This pamphlet will explain what a research clinical trial is and help you make an informed decision about whether participating in one is right for you and your family member.
  1 url  
URL
http://www.cw.bc.ca/library/pdf/pamphlets/BCCH1907_ResearchClinicalTrials_2015.pdf
Website Notes
Click on the link above to view/print the pamphlet.
Corporate Author
BC Children's Hospital
Place of Publication
[Vancouver, BC?]
Publisher
BC Children's Hospital
Publication Date
2015
Physical Description
PDF file, 2 p.
Subject
Clinical Trials
Research Design
Abstract
This pamphlet will explain what a research clinical trial is and help you make an informed decision about whether participating in one is right for you and your family member.
Language
English
Material Type
Handout
Online
Call Number
BCCH1907
URLs
Show Less

Partnership guide: A resource to support children to understand and participate when serious illness decisions are considered

https://bcch.andornot.com/en/permalink/catalog122906
Ethics Department and Patient Partners. Vancouver, BC: BC Children's Hospital & BC Women's Hospital + Health Centre , 2020.
URL
http://www.phsa.ca/our-services-site/Documents/Partnership%20Guide%20Susan%20Poitras%20%28c%29%20July%202020.pdf
Material Type
Online
Booklet
This resource from BC Children?s Hospital can support families to explore their perspectives together and incorporate ways to foster the appropriate inclusion of children in healthcare decisions.; The Partnership Guide was developed to improve the guidance, support and participation of children ag…
  1 url  
URL
http://www.phsa.ca/our-services-site/Documents/Partnership%20Guide%20Susan%20Poitras%20%28c%29%20July%202020.pdf
Corporate Author
Ethics Department and Patient Partners
Place of Publication
Vancouver, BC
Publisher
BC Children's Hospital & BC Women's Hospital + Health Centre
Publication Date
2020
Physical Description
21 pages
Subject
Pain Control
Abstract
This resource from BC Children?s Hospital can support families to explore their perspectives together and incorporate ways to foster the appropriate inclusion of children in healthcare decisions.
The Partnership Guide was developed to improve the guidance, support and participation of children aged 7-14 years with serious illness. This education resource provides up to date research knowledge in the area of child participation, pediatric decision making and child-focused activities and interventions to support children with this process.
Fostering the developing autonomy of children is an essential ethical principle and this guide supports the inclusion of children in decision-making to their ability and desire, to participate in decisions that impact their health.
Language
English
Material Type
Online
Booklet
URLs
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Transitioning responsibly to adult care: Youth quiz

https://bcch.andornot.com/en/permalink/catalog114700
ONTRACBC, BC Children's Hospital. [Vancouver, BC?]: BC Children's Hospital , 2016.
URL
http://www.cw.bc.ca/library/pdf/pamphlets/BCCH1941_ONTRAC-YouthQuiz.pdf
Material Type
Handout
Online
Call Number
BCCH1941
A list of questions to help youth manage their health and get ready for adult care.
  1 url  
URL
http://www.cw.bc.ca/library/pdf/pamphlets/BCCH1941_ONTRAC-YouthQuiz.pdf
Website Notes
Click on the link to view/print.
Corporate Author
ONTRACBC
BC Children's Hospital
Place of Publication
[Vancouver, BC?]
Publisher
BC Children's Hospital
Publication Date
2016
Physical Description
PDF file, 2 p.
Subject
Youth Health
Abstract
A list of questions to help youth manage their health and get ready for adult care.
Notes
BCCH1941
Language
English
Material Type
Handout
Online
Call Number
BCCH1941
URLs
Show Less

