Author

Nimmo, Stephanie

Place of Publication

London, UK

Publisher

Jessica Kingsley Publishers

Publication Date

2024

Physical Description

Softcover; 272 pages

Subject

Coping with Chronic Illness-Children

Caregivers-Coping

Caregivers for a Dying Loved One

Abstract

Every parent wants the same thing: for their child to enjoy a long and fulfilling life. But what happens when things don't go according to plan? What happens when parents have to become advocates for their child's healthcare needs? Who decides what is in a child's 'best interests'?

Stephanie Nimmo faced these questions first-hand when her daughter, Daisy, was diagnosed with a life-limiting condition as a baby. Seen through the lens of Stephanie's own experiences, this sensitive book delves into the complex world of medical ethics and pediatric palliative care. From recognizing tipping points to the importance of building relationships with palliative care teams well before crisis, this book explores how medical professionals can better support families throughout their child's care.

Interviews with clinicians and snapshots from the lives of patients' families provide insight into the realities of life on both sides of the hospital bed. Compassionate explanations of the conflicting pressures in the hospital system foster understanding and help medical professionals and families work together.

ISBN

5727227010272

Language

English

Material Type

Book

Call Number

EF 850.5 NIM 2024

Copies

Author

Grose, Anouchka

Bohémier, Lauriane [ill.]

Place of Publication

New York, NY

Publisher

Magic Cat Publishing

Publication Date

2024

Physical Description

Hardcover, 96 pages

Subject

Anxiety

Abstract

How does climate change make you feel? Sad? Afraid? Powerless? Guilty? Manage your eco-anxiety with this helpful guide. Drawing on years of experience as a psychoanalyst, Anouchka Grose shares cutting-edge insights on how to manage your eco-anxiety. Find out how to validate your emotions and build your resilience. Discover the comfort that can be found in your community. Understand and face your eco-anxiety with ten accessible steps. A "tool kit" at the end of each step shows you ways to build on that knowledge and take action. You'll finish this book feeling equipped with solutions and practical advice to help you be kinder to the planet . . . and yourself.

ISBN

9781419771361

Language

English

Material Type

Book

Call Number

YOUTH CD 420 GRO 2024

Copies

Author

Nwuba, Chukwuemeka [eds]

Spinn, Bailey [eds.]

Place of Publication

London, UK

Publisher

Jessica Kingsley Publishers

Publication Date

2024

Physical Description

Softcover, 304 pages

Subject

Eating Disorders

Abstract

This honest collection directly confronts stereotypes and misconceptions about what eating disorders look like and who they impact. Tapping into sources of expert knowledge throughout, the accounts showcase how you can begin to understand your own journey of body acceptance and recovery and support those struggling in silence.

ISBN

9781839976995

Language

English

Material Type

Book

Call Number

BB 500 NWU 2024

Copies

Author

Olsher, Sara

Rogers, Jenni

Place of Publication

Happy Valley, OR

Publisher

Mighty and Bright

Publication Date

2023

Physical Description

Softcover; 39 pages

Subject

Coping with Chronic Illness in the Family

Abstract

Join Mia and Stewart as they learn how bodies work, why some bodies don't always feel good, and what to do when someone they love has an illness that won't go away.

ISBN

9798986776538

Language

English

Material Type

Book

Call Number

JUNIOR EF 860 OLS 2023

Copies

URL

http://www.cw.bc.ca/library/pdf/pamphlets/BCCH-10-Tips-Chronic-Pain.pdf

Website Notes

Click on the link to view/print.

Alternate Title

10 tips for caregivers of a child or youth with chronic pain

Corporate Author

Complex Pain Service

Place of Publication

Vancouver, BC

Publisher

BC Children's Hospital

Publication Date

2022

Physical Description

PDF: 2 p.

Subject

Pain

Chronic Pain

Abstract

This handout provides helpful tips for parents or caregivers of a child or youth with chronic pain. Also includes a recommended resource list.

