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Understanding spinal cord injury: Written by doctors for kids

https://bcch.andornot.com/en/permalink/catalog121284
Satkunarasa, Shen, deLoache, Shawn. New York, NY: Jumo , 2018.
Material Type
Book
Call Number
JUNIOR FM 550 SAT 2018
Availability
1 copy, 1 available
Comic book featuring Medikidz, superhero experts on health and illness. Explains how spinal cord injuries affect the body, and how your health care team works to help you cope.
Author
Satkunarasa, Shen
deLoache, Shawn
Editor
Medikidz USA Inc.
Place of Publication
New York, NY
Publisher
Jumo
Publication Date
2018
Physical Description
Softcover; 32 p.
Subject
Spinal Cord Injuries
Abstract
Comic book featuring Medikidz, superhero experts on health and illness. Explains how spinal cord injuries affect the body, and how your health care team works to help you cope.
Language
English
Material Type
Book
Call Number
JUNIOR FM 550 SAT 2018

Copies

copy 1 BC Children's and Women's Family Library Available
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Pregnancy and Spinal Cord Injury : An information booklet for women with SCI

https://bcch.andornot.com/en/permalink/catalog121784
Vancouver Coastal Health Sexual Rehabilitation Service, BC Women's Hospital and Health Centre Maternal Fetal Medicine Service, Rick Hansen Institute, Spinal Cord Injury BC (SCI BC). [Vancouver, BC?]: Spinal Cord Injury Organization of BC , 2015.
URL
https://scisexualhealth.ca/wp-content/uploads/2015/05/Pregnancy-and-SCI-booklet-V7.pdf
Material Type
Booklet
Online
We have created this booklet to highlight a number of key topics for women with SCI (spinal cord injury) and their families to consider during the perinatal period, defined as the time before conceiving (pre-conception), pregnancy, labour, delivery and postpartum (the first few days and weeks after…
  1 document     1 url  
URL
https://scisexualhealth.ca/wp-content/uploads/2015/05/Pregnancy-and-SCI-booklet-V7.pdf
Corporate Author
Vancouver Coastal Health Sexual Rehabilitation Service
BC Women's Hospital and Health Centre Maternal Fetal Medicine Service
Rick Hansen Institute
Spinal Cord Injury BC (SCI BC)
Place of Publication
[Vancouver, BC?]
Publisher
Spinal Cord Injury Organization of BC
Publication Date
2015
Subject
Spinal Cord Injuries
Pregnancy/Childbirth
Prenatal Care
Postnatal Care
Abstract
We have created this booklet to highlight a number of key topics for women with SCI (spinal cord injury) and their families to consider during the perinatal period, defined as the time before conceiving (pre-conception), pregnancy, labour, delivery and postpartum (the first few days and weeks after a baby is born).
The topics covered in this guide are designed as a place to start the conversation with your health care providers as part of planning for your care.
Language
English
Material Type
Booklet
Online
Documents

Pregnancy and SCI booklet.pdf

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URLs
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The Halo Thoracic Brace

https://bcch.andornot.com/en/permalink/catalog110847
Orthopedics Department. [Vancouver, BC?]: BC Children's Hospital , 2014.
URL
http://www.cw.bc.ca/library/pdf/pamphlets/BCCH1247_Halo%20ThoracicBrace_2014.pdf
Material Type
Handout
Online
Call Number
BCCH1247
Information about the halo thoracic brace used during recovery of from spinal injury or surgery. Includes sections on: preparing for the brace; what to expect after the brace is on; coping at home; personal care; transportation issues; coping outside of home; what to do in emergencies.
  1 image     1 url  
URL
http://www.cw.bc.ca/library/pdf/pamphlets/BCCH1247_Halo%20ThoracicBrace_2014.pdf
Website Notes
Click the link to view or print.
Corporate Author
Orthopedics Department
Place of Publication
[Vancouver, BC?]
Publisher
BC Children's Hospital
Publication Date
2014
Physical Description
PDF file: 16 p.
Subject
Spinal Cord Injuries
Spinal Cord Injury-Surgery
Spinal Cord Rehabilitation
Abstract
Information about the halo thoracic brace used during recovery of from spinal injury or surgery. Includes sections on: preparing for the brace; what to expect after the brace is on; coping at home; personal care; transportation issues; coping outside of home; what to do in emergencies.
Language
English
Material Type
Handout
Online
Call Number
BCCH1247
Images
URLs
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The book of Lua: Stories and wisdom from a little cat with mobility challenges

https://bcch.andornot.com/en/permalink/catalog122028
Sheldon, Dania. [Canada]: Kittenhaus Press
Material Type
Book
Call Number
JUNIOR FM 550 SHE 2018
Availability
2 copies, 2 available
Lua survived a spinal cord injury when she was only a few weeks old, leaving her partially paralyzed. But that hasn't stopped this brave, sassy cat. In The Book of Lua, she talks about what it's like to live with mobility challenges, why she values each day, and the unique relationships and perspec…
Author
Sheldon, Dania
Place of Publication
[Canada]
Publisher
Kittenhaus Press
Physical Description
Hardcover ; 102, illustrations
Subject
Spinal Cord Injuries
Animals
Abstract
Lua survived a spinal cord injury when she was only a few weeks old, leaving her partially paralyzed. But that hasn't stopped this brave, sassy cat. In The Book of Lua, she talks about what it's like to live with mobility challenges, why she values each day, and the unique relationships and perspectives she has formed. Lua believes that being differently abled is an opportunity, not a disability. And she's got cattitude! Welcome to her amazing, quirky world.
ISBN
9780995903906
Language
English
Material Type
Book
Call Number
JUNIOR FM 550 SHE 2018

Copies

BC Children's and Women's Family Library Available
BC Children's and Women's Family Library Available
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Safety measures following spinal surgery

https://bcch.andornot.com/en/permalink/catalog112585
Occupational & Physical Therapy Department. [Vancouver, BC?]: BC Children's Hospital , 2013.
URL
http://www.cw.bc.ca/library/pdf/pamphlets/BCCH1665_SafetyMeasuresSpinalSurgery_2013.pdf
Material Type
Pamphlet
Online
Call Number
BCCH1665
After your child's spine surgery to correct scoliosis, it is important that safety measures are taken when moving him or her. Please follow the instructions on this pamphlet. The Occupational Therapist or Physical Therapist may talk with you about specific safety measures for your child.
  1 image     1 url  
URL
http://www.cw.bc.ca/library/pdf/pamphlets/BCCH1665_SafetyMeasuresSpinalSurgery_2013.pdf
Website Notes
Click on the link above to view/print.
Corporate Author
Occupational & Physical Therapy Department
Place of Publication
[Vancouver, BC?]
Publisher
BC Children's Hospital
Publication Date
2013
Physical Description
PDF file: 2 p.
Subject
Spinal Cord Injury-Surgery
Scoliosis. Lordosis
Physical Therapy. Physiotherapy
Occupational Therapy
Abstract
After your child's spine surgery to correct scoliosis, it is important that safety measures are taken when moving him or her. Please follow the instructions on this pamphlet. The Occupational Therapist or Physical Therapist may talk with you about specific safety measures for your child.
Language
English
Material Type
Pamphlet
Online
Call Number
BCCH1665
Images
URLs
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Bitsy & Bumpsy Bottom: Stop those pressure sores

https://bcch.andornot.com/en/permalink/catalog110025
Aikenhead, Jennifer, Birkett, Stephanie. [Calgary, AB]: Spina Bifida & Hydrocephalus Association of Southern Alberta , 2006. 1st.
URL
http://www.sbhasa.ca
Material Type
Book
Call Number
JUNIOR FM 550 AIK 2006
Availability
1 copy, 1 available
Information on pressure sores and how to deal with them. In an individual with spina bifida some of the nerves do not develop properly, which results in little or no sensation in some areas of the skin. Without the warning of discomfort or pain from heat, cold, sharp objects, pressure, scrapes or e…
  1 url  
URL
http://www.sbhasa.ca
Author
Aikenhead, Jennifer
Birkett, Stephanie
Edition
1st
Place of Publication
[Calgary, AB]
Publisher
Spina Bifida & Hydrocephalus Association of Southern Alberta
Publication Date
2006
Physical Description
Spiral-bound soft cover, unpaged, ill.
Subject
Spinal Cord Injuries
Spina Bifida. Neural Tube Defects
Skin Care
Abstract
Information on pressure sores and how to deal with them. In an individual with spina bifida some of the nerves do not develop properly, which results in little or no sensation in some areas of the skin. Without the warning of discomfort or pain from heat, cold, sharp objects, pressure, scrapes or excessive moisture an individual will be unaware of damage to their skin. A sore may develop quite quickly and can worsen rapidly if not attended to properly. Children need to learn the importance of personal hygiene to their overall well being. Parents should begin teaching skin care to their child at an early age, until their routine becomes second nature: * Perform regular self checks of the skin, using a hand held mirror to view those areas not easily seen with the eyes. * Keep skin clean and dry. Moisture and chemicals from urine, bowel material or sweat can damage the skin if left there too long. * Eat nutritious foods and drink plenty of fluids to keep the body and skin healthy.
Notes
Ages 4-14
Language
English
Material Type
Book
Call Number
JUNIOR FM 550 AIK 2006

