URL

https://muscle.ca/wp-content/uploads/2019/09/DMDstandardsofcare-EN.pdf

Corporate Author

Muscular Dystrophy Canada

Place of Publication

Toronto, ON

Publisher

Muscular Dystrophy Canada

Publication Date

2019

Subject

Muscular Dystrophy

Abstract

This guide for families summarizes the results of an international consensus on the medical care of Duchenne muscular dystrophy (DMD). This effort was supported by the US Centers for Disease Control and Prevention (CDC), in collaboration with patient advocacy groups and the TREAT-NMD network. The main document is published in Lancet Neurology.

The recommendations are based on an extensive study by 84 international experts in DMD diagnosis and care chosen to represent a broad range of specialties. They independently ?rated? methods of care used in the management of DMD to say how ?necessary?, ?appropriate? or ?inappropriate? each one was at different stages of the course of DMD. In total they considered more than 70,000 different scenarios. This allowed them to establish guidelines that the majority agreed represented the best practice for DMD care.

Language

English

Material Type

Booklet

Online

URL

http://www.cw.bc.ca/library/pdf/Pamphlets/girlsspeakout.pdf

Website Notes

Click on the link above to view/print.

Author

Godard, Louise

Cory, Jill

Armstrong, Naomi et all.

Editor

Sullivan, Lana

Pederson, Ann

Pigeon, Marguerite

Place of Publication

[Vancouver, BC?]

Publisher

BC Women's Hospital + Health Centre

Publication Date

2016

Physical Description

PDF file, 129 p., ill.

Subject

Violence Prevention

Women's Health

Abstract

This resource provides information about violence and BC Women's Hospital and Health Centre, Girls Speak Out program, its curriculum and some recommended websites about this topic. It's aimed to support women with experiences of violence.

ISBN

0000000001234

Language

English

Material Type

Online

Booklet

Author

Thompson, Harry

Jata-Hall, Danielle

Sherwin, Mollie [illustrator]

Place of Publication

London, UK and Philadelphia, PA

Publisher

Jessica Kingsley Publishers

Publication Date

2022

Physical Description

Softcover; illustrated; 64 pages

Subject

Autism Spectrum Disorder (includes Asperger Syndrome)

Abstract

Welcome to my downside up life! My name is Ariana and I have something called Pathological Demand Avoidance which is a form of autism. Most people just think I'm naughty and misbehaved, but I want to show you why that's not true by telling you about what my life is like from inside my head. Come join me in understanding why I feel like I have to be in control all the time and why it's just not as simple as doing as I am told.

Recommended for children ages 7-12.

ISBN

978-1839971174

Material Type

Booklet

Call Number

JUNIIOR FM 272 THO 2022

Copies

Author

Foundation for Ichthyosis and Related Skin Types

Edition

4th edition

Place of Publication

Colmar, PA

Publisher

Foundation for Ichthyosis and Related Skin Types

Publication Date

2014

Physical Description

52 pages

Subject

Ichthyosis

Language

English

Material Type

Booklet

Call Number

FO 365 FOU 2014

Copies

Alternate Title

Medikids

Author

Renfrew, Ruth

deLoache, Shawn

Editor

Quigley, Columba

Place of Publication

New York, NY

Publisher

Jumo

Publication Date

2018

Physical Description

Softcover; 8 p.

Series

Medikids

Subject

Hospitals

Hospitalization

Hospitals Services

Children's Health

Children's Health-Pediatrics

Children's Hospitalization

Abstract

Join Jonathan on his journey to learn about all the people on his health care team who will support him before, during, and after his medical procedure.

Language

English

Material Type

Booklet

Call Number

JUNIOR GK 210 REN 2018

Copies