Alternate Title

[La vie avant, pendant et apres: Les soins palliatifs pediatriques]

Author

Humbert, Nago

Place of Publication

Montreal, QC

Publisher

CHU Sainte-Justine

Publication Date

2012

Physical Description

Paperback, 335 p.

Subject

Coping with Chronic Illness-Children

Caregiving

Abstract

volution des pratiques médicales inclut dorénavant le développement des soins palliatifs pédiatriques. En effet, la spécificité de la prise en charge des enfants et des adolescents vivant avec une pathologie pouvant menacer leur vie a été démontrée grâce à l'expertise et au travail de réflexion entrepris et soutenu par des intervenants spécialisés, autant en Amérique du Nord qu'en Europe.

La recherche dans ce domaine soulève certaines problématiques particulières, à la fois sur les plans médical, psychologique, éthique, émotionnel, relationnel et spirituel. En regroupant et en explorant plusieurs d'entre elles - contexte de périnatalité ou de handicap, gestion de la douleur, poursuite de la scolarité, rôle du pédiatre et de l'infirmière, souffrance des membres de la famille et des soignants, décès à l'urgence, impacts des décisions concernant l'alimentation, les niveaux de soins et la non-réanimation, possible conflit opposant famille et équipe de soins, importance du suivi de deuil...-, ce livre contribue à donner à chaque jeune patient un encadrement global et adéquat visant la meilleure qualité de vie possible dans le respect de son développement. Référence essentielle, il témoigne de la complexité des gestes et des décisions des soignants qui, ne pouvant plus guérir la maladie, sont appelés à soulager tous les malaises du petit malade et de sa famille, y comprix ceux de l'âme.

ISBN

9782896196197

Language

French

Material Type

Book

Call Number

EF 850.5 HUM 2012 STACKS

Copies

Author

Sileo, Frank J.

Potter, Carol S.

Place of Publication

Washington, DC

Publisher

American Psychological Association

Publication Date

2021

Physical Description

Softcover; 419 pages

Subject

Coping with Chronic Illness-Children

Coping with Chronic Illness in the Family

Coping with Chronic Illness-Young Adult

Abstract

Written by leading mental health professionals, this warm and accessible parenting book for children with chronic illnesses offers clear, practical guidance for all aspects of the journey. It is recommended by professionals at the American Diabetes Association, Invisible Disabilities Association, the Crohn's Colitis Foundation, and other expert national and regional sources.

For all its joys, parenting is a complex job, and when your child has a chronic illness, the stress can feel overwhelming. When your child is diagnosed, you begin a parenting journey filled with strong emotions, difficult choices, confusing words, and interactions with numerous professionals and specialists.

You're focused on ensuring your child gets the best possible treatments for their symptoms, so it's easy to overlook or dismiss the impact the illness can have on your relationships and emotions. This book places your psychological well-being front and center, so you can be the best caregiver possible for your child.

Along with suggestions for making laughter and mindfulness part of your daily self-care routine, it offers guidance for choosing the right therapist for your family, should extra support be needed. Every family's journey with chronic illness is unique, but you don't have to go it alone.

ISBN

9781433833816

Language

English

Material Type

Book

Call Number

EF 850.5 SIL 2021

Copies

Author

Olsher, Sara

Rogers, Jenni

Place of Publication

Happy Valley, OR

Publisher

Mighty and Bright

Publication Date

2023

Physical Description

Softcover; 39 pages

Subject

Coping with Chronic Illness in the Family

Abstract

Join Mia and Stewart as they learn how bodies work, why some bodies don't always feel good, and what to do when someone they love has an illness that won't go away.

ISBN

9798986776538

Language

English

Material Type

Book

Call Number

JUNIOR EF 860 OLS 2023

Copies

Author

Carter, Bryan D.

Kronenberger, William G.

Scott, Eric L.

Brady, Christine E.

