Editor

Allan, Kathryn

Al-Ayad, Djibril

Publisher

Futurefire.net

Publication Date

2015

Physical Description

233 pages

Subject

Physical Disability. Physically Challenged

Mental Health/Illness

Abstract

"The fifteen authors and nine artists in this volume bring us beautiful, speculative stories of disability and mental illness in the future. Teeming with space pirates, battle robots, interstellar travel and genetically engineered creatures, every story and image is a quality, crafted work of science fiction in its own right, as thrilling and fascinating as it is worthy and important. These are stories about people with disabilities in all of their complexity and diversity, that scream with passion and intensity. These are stories that refuse to go gently."

ISBN

9780957397545

Language

English

Material Type

Book

Call Number

YOUTH GN 800 ALL 2015

Copies

Author

Burcaw, Shane

Carr, Matt

Place of Publication

New York, NY

Publisher

Roaring Brook Press

Publication Date

2017

Physical Description

40 pages

Subject

Physical Disabilty. Physically Challenged

Abstract

Shane Burcaw was born with a rare disease called spinal muscular atrophy, which hinders his muscles? growth. As a result, his body hasn?t grown bigger and stronger as he?s gotten older―it?s gotten smaller and weaker instead. This hasn?t stopped him from doing the things he enjoys (like eating pizza and playing sports and video games) with the people he loves, but it does mean that he routinely relies on his friends and family for help with everything from brushing his teeth to rolling over in bed.

ISBN

978-1626727717

Language

English

Call Number

JUNIOR GN 800 BUR 2017

Author

Segal, Julia

Place of Publication

Philadelphia, PA

Publisher

Jessica Kingsley Publishers

Publication Date

2017

Physical Description

Softcover ; 312 p.

Subject

Chronic Illness

Disabilities

Relationships

Abstract

This impressively honest book explores the effects a challenging disability or illness can have on the mind and personal relationships, and how friends, family and professionals can help.

Illness or disability can isolate people by creating vast differences in their experiences where previously there were none. Friends and family can find themselves saying the wrong thing or awkwardly avoiding topics as a result. This book takes a candid look at how discomfort caused by an illness can strain a relationship between partners, families and professionals, as well as how understanding feelings of guilt or shame can transform a situation or relationship.

The insights and advice offered in this book can help children and adolescents overcome anxiousness caused by a parent's condition, improve communication between partners and family members, and increase professionals' awareness of how a client feels about their situation.

ISBN

9781785923326

Language

English

Material Type

Book

Call Number

EF 800 SEG 2017

Copies

URL

https://www.canada.ca/en/public-health/services/infectious-diseases/sexual-health-sexually-transmitted-infections/reports-publications/questions-answers-youth.html

Corporate Author

Public Health Agency of Canada

Place of Publication

[Ottawa, ON]

Publisher

Public Health Agency of Canada

Publication Date

2013

Physical Description

Softcover: 22 p.

Subject

Sexuality

Physical Disability. Physically Challenged

Sexual Health

Abstract

This document provides evidence-informed answers to the most commonly asked questions regarding sexual health education for youth with physical disabilities. The goal of this resource is to assist in the creation of supportive and healthy learning environments for youth with physical disabilities and to support the provision of comprehensive sexual health education that is inclusive of their needs.

Notes

French version also available: Questions and réponses: éducation en matière de santé sexuelle à l'intention des jeunes ayant une incapacité physique

ISBN

9781100544823

Language

English

Material Type

Book

Call Number

GA 110 PUB 2013

Copies

Author

Sileo, Frank J.

Potter, Carol S.

Place of Publication

Washington, DC

Publisher

American Psychological Association

Publication Date

2021

Physical Description

Softcover; 419 pages

Subject

Coping with Chronic Illness-Children

Coping with Chronic Illness in the Family

Coping with Chronic Illness-Young Adult

Abstract

Written by leading mental health professionals, this warm and accessible parenting book for children with chronic illnesses offers clear, practical guidance for all aspects of the journey. It is recommended by professionals at the American Diabetes Association, Invisible Disabilities Association, the Crohn's Colitis Foundation, and other expert national and regional sources.

