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Shared Struggles: Stories from parents and pediatricians caring for children with serious illnesses

https://bcch.andornot.com/en/permalink/catalog124220
Schrooten, A.F., Markovitz, B.P. Switzerland: Springer International Publishing AG , 2021.
URL
https://ebookcentral.proquest.com/lib/cwhbc/detail.action?docID=6578034
Material Type
Ebook
Call Number
EF 850.5 SCH 2021e
This book tells true and poignant stories from both sides of the physician-patient/parent relationship and provides a unique glimpse into how parents and physicians think, feel, and interact. The stories are grouped under four sections: Hope, Compassion, Communication, and Trust.; Each section incl…
  1 url  
URL
https://ebookcentral.proquest.com/lib/cwhbc/detail.action?docID=6578034
Author
Schrooten, A.F.
Markovitz, B.P.
Place of Publication
Switzerland
Publisher
Springer International Publishing AG
Publication Date
2021
Subject
Coping with Chronic Illness-Children
Abstract
This book tells true and poignant stories from both sides of the physician-patient/parent relationship and provides a unique glimpse into how parents and physicians think, feel, and interact. The stories are grouped under four sections: Hope, Compassion, Communication, and Trust.
Each section includes stories contributed by parents from all across the United States and by pediatricians practicing at many of the best children's hospitals throughout the country. The parents tell of interactions with physicians that had a significant impact on them and their child and offer context and insight that promote empathy and reflection. The physicians tell of interactions with patients and families that served as learning moments in their career and promote the humanization of medicine and show there is more to a physician beyond their scientific knowledge and white coat.
The stories are edited by Barry P. Markovitz - a pediatrician specializing in critical care medicine who has been in practice for more than 20 years and by Ann F. Schrooten - the parent of a child born with a chronic complex condition who has more than 15 years of experience interacting with pediatric subspecialists and other healthcare professionals who cared for her son. The editors have written commentaries to the stories to provide an independent perspective on the events and messages conveyed and to encourage reflection, inquiry, and discussion.
In addition to being a valuable resource for pediatricians, pediatric subspecialists, nurses and other healthcare professionals, the book will also appeal to families of children living with complex medical conditions because it shares physician encounters and behaviors many have experienced in the care of their own children. By giving a voice to both parents and physicians, the goal is to create a bridge to better understanding that can improve communication, minimize conflicts, and foster trust and compassion among physicians, patients, and families.
ISBN
9783030680206
Language
English
Material Type
Ebook
Call Number
EF 850.5 SCH 2021e
URLs
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Shared Struggles: Stories from parents and pediatricians caring for children with serious illnesses

https://bcch.andornot.com/en/permalink/catalog123758
Schrooten, A.F., Markovitz, B.P. Switzerland: Springer International Publishing AG , 2021.
Material Type
Book
Call Number
EF 850.5 SCH 2021b
Availability
1 copy, 1 available
This book tells true and poignant stories from both sides of the physician-patient/parent relationship and provides a unique glimpse into how parents and physicians think, feel, and interact. The stories are grouped under four sections: Hope, Compassion, Communication, and Trust.; Each section incl…
Author
Schrooten, A.F.
Markovitz, B.P.
Place of Publication
Switzerland
Publisher
Springer International Publishing AG
Publication Date
2021
Physical Description
251 pages
Subject
Coping with Chronic Illness-Children
Abstract
This book tells true and poignant stories from both sides of the physician-patient/parent relationship and provides a unique glimpse into how parents and physicians think, feel, and interact. The stories are grouped under four sections: Hope, Compassion, Communication, and Trust.
Each section includes stories contributed by parents from all across the United States and by pediatricians practicing at many of the best children's hospitals throughout the country. The parents tell of interactions with physicians that had a significant impact on them and their child and offer context and insight that promote empathy and reflection. The physicians tell of interactions with patients and families that served as learning moments in their career and promote the humanization of medicine and show there is more to a physician beyond their scientific knowledge and white coat.
The stories are edited by Barry P. Markovitz - a pediatrician specializing in critical care medicine who has been in practice for more than 20 years and by Ann F. Schrooten - the parent of a child born with a chronic complex condition who has more than 15 years of experience interacting with pediatric subspecialists and other healthcare professionals who cared for her son. The editors have written commentaries to the stories to provide an independent perspective on the events and messages conveyed and to encourage reflection, inquiry, and discussion.
In addition to being a valuable resource for pediatricians, pediatric subspecialists, nurses and other healthcare professionals, the book will also appeal to families of children living with complex medical conditions because it shares physician encounters and behaviors many have experienced in the care of their own children. By giving a voice to both parents and physicians, the goal is to create a bridge to better understanding that can improve communication, minimize conflicts, and foster trust and compassion among physicians, patients, and families.
ISBN
9783030680206
Language
English
Material Type
Book
Call Number
EF 850.5 SCH 2021b