Place of Publication

Oxford, UK

Publisher

Oxford University Press

Publication Date

2020

Physical Description

Softcover; 173 pages

Series

Programs that work

Subject

Coping with Chronic Illness Young Adult

Coping with Chronic Illness

Coping with Chronic Illness-Children

Abstract

Youth with chronic illnesses face challenges that may prove disruptive to physical, psychological, and social development. Based on extensive research and clinical expertise, Children's Health and Illness Recovery Program (CHIRP) is an interdisciplinary cognitive behavioral and family systems-based treatment program designed to maximize the independent functioning of teens with chronic illness.

This Clinician Guide offers a detailed outline for implementing this manualized intervention and provides clear guidance as to the philosophy, pragmatics, and art of working with challenging pediatric conditions. Designed to accompany the CHIRP Teen and Family Workbook, this book addresses specific assessment measures and tools needed to establish a collaborative treatment team approach that incorporates the skills of the CHIRP clinician, primary and specialty care providers, and roles of other healthcare (physical therapists, occupational therapists, etc.) and educational professionals critical to the successful management and treatment of these youth.

ISBN

9780190070267

Language

English

Material Type

Book

Call Number

EF 850.6 CAR 2020b

Copies

Author

Bernhard, Toni

Place of Publication

Somerville, MA

Publisher

Wisdom Publications

Publication Date

2015

Physical Description

337 pages

Subject

Coping with Chronic Illness

Chronic Illness

Chronic Pain

Abstract

Comfort, understanding, and advice for those who are suffering?and those who care for them.

Chronic illness creates many challenges, from career crises and relationship issues to struggles with self-blame, personal identity, and isolation. Beloved author Toni Bernhard addresses these challenges and many more, using practical examples to illustrate how mindfulness, equanimity, and compassion can help readers make peace with a life turned upside down.

In her characteristic conversational style, Bernhard shows how to cope and make the most of life despite the challenges of chronic illness. Benefit from:

? Mindfulness exercises to mitigate physical and emotional pain

? Concrete advice for negotiating the everyday hurdles of medical appointments, household chores, and social obligations

? Tools for navigating the strains illness can place on relationships

Several chapters are directed toward family and friends of the chronically ill, helping them to understand what their loved one is going through and how they can help.

Humorous and empathetic, Bernhard shares her own struggles and setbacks with unflinching honesty, offering invaluable support in the search to find peace and well-being.

ISBN

9781614292487

Language

English

Material Type

Book

Call Number

EF 850 BER 2015

Copies

Author

Chartre, Marie-Eve

Gagne, Johanne

Place of Publication

Montreal, QC

Publisher

Éditions du CHU Sainte-Justine

Publication Date

2014

Physical Description

Paperback, 127 p.

Subject

Coping with Chronic Illness-Children

Abstract

Dès l?annonce du diagnostic, la maladie chronique d?un enfant devient « l?affaire » de toute la famille. Après le choc, chacun des membres de la cellule familiale doit traverser, à son rythme, le processus d?adaptation à un nouveau mode de vie conditionné par l?état de santé de l?enfant. Ce livre permet aux parents de mieux comprendre les étapes de ce cheminement émotionnel et social ― pour l?enfant malade, la fratrie, la famille, le couple comme pour eux-mêmes en tant qu?individus ― et d?accompagner chacun en puisant à la fois dans les ressources personnelles et extérieures dont ils peuvent bénéficier.

ISBN

9782896196678

Language

French

Material Type

Book

Call Number

EF 850.5 CHA 2014

Copies

Author

Hammarrenger, Benoit

Place of Publication

TBD

Publisher

Editions Midi trente

Publication Date

2022

Subject

Parenting

Abstract

Dans le cadre de sa pratique comme psychologue et neuropsychologue, Benoît Hammarrenger rencontre souvent des parents qui souhaitent améliorer leurs relations avec leurs enfants et leurs adolescents. Ceux-ci lui racontent alors toutes sortes de situations marquées par des crises, de l'opposition, de la tristesse, de l'anxiété ou de la colère, mais aussi par leur propre sentiment d'impuissance en regard de la distance qu'ils voient s'installer entre les membres de la famille. Or, au fil des ans, Benoît a observé qu'une constante se dégage de toutes les situations de détresse familiale. Cette constante, c'est le besoin de cultiver une meilleure communication, c'est-à-dire une communication profonde et authentique, au-delà des mots, là où se jouent les vrais enjeux. Selon lui, il existe sept clés essentielles à l'établissement d'une communication saine et enrichissante dans la famille :