Copies

Copy 1 BC Children's and Women's Family Library Available
URLs
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Head injury: Advice for parents and caregivers

https://bcch.andornot.com/en/permalink/catalog111679
Emergency Department. [Vancouver, BC?]: BC Children's Hospital , 2014.
URL
http://www.cw.bc.ca/library/pdf/pamphlets/BCCH1001_HeadInjury_2014.pdf
Material Type
Handout
Online
Call Number
BCCH1001
Informs parents what to look for after their child has suffered a head injury, including how to care for your child in the first 24 hours after bringing them home.
  1 image     1 url  
URL
http://www.cw.bc.ca/library/pdf/pamphlets/BCCH1001_HeadInjury_2014.pdf
Website Notes
Click the link to view or print.
Corporate Author
Emergency Department
Place of Publication
[Vancouver, BC?]
Publisher
BC Children's Hospital
Publication Date
2014
Physical Description
PDF file: 3 p.
Subject
Head Injury-Coping
Head Injury. Traumatic Brain Injury
Abstract
Informs parents what to look for after their child has suffered a head injury, including how to care for your child in the first 24 hours after bringing them home.
Language
English
Material Type
Handout
Online
Call Number
BCCH1001
Images
URLs
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Wipe out: Stories of brain injury

https://bcch.andornot.com/en/permalink/catalog111312
Goddard, Lionel (Writer, Director, Producer). Burnaby, BC: Knowlege Network Corporation , 2008.
Material Type
Video
Call Number
FM 330 GOD 2008
Availability
1 copy, 1 available
This DVD tells the story of three young men living with permanent brain damage as the result of head injuries they suffered pursuing extreme sports. Through their stories, the documentary explores the science of thrill-seeking, and reveals how cultural forces and ignorance are propelling young men …
Author
Goddard, Lionel (Writer, Director, Producer)
Place of Publication
Burnaby, BC
Publisher
Knowlege Network Corporation
Publication Date
2008
Physical Description
1 DVD
Subject
Head Injury (includes brain damage)
Head Injury. Traumatic Brain Injury
Head Injury-Prevention
Young Adults-At-Risk Behaviour
Abstract
This DVD tells the story of three young men living with permanent brain damage as the result of head injuries they suffered pursuing extreme sports. Through their stories, the documentary explores the science of thrill-seeking, and reveals how cultural forces and ignorance are propelling young men to dangerous new heights. Narrated by Olympic Gold Medalist Ross Rebagliati.
Language
English
Material Type
Video
Call Number
FM 330 GOD 2008

Copies

Copy 1 BC Children's and Women's Family Library Available
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Understanding acquired brain injury: Written by doctors for kids

https://bcch.andornot.com/en/permalink/catalog121221
Quigley, Columba, deLoache, Shawn. New York, NY: Jumo , 2018.
Material Type
Book
Call Number
JUNIOR FM 330 QUI 2018
Availability
1 copy, 1 available
Comic book featuring Medikidz, superhero experts on health and illness. Explains traumatic and non-traumatic acquired brain injury, long-term effects, and how specialists can help.
Author
Quigley, Columba
deLoache, Shawn
Editor
Medikidz USA Inc.
Place of Publication
New York, NY
Publisher
Jumo
Publication Date
2018
Physical Description
Softcover; 32 p.
Subject
Brain Injury
Abstract
Comic book featuring Medikidz, superhero experts on health and illness. Explains traumatic and non-traumatic acquired brain injury, long-term effects, and how specialists can help.
Language
English
Material Type
Book
Call Number
JUNIOR FM 330 QUI 2018

Copies

copy 1 BC Children's and Women's Family Library Available
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Welcome to the orthopedic spine program

https://bcch.andornot.com/en/permalink/catalog112787
Department of Orthopaedic Surgery. [Vancouver, BC?]: BC Children's Hospital , 2016.
URL
http://www.cw.bc.ca/library/pdf/pamphlets/BCCH1670_WelcomeOrthopedicSpineProgram_2016.pdf
Material Type
Handout
Online
Call Number
BCCH1670
The Orthopedic Spine Program at BC Children's Hospital provides care for idiopathic scoliosis, neuromuscular scoliosis, and congenital and other spine conditions. This pamphlet provides information about the program.
  1 image     1 url  
URL
http://www.cw.bc.ca/library/pdf/pamphlets/BCCH1670_WelcomeOrthopedicSpineProgram_2016.pdf
Website Notes
Click on the link above to view/print.
Corporate Author
Department of Orthopaedic Surgery
Place of Publication
[Vancouver, BC?]
Publisher
BC Children's Hospital
Publication Date
2016
Physical Description
PDF file: 2 p.
Subject
Scoliosis. Lordosis
Spinal Cord Rehabilitation
Abstract
The Orthopedic Spine Program at BC Children's Hospital provides care for idiopathic scoliosis, neuromuscular scoliosis, and congenital and other spine conditions. This pamphlet provides information about the program.
Language
English
Material Type
Handout
Online
Call Number
BCCH1670
Images
URLs
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Our fascinating journey: Keys to brain potential along the path of prenatal brain injury

https://bcch.andornot.com/en/permalink/catalog108460
Kulp, Jodee. Brooklyn Park, MN: Better Endings New Beginnings , 2004. 2nd ed.
Material Type
Book
Call Number
GK 590 KUL 2004
Availability
1 copy, 1 available
Introduces a path in working with prenatally exposed children and provides a wealth of knowledge and practical experience for helping youth with prenatal brain injury. Readers will: discover creative approaches in reaching and loving children with attachment issues; understand how alcohol affects t…
Author
Kulp, Jodee
Edition
2nd ed.
Place of Publication
Brooklyn Park, MN
Publisher
Better Endings New Beginnings
Publication Date
2004
Physical Description
Paperback; xii, 298 p.
Subject
Fetal Alcohol Syndrome/Fetal Alcohol Effects. FAS/FAE
Head Injury (includes brain damage)
Parenting
Abstract
Introduces a path in working with prenatally exposed children and provides a wealth of knowledge and practical experience for helping youth with prenatal brain injury. Readers will: discover creative approaches in reaching and loving children with attachment issues; understand how alcohol affects the growing brains of children; become familiar with brain terminology; uncover ideas to help a child nutritionally; wade through school and behavior issues with tears, laughter and strategies you may not have tried.
Notes
Reviewed by BCCH/BCW Health Professionals on 2013.
ISBN
0963707248
Language
English
Material Type
Book
Call Number
GK 590 KUL 2004

Copies

Copy 1 BC Children's and Women's Family Library Available
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Everyday education: Visual support for children with autism

https://bcch.andornot.com/en/permalink/catalog110055
Dyrbjerg, Pernille, Vedel, Maria. London, UK: Jessica Kingsley Publishers , 2007.
Material Type
Book
Call Number
FM 272 DYR 2007
Availability
1 copy, 1 available
This illustrated guide discusses educational support aids and strategies for children with autism. It builds on the need for visual support and visual structure, covering such areas as hygiene, dressing routines, preparation for school and meatimes, and establishing daily and weekly schedules.
Author
Dyrbjerg, Pernille
Vedel, Maria
Place of Publication
London, UK
Publisher
Jessica Kingsley Publishers
Publication Date
2007
Physical Description
Hardcover: 125 p.: col. ill.
Subject
Autism Spectrum Disorder (includes Asperger Syndrome)
Autism
Abstract
This illustrated guide discusses educational support aids and strategies for children with autism. It builds on the need for visual support and visual structure, covering such areas as hygiene, dressing routines, preparation for school and meatimes, and establishing daily and weekly schedules.
ISBN
9781843104575
Language
English
Material Type
Book
Call Number
FM 272 DYR 2007

Copies

Copy 2 BC Children's and Women's Family Library Available
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The education of Augie Merasty: A residential school memoir

https://bcch.andornot.com/en/permalink/catalog120611
Merasty, Joseph Auguste, Carpenter, David. Sakatchewan, SK: University of Regina Press , 2017.
Material Type
Book
Call Number
GN 400 MER 2017
Availability
1 copy, 1 available
A courageous and intimate memoir, The Education of Augie Merasty is the story of a child who faced the dark heart of humanity, let loose by the cruel policies of a bigoted nation.; A retired fisherman and trapper who sometimes lived rough on the streets, Augie Merasty was one of an estimated 150,00…
Author
Merasty, Joseph Auguste
Carpenter, David
Place of Publication
Sakatchewan, SK
Publisher
University of Regina Press
Publication Date
2017
Physical Description
Hardcover; 150 p.
Subject
Aboriginal Health
Trauma Survivors
Abstract
A courageous and intimate memoir, The Education of Augie Merasty is the story of a child who faced the dark heart of humanity, let loose by the cruel policies of a bigoted nation.
A retired fisherman and trapper who sometimes lived rough on the streets, Augie Merasty was one of an estimated 150,000 First Nations, Inuit, and Metis children who were taken from their families and sent to government-funded, church-run schools, where they were subjected to a policy of aggressive assimilation.
As Augie recounts, these schools did more than attempt to mould children in the ways of white society. They were taught to be ashamed of their heritage and, as he experienced, often suffered physical and sexual abuse.
But even as he looks back on this painful part of his childhood, Merasty's sense of humour and warm voice shine through.
ISBN
9780889774575
Language
English
Material Type
Book
Call Number
GN 400 MER 2017