Copies

BC Children's and Women's Family Library Available
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How to live well with chronic pain and illness: A mindful guide

https://bcch.andornot.com/en/permalink/catalog122440
Bernhard, Toni. Somerville, MA: Wisdom Publications , 2015.
Material Type
Book
Call Number
EF 850 BER 2015
Availability
2 copies, 2 available
Comfort, understanding, and advice for those who are suffering?and those who care for them.; Chronic illness creates many challenges, from career crises and relationship issues to struggles with self-blame, personal identity, and isolation. Beloved author Toni Bernhard addresses these challenges an…
Author
Bernhard, Toni
Place of Publication
Somerville, MA
Publisher
Wisdom Publications
Publication Date
2015
Physical Description
337 pages
Subject
Coping with Chronic Illness
Chronic Illness
Chronic Pain
Abstract
Comfort, understanding, and advice for those who are suffering?and those who care for them.
Chronic illness creates many challenges, from career crises and relationship issues to struggles with self-blame, personal identity, and isolation. Beloved author Toni Bernhard addresses these challenges and many more, using practical examples to illustrate how mindfulness, equanimity, and compassion can help readers make peace with a life turned upside down.
In her characteristic conversational style, Bernhard shows how to cope and make the most of life despite the challenges of chronic illness. Benefit from:
? Mindfulness exercises to mitigate physical and emotional pain
? Concrete advice for negotiating the everyday hurdles of medical appointments, household chores, and social obligations
? Tools for navigating the strains illness can place on relationships
Several chapters are directed toward family and friends of the chronically ill, helping them to understand what their loved one is going through and how they can help.
Humorous and empathetic, Bernhard shares her own struggles and setbacks with unflinching honesty, offering invaluable support in the search to find peace and well-being.
ISBN
9781614292487
Language
English
Material Type
Book
Call Number
EF 850 BER 2015

Copies

copy 1 BC Children's and Women's Family Library Available
copy 2 BC Children's and Women's Family Library Available
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Aches, pains, and love: A guide to dating and relationships for those with chronic pain and illness

https://bcch.andornot.com/en/permalink/catalog122281
Lynne, Kira. [Canada]: Moppet Press , 2016.
Material Type
Book
Call Number
FM 830 LYN 2016
Availability
1 copy, 1 available
"Having been told by a doctor 20 years ago that I'd never be able to have a relationship due to my chronic pain, and having proved her wrong, I've set out to write a book for those who are living with chronic pain and illness and who have given up on or are struggling with relationships.; "It is po…
Author
Lynne, Kira
Place of Publication
[Canada]
Publisher
Moppet Press
Publication Date
2016
Physical Description
Softcover ; xxv, 361 p.
Subject
Chronic Pain
Relationships
Dating
Abstract
"Having been told by a doctor 20 years ago that I'd never be able to have a relationship due to my chronic pain, and having proved her wrong, I've set out to write a book for those who are living with chronic pain and illness and who have given up on or are struggling with relationships.
"It is possible to live well with chronic pain and illness, and it is possible to form lasting, loving relationships. In my book I provide you with a step-by-step guide to getting the love you want, regardless of your physical condition"--from publisher.
ISBN
9780994993502
Language
English
Material Type
Book
Call Number
FM 830 LYN 2016

Copies

BC Children's and Women's Family Library Available
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When your child has a chronic medical illness: A guide for the parenting journey

https://bcch.andornot.com/en/permalink/catalog123817
Sileo, Frank J., Potter, Carol S. Washington, DC: American Psychological Association , 2021.
Material Type
Book
Call Number
EF 850.5 SIL 2021
Availability
1 copy, 1 available
Written by leading mental health professionals, this warm and accessible parenting book for children with chronic illnesses offers clear, practical guidance for all aspects of the journey. It is recommended by professionals at the American Diabetes Association, Invisible Disabilities Association, t…
Author
Sileo, Frank J.
Potter, Carol S.
Place of Publication
Washington, DC
Publisher
American Psychological Association
Publication Date
2021
Physical Description
Softcover; 419 pages
Subject
Coping with Chronic Illness-Children
Coping with Chronic Illness in the Family
Coping with Chronic Illness-Young Adult
Abstract
Written by leading mental health professionals, this warm and accessible parenting book for children with chronic illnesses offers clear, practical guidance for all aspects of the journey. It is recommended by professionals at the American Diabetes Association, Invisible Disabilities Association, the Crohn's Colitis Foundation, and other expert national and regional sources.
For all its joys, parenting is a complex job, and when your child has a chronic illness, the stress can feel overwhelming. When your child is diagnosed, you begin a parenting journey filled with strong emotions, difficult choices, confusing words, and interactions with numerous professionals and specialists.
You're focused on ensuring your child gets the best possible treatments for their symptoms, so it's easy to overlook or dismiss the impact the illness can have on your relationships and emotions. This book places your psychological well-being front and center, so you can be the best caregiver possible for your child.
Along with suggestions for making laughter and mindfulness part of your daily self-care routine, it offers guidance for choosing the right therapist for your family, should extra support be needed. Every family's journey with chronic illness is unique, but you don't have to go it alone.
ISBN
9781433833816
Language
English
Material Type
Book
Call Number
EF 850.5 SIL 2021