Seizure associated with fever - caring for your child: Advice for parents and families

https://bcch.andornot.com/en/permalink/catalog106229
Emergency Department. [Vancouver, BC?]: BC Children's Hospital , 2012.
URL
http://www.cw.bc.ca/library/pdf/pamphlets/BCCH1008_SeizureWithFever_2012.pdf
Material Type
Handout
Online
Call Number
BCCH1008
Explains what a seizure is, what you should and should not do when your child is having a seizure.
  1 image     1 url  
URL
http://www.cw.bc.ca/library/pdf/pamphlets/BCCH1008_SeizureWithFever_2012.pdf
Website Notes
Click the link to view or print.
Corporate Author
Emergency Department
Place of Publication
[Vancouver, BC?]
Publisher
BC Children's Hospital
Publication Date
2012
Physical Description
PDF file: 1 p.
Subject
Seizure Disorders-Children
Fever
Abstract
Explains what a seizure is, what you should and should not do when your child is having a seizure.
Language
English
Material Type
Handout
Online
Call Number
BCCH1008
Images
URLs
Show Less

Clostridium difficile: Patient and family pamphlet (BC Children's)

https://bcch.andornot.com/en/permalink/catalog113044
Department of Nursing, PHSA Infection Control. Vancouver, BC: BC Children's Hospital , 2014.
URL
http://www.cw.bc.ca/library/pdf/pamphlets/PHSA400_ClostridiumDifficileInfection_2014.pdf
Material Type
Handout
Online
Call Number
PHSA400
This pamphlet provides information about C. difficile, also known as Clostridium difficile or C.diff. It's a germ (bacteria) that can cause diarrhea.; It answers the questions about what it is, who can get it, how it's treated, how it spreads, how the hospital prevents the spread, what you can do t…
  1 image     1 url  
URL
http://www.cw.bc.ca/library/pdf/pamphlets/PHSA400_ClostridiumDifficileInfection_2014.pdf
Website Notes
Click the link to view or print.
Corporate Author
Department of Nursing
PHSA Infection Control
Place of Publication
Vancouver, BC
Publisher
BC Children's Hospital
Publication Date
2014
Physical Description
PDF file: 2 p.
Subject
Diarrhea
Bacterial Diseases
Abstract
This pamphlet provides information about C. difficile, also known as Clostridium difficile or C.diff. It's a germ (bacteria) that can cause diarrhea.
It answers the questions about what it is, who can get it, how it's treated, how it spreads, how the hospital prevents the spread, what you can do to prevent the spread, and what to do when you go home from the hospital.
Language
English
Material Type
Handout
Online
Call Number
PHSA400
Images
URLs
Show Less

BC Children's Hospital Comfort PACT : Communication: Family evidence summary

https://bcch.andornot.com/en/permalink/catalog123696
Vancouver, BC: BC Children's Hospital , 2022.
URL
http://www.cw.bc.ca/library/pdf/pamphlets/BCCH_ComfortPact_Communication.pdf
Material Type
Handout
Online
BC Children's Hospital is committed to promoting comfort at every clinical encounter.; The Comfort PACT is a protocol that includes five key approaches to promote comfort and reduce pain whenever possible.; This handout explains one of our approaches, communication. Learn alternate focus is, why it…
  1 url  
URL
http://www.cw.bc.ca/library/pdf/pamphlets/BCCH_ComfortPact_Communication.pdf
Place of Publication
Vancouver, BC
Publisher
BC Children's Hospital
Publication Date
2022
Physical Description
PDF; 1 page
Subject
Pain Control-Complementary Therapies
Pain Control
Abstract
BC Children's Hospital is committed to promoting comfort at every clinical encounter.
The Comfort PACT is a protocol that includes five key approaches to promote comfort and reduce pain whenever possible.
This handout explains one of our approaches, communication. Learn alternate focus is, why it matters, and what you can expect from staff.
Language
English
Material Type
Handout
Online
URLs
Show Less

