Author

Schrooten, A.F.

Markovitz, B.P.

Place of Publication

Switzerland

Publisher

Springer International Publishing AG

Publication Date

2021

Physical Description

251 pages

Subject

Coping with Chronic Illness-Children

Abstract

This book tells true and poignant stories from both sides of the physician-patient/parent relationship and provides a unique glimpse into how parents and physicians think, feel, and interact. The stories are grouped under four sections: Hope, Compassion, Communication, and Trust.

Each section includes stories contributed by parents from all across the United States and by pediatricians practicing at many of the best children's hospitals throughout the country. The parents tell of interactions with physicians that had a significant impact on them and their child and offer context and insight that promote empathy and reflection. The physicians tell of interactions with patients and families that served as learning moments in their career and promote the humanization of medicine and show there is more to a physician beyond their scientific knowledge and white coat.

The stories are edited by Barry P. Markovitz - a pediatrician specializing in critical care medicine who has been in practice for more than 20 years and by Ann F. Schrooten - the parent of a child born with a chronic complex condition who has more than 15 years of experience interacting with pediatric subspecialists and other healthcare professionals who cared for her son. The editors have written commentaries to the stories to provide an independent perspective on the events and messages conveyed and to encourage reflection, inquiry, and discussion.

In addition to being a valuable resource for pediatricians, pediatric subspecialists, nurses and other healthcare professionals, the book will also appeal to families of children living with complex medical conditions because it shares physician encounters and behaviors many have experienced in the care of their own children. By giving a voice to both parents and physicians, the goal is to create a bridge to better understanding that can improve communication, minimize conflicts, and foster trust and compassion among physicians, patients, and families.

ISBN

9783030680206

Language

English

Material Type

Book

Call Number

EF 850.5 SCH 2021b

Copies

Author

Carter, Bryan D.

Kronenberger, William G.

Scott, Eric L.

Brady, Christine E.

Place of Publication

Oxford, UK

Publisher

Oxford University Press

Publication Date

2020

Physical Description

Softcover; 173 pages

Series

Programs that work

Subject

Coping with Chronic Illness Young Adult

Coping with Chronic Illness

Coping with Chronic Illness-Children

Abstract

Youth with chronic illnesses face challenges that may prove disruptive to physical, psychological, and social development. Based on extensive research and clinical expertise, Children's Health and Illness Recovery Program (CHIRP) is an interdisciplinary cognitive behavioral and family systems-based treatment program designed to maximize the independent functioning of teens with chronic illness.

This Clinician Guide offers a detailed outline for implementing this manualized intervention and provides clear guidance as to the philosophy, pragmatics, and art of working with challenging pediatric conditions. Designed to accompany the CHIRP Teen and Family Workbook, this book addresses specific assessment measures and tools needed to establish a collaborative treatment team approach that incorporates the skills of the CHIRP clinician, primary and specialty care providers, and roles of other healthcare (physical therapists, occupational therapists, etc.) and educational professionals critical to the successful management and treatment of these youth.

ISBN

9780190070267

Language

English

Material Type

Book

Call Number

EF 850.6 CAR 2020b

Copies

Author

Carter, Bryan D.

Kronenberger, William G.

Scott, Eric L.

Place of Publication

Oxford, UK

Publisher

Oxford University Press

Publication Date

2020

Physical Description

Softcover; 113 pages

Series

Programs that work

Subject

Coping with Chronic Illness Young Adult

Coping with Chronic Illness

Coping with Chronic Illness-Children

Abstract

Children and adolescents with chronic illnesses, particularly those accompanied by debilitating, painful, and/or fatiguing symptoms, face challenges that may prove disruptive to physical, psychological, and social development. Based on extensive research and clinical expertise, Children's Health and Illness Recovery Program (CHIRP) is an effective treatment program designed to build and maintain independence in young people with chronic illness.

