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Easy for you to say: Q & A's for teens living with chronic illness or disability

https://bcch.andornot.com/en/permalink/catalog112348
Kaufman, Miriam. [Toronto, ON]: Firefly Books Ltd , 2012. 3rd ed.
Material Type
Book
Call Number
YOUTH EF 850.6 KAU 2012
Availability
1 copy, 1 available
In the 3rd edition, Dr. Miriam Kaufman addresses important topics for teens who are living with chronic conditions or disabilities. The topics include: Anemia, Cancer, Cerebral Palsy, Crohn's Disease, Deafness, Diabetes, Head Injury, Heart Disease, Hemophilia, HIV, Lupus, Muscular Dystrophy, Sickle…
Author
Kaufman, Miriam
Edition
3rd ed
Place of Publication
[Toronto, ON]
Publisher
Firefly Books Ltd
Publication Date
2012
Physical Description
Softcover: 309 p.
Subject
Coping with Chronic Illness
Young Adults
Physical Disability-Coping
Physical Disability. Physically Challenged
Relationships
Abstract
In the 3rd edition, Dr. Miriam Kaufman addresses important topics for teens who are living with chronic conditions or disabilities. The topics include: Anemia, Cancer, Cerebral Palsy, Crohn's Disease, Deafness, Diabetes, Head Injury, Heart Disease, Hemophilia, HIV, Lupus, Muscular Dystrophy, Sickle Cell Anemia, Seizures, Spinal Bifida, Spinal Cord Injuries, and Thyroid Disease.
ISBN
9781770850996
Language
English
Material Type
Book
Call Number
YOUTH EF 850.6 KAU 2012

Copies

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Aches, pains, and love: A guide to dating and relationships for those with chronic pain and illness

https://bcch.andornot.com/en/permalink/catalog122281
Lynne, Kira. [Canada]: Moppet Press , 2016.
Material Type
Book
Call Number
FM 830 LYN 2016
Availability
1 copy, 1 available
"Having been told by a doctor 20 years ago that I'd never be able to have a relationship due to my chronic pain, and having proved her wrong, I've set out to write a book for those who are living with chronic pain and illness and who have given up on or are struggling with relationships.; "It is po…
Author
Lynne, Kira
Place of Publication
[Canada]
Publisher
Moppet Press
Publication Date
2016
Physical Description
Softcover ; xxv, 361 p.
Subject
Chronic Pain
Relationships
Dating
Abstract
"Having been told by a doctor 20 years ago that I'd never be able to have a relationship due to my chronic pain, and having proved her wrong, I've set out to write a book for those who are living with chronic pain and illness and who have given up on or are struggling with relationships.
"It is possible to live well with chronic pain and illness, and it is possible to form lasting, loving relationships. In my book I provide you with a step-by-step guide to getting the love you want, regardless of your physical condition"--from publisher.
ISBN
9780994993502
Language
English
Material Type
Book
Call Number
FM 830 LYN 2016

Copies

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How to live well with chronic pain and illness: A mindful guide

https://bcch.andornot.com/en/permalink/catalog122440
Bernhard, Toni. Somerville, MA: Wisdom Publications , 2015.
Material Type
Book
Call Number
EF 850 BER 2015
Availability
2 copies, 2 available
Comfort, understanding, and advice for those who are suffering?and those who care for them.; Chronic illness creates many challenges, from career crises and relationship issues to struggles with self-blame, personal identity, and isolation. Beloved author Toni Bernhard addresses these challenges an…
Author
Bernhard, Toni
Place of Publication
Somerville, MA
Publisher
Wisdom Publications
Publication Date
2015
Physical Description
337 pages
Subject
Coping with Chronic Illness
Chronic Illness
Chronic Pain
Abstract
Comfort, understanding, and advice for those who are suffering?and those who care for them.
Chronic illness creates many challenges, from career crises and relationship issues to struggles with self-blame, personal identity, and isolation. Beloved author Toni Bernhard addresses these challenges and many more, using practical examples to illustrate how mindfulness, equanimity, and compassion can help readers make peace with a life turned upside down.
In her characteristic conversational style, Bernhard shows how to cope and make the most of life despite the challenges of chronic illness. Benefit from:
? Mindfulness exercises to mitigate physical and emotional pain
? Concrete advice for negotiating the everyday hurdles of medical appointments, household chores, and social obligations
? Tools for navigating the strains illness can place on relationships
Several chapters are directed toward family and friends of the chronically ill, helping them to understand what their loved one is going through and how they can help.
Humorous and empathetic, Bernhard shares her own struggles and setbacks with unflinching honesty, offering invaluable support in the search to find peace and well-being.
ISBN
9781614292487
Language
English
Material Type
Book
Call Number
EF 850 BER 2015

Copies

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But you look good: How to encourage and understand people living with illness and pain

https://bcch.andornot.com/en/permalink/catalog122282
Connell, Wayne, Connell, Sherri. Parker, Colorado: Invisible Disabilities Association , 2014.
Material Type
Book
Call Number
FM 830 CON 2014
Availability
2 copies, 2 available
"Do your loved ones have a hard time understanding your chronic illness or pain, because to them you LOOK fine? But You LOOK Good is a book that gives those living with chronic illness and pain a voice about how they feel, what they need and how others can be an encouragement to them. It is a conv…
Author
Connell, Wayne
Connell, Sherri
Place of Publication
Parker, Colorado
Publisher
Invisible Disabilities Association
Publication Date
2014
Physical Description
Softcover ; 85 p.
Subject
Chronic Illness
Chronic Pain
Abstract
"Do your loved ones have a hard time understanding your chronic illness or pain, because to them you LOOK fine? But You LOOK Good is a book that gives those living with chronic illness and pain a voice about how they feel, what they need and how others can be an encouragement to them. It is a convenient, informative way to educate loved ones about what people living with ongoing illness and pain struggle with, fight for and need from their friends and family. It is easy to read, gives practical ideas on how loved ones can be supportive and is not too long for readers to lose interest!"--from publisher.
ISBN
9780692258453
Language
English
Material Type
Book
Call Number
FM 830 CON 2014

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Full Catastrophe Living: How to Cope with Stress, Pain, and Illness Using Mindfulness Meditation

https://bcch.andornot.com/en/permalink/catalog123942
Kabat-Zinn, Jon. Random House , 2013. Revised and updated edition.
Material Type
Book
Call Number
EG 225 KAB 2013
Availability
1 copy, 1 available
Stress. It can sap our energy, undermine our health if we let it, even shorten our lives. It makes us more vulnerable to anxiety and depression, disconnection and disease. Based on Jon Kabat-Zinn's renowned mindfulness-based stress reduction program, this classic, groundbreaking work - which gave …
Author
Kabat-Zinn, Jon
Edition
Revised and updated edition
Publisher
Random House
Publication Date
2013
Physical Description
Softcover; 650 pages
Subject
Mindfulness
Chronic Illness
Anxiety
Abstract
Stress. It can sap our energy, undermine our health if we let it, even shorten our lives. It makes us more vulnerable to anxiety and depression, disconnection and disease. Based on Jon Kabat-Zinn's renowned mindfulness-based stress reduction program, this classic, groundbreaking work - which gave rise to a whole new field in medicine and psychology -
shows you how to use medically proven mind-body approaches derived from meditation and yoga to counteract stress, establish greater balance of body and mind, and stimulate well-being and healing. By engaging in these mindfulness practices and integrating them into your life from moment to moment and from day to day, you can learn to manage chronic pain, promote optimal healing, reduce anxiety and feelings of panic, and improve the overall quality of your life, relationships, and social networks. This second edition features results from recent studies on the science of mindfulness, a new Introduction, up-to-date statistics, and an extensive updated reading list. Full Catastrophe Living is a book for the young and the old, the well and the ill, and anyone trying to live a healthier and saner life in our fast-paced world.
ISBN
9780749958411
Language
English
Material Type
Book
Call Number
EG 225 KAB 2013

Copies

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Ultimate guide to sex and disability: For all of us who live with disabilities, chronic pain and illness

https://bcch.andornot.com/en/permalink/catalog114030
Kaufman, Miriam, Silverberg, Cory, Odette, Fran. San Francisco, CA: Cleis Press , 2007.
Material Type
Book
Call Number
GA 110 KAU 2007
Availability
2 copies, 2 available
The Ultimate Guide to Sex and Disability is the first complete sex guide for people who live with disabilities, pain, illness, or chronic conditions. Useful for absolutely everyone, regardless of age, gender, or sexual orientation, the book addresses a wide range of disabilities - from chronic fati…
Author
Kaufman, Miriam
Silverberg, Cory
Odette, Fran
Place of Publication
San Francisco, CA
Publisher
Cleis Press
Publication Date
2007
Physical Description
Softcover, 345 p.
Subject
Developmental Disabilities
Sexuality
Abstract
The Ultimate Guide to Sex and Disability is the first complete sex guide for people who live with disabilities, pain, illness, or chronic conditions. Useful for absolutely everyone, regardless of age, gender, or sexual orientation, the book addresses a wide range of disabilities - from chronic fatigue, back pain, and asthma to spinal cord injury, hearing and visual impairment, multiple sclerosis, and more.
Notes
Recommended by CCDP
ISBN
9781573443043
Language
English
Material Type
Book
Call Number
GA 110 KAU 2007

