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The diagnosis and management of Duchenne Muscular Dystrophy: A guide for families

https://bcch.andornot.com/en/permalink/catalog123812

Muscular Dystrophy Canada. Toronto, ON: Muscular Dystrophy Canada , 2019.

URL: https://muscle.ca/wp-content/uploads/2019/09/DMDstandardsofcare-EN.pdf

Material Type: Booklet; Online

This guide for families summarizes the results of an international consensus on the medical care of Duchenne muscular dystrophy (DMD). This effort was supported by the US Centers for Disease Control and Prevention (CDC), in collaboration with patient advocacy groups and the TREAT-NMD network. The m…

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URL: https://muscle.ca/wp-content/uploads/2019/09/DMDstandardsofcare-EN.pdf

Corporate Author: Muscular Dystrophy Canada

Place of Publication: Toronto, ON

Publisher: Muscular Dystrophy Canada

Publication Date: 2019

Subject: Muscular Dystrophy

Abstract: This guide for families summarizes the results of an international consensus on the medical care of Duchenne muscular dystrophy (DMD). This effort was supported by the US Centers for Disease Control and Prevention (CDC), in collaboration with patient advocacy groups and the TREAT-NMD network. The main document is published in Lancet Neurology.; The recommendations are based on an extensive study by 84 international experts in DMD diagnosis and care chosen to represent a broad range of specialties. They independently ?rated? methods of care used in the management of DMD to say how ?necessary?, ?appropriate? or ?inappropriate? each one was at different stages of the course of DMD. In total they considered more than 70,000 different scenarios. This allowed them to establish guidelines that the majority agreed represented the best practice for DMD care.

Language: English

Material Type: Booklet; Online

URLs

https://muscle.ca/wp-content/uploads/2019/09/DMDstandardsofcare-EN.pdf

I'm not upside down, I'm downside up: Not a boring book about PDA

https://bcch.andornot.com/en/permalink/catalog124651

Thompson, Harry, Jata-Hall, Danielle, Sherwin, Mollie [illustrator]. London, UK and Philadelphia, PA: Jessica Kingsley Publishers , 2022.

Material Type: Booklet

Call Number: JUNIIOR FM 272 THO 2022

Availability: 1 copy, 1 available

Welcome to my downside up life! My name is Ariana and I have something called Pathological Demand Avoidance which is a form of autism. Most people just think I'm naughty and misbehaved, but I want to show you why that's not true by telling you about what my life is like from inside my head. Come jo…

Author: Thompson, Harry; Jata-Hall, Danielle; Sherwin, Mollie [illustrator]

Place of Publication: London, UK and Philadelphia, PA

Publisher: Jessica Kingsley Publishers

Publication Date: 2022

Physical Description: Softcover; illustrated; 64 pages

Subject: Autism Spectrum Disorder (includes Asperger Syndrome)

Abstract: Welcome to my downside up life! My name is Ariana and I have something called Pathological Demand Avoidance which is a form of autism. Most people just think I'm naughty and misbehaved, but I want to show you why that's not true by telling you about what my life is like from inside my head. Come join me in understanding why I feel like I have to be in control all the time and why it's just not as simple as doing as I am told.; Recommended for children ages 7-12.

ISBN: 978-1839971174

Material Type: Booklet

Call Number: JUNIIOR FM 272 THO 2022

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BC Children's and Women's Family Library

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