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Shared Struggles: Stories from parents and pediatricians caring for children with serious illnesses

https://bcch.andornot.com/en/permalink/catalog124220
Schrooten, A.F., Markovitz, B.P. Switzerland: Springer International Publishing AG , 2021.
URL
https://ebookcentral.proquest.com/lib/cwhbc/detail.action?docID=6578034
Material Type
Ebook
Call Number
EF 850.5 SCH 2021e
This book tells true and poignant stories from both sides of the physician-patient/parent relationship and provides a unique glimpse into how parents and physicians think, feel, and interact. The stories are grouped under four sections: Hope, Compassion, Communication, and Trust.; Each section incl…
  1 url  
URL
https://ebookcentral.proquest.com/lib/cwhbc/detail.action?docID=6578034
Author
Schrooten, A.F.
Markovitz, B.P.
Place of Publication
Switzerland
Publisher
Springer International Publishing AG
Publication Date
2021
Subject
Coping with Chronic Illness-Children
Abstract
This book tells true and poignant stories from both sides of the physician-patient/parent relationship and provides a unique glimpse into how parents and physicians think, feel, and interact. The stories are grouped under four sections: Hope, Compassion, Communication, and Trust.
Each section includes stories contributed by parents from all across the United States and by pediatricians practicing at many of the best children's hospitals throughout the country. The parents tell of interactions with physicians that had a significant impact on them and their child and offer context and insight that promote empathy and reflection. The physicians tell of interactions with patients and families that served as learning moments in their career and promote the humanization of medicine and show there is more to a physician beyond their scientific knowledge and white coat.
The stories are edited by Barry P. Markovitz - a pediatrician specializing in critical care medicine who has been in practice for more than 20 years and by Ann F. Schrooten - the parent of a child born with a chronic complex condition who has more than 15 years of experience interacting with pediatric subspecialists and other healthcare professionals who cared for her son. The editors have written commentaries to the stories to provide an independent perspective on the events and messages conveyed and to encourage reflection, inquiry, and discussion.
In addition to being a valuable resource for pediatricians, pediatric subspecialists, nurses and other healthcare professionals, the book will also appeal to families of children living with complex medical conditions because it shares physician encounters and behaviors many have experienced in the care of their own children. By giving a voice to both parents and physicians, the goal is to create a bridge to better understanding that can improve communication, minimize conflicts, and foster trust and compassion among physicians, patients, and families.
ISBN
9783030680206
Language
English
Material Type
Ebook
Call Number
EF 850.5 SCH 2021e
URLs
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Collective care: Indigenous motherhood, family, and HIV/AIDS

https://bcch.andornot.com/en/permalink/catalog124212
Downe, Pamela. Toronto, ON: University of Toronto Press , 2021.
URL
https://ebookcentral.proquest.com/lib/cwhbc/detail.action?docID=6475884
Material Type
Ebook
Call Number
GN 400 DOW 2021
Collective Care provides an ethnographic account of urban Indigenous life and caregiving practices in the face of Saskatchewan's HIV epidemic. Based on a five-year study conducted in partnership with AIDS Saskatoon, the book focuses on the contrast between Indigenous values of collective kin-care a…
  1 url  
URL
https://ebookcentral.proquest.com/lib/cwhbc/detail.action?docID=6475884
Author
Downe, Pamela
Place of Publication
Toronto, ON
Publisher
University of Toronto Press
Publication Date
2021
Physical Description
171p.
Subject
Indigenous
Aboriginal Health
Motherhood
HIV/AIDS
Abstract
Collective Care provides an ethnographic account of urban Indigenous life and caregiving practices in the face of Saskatchewan's HIV epidemic. Based on a five-year study conducted in partnership with AIDS Saskatoon, the book focuses on the contrast between Indigenous values of collective kin-care and non-Indigenous models of intensive maternal care. It explores how women and men negotiate the forces of HIV to render motherhood a site of cultural meaning, personal and collective well-being, and, sometimes, individual and community despair. It also introduces readers to how HIV is Indigenized in western Canada and how all HIV-affected and -infected mothers must negotiate this cultural and racialized terrain. Featuring in-depth narrative interviews, notes from participant observation in AIDS Saskatoon's drop-in centre, and a photovoice component, this book offers an accessible account of an engaged anthropologist's work with a community that is both vulnerable and resilient. Each chapter begins with an ethnographic vignette that introduces central concepts, including medical anthropology, syndemics, kinship, and Indigeneity, with the overall aim of humanizing those affected by HIV in western Canada and beyond.
ISBN
9781487587666
Language
English
Material Type
Ebook
Call Number
GN 400 DOW 2021
URLs
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