BC Children's Hospital Comfort PACT : Medication: Family evidence summary

https://bcch.andornot.com/en/permalink/catalog123697
Vancouver, BC: BC Children's Hospital , 2022.
URL
http://www.cw.bc.ca/library/pdf/pamphlets/BCCH_ComfortPact_Medication.pdf
Material Type
Handout
Online
BC Children's Hospital is committed to promoting comfort at every clinical encounter.; The Comfort PACT is a protocol that includes five key approaches to promote comfort and reduce pain whenever possible.; This handout explains one of our approaches, medication. Learn why it matters, and what you …
  1 url  
URL
http://www.cw.bc.ca/library/pdf/pamphlets/BCCH_ComfortPact_Medication.pdf
Place of Publication
Vancouver, BC
Publisher
BC Children's Hospital
Publication Date
2022
Physical Description
PDF; 1 page
Subject
Pain Control-Complementary Therapies
Pain Control
Abstract
BC Children's Hospital is committed to promoting comfort at every clinical encounter.
The Comfort PACT is a protocol that includes five key approaches to promote comfort and reduce pain whenever possible.
This handout explains one of our approaches, medication. Learn why it matters, and what you can expect from staff.
Language
English
Material Type
Handout
Online
URLs
Show Less

BC Children's Hospital Comfort PACT : Preparation: Family evidence summary

https://bcch.andornot.com/en/permalink/catalog123698
Vancouver, BC: BC Children's Hospital , 2022.
URL
http://www.cw.bc.ca/library/pdf/pamphlets/BCCH_ComfortPact_Preparation.pdf
Material Type
Handout
Online
BC Children's Hospital is committed to promoting comfort at every clinical encounter.; The Comfort PACT is a protocol that includes five key approaches to promote comfort and reduce pain whenever possible.; This handout explains one of our approaches, preparation. Learn why preparation matters, and…
  1 url  
URL
http://www.cw.bc.ca/library/pdf/pamphlets/BCCH_ComfortPact_Preparation.pdf
Place of Publication
Vancouver, BC
Publisher
BC Children's Hospital
Publication Date
2022
Physical Description
PDF; 1 page
Subject
Pain Control-Complementary Therapies
Pain Control
Abstract
BC Children's Hospital is committed to promoting comfort at every clinical encounter.
The Comfort PACT is a protocol that includes five key approaches to promote comfort and reduce pain whenever possible.
This handout explains one of our approaches, preparation. Learn why preparation matters, and what you can expect from your health-care provider.
Language
English
Material Type
Handout
Online
URLs
Show Less

BC Children's Hospital Comfort PACT : Alternate focus: Family evidence summary

https://bcch.andornot.com/en/permalink/catalog123694
Vancouver, BC: BC Children's Hospital , 2022.
URL
http://www.cw.bc.ca/library/pdf/pamphlets/BCCH_ComfortPact_AlternateFocus.pdf
Material Type
Handout
Online
BC Children's Hospital is committed to promoting comfort at every clinical encounter.; The Comfort PACT is a protocol that includes five key approaches to promote comfort and reduce pain whenever possible.; This handout explains one of our approaches, alternate focus. Learn alternate focus is, why …
  1 url  
URL
http://www.cw.bc.ca/library/pdf/pamphlets/BCCH_ComfortPact_AlternateFocus.pdf
Place of Publication
Vancouver, BC
Publisher
BC Children's Hospital
Publication Date
2022
Physical Description
PDF; 1 page
Subject
Pain Control-Complementary Therapies
Pain Control
Abstract
BC Children's Hospital is committed to promoting comfort at every clinical encounter.
The Comfort PACT is a protocol that includes five key approaches to promote comfort and reduce pain whenever possible.
This handout explains one of our approaches, alternate focus. Learn alternate focus is, why it matters, how you can coach your child, and what you can expect from staff.
Language
English
Material Type
Handout
Online
URLs
Show Less

BC Children's Hospital Comfort PACT : Comfort positions: Family evidence summary

https://bcch.andornot.com/en/permalink/catalog123695
Vancouver, BC: BC Children's Hospital , 2022.
URL
http://www.cw.bc.ca/library/pdf/pamphlets/BCCH_ComfortPact_ComfortPositions.pdf
Material Type
Handout
Online
BC Children's Hospital is committed to promoting comfort at every clinical encounter.; The Comfort PACT is a protocol that includes five key approaches to promote comfort and reduce pain whenever possible.; This handout explains one of our approaches, comfort positions. Learn why comfort positions …
  1 url  
URL
http://www.cw.bc.ca/library/pdf/pamphlets/BCCH_ComfortPact_ComfortPositions.pdf
Place of Publication
Vancouver, BC
Publisher
BC Children's Hospital
Publication Date
2022
Physical Description
PDF; 1 page
Subject
Pain Control-Complementary Therapies
Pain Control
Abstract
BC Children's Hospital is committed to promoting comfort at every clinical encounter.
The Comfort PACT is a protocol that includes five key approaches to promote comfort and reduce pain whenever possible.
This handout explains one of our approaches, comfort positions. Learn why comfort positions matter.
Language
English
Material Type
Handout
Online
URLs
Show Less