This Teen and Family Workbook provides proven treatment activities designed to combat the additional stress faced by youth coping with long-term health problems. These tasks target key areas for improvement in physical functioning, school functioning, and personal functioning and support the creation of new tools for managing the impact of illness, such as stress management, coping and relaxation techniques, and communication skills. In-session and take-home activities outlined in this workbook are meant to accompany the companion CHIRP Clinician Guide. With the use of this workbook and supported by a network of clinicians, healthcare specialists, and school professionals, adolescents and their families can return to a better quality of life.

ISBN

9780190070472

Language

English

Material Type

Book

Call Number

EF 850.6 CAR 2020

Copies

Author

Sileo, Frank J.

Potter, Carol S.

Place of Publication

Washington, DC

Publisher

American Psychological Association

Publication Date

2021

Physical Description

Softcover; 419 pages

Subject

Coping with Chronic Illness-Children

Coping with Chronic Illness in the Family

Coping with Chronic Illness-Young Adult

Abstract

Written by leading mental health professionals, this warm and accessible parenting book for children with chronic illnesses offers clear, practical guidance for all aspects of the journey. It is recommended by professionals at the American Diabetes Association, Invisible Disabilities Association, the Crohn's Colitis Foundation, and other expert national and regional sources.

For all its joys, parenting is a complex job, and when your child has a chronic illness, the stress can feel overwhelming. When your child is diagnosed, you begin a parenting journey filled with strong emotions, difficult choices, confusing words, and interactions with numerous professionals and specialists.

You're focused on ensuring your child gets the best possible treatments for their symptoms, so it's easy to overlook or dismiss the impact the illness can have on your relationships and emotions. This book places your psychological well-being front and center, so you can be the best caregiver possible for your child.

Along with suggestions for making laughter and mindfulness part of your daily self-care routine, it offers guidance for choosing the right therapist for your family, should extra support be needed. Every family's journey with chronic illness is unique, but you don't have to go it alone.

ISBN

9781433833816

Language

English

Material Type

Book

Call Number

EF 850.5 SIL 2021

Copies

Author

Olsher, Sara

Rogers, Jenni

Place of Publication

Happy Valley, OR

Publisher

Mighty and Bright

Publication Date

2023

Physical Description

Softcover; 39 pages

Subject

Coping with Chronic Illness in the Family

Abstract

Join Mia and Stewart as they learn how bodies work, why some bodies don't always feel good, and what to do when someone they love has an illness that won't go away.

ISBN

9798986776538

Language

English

Material Type

Book

Call Number

JUNIOR EF 860 OLS 2023

Copies

Author

Nimmo, Stephanie

Place of Publication

London, UK

Publisher

Jessica Kingsley Publishers

Publication Date

2024

Physical Description

Softcover; 272 pages

Subject

Coping with Chronic Illness-Children

Caregivers-Coping

Caregivers for a Dying Loved One

Abstract

Every parent wants the same thing: for their child to enjoy a long and fulfilling life. But what happens when things don't go according to plan? What happens when parents have to become advocates for their child's healthcare needs? Who decides what is in a child's 'best interests'?

Stephanie Nimmo faced these questions first-hand when her daughter, Daisy, was diagnosed with a life-limiting condition as a baby. Seen through the lens of Stephanie's own experiences, this sensitive book delves into the complex world of medical ethics and pediatric palliative care. From recognizing tipping points to the importance of building relationships with palliative care teams well before crisis, this book explores how medical professionals can better support families throughout their child's care.

Interviews with clinicians and snapshots from the lives of patients' families provide insight into the realities of life on both sides of the hospital bed. Compassionate explanations of the conflicting pressures in the hospital system foster understanding and help medical professionals and families work together.

ISBN

5727227010272

Language

English

Material Type

Book

Call Number

EF 850.5 NIM 2024

Copies

URL

http://www.phsa.ca/our-services-site/Documents/Partnership%20Guide%20Susan%20Poitras%20%28c%29%20July%202020.pdf

Corporate Author

Ethics Department and Patient Partners

Place of Publication

Vancouver, BC

Publisher

BC Children's Hospital & BC Women's Hospital + Health Centre

Publication Date

2020

Physical Description

21 pages

Subject

Pain Control

Abstract

This resource from BC Children?s Hospital can support families to explore their perspectives together and incorporate ways to foster the appropriate inclusion of children in healthcare decisions.

