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13 records – page 1 of 1.

The diagnosis and management of Duchenne Muscular Dystrophy: A guide for families

https://bcch.andornot.com/en/permalink/catalog123812
Muscular Dystrophy Canada. Toronto, ON: Muscular Dystrophy Canada , 2019.
URL
https://muscle.ca/wp-content/uploads/2019/09/DMDstandardsofcare-EN.pdf
Material Type
Booklet
Online
This guide for families summarizes the results of an international consensus on the medical care of Duchenne muscular dystrophy (DMD). This effort was supported by the US Centers for Disease Control and Prevention (CDC), in collaboration with patient advocacy groups and the TREAT-NMD network. The m…
  1 url  
URL
https://muscle.ca/wp-content/uploads/2019/09/DMDstandardsofcare-EN.pdf
Corporate Author
Muscular Dystrophy Canada
Place of Publication
Toronto, ON
Publisher
Muscular Dystrophy Canada
Publication Date
2019
Subject
Muscular Dystrophy
Abstract
This guide for families summarizes the results of an international consensus on the medical care of Duchenne muscular dystrophy (DMD). This effort was supported by the US Centers for Disease Control and Prevention (CDC), in collaboration with patient advocacy groups and the TREAT-NMD network. The main document is published in Lancet Neurology.
The recommendations are based on an extensive study by 84 international experts in DMD diagnosis and care chosen to represent a broad range of specialties. They independently ?rated? methods of care used in the management of DMD to say how ?necessary?, ?appropriate? or ?inappropriate? each one was at different stages of the course of DMD. In total they considered more than 70,000 different scenarios. This allowed them to establish guidelines that the majority agreed represented the best practice for DMD care.
Language
English
Material Type
Booklet
Online
URLs
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You, your child, and arthritis

https://bcch.andornot.com/en/permalink/catalog123813
Arthritis Society. Toronto, ON: Arthritis Society , 2020. 6th ed.
URL
https://arthritis.ca/getmedia/42e31329-43c9-433b-89fb-7e3fc4f30493/ChildhoodArthritis_July23_2020.pdf
Material Type
Booklet
Online
You, Your Child [and] Arthritis is a valuable resource for families of children with juvenile arthritis (JA). This guide provides the information parents/caregivers need to understand their child?s disease and to feel comfortable caring for them. It also covers the different types of juvenile arthr…
  1 url  
URL
https://arthritis.ca/getmedia/42e31329-43c9-433b-89fb-7e3fc4f30493/ChildhoodArthritis_July23_2020.pdf
Corporate Author
Arthritis Society
Responsibility
Revised by Shirley ML Tse, MD, FRCPC , Associate Professor, University of Toronto, Program Director, Division of Rheumatology, SickKids. *Review support by Pamela Jarvis, RSSW, Arthritis Society and Michelle Bridge, OT Reg. (Ont.), ACPAC, Arthritis Society.
Edition
6th ed.
Place of Publication
Toronto, ON
Publisher
Arthritis Society
Publication Date
2020
Physical Description
PDF; 24 pages
Subject
Juvenile Idiopathic Arthritis
Juvenile Rheumatoid Arthritis
Abstract
You, Your Child [and] Arthritis is a valuable resource for families of children with juvenile arthritis (JA). This guide provides the information parents/caregivers need to understand their child?s disease and to feel comfortable caring for them. It also covers the different types of juvenile arthritis, current treatments including medications, and other important elements of treatment, such as physiotherapy and occupational therapy. In addition, there are important sections for parents/caregivers learning to cope with a child who has a chronic disease. Pediatric rheumatology teams across Canada recommend and endorse this resource for all families of children with arthritis.
Language
English
Material Type
Booklet
Online
URLs
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On the path to possibility: A guide book for children, youth and families living with cerebral palsy