Language

English

Material Type

Pamphlet

Online

URL

https://ebookcentral.proquest.com/lib/cwhbc/detail.action?docID=7055656

Author

Corinna, Laurie

Wright, Kirsteen,

Edition

3rd

Place of Publication

London, UK

Publisher

Jessica Kingsley Publishers

Publication Date

2022

Physical Description

146p.

Subject

Autism

Autism Spectrum Disorder (includes Asperger Syndrome)

Abstract

In this fully revised third edition, Corinna Laurie sets out practical strategies to help autistic children develop their sensory and motor skills. Learn to identify possible challenges, recognize signs of overload and work in a co-productive way with your student or child, developing sensory regulation strategies and improving motor skills to aid well-being. The simple, low-cost activities provide practical solutions to help children meet the demands of any situation, building skills from handwriting and using scissors to improving posture, co-ordination and motor planning. Sensory strategies include calming techniques and simple environmental modifications to prevent overwhelm, among many others. Helping to improve functional abilities and enable children to thrive and build independence.

ISBN

9781839972713

Language

English

Material Type

Ebook

Call Number

FM 272 COR 2022

Author

Muggleton, Joshua

Attwood, Tony (contributor)

Place of Publication

London, UK and Philadelphia, PA

Publisher

Jessica Kingsley Publishers

Publication Date

2022

Physical Description

Softcover; 288 pages

Subject

Developmental Disability

Autism Spectrum Disorder (includes Asperger Syndrome)

Abstract

Parenting isn't easy, and parenting a child with a Global Developmental Delay, Intellectual Disability, or Autism can be challenging. However, a lot of parenting strategies are straightforward once you get your head around them. With the right knowledge, environment, interactions, responses and understanding, you can help reduce your child's anxiety, build their confidence, and help them develop learning and communication skills.

Dr Joshua Muggleton provides a comprehensive, step-by-step parenting plan that will support you to embed good practice at home from day one. These strategies are designed to work across all neurodevelopmental conditions, and take into account co-occurring conditions such as ADHD, meaning none of the advice in the book requires your child to have a specific diagnosis. Also included are downloadable examples of charts, how-to guides for creating visual resources tailored to your child's individual needs, and bonus downloadable chapters on sleep and siblings.[See introduction for link.]

ISBN

9781787759978

Language

English

Material Type

Book

Call Number

FM 270 MUG 2022

Copies

Author

Lister, Elena

Schwartzman, Michael

Place of Publication

New York, NY

Publisher

Penguin Random house

Publication Date

2022

Physical Description

Hardcover; 275 pages

Subject

Death and Dying

Grief. Bereavement

Suicide

Death and dying-Children

Abstract

Just as death is inevitable, talking about death is an inevitable part of parenting. Drs. Lister and Schwartzman offer us the way to have conversations that are as much about life as they are about death; conversations that anyone who parents, teaches, or counsels children can have. Giving Hope is a must-have resource that expands our understanding of how to prepare for, initiate, and facilitate these personal and profound conversations. The approach is honest, practical, and compassionate, and will benefit a grieving child now and in the future. Giving Hope gives us tools to make our children's experiences positive and life-affirming.

ISBN

9780593419151

Language

English

Material Type

Book

Call Number

GV 100 LIS 2022

Copies

Author

Tejpar, Serena

Lalani, Anoosha [ill.]

Tejpar, Iman [ill.]

Place of Publication

Ann Arbor, MI

Publisher

Loving Healing Press

Publication Date

2022

Physical Description

Softcover; no pagination

Subject

Children's Hospitalization

Trauma Survivors

Abstract

Research has shown that building resilience in the face of adversity or challenges helps children and young people develop effective coping strategies and improve long-term outcomes across a spectrum of illnesses. You Are So Much More reminds children who have gone through or are going through an illness or injury, that they are indeed so much more. Trauma survivor and medical student Serena Tejpar shares a story of inspiration, reflection, and encouragement that can be read over and over again.

Includes a final word on common concerns and questions children may have while in hospital.

Notes

For ages 4 - 8

ISBN

9781615996322

Language

English

Material Type

Book

Call Number

JUNIOR GK 210 TEJ 2022

Copies

Alternate Title

NowMaps Jr.