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Children's Health and Illness Recovery Program (CHIRP): Clinician guide

https://bcch.andornot.com/en/permalink/catalog124615
Carter, Bryan D., Kronenberger, William G., Scott, Eric L., Brady, Christine E. Oxford, UK: Oxford University Press , 2020.
Material Type
Book
Call Number
EF 850.6 CAR 2020b
Availability
1 copy, 1 available
Youth with chronic illnesses face challenges that may prove disruptive to physical, psychological, and social development. Based on extensive research and clinical expertise, Children's Health and Illness Recovery Program (CHIRP) is an interdisciplinary cognitive behavioral and family systems-based…
Author
Carter, Bryan D.
Kronenberger, William G.
Scott, Eric L.
Brady, Christine E.
Place of Publication
Oxford, UK
Publisher
Oxford University Press
Publication Date
2020
Physical Description
Softcover; 173 pages
Series
Programs that work
Subject
Coping with Chronic Illness Young Adult
Coping with Chronic Illness
Coping with Chronic Illness-Children
Abstract
Youth with chronic illnesses face challenges that may prove disruptive to physical, psychological, and social development. Based on extensive research and clinical expertise, Children's Health and Illness Recovery Program (CHIRP) is an interdisciplinary cognitive behavioral and family systems-based treatment program designed to maximize the independent functioning of teens with chronic illness.
This Clinician Guide offers a detailed outline for implementing this manualized intervention and provides clear guidance as to the philosophy, pragmatics, and art of working with challenging pediatric conditions. Designed to accompany the CHIRP Teen and Family Workbook, this book addresses specific assessment measures and tools needed to establish a collaborative treatment team approach that incorporates the skills of the CHIRP clinician, primary and specialty care providers, and roles of other healthcare (physical therapists, occupational therapists, etc.) and educational professionals critical to the successful management and treatment of these youth.
ISBN
9780190070267
Language
English
Material Type
Book
Call Number
EF 850.6 CAR 2020b

Copies

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Understanding living with a chronic illness: Written by doctors for kids

https://bcch.andornot.com/en/permalink/catalog121225
Renfrew, Ruth, deLoache, Shawn. New York, NY: Jumo , 2018.
Material Type
Book
Call Number
JUNIOR EF 800 REN 2018
Availability
1 copy, 1 available
Comic book featuring Medikidz, superhero experts on health and illness. Explains how chronic illness can affect individuals and their families.
Author
Renfrew, Ruth
deLoache, Shawn
Editor
Medikidz USA Inc.
Place of Publication
New York, NY
Publisher
Jumo
Publication Date
2018
Physical Description
Softcover; 16 p.
Subject
Chronic Illness
Abstract
Comic book featuring Medikidz, superhero experts on health and illness. Explains how chronic illness can affect individuals and their families.
Language
English
Material Type
Book
Call Number
JUNIOR EF 800 REN 2018

Copies

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Young, sick, and invisible: A skeptic's journey with chronic illness

https://bcch.andornot.com/en/permalink/catalog122237
Bula, Ania. Durham, North Carolina: Pitchstone Publishing , 2016.
Material Type
Book
Call Number
EF 800 BUL 2016
Availability
1 copy, 1 available
"Drawing on her own deeply personal experiences, Ania Bula explores what it is like to live with unseen chronic disabilities. She paints a vibrant picture of what it is like to be diagnosed with two life-long debilitating conditions as a young adult and relates the challenges and frustrations of de…
Author
Bula, Ania
Place of Publication
Durham, North Carolina
Publisher
Pitchstone Publishing
Publication Date
2016
Physical Description
Softcover ; 224 p.
Subject
Chronic Illness
Abstract
"Drawing on her own deeply personal experiences, Ania Bula explores what it is like to live with unseen chronic disabilities. She paints a vibrant picture of what it is like to be diagnosed with two life-long debilitating conditions as a young adult and relates the challenges and frustrations of dealing with predatory alternative medicine practitioners, arrogant doctors, indifferent bureaucracies, and well-meaning friends and family who always seem to say either the wrong thing-or nothing at all. As she discovered, suddenly everyone's aunt is a health expert and everyone's fad diet a cure. Making matters worse, her physical torment quickly translated into mental stresses. Relationships became strained, while others, including all-important romantic ones, never had a chance to start at all. Wading through a constant stream of ignorance and lies, in a desperate attempt to find peace, to stop the pain, and to return to a more normal life, she submits to being stuffed with powders and magic potions, poked and prodded, and even "faith healed." With honesty and humor, she shares her journey of pain, suffering, and, ultimately, coping, both to help others gain some understanding about what it is like to live with chronic illness-and to help those who might similarly suffer feel less alone, so that they too might start living again.
"Drawing on the author's personal experiences with her own physical and mental health struggles, the book explores what it is like to live with chronic disabilities as a young adult"-- Provided by publisher
Notes
Recommended by CCDP
ISBN
9781634310734
Language
English
Material Type
Book
Call Number
EF 800 BUL 2016

Copies

copy 1 BC Children's and Women's Family Library Available
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In Sickness as in Health: Helping Couples Cope with the Complexities of Illness

https://bcch.andornot.com/en/permalink/catalog124001
Kivowitz, Barbara, Weisman, Roanne. Petaluma, CA: Roundtree Press , 2013.
Material Type
Book
Call Number
EF 800 KIV 2013
Availability
1 copy, 1 available
For those who find themselves at the intersection of lifetime love and overwhelming obligation, the right path is often painful and difficult to find. When illness invades the couple relationship, partners ask themselves and each other some really hard questions: "What do I want to do for this pers…
Author
Kivowitz, Barbara
Weisman, Roanne
Place of Publication
Petaluma, CA
Publisher
Roundtree Press
Publication Date
2013
Physical Description
Softcover; 192 pages
Subject
Chronic Illness
Abstract
For those who find themselves at the intersection of lifetime love and overwhelming obligation, the right path is often painful and difficult to find. When illness invades the couple relationship, partners ask themselves and each other some really hard questions: "What do I want to do for this person whom I have loved for many years?" "How much of my life do I give up to take care of my beloved?" "How do I sit by my beloved's side and watch her suffer?" While writing In Sickness as in Health, authors Barbara Kivowitz and Roanne Weisman learned through interviews with many couples, as well as with medical, spiritual, legal, rehabilitation and psychological experts, that couples find their own ways to deal with illnesses and catastrophic injuries.
ISBN
9781937359133
Language
English
Material Type
Book
Call Number
EF 800 KIV 2013

Copies

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Billy's sister: Life when your sibling has a disability

https://bcch.andornot.com/en/permalink/catalog123303
Leving, Jessica, Sfar, Wiem [illustrator]. The Center for Siblings of People with Disabilities , 2019.
Material Type
Book
Call Number
JUNIOR GK 665 LEV 2019
Availability
1 copy, 1 available
Growing up with a sibling who has a disability can be hard. But it can also be... awesome! Based on the author's real-life experiences, this unique and touching children's book explores how siblings of kids with disabilities are special, too. Created with the support of licensed clinical social wor…
Author
Leving, Jessica
Sfar, Wiem [illustrator]
Publisher
The Center for Siblings of People with Disabilities
Publication Date
2019
Physical Description
36 p.
Series
A Project of The Center for Siblings of People with Disabilities
Subject
Sibling Relationships
Siblings of Children with Disabilities
Abstract
Growing up with a sibling who has a disability can be hard. But it can also be... awesome! Based on the author's real-life experiences, this unique and touching children's book explores how siblings of kids with disabilities are special, too. Created with the support of licensed clinical social workers with the aim of helping siblings of kids with disabilities identify, express and process their feelings. This book is intended to be read with a parent or trusted adult and spark family discussions you'll keep coming back to.
For ages 3-8.
ISBN
9798618220682
Language
English
Material Type
Book
Call Number
JUNIOR GK 665 LEV 2019

Copies

BC Children's and Women's Family Library Available
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Children's Health and Illness Recovery Program (CHIRP): Teen and family workbook

https://bcch.andornot.com/en/permalink/catalog124614
Carter, Bryan D., Kronenberger, William G., Scott, Eric L. Oxford, UK: Oxford University Press , 2020.
Material Type
Book
Call Number
EF 850.6 CAR 2020
Availability
1 copy, 1 available
Children and adolescents with chronic illnesses, particularly those accompanied by debilitating, painful, and/or fatiguing symptoms, face challenges that may prove disruptive to physical, psychological, and social development. Based on extensive research and clinical expertise, Children's Health an…
Author
Carter, Bryan D.
Kronenberger, William G.
Scott, Eric L.
Place of Publication
Oxford, UK
Publisher
Oxford University Press
Publication Date
2020
Physical Description
Softcover; 113 pages
Series
Programs that work
Subject
Coping with Chronic Illness Young Adult
Coping with Chronic Illness
Coping with Chronic Illness-Children
Abstract
Children and adolescents with chronic illnesses, particularly those accompanied by debilitating, painful, and/or fatiguing symptoms, face challenges that may prove disruptive to physical, psychological, and social development. Based on extensive research and clinical expertise, Children's Health and Illness Recovery Program (CHIRP) is an effective treatment program designed to build and maintain independence in young people with chronic illness.
This Teen and Family Workbook provides proven treatment activities designed to combat the additional stress faced by youth coping with long-term health problems. These tasks target key areas for improvement in physical functioning, school functioning, and personal functioning and support the creation of new tools for managing the impact of illness, such as stress management, coping and relaxation techniques, and communication skills. In-session and take-home activities outlined in this workbook are meant to accompany the companion CHIRP Clinician Guide. With the use of this workbook and supported by a network of clinicians, healthcare specialists, and school professionals, adolescents and their families can return to a better quality of life.
ISBN
9780190070472
Language
English
Material Type
Book
Call Number
EF 850.6 CAR 2020