Copies

BC Children's and Women's Family Library Available
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When someone you love has a chronic illness: Hope and help for those providing support

https://bcch.andornot.com/en/permalink/catalog122265
McClintock Greenberg, Tamara. Springville, UT: Plain Sight Publishing , 2012.
Material Type
Book
Call Number
EF 800 GRE 2012
Availability
1 copy, 1 available
"Dr. Tamara Greenberg offers hope and practical advice to those impacted by a loved one's illness with this new book., "When Someone You Love Has a Chronic Illness: Hope and Help for Those Providing Support. Inside, Dr. Greenberg provides easy-to-understand explanations for complicated feelings and…
Author
McClintock Greenberg, Tamara
Place of Publication
Springville, UT
Publisher
Plain Sight Publishing
Publication Date
2012
Physical Description
Softcover ; xiv, 157 p.
Subject
Chronic Illness
Abstract
"Dr. Tamara Greenberg offers hope and practical advice to those impacted by a loved one's illness with this new book., "When Someone You Love Has a Chronic Illness: Hope and Help for Those Providing Support. Inside, Dr. Greenberg provides easy-to-understand explanations for complicated feelings and behaviors and offers pragmatic strategies for coping effectively and serving your loved one in this time of need.
"Learn how to talk to someone who is ill, what not to do, how to address your loved ones who aren't taking care of themselves, how to help someone in physical pain, and more.
"Above all, Dr. Greenberg delivers important tools for managing the normal anxiety we all feel when someone we love is ill." --From back cover
ISBN
9781599559391
Language
English
Material Type
Book
Call Number
EF 800 GRE 2012

Copies

BC Children's and Women's Family Library Available
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Children's Health and Illness Recovery Program (CHIRP): Clinician guide

https://bcch.andornot.com/en/permalink/catalog124615
Carter, Bryan D., Kronenberger, William G., Scott, Eric L., Brady, Christine E. Oxford, UK: Oxford University Press , 2020.
Material Type
Book
Call Number
EF 850.6 CAR 2020b
Availability
1 copy, 1 available
Youth with chronic illnesses face challenges that may prove disruptive to physical, psychological, and social development. Based on extensive research and clinical expertise, Children's Health and Illness Recovery Program (CHIRP) is an interdisciplinary cognitive behavioral and family systems-based…
Author
Carter, Bryan D.
Kronenberger, William G.
Scott, Eric L.
Brady, Christine E.
Place of Publication
Oxford, UK
Publisher
Oxford University Press
Publication Date
2020
Physical Description
Softcover; 173 pages
Series
Programs that work
Subject
Coping with Chronic Illness Young Adult
Coping with Chronic Illness
Coping with Chronic Illness-Children
Abstract
Youth with chronic illnesses face challenges that may prove disruptive to physical, psychological, and social development. Based on extensive research and clinical expertise, Children's Health and Illness Recovery Program (CHIRP) is an interdisciplinary cognitive behavioral and family systems-based treatment program designed to maximize the independent functioning of teens with chronic illness.
This Clinician Guide offers a detailed outline for implementing this manualized intervention and provides clear guidance as to the philosophy, pragmatics, and art of working with challenging pediatric conditions. Designed to accompany the CHIRP Teen and Family Workbook, this book addresses specific assessment measures and tools needed to establish a collaborative treatment team approach that incorporates the skills of the CHIRP clinician, primary and specialty care providers, and roles of other healthcare (physical therapists, occupational therapists, etc.) and educational professionals critical to the successful management and treatment of these youth.
ISBN
9780190070267
Language
English
Material Type
Book
Call Number
EF 850.6 CAR 2020b

Copies

BC Children's and Women's Family Library Available
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Twins, triplets and more : Resource guide for multiple pregnancy and parenthood

https://bcch.andornot.com/en/permalink/catalog106695
Leonard, Linda G. Vancouver, BC: University of British Columbia , 2020. The final edition.
URL
https://nursing.ubc.ca/sites/default/files/files/event/attachments/TwinsTripletsMoreGuide2020%20.pdf
Material Type
Handout
Online
Availability
1 copy, 1 available
This resource guide is designed for multiple birth families living in Canada, particularly those in British Columbia and the Lower Mainland. Includes information on multiple birth statistics, nutrition and multiple pregnancy, pregnancy at-home care programs, safety, telephone support, and other res…
  1 url  
URL
https://nursing.ubc.ca/sites/default/files/files/event/attachments/TwinsTripletsMoreGuide2020%20.pdf
Author
Leonard, Linda G.
Corporate Author
School of Nursing, University of British Columbia
Edition
The final edition
Place of Publication
Vancouver, BC
Publisher
University of British Columbia
Publication Date
2020
Physical Description
PDF; 39 pages
Subject
Multiple Births (includes twins, triplets etc.)
Parenting Multiples (includes twins, triplets etc.)
Pregancy/Childbirth. Obstetrics
Infant Feeding
Infants
Parenting
Abstract
This resource guide is designed for multiple birth families living in Canada, particularly those in British Columbia and the Lower Mainland. Includes information on multiple birth statistics, nutrition and multiple pregnancy, pregnancy at-home care programs, safety, telephone support, and other resources.
Notes
SUBJECT Parenting Infants & Toddlers
Language
English
Material Type
Handout
Online