https://bcch.andornot.com/en/permalink/catalog123830
Holland Bloorview Kids Rehabilitation Hospital. Toronto, ON: Holland Bloorview Kids Rehabilitation Hospital
URL
https://hollandbloorview.ca/services/programs-services/cp-booklet
Material Type
Booklet
Online
From the authors:; "Many parents ask us, What can I read about cerebral palsy? This booklet was written to answer that very question. We hope this booklet will help explain what cerebral palsy (CP) is and what supports Holland Bloorview can offer."; Note: Pages 1-15 contain general information that…
  1 url  
URL
https://hollandbloorview.ca/services/programs-services/cp-booklet
Corporate Author
Holland Bloorview Kids Rehabilitation Hospital
Place of Publication
Toronto, ON
Publisher
Holland Bloorview Kids Rehabilitation Hospital
Physical Description
PDF; 23 pages
Subject
Cerebral Palsy
Abstract
From the authors:
"Many parents ask us, What can I read about cerebral palsy? This booklet was written to answer that very question. We hope this booklet will help explain what cerebral palsy (CP) is and what supports Holland Bloorview can offer."
Note: Pages 1-15 contain general information that may be helpful to families outside Ontario.
Language
English
Material Type
Booklet
Online
URLs
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Release the Butterfly: A Handbook for Parents & Caregivers of Children with Ichthyosis

https://bcch.andornot.com/en/permalink/catalog124005
Foundation for Ichthyosis and Related Skin Types. Colmar, PA: Foundation for Ichthyosis and Related Skin Types , 2014. 4th edition.
Material Type
Booklet
Call Number
FO 365 FOU 2014
Availability
1 copy, 1 available
Author
Foundation for Ichthyosis and Related Skin Types
Edition
4th edition
Place of Publication
Colmar, PA
Publisher
Foundation for Ichthyosis and Related Skin Types
Publication Date
2014
Physical Description
52 pages
Subject
Ichthyosis
Language
English
Material Type
Booklet
Call Number
FO 365 FOU 2014

Copies

copy 1 BC Children's and Women's Family Library Available
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Understanding type 1 diabetes in the family: Written by doctors for kids

https://bcch.andornot.com/en/permalink/catalog121350
Renfrew, Ruth, deLoache, Shawn. New York, NY: Jumo , 2018.
Material Type
Booklet
Call Number
JUNIOR FL 800 REN 2018
Availability
1 copy, 1 available
In graphic novel format, the Medikidz, superheroes from the planet Mediland, help Caitlin and Daniel understand diabetes and how it can affect them and their family.
Alternate Title
Medikids
Author
Renfrew, Ruth
deLoache, Shawn
Editor
Quigley, Columba
Ferreira, Marcelo
Place of Publication
New York, NY
Publisher
Jumo
Publication Date
2018
Physical Description
Softcover; 12 p.
Series
Medikids
Subject
Diabetes
Diabetes Mellitus - Children
Diabetes Mellitus - Young Adults
Abstract
In graphic novel format, the Medikidz, superheroes from the planet Mediland, help Caitlin and Daniel understand diabetes and how it can affect them and their family.
Language
English
Material Type
Booklet
Call Number
JUNIOR FL 800 REN 2018

Copies

Copy 1 BC Children's and Women's Family Library Available
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Understanding OCD: Written by doctors for kids

https://bcch.andornot.com/en/permalink/catalog121433
Renfrew, Ruth, deLoache, Shawn. New York, NY: Jumo , 2018.
Material Type
Booklet
Call Number
JUNIOR CD 810 REN 2018
Availability
1 copy, 1 available
Join Tia and Gabriel on their journey to explore how obsessive compulsive disorder (OCD) affects your behavior and emotions, and how to manage it.
Alternate Title
Medikids
Author
Renfrew, Ruth
deLoache, Shawn
Editor
Quigley, Columba
Place of Publication
New York, NY
Publisher
Jumo
Publication Date
2018
Physical Description
Softcover; 16 p.
Series
Medikids
Subject
Obsessive-Compulsive Disorders
Abstract
Join Tia and Gabriel on their journey to explore how obsessive compulsive disorder (OCD) affects your behavior and emotions, and how to manage it.
Language
English
Material Type
Booklet
Call Number
JUNIOR CD 810 REN 2018