Copies

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You don't look sick! : Living well with invisible chronic illness

https://bcch.andornot.com/en/permalink/catalog122326
Selak, Joy H., Overman, Steven S. New York: Demos Health 2nd Ed.
Material Type
Book
Call Number
EF 800 SEL 2013
Availability
2 copies, 2 available
"You Don√åt Look Sick chronicles one person√ås true-life story of illness and her physicians compassionate commentary as they journey through the four stages of chronic illness√õGetting Sick, Being Sick, Grief and Acceptance and Living Well. The authors address such practical aspe…
Author
Selak, Joy H.
Overman, Steven S.
Edition
2nd Ed
Place of Publication
New York
Publisher
Demos Health
Physical Description
Softcover ; xxviii, 166 p.
Subject
Chronic Illness
Abstract
"You DonÌt Look Sick chronicles one personÌs true-life story of illness and her physicians compassionate commentary as they journey through the four stages of chronic illnessÛGetting Sick, Being Sick, Grief and Acceptance and Living Well. The authors address such practical aspects as hiring a doctor, managing chronic pain, coping with grief and loss of function, winning battles with health and disability insurers, countering the social bias against the chronically ill, and recognizing the limitations of chronic illness care and charting a path for change and more. This warmhearted resource helps you focus on building a meaningful life as opposed to a life of frustration and fear. This book is thoroughly revised and updated based upon feedback from readers of the first edition. The authors have added a new section on Grief and Acceptance, address the passage of the Affordable Health Care Act and Dr. Overman has added practical travel tips that bring organization and focus to each phase of the journey. Designed for people at all stages of the chronic illness journey, this book is also illuminating for caregivers and loved ones"--from the Publisher
ISBN
9781936303427
Language
English
Material Type
Book
Call Number
EF 800 SEL 2013

Copies

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The chronic illness workbook : Strategies and solutions for taking back your life

https://bcch.andornot.com/en/permalink/catalog122395
Fennell, Patricia A. Latham, New York: Albany Health Management Publishing , 2012.
Material Type
Book
Call Number
EF 800 FEN 2012
Availability
2 copies, 2 available
This book "brings clarity and order to what feels like an unmanageable and isolating experience. It shows both those who are ill and those who care for them how to live a full and meaningful life despite undeniable difficulties. Using her extensive experience with chronic illness patients, Patricia…
  1 image  
Author
Fennell, Patricia A.
Place of Publication
Latham, New York
Publisher
Albany Health Management Publishing
Publication Date
2012
Physical Description
Softcover ; 253 p.
Subject
Chronic Illness
Abstract
This book "brings clarity and order to what feels like an unmanageable and isolating experience. It shows both those who are ill and those who care for them how to live a full and meaningful life despite undeniable difficulties. Using her extensive experience with chronic illness patients, Patricia Fennell has created an original, comprehensive, research-validated approach that considers not only the physical aspects of chronic illness, but the psychological, social, and economic aspects as well"--from the Publisher
ISBN
9780979640711
Language
English
Material Type
Book
Call Number
EF 800 FEN 2012

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When your child has a chronic medical illness: A guide for the parenting journey

https://bcch.andornot.com/en/permalink/catalog123817
Sileo, Frank J., Potter, Carol S. Washington, DC: American Psychological Association , 2021.
Material Type
Book
Call Number
EF 850.5 SIL 2021
Availability
1 copy, 1 available
Written by leading mental health professionals, this warm and accessible parenting book for children with chronic illnesses offers clear, practical guidance for all aspects of the journey. It is recommended by professionals at the American Diabetes Association, Invisible Disabilities Association, t…
Author
Sileo, Frank J.
Potter, Carol S.
Place of Publication
Washington, DC
Publisher
American Psychological Association
Publication Date
2021
Physical Description
Softcover; 419 pages
Subject
Coping with Chronic Illness-Children
Coping with Chronic Illness in the Family
Coping with Chronic Illness-Young Adult
Abstract
Written by leading mental health professionals, this warm and accessible parenting book for children with chronic illnesses offers clear, practical guidance for all aspects of the journey. It is recommended by professionals at the American Diabetes Association, Invisible Disabilities Association, the Crohn's Colitis Foundation, and other expert national and regional sources.
For all its joys, parenting is a complex job, and when your child has a chronic illness, the stress can feel overwhelming. When your child is diagnosed, you begin a parenting journey filled with strong emotions, difficult choices, confusing words, and interactions with numerous professionals and specialists.
You're focused on ensuring your child gets the best possible treatments for their symptoms, so it's easy to overlook or dismiss the impact the illness can have on your relationships and emotions. This book places your psychological well-being front and center, so you can be the best caregiver possible for your child.
Along with suggestions for making laughter and mindfulness part of your daily self-care routine, it offers guidance for choosing the right therapist for your family, should extra support be needed. Every family's journey with chronic illness is unique, but you don't have to go it alone.
ISBN
9781433833816
Language
English
Material Type
Book
Call Number
EF 850.5 SIL 2021

Copies

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When someone you love has a chronic illness: Hope and help for those providing support

https://bcch.andornot.com/en/permalink/catalog122265
McClintock Greenberg, Tamara. Springville, UT: Plain Sight Publishing , 2012.
Material Type
Book
Call Number
EF 800 GRE 2012
Availability
1 copy, 1 available
"Dr. Tamara Greenberg offers hope and practical advice to those impacted by a loved one's illness with this new book., "When Someone You Love Has a Chronic Illness: Hope and Help for Those Providing Support. Inside, Dr. Greenberg provides easy-to-understand explanations for complicated feelings and…
Author
McClintock Greenberg, Tamara
Place of Publication
Springville, UT
Publisher
Plain Sight Publishing
Publication Date
2012
Physical Description
Softcover ; xiv, 157 p.
Subject
Chronic Illness
Abstract
"Dr. Tamara Greenberg offers hope and practical advice to those impacted by a loved one's illness with this new book., "When Someone You Love Has a Chronic Illness: Hope and Help for Those Providing Support. Inside, Dr. Greenberg provides easy-to-understand explanations for complicated feelings and behaviors and offers pragmatic strategies for coping effectively and serving your loved one in this time of need.
"Learn how to talk to someone who is ill, what not to do, how to address your loved ones who aren't taking care of themselves, how to help someone in physical pain, and more.
"Above all, Dr. Greenberg delivers important tools for managing the normal anxiety we all feel when someone we love is ill." --From back cover
ISBN
9781599559391
Language
English
Material Type
Book
Call Number
EF 800 GRE 2012

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How to be sick: A buddhist-inspired guide for the chronically ill and their caregivers

https://bcch.andornot.com/en/permalink/catalog122239
Bernhard, Toni. Somerville, MA: Wisdom Publications , 2018.
Material Type
Book
Call Number
EF 800 BER 2010
Availability
1 copy, 0 available
"This life-affirming, instructive and thoroughly inspiring book is a must-read for anyone who is, or who might one day be, sick. And it can also be the perfect gift of guidance, encouragement, and uplifting inspiration to family, friends, and loved ones struggling with the many terrifying or dishea…
Author
Bernhard, Toni
Place of Publication
Somerville, MA
Publisher
Wisdom Publications
Publication Date
2018
Physical Description
Softcover ; xvii, 191 p.
Subject
Chronic Illness
Emotional Health
Mental Health
Abstract
"This life-affirming, instructive and thoroughly inspiring book is a must-read for anyone who is, or who might one day be, sick. And it can also be the perfect gift of guidance, encouragement, and uplifting inspiration to family, friends, and loved ones struggling with the many terrifying or disheartening life changes that come so close on the heels of a diagnosis of a chronic condition or even life-threatening illness." --Publisher
Notes
Recommended by CCDP
ISBN
9780861716265
Language
English
Material Type
Book
Call Number
EF 800 BER 2010

Copies

BC Children's and Women's Family Library On Loan, due Friday, January 5, 2024
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Sick and tired of feeling sick and tired: Living with invisible chronic illness

https://bcch.andornot.com/en/permalink/catalog125122
Donoghue, Paul J., Siegel, Mary E. New York, NY: W.W. Norton & Company, Inc. , 2000.
Material Type
Book
Call Number
EF 820 DON 2000
Availability
1 copy, 0 available
Unlike a leg in a cast, invisible chronic illness (ICI) has no observable symptoms. Consequently, people who suffer from chronic fatigue, chronic pain, and many other miseries often endure not only the ailment but dismissive and negative reactions from others.; Since its first publication, Sick and…
Author
Donoghue, Paul J.
Siegel, Mary E.
Place of Publication
New York, NY
Publisher
W.W. Norton & Company, Inc.
Publication Date
2000
Physical Description
Softcover, 304 pages
Subject
Lifestyle changes with chronic illness
Abstract
Unlike a leg in a cast, invisible chronic illness (ICI) has no observable symptoms. Consequently, people who suffer from chronic fatigue, chronic pain, and many other miseries often endure not only the ailment but dismissive and negative reactions from others.
Since its first publication, Sick and Tired of Feeling Sick and Tired has offered hope and coping strategies to thousands of people who suffer from ICI. Paul Donoghue and Mary Siegel teach their readers how to rethink how they themselves view their illness and how to communicate with loved ones and doctors in a way that meets their needs. The authors' understanding makes readers feel they have been heard for the first time.
For this edition, the authors include a new introduction drawing on the experiences of the many people who have responded to the book and to their lectures and television appearances. They expand the definition of ICI to include other ailments such as depression, addiction, and obsessive-compulsive disorders. They bring the resource material, including Web sites, up to the present, and they offer fresh insights on four topics that often emerge: guilt, how ICI affects the family, meaningfulness, and defining acceptance.
Notes
Recommended by CCDP
ISBN
9780393320657
Language
English
Material Type
Book
Call Number
EF 820 DON 2000