Copies

Copy 1 BC Children's and Women's Family Library Available
URLs
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Little tree: A story for children with serious medical problems

https://bcch.andornot.com/en/permalink/catalog102854
Mills, Joyce C., Chesworth, Michael (Illustrator). New York, NY: Magination Press , 1992.
Material Type
Book
Call Number
JUNIOR CF 200 MIL 1992
Availability
1 copy, 1 available
In this healing story, a little tree loses some of her branches in a storm. She experiences emotions of fear, self-blame, and worry so common to children facing serious medical problems. The little tree in the forest survives the storm and learns that although many branches and leaves were lost, sh…
Author
Mills, Joyce C.
Chesworth, Michael (Illustrator)
Place of Publication
New York, NY
Publisher
Magination Press
Publication Date
1992
Physical Description
Softcover: ill., 28 p.
Subject
Self-Concept (includes self-esteem)
Amputation. Limb Prosthesis
Children's Health-Accidents and Injuries
Picture Books
Abstract
In this healing story, a little tree loses some of her branches in a storm. She experiences emotions of fear, self-blame, and worry so common to children facing serious medical problems. The little tree in the forest survives the storm and learns that although many branches and leaves were lost, she still has deep roots, a strong trunk and a beautiful heart. Children will discover that they too have strengths and abilities for living happy lives. A relaxation exercise is included.
ISBN
0945354517
Language
English
Material Type
Book
Call Number
JUNIOR CF 200 MIL 1992

Copies

BC Children's and Women's Family Library Available
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But you look good: How to encourage and understand people living with illness and pain

https://bcch.andornot.com/en/permalink/catalog122282
Connell, Wayne, Connell, Sherri. Parker, Colorado: Invisible Disabilities Association , 2014.
Material Type
Book
Call Number
FM 830 CON 2014
Availability
2 copies, 2 available
"Do your loved ones have a hard time understanding your chronic illness or pain, because to them you LOOK fine? But You LOOK Good is a book that gives those living with chronic illness and pain a voice about how they feel, what they need and how others can be an encouragement to them. It is a conv…
Author
Connell, Wayne
Connell, Sherri
Place of Publication
Parker, Colorado
Publisher
Invisible Disabilities Association
Publication Date
2014
Physical Description
Softcover ; 85 p.
Subject
Chronic Illness
Chronic Pain
Abstract
"Do your loved ones have a hard time understanding your chronic illness or pain, because to them you LOOK fine? But You LOOK Good is a book that gives those living with chronic illness and pain a voice about how they feel, what they need and how others can be an encouragement to them. It is a convenient, informative way to educate loved ones about what people living with ongoing illness and pain struggle with, fight for and need from their friends and family. It is easy to read, gives practical ideas on how loved ones can be supportive and is not too long for readers to lose interest!"--from publisher.
ISBN
9780692258453
Language
English
Material Type
Book
Call Number
FM 830 CON 2014

Copies

copy 1 BC Children's and Women's Family Library Available
copy 2 BC Children's and Women's Family Library Available
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Anything for my child: Making impossible decisions for medically complex children

https://bcch.andornot.com/en/permalink/catalog124865
Nimmo, Stephanie. London, UK: Jessica Kingsley Publishers , 2024.
Material Type
Book
Call Number
EF 850.5 NIM 2024
Availability
1 copy, 1 available
Every parent wants the same thing: for their child to enjoy a long and fulfilling life. But what happens when things don't go according to plan? What happens when parents have to become advocates for their child's healthcare needs? Who decides what is in a child's 'best interests'?; Stephanie Nimmo…
Author
Nimmo, Stephanie
Place of Publication
London, UK
Publisher
Jessica Kingsley Publishers
Publication Date
2024
Physical Description
Softcover; 272 pages
Subject
Coping with Chronic Illness-Children
Caregivers-Coping
Caregivers for a Dying Loved One
Abstract
Every parent wants the same thing: for their child to enjoy a long and fulfilling life. But what happens when things don't go according to plan? What happens when parents have to become advocates for their child's healthcare needs? Who decides what is in a child's 'best interests'?
Stephanie Nimmo faced these questions first-hand when her daughter, Daisy, was diagnosed with a life-limiting condition as a baby. Seen through the lens of Stephanie's own experiences, this sensitive book delves into the complex world of medical ethics and pediatric palliative care. From recognizing tipping points to the importance of building relationships with palliative care teams well before crisis, this book explores how medical professionals can better support families throughout their child's care.
Interviews with clinicians and snapshots from the lives of patients' families provide insight into the realities of life on both sides of the hospital bed. Compassionate explanations of the conflicting pressures in the hospital system foster understanding and help medical professionals and families work together.
ISBN
5727227010272
Language
English
Material Type
Book
Call Number
EF 850.5 NIM 2024

Copies

BC Children's and Women's Family Library Available
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Everybody stay calm : How to support your young child through medical tests and procedures

https://bcch.andornot.com/en/permalink/catalog123090
Mackenzie, Angela. Global Publishing Group , 2014.
Material Type
Book
Call Number
FM 800 MAC 2014
Availability
1 copy, 1 available
This book explains how you can make your child's medical procedures less scary and painful. You will learn:; - Secrets to building your confidence in a medical setting,; - Essential steps to help prepare your child for medical tests,; - Practical skills that will transform your child's experience o…
Author
Mackenzie, Angela
Publisher
Global Publishing Group
Publication Date
2014
Subject
Pain Control
Abstract
This book explains how you can make your child's medical procedures less scary and painful. You will learn:
- Secrets to building your confidence in a medical setting,
- Essential steps to help prepare your child for medical tests,
- Practical skills that will transform your child's experience of medical treatment,
- Benefits of collaborating with the health professionals,
- Real gems from the stories of parents who have been there,
- How to avoid the most common mistakes that parents make, and
- Where to get further help if you need it.
ISBN
1922118354
Language
English
Material Type
Book
Call Number
FM 800 MAC 2014