For all its joys, parenting is a complex job, and when your child has a chronic illness, the stress can feel overwhelming. When your child is diagnosed, you begin a parenting journey filled with strong emotions, difficult choices, confusing words, and interactions with numerous professionals and specialists.

You're focused on ensuring your child gets the best possible treatments for their symptoms, so it's easy to overlook or dismiss the impact the illness can have on your relationships and emotions. This book places your psychological well-being front and center, so you can be the best caregiver possible for your child.

Along with suggestions for making laughter and mindfulness part of your daily self-care routine, it offers guidance for choosing the right therapist for your family, should extra support be needed. Every family's journey with chronic illness is unique, but you don't have to go it alone.

ISBN

9781433833816

Language

English

Material Type

Book

Call Number

EF 850.5 SIL 2021

Copies

Author

Selak, Joy H.

Overman, Steven S.

Edition

2nd Ed

Place of Publication

New York

Publisher

Demos Health

Physical Description

Softcover ; xxviii, 166 p.

Subject

Chronic Illness

Abstract

"You DonÌt Look Sick chronicles one personÌs true-life story of illness and her physicians compassionate commentary as they journey through the four stages of chronic illnessÛGetting Sick, Being Sick, Grief and Acceptance and Living Well. The authors address such practical aspects as hiring a doctor, managing chronic pain, coping with grief and loss of function, winning battles with health and disability insurers, countering the social bias against the chronically ill, and recognizing the limitations of chronic illness care and charting a path for change and more. This warmhearted resource helps you focus on building a meaningful life as opposed to a life of frustration and fear. This book is thoroughly revised and updated based upon feedback from readers of the first edition. The authors have added a new section on Grief and Acceptance, address the passage of the Affordable Health Care Act and Dr. Overman has added practical travel tips that bring organization and focus to each phase of the journey. Designed for people at all stages of the chronic illness journey, this book is also illuminating for caregivers and loved ones"--from the Publisher

ISBN

9781936303427

Language

English

Material Type

Book

Call Number

EF 800 SEL 2013

Copies

Author

Bernhard, Toni

Place of Publication

Somerville, MA

Publisher

Wisdom Publications

Publication Date

2015

Physical Description

337 pages

Subject

Coping with Chronic Illness

Chronic Illness

Chronic Pain

Abstract

Comfort, understanding, and advice for those who are suffering?and those who care for them.

Chronic illness creates many challenges, from career crises and relationship issues to struggles with self-blame, personal identity, and isolation. Beloved author Toni Bernhard addresses these challenges and many more, using practical examples to illustrate how mindfulness, equanimity, and compassion can help readers make peace with a life turned upside down.

In her characteristic conversational style, Bernhard shows how to cope and make the most of life despite the challenges of chronic illness. Benefit from:

? Mindfulness exercises to mitigate physical and emotional pain

? Concrete advice for negotiating the everyday hurdles of medical appointments, household chores, and social obligations

? Tools for navigating the strains illness can place on relationships

Several chapters are directed toward family and friends of the chronically ill, helping them to understand what their loved one is going through and how they can help.

Humorous and empathetic, Bernhard shares her own struggles and setbacks with unflinching honesty, offering invaluable support in the search to find peace and well-being.

ISBN

9781614292487

Language

English

Material Type

Book

Call Number

EF 850 BER 2015

Copies

URL

https://ebookcentral.proquest.com/lib/cwhbc/detail.action?docID=5820414

Author

Zoffness, Rachel

Krane, Elliot J.

Publisher

New Harbinger Publications

Publication Date

2019

Physical Description

eBook (176 pages)

Subject

Coping with Pain

Chronic Pain

Coping with Chronic Illness Young Adult

Abstract

This workbook blends cognitive behavioral therapy (CBT) and mindfulness-based stress reduction (MBSR). You will learn how pain affects both your mind and body, how negative emotions can make pain worse, and strategies to help you turn the volume down on your pain, so you can go back to enjoying activities that you love. You'll also learn mindfulness and relaxation exercises, including belly breathing and body scan to help manage pain in the moment. The exercises and strategies in this book are rooted in research, fun to learn, and easy to practice. For ages 12+.