- Être à l'écoute des émotions des jeunes et se placer en synchronie avec eux

- Laisser une place à la colère en montrant qu'il s'agit d'une émotion légitime

- Cultiver l'empathie et l'esprit d'équipe entre frères et soeurs

- Installer une autorité parentale légitime, que les enfants auront envie de suivre

- Aider les jeunes à mieux connaître leurs parents pour consolider leur lien avec eux

- Composer avec les enjeux spécifiques de l'adolescence

- Tenter de comprendre ce que le jeune vit et cherche vraiment à exprimer, alors que ses habiletés de communication sont encore en construction.

Dans ce nouveau livre accessible et teinté d'humour, Benoît aide les parents à faire alliance avec leur jeune, à créer un climat sain dans la famille... et il en profite pour leur rappeler d'arrêter de parler de bière lorsque leur jeune, lui, parle d'ours

ISBN

9782925213147

Language

French

Material Type

Book

Call Number

GK 600 HAM 2022

Copies

Author

Pannetier, Evelyne

Edition

2e édition

Place of Publication

Montreal, QC

Publisher

Les Éditions Québec-Livres

Publication Date

2016

Physical Description

Paperback, ill., 192 p.

Subject

Dyslexia

Learning Differences. Learning Disabilities

Abstract

L'objectif de ce livre est de décrire la dyslexie à la lumière des plus récentes découvertes scientifiques, tout en gardant à l'esprit qu'il s'agit d'abord et avant tout d'un diagnostic qui est fait grâce à la mise en évidence de problèmes spécifiques par des spécialistes. Si l'école et les enseignants sont en première ligne pour détecter des problèmes de lecture, la dyslexie dépasse largement le simple cadre scolaire et son évaluation. Son traitement nécessite la colla­boration d'intervenants du milieu de la santé et de la réadaptation qui doivent travailler ensemble pour obtenir les meilleurs résultats possible. Les contraintes budgétaires qui sévissent aussi bien dans le monde de l'éducation que dans celui de la santé ont conduit beaucoup de parents à se tourner vers des ressources privées ou d'autres thérapies pour essayer d'apporter le soutien nécessaire à leur enfant dyslexique. Ces différentes approches sont abordées ici en tenant compte de leur caractère scientifique; il ne s'agit donc pas d'une revue exhaustive de tout ce qui peut être entrepris par des personnes qui cherchent désespérément une solution miracle. Car il n'y a pas de miracle dans le traitement de la dyslexie: seulement beaucoup de travail, des efforts soutenus et bien orientés, en plus de la compréhension de la famille et de l'école.

À la fin de ce livre figure un fascicule spécifiquement réalisé pour être lu par un élève dyslexique. En effet, bien des parents et même des enseignants ont du mal à expliquer clairement à un enfant ce qu'est la dyslexie. Grâce à l'histoire que nous raconte Michael, un élève de niveau primaire pourra lui-même comprendre ses difficultés, alors que la page des parents permettra à ceux-ci de se documenter sur tel ou tel point précis et, au besoin, de répondre dans leurs mots aux questions de l'enfant.

ISBN

9782764025178

Language

French

Material Type

Book

Call Number

FM 262 PAN 2016

Copies

Alternate Title

[Survivre au suicide d un proche: Se relever alors que la vie continue]

Author

Bisson, Odette

Place of Publication

Monteal, QC

Publisher

La Semaine

Publication Date

2016

Physical Description

Paperback, 144 p., ill.

Subject

Grief.Bereavement

Abstract

Qui n'a jamais connu une personne endeuillée par le suicide d'un proche ? C'est malheureusement un geste extrême de plus en plus fréquent. Il s'agit d'un acte incompréhensible que l'on doit tout de même accepter afin de passer à autre chose. Mais comment accepter cette absence qui déchire, comment vivre ce deuil, jour après jour, semaine après semaine ? Comment se relever alors que la vie continue, alors que le courant de la vie nous amène déjà ailleurs.