Copies

BC Children's and Women's Family Library Available
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Finding freedom in illness: A guide to cultivating deep well-being through mindfulness and self-compassion

https://bcch.andornot.com/en/permalink/catalog122283
Fernando, Peter. Boulder: Shambhala Publications, Inc. , 2016.
Material Type
Book
Call Number
EF 850 FER 2016
Availability
1 copy, 1 available
"'Let your illness be your spiritual teacher!' Make a statement like that to someone who's struggled for years with, say, rheumatoid arthritis, and be prepared for an eye roll (at best). To Peter Fernando's credit, he makes that statement, and no such impulse arises. We believe him because he's bee…
Author
Fernando, Peter
Place of Publication
Boulder
Publisher
Shambhala Publications, Inc.
Publication Date
2016
Physical Description
Softcover ; ix, 222 p.
Subject
Mindfulness
Mind/Body
Chronic Illness
Chronic Pain
Emotional Health
Self-Concept (includes self-esteem)
Abstract
"'Let your illness be your spiritual teacher!' Make a statement like that to someone who's struggled for years with, say, rheumatoid arthritis, and be prepared for an eye roll (at best). To Peter Fernando's credit, he makes that statement, and no such impulse arises. We believe him because he's been there himself and because he backs up the statements with his own real experiences and with real wisdom from the Buddhist teachings. Fernando starts by defusing the pernicious belief that anyone is somehow responsible for their illness: you're not "wrong" for being sick. Then, having gotten past self-blame, one can begin to learn self-kindness. From there, one moves to mindfulness practices and cultivating body awareness?even if body awareness is distasteful when the body isn't behaving the way you like. Further topics include getting intimate with dark emotions (fear, despair, the scary future, frustration, grief, etc.), learning equanimity (rejoicing in the good fortune of those who don't share your suffering), cultivating healthy relationships in the midst of everything, and practical advice for living with pain. Each chapter comes with one or more practices or guided meditations for putting the teachings into practice"--from publisher.
ISBN
9781611802634
Language
English
Material Type
Book
Call Number
EF 850 FER 2016

Copies

BC Children's and Women's Family Library Available
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Say NO bullying : A resource book for children and teens with disorders of short stature

https://bcch.andornot.com/en/permalink/catalog122540
Yasuda, Patrice M., Ievers-Landis, Carolyn E., Rose, Chad A. Glen Head, NY: Human Growth Foundation , 2016.
Material Type
Book
Call Number
BE 965 YAS 2016
Availability
1 copy, 1 available
Written for children and parents, this anti-bullying program clarifies what is and is not bullying, and helps you develop an anti-bullying plan.; Includes a list of resources for children and teens that may experience bullying.
Author
Yasuda, Patrice M.
Ievers-Landis, Carolyn E.
Rose, Chad A.
Place of Publication
Glen Head, NY
Publisher
Human Growth Foundation
Publication Date
2016
Physical Description
44 pages
Subject
Bullying
Abstract
Written for children and parents, this anti-bullying program clarifies what is and is not bullying, and helps you develop an anti-bullying plan.
Includes a list of resources for children and teens that may experience bullying.
Language
English
Material Type
Book
Call Number
BE 965 YAS 2016

Copies

copy 1 BC Children's and Women's Family Library Available
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BC Children's Hospital Comfort PACT : Procotol

https://bcch.andornot.com/en/permalink/catalog123693
Vancouver, BC: BC Children's Hospital , 2022.
URL
http://www.cw.bc.ca/library/pdf/pamphlets/BCCH_ComfortPact_Protocol.pdf
Material Type
Handout
Online
BC Children's Hospital is committed to promoting comfort at every clinical encounter.; The Comfort PACT is a protocol that includes five key approaches to promote comfort and reduce pain whenever possible.; This handout explains what you can expect from us, for each approach.
  1 url  
URL
http://www.cw.bc.ca/library/pdf/pamphlets/BCCH_ComfortPact_Protocol.pdf
Place of Publication
Vancouver, BC
Publisher
BC Children's Hospital
Publication Date
2022
Physical Description
PDF; 1 page
Subject
Pain Control-Complementary Therapies
Pain Control
Abstract
BC Children's Hospital is committed to promoting comfort at every clinical encounter.
The Comfort PACT is a protocol that includes five key approaches to promote comfort and reduce pain whenever possible.
This handout explains what you can expect from us, for each approach.
Language
English
Material Type
Handout
Online
URLs
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Bereaved children and teens: A support guide for parents and professionals

https://bcch.andornot.com/en/permalink/catalog102989
Grollman, Earl A. [Boston, MA]: Beacon Press , 1995. Rev. ed. of: Explaining death to children. 1967. .
Material Type
Book
Call Number
GV 200 GRO 1995
Availability
1 copy, 1 available
This is a comprehensive resource for parents, teachers, counselors, health-care professionals, clergy and others concerned about the children in their lives. Suggests ways of explaining death to children and teens from a number of perspectives eg. philosophical, cultural and religious.
Author
Grollman, Earl A.
Edition
Rev. ed. of: Explaining death to children. 1967.
Place of Publication
[Boston, MA]
Publisher
Beacon Press
Publication Date
1995
Physical Description
xii; 238 p.
Subject
Grief. Bereavement
Coping with Death
Children's Emotions
Emotional Health
Abstract
This is a comprehensive resource for parents, teachers, counselors, health-care professionals, clergy and others concerned about the children in their lives. Suggests ways of explaining death to children and teens from a number of perspectives eg. philosophical, cultural and religious.
ISBN
080702306X
Language
English
Material Type
Book
Call Number
GV 200 GRO 1995