Copies

Copy 1 BC Children's and Women's Family Library Available
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Nerve injury after labour and birth

https://bcch.andornot.com/en/permalink/catalog123170
Department of Anesthesiology. [Vancouver, BC?]: BC Women's Hospital + Health Centre , 2021.
URL
http://www.cw.bc.ca/library/pdf/pamphlets/BCW_NerveInjuryAfterLabourAndBirth.pdf
Material Type
Handout
Online
There are many types of nerve injuries that can occur after labour and birth. This sheet will explain what a nerve injury is, what symptoms to expect, and how nerve injuries are treated.
  1 image     1 url  
URL
http://www.cw.bc.ca/library/pdf/pamphlets/BCW_NerveInjuryAfterLabourAndBirth.pdf
Corporate Author
Department of Anesthesiology
Place of Publication
[Vancouver, BC?]
Publisher
BC Women's Hospital + Health Centre
Publication Date
2021
Physical Description
2 pages
Subject
Childbirth Complications
Abstract
There are many types of nerve injuries that can occur after labour and birth. This sheet will explain what a nerve injury is, what symptoms to expect, and how nerve injuries are treated.
Language
English
Material Type
Handout
Online
Images
URLs
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Questions and answers: Sexual health education for youth with physical disabilities

https://bcch.andornot.com/en/permalink/catalog112793
Public Health Agency of Canada. [Ottawa, ON]: Public Health Agency of Canada , 2013.
URL
https://www.canada.ca/en/public-health/services/infectious-diseases/sexual-health-sexually-transmitted-infections/reports-publications/questions-answers-youth.html
Material Type
Book
Call Number
GA 110 PUB 2013
Availability
1 copy, 1 available
This document provides evidence-informed answers to the most commonly asked questions regarding sexual health education for youth with physical disabilities. The goal of this resource is to assist in the creation of supportive and healthy learning environments for youth with physical disabilities …
  1 url  
URL
https://www.canada.ca/en/public-health/services/infectious-diseases/sexual-health-sexually-transmitted-infections/reports-publications/questions-answers-youth.html
Corporate Author
Public Health Agency of Canada
Place of Publication
[Ottawa, ON]
Publisher
Public Health Agency of Canada
Publication Date
2013
Physical Description
Softcover: 22 p.
Subject
Sexuality
Physical Disability. Physically Challenged
Sexual Health
Abstract
This document provides evidence-informed answers to the most commonly asked questions regarding sexual health education for youth with physical disabilities. The goal of this resource is to assist in the creation of supportive and healthy learning environments for youth with physical disabilities and to support the provision of comprehensive sexual health education that is inclusive of their needs.
Notes
French version also available: Questions and réponses: éducation en matière de santé sexuelle à l'intention des jeunes ayant une incapacité physique
ISBN
9781100544823
Language
English
Material Type
Book
Call Number
GA 110 PUB 2013

Copies

Copy 1 BC Children's and Women's Family Library Available
URLs
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You Are So Much More: An Inspiration for Children Healing from Illness or Injury

https://bcch.andornot.com/en/permalink/catalog123768
Tejpar, Serena, Lalani, Anoosha [ill.], Tejpar, Iman [ill.]. Ann Arbor, MI: Loving Healing Press , 2022.
Material Type
Book
Call Number
JUNIOR GK 210 TEJ 2022
Availability
1 copy, 1 available
Research has shown that building resilience in the face of adversity or challenges helps children and young people develop effective coping strategies and improve long-term outcomes across a spectrum of illnesses. You Are So Much More reminds children who have gone through or are going through an i…
Author
Tejpar, Serena
Lalani, Anoosha [ill.]
Tejpar, Iman [ill.]
Place of Publication
Ann Arbor, MI
Publisher
Loving Healing Press
Publication Date
2022
Physical Description
Softcover; no pagination
Subject
Children's Hospitalization
Trauma Survivors
Abstract
Research has shown that building resilience in the face of adversity or challenges helps children and young people develop effective coping strategies and improve long-term outcomes across a spectrum of illnesses. You Are So Much More reminds children who have gone through or are going through an illness or injury, that they are indeed so much more. Trauma survivor and medical student Serena Tejpar shares a story of inspiration, reflection, and encouragement that can be read over and over again.
Includes a final word on common concerns and questions children may have while in hospital.
Notes
For ages 4 - 8
ISBN
9781615996322
Language
English
Material Type
Book
Call Number
JUNIOR GK 210 TEJ 2022

Copies

copy 1 BC Children's and Women's Family Library Available
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L'accident d'Hugo|[Hugo's accident]

https://bcch.andornot.com/en/permalink/catalog113301
Grimard, Gabrielle (Illustrator). Montreal, QC: Éditions du CHU Sainte-Justine , 2005.
Material Type
Book
Call Number
JUNIOR FM 330 NEU 2005
Availability
1 copy, 1 available
Ce livre est un outil pour aider les parents à aborder avec leur enfant atteint d'un traumatisme crânien ce qu'il vient de lui arriver.; -; This book is a tool to help children who have suffered a head injury, and their parents, to deal with what has happened to them.
Alternate Title
[l accident d Hugo]
Author
Grimard, Gabrielle (Illustrator)
Corporate Author
L'équipe de neurotraumatologie de l'Hôpital Sainte-Justine
Place of Publication
Montreal, QC
Publisher
Éditions du CHU Sainte-Justine
Publication Date
2005
Physical Description
Paperback, 32 p., ill., 1 foldout
Subject
Head Injury (includes brain damage)
Children's Health-Accidents and Injuries
Picture Books
Abstract
Ce livre est un outil pour aider les parents à aborder avec leur enfant atteint d'un traumatisme crânien ce qu'il vient de lui arriver.
-
This book is a tool to help children who have suffered a head injury, and their parents, to deal with what has happened to them.
ISBN
2922770729
Language
French
Material Type
Book
Call Number
JUNIOR FM 330 NEU 2005

Copies

Copy 1 BC Children's and Women's Family Library Available
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Hugo's accident

https://bcch.andornot.com/en/permalink/catalog113302
Grimard, Gabrielle (Illustrator). Montreal, QC: Éditions du CHU Sainte-Justine , 2007.
Material Type
Book
Call Number
JUNIOR FM 330 NEU 2007
Availability
1 copy, 1 available
This book is a tool to help children who have suffered a head injury, and their parents, to deal with what has happened to them.
Author
Grimard, Gabrielle (Illustrator)
Corporate Author
The Neurotraumatology Team at CHU Sainte-Justine
Place of Publication
Montreal, QC
Publisher
Éditions du CHU Sainte-Justine
Publication Date
2007
Physical Description
Paperback, 32 p., ill., 1 foldout
Subject
Head Injury (includes brain damage)
Children's Health-Accidents and Injuries
Picture Books
Abstract
This book is a tool to help children who have suffered a head injury, and their parents, to deal with what has happened to them.
ISBN
9782896191031
Language
English
Material Type
Book
Call Number
JUNIOR FM 330 NEU 2007

Copies

Copy 1 BC Children's and Women's Family Library Available
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Living with FASD: A guide for parents

https://bcch.andornot.com/en/permalink/catalog108358
Graefe, Sara. [Vancouver, BC?]: Groundwork Press , 2003. 3rd ed.
Material Type
Book
Call Number
GK 590 GRA 2003
Availability
2 copies, 2 available
This edition includes the latest Institute of Medicine diagnostic criteria and terms, special considerations for infants and adolescents, parent needs, and an expanded resource list. A must for any parent or professional caring for a child or adult who has the disorder.
  1 image  
Author
Graefe, Sara
Edition
3rd ed.
Place of Publication
[Vancouver, BC?]
Publisher
Groundwork Press
Publication Date
2003
Physical Description
Paperback, 135 p.
Series
Living Series
Subject
Fetal Alcohol Syndrome/Fetal Alcohol Effects. FAS/FAE
Prenatal Drug Exposure
Abstract
This edition includes the latest Institute of Medicine diagnostic criteria and terms, special considerations for infants and adolescents, parent needs, and an expanded resource list. A must for any parent or professional caring for a child or adult who has the disorder.
Notes
On Sale! Original price = $14.00
ISBN
0914539191/0973544414
Language
English
Material Type
Book
Call Number
GK 590 GRA 2003