« Malgré l'absence immensément douloureuse, malgré le vide sans nom, j'ai dû accepter l'inacceptable, le suicide de mon fils cadet, raconte Odette Bisson. Pour me reconstruire, il aura fallu que je garde espoir en la vie. Vivre le moment présent m'a permis d'envisager la possibilité d'un avenir. Si chaque livre a sa mission, la mission du mien aura été de tendre la main et de permettre à d'autres endeuillés du suicide de briser le tabou qui entoure leur désespoir. »

Écrivaine, photographe, peintre à ses heures et historienne de l'art, Odette Bisson aime exprimer librement ses émotions et ses passions. Sa créativité, son empathie spontanée et son humour lui permettent de jeter un regard original sur les affres et les aléas de la vie et sur le suicide de son fils cadet.

ISBN

9782897033316

Language

French

Material Type

Book

Call Number

GV 200 BIS 2016

Copies

Author

Carter, Bryan D.

Kronenberger, William G.

Scott, Eric L.

Place of Publication

Oxford, UK

Publisher

Oxford University Press

Publication Date

2020

Physical Description

Softcover; 113 pages

Series

Programs that work

Subject

Coping with Chronic Illness Young Adult

Coping with Chronic Illness

Coping with Chronic Illness-Children

Abstract

Children and adolescents with chronic illnesses, particularly those accompanied by debilitating, painful, and/or fatiguing symptoms, face challenges that may prove disruptive to physical, psychological, and social development. Based on extensive research and clinical expertise, Children's Health and Illness Recovery Program (CHIRP) is an effective treatment program designed to build and maintain independence in young people with chronic illness.

This Teen and Family Workbook provides proven treatment activities designed to combat the additional stress faced by youth coping with long-term health problems. These tasks target key areas for improvement in physical functioning, school functioning, and personal functioning and support the creation of new tools for managing the impact of illness, such as stress management, coping and relaxation techniques, and communication skills. In-session and take-home activities outlined in this workbook are meant to accompany the companion CHIRP Clinician Guide. With the use of this workbook and supported by a network of clinicians, healthcare specialists, and school professionals, adolescents and their families can return to a better quality of life.

ISBN

9780190070472

Language

English

Material Type

Book

Call Number

EF 850.6 CAR 2020

Copies

Alternate Title

[La menopause au jour le jour: Decouvrez comment alleger vos symptomes]

Author

Savoie, Réjean

Aucoin-Gallant, Gemma

Place of Publication

Austin, QC

Publisher

Berger

Publication Date

2014

Physical Description

Paperback, 227 p.

Subject

Menopause

Menopause-Coping

Abstract

La grande originalité de ce livre ― et c'est une première ― c'est de fournir à chaque femme la possibilité de gérer ses symptômes propres et de mieux communiquer avec son médecin grâce à un journal de la ménopause conçu tout spécialement pour cette période de la vie des femmes.

ISBN

9782921416986

Language

French

Material Type

Book

Call Number

GG 850 SAV 2014

Copies

Author

Rose, Dina

Place of Publication

Montreal, QC

Publisher

Editions de L'Homme

Publication Date

2015

Physical Description

Paperback, 312 p.

Subject

Nutrition

Cooking

Abstract

Votre plus jeune lance sa nourriture ou son gobelet à répétition pendant les repas? Votre plus vieux fait une scène devant l'assiette de poisson grillé et de brocoli que vous lui servez? Sa sur ne mange rien d'autre que des pâtes ou du pain sans rechigner? Dans cet ouvrage, l'auteur propose une approche radicalement différente et étonnamment simple pour mettre fin aux combats répétés avec vos enfants à l'heure des repas. Règle numéro un: oubliez la valeur nutritive.

ISBN

9782761941877

Language

French

Material Type

Book

Call Number

BB 200 ROS 2015

Copies

URL

https://apps.apple.com/us/app/symple-symptom-tracker/id479818115

Corporate Author

Symple Health, Inc.

Publication Date

2019

Physical Description

Mobile App

Subject

Coping with Pain

Coping with Chronic Illness

Abstract

Use Symple to track how you feel, to monitor your health, and to improve your wellbeing. Designed by both clinicians and regular people, Symple is an enjoyable way to connect to better health.