Author

Siegel, Daniel J.

Place of Publication

Eau Claire, WI

Publisher

PESI Publishing

Publication Date

2022

Physical Description

Hardcover; 55 pages

Subject

Emotional Health

Mindfulness

Abstract

Written by world-renowned neuropsychiatrist and co-author of The Whole-Brain Child, Dr. Dan Siegel, NowMaps Jr. is a delightful rhyming story that introduces kids to the neuroscience of early childhood social-emotional learning in a captivating, interactive way! Kids ages 3-6 will love this beautifully illustrated choose-your-own adventure book that whisks them off to distant lands - including a jungle, a desert, and a pirate ship - as they learn about their thoughts, feelings, and sensory experiences.

ISBN

9781683735328

Language

English

Material Type

Book

Call Number

JUNIOR CA 200 SIE 2022

Copies

URL

https://ebookcentral.proquest.com/lib/cwhbc/detail.action?docID=6578034

Author

Schrooten, A.F.

Markovitz, B.P.

Place of Publication

Switzerland

Publisher

Springer International Publishing AG

Publication Date

2021

Subject

Coping with Chronic Illness-Children

Abstract

This book tells true and poignant stories from both sides of the physician-patient/parent relationship and provides a unique glimpse into how parents and physicians think, feel, and interact. The stories are grouped under four sections: Hope, Compassion, Communication, and Trust.

Each section includes stories contributed by parents from all across the United States and by pediatricians practicing at many of the best children's hospitals throughout the country. The parents tell of interactions with physicians that had a significant impact on them and their child and offer context and insight that promote empathy and reflection. The physicians tell of interactions with patients and families that served as learning moments in their career and promote the humanization of medicine and show there is more to a physician beyond their scientific knowledge and white coat.

The stories are edited by Barry P. Markovitz - a pediatrician specializing in critical care medicine who has been in practice for more than 20 years and by Ann F. Schrooten - the parent of a child born with a chronic complex condition who has more than 15 years of experience interacting with pediatric subspecialists and other healthcare professionals who cared for her son. The editors have written commentaries to the stories to provide an independent perspective on the events and messages conveyed and to encourage reflection, inquiry, and discussion.

In addition to being a valuable resource for pediatricians, pediatric subspecialists, nurses and other healthcare professionals, the book will also appeal to families of children living with complex medical conditions because it shares physician encounters and behaviors many have experienced in the care of their own children. By giving a voice to both parents and physicians, the goal is to create a bridge to better understanding that can improve communication, minimize conflicts, and foster trust and compassion among physicians, patients, and families.

ISBN

9783030680206

Language

English

Material Type

Ebook

Call Number

EF 850.5 SCH 2021e

Author

Winner, Michelle Garcia

Crooke, Pamela

Edition

3rd edition

Place of Publication

Santa Clara, CA

Publisher

Think Social Publishing & North River Press

Publication Date

2021

Physical Description

Paperback; 211 pages.

Subject

Young Adults - Social Behaviour

Abstract

This anime-illustrated guidebook is written for teens and young adults to learn how the social mind is expected to work in order to effectively relate to others at school, at work, in the community and even at home.

ISBN

9781936943852

Language

English

Material Type

Book

Call Number

YOUTH GL 850 WIN 2021

Copies

Author

Greene, Ross W.

Edition

6th ed,

Place of Publication

New York, NY

Publisher

Harper

Publication Date

2021

Physical Description

Paperback: 254 p.

Subject

Anger

Child Behaviour

Parenting

Abstract

Dr. Ross Greene, a distinguished clinician and pioneer in the treatment of kids with social, emotional, and behavioral challenges, has worked with thousands of explosive children, and he has good news: these kids aren?t attention-seeking, manipulative, or unmotivated, and their parents aren?t passive, permissive pushovers. Rather, explosive kids are lacking some crucial skills in the domains of flexibility/adaptability, frustration tolerance, and problem solving, and they require a different approach to parenting.