The Partnership Guide was developed to improve the guidance, support and participation of children aged 7-14 years with serious illness. This education resource provides up to date research knowledge in the area of child participation, pediatric decision making and child-focused activities and interventions to support children with this process.

Fostering the developing autonomy of children is an essential ethical principle and this guide supports the inclusion of children in decision-making to their ability and desire, to participate in decisions that impact their health.

Language

English

Material Type

Online

Booklet

Editor

Gow, Jennifer

Ho, Amy

Kazemir, Teresa

Shauer, Kim

Publisher

British Columbia (BC) Hands and Voices

Publication Date

2020

Physical Description

107 pages

Subject

Deafness-Children

Deafness-Coping

Hearing. Hard of Hearing

Hearing. Hard of Hearing-Children

Abstract

This collection of family stories shares experiences of raising young children who are Deaf and hard of hearing. It brings together articles written by a diverse range of families from British Columbia, Canada. We hope this book provides you with hopeful, insightful stories and practical wisdom.

ISBN

9781777078706

Language

English

Material Type

Book

Call Number

FI 400.5 GOW 2020

Copies

Author

Nwuba, Chukwuemeka [eds]

Spinn, Bailey [eds.]

Place of Publication

London, UK

Publisher

Jessica Kingsley Publishers

Publication Date

2024

Physical Description

Softcover, 304 pages

Subject

Eating Disorders

Abstract

This honest collection directly confronts stereotypes and misconceptions about what eating disorders look like and who they impact. Tapping into sources of expert knowledge throughout, the accounts showcase how you can begin to understand your own journey of body acceptance and recovery and support those struggling in silence.

ISBN

9781839976995

Language

English

Material Type

Book

Call Number

BB 500 NWU 2024

Copies

URL

https://ebookcentral.proquest.com/lib/cwhbc/detail.action?docID=6203120

Author

Steinberg, Stacey

Publisher

Sourcebooks

Publication Date

2020

Subject

Parenting

Internet

Abstract

Growing Up Shared investigates the benefits and risks of sharing our kids' lives on social media, and will help any parent decide on the right path for their family to follow in the online world.

ISBN

9781492698128

Language

English

Material Type

Ebook

Call Number

GK 650 STE 2020

URL

http://www.cw.bc.ca/library/pdf/pamphlets/BCW693_Caringforyourselfafterthelossofyourbaby.pdf

Corporate Author

Maternal Newborn Program

Place of Publication

[Vancouver, BC?]

Publisher

BC Women's Hospital & Health Centre

Publication Date

2020

Physical Description

PDF: 20 p.

Subject

Grief. Bereavement

Coping with a Child's Death

Coping with Pain

Coping with Death

Abstract

This booklet provides information on what to expect physically and emotionally as you deal with the immediate stages of grief in the hours, days and weeks after giving birth.

This booklet is a companion to the bcwomens.ca website.

Keywords have been highlighted in each section under 'resources + support' to help you find related information.

Language

English

Material Type

Handout

Online

Call Number

BCW693

URL

http://www.cw.bc.ca/library/pdf/pamphlets/BC-Childrens-Caring-for-your-child-elastomeric-pump.pdf

Corporate Author

Acute Pain Service

Place of Publication

Vancouver, BC

Publisher

BC Children's Hospital

Publication Date

2021

Physical Description

PDF; 2 p.

Subject

Anesthesia

Pain Control

Surgery-Coping

Abstract

Nerve blocks are performed by delivering local anesthetic (numbing medication) around the nerves that carry painful sensation from the surgical site or limb (arm or leg).

Learn how to care for your child at home, when they have an elastomeric pump. This handout explains what to expect, and when to get help.

Language

English

Material Type

Handout

Online

Author

Tejpar, Serena

Lalani, Anoosha [ill.]

Tejpar, Iman [ill.]

