Author

Selak, Joy H.

Overman, Steven S.

Edition

2nd Ed

Place of Publication

New York

Publisher

Demos Health

Physical Description

Softcover ; xxviii, 166 p.

Subject

Chronic Illness

Abstract

"You DonÌt Look Sick chronicles one personÌs true-life story of illness and her physicians compassionate commentary as they journey through the four stages of chronic illnessÛGetting Sick, Being Sick, Grief and Acceptance and Living Well. The authors address such practical aspects as hiring a doctor, managing chronic pain, coping with grief and loss of function, winning battles with health and disability insurers, countering the social bias against the chronically ill, and recognizing the limitations of chronic illness care and charting a path for change and more. This warmhearted resource helps you focus on building a meaningful life as opposed to a life of frustration and fear. This book is thoroughly revised and updated based upon feedback from readers of the first edition. The authors have added a new section on Grief and Acceptance, address the passage of the Affordable Health Care Act and Dr. Overman has added practical travel tips that bring organization and focus to each phase of the journey. Designed for people at all stages of the chronic illness journey, this book is also illuminating for caregivers and loved ones"--from the Publisher

ISBN

9781936303427

Language

English

Material Type

Book

Call Number

EF 800 SEL 2013

Copies

Author

Bula, Ania

Place of Publication

Durham, North Carolina

Publisher

Pitchstone Publishing

Publication Date

2016

Physical Description

Softcover ; 224 p.

Subject

Chronic Illness

Abstract

"Drawing on her own deeply personal experiences, Ania Bula explores what it is like to live with unseen chronic disabilities. She paints a vibrant picture of what it is like to be diagnosed with two life-long debilitating conditions as a young adult and relates the challenges and frustrations of dealing with predatory alternative medicine practitioners, arrogant doctors, indifferent bureaucracies, and well-meaning friends and family who always seem to say either the wrong thing-or nothing at all. As she discovered, suddenly everyone's aunt is a health expert and everyone's fad diet a cure. Making matters worse, her physical torment quickly translated into mental stresses. Relationships became strained, while others, including all-important romantic ones, never had a chance to start at all. Wading through a constant stream of ignorance and lies, in a desperate attempt to find peace, to stop the pain, and to return to a more normal life, she submits to being stuffed with powders and magic potions, poked and prodded, and even "faith healed." With honesty and humor, she shares her journey of pain, suffering, and, ultimately, coping, both to help others gain some understanding about what it is like to live with chronic illness-and to help those who might similarly suffer feel less alone, so that they too might start living again.

"Drawing on the author's personal experiences with her own physical and mental health struggles, the book explores what it is like to live with chronic disabilities as a young adult"-- Provided by publisher

Notes

Recommended by CCDP

ISBN

9781634310734

Language

English

Material Type

Book

Call Number

EF 800 BUL 2016

Copies

Author

Honore, Carl

Place of Publication

Toronto, ON

Publisher

Vintage Canada

Publication Date

2004

Physical Description

Softcover; 310 pages

Subject

Lifestyle changes with chronic illness

Abstract

These days, almost everyone complains about the hectic pace of their lives. We live in a world where speed rules and everyone is under pressure to go faster. But when speed is king, anyone or anything that gets in our way, that slows us down, becomes an enemy. Thanks to speed, we are living in the age of rage.

Carl Honore has discovered a movement that is quickly working its way into the mainstream. Groups of people are developing a recipe for living better in a fast-paced, modern environment by striving for a new balance between fast and slow. In an entertaining and hands-on investigation of this new movement, Honore takes us from a Tantric sex workshop in a trendy neighbourhood in London, England to Bra, Italy, the home of the Slow Food, Slow Cities and Slow Sex movements. He examines how we can continue to live productive lives by embracing the tenets of the slow movement.

ISBN

9780676975727

Language

English

Material Type

Book

Call Number

EF 820 HON 2004

Copies

Author

Renfrew, Ruth

deLoache, Shawn

Editor

Medikidz USA Inc.

Place of Publication

New York, NY

Publisher

Jumo

Publication Date

2018

Physical Description

Softcover; 16 p.

Subject

Chronic Illness

Abstract

Comic book featuring Medikidz, superhero experts on health and illness. Explains how chronic illness can affect individuals and their families.