Copies

Copy 2 BC Children's and Women's Family Library Available
Copy 1 BC Children's and Women's Family Library Available
Images
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Living beautifully with uncertainty and change

https://bcch.andornot.com/en/permalink/catalog112496
Chodron, Pema. [Boston, MA]: Shambala Publications , 2012.
Material Type
Book
Call Number
EG 220 CHO 2012
Availability
1 copy, 1 available
We live in difficult times. Life sometimes seems like a roiling and turbulent river threatening to drown us and destroy the world. Why, then, shouldn’t we cling to the certainty of the shore—to our familiar patterns and habits? Because, Pema Chödrön teaches, that kind of fear-based clinging keeps u…
Author
Chodron, Pema
Place of Publication
[Boston, MA]
Publisher
Shambala Publications
Publication Date
2012
Physical Description
Hardcover: 139 p.
Subject
Mind/Body
Meditation
Abstract
We live in difficult times. Life sometimes seems like a roiling and turbulent river threatening to drown us and destroy the world. Why, then, shouldn’t we cling to the certainty of the shore—to our familiar patterns and habits? Because, Pema Chödrön teaches, that kind of fear-based clinging keeps us from the infinitely more satisfying experience of being fully alive. The teachings she presents here—known as the “Three Commitments”—provide a wealth of wisdom for learning to step right into the river: to be completely, fearlessly present even in the hardest times, the most difficult situations.
ISBN
9780590309636
Language
English
Material Type
Book
Call Number
EG 220 CHO 2012

Copies

Copy 1 BC Children's and Women's Family Library Available
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Drawing hope : Living with FASD

https://bcch.andornot.com/en/permalink/catalog123136
Mitchell, Brandon. Indigenous Story Studio , 2013.
Material Type
Book
Call Number
YOUTH GK 590 MIT 2013
Availability
1 copy, 1 available
This graphic novel is a collection of five stories, based on stories told by members of the Whitecrow Village community for people living with Fetal Alcohol Spectrum Disorder (FASD). The stories are about struggling in school, the importance of friendships and receiving support from friends and fam…
Author
Mitchell, Brandon
Publisher
Indigenous Story Studio
Publication Date
2013
Physical Description
graphic novel; 32 p.
Subject
Fetal Alcohol Syndrome/Fetal Alcohol Effects.
Aboriginal Health
Abstract
This graphic novel is a collection of five stories, based on stories told by members of the Whitecrow Village community for people living with Fetal Alcohol Spectrum Disorder (FASD). The stories are about struggling in school, the importance of friendships and receiving support from friends and family.
Language
English
Material Type
Book
Call Number
YOUTH GK 590 MIT 2013

Copies

BC Children's and Women's Family Library Available
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Living with a central venous line (CVL)

https://bcch.andornot.com/en/permalink/catalog103198
Oncology/Hematology/BMT. [Vancouver, BC?]: BC Children's Hospital , 2019.
URL
http://www.cw.bc.ca/library/pdf/pamphlets/BCCH1044_LivingwithCVL.pdf
Material Type
Handout
Online
Call Number
BCCH1044
A pamphlet that explains how to deal with some common problems that people experience with catheters.
  1 image     1 url  
URL
http://www.cw.bc.ca/library/pdf/pamphlets/BCCH1044_LivingwithCVL.pdf
Website Notes
Click on the above link to print.
Corporate Author
Oncology/Hematology/BMT
Place of Publication
[Vancouver, BC?]
Publisher
BC Children's Hospital
Publication Date
2019
Physical Description
PDF, 5 p.
Subject
Central Venous Catheter
Abstract
A pamphlet that explains how to deal with some common problems that people experience with catheters.
Language
English
Material Type
Handout
Online
Call Number
BCCH1044
Images
URLs
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Living with grief: Children, adolescents, and loss

https://bcch.andornot.com/en/permalink/catalog110467
Doka, Kenneth (editor). Washington, DC: Hospice Foundation of America , 2008.
Material Type
Book
Call Number
GV 200 DOK 2008
Availability
1 copy, 1 available
This book examines child and adolescent grief in a variety of situations. Parental loss, sibling loss, and loss of a friend are each addressed in their own chapters. Other chapters examine play therapy, protocols for schools, use of the Internet as a coping tool, and the recommendations for reading…
Author
Doka, Kenneth (editor)
Corporate Author
Hospice Foundation of America
Place of Publication
Washington, DC
Publisher
Hospice Foundation of America
Publication Date
2008
Physical Description
Paperback, 420 p.
Series
Living with Grief
Subject
Grief. Bereavement
Children and Grief
Abstract
This book examines child and adolescent grief in a variety of situations. Parental loss, sibling loss, and loss of a friend are each addressed in their own chapters. Other chapters examine play therapy, protocols for schools, use of the Internet as a coping tool, and the recommendations for reading for children and adolescents.
ISBN
9781893349094
Language
English
Material Type
Book
Call Number
GV 200 DOK 2008

Copies

Copy 2 BC Children's and Women's Family Library Available
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A guide to hydrocephalus: Living life to the fullest

https://bcch.andornot.com/en/permalink/catalog111561
Spina Bifida and Hydrocephalus Association of Ontario. [Toronto, ON]: Spina Bifida and Hydrocephalus Association of Ontario , 2009. 2nd ed.
Material Type
Book
Call Number
FM 339 CVM 2009a
Availability
1 copy, 1 available
The book, which is also available in French, includes topics important to people living with hydrocephalus and their caregivers: hydrocephalus in young and middle-aged adults; hydrocephalus in older adults; normal pressure hydrocephalus; questions for healthcare providers; questions to ask before s…
Corporate Author
Spina Bifida and Hydrocephalus Association of Ontario
Edition
2nd ed.
Place of Publication
[Toronto, ON]
Publisher
Spina Bifida and Hydrocephalus Association of Ontario
Publication Date
2009
Physical Description
Softcover: 48 p.
Subject
Spina Bifida. Neural Tube Defects
Abstract
The book, which is also available in French, includes topics important to people living with hydrocephalus and their caregivers: hydrocephalus in young and middle-aged adults; hydrocephalus in older adults; normal pressure hydrocephalus; questions for healthcare providers; questions to ask before surgery treatment; and learning disabilities.
Notes
Also available in French.
ISBN
9780981142708
Language
English
Material Type
Book
Call Number
FM 339 CVM 2009a

Copies

Copy 1 BC Children's and Women's Family Library Available
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The grieving garden: Living with the death of a child

https://bcch.andornot.com/en/permalink/catalog112936
Redfern, Suzanne, Gilbert, Susan K. Charlottesville, VA: Hampton Roads Publishing Company , 2008.
Material Type
Book
Call Number
GV 255 RED 2008
Availability
1 copy, 1 available
Every year, some two million parents in the US suffer the death of a son or daughter. The unnatural sequence of the child's preceding the parent in death creates a wrenching loss and overwhelming emotional and spiritual disorientation. Most of these bereaved parents find relief from their isolation…
Author
Redfern, Suzanne
Gilbert, Susan K.
Place of Publication
Charlottesville, VA
Publisher
Hampton Roads Publishing Company
Publication Date
2008
Physical Description
Softcover: 258 p.
Subject
Coping with a Child's Death
Grief. Bereavement
Abstract
Every year, some two million parents in the US suffer the death of a son or daughter. The unnatural sequence of the child's preceding the parent in death creates a wrenching loss and overwhelming emotional and spiritual disorientation. Most of these bereaved parents find relief from their isolation only in the company of others like themselves. The Grieving Garden offers support, understanding, and, ultimately, comfort and hope from those who have sowed the same tears over the death of a child.
ISBN
9781571745811
Language
English
Material Type
Book
Call Number
GV 255 RED 2008

Copies

Copy 1 BC Children's and Women's Family Library Available
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Living with juvenile arthritis: A parent's guide

https://bcch.andornot.com/en/permalink/catalog112956
Miller, Kimberly Poston. Ann Arbor, MI: Spry Publishing , 2013.
Material Type
Book
Call Number
FB 330 MIL 2013
Availability
1 copy, 1 available
Living with Juvenile Arthritis: A Parent’s Guide provides support to parents and caregivers of children with juvenile arthritis through helpful tips and guidance from a parent who has successfully navigated the challenges of raising two children with juvenile idiopathic arthritis.
Author
Miller, Kimberly Poston
Place of Publication
Ann Arbor, MI
Publisher
Spry Publishing
Publication Date
2013
Physical Description
Softcover 251 p.
Subject
Arthritis-Coping
Rheumatoid Arthritis
Juvenile Rheumatoid Arthritis
Abstract
Living with Juvenile Arthritis: A Parent’s Guide provides support to parents and caregivers of children with juvenile arthritis through helpful tips and guidance from a parent who has successfully navigated the challenges of raising two children with juvenile idiopathic arthritis.
ISBN
9781938170249
Language
English
Material Type
Book
Call Number
FB 330 MIL 2013