Place of Publication

Ann Arbor, MI

Publisher

Loving Healing Press

Publication Date

2022

Physical Description

Softcover; no pagination

Subject

Children's Hospitalization

Trauma Survivors

Abstract

Research has shown that building resilience in the face of adversity or challenges helps children and young people develop effective coping strategies and improve long-term outcomes across a spectrum of illnesses. You Are So Much More reminds children who have gone through or are going through an illness or injury, that they are indeed so much more. Trauma survivor and medical student Serena Tejpar shares a story of inspiration, reflection, and encouragement that can be read over and over again.

Includes a final word on common concerns and questions children may have while in hospital.

Notes

For ages 4 - 8

ISBN

9781615996322

Language

English

Material Type

Book

Call Number

JUNIOR GK 210 TEJ 2022

Copies

Author

Bryden, Pier

Szatmari, Peter

Place of Publication

Toronto, ON

Publisher

Simon & Schuster

Publication Date

2020

Physical Description

Softcover ; ix, 271 p.

Subject

Mental Health

Mental Health/Illness

Parenting

Young Adults-Mental Health. Psychology

Children Mental Health

Abstract

"As parents, we worry about our children - about their physical health, performance at school, the types of friends they have, and, of course, their mental health. Every day seems to bring new and expanding issues and disorders and troubling statistics about the rise of mental illness in children and teens. It's usually obvious what to do for physical injuries like broken bones, but when it comes to our children's mental health, the answers are much less clear, and sometimes even contradictory.

"Pier Bryden and Peter Szatmari, top child and adolescent psychiatrists, are here to help. Using their combined six decades working with families and kids - and their own experiences as parents - they break down the stigma of mental health illness and walk parents through the warning signs, risk factors, prevention strategies, and the process of diagnosis and treatment for mental health challenges arising from: anxiety, substance use disorders, eating disorders, sleep disorders, depression, trauma, suicidal thoughts and behaviors, psychosis, ADHD, and autism.

"The most important thing to remember as a parent is that you and your child are not alone and there is a lot you can do to improve your child's mental health. The road ahead isn't always easy or straightforward, but start here to learn how to advocate for your child's well-being"--from the inside front cover.

ISBN

9781508257929

Language

English

Material Type

Book

Call Number

CD 100 BRY 2020

URL

https://ebookcentral.proquest.com/lib/cwhbc/detail.action?docID=6002581

Author

Bryden, Pier

Szatmari, Peter

Place of Publication

Toronto, ON

Publisher

Simon & Schuster

Publication Date

2020

Subject

Mental Health

Mental Health/Illness

Parenting

Young Adults-Mental Health. Psychology

Children Mental Health

Abstract

"As parents, we worry about our children - about their physical health, performance at school, the types of friends they have, and, of course, their mental health. Every day seems to bring new and expanding issues and disorders and troubling statistics about the rise of mental illness in children and teens. It's usually obvious what to do for physical injuries like broken bones, but when it comes to our children's mental health, the answers are much less clear, and sometimes even contradictory.

"Pier Bryden and Peter Szatmari, top child and adolescent psychiatrists, are here to help. Using their combined six decades working with families and kids - and their own experiences as parents - they break down the stigma of mental health illness and walk parents through the warning signs, risk factors, prevention strategies, and the process of diagnosis and treatment for mental health challenges arising from: anxiety, substance use disorders, eating disorders, sleep disorders, depression, trauma, suicidal thoughts and behaviors, psychosis, ADHD, and autism.

"The most important thing to remember as a parent is that you and your child are not alone and there is a lot you can do to improve your child's mental health. The road ahead isn't always easy or straightforward, but start here to learn how to advocate for your child's well-being"--from the inside front cover.

ISBN

9781508257936

Language

English

Material Type

Ebook

Call Number

CD 100 BRY 2020b

Alternate Title

NowMaps Jr.

Author

Siegel, Daniel J.

Place of Publication

Eau Claire, WI

Publisher

PESI Publishing

Publication Date

2022

Physical Description

Hardcover; 55 pages

Subject

Emotional Health

Mindfulness

Abstract

Written by world-renowned neuropsychiatrist and co-author of The Whole-Brain Child, Dr. Dan Siegel, NowMaps Jr. is a delightful rhyming story that introduces kids to the neuroscience of early childhood social-emotional learning in a captivating, interactive way! Kids ages 3-6 will love this beautifully illustrated choose-your-own adventure book that whisks them off to distant lands - including a jungle, a desert, and a pirate ship - as they learn about their thoughts, feelings, and sensory experiences.

