Author

Sileo, Frank J.

Potter, Carol S.

Place of Publication

Washington, DC

Publisher

American Psychological Association

Publication Date

2021

Physical Description

Softcover; 419 pages

Subject

Coping with Chronic Illness-Children

Coping with Chronic Illness in the Family

Coping with Chronic Illness-Young Adult

Abstract

Written by leading mental health professionals, this warm and accessible parenting book for children with chronic illnesses offers clear, practical guidance for all aspects of the journey. It is recommended by professionals at the American Diabetes Association, Invisible Disabilities Association, the Crohn's Colitis Foundation, and other expert national and regional sources.

For all its joys, parenting is a complex job, and when your child has a chronic illness, the stress can feel overwhelming. When your child is diagnosed, you begin a parenting journey filled with strong emotions, difficult choices, confusing words, and interactions with numerous professionals and specialists.

You're focused on ensuring your child gets the best possible treatments for their symptoms, so it's easy to overlook or dismiss the impact the illness can have on your relationships and emotions. This book places your psychological well-being front and center, so you can be the best caregiver possible for your child.

Along with suggestions for making laughter and mindfulness part of your daily self-care routine, it offers guidance for choosing the right therapist for your family, should extra support be needed. Every family's journey with chronic illness is unique, but you don't have to go it alone.

ISBN

9781433833816

Language

English

Material Type

Book

Call Number

EF 850.5 SIL 2021

Copies

Author

Carter, Bryan D.

Kronenberger, William G.

Scott, Eric L.

Brady, Christine E.

Place of Publication

Oxford, UK

Publisher

Oxford University Press

Publication Date

2020

Physical Description

Softcover; 173 pages

Series

Programs that work

Subject

Coping with Chronic Illness Young Adult

Coping with Chronic Illness

Coping with Chronic Illness-Children

Abstract

Youth with chronic illnesses face challenges that may prove disruptive to physical, psychological, and social development. Based on extensive research and clinical expertise, Children's Health and Illness Recovery Program (CHIRP) is an interdisciplinary cognitive behavioral and family systems-based treatment program designed to maximize the independent functioning of teens with chronic illness.

This Clinician Guide offers a detailed outline for implementing this manualized intervention and provides clear guidance as to the philosophy, pragmatics, and art of working with challenging pediatric conditions. Designed to accompany the CHIRP Teen and Family Workbook, this book addresses specific assessment measures and tools needed to establish a collaborative treatment team approach that incorporates the skills of the CHIRP clinician, primary and specialty care providers, and roles of other healthcare (physical therapists, occupational therapists, etc.) and educational professionals critical to the successful management and treatment of these youth.

ISBN

9780190070267

Language

English

Material Type

Book

Call Number

EF 850.6 CAR 2020b

Copies

Author

Carter, Bryan D.

Kronenberger, William G.

Scott, Eric L.

Place of Publication

Oxford, UK

Publisher

Oxford University Press

Publication Date

2020

Physical Description

Softcover; 113 pages

Series

Programs that work

Subject

Coping with Chronic Illness Young Adult

Coping with Chronic Illness

Coping with Chronic Illness-Children

Abstract

Children and adolescents with chronic illnesses, particularly those accompanied by debilitating, painful, and/or fatiguing symptoms, face challenges that may prove disruptive to physical, psychological, and social development. Based on extensive research and clinical expertise, Children's Health and Illness Recovery Program (CHIRP) is an effective treatment program designed to build and maintain independence in young people with chronic illness.

This Teen and Family Workbook provides proven treatment activities designed to combat the additional stress faced by youth coping with long-term health problems. These tasks target key areas for improvement in physical functioning, school functioning, and personal functioning and support the creation of new tools for managing the impact of illness, such as stress management, coping and relaxation techniques, and communication skills. In-session and take-home activities outlined in this workbook are meant to accompany the companion CHIRP Clinician Guide. With the use of this workbook and supported by a network of clinicians, healthcare specialists, and school professionals, adolescents and their families can return to a better quality of life.