Copies

BC Children's and Women's Family Library On Loan, due Friday, April 26, 2024
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Full catastrophe living: Using the wisdom of your body and mind to face stress, pain, and illness

https://bcch.andornot.com/en/permalink/catalog124512
Kabat-Zinn, Jon. New York, NY: Random House Audio , 2008. Tenth anniversary edition.
Material Type
CD
Audio
Call Number
EG 225 KAB 2008
Availability
1 copy, 1 available
Stress. It can sap our energy, undermine our health if we let it, even shorten our lives. It makes us more vulnerable to anxiety and depression, disconnection and disease. Now, based on Dr. Jon Kabat-Zinn's renowned mindfulness-based stress reduction program, this groundbreaking audiobook shows yo…
Author
Kabat-Zinn, Jon
Edition
Tenth anniversary edition
Place of Publication
New York, NY
Publisher
Random House Audio
Publication Date
2008
Physical Description
5 CD set
Subject
Mindfulness
Chronic Illness
Anxiety
Abstract
Stress. It can sap our energy, undermine our health if we let it, even shorten our lives. It makes us more vulnerable to anxiety and depression, disconnection and disease. Now, based on Dr. Jon Kabat-Zinn's renowned mindfulness-based stress reduction program, this groundbreaking audiobook shows you how to use natural, medically proven methods to soothe and heal your body, mind, and spirit.
Recommended by CCDP
Language
English
Material Type
CD
Audio
Call Number
EG 225 KAB 2008

Copies

BC Children's and Women's Family Library Available
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Accessing the future: A disability-themed speculative fiction anthology

https://bcch.andornot.com/en/permalink/catalog122543
Futurefire.net , 2015.
Material Type
Book
Call Number
YOUTH GN 800 ALL 2015
Availability
1 copy, 1 available
"The fifteen authors and nine artists in this volume bring us beautiful, speculative stories of disability and mental illness in the future. Teeming with space pirates, battle robots, interstellar travel and genetically engineered creatures, every story and image is a quality, crafted work of scien…
Editor
Allan, Kathryn
Al-Ayad, Djibril
Publisher
Futurefire.net
Publication Date
2015
Physical Description
233 pages
Subject
Physical Disability. Physically Challenged
Mental Health/Illness
Abstract
"The fifteen authors and nine artists in this volume bring us beautiful, speculative stories of disability and mental illness in the future. Teeming with space pirates, battle robots, interstellar travel and genetically engineered creatures, every story and image is a quality, crafted work of science fiction in its own right, as thrilling and fascinating as it is worthy and important. These are stories about people with disabilities in all of their complexity and diversity, that scream with passion and intensity. These are stories that refuse to go gently."
ISBN
9780957397545
Language
English
Material Type
Book
Call Number
YOUTH GN 800 ALL 2015

Copies

copy 1 BC Children's and Women's Family Library Available
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What happens when someone I love doesn't feel good: A book about illness that won't go away

https://bcch.andornot.com/en/permalink/catalog124827
Olsher, Sara, Rogers, Jenni. Happy Valley, OR: Mighty and Bright , 2023.
Material Type
Book
Call Number
JUNIOR EF 860 OLS 2023
Availability
2 copies, 1 available
Join Mia and Stewart as they learn how bodies work, why some bodies don't always feel good, and what to do when someone they love has an illness that won't go away.
Author
Olsher, Sara
Rogers, Jenni
Place of Publication
Happy Valley, OR
Publisher
Mighty and Bright
Publication Date
2023
Physical Description
Softcover; 39 pages
Subject
Coping with Chronic Illness in the Family
Abstract
Join Mia and Stewart as they learn how bodies work, why some bodies don't always feel good, and what to do when someone they love has an illness that won't go away.
ISBN
9798986776538
Language
English
Material Type
Book
Call Number
JUNIOR EF 860 OLS 2023

Copies

copy 1 BC Children's and Women's Family Library On Loan, due Friday, May 17, 2024
copy 2 BC Children's and Women's Family Library Available
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The chronic pain and illness workbook for teens : CBT and mindfulness-based practices to turn the volume down on pain

https://bcch.andornot.com/en/permalink/catalog122615
Zoffness, Rachel, Krane, Elliot J. New Harbinger Publications , 2019.
URL
https://ebookcentral.proquest.com/lib/cwhbc/detail.action?docID=5820414
Material Type
Ebook
Call Number
YOUTH FM 850 ZOF 2019e
This workbook blends cognitive behavioral therapy (CBT) and mindfulness-based stress reduction (MBSR). You will learn how pain affects both your mind and body, how negative emotions can make pain worse, and strategies to help you turn the volume down on your pain, so you can go back to enjoying act…
  1 url  
URL
https://ebookcentral.proquest.com/lib/cwhbc/detail.action?docID=5820414
Author
Zoffness, Rachel
Krane, Elliot J.
Publisher
New Harbinger Publications
Publication Date
2019
Physical Description
eBook (176 pages)
Subject
Coping with Pain
Chronic Pain
Coping with Chronic Illness Young Adult
Abstract
This workbook blends cognitive behavioral therapy (CBT) and mindfulness-based stress reduction (MBSR). You will learn how pain affects both your mind and body, how negative emotions can make pain worse, and strategies to help you turn the volume down on your pain, so you can go back to enjoying activities that you love. You'll also learn mindfulness and relaxation exercises, including belly breathing and body scan to help manage pain in the moment. The exercises and strategies in this book are rooted in research, fun to learn, and easy to practice. For ages 12+.
ISBN
9781684033539
Language
English
Material Type
Ebook
Call Number
YOUTH FM 850 ZOF 2019e
URLs
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The chronic pain and illness workbook for teens : CBT and mindfulness-based practices to turn the volume down on pain

https://bcch.andornot.com/en/permalink/catalog123121
Zoffness, Rachel, Krane, Elliot J. New Harbinger Publications , 2019.
Material Type
Book
Call Number
YOUTH FM 850 ZOF 2019
Availability
1 copy, 1 available
This workbook blends cognitive behavioral therapy (CBT) and mindfulness-based stress reduction (MBSR). You will learn how pain affects both your mind and body, how negative emotions can make pain worse, and strategies to help you turn the volume down on your pain, so you can go back to enjoying act…
Author
Zoffness, Rachel
Krane, Elliot J.
Publisher
New Harbinger Publications
Publication Date
2019
Physical Description
155 pages
Subject
Coping with Pain
Chronic Pain
Coping with Chronic Illness Young Adult
Abstract
This workbook blends cognitive behavioral therapy (CBT) and mindfulness-based stress reduction (MBSR). You will learn how pain affects both your mind and body, how negative emotions can make pain worse, and strategies to help you turn the volume down on your pain, so you can go back to enjoying activities that you love. You'll also learn mindfulness and relaxation exercises, including belly breathing and body scan to help manage pain in the moment. The exercises and strategies in this book are rooted in research, fun to learn, and easy to practice. For ages 12+.
ISBN
9781684033522
Language
English
Material Type
Book
Call Number
YOUTH FM 850 ZOF 2019

Copies

Copy 1 BC Children's and Women's Family Library Available
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How to support a woman in an abusive relationship

https://bcch.andornot.com/en/permalink/catalog112416
Women Abuse Response Program. [Vancouver, BC?]: BC Women's Hospital & Health Centre , 2013.
URL
http://www.cw.bc.ca/library/pdf/pamphlets/BCW935_HowToSupportWomanInAbusiveRelationship_2013.pdf
Material Type
Pamphlet
Online
Call Number
BCW935
This pamphlet provides information and suggestions for how to support a woman who's currently in or has been in an abusive relationship.
  1 image     1 url  
URL
http://www.cw.bc.ca/library/pdf/pamphlets/BCW935_HowToSupportWomanInAbusiveRelationship_2013.pdf
Website Notes
Click on the link above to view/print.
Corporate Author
Women Abuse Response Program
Place of Publication
[Vancouver, BC?]
Publisher
BC Women's Hospital & Health Centre
Publication Date
2013
Physical Description
PDF file: 3 p.
Subject
Abusive Relationships
Abusive Relationships-Coping
Emotional Health
Abstract
This pamphlet provides information and suggestions for how to support a woman who's currently in or has been in an abusive relationship.
Language
English
Material Type
Pamphlet
Online
Call Number
BCW935
Images
URLs
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Siblings: Brothers and sisters of children with disability

https://bcch.andornot.com/en/permalink/catalog124360
Strohm, Kate. Miline, Ill.: Wakefield Press , 2014. Revised edition.
Material Type
Book
Call Number
GK 665 STR 2014
Availability
1 copy, 1 available
Siblings tells what it is like to grow up with a brother or sister with a disability or illness. The siblings of children with a disability are often the overlooked ones in families struggling to cope.; Kate Strohm, a sibling herself, bravely shares the story of her journey from isolation and confu…
Author
Strohm, Kate
Edition
Revised edition
Place of Publication
Miline, Ill.
Publisher
Wakefield Press
Publication Date
2014
Physical Description
Paperback; 249 pages
Subject
Siblings of Children with Disabilities
Abstract
Siblings tells what it is like to grow up with a brother or sister with a disability or illness. The siblings of children with a disability are often the overlooked ones in families struggling to cope.
Kate Strohm, a sibling herself, bravely shares the story of her journey from isolation and confusion to greater understanding and acceptance. She provides a forum for other siblings to describe their challenges and provides them with strategies to make sense of their experiences.
Through the workshops she has presented around Australia and overseas, Kate has been able to incorporate the experience and wisdom of many families and professionals, and provide clear tools for parents and practitioners to support brothers and sisters of those with a disability.
ISBN
9781743052334
Language
English
Material Type
Book
Call Number
GK 665 STR 2014