ISBN

9781684033539

Language

English

Material Type

Ebook

Call Number

YOUTH FM 850 ZOF 2019e

Author

Zoffness, Rachel

Krane, Elliot J.

Publisher

New Harbinger Publications

Publication Date

2019

Physical Description

155 pages

Subject

Coping with Pain

Chronic Pain

Coping with Chronic Illness Young Adult

Abstract

This workbook blends cognitive behavioral therapy (CBT) and mindfulness-based stress reduction (MBSR). You will learn how pain affects both your mind and body, how negative emotions can make pain worse, and strategies to help you turn the volume down on your pain, so you can go back to enjoying activities that you love. You'll also learn mindfulness and relaxation exercises, including belly breathing and body scan to help manage pain in the moment. The exercises and strategies in this book are rooted in research, fun to learn, and easy to practice. For ages 12+.

ISBN

9781684033522

Language

English

Material Type

Book

Call Number

YOUTH FM 850 ZOF 2019

Copies

Author

Carter, Bryan D.

Kronenberger, William G.

Scott, Eric L.

Brady, Christine E.

Place of Publication

Oxford, UK

Publisher

Oxford University Press

Publication Date

2020

Physical Description

Softcover; 173 pages

Series

Programs that work

Subject

Coping with Chronic Illness Young Adult

Coping with Chronic Illness

Coping with Chronic Illness-Children

Abstract

Youth with chronic illnesses face challenges that may prove disruptive to physical, psychological, and social development. Based on extensive research and clinical expertise, Children's Health and Illness Recovery Program (CHIRP) is an interdisciplinary cognitive behavioral and family systems-based treatment program designed to maximize the independent functioning of teens with chronic illness.

This Clinician Guide offers a detailed outline for implementing this manualized intervention and provides clear guidance as to the philosophy, pragmatics, and art of working with challenging pediatric conditions. Designed to accompany the CHIRP Teen and Family Workbook, this book addresses specific assessment measures and tools needed to establish a collaborative treatment team approach that incorporates the skills of the CHIRP clinician, primary and specialty care providers, and roles of other healthcare (physical therapists, occupational therapists, etc.) and educational professionals critical to the successful management and treatment of these youth.

ISBN

9780190070267

Language

English

Material Type

Book

Call Number

EF 850.6 CAR 2020b

Copies

Author

Renfrew, Ruth

deLoache, Shawn

Editor

Medikidz USA Inc.

Place of Publication

New York, NY

Publisher

Jumo

Publication Date

2018

Physical Description

Softcover; 16 p.

Subject

Chronic Illness

Abstract

Comic book featuring Medikidz, superhero experts on health and illness. Explains how chronic illness can affect individuals and their families.

Language

English

Material Type

Book

Call Number

JUNIOR EF 800 REN 2018

Copies

Author

Carter, Bryan D.

Kronenberger, William G.

Scott, Eric L.

Place of Publication

Oxford, UK

Publisher

Oxford University Press

Publication Date

2020

Physical Description

Softcover; 113 pages

Series

Programs that work

Subject

Coping with Chronic Illness Young Adult

Coping with Chronic Illness

Coping with Chronic Illness-Children

Abstract

Children and adolescents with chronic illnesses, particularly those accompanied by debilitating, painful, and/or fatiguing symptoms, face challenges that may prove disruptive to physical, psychological, and social development. Based on extensive research and clinical expertise, Children's Health and Illness Recovery Program (CHIRP) is an effective treatment program designed to build and maintain independence in young people with chronic illness.

This Teen and Family Workbook provides proven treatment activities designed to combat the additional stress faced by youth coping with long-term health problems. These tasks target key areas for improvement in physical functioning, school functioning, and personal functioning and support the creation of new tools for managing the impact of illness, such as stress management, coping and relaxation techniques, and communication skills. In-session and take-home activities outlined in this workbook are meant to accompany the companion CHIRP Clinician Guide. With the use of this workbook and supported by a network of clinicians, healthcare specialists, and school professionals, adolescents and their families can return to a better quality of life.