ISBN

9780190070472

Language

English

Material Type

Book

Call Number

EF 850.6 CAR 2020

Copies

Author

Olsher, Sara

Rogers, Jenni

Place of Publication

Happy Valley, OR

Publisher

Mighty and Bright

Publication Date

2023

Physical Description

Softcover; 39 pages

Subject

Coping with Chronic Illness in the Family

Abstract

Join Mia and Stewart as they learn how bodies work, why some bodies don't always feel good, and what to do when someone they love has an illness that won't go away.

ISBN

9798986776538

Language

English

Material Type

Book

Call Number

JUNIOR EF 860 OLS 2023

Copies

Author

deLoache, Shawn

Maxwell, Kimberley

Editor

Medikidz USA Inc.

Place of Publication

New York, NY

Publisher

Jumo

Publication Date

2020

Physical Description

Softcover; 11 p.

Subject

Chronic Kidney Failure

Abstract

Comic book featuring Medikidz, superhero experts on health and illness. Explains what happens inside the body when a person has chronic kidney disease. Also explains how treatments work, and why eating healthy food is important.

Ages 7-12

ISBN

9781644551561

Language

English

Material Type

Book

Call Number

JUNIOR FP 440 DEL 2020

Copies

URL

https://ebookcentral.proquest.com/lib/cwhbc/detail.action?docID=6578034

Author

Schrooten, A.F.

Markovitz, B.P.

Place of Publication

Switzerland

Publisher

Springer International Publishing AG

Publication Date

2021

Subject

Coping with Chronic Illness-Children

Abstract

This book tells true and poignant stories from both sides of the physician-patient/parent relationship and provides a unique glimpse into how parents and physicians think, feel, and interact. The stories are grouped under four sections: Hope, Compassion, Communication, and Trust.

Each section includes stories contributed by parents from all across the United States and by pediatricians practicing at many of the best children's hospitals throughout the country. The parents tell of interactions with physicians that had a significant impact on them and their child and offer context and insight that promote empathy and reflection. The physicians tell of interactions with patients and families that served as learning moments in their career and promote the humanization of medicine and show there is more to a physician beyond their scientific knowledge and white coat.

The stories are edited by Barry P. Markovitz - a pediatrician specializing in critical care medicine who has been in practice for more than 20 years and by Ann F. Schrooten - the parent of a child born with a chronic complex condition who has more than 15 years of experience interacting with pediatric subspecialists and other healthcare professionals who cared for her son. The editors have written commentaries to the stories to provide an independent perspective on the events and messages conveyed and to encourage reflection, inquiry, and discussion.

In addition to being a valuable resource for pediatricians, pediatric subspecialists, nurses and other healthcare professionals, the book will also appeal to families of children living with complex medical conditions because it shares physician encounters and behaviors many have experienced in the care of their own children. By giving a voice to both parents and physicians, the goal is to create a bridge to better understanding that can improve communication, minimize conflicts, and foster trust and compassion among physicians, patients, and families.

ISBN

9783030680206

Language

English

Material Type

Ebook

Call Number

EF 850.5 SCH 2021e

Author

Schrooten, A.F.

Markovitz, B.P.

Place of Publication

Switzerland

Publisher

Springer International Publishing AG

Publication Date

2021

Physical Description

251 pages

Subject

Coping with Chronic Illness-Children

Abstract

This book tells true and poignant stories from both sides of the physician-patient/parent relationship and provides a unique glimpse into how parents and physicians think, feel, and interact. The stories are grouped under four sections: Hope, Compassion, Communication, and Trust.

Each section includes stories contributed by parents from all across the United States and by pediatricians practicing at many of the best children's hospitals throughout the country. The parents tell of interactions with physicians that had a significant impact on them and their child and offer context and insight that promote empathy and reflection. The physicians tell of interactions with patients and families that served as learning moments in their career and promote the humanization of medicine and show there is more to a physician beyond their scientific knowledge and white coat.

The stories are edited by Barry P. Markovitz - a pediatrician specializing in critical care medicine who has been in practice for more than 20 years and by Ann F. Schrooten - the parent of a child born with a chronic complex condition who has more than 15 years of experience interacting with pediatric subspecialists and other healthcare professionals who cared for her son. The editors have written commentaries to the stories to provide an independent perspective on the events and messages conveyed and to encourage reflection, inquiry, and discussion.