Attainment's social standards at school instructor's guide

https://bcch.andornot.com/en/permalink/catalog121348
Attainment Company, Inc. Verona, WI: Attainment Company, Inc. , 2005.
URL
www.attainmentcompany.com/know-code
Material Type
Booklet
Call Number
CF 110 ATT 2005
Availability
1 copy, 1 available
A social skills program for elementary students to learn appropriate behaviours during a typical school day. Ideal for students with autism or behavioural disabilities. Includes 53 relevant skills with teacher guidelines and self-monitoring checklists for students. Example skills include getting re…
  1 url  
URL
www.attainmentcompany.com/know-code
Alternate Title
Know the code at school
Corporate Author
Attainment Company, Inc.
Place of Publication
Verona, WI
Publisher
Attainment Company, Inc.
Publication Date
2005
Physical Description
Spiral bound; 161 p.; includes 1 CD of PDFs
Subject
Social Behaviour (includes boundaries)
Child Social Behaviour
Relationships
Social Skills
Education. Schools
Peer Relationships. Peer Pressure
Abstract
A social skills program for elementary students to learn appropriate behaviours during a typical school day. Ideal for students with autism or behavioural disabilities. Includes 53 relevant skills with teacher guidelines and self-monitoring checklists for students. Example skills include getting ready, transitioning, and lunch.
Notes
Audience: Special and general education students, grades K–6.
See also 1) "Attainment's Know the Code at School" DVD and 2) "Attainment's Know the Code at School" social skills card games
Language
English
Material Type
Booklet
Call Number
CF 110 ATT 2005

Copies

BC Children's and Women's Family Library Available
URLs
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Guide for feeding your baby with a cleft lip and/or palate

https://bcch.andornot.com/en/permalink/catalog111020
Cleft Palate and Craniofacial Program. [Vancouver, BC?]: BC Children's Hospital , 2009.
URL
http://www.cw.bc.ca/library/pdf/pamphlets/BCCH1553_FeedingBabyWithCleftLipPalate_2009_Apr.pdf
Material Type
Handout
Online
Call Number
BCCH1553
This pamphlet provides information on breast or bottle feeding a newborn baby with a cleft lip and/or palate.
  1 image     1 url  
URL
http://www.cw.bc.ca/library/pdf/pamphlets/BCCH1553_FeedingBabyWithCleftLipPalate_2009_Apr.pdf
Corporate Author
Cleft Palate and Craniofacial Program
Place of Publication
[Vancouver, BC?]
Publisher
BC Children's Hospital
Publication Date
2009
Subject
Children with Facial Difference
Cleft Lip. Cleft Palate
Craniofacial Conditions
Breastfeeding
Abstract
This pamphlet provides information on breast or bottle feeding a newborn baby with a cleft lip and/or palate.
Notes
BCCH1553
Language
English
Material Type
Handout
Online
Call Number
BCCH1553
Images
URLs
Show Less

Quick guide to finding mental health services in BC

https://bcch.andornot.com/en/permalink/catalog113582
BC Mental Health & Substance Use Services. [Vancouver, BC?]: BC Children's Hospital , 2015.
URL
http://www.cw.bc.ca/library/pdf/pamphlets/PHSA404_QuickGuideToFindingMHServicesinBC_2015.pdf
Material Type
Handout
Online
  1 url  
URL
http://www.cw.bc.ca/library/pdf/pamphlets/PHSA404_QuickGuideToFindingMHServicesinBC_2015.pdf
Website Notes
Click on the link above to view/print.
Corporate Author
BC Mental Health & Substance Use Services
Place of Publication
[Vancouver, BC?]
Publisher
BC Children's Hospital
Publication Date
2015
Physical Description
PDF file: 2 p.
Subject
Mental Health
Language
English
Material Type
Handout
Online
URLs
Show Less