Copies

BC Children's and Women's Family Library Available
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Finding freedom in illness: A guide to cultivating deep well-being through mindfulness and self-compassion

https://bcch.andornot.com/en/permalink/catalog122283
Fernando, Peter. Boulder: Shambhala Publications, Inc. , 2016.
Material Type
Book
Call Number
EF 850 FER 2016
Availability
1 copy, 1 available
"'Let your illness be your spiritual teacher!' Make a statement like that to someone who's struggled for years with, say, rheumatoid arthritis, and be prepared for an eye roll (at best). To Peter Fernando's credit, he makes that statement, and no such impulse arises. We believe him because he's bee…
Author
Fernando, Peter
Place of Publication
Boulder
Publisher
Shambhala Publications, Inc.
Publication Date
2016
Physical Description
Softcover ; ix, 222 p.
Subject
Mindfulness
Mind/Body
Chronic Illness
Chronic Pain
Emotional Health
Self-Concept (includes self-esteem)
Abstract
"'Let your illness be your spiritual teacher!' Make a statement like that to someone who's struggled for years with, say, rheumatoid arthritis, and be prepared for an eye roll (at best). To Peter Fernando's credit, he makes that statement, and no such impulse arises. We believe him because he's been there himself and because he backs up the statements with his own real experiences and with real wisdom from the Buddhist teachings. Fernando starts by defusing the pernicious belief that anyone is somehow responsible for their illness: you're not "wrong" for being sick. Then, having gotten past self-blame, one can begin to learn self-kindness. From there, one moves to mindfulness practices and cultivating body awareness?even if body awareness is distasteful when the body isn't behaving the way you like. Further topics include getting intimate with dark emotions (fear, despair, the scary future, frustration, grief, etc.), learning equanimity (rejoicing in the good fortune of those who don't share your suffering), cultivating healthy relationships in the midst of everything, and practical advice for living with pain. Each chapter comes with one or more practices or guided meditations for putting the teachings into practice"--from publisher.
ISBN
9781611802634
Language
English
Material Type
Book
Call Number
EF 850 FER 2016

Copies

BC Children's and Women's Family Library Available
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Relationships decoded: The curriculum

https://bcch.andornot.com/en/permalink/catalog124167
Relationships Decoded , 2020.
Material Type
Website
This webpage provides lesson plans and visual supports for teachers, counselors, parents, or advocates who are interested in teaching social-sexual education to adults with developmental disabilities.
Publisher
Relationships Decoded
Publication Date
2020
Subject
Developmental Disabilities
Sex Education
Sexual Health
Social Behaviour
Abstract
This webpage provides lesson plans and visual supports for teachers, counselors, parents, or advocates who are interested in teaching social-sexual education to adults with developmental disabilities.
Language
English
Material Type
Website
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In praise of slow: How a worldwide movement is challenging the cult of speed

https://bcch.andornot.com/en/permalink/catalog124026
Honore, Carl. Toronto, ON: Vintage Canada , 2004.
Material Type
Book
Call Number
EF 820 HON 2004
Availability
1 copy, 1 available
These days, almost everyone complains about the hectic pace of their lives. We live in a world where speed rules and everyone is under pressure to go faster. But when speed is king, anyone or anything that gets in our way, that slows us down, becomes an enemy. Thanks to speed, we are living in the …
Author
Honore, Carl
Place of Publication
Toronto, ON
Publisher
Vintage Canada
Publication Date
2004
Physical Description
Softcover; 310 pages
Subject
Lifestyle changes with chronic illness
Abstract
These days, almost everyone complains about the hectic pace of their lives. We live in a world where speed rules and everyone is under pressure to go faster. But when speed is king, anyone or anything that gets in our way, that slows us down, becomes an enemy. Thanks to speed, we are living in the age of rage.
Carl Honore has discovered a movement that is quickly working its way into the mainstream. Groups of people are developing a recipe for living better in a fast-paced, modern environment by striving for a new balance between fast and slow. In an entertaining and hands-on investigation of this new movement, Honore takes us from a Tantric sex workshop in a trendy neighbourhood in London, England to Bra, Italy, the home of the Slow Food, Slow Cities and Slow Sex movements. He examines how we can continue to live productive lives by embracing the tenets of the slow movement.
ISBN
9780676975727
Language
English
Material Type
Book
Call Number
EF 820 HON 2004

Copies

BC Children's and Women's Family Library Available
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A quick and easy guide to sex and disability

https://bcch.andornot.com/en/permalink/catalog124125
Andrews, A. Portland, OR: Limerence Press , 2021.
Material Type
Book
Call Number
YOUTH GA 110 AND 2021
Availability
1 copy, 1 available
This easy-to-read comic book guide covers the basics of disability sexuality, common myths about disabled bodies, communication tips, and practical suggestions for having the best sexual experience possible.
Author
Andrews, A.
Place of Publication
Portland, OR
Publisher
Limerence Press
Publication Date
2021
Physical Description
Paperback; 70p.; Graphic novel
Subject
Disabilities
Sex Education
Sexual Health
LGBTQ
Abstract
This easy-to-read comic book guide covers the basics of disability sexuality, common myths about disabled bodies, communication tips, and practical suggestions for having the best sexual experience possible.
ISBN
9781620106945
Language
English
Material Type
Book
Call Number
YOUTH GA 110 AND 2021

Copies

BC Children's and Women's Family Library Available
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Shared Struggles: Stories from parents and pediatricians caring for children with serious illnesses

https://bcch.andornot.com/en/permalink/catalog124220
Schrooten, A.F., Markovitz, B.P. Switzerland: Springer International Publishing AG , 2021.
URL
https://ebookcentral.proquest.com/lib/cwhbc/detail.action?docID=6578034
Material Type
Ebook
Call Number
EF 850.5 SCH 2021e
This book tells true and poignant stories from both sides of the physician-patient/parent relationship and provides a unique glimpse into how parents and physicians think, feel, and interact. The stories are grouped under four sections: Hope, Compassion, Communication, and Trust.; Each section incl…
  1 url  
URL
https://ebookcentral.proquest.com/lib/cwhbc/detail.action?docID=6578034
Author
Schrooten, A.F.
Markovitz, B.P.
Place of Publication
Switzerland
Publisher
Springer International Publishing AG
Publication Date
2021
Subject
Coping with Chronic Illness-Children
Abstract
This book tells true and poignant stories from both sides of the physician-patient/parent relationship and provides a unique glimpse into how parents and physicians think, feel, and interact. The stories are grouped under four sections: Hope, Compassion, Communication, and Trust.
Each section includes stories contributed by parents from all across the United States and by pediatricians practicing at many of the best children's hospitals throughout the country. The parents tell of interactions with physicians that had a significant impact on them and their child and offer context and insight that promote empathy and reflection. The physicians tell of interactions with patients and families that served as learning moments in their career and promote the humanization of medicine and show there is more to a physician beyond their scientific knowledge and white coat.
The stories are edited by Barry P. Markovitz - a pediatrician specializing in critical care medicine who has been in practice for more than 20 years and by Ann F. Schrooten - the parent of a child born with a chronic complex condition who has more than 15 years of experience interacting with pediatric subspecialists and other healthcare professionals who cared for her son. The editors have written commentaries to the stories to provide an independent perspective on the events and messages conveyed and to encourage reflection, inquiry, and discussion.
In addition to being a valuable resource for pediatricians, pediatric subspecialists, nurses and other healthcare professionals, the book will also appeal to families of children living with complex medical conditions because it shares physician encounters and behaviors many have experienced in the care of their own children. By giving a voice to both parents and physicians, the goal is to create a bridge to better understanding that can improve communication, minimize conflicts, and foster trust and compassion among physicians, patients, and families.
ISBN
9783030680206
Language
English
Material Type
Ebook
Call Number
EF 850.5 SCH 2021e
URLs
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Shared Struggles: Stories from parents and pediatricians caring for children with serious illnesses

https://bcch.andornot.com/en/permalink/catalog123758
Schrooten, A.F., Markovitz, B.P. Switzerland: Springer International Publishing AG , 2021.
Material Type
Book
Call Number
EF 850.5 SCH 2021b
Availability
1 copy, 1 available
This book tells true and poignant stories from both sides of the physician-patient/parent relationship and provides a unique glimpse into how parents and physicians think, feel, and interact. The stories are grouped under four sections: Hope, Compassion, Communication, and Trust.; Each section incl…
Author
Schrooten, A.F.
Markovitz, B.P.
Place of Publication
Switzerland
Publisher
Springer International Publishing AG
Publication Date
2021
Physical Description
251 pages
Subject
Coping with Chronic Illness-Children
Abstract
This book tells true and poignant stories from both sides of the physician-patient/parent relationship and provides a unique glimpse into how parents and physicians think, feel, and interact. The stories are grouped under four sections: Hope, Compassion, Communication, and Trust.
Each section includes stories contributed by parents from all across the United States and by pediatricians practicing at many of the best children's hospitals throughout the country. The parents tell of interactions with physicians that had a significant impact on them and their child and offer context and insight that promote empathy and reflection. The physicians tell of interactions with patients and families that served as learning moments in their career and promote the humanization of medicine and show there is more to a physician beyond their scientific knowledge and white coat.
The stories are edited by Barry P. Markovitz - a pediatrician specializing in critical care medicine who has been in practice for more than 20 years and by Ann F. Schrooten - the parent of a child born with a chronic complex condition who has more than 15 years of experience interacting with pediatric subspecialists and other healthcare professionals who cared for her son. The editors have written commentaries to the stories to provide an independent perspective on the events and messages conveyed and to encourage reflection, inquiry, and discussion.
In addition to being a valuable resource for pediatricians, pediatric subspecialists, nurses and other healthcare professionals, the book will also appeal to families of children living with complex medical conditions because it shares physician encounters and behaviors many have experienced in the care of their own children. By giving a voice to both parents and physicians, the goal is to create a bridge to better understanding that can improve communication, minimize conflicts, and foster trust and compassion among physicians, patients, and families.
ISBN
9783030680206
Language
English
Material Type
Book
Call Number
EF 850.5 SCH 2021b