Copies

Copy 1 BC Children's and Women's Family Library Available
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Living a healthy life with chronic pain

https://bcch.andornot.com/en/permalink/catalog122278
Webster, Lisa, Holman, Halsted, Laurent, Diana, Minor, Marian. Boulder, CO: Bull Publishing Company , 2015.
Material Type
Book
Call Number
FM 830 WEB 2015
Availability
2 copies, 2 available
"This book is designed to help you manage your pain so that you can get on with living a satisfying, fulfilling life. Chronic pain includes many types of conditions from a variety of causes. Despite these differences, all readers of this book have one very important thing in common ? you are living…
Author
Webster, Lisa
Holman, Halsted
Laurent, Diana
Minor, Marian
Place of Publication
Boulder, CO
Publisher
Bull Publishing Company
Publication Date
2015
Physical Description
Softcover ; vii, 366 p., 1 CD
Subject
Chronic Pain
Abstract
"This book is designed to help you manage your pain so that you can get on with living a satisfying, fulfilling life. Chronic pain includes many types of conditions from a variety of causes. Despite these differences, all readers of this book have one very important thing in common ? you are living with pain every day. To help you discover strategies and skills that will make a difference, this book emphasizes four concepts:
"1. Each person with chronic pain is unique. There is no one treatment or approach that is right for everybody.
"2. There are a number of things you can do to feel better. These things will not eliminate pain, but they will help you to better manage pain, and help you to become more active and more involved in life.
"3. With knowledge and experimentation, you are the best judge of which self-management tools and techniques are best for you.
"4. The responsibility for managing your chronic pain day-to-day rests with you, not anybody else. Many people can be of help to you ? your family and friends, your health care team. But, in the end, the responsibility for self-management is yours.
"Acknowledging that overcoming chronic pain is a daily challenge, this book provides you with the self-management tools to help you meet that challenge"--from Publisher
ISBN
9781936693771
Language
English
Material Type
Book
Call Number
FM 830 WEB 2015

Copies

copy 1 BC Children's and Women's Family Library Available
copy 2 BC Children's and Women's Family Library Available
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Understanding living with ADHD: Written by doctors for kids

https://bcch.andornot.com/en/permalink/catalog121353
Malik, Reshad, deLoache, Shawn. New York, NY: Jumo , 2018.
Material Type
Book
Call Number
JUNIOR FM 265 MAL 2018
Availability
1 copy, 0 available
Join Vincent on his journey to learn more about how attention deficit hyperactivity disorder works in the brain and how ADHD is treated.
Author
Malik, Reshad
deLoache, Shawn
Editor
Quigley, Columba
Hunt, Tom
Gallagher, Alfie
Place of Publication
New York, NY
Publisher
Jumo
Publication Date
2018
Physical Description
16 p. : col. ill. ; 12 cm
Subject
Attention Deficit Disorder. Hyperactivity
Abstract
Join Vincent on his journey to learn more about how attention deficit hyperactivity disorder works in the brain and how ADHD is treated.
Language
English
Material Type
Book
Call Number
JUNIOR FM 265 MAL 2018

Copies

Copy 1 BC Children's and Women's Family Library On Loan, due Wednesday, June 5, 2024
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Celiac disease: A guide to living with gluten intolerance

https://bcch.andornot.com/en/permalink/catalog113477
Llewelyn Bower, Sylvia, Sharrett, Mary Kay, Plogsted, Steve. New York, NY: demosHEALTH , 2014. 2nd Ed.
Material Type
Book
Call Number
FK 655 LLE 2014
Availability
1 copy, 1 available
Written by a nurse, dietitian and clinical pharmacist, this book provides information about how to get diagnosed, manage your symptoms, and adjust to living a gluten-free lifestyle. Includes how to: eat gluten free and avoid hidden glutens, especially in common medications; prevent the most prevale…
Author
Llewelyn Bower, Sylvia
Sharrett, Mary Kay
Plogsted, Steve
Edition
2nd Ed
Place of Publication
New York, NY
Publisher
demosHEALTH
Publication Date
2014
Physical Description
Paperback: 216
Subject
Celiac Sprue
Gluten-Free Diet
Abstract
Written by a nurse, dietitian and clinical pharmacist, this book provides information about how to get diagnosed, manage your symptoms, and adjust to living a gluten-free lifestyle. Includes how to: eat gluten free and avoid hidden glutens, especially in common medications; prevent the most prevalent complications of celiac disease; cook and bake gluten free using delicious, easy-to-prepare recipes.
ISBN
9781936303632
Language
English
Material Type
Book
Call Number
FK 655 LLE 2014

Copies

Copy 1 BC Children's and Women's Family Library Available
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Understanding living with epilepsy: Written by doctors for kids

https://bcch.andornot.com/en/permalink/catalog121277
Satkunarasa, Shen, deLoache, Shawn. New York, NY: Jumo , 2018.
Material Type
Book
Call Number
JUNIOR FM 475 SAT 2018
Availability
2 copies, 2 available
Comic book featuring Medikidz, superhero experts on health and illness. Explains how epilepsy and epilepsy medicines can affect children and youth, and how to cope.
Author
Satkunarasa, Shen
deLoache, Shawn
Editor
Medikidz USA Inc.
Place of Publication
New York, NY
Publisher
Jumo
Publication Date
2018
Physical Description
Softcover; 16 p.
Subject
Epilepsy
Abstract
Comic book featuring Medikidz, superhero experts on health and illness. Explains how epilepsy and epilepsy medicines can affect children and youth, and how to cope.
Language
English
Material Type
Book
Call Number
JUNIOR FM 475 SAT 2018

Copies

copy 1 BC Children's and Women's Family Library Available
Copy 2 BC Children's and Women's Family Library Available
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Living with a black dog : His name is Depression

https://bcch.andornot.com/en/permalink/catalog122361
Johnstone, Matthew. Andrews McMeel Publishing , 2006.
Material Type
Book
Call Number
CD 302 JOH 2006
Availability
1 copy, 1 available
"Ever since Winston Churchill popularized the term Black Dog to describe the hellish bouts of depression he experienced for much of his life, it has become the shorthand for the condition suffered by millions of people from all walks of life. There are many different breeds of Black Dog, and he is …
Alternate Title
I had a black dog : His name was Depression
Author
Johnstone, Matthew
Publisher
Andrews McMeel Publishing
Publication Date
2006
Physical Description
Softcover ; [40 p.], ill.
Subject
Depression
Abstract
"Ever since Winston Churchill popularized the term Black Dog to describe the hellish bouts of depression he experienced for much of his life, it has become the shorthand for the condition suffered by millions of people from all walks of life. There are many different breeds of Black Dog, and he is an equal-opportunity mongrel.
"Matthew Johnsone's illuminating, moving, and ultimately uplifting book provides insights into what it is like to live with a Black Dog and the strength and support that can be found within and around us to tame it. A Black Dog can be a persistent, debilitating beast, but bringing him out into the open is the first step toward recovery. Stunningly illustrated and deeply inspiring, this book is a must-have for anyone who has ever lived with a Black Dog or knows someone who has"--from the back cover.
ISBN
9780740757433
Language
English
Material Type
Book
Call Number
CD 302 JOH 2006

Copies

BC Children's and Women's Family Library Available
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Spinal headache and epidural blood patch

https://bcch.andornot.com/en/permalink/catalog123070
Department of Anesthesiology. [Vancouver, BC?]: BC Women's Hospital + Health Centre , 2021.
URL
http://www.cw.bc.ca/library/pdf/pamphlets/BCW_EpiduralBloodPatch.pdf
Material Type
Handout
Online
Many people experience a headache after birth. A spinal headache is a special type of headache that people can have after an epidural or spinal anesthetic. It is caused by a hole in the spinal fluid sac, where the epidural went in.; This handout describes symptoms of spinal headaches. It also expla…
  1 image     1 url  
URL
http://www.cw.bc.ca/library/pdf/pamphlets/BCW_EpiduralBloodPatch.pdf
Corporate Author
Department of Anesthesiology
Place of Publication
[Vancouver, BC?]
Publisher
BC Women's Hospital + Health Centre
Publication Date
2021
Physical Description
PDF file: 2 p.
Subject
Pain Control
Drug Delivery Systems
Childbirth
Drug Side Effects
Abstract
Many people experience a headache after birth. A spinal headache is a special type of headache that people can have after an epidural or spinal anesthetic. It is caused by a hole in the spinal fluid sac, where the epidural went in.
This handout describes symptoms of spinal headaches. It also explains how an epidural blood patch procedure can help. A blood patch uses your own blood to patch a hole in your spinal fluid sac.
Language
English
Material Type
Handout
Online
Images
URLs
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Trying differently: A guide for daily living and working with FASD

https://bcch.andornot.com/en/permalink/catalog113165
Fetal Alcohol Syndrome Society Yukon (FASSY). Whitehorse, YT: Fetal Alcohol Syndrome Society Yukon (FASSY) , 2013. 4th ed.
Material Type
Book
Call Number
GK 590 FAS 2013
Availability
1 copy, 0 available
A booklet that explains FAS in order to understand the problem behaviours caused by this condition. It provides strategies that help prevent or decrease the secondary characteristics of FAS such as tantrums, anger, anxiety, withdrawal, etc. Topics include basics, infant care, routines/daily structu…
Corporate Author
Fetal Alcohol Syndrome Society Yukon (FASSY)
Edition
4th ed.
Place of Publication
Whitehorse, YT
Publisher
Fetal Alcohol Syndrome Society Yukon (FASSY)
Publication Date
2013
Physical Description
Spiral bound, paperback; 114 p.
Subject
Fetal Alcohol Syndrome/Fetal Alcohol Effects. FAS/FAE
Abstract
A booklet that explains FAS in order to understand the problem behaviours caused by this condition. It provides strategies that help prevent or decrease the secondary characteristics of FAS such as tantrums, anger, anxiety, withdrawal, etc. Topics include basics, infant care, routines/daily structure, life skills, community and self care. For parents, caregivers, teachers, professionals etc.
Notes
FASD refers to any of the disabilities caused from prenatal alcohol exposure, including FAS, FAE, PFAS, ARBD, ARND, PEA etc.
Language
English
Material Type
Book
Call Number
GK 590 FAS 2013