ISBN

9780190070472

Language

English

Material Type

Book

Call Number

EF 850.6 CAR 2020

Copies

Author

Shang, Melissa

Shang, Eva

Publication Date

2016

Physical Description

Softcover ; 107 p.

Subject

Physical Disability. Physically Challenged

Wheelchairs

School

Fiction

Abstract

Hello, sixth grade! Mia Lee is a stop-motion filmmaker with a wheelchair and a lot of sass, trying to survive her new middle school. Which doesn?t seem so easy when she?s running for Video Production Club President against certified Middle School Mean Girl, Angela Vanover. Things get weird when Angela starts being nice to her -- well, when other people are around, at least. But when Mia?s campaign posters for VP Club President mysteriously vanish -- no tape, no poster, no nothin? -- the presidential race gets real. With the help of her brain files, an awesome aide with keys to the whole school, and her friends, Rory, Daniela, and Caroline, Mia finds herself on a mission to prove Angela isn?t just an ordinary middle school mean girl, she?s a thief!

ISBN

9780692746905

Language

English

Material Type

Book

Call Number

ELEM GN 800 SHA 2016

Copies

Author

Bendall, Lisa

Place of Publication

[Toronto, ON]

Publisher

Twelve Fingers Press

Publication Date

2015

Subject

Physical Disability-Coping

Family

Abstract

This collection of essays, most of them previously published in magazines and newspapers, touches on the joys and challenges of family life. Author Lisa Bendall is married to Ian, who is intelligent, funny and kind... and happens to be quadriplegic. Together they are raising a spectacular daughter. They hold down full-time jobs, share a mortgage, have a dog--just like many other folks. You are invited to share this family's journey, from major milestones to fleeting yet magical moments.

ISBN

9781511752596

Language

English

Material Type

Book

Call Number

GN 800 BEN 2015

Copies

Author

Donoghue, Paul J.

Siegel, Mary E.

Place of Publication

New York, NY

Publisher

W.W. Norton & Company, Inc.

Publication Date

2000

Physical Description

Softcover, 304 pages

Subject

Lifestyle changes with chronic illness

Abstract

Unlike a leg in a cast, invisible chronic illness (ICI) has no observable symptoms. Consequently, people who suffer from chronic fatigue, chronic pain, and many other miseries often endure not only the ailment but dismissive and negative reactions from others.

Since its first publication, Sick and Tired of Feeling Sick and Tired has offered hope and coping strategies to thousands of people who suffer from ICI. Paul Donoghue and Mary Siegel teach their readers how to rethink how they themselves view their illness and how to communicate with loved ones and doctors in a way that meets their needs. The authors' understanding makes readers feel they have been heard for the first time.

For this edition, the authors include a new introduction drawing on the experiences of the many people who have responded to the book and to their lectures and television appearances. They expand the definition of ICI to include other ailments such as depression, addiction, and obsessive-compulsive disorders. They bring the resource material, including Web sites, up to the present, and they offer fresh insights on four topics that often emerge: guilt, how ICI affects the family, meaningfulness, and defining acceptance.

Notes

Recommended by CCDP

ISBN

9780393320657

Language

English

Material Type

Book

Call Number

EF 820 DON 2000

Copies

Author

McClintock Greenberg, Tamara

Place of Publication

Springville, UT

Publisher

Plain Sight Publishing

Publication Date

2012

Physical Description

Softcover ; xiv, 157 p.

Subject

Chronic Illness

Abstract

"Dr. Tamara Greenberg offers hope and practical advice to those impacted by a loved one's illness with this new book., "When Someone You Love Has a Chronic Illness: Hope and Help for Those Providing Support. Inside, Dr. Greenberg provides easy-to-understand explanations for complicated feelings and behaviors and offers pragmatic strategies for coping effectively and serving your loved one in this time of need.

"Learn how to talk to someone who is ill, what not to do, how to address your loved ones who aren't taking care of themselves, how to help someone in physical pain, and more.