Language

English

Material Type

Online

Author

Peterkin, Allan

Middendorf, Frances (Illustrator)

Place of Publication

New York, NY

Publisher

Magination Press

Publication Date

1992

Physical Description

Softcover: 30 p.

Subject

Children Coping with Family Illness

Sibling Relationships

Picture Books

Abstract

Illustrated book dealing with the many complicated feelings the well child experiences in a situation where a sibling is ill: guilt about having caused the illness, fear that the sibling will die, anger over being left out, anxiety about catching the sickness, and longing for life to return to the way it was.

ISBN

0945354487

Language

English

Material Type

Book

Call Number

JUNIOR EF 860.5 PET 1992

Copies

Alternate Title

"Mon frere n est plus connecte dans sa tete": La schizophrenie

Author

Deroin, Christine

Place of Publication

Paris, France

Publisher

Oskar Editeurs

Publication Date

2015

Physical Description

Paperback, 94 p.

Subject

Schizophrenia

Schizophrenia -Coping for the Family

Abstract

Présentation de la série "Pas de panique !" Cette collection a été créée pour sensibiliser les adolescents face aux différentes maladies psychiatriques dont peuvent souffrir des membres de leur famille (parents, frères, soeurs, amis proches).

ISBN

9791021403475

Language

French

Material Type

Book

Call Number

YOUTH CD 626 DER 2015

Copies

Author

Giammarinaro, Martine

Lamure, Dominique

Place of Publication

Montreal, QC

Publisher

Les Editions de L'Homme

Publication Date

2015

Physical Description

Softcover, 128 p.

Subject

Yoga

Abstract

Que ce soit à l'école ou devant l'écran, les enfants passent chaque jour plusieurs heures en position assise. De plus, un emploi du temps surchargé les oblige souvent à composer avec une dose importante de stress. Adaptée aux besoins des jeunes, la pratique du yoga les aide à prendre conscience de leur corps et à en libérer les tensions, à éveiller leur esprit, à stimuler leur imagination et à favoriser leur relaxation. Destiné aux enfants de 6 à 14 ans, cet ouvrage propose des postures, des exercices de respiration et de relaxation, dans une approche ludique qui leur permettra d'intégrer la pratique du yoga en toute simplicité.

ISBN

9782761942379

Language

French

Material Type

Book

Call Number

BC 200 GIA 2015

Copies

URL

https://ebookcentral.proquest.com/lib/cwhbc/detail.action?docID=6578034

Author

Schrooten, A.F.

Markovitz, B.P.

Place of Publication

Switzerland

Publisher

Springer International Publishing AG

Publication Date

2021

Subject

Coping with Chronic Illness-Children

Abstract

This book tells true and poignant stories from both sides of the physician-patient/parent relationship and provides a unique glimpse into how parents and physicians think, feel, and interact. The stories are grouped under four sections: Hope, Compassion, Communication, and Trust.

Each section includes stories contributed by parents from all across the United States and by pediatricians practicing at many of the best children's hospitals throughout the country. The parents tell of interactions with physicians that had a significant impact on them and their child and offer context and insight that promote empathy and reflection. The physicians tell of interactions with patients and families that served as learning moments in their career and promote the humanization of medicine and show there is more to a physician beyond their scientific knowledge and white coat.

The stories are edited by Barry P. Markovitz - a pediatrician specializing in critical care medicine who has been in practice for more than 20 years and by Ann F. Schrooten - the parent of a child born with a chronic complex condition who has more than 15 years of experience interacting with pediatric subspecialists and other healthcare professionals who cared for her son. The editors have written commentaries to the stories to provide an independent perspective on the events and messages conveyed and to encourage reflection, inquiry, and discussion.

In addition to being a valuable resource for pediatricians, pediatric subspecialists, nurses and other healthcare professionals, the book will also appeal to families of children living with complex medical conditions because it shares physician encounters and behaviors many have experienced in the care of their own children. By giving a voice to both parents and physicians, the goal is to create a bridge to better understanding that can improve communication, minimize conflicts, and foster trust and compassion among physicians, patients, and families.