In addition to being a valuable resource for pediatricians, pediatric subspecialists, nurses and other healthcare professionals, the book will also appeal to families of children living with complex medical conditions because it shares physician encounters and behaviors many have experienced in the care of their own children. By giving a voice to both parents and physicians, the goal is to create a bridge to better understanding that can improve communication, minimize conflicts, and foster trust and compassion among physicians, patients, and families.

ISBN

9783030680206

Language

English

Material Type

Book

Call Number

EF 850.5 SCH 2021b

Copies

Author

Allen, Vanessa Green

Rebar, Sarah [ill.]

Place of Publication

Emeryville, CA

Publisher

Rockridge Press

Publication Date

2022

Physical Description

Softcover : 108 pages

Subject

Mental Health

Emotional Health

Abstract

Sometimes, emotions like anger or jealousy or excitement can seem too big to keep inside. Me and My Feelings is here to teach kids that it?s okay to have big feelings! They will learn how to calm down those strong emotions so they don?t feel overwhelmed and can continue to take on the world.

This book gives kids the skills to stay in control - by breathing deeply, saying positive things to themselves, talking about their feelings instead of keeping them inside, and more. Help young girls and boys learn to deal with all kinds of feelings, including the hard ones like sadness, anxiety, or even fear.

Inside Me and My Feelings, you?ll find:

- TANGIBLE IDEAS THAT HELP: This book is packed with informative ways to help kids handle their feelings. They can use the exercises to see which tips, tricks, and habits work best for them.

- QUIZZES & ACTIVITIES: Kids can get to know themselves with quizzes like 'Do My Emotions Rule Me?,' along with other fun exercises and activities created especially for kids ages 7-10.

- EMPATHY FOR THE EMOTIONS OF OTHERS: When kids understand their own emotions and feelings, they can also empathize with other people?s feelings - like their family and friends.

With Me and My Feelings, the next time big feelings get too big - kids will know just what to do!

Notes

For ages 7 to 10

ISBN

9781641524964

Language

English

Material Type

Book

Call Number

JUNIOR GK 720 ALL 2019

Copies

Author

Nimmo, Stephanie

Place of Publication

London, UK

Publisher

Jessica Kingsley Publishers

Publication Date

2024

Physical Description

Softcover; 272 pages

Subject

Coping with Chronic Illness-Children

Caregivers-Coping

Caregivers for a Dying Loved One

Abstract

Every parent wants the same thing: for their child to enjoy a long and fulfilling life. But what happens when things don't go according to plan? What happens when parents have to become advocates for their child's healthcare needs? Who decides what is in a child's 'best interests'?

Stephanie Nimmo faced these questions first-hand when her daughter, Daisy, was diagnosed with a life-limiting condition as a baby. Seen through the lens of Stephanie's own experiences, this sensitive book delves into the complex world of medical ethics and pediatric palliative care. From recognizing tipping points to the importance of building relationships with palliative care teams well before crisis, this book explores how medical professionals can better support families throughout their child's care.

Interviews with clinicians and snapshots from the lives of patients' families provide insight into the realities of life on both sides of the hospital bed. Compassionate explanations of the conflicting pressures in the hospital system foster understanding and help medical professionals and families work together.

ISBN

5727227010272

Language

English

Material Type

Book

Call Number

EF 850.5 NIM 2024

Copies

URL

https://ebookcentral.proquest.com/lib/cwhbc/detail.action?docID=6176683

Author

Lavin, Robert A.

Clayton, Sara

Zilliox, Lindsay

Publisher

Oxford Univerity Press

Publication Date

2020

Series

Brain and Life Books

Subject

Chronic Pain

Abstract

Accessible, comprehensive, and up-to-date information about the challenges patients, family, and caregivers face when confronted by chronic pain. You will learn how to take control of your chronic pain using a variety of tools, like behavioral, exercise and nutritional approaches, medications, alternative treatments (yoga and tai chi), and injections or surgery.