Copies

Copy 1 BC Children's and Women's Family Library Available
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When your child hurts : Effective strategies to increase comfort, reduce stress, and break the cycle of chronic pain

https://bcch.andornot.com/en/permalink/catalog122357
Coaklly, Rachael. Yale University Press , 2016.
Material Type
Book
Call Number
GK 285 COA 2016
Availability
1 copy, 1 available
"Parents of a child in pain want nothing more than to offer immediate comfort. But a child with chronic or recurring pain requires much more. His or her parents need skills and strategies not only for increasing comfort but also for helping their child deal with an array of pain-related challenges,…
Author
Coaklly, Rachael
Publisher
Yale University Press
Publication Date
2016
Physical Description
Softcover ; xxiv, 325 p.
Subject
Children's Health - Pain Control
Chronic Pain
Pain
Abstract
"Parents of a child in pain want nothing more than to offer immediate comfort. But a child with chronic or recurring pain requires much more. His or her parents need skills and strategies not only for increasing comfort but also for helping their child deal with an array of pain-related challenges, such as school disruption, sleep disturbance, and difficulties with peers. This essential guide, written by an expert in pediatric pain management, is the practical, accessible, and comprehensive resource that families and caregivers have been awaiting. It offers in-the-moment strategies for managing a child?s pain along with expert advice for fostering long-term comfort.
"Dr. Rachael Coakley, a clinical pediatric psychologist who works exclusively with families of children with chronic or recurrent pain, provides a set of research-proven strategies?some surprisingly counter-intuitive?to achieve positive results quickly and lastingly. Whether the pain is disease-related, the result of an injury or surgery, or caused by another condition or syndrome, this book offers what every parent of a child in pain most needs: effective methods for reversing the cycle of chronic pain"--from the Publisher.
ISBN
9780300204650
Language
English
Material Type
Book
Call Number
GK 285 COA 2016

Copies

BC Children's and Women's Family Library Available
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BC Children's Hospital Comfort PACT : Pain addressed, comfort tended

https://bcch.andornot.com/en/permalink/catalog123691
Vancouver, BC: BC Children's Hospital , 2022.
URL
http://www.cw.bc.ca/library/pdf/pamphlets/BC-Childrens-Comfort-Pact.pdf
Material Type
Handout
Online
BC Children's Hospital is committed to promoting comfort at every clinical encounter.; The Comfort PACT is a protocol that includes five key pillars to promote comfort and reduce pain whenever possible. The pillars are; preparation, communication, comfort positions, alternate focus, and medication.…
  1 url  
URL
http://www.cw.bc.ca/library/pdf/pamphlets/BC-Childrens-Comfort-Pact.pdf
Place of Publication
Vancouver, BC
Publisher
BC Children's Hospital
Publication Date
2022
Physical Description
PDF; 2 pages
Subject
Pain Control-Complementary Therapies
Pain Control
Abstract
BC Children's Hospital is committed to promoting comfort at every clinical encounter.
The Comfort PACT is a protocol that includes five key pillars to promote comfort and reduce pain whenever possible. The pillars are
preparation, communication, comfort positions, alternate focus, and medication. These pillars offer different approaches and interventions.
This handout briefly explains each pillar, and tells you where to learn more.
Language
English
Material Type
Handout
Online
URLs
Show Less

BC Children's Hospital Comfort PACT : Communication: Family evidence summary

https://bcch.andornot.com/en/permalink/catalog123696
Vancouver, BC: BC Children's Hospital , 2022.
URL
http://www.cw.bc.ca/library/pdf/pamphlets/BCCH_ComfortPact_Communication.pdf
Material Type
Handout
Online
BC Children's Hospital is committed to promoting comfort at every clinical encounter.; The Comfort PACT is a protocol that includes five key approaches to promote comfort and reduce pain whenever possible.; This handout explains one of our approaches, communication. Learn alternate focus is, why it…
  1 url  
URL
http://www.cw.bc.ca/library/pdf/pamphlets/BCCH_ComfortPact_Communication.pdf
Place of Publication
Vancouver, BC
Publisher
BC Children's Hospital
Publication Date
2022
Physical Description
PDF; 1 page
Subject
Pain Control-Complementary Therapies
Pain Control
Abstract
BC Children's Hospital is committed to promoting comfort at every clinical encounter.
The Comfort PACT is a protocol that includes five key approaches to promote comfort and reduce pain whenever possible.
This handout explains one of our approaches, communication. Learn alternate focus is, why it matters, and what you can expect from staff.
Language
English
Material Type
Handout
Online
URLs
Show Less