Copies

BC Children's and Women's Family Library Available
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All siblings are important: Words and artwork that celebrate all sibling relationships and the feelings they bring

https://bcch.andornot.com/en/permalink/catalog124757
Camerona, Laura. Words Worth Repeating , 2021.
Material Type
Book
Call Number
JUNIOR CF 150 CAM 2021
Availability
1 copy, 1 available
"All Siblings Are Important" is a book about all kinds of sibling relationships. This book honors the many feelings that come with being a sibling and is a good conversation starter for caregivers who want to talk to children about the dynamics or feelings happening within a sibling relationship or…
Author
Camerona, Laura
Publisher
Words Worth Repeating
Publication Date
2021
Physical Description
Softcover; 32 pages
Subject
Sibling Relationships
Abstract
"All Siblings Are Important" is a book about all kinds of sibling relationships. This book honors the many feelings that come with being a sibling and is a good conversation starter for caregivers who want to talk to children about the dynamics or feelings happening within a sibling relationship or because of a sibling's struggles.
ISBN
9798987352915
Language
English
Material Type
Book
Call Number
JUNIOR CF 150 CAM 2021

Copies

BC Children's and Women's Family Library Available
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101 ways to facilitate making friends: How to engage and deepen support networks for people with disabilities

https://bcch.andornot.com/en/permalink/catalog112346
Johannes, Aaron, Reynolds, Jim, Stanfield, Susan. [Vancouver, BC?]: Spectrum Press , 2011.
Material Type
Book
Call Number
CF 300 WAY 2011
Availability
1 copy, 1 available
On its own or as a companion to the book "101 Ways to Make Friends: Ideas and conversation starters for people with disabilities", this collection of strategies is for parents, leaders and teachers of all kinds. It's a book about being a friend, learning ways to make a contribution to community, an…
Author
Johannes, Aaron
Reynolds, Jim
Stanfield, Susan
Place of Publication
[Vancouver, BC?]
Publisher
Spectrum Press
Publication Date
2011
Physical Description
Softcover: 198 p.
Subject
Friendship
Social Behaviour (includes boundaries)
Social Skills
Relationships
Developmental Disability
Abstract
On its own or as a companion to the book "101 Ways to Make Friends: Ideas and conversation starters for people with disabilities", this collection of strategies is for parents, leaders and teachers of all kinds. It's a book about being a friend, learning ways to make a contribution to community, and what it means to be a good friend or neighbour, son or daughter, brother or sister, etc.
ISBN
9781257060504
Language
English
Material Type
Book
Call Number
CF 300 WAY 2011

Copies

Copy 1 BC Children's and Women's Family Library Available
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Quand la vie se fragilise: Un guide pour vous et vos proches aidants

https://bcch.andornot.com/en/permalink/catalog114657
Cardinal Remete, France. Montreal, QC: Multimondes Inc. , 2016.
Material Type
Book
Call Number
EF 850 CAR 2016
Availability
1 copy, 1 available
Author
Cardinal Remete, France
Place of Publication
Montreal, QC
Publisher
Multimondes Inc.
Publication Date
2016
Physical Description
Paperback, 311 p.
Subject
Chronic Illness
Coping with Chronic Illness in the Family
ISBN
9782895444916
Language
French
Material Type
Book
Call Number
EF 850 CAR 2016

Copies

copy 1 BC Children's and Women's Family Library Available
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Why does mommy hurt? Helping children cope with the challenges of having a caregiver with chronic pain, fibromyalgia,or autoimmune disease

https://bcch.andornot.com/en/permalink/catalog122253
Christy, Elizabeth M., Miller, James G. (illustrator). Denver, Colorado: Outskirts Press, Inc. , 2014.
Material Type
Book
Call Number
JUNIOR EF 850.5 CHR 2014
Availability
1 copy, 1 available
The children of people with chronic illness and pain suffer quietly. "Why Does Mommy Hurt?" is a joyful, yet honest, portrayal of family life burdened with chronic illness. This is a delightful story told by a young boy learning to understand and cope with his mother's illness. The story creates na…
Author
Christy, Elizabeth M.
Miller, James G. (illustrator)
Place of Publication
Denver, Colorado
Publisher
Outskirts Press, Inc.
Publication Date
2014
Physical Description
Softcover ; [18 p.], illustrations
Subject
Chronic Illness
Chronic Pain
Fibromyalgia. Fibrositis
Coping with Chronic Illness-Children
Abstract
The children of people with chronic illness and pain suffer quietly. "Why Does Mommy Hurt?" is a joyful, yet honest, portrayal of family life burdened with chronic illness. This is a delightful story told by a young boy learning to understand and cope with his mother's illness. The story creates natural opportunities for families to talk about both the symptoms of chronic illness, and how they affect family life. Even more importantly, the story puts power into the hands of the children. It also offers a helpful "Tips and Resources" section for parents! This book is appropriate for a wide-variety of illnesses associated with chronic pain, such as: Lupus, Lyme Disease, ME, CFS, Fibromyalgia, Arthritis, Multiple Sclerosis, Autoimmune Disease, and many others.
Notes
Recommended by CCDP
ISBN
9781478732969
Language
English
Material Type
Book
Call Number
JUNIOR EF 850.5 CHR 2014

Copies

BC Children's and Women's Family Library Available
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Circles, intimacy & relationships: Level 2 - LIBRARY USE ONLY

https://bcch.andornot.com/en/permalink/catalog121318
Champagne, Marklyn P., Walker-Hirsch, Leslie. Santa Barbara, CA: James Stanfield Publishing Company , 2018. Rev. Ed.
Material Type
Kit
Call Number
CF 110 CHA 2018 LEVEL 2
Availability
1 copy, 1 available
For in-library use only. Please email fsrc@cw.bc.ca to reserve a time.; Circles LEVEL 2, because it uses a "reality-show" format, is ideal for illustrating more subtle applications of the Circles Rules of Social Distance. LEVEL 2 is an ideal "second step" program for students with moderate to mild …
Author
Champagne, Marklyn P.
Walker-Hirsch, Leslie
Edition
Rev. Ed.
Place of Publication
Santa Barbara, CA
Publisher
James Stanfield Publishing Company
Publication Date
2018
Physical Description
4 DVD's + 1 teacher's guide + 5 student graphs
Subject
Social Behaviour (includes boundaries)
Relationships
Child Social Behaviour
Social Skills
Young Adult Social Behaviour
Abstract
For in-library use only. Please email fsrc@cw.bc.ca to reserve a time.
Circles LEVEL 2, because it uses a "reality-show" format, is ideal for illustrating more subtle applications of the Circles Rules of Social Distance. LEVEL 2 is an ideal "second step" program for students with moderate to mild cognitive challenges and can be used as a stand-alone introduction for higher functioning and regular students
Notes
Audience: Counselling professionals, educators, support workers.
Language
English
Material Type
Kit
Call Number
CF 110 CHA 2018 LEVEL 2

Copies

Copy 1 BC Children's and Women's Family Library Curricula Available
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Circles, intimacy & relationships: Level 1 - LIBRARY USE ONLY

https://bcch.andornot.com/en/permalink/catalog121319
Champagne, Marklyn P., Walker-Hirsch, Leslie. Santa Barbara, CA: James Stanfield Publishing Company , 2018.
Material Type
Kit
Call Number
CF 110 CHA 2018 LEVEL 1
Availability
2 copies, 2 available
For in-library use only. Please email fsrc@cw.bc.ca to reserve a time.; Circles involves categorizing social roles and designating the colour circle with its associated Three "T's", Touch, Talk, and Trust. Video mini-dramas serve as illustrations of common social relationships and display typical …
Author
Champagne, Marklyn P.
Walker-Hirsch, Leslie
Place of Publication
Santa Barbara, CA
Publisher
James Stanfield Publishing Company
Publication Date
2018
Physical Description
4 DVD's + 1 teacher's guide + student graphs
Series
Program 1 in the Circles Series
Subject
Social Behaviour (includes boundaries)
Relationships
Social Skills
Child Social Behaviour
Young Adult Social Behaviour
Abstract
For in-library use only. Please email fsrc@cw.bc.ca to reserve a time.
Circles involves categorizing social roles and designating the colour circle with its associated Three "T's", Touch, Talk, and Trust. Video mini-dramas serve as illustrations of common social relationships and display typical touching behaviours as well as conversation levels and degrees of safety. In Circles, the emphasis is on matching the social role with the appropriate circle colour and teaching students to model behaviours that are parallel to those seen on the video. Part 1 lays the foundation for making distinctions among the various kinds of relationships that each person has.
Language
English
Material Type
Kit
Call Number
CF 110 CHA 2018 LEVEL 1