"Above all, Dr. Greenberg delivers important tools for managing the normal anxiety we all feel when someone we love is ill." --From back cover

ISBN

9781599559391

Language

English

Material Type

Book

Call Number

EF 800 GRE 2012

Copies

Author

Connell, Wayne

Connell, Sherri

Place of Publication

Parker, Colorado

Publisher

Invisible Disabilities Association

Publication Date

2014

Physical Description

Softcover ; 85 p.

Subject

Chronic Illness

Chronic Pain

Abstract

"Do your loved ones have a hard time understanding your chronic illness or pain, because to them you LOOK fine? But You LOOK Good is a book that gives those living with chronic illness and pain a voice about how they feel, what they need and how others can be an encouragement to them. It is a convenient, informative way to educate loved ones about what people living with ongoing illness and pain struggle with, fight for and need from their friends and family. It is easy to read, gives practical ideas on how loved ones can be supportive and is not too long for readers to lose interest!"--from publisher.

ISBN

9780692258453

Language

English

Material Type

Book

Call Number

FM 830 CON 2014

Copies

Author

Bula, Ania

Place of Publication

Durham, North Carolina

Publisher

Pitchstone Publishing

Publication Date

2016

Physical Description

Softcover ; 224 p.

Subject

Chronic Illness

Abstract

"Drawing on her own deeply personal experiences, Ania Bula explores what it is like to live with unseen chronic disabilities. She paints a vibrant picture of what it is like to be diagnosed with two life-long debilitating conditions as a young adult and relates the challenges and frustrations of dealing with predatory alternative medicine practitioners, arrogant doctors, indifferent bureaucracies, and well-meaning friends and family who always seem to say either the wrong thing-or nothing at all. As she discovered, suddenly everyone's aunt is a health expert and everyone's fad diet a cure. Making matters worse, her physical torment quickly translated into mental stresses. Relationships became strained, while others, including all-important romantic ones, never had a chance to start at all. Wading through a constant stream of ignorance and lies, in a desperate attempt to find peace, to stop the pain, and to return to a more normal life, she submits to being stuffed with powders and magic potions, poked and prodded, and even "faith healed." With honesty and humor, she shares her journey of pain, suffering, and, ultimately, coping, both to help others gain some understanding about what it is like to live with chronic illness-and to help those who might similarly suffer feel less alone, so that they too might start living again.

"Drawing on the author's personal experiences with her own physical and mental health struggles, the book explores what it is like to live with chronic disabilities as a young adult"-- Provided by publisher

Notes

Recommended by CCDP

ISBN

9781634310734

Language

English

Material Type

Book

Call Number

EF 800 BUL 2016

Copies

Author

Fennell, Patricia A.

Place of Publication

Latham, New York

Publisher

Albany Health Management Publishing

Publication Date

2012

Physical Description

Softcover ; 253 p.

Subject

Chronic Illness

Abstract

This book "brings clarity and order to what feels like an unmanageable and isolating experience. It shows both those who are ill and those who care for them how to live a full and meaningful life despite undeniable difficulties. Using her extensive experience with chronic illness patients, Patricia Fennell has created an original, comprehensive, research-validated approach that considers not only the physical aspects of chronic illness, but the psychological, social, and economic aspects as well"--from the Publisher

ISBN

9780979640711

Language

English

Material Type

Book

Call Number

EF 800 FEN 2012

Copies

Author

Senisi, Ellen B.

Edition

1st ed.

Place of Publication

[Bethesda, MD]

Publisher

Woodbine House

Publication Date

2002

Physical Description

Hardcover, col. ill.; (unpaged).

Subject

Spina Bifida. Neural Tube Defects

Friendship

Physical Disability. Physically Challenged

Picture Books

Abstract

In a school assignment, seven-year-old Moses, who has spina bifida and uses a wheelchair, reflects that his neighbor's disabled iguana resembles him because they both have figured out how to get where they want to be in different ways than those around them.

ISBN

1890627356

Language

English

Material Type

Book

Call Number

JUNIOR FM 505 SEN 2002

Copies