Copies

BC Children's and Women's Family Library Available
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Sattin, Samuel, Hickman, Rye [illustrator]. New York, NY: Little, Brown Ink , 2023.
Material Type
Booklet
Call Number
JUNIOR CD 810 SAT 2023
Availability
1 copy, 1 available
Isaac Itkin can?t get away from his thoughts.; As a lonely twelve-year-old kid with Obsessive Compulsive Disorder (OCD), everything from studying to looking in the mirror becomes a battle between him and a swarm of unhelpful thoughts.; The strict therapy his mother insists on doesn?t seem to be wor…
Author
Sattin, Samuel
Hickman, Rye [illustrator]
Place of Publication
New York, NY
Publisher
Little, Brown Ink
Publication Date
2023
Physical Description
Softcover; illustrated [graphic novel]; 224 pages
Subject
Obsessive-Compulsive Disorders
Abstract
Isaac Itkin can?t get away from his thoughts.
As a lonely twelve-year-old kid with Obsessive Compulsive Disorder (OCD), everything from studying to looking in the mirror becomes a battle between him and a swarm of unhelpful thoughts.
The strict therapy his mother insists on doesn?t seem to be working, but when a group of friends invites him to join their after-school role-playing game, the thoughts feel a little less loud, and the world feels a little brighter.
But Isaac?s therapist says that exposure to games can have negative effects on kids with OCD, and when his grades slip, his helicopter mother won?t let him play anymore. Now Isaac needs to find a way to prove to himself, to his mother, and to the world that the way to quiet the noise in his head may have been inside him all along.
Recommended for children ages 8 - 12.
Notes
Graphic novel
ISBN
9780316628419
Language
English
Material Type
Booklet
Call Number
JUNIOR CD 810 SAT 2023

Copies

BC Children's and Women's Family Library Available
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Cannabis talk kit: Know how to talk with your teen

https://bcch.andornot.com/en/permalink/catalog120198
Drug Free Kids Canada. [Toronto, ON]: Drug Free Kids Canada , 2016.
URL
https://www.drugfreekidscanada.org/wp-content/uploads/pdf/Cannabis-Talk-Kit_EN.pdf
Material Type
Booklet
Call Number
DB 650 DRU 2016
Availability
1 copy, 1 available
This talk kit is designed to help families have an open dialogue with teenagers about any issue, but cannabis in particular.
  1 url  
URL
https://www.drugfreekidscanada.org/wp-content/uploads/pdf/Cannabis-Talk-Kit_EN.pdf
Corporate Author
Drug Free Kids Canada
Place of Publication
[Toronto, ON]
Publisher
Drug Free Kids Canada
Publication Date
2016
Physical Description
Softcover, 23 p.
Subject
Marijuana. Pot
Abstract
This talk kit is designed to help families have an open dialogue with teenagers about any issue, but cannabis in particular.
Language
English
Material Type
Booklet
Call Number
DB 650 DRU 2016

Copies

Copy 1 BC Children's and Women's Family Library Available
URLs
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Understanding the hospital team: Written by doctors for kids

https://bcch.andornot.com/en/permalink/catalog121424
Renfrew, Ruth, deLoache, Shawn. New York, NY: Jumo , 2018.
Material Type
Booklet
Call Number
JUNIOR GK 210 REN 2018
Availability
1 copy, 1 available
Join Jonathan on his journey to learn about all the people on his health care team who will support him before, during, and after his medical procedure.
Alternate Title
Medikids
Author
Renfrew, Ruth
deLoache, Shawn
Editor
Quigley, Columba
Place of Publication
New York, NY
Publisher
Jumo
Publication Date
2018
Physical Description
Softcover; 8 p.
Series
Medikids
Subject
Hospitals
Hospitalization
Hospitals Services
Children's Health
Children's Health-Pediatrics
Children's Hospitalization
Abstract
Join Jonathan on his journey to learn about all the people on his health care team who will support him before, during, and after his medical procedure.
Language
English
Material Type
Booklet
Call Number
JUNIOR GK 210 REN 2018

Copies

BC Children's and Women's Family Library Available
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Understanding leukemia: Written by doctors for kids

https://bcch.andornot.com/en/permalink/catalog121420
Renfrew, Ruth, deLoache, Shawn. New York, NY: Jumo , 2018.
Material Type
Booklet
Call Number
JUNIOR FE 350.5 REN 2018
Availability
1 copy, 0 available
Join Charlie on his journey to learn how leukemia is diagnosed, what cancer does to the body, and what to expect with leukemia treatment.
Alternate Title
Medikids
Author
Renfrew, Ruth
deLoache, Shawn
Editor
Quigley, Columba
Place of Publication
New York, NY
Publisher
Jumo
Publication Date
2018
Physical Description
Softcover; 12 p.
Series
Medikids
Subject
Leukemia-Children
Abstract
Join Charlie on his journey to learn how leukemia is diagnosed, what cancer does to the body, and what to expect with leukemia treatment.
Language
English
Material Type
Booklet
Call Number
JUNIOR FE 350.5 REN 2018