Throughout this compassionate, insightful, and practical book, Dr. Greene provides a new conceptual framework for understanding their difficulties, based on research in the neurosciences. He explains why traditional parenting and treatment often don?t work with these children, and he describes what to do instead. Instead of relying on rewarding and punishing, Dr. Greene?s Collaborative Problem Solving model promotes working with explosive children to solve the problems that precipitate explosive episodes, and teaching these kids the skills they lack.

ISBN

9780063092464

Language

English

Material Type

Book

Call Number

CD 900 GRE 2021a

Copies

Author

Schrooten, A.F.

Markovitz, B.P.

Place of Publication

Switzerland

Publisher

Springer International Publishing AG

Publication Date

2021

Physical Description

251 pages

Subject

Coping with Chronic Illness-Children

Abstract

This book tells true and poignant stories from both sides of the physician-patient/parent relationship and provides a unique glimpse into how parents and physicians think, feel, and interact. The stories are grouped under four sections: Hope, Compassion, Communication, and Trust.

Each section includes stories contributed by parents from all across the United States and by pediatricians practicing at many of the best children's hospitals throughout the country. The parents tell of interactions with physicians that had a significant impact on them and their child and offer context and insight that promote empathy and reflection. The physicians tell of interactions with patients and families that served as learning moments in their career and promote the humanization of medicine and show there is more to a physician beyond their scientific knowledge and white coat.

The stories are edited by Barry P. Markovitz - a pediatrician specializing in critical care medicine who has been in practice for more than 20 years and by Ann F. Schrooten - the parent of a child born with a chronic complex condition who has more than 15 years of experience interacting with pediatric subspecialists and other healthcare professionals who cared for her son. The editors have written commentaries to the stories to provide an independent perspective on the events and messages conveyed and to encourage reflection, inquiry, and discussion.

In addition to being a valuable resource for pediatricians, pediatric subspecialists, nurses and other healthcare professionals, the book will also appeal to families of children living with complex medical conditions because it shares physician encounters and behaviors many have experienced in the care of their own children. By giving a voice to both parents and physicians, the goal is to create a bridge to better understanding that can improve communication, minimize conflicts, and foster trust and compassion among physicians, patients, and families.

ISBN

9783030680206

Language

English

Material Type

Book

Call Number

EF 850.5 SCH 2021b

Copies

Author

Sileo, Frank J.

Potter, Carol S.

Place of Publication

Washington, DC

Publisher

American Psychological Association

Publication Date

2021

Physical Description

Softcover; 419 pages

Subject

Coping with Chronic Illness-Children

Coping with Chronic Illness in the Family

Coping with Chronic Illness-Young Adult

Abstract

Written by leading mental health professionals, this warm and accessible parenting book for children with chronic illnesses offers clear, practical guidance for all aspects of the journey. It is recommended by professionals at the American Diabetes Association, Invisible Disabilities Association, the Crohn's Colitis Foundation, and other expert national and regional sources.

For all its joys, parenting is a complex job, and when your child has a chronic illness, the stress can feel overwhelming. When your child is diagnosed, you begin a parenting journey filled with strong emotions, difficult choices, confusing words, and interactions with numerous professionals and specialists.

You're focused on ensuring your child gets the best possible treatments for their symptoms, so it's easy to overlook or dismiss the impact the illness can have on your relationships and emotions. This book places your psychological well-being front and center, so you can be the best caregiver possible for your child.

Along with suggestions for making laughter and mindfulness part of your daily self-care routine, it offers guidance for choosing the right therapist for your family, should extra support be needed. Every family's journey with chronic illness is unique, but you don't have to go it alone.

ISBN

9781433833816

Language

English

Material Type

Book

Call Number

EF 850.5 SIL 2021

Copies

Author

Jones, Pia

Pimenta, Sarah

Place of Publication

New York, NY

Publisher

Routledge

Publication Date

2021

Physical Description

Softcover; 28 pages

Subject

Death and dying-Children

Abstract

This beautifully illustrated and sensitive storybook is designed to be used therapeutically by professionals and caregivers supporting children with an untreatable illness. With engaging, gentle and colourful illustrations that can be used to prompt conversation, it tells the story of the final journey made by a Boy with a Bear, as the Boy says his goodbyes and comes to terms with his life-ending illness.