Epilepsy activity book

https://bcch.andornot.com/en/permalink/catalog122173
Medikidz. New York, NY: Jumo , 2018.
Material Type
Booklet
Call Number
JUNIOR FM 470 MED 2017
Availability
1 copy, 1 available
Filled with with activities and puzzles related to epilepsy.
Corporate Author
Medikidz
Place of Publication
New York, NY
Publisher
Jumo
Publication Date
2018
Physical Description
Softcover ; 16 p., illustrations
Series
Medikidz
Subject
Epilepsy
Abstract
Filled with with activities and puzzles related to epilepsy.
Language
English
Material Type
Booklet
Call Number
JUNIOR FM 470 MED 2017

Copies

BC Children's and Women's Family Library Available
Show Less

Twins, triplets and more : Resource guide for multiple pregnancy and parenthood

https://bcch.andornot.com/en/permalink/catalog106695
Leonard, Linda G. Vancouver, BC: University of British Columbia , 2020. The final edition.
URL
https://nursing.ubc.ca/sites/default/files/files/event/attachments/TwinsTripletsMoreGuide2020%20.pdf
Material Type
Handout
Online
Availability
1 copy, 1 available
This resource guide is designed for multiple birth families living in Canada, particularly those in British Columbia and the Lower Mainland. Includes information on multiple birth statistics, nutrition and multiple pregnancy, pregnancy at-home care programs, safety, telephone support, and other res…
  1 url  
URL
https://nursing.ubc.ca/sites/default/files/files/event/attachments/TwinsTripletsMoreGuide2020%20.pdf
Author
Leonard, Linda G.
Corporate Author
School of Nursing, University of British Columbia
Edition
The final edition
Place of Publication
Vancouver, BC
Publisher
University of British Columbia
Publication Date
2020
Physical Description
PDF; 39 pages
Subject
Multiple Births (includes twins, triplets etc.)
Parenting Multiples (includes twins, triplets etc.)
Pregancy/Childbirth. Obstetrics
Infant Feeding
Infants
Parenting
Abstract
This resource guide is designed for multiple birth families living in Canada, particularly those in British Columbia and the Lower Mainland. Includes information on multiple birth statistics, nutrition and multiple pregnancy, pregnancy at-home care programs, safety, telephone support, and other resources.
Notes
SUBJECT Parenting Infants & Toddlers
Language
English
Material Type
Handout
Online

Copies

Copy 1 BC Children's and Women's Family Library Available
URLs
Show Less

A parent's information guide: Peripherally inserted central catheter (PICC) in the NICU

https://bcch.andornot.com/en/permalink/catalog113051
[Vancouver, BC?]: BC Women's Hospital & Health Centre , 2015.
URL
http://www.cw.bc.ca/library/pdf/pamphlets/BCW948_PICC_2015.pdf
Material Type
Handout
Online
Call Number
BCW948
This pamphlet provides information about a Peripherally Inserted Central Catheter (PICC) in the Neonatal Intensive Care Unit (NICU).
  1 image     1 url  
URL
http://www.cw.bc.ca/library/pdf/pamphlets/BCW948_PICC_2015.pdf
Website Notes
Click on the link above to view/print.
Place of Publication
[Vancouver, BC?]
Publisher
BC Women's Hospital & Health Centre
Publication Date
2015
Physical Description
PDF: 2 p.
Subject
Catheterization
Intensive Care Units-Neonatal. Infants
Abstract
This pamphlet provides information about a Peripherally Inserted Central Catheter (PICC) in the Neonatal Intensive Care Unit (NICU).
Language
English
Material Type
Handout
Online
Call Number
BCW948
Images
URLs
Show Less

20 records – page 1 of 1.