BC Children's Hospital Comfort PACT : Medication: Family evidence summary

https://bcch.andornot.com/en/permalink/catalog123697
Vancouver, BC: BC Children's Hospital , 2022.
URL
http://www.cw.bc.ca/library/pdf/pamphlets/BCCH_ComfortPact_Medication.pdf
Material Type
Handout
Online
BC Children's Hospital is committed to promoting comfort at every clinical encounter.; The Comfort PACT is a protocol that includes five key approaches to promote comfort and reduce pain whenever possible.; This handout explains one of our approaches, medication. Learn why it matters, and what you …
  1 url  
URL
http://www.cw.bc.ca/library/pdf/pamphlets/BCCH_ComfortPact_Medication.pdf
Place of Publication
Vancouver, BC
Publisher
BC Children's Hospital
Publication Date
2022
Physical Description
PDF; 1 page
Subject
Pain Control-Complementary Therapies
Pain Control
Abstract
BC Children's Hospital is committed to promoting comfort at every clinical encounter.
The Comfort PACT is a protocol that includes five key approaches to promote comfort and reduce pain whenever possible.
This handout explains one of our approaches, medication. Learn why it matters, and what you can expect from staff.
Language
English
Material Type
Handout
Online
URLs
Show Less

BC Children's Hospital Comfort PACT : Preparation: Family evidence summary

https://bcch.andornot.com/en/permalink/catalog123698
Vancouver, BC: BC Children's Hospital , 2022.
URL
http://www.cw.bc.ca/library/pdf/pamphlets/BCCH_ComfortPact_Preparation.pdf
Material Type
Handout
Online
BC Children's Hospital is committed to promoting comfort at every clinical encounter.; The Comfort PACT is a protocol that includes five key approaches to promote comfort and reduce pain whenever possible.; This handout explains one of our approaches, preparation. Learn why preparation matters, and…
  1 url  
URL
http://www.cw.bc.ca/library/pdf/pamphlets/BCCH_ComfortPact_Preparation.pdf
Place of Publication
Vancouver, BC
Publisher
BC Children's Hospital
Publication Date
2022
Physical Description
PDF; 1 page
Subject
Pain Control-Complementary Therapies
Pain Control
Abstract
BC Children's Hospital is committed to promoting comfort at every clinical encounter.
The Comfort PACT is a protocol that includes five key approaches to promote comfort and reduce pain whenever possible.
This handout explains one of our approaches, preparation. Learn why preparation matters, and what you can expect from your health-care provider.
Language
English
Material Type
Handout
Online
URLs
Show Less

BC Children's Hospital Comfort PACT : How and why we promote comfort

https://bcch.andornot.com/en/permalink/catalog123692
Vancouver, BC: BC Children's Hospital , 2022.
URL
http://www.cw.bc.ca/library/pdf/pamphlets/BCCH_ComfortPACT.pdf
Material Type
Handout
Online
BC Children's Hospital is committed to promoting comfort at every clinical encounter.; The Comfort PACT is a protocol that includes five key pillars to promote comfort and reduce pain whenever possible. The pillars are preparation, communication, comfort positions, alternate focus, and medication.;…
  1 url  
URL
http://www.cw.bc.ca/library/pdf/pamphlets/BCCH_ComfortPACT.pdf
Place of Publication
Vancouver, BC
Publisher
BC Children's Hospital
Publication Date
2022
Physical Description
PDF; 1 page
Subject
Pain Control-Complementary Therapies
Pain Control
Abstract
BC Children's Hospital is committed to promoting comfort at every clinical encounter.
The Comfort PACT is a protocol that includes five key pillars to promote comfort and reduce pain whenever possible. The pillars are preparation, communication, comfort positions, alternate focus, and medication.
This handout answers why and how we promote comfort this way.
Language
English
Material Type
Handout
Online
URLs
Show Less

BC Children's Hospital Comfort PACT : Alternate focus: Family evidence summary

https://bcch.andornot.com/en/permalink/catalog123694
Vancouver, BC: BC Children's Hospital , 2022.
URL
http://www.cw.bc.ca/library/pdf/pamphlets/BCCH_ComfortPact_AlternateFocus.pdf
Material Type
Handout
Online
BC Children's Hospital is committed to promoting comfort at every clinical encounter.; The Comfort PACT is a protocol that includes five key approaches to promote comfort and reduce pain whenever possible.; This handout explains one of our approaches, alternate focus. Learn alternate focus is, why …
  1 url  
URL
http://www.cw.bc.ca/library/pdf/pamphlets/BCCH_ComfortPact_AlternateFocus.pdf
Place of Publication
Vancouver, BC
Publisher
BC Children's Hospital
Publication Date
2022
Physical Description
PDF; 1 page
Subject
Pain Control-Complementary Therapies
Pain Control
Abstract
BC Children's Hospital is committed to promoting comfort at every clinical encounter.
The Comfort PACT is a protocol that includes five key approaches to promote comfort and reduce pain whenever possible.
This handout explains one of our approaches, alternate focus. Learn alternate focus is, why it matters, how you can coach your child, and what you can expect from staff.
Language
English
Material Type
Handout
Online
URLs
Show Less