Language

English

Material Type

Book

Call Number

JUNIOR EF 800 REN 2018

Copies

Author

Bernhard, Toni

Place of Publication

Somerville, MA

Publisher

Wisdom Publications

Publication Date

2015

Physical Description

337 pages

Subject

Coping with Chronic Illness

Chronic Illness

Chronic Pain

Abstract

Comfort, understanding, and advice for those who are suffering?and those who care for them.

Chronic illness creates many challenges, from career crises and relationship issues to struggles with self-blame, personal identity, and isolation. Beloved author Toni Bernhard addresses these challenges and many more, using practical examples to illustrate how mindfulness, equanimity, and compassion can help readers make peace with a life turned upside down.

In her characteristic conversational style, Bernhard shows how to cope and make the most of life despite the challenges of chronic illness. Benefit from:

? Mindfulness exercises to mitigate physical and emotional pain

? Concrete advice for negotiating the everyday hurdles of medical appointments, household chores, and social obligations

? Tools for navigating the strains illness can place on relationships

Several chapters are directed toward family and friends of the chronically ill, helping them to understand what their loved one is going through and how they can help.

Humorous and empathetic, Bernhard shares her own struggles and setbacks with unflinching honesty, offering invaluable support in the search to find peace and well-being.

ISBN

9781614292487

Language

English

Material Type

Book

Call Number

EF 850 BER 2015

Copies

Author

Kaufman, Miriam

Edition

3rd ed

Place of Publication

[Toronto, ON]

Publisher

Firefly Books Ltd

Publication Date

2012

Physical Description

Softcover: 309 p.

Subject

Coping with Chronic Illness

Young Adults

Physical Disability-Coping

Physical Disability. Physically Challenged

Relationships

Abstract

In the 3rd edition, Dr. Miriam Kaufman addresses important topics for teens who are living with chronic conditions or disabilities. The topics include: Anemia, Cancer, Cerebral Palsy, Crohn's Disease, Deafness, Diabetes, Head Injury, Heart Disease, Hemophilia, HIV, Lupus, Muscular Dystrophy, Sickle Cell Anemia, Seizures, Spinal Bifida, Spinal Cord Injuries, and Thyroid Disease.

ISBN

9781770850996

Language

English

Material Type

Book

Call Number

YOUTH EF 850.6 KAU 2012

Copies

Author

Connell, Wayne

Connell, Sherri

Place of Publication

Parker, Colorado

Publisher

Invisible Disabilities Association

Publication Date

2014

Physical Description

Softcover ; 85 p.

Subject

Chronic Illness

Chronic Pain

Abstract

"Do your loved ones have a hard time understanding your chronic illness or pain, because to them you LOOK fine? But You LOOK Good is a book that gives those living with chronic illness and pain a voice about how they feel, what they need and how others can be an encouragement to them. It is a convenient, informative way to educate loved ones about what people living with ongoing illness and pain struggle with, fight for and need from their friends and family. It is easy to read, gives practical ideas on how loved ones can be supportive and is not too long for readers to lose interest!"--from publisher.

ISBN

9780692258453

Language

English

Material Type

Book

Call Number

FM 830 CON 2014

Copies

Author

Kivowitz, Barbara

Weisman, Roanne

Place of Publication

Petaluma, CA

Publisher

Roundtree Press

Publication Date

2013

Physical Description

Softcover; 192 pages

Subject

Chronic Illness

Abstract

For those who find themselves at the intersection of lifetime love and overwhelming obligation, the right path is often painful and difficult to find. When illness invades the couple relationship, partners ask themselves and each other some really hard questions: "What do I want to do for this person whom I have loved for many years?" "How much of my life do I give up to take care of my beloved?" "How do I sit by my beloved's side and watch her suffer?" While writing In Sickness as in Health, authors Barbara Kivowitz and Roanne Weisman learned through interviews with many couples, as well as with medical, spiritual, legal, rehabilitation and psychological experts, that couples find their own ways to deal with illnesses and catastrophic injuries.

ISBN

9781937359133

Language

English

Material Type

Book

Call Number

EF 800 KIV 2013

Copies

Author

Bernhard, Toni

Place of Publication

Somerville, MA

Publisher

Wisdom Publications

Publication Date

2018

Physical Description

Softcover ; xvii, 191 p.