ISBN

9781683735328

Language

English

Material Type

Book

Call Number

JUNIOR CA 200 SIE 2022

Copies

URL

https://ebookcentral.proquest.com/lib/cwhbc/detail.action?docID=6916234

Author

Sunderland, Margot

Armstrong, Nicky (illustrator)

Place of Publication

New York, NY

Publisher

Routledge

Publication Date

2022

Physical Description

101p.

Series

Helping Children with Feelings

Subject

Children-Coping with Death and Dying

Children's Emotions

Abstract

Helping Children with Loss provides adults with a rich vocabulary for mental states and painful emotions, paving the way for meaningful and healing conversations with children who are struggling with difficult feelings. Practical activities provide opportunities for conversation and will empower the child to find creative and imaginative ways of expressing themselves when words fail.

Key features of this resource include:

- Targeted advice for children who defend against feeling their painful feelings by dissociating from grief

- Tools and strategies for helping children cope with loss, including engaging activities to help children explore their feelings in a non-threatening way

ISBN

9781000538847

Language

English

Material Type

Ebook

Call Number

GV 250 SUN 2022

Author

Pelletier, Annie

Place of Publication

Sudbury, ON

Publisher

Independently published

Publication Date

2023

Physical Description

Softcover; 50 pages

Subject

Coping with a Sibling's Death

Pregnancy Loss. Miscarriage.

Abstract

In this inspiring story, a child tells us how they feel after losing their baby brother. Their grief journey is brought to life through illustrations, giving us a glimpse into their inner world. Helpful strategies and tips are also included.

ISBN

9798389765191

Language

English

Material Type

Book

Call Number

JUNIOR GV 259 PEL 2023

Copies

Author

Brill, Stephanie

Pepper, Rachel

Edition

Revised and updated

Place of Publication

Hoboken, NJ

Publisher

Start Midnight

Publication Date

2022

Physical Description

Softcover; 390 pages

Subject

Children's Gender Identity and Expression

Gender identity

LGBTQ

Abstract

Ever since its initial publication in 2008, The Transgender Child has been lauded as the most trusted source of information for families wanting to understand and affirm their transgender, gender-expansive, or nonbinary child. Utilized around the world and translated into multiple languages, The Transgender Child has won accolades from medical and mental health professionals, teachers, and, most especially, from parents. Authors Stephanie Brill and Rachel Pepper have now thoroughly revised and updated their ground-breaking classic with expanded coverage of gender development, affirming parenting practices, mental health and wellness, medical decision making, legal advocacy, and how best to ensure school success, from preschool through the high school years. Drawing upon their extensive joint expertise as pioneers in the field of gender affirming care, and enriched with the wisdom of parents who?ve already walked this path, as well as the voices of multiple professional experts, Brill and Pepper once again provide a compassionate and educational guide for anyone who cares about, or works with, a child who falls outside expected gender norms.

ISBN

9781627783248

Language

English

Material Type

Book

Call Number

GK 716 BRI 2022

Copies

Corporate Author

American Academy of Pediatrics

Editor

Meerkov, Meera

Weiner, Gary

Zaichkin, Jeanette

Edition

2nd edition

Place of Publication

Itasca, IL

Publisher

American Academy of Pediatrics

Publication Date

2023

Physical Description

Softcover; 357 pages

Subject

NICU

Premature Infants

Premature Infants-Coping

Intensive Care Units-Neonatal. Infants

Abstract

This book "will guide you through your baby's time in the Neonatal Intensive Care Unit (NICU), helping you communicate with members of the NICU team, ask the right questions, and participate as a valuable partner in care. This volume also features inspirational stories from other parents' NICU experiences to bring you comfort and hope." [excerpted from cover]

ISBN

9781610026659

Language

English

Material Type

Book

Call Number

JB 340 MEE 2023

Copies