Copies

copy 1 BC Children's and Women's Family Library Curricula Available
copy 2 BC Children's and Women's Family Library Curricula Available
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When love hurts: A woman's guide to understanding abuse in relationships

https://bcch.andornot.com/en/permalink/catalog122462
Cory, Jill, McAndless-Davis. New York, NY: New American Library , 2016.
Material Type
Book
Call Number
CE 100 COR 2016
Availability
2 copies, 2 available
What do you do when the one you love hurts you? If you are wondering about whether you are experiencing abuse from a partner or unsure if your damaged relationship can be fixed, finding answers can seem daunting--or even impossible. This book can help answer your questions, using exercises and reso…
Author
Cory, Jill
McAndless-Davis
Place of Publication
New York, NY
Publisher
New American Library
Publication Date
2016
Physical Description
173 pages
Subject
Abusive Relationships
Battering. Spouse Abuse. Partner Abuse/Domestic Violence
Battering. Spouse Abuse. Partner Abuse-Coping
Abstract
What do you do when the one you love hurts you? If you are wondering about whether you are experiencing abuse from a partner or unsure if your damaged relationship can be fixed, finding answers can seem daunting--or even impossible. This book can help answer your questions, using exercises and resources to help you make sense of your relationship, addressing all forms of abuse including verbal, emotional, financial, sexual and physical.
ISBN
9780425274286
Language
English
Material Type
Book
Call Number
CE 100 COR 2016

Copies

copy 1 BC Children's and Women's Family Library Available
copy 2 BC Children's and Women's Family Library Available
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Living a healthy life with chronic conditions: For ongoing physical and mental health conditions

https://bcch.andornot.com/en/permalink/catalog122290
Lorig, Kate, Holman, Halsted, Sobel, David, Laurent, Diana, Gonzalez, Virginia, Minor, Marian. Boulder, CO: Bull Publishing Company , 2013. Canadian Edition, 4th.
Material Type
Book
Call Number
EF 800 LOR 2013
Availability
2 copies, 2 available
"Living a Healthy Life with Chronic Conditions is a proven self-management guide. People with chonic health conditions live most of their lives outside of hospitals and clinics. This book is designed to help them learn the information and skills to manage chronic conditions on a daily basis while d…
Author
Lorig, Kate
Holman, Halsted
Sobel, David
Laurent, Diana
Gonzalez, Virginia
Minor, Marian
Edition
Canadian Edition, 4th
Place of Publication
Boulder, CO
Publisher
Bull Publishing Company
Publication Date
2013
Physical Description
Softcover ; vii, 368 p.
Subject
Chronic Illness
Mental Health/Illness
Fatigue
Pain
Depression
Abstract
"Living a Healthy Life with Chronic Conditions is a proven self-management guide. People with chonic health conditions live most of their lives outside of hospitals and clinics. This book is designed to help them learn the information and skills to manage chronic conditions on a daily basis while doing the things they need and want to do.
"This new edition is completely redesigned for easy reading and fully updated with the latest research and information. The book is a vital resource full of practical tips, suggestions, and strategies to build confidence in managing chronic illness and symptoms, such as fatigue, pain, shortness of breath, disability, and depression. It encourages readers to develop individual approaches to setting goals, making decisions, and finding resources and support"--from Publisher.
ISBN
97819396693498
Language
English
Material Type
Book
Call Number
EF 800 LOR 2013

Copies

BC Children's and Women's Family Library Available
copy 2 BC Children's and Women's Family Library Available
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The not-so-friendly friend: How to set boundaries for healthy relationships

https://bcch.andornot.com/en/permalink/catalog124625
Furnival, Christina, Dwyer, Katie [illustrator]. Eau Claire, WI: PESI Publishing , 2021.
Material Type
Booklet
Call Number
JUNIOR CF 110 FUR 2021
Availability
1 copy, 1 available
How can I help my child deal with a bully?; What do I teach them about handling an on-again-off-again, not-so-friendly friend?; My advice to "just be kind" isn't helping, and my child is still hurting.; Christina Furnival, a licensed mental health therapist and mom, helps answer these questions in …
Alternate Title
The not so friendly friend
Author
Furnival, Christina
Dwyer, Katie [illustrator]
Place of Publication
Eau Claire, WI
Publisher
PESI Publishing
Publication Date
2021
Physical Description
Hardcover; illustrated; 46 pages.
Series
Capable Kiddos Series
Subject
Social Behaviour (includes boundaries)
Abstract
How can I help my child deal with a bully?
What do I teach them about handling an on-again-off-again, not-so-friendly friend?
My advice to "just be kind" isn't helping, and my child is still hurting.
Christina Furnival, a licensed mental health therapist and mom, helps answer these questions in this charming and engaging rhyming story about a young child who successfully navigates the complexities of an unkind peer relationship.
In The Not-So-Friendly Friend, children will learn an easy and practical lesson about how to firmly and assertively - yet kindly - stand up for themselves in the face of a bully. By teaching children about the importance and value of setting boundaries for healthy friendships, this book provides children the tools they need to foster their social confidence and emotional well-being.
Recommended for children aged 4 - 7.
ISBN
9781683734260
Language
English
Material Type
Booklet
Call Number
JUNIOR CF 110 FUR 2021

Copies

BC Children's and Women's Family Library Available
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Ovis has trouble with eating

https://bcch.andornot.com/en/permalink/catalog123367
Beins, KElly, Tuccille Merry, Christine [ill.]. Blue Mustang Press , 2017.
Material Type
Book
Call Number
JUNIOR FM 100.6 BEI 2017
Availability
1 copy, 1 available
Ovis is a sheep that is misunderstood by his family and his peers. He has sensory processing issues, therefore he doesn't eat. But when Ovis gets some new ideas about how to cope from an occupational therapist, he gets back on track.; For ages 3-10
Author
Beins, KElly
Tuccille Merry, Christine [ill.]
Publisher
Blue Mustang Press
Publication Date
2017
Physical Description
[n.p.]
Subject
Sensory Processing Challenges
Nervous System/Nervous System Diseases-Children
Abstract
Ovis is a sheep that is misunderstood by his family and his peers. He has sensory processing issues, therefore he doesn't eat. But when Ovis gets some new ideas about how to cope from an occupational therapist, he gets back on track.
For ages 3-10
ISBN
9781935199236
Language
English
Material Type
Book
Call Number
JUNIOR FM 100.6 BEI 2017

Copies

BC Children's and Women's Family Library Available
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Lord, Cynthia. Scholastic , 2008.
Material Type
Book
Call Number
JUNIOR GK 665 LOR 2008
Availability
1 copy, 1 available
Twelve-year-old Catherine just wants a normal life. Which is near impossible when you have a brother with autism and a family that revolves around his disability. She's spent years trying to teach David the rules from 'a peach is not a funny-looking apple' to 'keep your pants on in public' - in ord…
Author
Lord, Cynthia
Publisher
Scholastic
Publication Date
2008
Physical Description
224 p.
Subject
Siblings of Children with Disabilities
Sibling Relationships
Abstract
Twelve-year-old Catherine just wants a normal life. Which is near impossible when you have a brother with autism and a family that revolves around his disability. She's spent years trying to teach David the rules from 'a peach is not a funny-looking apple' to 'keep your pants on in public' - in order to head off David's embarrassing behaviors.
But the summer Catherine meets Jason, a surprising, new sort-of friend, and Kristi, the next-door friend she's always wished for, it's her own shocking behavior that turns everything upside down and forces her to ask: What is normal?
ISBN
978-0439443838
Language
English
Material Type
Book
Call Number
JUNIOR GK 665 LOR 2008

Copies

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Elliott, Rebecca. London, UK: Lion Children's , 2018.
Material Type
Book
Call Number
JUNIOR GK 665 ELL 2018
Availability
2 copies, 1 available
My big sister Clemmie is my best friend. She can't walk, talk, move around much, cook macaroni, pilot a plane, juggle or do algebra. I don't know why she doesn't do these things. Just because.'; This heartwarming picture book about being perfectly loved, no matter what, tells of a brother's love fo…
Author
Elliott, Rebecca
Place of Publication
London, UK
Publisher
Lion Children's
Publication Date
2018
Physical Description
Soft cover; 32 pages
Subject
Siblings of Children with Disabilities
Sibling Relationships
Abstract
My big sister Clemmie is my best friend. She can't walk, talk, move around much, cook macaroni, pilot a plane, juggle or do algebra. I don't know why she doesn't do these things. Just because.'
This heartwarming picture book about being perfectly loved, no matter what, tells of a brother's love for his sister. He is so enthusiastic about just how loving and special she is, and delights in telling us about all the fun things they do together. Only as his tale unfolds does the reader begin to realize that his sister has special needs... and by then we just accept as he does all the wonderful things about her. This amusing and often touching story encompasses the issue of disability in a charming celebration of sibling friendship to which all children can relate.
ISBN
9780745962351
Language
English
Material Type
Book
Call Number
JUNIOR GK 665 ELL 2018

Copies

BC Children's and Women's Family Library On Loan, due Monday, March 4, 2024
copy 2 BC Children's and Women's Family Library Available
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Evely's sister

https://bcch.andornot.com/en/permalink/catalog124664
Diaz, Luna, Sfar, Wiem [illustrator]. The Center for Siblings of People with Disabilities , 2021.
Material Type
Book
Call Number
JUNIOR GK 665 DIA 2021
Availability
1 copy, 1 available
Do you ever feel scared when your sibling has to stay overnight at the hospital? Or feel icky when people stare at your family in public? You're not alone. Read along with 7-year-old Luna as she shares some of the challenges - and the unique joys and triumphs - of having a sibling with physical and…
Author
Diaz, Luna
Sfar, Wiem [illustrator]
Publisher
The Center for Siblings of People with Disabilities
Publication Date
2021
Physical Description
Softcover; illustrated; 39 pages
Series
A Project of the Center for Siblings of People with Disabilities
Subject
Sibling Relationships
Siblings of Children with Disabilities
Abstract
Do you ever feel scared when your sibling has to stay overnight at the hospital? Or feel icky when people stare at your family in public? You're not alone. Read along with 7-year-old Luna as she shares some of the challenges - and the unique joys and triumphs - of having a sibling with physical and intellectual disabilities.
Created with the support of licensed clinical social workers with the aim of helping siblings of kids with disabilities identify, express and process their feelings. This book is intended to be read with a parent or trusted adult and spark family discussions you'll keep coming back to.
Recommended for chidlren ages 3-8.
ISBN
9798796987667
Language
English
Material Type
Book
Call Number
JUNIOR GK 665 DIA 2021