Copies

Copy 1 BC Children's and Women's Family Library On Loan, due Friday, April 19, 2024
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Understanding living with a chronic illness: Written by doctors for kids

https://bcch.andornot.com/en/permalink/catalog121225
Renfrew, Ruth, deLoache, Shawn. New York, NY: Jumo , 2018.
Material Type
Book
Call Number
JUNIOR EF 800 REN 2018
Availability
1 copy, 1 available
Comic book featuring Medikidz, superhero experts on health and illness. Explains how chronic illness can affect individuals and their families.
Author
Renfrew, Ruth
deLoache, Shawn
Editor
Medikidz USA Inc.
Place of Publication
New York, NY
Publisher
Jumo
Publication Date
2018
Physical Description
Softcover; 16 p.
Subject
Chronic Illness
Abstract
Comic book featuring Medikidz, superhero experts on health and illness. Explains how chronic illness can affect individuals and their families.
Language
English
Material Type
Book
Call Number
JUNIOR EF 800 REN 2018

Copies

copy 1 BC Children's and Women's Family Library Available
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The best I can be: Living with Fetal Alcohol Sydrome or Effects

https://bcch.andornot.com/en/permalink/catalog111489
Kulp, Liz, Kulp, Jodee. Brooklyn Park, MN: Better Endings New Beginnings , 2000.
Material Type
Book
Call Number
GK 590 KUL 2000
Availability
1 copy, 1 available
This book is written by Liz Kulp, age 13, who was born with Fetal Alcohol Effects, and her mother. Describing her personal journey, this book provides insight about what it is like to live with FAE. A useful book for families and professionals who want to learn how to help and understand children…
Author
Kulp, Liz
Kulp, Jodee
Place of Publication
Brooklyn Park, MN
Publisher
Better Endings New Beginnings
Publication Date
2000
Physical Description
Softcover: 84 p.
Subject
Fetal Alcohol Syndrome/Fetal Alcohol Effects. FAS/FAE
Abstract
This book is written by Liz Kulp, age 13, who was born with Fetal Alcohol Effects, and her mother. Describing her personal journey, this book provides insight about what it is like to live with FAE. A useful book for families and professionals who want to learn how to help and understand children with brain damage due to FAS/FAE.
Notes
Reviewed by BCCH/BCW Health Professional on 2013.
ISBN
096370723X
Language
English
Material Type
Book
Call Number
GK 590 KUL 2000

Copies

Copy 1 BC Children's and Women's Family Library Available
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Little tree: A story for children with serious medical problems

https://bcch.andornot.com/en/permalink/catalog102854
Mills, Joyce C., Chesworth, Michael (Illustrator). New York, NY: Magination Press , 1992.
Material Type
Book
Call Number
JUNIOR CF 200 MIL 1992
Availability
1 copy, 1 available
In this healing story, a little tree loses some of her branches in a storm. She experiences emotions of fear, self-blame, and worry so common to children facing serious medical problems. The little tree in the forest survives the storm and learns that although many branches and leaves were lost, sh…
Author
Mills, Joyce C.
Chesworth, Michael (Illustrator)
Place of Publication
New York, NY
Publisher
Magination Press
Publication Date
1992
Physical Description
Softcover: ill., 28 p.
Subject
Self-Concept (includes self-esteem)
Amputation. Limb Prosthesis
Children's Health-Accidents and Injuries
Picture Books
Abstract
In this healing story, a little tree loses some of her branches in a storm. She experiences emotions of fear, self-blame, and worry so common to children facing serious medical problems. The little tree in the forest survives the storm and learns that although many branches and leaves were lost, she still has deep roots, a strong trunk and a beautiful heart. Children will discover that they too have strengths and abilities for living happy lives. A relaxation exercise is included.
ISBN
0945354517
Language
English
Material Type
Book
Call Number
JUNIOR CF 200 MIL 1992

Copies

BC Children's and Women's Family Library Available
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Sick and tired of feeling sick and tired: Living with invisible chronic illness

https://bcch.andornot.com/en/permalink/catalog125122
Donoghue, Paul J., Siegel, Mary E. New York, NY: W.W. Norton & Company, Inc. , 2000.
Material Type
Book
Call Number
EF 820 DON 2000
Availability
1 copy, 0 available
Unlike a leg in a cast, invisible chronic illness (ICI) has no observable symptoms. Consequently, people who suffer from chronic fatigue, chronic pain, and many other miseries often endure not only the ailment but dismissive and negative reactions from others.; Since its first publication, Sick and…
Author
Donoghue, Paul J.
Siegel, Mary E.
Place of Publication
New York, NY
Publisher
W.W. Norton & Company, Inc.
Publication Date
2000
Physical Description
Softcover, 304 pages
Subject
Lifestyle changes with chronic illness
Abstract
Unlike a leg in a cast, invisible chronic illness (ICI) has no observable symptoms. Consequently, people who suffer from chronic fatigue, chronic pain, and many other miseries often endure not only the ailment but dismissive and negative reactions from others.
Since its first publication, Sick and Tired of Feeling Sick and Tired has offered hope and coping strategies to thousands of people who suffer from ICI. Paul Donoghue and Mary Siegel teach their readers how to rethink how they themselves view their illness and how to communicate with loved ones and doctors in a way that meets their needs. The authors' understanding makes readers feel they have been heard for the first time.
For this edition, the authors include a new introduction drawing on the experiences of the many people who have responded to the book and to their lectures and television appearances. They expand the definition of ICI to include other ailments such as depression, addiction, and obsessive-compulsive disorders. They bring the resource material, including Web sites, up to the present, and they offer fresh insights on four topics that often emerge: guilt, how ICI affects the family, meaningfulness, and defining acceptance.
Notes
Recommended by CCDP
ISBN
9780393320657
Language
English
Material Type
Book
Call Number
EF 820 DON 2000

Copies

BC Children's and Women's Family Library On Loan, due Friday, April 26, 2024
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Understanding childhood hearing loss: Whole family approaches to living and thriving

https://bcch.andornot.com/en/permalink/catalog114056
Fligor, Brian. Lanham, MD: Rowman & Littlefield , 2015.
Material Type
Book
Call Number
FI 400.5 FLI 2015
Availability
1 copy, 1 available
Childhood hearing loss is more common than most people assume, and yet this invisible condition can rob a child of the ability to develop close emotional relationships with family and friends. This book demystifies this condition and offers emotionally-supportive approaches to caring for the child …
Author
Fligor, Brian
Place of Publication
Lanham, MD
Publisher
Rowman & Littlefield
Publication Date
2015
Physical Description
Hardcover, 192 p.
Subject
Hearing. Hard of Hearing-Children
Abstract
Childhood hearing loss is more common than most people assume, and yet this invisible condition can rob a child of the ability to develop close emotional relationships with family and friends. This book demystifies this condition and offers emotionally-supportive approaches to caring for the child and the whole family.
ISBN
9781442226661
Language
English
Material Type
Book
Call Number
FI 400.5 FLI 2015

Copies

Copy 1 BC Children's and Women's Family Library Available
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You don't look sick! : Living well with invisible chronic illness

https://bcch.andornot.com/en/permalink/catalog122326
Selak, Joy H., Overman, Steven S. New York: Demos Health 2nd Ed.
Material Type
Book
Call Number
EF 800 SEL 2013
Availability
2 copies, 2 available
"You Don√åt Look Sick chronicles one person√ås true-life story of illness and her physicians compassionate commentary as they journey through the four stages of chronic illness√õGetting Sick, Being Sick, Grief and Acceptance and Living Well. The authors address such practical aspe…
Author
Selak, Joy H.
Overman, Steven S.
Edition
2nd Ed
Place of Publication
New York
Publisher
Demos Health
Physical Description
Softcover ; xxviii, 166 p.
Subject
Chronic Illness
Abstract
"You DonÌt Look Sick chronicles one personÌs true-life story of illness and her physicians compassionate commentary as they journey through the four stages of chronic illnessÛGetting Sick, Being Sick, Grief and Acceptance and Living Well. The authors address such practical aspects as hiring a doctor, managing chronic pain, coping with grief and loss of function, winning battles with health and disability insurers, countering the social bias against the chronically ill, and recognizing the limitations of chronic illness care and charting a path for change and more. This warmhearted resource helps you focus on building a meaningful life as opposed to a life of frustration and fear. This book is thoroughly revised and updated based upon feedback from readers of the first edition. The authors have added a new section on Grief and Acceptance, address the passage of the Affordable Health Care Act and Dr. Overman has added practical travel tips that bring organization and focus to each phase of the journey. Designed for people at all stages of the chronic illness journey, this book is also illuminating for caregivers and loved ones"--from the Publisher
ISBN
9781936303427
Language
English
Material Type
Book
Call Number
EF 800 SEL 2013