ISBN

9783030680206

Language

English

Material Type

Ebook

Call Number

EF 850.5 SCH 2021e

Author

Schrooten, A.F.

Markovitz, B.P.

Place of Publication

Switzerland

Publisher

Springer International Publishing AG

Publication Date

2021

Physical Description

251 pages

Subject

Coping with Chronic Illness-Children

Abstract

This book tells true and poignant stories from both sides of the physician-patient/parent relationship and provides a unique glimpse into how parents and physicians think, feel, and interact. The stories are grouped under four sections: Hope, Compassion, Communication, and Trust.

Each section includes stories contributed by parents from all across the United States and by pediatricians practicing at many of the best children's hospitals throughout the country. The parents tell of interactions with physicians that had a significant impact on them and their child and offer context and insight that promote empathy and reflection. The physicians tell of interactions with patients and families that served as learning moments in their career and promote the humanization of medicine and show there is more to a physician beyond their scientific knowledge and white coat.

The stories are edited by Barry P. Markovitz - a pediatrician specializing in critical care medicine who has been in practice for more than 20 years and by Ann F. Schrooten - the parent of a child born with a chronic complex condition who has more than 15 years of experience interacting with pediatric subspecialists and other healthcare professionals who cared for her son. The editors have written commentaries to the stories to provide an independent perspective on the events and messages conveyed and to encourage reflection, inquiry, and discussion.

In addition to being a valuable resource for pediatricians, pediatric subspecialists, nurses and other healthcare professionals, the book will also appeal to families of children living with complex medical conditions because it shares physician encounters and behaviors many have experienced in the care of their own children. By giving a voice to both parents and physicians, the goal is to create a bridge to better understanding that can improve communication, minimize conflicts, and foster trust and compassion among physicians, patients, and families.

ISBN

9783030680206

Language

English

Material Type

Book

Call Number

EF 850.5 SCH 2021b

Copies

Author

Christy, Elizabeth M.

Miller, James G. (illustrator)

Place of Publication

Denver, Colorado

Publisher

Outskirts Press, Inc.

Publication Date

2014

Physical Description

Softcover ; [18 p.], illustrations

Subject

Chronic Illness

Chronic Pain

Fibromyalgia. Fibrositis

Coping with Chronic Illness-Children

Abstract

The children of people with chronic illness and pain suffer quietly. "Why Does Mommy Hurt?" is a joyful, yet honest, portrayal of family life burdened with chronic illness. This is a delightful story told by a young boy learning to understand and cope with his mother's illness. The story creates natural opportunities for families to talk about both the symptoms of chronic illness, and how they affect family life. Even more importantly, the story puts power into the hands of the children. It also offers a helpful "Tips and Resources" section for parents! This book is appropriate for a wide-variety of illnesses associated with chronic pain, such as: Lupus, Lyme Disease, ME, CFS, Fibromyalgia, Arthritis, Multiple Sclerosis, Autoimmune Disease, and many others.

Notes

Recommended by CCDP

ISBN

9781478732969

Language

English

Material Type

Book

Call Number

JUNIOR EF 850.5 CHR 2014

Copies

URL

http://www.cw.bc.ca/library/pdf/TimeForMe.pdf

Website Notes

Click on the link above to view.

Author

Slakov, June

Janes, Karen

Edition

Revised

Place of Publication

[Vancouver, BC?]

Publisher

BC Cancer Agency

Publication Date

2003

Physical Description

Softcover (spiralbound): 50 p.

Subject

Children with Cancer

Children with Cancer-Coping

Children with Cancer-Coping for the Family

Children with Cancer-Coping for the Parents

Children with Cancer-Coping for the Siblings

Children Coping with Family Illness

Cancer

Abstract

This activity book was written by a former Art Therapist with the Patient and Family Counselling Program and an Oncology Nursing Practice Leader with the BC Cancer Agency. It is designed for children, ages 6 to 12, to help them learn, creative ways of coping when a family member is living with cancer. This activity book can provide a starting point for children and families to talk about cancer. The activities in the book can provide a child with choices in creative tools to learn and grow through the family’s experience with cancer.

ISBN

1896624103

Language

English

Material Type

Book

Call Number

FE 550 SLA 2004

Copies