Copies

BC Children's and Women's Family Library On Loan, due Wednesday, April 3, 2024
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Understanding type 1 diabetes: Written by doctors for kids

https://bcch.andornot.com/en/permalink/catalog121431
Renfrew, Ruth, deLoache, Shawn. New York, NY: Jumo , 2018.
Material Type
Booklet
Call Number
JUNIOR FL 800.5 REN 2018
Availability
1 copy, 1 available
Join Tim on his journey through the human body to learn more about type 1 diabetes symptoms and treatment.
Alternate Title
Medikids
Author
Renfrew, Ruth
deLoache, Shawn
Editor
Quigley, Columba
Place of Publication
New York, NY
Publisher
Jumo
Publication Date
2018
Physical Description
Softcover; 16 p.
Series
Medikids
Subject
Diabetes
Diabetes Mellitus - Children
Abstract
Join Tim on his journey through the human body to learn more about type 1 diabetes symptoms and treatment.
Language
English
Material Type
Booklet
Call Number
JUNIOR FL 800.5 REN 2018

Copies

BC Children's and Women's Family Library Available
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Understanding food allergy: Written by doctors for kids

https://bcch.andornot.com/en/permalink/catalog121432
Renfrew, Ruth, deLoache, Shawn. New York, NY: Jumo , 2018.
Material Type
Booklet
Call Number
JUNIOR FF 470 REN 2018
Availability
1 copy, 1 available
Join Lilian on her journey to learn how food allergies affect the body, steps to take to avoid allergic reactions, and what to do in an emergency.
Alternate Title
Medikids
Author
Renfrew, Ruth
deLoache, Shawn
Editor
Quigley, Columba
Place of Publication
New York, NY
Publisher
Jumo
Publication Date
2018
Physical Description
Softcover; 12 p.
Series
Medikids
Subject
Diabetes
Diabetes Mellitus - Children
Abstract
Join Lilian on her journey to learn how food allergies affect the body, steps to take to avoid allergic reactions, and what to do in an emergency.
Language
English
Material Type
Booklet
Call Number
JUNIOR FF 470 REN 2018

Copies

BC Children's and Women's Family Library Available
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I'm not upside down, I'm downside up: Not a boring book about PDA

https://bcch.andornot.com/en/permalink/catalog124651
Thompson, Harry, Jata-Hall, Danielle, Sherwin, Mollie [illustrator]. London, UK and Philadelphia, PA: Jessica Kingsley Publishers , 2022.
Material Type
Booklet
Call Number
JUNIIOR FM 272 THO 2022
Availability
1 copy, 1 available
Welcome to my downside up life! My name is Ariana and I have something called Pathological Demand Avoidance which is a form of autism. Most people just think I'm naughty and misbehaved, but I want to show you why that's not true by telling you about what my life is like from inside my head. Come jo…
Author
Thompson, Harry
Jata-Hall, Danielle
Sherwin, Mollie [illustrator]
Place of Publication
London, UK and Philadelphia, PA
Publisher
Jessica Kingsley Publishers
Publication Date
2022
Physical Description
Softcover; illustrated; 64 pages
Subject
Autism Spectrum Disorder (includes Asperger Syndrome)
Abstract
Welcome to my downside up life! My name is Ariana and I have something called Pathological Demand Avoidance which is a form of autism. Most people just think I'm naughty and misbehaved, but I want to show you why that's not true by telling you about what my life is like from inside my head. Come join me in understanding why I feel like I have to be in control all the time and why it's just not as simple as doing as I am told.
Recommended for children ages 7-12.
ISBN
978-1839971174
Material Type
Booklet
Call Number
JUNIIOR FM 272 THO 2022

Copies

BC Children's and Women's Family Library Available
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13 records – page 1 of 1.