Copies

BC Children's and Women's Family Library Available
copy 2 BC Children's and Women's Family Library Available
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On the path to possibility: A guide book for children, youth and families living with cerebral palsy

https://bcch.andornot.com/en/permalink/catalog123830
Holland Bloorview Kids Rehabilitation Hospital. Toronto, ON: Holland Bloorview Kids Rehabilitation Hospital
URL
https://hollandbloorview.ca/services/programs-services/cp-booklet
Material Type
Booklet
Online
From the authors:; "Many parents ask us, What can I read about cerebral palsy? This booklet was written to answer that very question. We hope this booklet will help explain what cerebral palsy (CP) is and what supports Holland Bloorview can offer."; Note: Pages 1-15 contain general information that…
  1 url  
URL
https://hollandbloorview.ca/services/programs-services/cp-booklet
Corporate Author
Holland Bloorview Kids Rehabilitation Hospital
Place of Publication
Toronto, ON
Publisher
Holland Bloorview Kids Rehabilitation Hospital
Physical Description
PDF; 23 pages
Subject
Cerebral Palsy
Abstract
From the authors:
"Many parents ask us, What can I read about cerebral palsy? This booklet was written to answer that very question. We hope this booklet will help explain what cerebral palsy (CP) is and what supports Holland Bloorview can offer."
Note: Pages 1-15 contain general information that may be helpful to families outside Ontario.
Language
English
Material Type
Booklet
Online
URLs
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Now what ... ? Living with the death of your parent or brother or sister from cancer

https://bcch.andornot.com/en/permalink/catalog112169
Don, Pauline, Young, Rob (Designer). Sydney, Australia: CanTeen , 2011.
URL
http://nowwhat.org.au/
Material Type
Book
Call Number
YOUTH GV 200 DON 2011
Availability
1 copy, 1 available
This book is meant to be like a friend accompanying a child or young adult on their journey of grief after losing a sibling or parent to cancer. This book was created with input from lots of young people who have shared similar experiences. And while it can't give you all the answers you may be loo…
  1 url  
URL
http://nowwhat.org.au/
Author
Don, Pauline
Young, Rob (Designer)
Corporate Author
The Australian Organisation for Young People Living with Cancer
Place of Publication
Sydney, Australia
Publisher
CanTeen
Publication Date
2011
Physical Description
Spiral bound soft cover: 66 p.
Subject
Cancer-Coping
Young Adults
Grief. Bereavement
Death and Dying
Abstract
This book is meant to be like a friend accompanying a child or young adult on their journey of grief after losing a sibling or parent to cancer. This book was created with input from lots of young people who have shared similar experiences. And while it can't give you all the answers you may be looking for, it may help you find something that helps you make sense of the space you're now in.
ISBN
9780980463743
Language
English
Material Type
Book
Call Number
YOUTH GV 200 DON 2011

Copies

Copy 1 BC Children's and Women's Family Library Available
URLs
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Easy for you to say: Q & A's for teens living with chronic illness or disability

https://bcch.andornot.com/en/permalink/catalog112348
Kaufman, Miriam. [Toronto, ON]: Firefly Books Ltd , 2012. 3rd ed.
Material Type
Book
Call Number
YOUTH EF 850.6 KAU 2012
Availability
1 copy, 1 available
In the 3rd edition, Dr. Miriam Kaufman addresses important topics for teens who are living with chronic conditions or disabilities. The topics include: Anemia, Cancer, Cerebral Palsy, Crohn's Disease, Deafness, Diabetes, Head Injury, Heart Disease, Hemophilia, HIV, Lupus, Muscular Dystrophy, Sickle…
Author
Kaufman, Miriam
Edition
3rd ed
Place of Publication
[Toronto, ON]
Publisher
Firefly Books Ltd
Publication Date
2012
Physical Description
Softcover: 309 p.
Subject
Coping with Chronic Illness
Young Adults
Physical Disability-Coping
Physical Disability. Physically Challenged
Relationships
Abstract
In the 3rd edition, Dr. Miriam Kaufman addresses important topics for teens who are living with chronic conditions or disabilities. The topics include: Anemia, Cancer, Cerebral Palsy, Crohn's Disease, Deafness, Diabetes, Head Injury, Heart Disease, Hemophilia, HIV, Lupus, Muscular Dystrophy, Sickle Cell Anemia, Seizures, Spinal Bifida, Spinal Cord Injuries, and Thyroid Disease.
ISBN
9781770850996
Language
English
Material Type
Book
Call Number
YOUTH EF 850.6 KAU 2012

Copies

Copy 1 BC Children's and Women's Family Library Available
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The MindUp curriculum : brain-focused strategies for learning-and living : Grades 3-5

https://bcch.andornot.com/en/permalink/catalog113501
Hawn Foundation. New York, NY: Scholastic , 2011.
Material Type
Book
Call Number
CA 200 HAW 2011b
Availability
1 copy, 1 available
Research-based curriculum that features 15 lessons using the latest information about the brain to dramatically improve behavior and learning for all students. Each lesson offers easy strategies for helping students focus their attention, improve their self-regulation, build resilience to stress, a…
Author
Hawn Foundation
Place of Publication
New York, NY
Publisher
Scholastic
Publication Date
2011
Series
MindUp Curriculum
Subject
Children Mental Health
Children's Health Promotion
Learning
Abstract
Research-based curriculum that features 15 lessons using the latest information about the brain to dramatically improve behavior and learning for all students. Each lesson offers easy strategies for helping students focus their attention, improve their self-regulation, build resilience to stress, and to develop a positive mind-set in both school and life.
ISBN
9780545267137
Language
English
Material Type
Book
Call Number
CA 200 HAW 2011b

Copies

Copy 1 BC Children's and Women's Family Library Curricula Available
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The MindUp curriculum : brain-focused strategies for learning-and living : Grades 6-8

https://bcch.andornot.com/en/permalink/catalog113502
Hawn Foundation. New York, NY: Scholastic , 2011.
Material Type
Book
Call Number
CA 200 HAW 2011c
Availability
1 copy, 1 available
Research-based curriculum that features 15 lessons using the latest information about the brain to dramatically improve behavior and learning for all students. Each lesson offers easy strategies for helping students focus their attention, improve their self-regulation, build resilience to stress, a…
Author
Hawn Foundation
Place of Publication
New York, NY
Publisher
Scholastic
Publication Date
2011
Series
MindUp Curriculum
Subject
Children Mental Health
Children's Health Promotion
Learning
Abstract
Research-based curriculum that features 15 lessons using the latest information about the brain to dramatically improve behavior and learning for all students. Each lesson offers easy strategies for helping students focus their attention, improve their self-regulation, build resilience to stress, and to develop a positive mind-set in both school and life.
ISBN
9780545267144
Language
English
Material Type
Book
Call Number
CA 200 HAW 2011c

Copies

Copy 1 BC Children's and Women's Family Library Curricula Available
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But you look good: How to encourage and understand people living with illness and pain

https://bcch.andornot.com/en/permalink/catalog122282
Connell, Wayne, Connell, Sherri. Parker, Colorado: Invisible Disabilities Association , 2014.
Material Type
Book
Call Number
FM 830 CON 2014
Availability
2 copies, 2 available
"Do your loved ones have a hard time understanding your chronic illness or pain, because to them you LOOK fine? But You LOOK Good is a book that gives those living with chronic illness and pain a voice about how they feel, what they need and how others can be an encouragement to them. It is a conv…
Author
Connell, Wayne
Connell, Sherri
Place of Publication
Parker, Colorado
Publisher
Invisible Disabilities Association
Publication Date
2014
Physical Description
Softcover ; 85 p.
Subject
Chronic Illness
Chronic Pain
Abstract
"Do your loved ones have a hard time understanding your chronic illness or pain, because to them you LOOK fine? But You LOOK Good is a book that gives those living with chronic illness and pain a voice about how they feel, what they need and how others can be an encouragement to them. It is a convenient, informative way to educate loved ones about what people living with ongoing illness and pain struggle with, fight for and need from their friends and family. It is easy to read, gives practical ideas on how loved ones can be supportive and is not too long for readers to lose interest!"--from publisher.
ISBN
9780692258453
Language
English
Material Type
Book
Call Number
FM 830 CON 2014

