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The diagnosis and management of Duchenne Muscular Dystrophy: A guide for families

https://bcch.andornot.com/en/permalink/catalog123812
Muscular Dystrophy Canada. Toronto, ON: Muscular Dystrophy Canada , 2019.
URL
https://muscle.ca/wp-content/uploads/2019/09/DMDstandardsofcare-EN.pdf
Material Type
Booklet
Online
This guide for families summarizes the results of an international consensus on the medical care of Duchenne muscular dystrophy (DMD). This effort was supported by the US Centers for Disease Control and Prevention (CDC), in collaboration with patient advocacy groups and the TREAT-NMD network. The m…
  1 url  
URL
https://muscle.ca/wp-content/uploads/2019/09/DMDstandardsofcare-EN.pdf
Corporate Author
Muscular Dystrophy Canada
Place of Publication
Toronto, ON
Publisher
Muscular Dystrophy Canada
Publication Date
2019
Subject
Muscular Dystrophy
Abstract
This guide for families summarizes the results of an international consensus on the medical care of Duchenne muscular dystrophy (DMD). This effort was supported by the US Centers for Disease Control and Prevention (CDC), in collaboration with patient advocacy groups and the TREAT-NMD network. The main document is published in Lancet Neurology.
The recommendations are based on an extensive study by 84 international experts in DMD diagnosis and care chosen to represent a broad range of specialties. They independently ?rated? methods of care used in the management of DMD to say how ?necessary?, ?appropriate? or ?inappropriate? each one was at different stages of the course of DMD. In total they considered more than 70,000 different scenarios. This allowed them to establish guidelines that the majority agreed represented the best practice for DMD care.
Language
English
Material Type
Booklet
Online
URLs
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Girls speak out: Support groups for young women with experiences of violence: Facilitator's guide

https://bcch.andornot.com/en/permalink/catalog114807
Godard, Louise, Cory, Jill, Armstrong, Naomi et all. [Vancouver, BC?]: BC Women's Hospital + Health Centre , 2016.
URL
http://www.cw.bc.ca/library/pdf/Pamphlets/girlsspeakout.pdf
Material Type
Online
Booklet
This resource provides information about violence and BC Women's Hospital and Health Centre, Girls Speak Out program, its curriculum and some recommended websites about this topic. It's aimed to support women with experiences of violence.
  1 url  
URL
http://www.cw.bc.ca/library/pdf/Pamphlets/girlsspeakout.pdf
Website Notes
Click on the link above to view/print.
Author
Godard, Louise
Cory, Jill
Armstrong, Naomi et all.
Editor
Sullivan, Lana
Pederson, Ann
Pigeon, Marguerite
Place of Publication
[Vancouver, BC?]
Publisher
BC Women's Hospital + Health Centre
Publication Date
2016
Physical Description
PDF file, 129 p., ill.
Subject
Violence Prevention
Women's Health
Abstract
This resource provides information about violence and BC Women's Hospital and Health Centre, Girls Speak Out program, its curriculum and some recommended websites about this topic. It's aimed to support women with experiences of violence.
ISBN
0000000001234
Language
English
Material Type
Online
Booklet
URLs
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