ISBN

9780190619701

Language

English

Material Type

Ebook

Call Number

FM 830 LAV 2020

URL

http://www.phsa.ca/our-services-site/Documents/Partnership%20Guide%20Susan%20Poitras%20%28c%29%20July%202020.pdf

Corporate Author

Ethics Department and Patient Partners

Place of Publication

Vancouver, BC

Publisher

BC Children's Hospital & BC Women's Hospital + Health Centre

Publication Date

2020

Physical Description

21 pages

Subject

Pain Control

Abstract

This resource from BC Children?s Hospital can support families to explore their perspectives together and incorporate ways to foster the appropriate inclusion of children in healthcare decisions.

The Partnership Guide was developed to improve the guidance, support and participation of children aged 7-14 years with serious illness. This education resource provides up to date research knowledge in the area of child participation, pediatric decision making and child-focused activities and interventions to support children with this process.

Fostering the developing autonomy of children is an essential ethical principle and this guide supports the inclusion of children in decision-making to their ability and desire, to participate in decisions that impact their health.

Language

English

Material Type

Online

Booklet

URL

http://www.cw.bc.ca/library/pdf/pamphlets/BCCH-10-Tips-Chronic-Pain.pdf

Website Notes

Click on the link to view/print.

Alternate Title

10 tips for caregivers of a child or youth with chronic pain

Corporate Author

Complex Pain Service

Place of Publication

Vancouver, BC

Publisher

BC Children's Hospital

Publication Date

2022

Physical Description

PDF: 2 p.

Subject

Pain

Chronic Pain

Abstract

This handout provides helpful tips for parents or caregivers of a child or youth with chronic pain. Also includes a recommended resource list.

Language

English

Material Type

Pamphlet

Online

Author

Greene, Ross W.

Edition

6th ed,

Place of Publication

New York, NY

Publisher

Harper

Publication Date

2021

Physical Description

Paperback: 254 p.

Subject

Anger

Child Behaviour

Parenting

Abstract

Dr. Ross Greene, a distinguished clinician and pioneer in the treatment of kids with social, emotional, and behavioral challenges, has worked with thousands of explosive children, and he has good news: these kids aren?t attention-seeking, manipulative, or unmotivated, and their parents aren?t passive, permissive pushovers. Rather, explosive kids are lacking some crucial skills in the domains of flexibility/adaptability, frustration tolerance, and problem solving, and they require a different approach to parenting.

Throughout this compassionate, insightful, and practical book, Dr. Greene provides a new conceptual framework for understanding their difficulties, based on research in the neurosciences. He explains why traditional parenting and treatment often don?t work with these children, and he describes what to do instead. Instead of relying on rewarding and punishing, Dr. Greene?s Collaborative Problem Solving model promotes working with explosive children to solve the problems that precipitate explosive episodes, and teaching these kids the skills they lack.

ISBN

9780063092464

Language

English

Material Type

Book

Call Number

CD 900 GRE 2021a

Copies

Author

Toner, Jaqueline B.

McDonnell, Janet [ill.]

Place of Publication

Washington, DC

Publisher

Magination Press

Publication Date

2021

Physical Description

Softcover; 80 pages

Series

What-to-do guides for kids

Subject

Anxiety. Anxiety Disorders

Abstract

This book tackles children's feelings of anxiety around current events and what is portrayed in the news. Scary news is an inevitable part of life. This book can support and guide efforts to help scary news seem a bit more manageable for young people.

Whether from television news reports, the car radio, digital media, or adult discussions, children are often bombarded with information about the world around them. When the events being described include violence, extreme weather events, a disease outbreak, or discussions of more dispersed threats such as climate change, children may become frightened and overwhelmed. Parents and caregivers can be prepared to help them understand and process the messages around them by using this book.

This book provides a way to help children put scary events into perspective. And, if children start to worry or become anxious about things they've heard, there are ideas to help them calm down and cope. This book also helps children identify reporters' efforts to add excitement to the story which may also make threats seem more imminent, universal, and extreme.

Read and complete the activities with your child to help them to understand the news in context - who, what, where, when, how - as a means of introducing a sense of perspective.

