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The diagnosis and management of Duchenne Muscular Dystrophy: A guide for families

https://bcch.andornot.com/en/permalink/catalog123812
Muscular Dystrophy Canada. Toronto, ON: Muscular Dystrophy Canada , 2019.
URL
https://muscle.ca/wp-content/uploads/2019/09/DMDstandardsofcare-EN.pdf
Material Type
Booklet
Online
This guide for families summarizes the results of an international consensus on the medical care of Duchenne muscular dystrophy (DMD). This effort was supported by the US Centers for Disease Control and Prevention (CDC), in collaboration with patient advocacy groups and the TREAT-NMD network. The m…
  1 url  
URL
https://muscle.ca/wp-content/uploads/2019/09/DMDstandardsofcare-EN.pdf
Corporate Author
Muscular Dystrophy Canada
Place of Publication
Toronto, ON
Publisher
Muscular Dystrophy Canada
Publication Date
2019
Subject
Muscular Dystrophy
Abstract
This guide for families summarizes the results of an international consensus on the medical care of Duchenne muscular dystrophy (DMD). This effort was supported by the US Centers for Disease Control and Prevention (CDC), in collaboration with patient advocacy groups and the TREAT-NMD network. The main document is published in Lancet Neurology.
The recommendations are based on an extensive study by 84 international experts in DMD diagnosis and care chosen to represent a broad range of specialties. They independently ?rated? methods of care used in the management of DMD to say how ?necessary?, ?appropriate? or ?inappropriate? each one was at different stages of the course of DMD. In total they considered more than 70,000 different scenarios. This allowed them to establish guidelines that the majority agreed represented the best practice for DMD care.
Language
English
Material Type
Booklet
Online
URLs
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You, your child, and arthritis

https://bcch.andornot.com/en/permalink/catalog123813
Arthritis Society. Toronto, ON: Arthritis Society , 2020. 6th ed.
URL
https://arthritis.ca/getmedia/42e31329-43c9-433b-89fb-7e3fc4f30493/ChildhoodArthritis_July23_2020.pdf
Material Type
Booklet
Online
You, Your Child [and] Arthritis is a valuable resource for families of children with juvenile arthritis (JA). This guide provides the information parents/caregivers need to understand their child?s disease and to feel comfortable caring for them. It also covers the different types of juvenile arthr…
  1 url  
URL
https://arthritis.ca/getmedia/42e31329-43c9-433b-89fb-7e3fc4f30493/ChildhoodArthritis_July23_2020.pdf
Corporate Author
Arthritis Society
Responsibility
Revised by Shirley ML Tse, MD, FRCPC , Associate Professor, University of Toronto, Program Director, Division of Rheumatology, SickKids. *Review support by Pamela Jarvis, RSSW, Arthritis Society and Michelle Bridge, OT Reg. (Ont.), ACPAC, Arthritis Society.
Edition
6th ed.
Place of Publication
Toronto, ON
Publisher
Arthritis Society
Publication Date
2020
Physical Description
PDF; 24 pages
Subject
Juvenile Idiopathic Arthritis
Juvenile Rheumatoid Arthritis
Abstract
You, Your Child [and] Arthritis is a valuable resource for families of children with juvenile arthritis (JA). This guide provides the information parents/caregivers need to understand their child?s disease and to feel comfortable caring for them. It also covers the different types of juvenile arthritis, current treatments including medications, and other important elements of treatment, such as physiotherapy and occupational therapy. In addition, there are important sections for parents/caregivers learning to cope with a child who has a chronic disease. Pediatric rheumatology teams across Canada recommend and endorse this resource for all families of children with arthritis.
Language
English
Material Type
Booklet
Online
URLs
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On the path to possibility: A guide book for children, youth and families living with cerebral palsy

https://bcch.andornot.com/en/permalink/catalog123830
Holland Bloorview Kids Rehabilitation Hospital. Toronto, ON: Holland Bloorview Kids Rehabilitation Hospital
URL
https://hollandbloorview.ca/services/programs-services/cp-booklet
Material Type
Booklet
Online
From the authors:; "Many parents ask us, What can I read about cerebral palsy? This booklet was written to answer that very question. We hope this booklet will help explain what cerebral palsy (CP) is and what supports Holland Bloorview can offer."; Note: Pages 1-15 contain general information that…
  1 url  
URL
https://hollandbloorview.ca/services/programs-services/cp-booklet
Corporate Author
Holland Bloorview Kids Rehabilitation Hospital
Place of Publication
Toronto, ON
Publisher
Holland Bloorview Kids Rehabilitation Hospital
Physical Description
PDF; 23 pages
Subject
Cerebral Palsy
Abstract
From the authors:
"Many parents ask us, What can I read about cerebral palsy? This booklet was written to answer that very question. We hope this booklet will help explain what cerebral palsy (CP) is and what supports Holland Bloorview can offer."
Note: Pages 1-15 contain general information that may be helpful to families outside Ontario.
Language
English
Material Type
Booklet
Online
URLs
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Cannabis talk kit: Know how to talk with your teen

https://bcch.andornot.com/en/permalink/catalog120198
Drug Free Kids Canada. [Toronto, ON]: Drug Free Kids Canada , 2016.
URL
https://www.drugfreekidscanada.org/wp-content/uploads/pdf/Cannabis-Talk-Kit_EN.pdf
Material Type
Booklet
Call Number
DB 650 DRU 2016
Availability
1 copy, 1 available
This talk kit is designed to help families have an open dialogue with teenagers about any issue, but cannabis in particular.
  1 url  
URL
https://www.drugfreekidscanada.org/wp-content/uploads/pdf/Cannabis-Talk-Kit_EN.pdf
Corporate Author
Drug Free Kids Canada
Place of Publication
[Toronto, ON]
Publisher
Drug Free Kids Canada
Publication Date
2016
Physical Description
Softcover, 23 p.
Subject
Marijuana. Pot
Abstract
This talk kit is designed to help families have an open dialogue with teenagers about any issue, but cannabis in particular.
Language
English
Material Type
Booklet
Call Number
DB 650 DRU 2016

Copies

Copy 1 BC Children's and Women's Family Library Available
URLs
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