Copies

copy 1 BC Children's and Women's Family Library Available
copy 2 BC Children's and Women's Family Library Available
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Living a healthy life with chronic conditions: For ongoing physical and mental health conditions

https://bcch.andornot.com/en/permalink/catalog122290
Lorig, Kate, Holman, Halsted, Sobel, David, Laurent, Diana, Gonzalez, Virginia, Minor, Marian. Boulder, CO: Bull Publishing Company , 2013. Canadian Edition, 4th.
Material Type
Book
Call Number
EF 800 LOR 2013
Availability
2 copies, 2 available
"Living a Healthy Life with Chronic Conditions is a proven self-management guide. People with chonic health conditions live most of their lives outside of hospitals and clinics. This book is designed to help them learn the information and skills to manage chronic conditions on a daily basis while d…
Author
Lorig, Kate
Holman, Halsted
Sobel, David
Laurent, Diana
Gonzalez, Virginia
Minor, Marian
Edition
Canadian Edition, 4th
Place of Publication
Boulder, CO
Publisher
Bull Publishing Company
Publication Date
2013
Physical Description
Softcover ; vii, 368 p.
Subject
Chronic Illness
Mental Health/Illness
Fatigue
Pain
Depression
Abstract
"Living a Healthy Life with Chronic Conditions is a proven self-management guide. People with chonic health conditions live most of their lives outside of hospitals and clinics. This book is designed to help them learn the information and skills to manage chronic conditions on a daily basis while doing the things they need and want to do.
"This new edition is completely redesigned for easy reading and fully updated with the latest research and information. The book is a vital resource full of practical tips, suggestions, and strategies to build confidence in managing chronic illness and symptoms, such as fatigue, pain, shortness of breath, disability, and depression. It encourages readers to develop individual approaches to setting goals, making decisions, and finding resources and support"--from Publisher.
ISBN
97819396693498
Language
English
Material Type
Book
Call Number
EF 800 LOR 2013

Copies

BC Children's and Women's Family Library Available
copy 2 BC Children's and Women's Family Library Available
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Living Well with Pain and Illness: The Mindful Way to Free Yourself from Suffering

https://bcch.andornot.com/en/permalink/catalog123953
Burch, Vidyamala. Boulder, CO: Sounds True , 2010.
Material Type
Book
Call Number
FM 830 BUR 2010
Availability
1 copy, 1 available
After two serious spinal injuries, Vidyamala Burch found herself facing the loneliness of disability and chronic pain with few skills or resources to turn to. But instead of giving up, she set out on a mission to embrace her physical challenges with compassion, acceptance, and peace.; Living Well w…
Author
Burch, Vidyamala
Place of Publication
Boulder, CO
Publisher
Sounds True
Publication Date
2010
Subject
Chronic Pain
Mindfulness
Abstract
After two serious spinal injuries, Vidyamala Burch found herself facing the loneliness of disability and chronic pain with few skills or resources to turn to. But instead of giving up, she set out on a mission to embrace her physical challenges with compassion, acceptance, and peace.
Living Well with Pain and Illness shares the fruits of her courageous life?s work, teaching us how the practice of mindfulness can help us thrive in the face of health challenges of any kind. Drawing on the wisdom of a dozen years of teaching meditation and a lifetime of study of the benefits of mindful living, Vidyamala encourages readers with insights and instruction in:
The five-step model of mindfulness and how to use it to foster healing
The Breathworks approach to meditation, and how to apply it to health concerns such as migraines, arthritis, and chronic fatigue
Step-by-step techniques, illustrations, and case studies demonstrating how to effectively bring mindfulness into daily life
Chronic pain has been called the modern world?s silent epidemic. Billions are spent every year in an attempt to cope, yet the best solution available may be absolutely free: mindful living. In Living Well with Pain and Illness, Vidyamala Burch presents a work that is at once an inspirational memoir and practical guidebook for using mindfulness to reframe your relationship with physical and emotional suffering.
ISBN
9781591797470
Language
English
Material Type
Book
Call Number
FM 830 BUR 2010

Copies

copy 1 BC Children's and Women's Family Library Available
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The MindUp curriculum : brain-focused strategies for learning-and living : Grades Pre-K-2

https://bcch.andornot.com/en/permalink/catalog113500
Hawn Foundation. New York, NY: Scholastic , 2011.
Material Type
Book
Call Number
CA 200 HAW 2011a
Availability
1 copy, 1 available
Research-based curriculum that features 15 lessons using the latest information about the brain to dramatically improve behavior and learning for all students. Each lesson offers easy strategies for helping students focus their attention, improve their self-regulation, build resilience to stress, a…
Author
Hawn Foundation
Place of Publication
New York, NY
Publisher
Scholastic
Publication Date
2011
Series
MindUp Curriculum
Subject
Children Mental Health
Children's Health Promotion
Learning
Abstract
Research-based curriculum that features 15 lessons using the latest information about the brain to dramatically improve behavior and learning for all students. Each lesson offers easy strategies for helping students focus their attention, improve their self-regulation, build resilience to stress, and to develop a positive mind-set in both school and life.
ISBN
9780545267120
Language
English
Material Type
Book
Call Number
CA 200 HAW 2011a

Copies

Copy 1 BC Children's and Women's Family Library Curricula Available
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Full Catastrophe Living: How to Cope with Stress, Pain, and Illness Using Mindfulness Meditation

https://bcch.andornot.com/en/permalink/catalog123942
Kabat-Zinn, Jon. Random House , 2013. Revised and updated edition.
Material Type
Book
Call Number
EG 225 KAB 2013
Availability
1 copy, 1 available
Stress. It can sap our energy, undermine our health if we let it, even shorten our lives. It makes us more vulnerable to anxiety and depression, disconnection and disease. Based on Jon Kabat-Zinn's renowned mindfulness-based stress reduction program, this classic, groundbreaking work - which gave …
Author
Kabat-Zinn, Jon
Edition
Revised and updated edition
Publisher
Random House
Publication Date
2013
Physical Description
Softcover; 650 pages
Subject
Mindfulness
Chronic Illness
Anxiety
Abstract
Stress. It can sap our energy, undermine our health if we let it, even shorten our lives. It makes us more vulnerable to anxiety and depression, disconnection and disease. Based on Jon Kabat-Zinn's renowned mindfulness-based stress reduction program, this classic, groundbreaking work - which gave rise to a whole new field in medicine and psychology -
shows you how to use medically proven mind-body approaches derived from meditation and yoga to counteract stress, establish greater balance of body and mind, and stimulate well-being and healing. By engaging in these mindfulness practices and integrating them into your life from moment to moment and from day to day, you can learn to manage chronic pain, promote optimal healing, reduce anxiety and feelings of panic, and improve the overall quality of your life, relationships, and social networks. This second edition features results from recent studies on the science of mindfulness, a new Introduction, up-to-date statistics, and an extensive updated reading list. Full Catastrophe Living is a book for the young and the old, the well and the ill, and anyone trying to live a healthier and saner life in our fast-paced world.
ISBN
9780749958411
Language
English
Material Type
Book
Call Number
EG 225 KAB 2013

Copies

copy 1 BC Children's and Women's Family Library Available
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Present over perfect: Leaving behind frantic for a simpler, more soulful way of living

https://bcch.andornot.com/en/permalink/catalog124634
Niequist, Shauna. Brilliance Audio , 2016.
Material Type
Audio
Call Number
EG 225 NIE 2016
Availability
1 copy, 1 available
In a culture that values speed, efficiency, image, and busyness, some of us are aching for another way to live: more intentional, more connected. Simpler, slower, richer. Many of us have believed the myth that achievement and success bring us contentment, only to find it?s actually things like conn…
Author
Niequist, Shauna
Publisher
Brilliance Audio
Publication Date
2016
Physical Description
MP3 CD
Subject
Mindfulness
Abstract
In a culture that values speed, efficiency, image, and busyness, some of us are aching for another way to live: more intentional, more connected. Simpler, slower, richer. Many of us have believed the myth that achievement and success bring us contentment, only to find it?s actually things like connection and meaning, not success and achievement, that provide true peace and genuine happiness.
Present Over Perfect is bestselling author Shauna Niequist?s motto for how to live a rich, engaged, and loving life in the midst of what often feels terribly messy and imperfect. Similar in format to Shauna?s previous books, Present Over Perfect is a collection of essays that focuses on the journey from frantic and tired to connected and free. Many of us find ourselves busier than we want to be, missing the sweetest moments along the way. We end up resentful and distracted, full of regret and feeling disconnected. Present Over Perfect is a hand reaching out to a new way of living - full of grace, space, and connection.
As a wife, mother, friend, and writer, Shauna shares with vulnerability and transparency about the reality of living wholly present in our relationships with our families and the others we love and inspires readers to discover their own path to this more fulfilling way to do life.
Notes
Recommended by CCDP
ISBN
9781531832056
Language
English
Material Type
Audio
Call Number
EG 225 NIE 2016

Copies

BC Children's and Women's Family Library Available
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