Copies

BC Children's and Women's Family Library Available
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Mon enfant a une maladie chronique : Stratégies, ressources, moyens

https://bcch.andornot.com/en/permalink/catalog114193
Chartre, Marie-Eve, Gagne, Johanne. Montreal, QC: Éditions du CHU Sainte-Justine , 2014.
Material Type
Book
Call Number
EF 850.5 CHA 2014
Availability
1 copy, 1 available
Dès l?annonce du diagnostic, la maladie chronique d?un enfant devient « l?affaire » de toute la famille. Après le choc, chacun des membres de la cellule familiale doit traverser, à son rythme, le processus d?adaptation à un nouveau mode de vie conditionné par l?état de santé de l?enfant. Ce livre p…
Author
Chartre, Marie-Eve
Gagne, Johanne
Place of Publication
Montreal, QC
Publisher
Éditions du CHU Sainte-Justine
Publication Date
2014
Physical Description
Paperback, 127 p.
Subject
Coping with Chronic Illness-Children
Abstract
Dès l?annonce du diagnostic, la maladie chronique d?un enfant devient « l?affaire » de toute la famille. Après le choc, chacun des membres de la cellule familiale doit traverser, à son rythme, le processus d?adaptation à un nouveau mode de vie conditionné par l?état de santé de l?enfant. Ce livre permet aux parents de mieux comprendre les étapes de ce cheminement émotionnel et social ― pour l?enfant malade, la fratrie, la famille, le couple comme pour eux-mêmes en tant qu?individus ― et d?accompagner chacun en puisant à la fois dans les ressources personnelles et extérieures dont ils peuvent bénéficier.
ISBN
9782896196678
Language
French
Material Type
Book
Call Number
EF 850.5 CHA 2014

Copies

Copy 1 BC Children's and Women's Family Library Available
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What about me?: When brothers and sisters get sick

https://bcch.andornot.com/en/permalink/catalog102858
Peterkin, Allan, Middendorf, Frances (Illustrator). New York, NY: Magination Press , 1992.
Material Type
Book
Call Number
JUNIOR EF 860.5 PET 1992
Availability
2 copies, 1 available
Illustrated book dealing with the many complicated feelings the well child experiences in a situation where a sibling is ill: guilt about having caused the illness, fear that the sibling will die, anger over being left out, anxiety about catching the sickness, and longing for life to return to the …
Author
Peterkin, Allan
Middendorf, Frances (Illustrator)
Place of Publication
New York, NY
Publisher
Magination Press
Publication Date
1992
Physical Description
Softcover: 30 p.
Subject
Children Coping with Family Illness
Sibling Relationships
Picture Books
Abstract
Illustrated book dealing with the many complicated feelings the well child experiences in a situation where a sibling is ill: guilt about having caused the illness, fear that the sibling will die, anger over being left out, anxiety about catching the sickness, and longing for life to return to the way it was.
ISBN
0945354487
Language
English
Material Type
Book
Call Number
JUNIOR EF 860.5 PET 1992

Copies

Copy 1 BC Children's and Women's Family Library On Loan, due Friday, May 31, 2024
Copy 2 BC Children's and Women's Family Library Available
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Far from the tree: Parents, children, and the search for identity

https://bcch.andornot.com/en/permalink/catalog112354
Solomon, Andrew. [Toronto, ON]: Scribner , 2012.
Material Type
Book
Call Number
GK 600 SOL 2012
Availability
1 copy, 1 available
Andrew Solomon tells the stories of parents who not only learn to deal with their exceptional children but also find profound meaning in doing so. He writes about families coping with deafness, dwarfism, Down syndrome, autism, schizophrenia, multiple severe disabilities, with children who are prodi…
Author
Solomon, Andrew
Place of Publication
[Toronto, ON]
Publisher
Scribner
Publication Date
2012
Physical Description
Hardcover: 702 p.
Subject
Parenting Children with Developmental Disabilities
Parenting Children with Disabilities
Relationships
Parenting
Parenting Children with Physical Disabilities
Abstract
Andrew Solomon tells the stories of parents who not only learn to deal with their exceptional children but also find profound meaning in doing so. He writes about families coping with deafness, dwarfism, Down syndrome, autism, schizophrenia, multiple severe disabilities, with children who are prodigies, who are conceived in rape, who become criminals, who are transgender. While each of these characteristics is potentially isolating, the experience of difference within families is universal, as are the triumphs of love Solomon documents in every chapter.
ISBN
9780743236713
Language
English
Material Type
Book
Call Number
GK 600 SOL 2012

Copies

Copy 2 BC Children's and Women's Family Library Available
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Parents and professionals partnering for children with disabilities: A dance that matters

https://bcch.andornot.com/en/permalink/catalog112727
Fialka, Janice M., Feldman, Arlene K., Mikus, Karen C. Thousand Oaks, Calif.: Corwin , 2012. Revised Edition.
Material Type
Book
Call Number
GK 655 FIA 2012
Availability
1 copy, 1 available
The authors use a dance metaphor to capture the complexities and possibilities of building strong partnerships between professionals and parents of children with disabilities. This revised edition is rich with real-world stories and examples, refreshing insights, and practical strategies.
Author
Fialka, Janice M.
Feldman, Arlene K.
Mikus, Karen C.
Edition
Revised Edition
Place of Publication
Thousand Oaks, Calif.
Publisher
Corwin
Publication Date
2012
Physical Description
Softcover: 142 p.
Subject
Parenting Children with Developmental Disabilities
Parenting Children with Disabilities
Abstract
The authors use a dance metaphor to capture the complexities and possibilities of building strong partnerships between professionals and parents of children with disabilities. This revised edition is rich with real-world stories and examples, refreshing insights, and practical strategies.
ISBN
9781412966399
Language
English
Material Type
Book
Call Number
GK 655 FIA 2012

Copies

Copy 1 BC Children's and Women's Family Library Available
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Symple Symptom Tracker: Mobile App (iOS)

https://bcch.andornot.com/en/permalink/catalog124794
Symple Health, Inc. , 2019.
URL
https://apps.apple.com/us/app/symple-symptom-tracker/id479818115
Material Type
Online
Use Symple to track how you feel, to monitor your health, and to improve your wellbeing. Designed by both clinicians and regular people, Symple is an enjoyable way to connect to better health.
  1 url  
URL
https://apps.apple.com/us/app/symple-symptom-tracker/id479818115
Corporate Author
Symple Health, Inc.
Publication Date
2019
Physical Description
Mobile App
Subject
Coping with Pain
Coping with Chronic Illness
Abstract
Use Symple to track how you feel, to monitor your health, and to improve your wellbeing. Designed by both clinicians and regular people, Symple is an enjoyable way to connect to better health.
Language
English
Material Type
Online
URLs
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La vie...avant, pendant et après: Les soins palliatifs pédiatriques

https://bcch.andornot.com/en/permalink/catalog114452
Humbert, Nago. Montreal, QC: CHU Sainte-Justine , 2012.
Material Type
Book
Call Number
EF 850.5 HUM 2012 STACKS
Availability
1 copy, 1 available
volution des pratiques médicales inclut dorénavant le développement des soins palliatifs pédiatriques. En effet, la spécificité de la prise en charge des enfants et des adolescents vivant avec une pathologie pouvant menacer leur vie a été démontrée grâce à l'expertise et au travail de réflexion en…
Alternate Title
[La vie avant, pendant et apres: Les soins palliatifs pediatriques]
Author
Humbert, Nago
Place of Publication
Montreal, QC
Publisher
CHU Sainte-Justine
Publication Date
2012
Physical Description
Paperback, 335 p.
Subject
Coping with Chronic Illness-Children
Caregiving
Abstract
volution des pratiques médicales inclut dorénavant le développement des soins palliatifs pédiatriques. En effet, la spécificité de la prise en charge des enfants et des adolescents vivant avec une pathologie pouvant menacer leur vie a été démontrée grâce à l'expertise et au travail de réflexion entrepris et soutenu par des intervenants spécialisés, autant en Amérique du Nord qu'en Europe.
La recherche dans ce domaine soulève certaines problématiques particulières, à la fois sur les plans médical, psychologique, éthique, émotionnel, relationnel et spirituel. En regroupant et en explorant plusieurs d'entre elles - contexte de périnatalité ou de handicap, gestion de la douleur, poursuite de la scolarité, rôle du pédiatre et de l'infirmière, souffrance des membres de la famille et des soignants, décès à l'urgence, impacts des décisions concernant l'alimentation, les niveaux de soins et la non-réanimation, possible conflit opposant famille et équipe de soins, importance du suivi de deuil...-, ce livre contribue à donner à chaque jeune patient un encadrement global et adéquat visant la meilleure qualité de vie possible dans le respect de son développement. Référence essentielle, il témoigne de la complexité des gestes et des décisions des soignants qui, ne pouvant plus guérir la maladie, sont appelés à soulager tous les malaises du petit malade et de sa famille, y comprix ceux de l'âme.
ISBN
9782896196197
Language
French
Material Type
Book
Call Number
EF 850.5 HUM 2012 STACKS

Copies

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