ISBN

9781433836978

Language

English

Material Type

Book

Call Number

JUNIOR CD 420 TON 2021

Copies

Author

Lister, Elena

Schwartzman, Michael

Place of Publication

New York, NY

Publisher

Penguin Random house

Publication Date

2022

Physical Description

Hardcover; 275 pages

Subject

Death and Dying

Grief. Bereavement

Suicide

Death and dying-Children

Abstract

Just as death is inevitable, talking about death is an inevitable part of parenting. Drs. Lister and Schwartzman offer us the way to have conversations that are as much about life as they are about death; conversations that anyone who parents, teaches, or counsels children can have. Giving Hope is a must-have resource that expands our understanding of how to prepare for, initiate, and facilitate these personal and profound conversations. The approach is honest, practical, and compassionate, and will benefit a grieving child now and in the future. Giving Hope gives us tools to make our children's experiences positive and life-affirming.

ISBN

9780593419151

Language

English

Material Type

Book

Call Number

GV 100 LIS 2022

Copies

Author

Tejpar, Serena

Lalani, Anoosha [ill.]

Tejpar, Iman [ill.]

Place of Publication

Ann Arbor, MI

Publisher

Loving Healing Press

Publication Date

2022

Physical Description

Softcover; no pagination

Subject

Children's Hospitalization

Trauma Survivors

Abstract

Research has shown that building resilience in the face of adversity or challenges helps children and young people develop effective coping strategies and improve long-term outcomes across a spectrum of illnesses. You Are So Much More reminds children who have gone through or are going through an illness or injury, that they are indeed so much more. Trauma survivor and medical student Serena Tejpar shares a story of inspiration, reflection, and encouragement that can be read over and over again.

Includes a final word on common concerns and questions children may have while in hospital.

Notes

For ages 4 - 8

ISBN

9781615996322

Language

English

Material Type

Book

Call Number

JUNIOR GK 210 TEJ 2022

Copies

Author

Maxwell, Kimberley

deLoache, Shawn

Place of Publication

New York, NY

Publisher

Jumo Health, Inc.

Publication Date

2020

Physical Description

Softcover; 16 p.

Subject

Attention Deficit Disorder. Hyperactivity

Abstract

Comic book featuring Medikidz, superhero experts on health and illness. Explains how ADHD affects the body and behaviour.

ISBN

9781644550182

Language

English

Material Type

Book

Call Number

JUNIOR FM 265 MAX 2020

Copies

Author

Hogg, James

Satkunarasa, Shen

Westrop, Sara

Editor

Medikidz USA Inc.

Place of Publication

New York, NY

Publisher

Jumo

Publication Date

2020

Physical Description

Softcover; 16 p.

Subject

Ostomy

Abstract

Comic book featuring Medikidz, superhero experts on health and illness. Explains why people need a stoma, what stomas look like, and how they work.

Ages 7-12

ISBN

9781644553985

Language

English

Material Type

Book

Call Number

JUNIOR FK 235 HOG 2020

Copies

Author

Renfrew, Ruth

Editor

Medikidz USA Inc.

Place of Publication

New York, NY

Publisher

Jumo

Publication Date

2020

Physical Description

Softcover; 8 p.

Subject

Magnetic Resonance Imaging. MRI. Nuclear Magnetic Resonance. NMR

Abstract

Comic book featuring Medikidz, superhero experts on health and illness. Explains how an MRI works, and what to expect from the procedure.

Ages 7-12

ISBN

9781644553640

Language

English

Material Type

Book

Call Number

JUNIOR EC 580 REN 2020

Copies

Author

Al Haddad, Huda

Kipiniak, Chris

Editor

Medikidz USA Inc.

Place of Publication

New York, NY

Publisher

Jumo

Publication Date

2020

Physical Description

Softcover; 16 p.

Subject

Dystonia

Abstract

Comic book featuring Medikidz, superhero experts on health and illness. Explains why spasms happen, and treatments that can help.

Ages 7-12

ISBN

9781644554296

Language

English

Material Type

Book

Call Number

JUNIOR FM 485 ALH 2020

Copies