ISBN

9780367491208

Language

English

Material Type

Book

Call Number

JUNIOR GV 100.5 JON 2021

Copies

URL

https://ebookcentral.proquest.com/lib/cwhbc/detail.action?docID=6176683

Author

Lavin, Robert A.

Clayton, Sara

Zilliox, Lindsay

Publisher

Oxford Univerity Press

Publication Date

2020

Series

Brain and Life Books

Subject

Chronic Pain

Abstract

Accessible, comprehensive, and up-to-date information about the challenges patients, family, and caregivers face when confronted by chronic pain. You will learn how to take control of your chronic pain using a variety of tools, like behavioral, exercise and nutritional approaches, medications, alternative treatments (yoga and tai chi), and injections or surgery.

ISBN

9780190619701

Language

English

Material Type

Ebook

Call Number

FM 830 LAV 2020

URL

https://ebookcentral.proquest.com/lib/cwhbc/detail.action?docID=6002581

Author

Bryden, Pier

Szatmari, Peter

Place of Publication

Toronto, ON

Publisher

Simon & Schuster

Publication Date

2020

Subject

Mental Health

Mental Health/Illness

Parenting

Young Adults-Mental Health. Psychology

Children Mental Health

Abstract

"As parents, we worry about our children - about their physical health, performance at school, the types of friends they have, and, of course, their mental health. Every day seems to bring new and expanding issues and disorders and troubling statistics about the rise of mental illness in children and teens. It's usually obvious what to do for physical injuries like broken bones, but when it comes to our children's mental health, the answers are much less clear, and sometimes even contradictory.

"Pier Bryden and Peter Szatmari, top child and adolescent psychiatrists, are here to help. Using their combined six decades working with families and kids - and their own experiences as parents - they break down the stigma of mental health illness and walk parents through the warning signs, risk factors, prevention strategies, and the process of diagnosis and treatment for mental health challenges arising from: anxiety, substance use disorders, eating disorders, sleep disorders, depression, trauma, suicidal thoughts and behaviors, psychosis, ADHD, and autism.

"The most important thing to remember as a parent is that you and your child are not alone and there is a lot you can do to improve your child's mental health. The road ahead isn't always easy or straightforward, but start here to learn how to advocate for your child's well-being"--from the inside front cover.

ISBN

9781508257936

Language

English

Material Type

Ebook

Call Number

CD 100 BRY 2020b

URL

http://www.cw.bc.ca/library/pdf/pamphlets/BC-Childrens-Partnership-Guide.pdf

Corporate Author

Ethics Department and Patient Partners

Place of Publication

Vancouver, BC

Publisher

BC Children's Hospital & BC Women's Hospital + Health Centre

Publication Date

2020

Physical Description

21 pages

Subject

Pain Control

Abstract

This resource from BC Children?s Hospital can support families to explore their perspectives together and incorporate ways to foster the appropriate inclusion of children in healthcare decisions.

The Partnership Guide was developed to improve the guidance, support and participation of children aged 7-14 years with serious illness. This education resource provides up to date research knowledge in the area of child participation, pediatric decision making and child-focused activities and interventions to support children with this process.

Fostering the developing autonomy of children is an essential ethical principle and this guide supports the inclusion of children in decision-making to their ability and desire, to participate in decisions that impact their health.

Language

English

Material Type

Online

Booklet

URL

https://crohnsandcolitis.ca/About-Crohn-s-Colitis/IBD-Journey

Corporate Author

Crohn's and Colitis Canada

Place of Publication

Toronto, ON

Publisher

Crohn's and Colitis Canada

Publication Date

2020

Subject

Crohn's Disease

Ulcerative Colitis

Inflammatory Bowel Disease

Inflammatory Bowel Disease-Coping

Abstract

The IBD Journey will strengthen your knowledge of living with Crohn?s and colitis. Here you will find information, strategies and tips to help manage your disease and make informed decisions with health care providers.

Language

English

Material Type

Website