Subject

Chronic Illness

Emotional Health

Mental Health

Abstract

"This life-affirming, instructive and thoroughly inspiring book is a must-read for anyone who is, or who might one day be, sick. And it can also be the perfect gift of guidance, encouragement, and uplifting inspiration to family, friends, and loved ones struggling with the many terrifying or disheartening life changes that come so close on the heels of a diagnosis of a chronic condition or even life-threatening illness." --Publisher

Notes

Recommended by CCDP

ISBN

9780861716265

Language

English

Material Type

Book

Call Number

EF 800 BER 2010

Copies

Author

Kabat-Zinn, Jon

Edition

Revised and updated edition

Publisher

Random House

Publication Date

2013

Physical Description

Softcover; 650 pages

Subject

Mindfulness

Chronic Illness

Anxiety

Abstract

Stress. It can sap our energy, undermine our health if we let it, even shorten our lives. It makes us more vulnerable to anxiety and depression, disconnection and disease. Based on Jon Kabat-Zinn's renowned mindfulness-based stress reduction program, this classic, groundbreaking work - which gave rise to a whole new field in medicine and psychology -

shows you how to use medically proven mind-body approaches derived from meditation and yoga to counteract stress, establish greater balance of body and mind, and stimulate well-being and healing. By engaging in these mindfulness practices and integrating them into your life from moment to moment and from day to day, you can learn to manage chronic pain, promote optimal healing, reduce anxiety and feelings of panic, and improve the overall quality of your life, relationships, and social networks. This second edition features results from recent studies on the science of mindfulness, a new Introduction, up-to-date statistics, and an extensive updated reading list. Full Catastrophe Living is a book for the young and the old, the well and the ill, and anyone trying to live a healthier and saner life in our fast-paced world.

ISBN

9780749958411

Language

English

Material Type

Book

Call Number

EG 225 KAB 2013

Copies

Author

Fennell, Patricia A.

Place of Publication

Latham, New York

Publisher

Albany Health Management Publishing

Publication Date

2012

Physical Description

Softcover ; 253 p.

Subject

Chronic Illness

Abstract

This book "brings clarity and order to what feels like an unmanageable and isolating experience. It shows both those who are ill and those who care for them how to live a full and meaningful life despite undeniable difficulties. Using her extensive experience with chronic illness patients, Patricia Fennell has created an original, comprehensive, research-validated approach that considers not only the physical aspects of chronic illness, but the psychological, social, and economic aspects as well"--from the Publisher

ISBN

9780979640711

Language

English

Material Type

Book

Call Number

EF 800 FEN 2012

Copies

Author

Sileo, Frank J.

Potter, Carol S.

Place of Publication

Washington, DC

Publisher

American Psychological Association

Publication Date

2021

Physical Description

Softcover; 419 pages

Subject

Coping with Chronic Illness-Children

Coping with Chronic Illness in the Family

Coping with Chronic Illness-Young Adult

Abstract

Written by leading mental health professionals, this warm and accessible parenting book for children with chronic illnesses offers clear, practical guidance for all aspects of the journey. It is recommended by professionals at the American Diabetes Association, Invisible Disabilities Association, the Crohn's Colitis Foundation, and other expert national and regional sources.

For all its joys, parenting is a complex job, and when your child has a chronic illness, the stress can feel overwhelming. When your child is diagnosed, you begin a parenting journey filled with strong emotions, difficult choices, confusing words, and interactions with numerous professionals and specialists.

You're focused on ensuring your child gets the best possible treatments for their symptoms, so it's easy to overlook or dismiss the impact the illness can have on your relationships and emotions. This book places your psychological well-being front and center, so you can be the best caregiver possible for your child.

Along with suggestions for making laughter and mindfulness part of your daily self-care routine, it offers guidance for choosing the right therapist for your family, should extra support be needed. Every family's journey with chronic illness is unique, but you don't have to go it alone.

ISBN

9781433833816

Language

English

Material Type

Book

Call Number

EF 850.5 SIL 2021

Copies

Author

McClintock Greenberg, Tamara

Place of Publication

Springville, UT

Publisher

Plain Sight Publishing

Publication Date

2012

Physical Description

Softcover ; xiv, 157 p.

Subject

Chronic Illness

Abstract

"Dr. Tamara Greenberg offers hope and practical advice to those impacted by a loved one's illness with this new book., "When Someone You Love Has a Chronic Illness: Hope and Help for Those Providing Support. Inside, Dr. Greenberg provides easy-to-understand explanations for complicated feelings and behaviors and offers pragmatic strategies for coping effectively and serving your loved one in this time of need.

"Learn how to talk to someone who is ill, what not to do, how to address your loved ones who aren't taking care of themselves, how to help someone in physical pain, and more.

"Above all, Dr. Greenberg delivers important tools for managing the normal anxiety we all feel when someone we love is ill." --From back cover

ISBN

9781599559391

Language

English

Material Type

Book

Call Number

EF 800 GRE 2012

Copies

Author

Lorig, Kate

Holman, Halsted

Sobel, David

Laurent, Diana

Gonzalez, Virginia

Minor, Marian

Edition

Canadian Edition, 4th

Place of Publication

Boulder, CO

Publisher

Bull Publishing Company

Publication Date

2013

Physical Description

Softcover ; vii, 368 p.

Subject

Chronic Illness

Mental Health/Illness

Fatigue

Pain

Depression

Abstract

"Living a Healthy Life with Chronic Conditions is a proven self-management guide. People with chonic health conditions live most of their lives outside of hospitals and clinics. This book is designed to help them learn the information and skills to manage chronic conditions on a daily basis while doing the things they need and want to do.

"This new edition is completely redesigned for easy reading and fully updated with the latest research and information. The book is a vital resource full of practical tips, suggestions, and strategies to build confidence in managing chronic illness and symptoms, such as fatigue, pain, shortness of breath, disability, and depression. It encourages readers to develop individual approaches to setting goals, making decisions, and finding resources and support"--from Publisher.

ISBN

97819396693498

Language

English

Material Type

Book

Call Number

EF 800 LOR 2013

Copies

Author

Olsher, Sara

Rogers, Jenni

Place of Publication

Happy Valley, OR

Publisher

Mighty and Bright

Publication Date

2023

Physical Description

Softcover; 39 pages

Subject

Coping with Chronic Illness in the Family

Abstract

Join Mia and Stewart as they learn how bodies work, why some bodies don't always feel good, and what to do when someone they love has an illness that won't go away.

ISBN

9798986776538

Language

English

Material Type

Book

Call Number

JUNIOR EF 860 OLS 2023

Copies

Author

Segal, Julia

Place of Publication

Philadelphia, PA

Publisher

Jessica Kingsley Publishers

Publication Date

2017

Physical Description

Softcover ; 312 p.

Subject

Chronic Illness

Disabilities

Relationships

Abstract

This impressively honest book explores the effects a challenging disability or illness can have on the mind and personal relationships, and how friends, family and professionals can help.

Illness or disability can isolate people by creating vast differences in their experiences where previously there were none. Friends and family can find themselves saying the wrong thing or awkwardly avoiding topics as a result. This book takes a candid look at how discomfort caused by an illness can strain a relationship between partners, families and professionals, as well as how understanding feelings of guilt or shame can transform a situation or relationship.

The insights and advice offered in this book can help children and adolescents overcome anxiousness caused by a parent's condition, improve communication between partners and family members, and increase professionals' awareness of how a client feels about their situation.

ISBN

9781785923326

Language

English

Material Type

Book

Call Number

EF 800 SEG 2017

Copies

Author

Zoffness, Rachel

Krane, Elliot J.

Publisher

New Harbinger Publications

Publication Date

2019

Physical Description

155 pages

Subject

Coping with Pain

Chronic Pain

Coping with Chronic Illness Young Adult

Abstract

This workbook blends cognitive behavioral therapy (CBT) and mindfulness-based stress reduction (MBSR). You will learn how pain affects both your mind and body, how negative emotions can make pain worse, and strategies to help you turn the volume down on your pain, so you can go back to enjoying activities that you love. You'll also learn mindfulness and relaxation exercises, including belly breathing and body scan to help manage pain in the moment. The exercises and strategies in this book are rooted in research, fun to learn, and easy to practice. For ages 12+.

ISBN

9781684033522

Language

English

Material Type

Book

Call Number

YOUTH FM 850 ZOF 2019

Copies

Author

Carter, Bryan D.

Kronenberger, William G.

Scott, Eric L.

Brady, Christine E.

Place of Publication

Oxford, UK

Publisher

Oxford University Press

Publication Date

2020

Physical Description

Softcover; 173 pages

Series

Programs that work

Subject

Coping with Chronic Illness Young Adult

Coping with Chronic Illness

Coping with Chronic Illness-Children

Abstract

Youth with chronic illnesses face challenges that may prove disruptive to physical, psychological, and social development. Based on extensive research and clinical expertise, Children's Health and Illness Recovery Program (CHIRP) is an interdisciplinary cognitive behavioral and family systems-based treatment program designed to maximize the independent functioning of teens with chronic illness.

This Clinician Guide offers a detailed outline for implementing this manualized intervention and provides clear guidance as to the philosophy, pragmatics, and art of working with challenging pediatric conditions. Designed to accompany the CHIRP Teen and Family Workbook, this book addresses specific assessment measures and tools needed to establish a collaborative treatment team approach that incorporates the skills of the CHIRP clinician, primary and specialty care providers, and roles of other healthcare (physical therapists, occupational therapists, etc.) and educational professionals critical to the successful management and treatment of these youth.

ISBN

9780190070267

Language

English

Material Type

Book

Call Number

EF 850.6 CAR 2020b

Copies

Author

Carter, Bryan D.

Kronenberger, William G.

Scott, Eric L.

Place of Publication

Oxford, UK

Publisher

Oxford University Press

Publication Date

2020

Physical Description

Softcover; 113 pages

Series

Programs that work

Subject

Coping with Chronic Illness Young Adult

Coping with Chronic Illness

Coping with Chronic Illness-Children

Abstract

Children and adolescents with chronic illnesses, particularly those accompanied by debilitating, painful, and/or fatiguing symptoms, face challenges that may prove disruptive to physical, psychological, and social development. Based on extensive research and clinical expertise, Children's Health and Illness Recovery Program (CHIRP) is an effective treatment program designed to build and maintain independence in young people with chronic illness.

This Teen and Family Workbook provides proven treatment activities designed to combat the additional stress faced by youth coping with long-term health problems. These tasks target key areas for improvement in physical functioning, school functioning, and personal functioning and support the creation of new tools for managing the impact of illness, such as stress management, coping and relaxation techniques, and communication skills. In-session and take-home activities outlined in this workbook are meant to accompany the companion CHIRP Clinician Guide. With the use of this workbook and supported by a network of clinicians, healthcare specialists, and school professionals, adolescents and their families can return to a better quality of life.

ISBN

9780190070472

Language

English

Material Type

Book

Call Number

EF 850.6 CAR 2020

Copies

Author

Burch, Vidyamala

Place of Publication

Boulder, CO

Publisher

Sounds True

Publication Date

2010

Subject

Chronic Pain

Mindfulness

Abstract

After two serious spinal injuries, Vidyamala Burch found herself facing the loneliness of disability and chronic pain with few skills or resources to turn to. But instead of giving up, she set out on a mission to embrace her physical challenges with compassion, acceptance, and peace.

Living Well with Pain and Illness shares the fruits of her courageous life?s work, teaching us how the practice of mindfulness can help us thrive in the face of health challenges of any kind. Drawing on the wisdom of a dozen years of teaching meditation and a lifetime of study of the benefits of mindful living, Vidyamala encourages readers with insights and instruction in:

The five-step model of mindfulness and how to use it to foster healing

The Breathworks approach to meditation, and how to apply it to health concerns such as migraines, arthritis, and chronic fatigue

Step-by-step techniques, illustrations, and case studies demonstrating how to effectively bring mindfulness into daily life

Chronic pain has been called the modern world?s silent epidemic. Billions are spent every year in an attempt to cope, yet the best solution available may be absolutely free: mindful living. In Living Well with Pain and Illness, Vidyamala Burch presents a work that is at once an inspirational memoir and practical guidebook for using mindfulness to reframe your relationship with physical and emotional suffering.

ISBN

9781591797470

Language

English

Material Type

Book

Call Number

FM 830 BUR 2010

Copies