BC Children's Hospital Comfort PACT : Comfort positions: Family evidence summary

https://bcch.andornot.com/en/permalink/catalog123695
Vancouver, BC: BC Children's Hospital , 2022.
URL
http://www.cw.bc.ca/library/pdf/pamphlets/BCCH_ComfortPact_ComfortPositions.pdf
Material Type
Handout
Online
BC Children's Hospital is committed to promoting comfort at every clinical encounter.; The Comfort PACT is a protocol that includes five key approaches to promote comfort and reduce pain whenever possible.; This handout explains one of our approaches, comfort positions. Learn why comfort positions …
  1 url  
URL
http://www.cw.bc.ca/library/pdf/pamphlets/BCCH_ComfortPact_ComfortPositions.pdf
Place of Publication
Vancouver, BC
Publisher
BC Children's Hospital
Publication Date
2022
Physical Description
PDF; 1 page
Subject
Pain Control-Complementary Therapies
Pain Control
Abstract
BC Children's Hospital is committed to promoting comfort at every clinical encounter.
The Comfort PACT is a protocol that includes five key approaches to promote comfort and reduce pain whenever possible.
This handout explains one of our approaches, comfort positions. Learn why comfort positions matter.
Language
English
Material Type
Handout
Online
URLs
Show Less

No tears, no fears... 13 years later: Children coping with pain

https://bcch.andornot.com/en/permalink/catalog109744
Kuttner, Leora (Executive Producer), McDonald, Lawrence (Director). , 1998.
Material Type
DVD
Call Number
FE 550 KUT 1998b
Availability
2 copies, 2 available
Children, now young adults, who participated in pain management program "No Fears No Tears, 1986." discuss the impact of cancer on their lives.
  1 image  
Alternate Title
No fears no tears 13 years later
Author
Kuttner, Leora (Executive Producer)
McDonald, Lawrence (Director)
Publication Date
1998
Physical Description
1 DVD: 46 min.
Subject
Pain
Chronic Pain
Cancer Pain Control-Coping
Abstract
Children, now young adults, who participated in pain management program "No Fears No Tears, 1986." discuss the impact of cancer on their lives.
Language
English
Material Type
DVD
Call Number
FE 550 KUT 1998b

Copies

Copy 2 BC Children's and Women's Family Library Available
Copy 1 BC Children's and Women's Family Library Available
Images
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Mind-body techniques: Helping children to cope with painful procedures : reflections and case studies by BC Children's Hospital (BCCH) staff

https://bcch.andornot.com/en/permalink/catalog123607
Kuttner, Leora, Carlson, Torie. [Vancouver], BC: BC Children's Hospital , 2022.
Material Type
Book
Call Number
FM 820 KUT 2022
Availability
2 copies, 2 available
This book features reflections and case studies by clinicians trained to use a range of mind-body techniques that have been shown, through research, to relieve pain and anxiety and to empower children and their parents to cope with distressing invasive procedures and medical interventions.
Author
Kuttner, Leora
Carlson, Torie
Place of Publication
[Vancouver], BC
Publisher
BC Children's Hospital
Publication Date
2022
Physical Description
Softcover : 29 pages
Subject
Pain Control
Mind/Body
Abstract
This book features reflections and case studies by clinicians trained to use a range of mind-body techniques that have been shown, through research, to relieve pain and anxiety and to empower children and their parents to cope with distressing invasive procedures and medical interventions.
Language
English
Material Type
Book
Call Number
FM 820 KUT 2022

Copies

Copy 1 BC Children's and Women's Family Library Available
Copy 2 BC Children's and Women's Family Library Available
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Living Well with Pain and Illness: The Mindful Way to Free Yourself from Suffering

https://bcch.andornot.com/en/permalink/catalog123953
Burch, Vidyamala. Boulder, CO: Sounds True , 2010.
Material Type
Book
Call Number
FM 830 BUR 2010
Availability
1 copy, 1 available
After two serious spinal injuries, Vidyamala Burch found herself facing the loneliness of disability and chronic pain with few skills or resources to turn to. But instead of giving up, she set out on a mission to embrace her physical challenges with compassion, acceptance, and peace.; Living Well w…
Author
Burch, Vidyamala
Place of Publication
Boulder, CO
Publisher
Sounds True
Publication Date
2010
Subject
Chronic Pain
Mindfulness
Abstract
After two serious spinal injuries, Vidyamala Burch found herself facing the loneliness of disability and chronic pain with few skills or resources to turn to. But instead of giving up, she set out on a mission to embrace her physical challenges with compassion, acceptance, and peace.
Living Well with Pain and Illness shares the fruits of her courageous life?s work, teaching us how the practice of mindfulness can help us thrive in the face of health challenges of any kind. Drawing on the wisdom of a dozen years of teaching meditation and a lifetime of study of the benefits of mindful living, Vidyamala encourages readers with insights and instruction in:
The five-step model of mindfulness and how to use it to foster healing
The Breathworks approach to meditation, and how to apply it to health concerns such as migraines, arthritis, and chronic fatigue
Step-by-step techniques, illustrations, and case studies demonstrating how to effectively bring mindfulness into daily life
Chronic pain has been called the modern world?s silent epidemic. Billions are spent every year in an attempt to cope, yet the best solution available may be absolutely free: mindful living. In Living Well with Pain and Illness, Vidyamala Burch presents a work that is at once an inspirational memoir and practical guidebook for using mindfulness to reframe your relationship with physical and emotional suffering.
ISBN
9781591797470
Language
English
Material Type
Book
Call Number
FM 830 BUR 2010

Copies

copy 1 BC Children's and Women's Family Library Available
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When love hurts: A woman's guide to understanding abuse in relationships

https://bcch.andornot.com/en/permalink/catalog122462
Cory, Jill, McAndless-Davis. New York, NY: New American Library , 2016.
Material Type
Book
Call Number
CE 100 COR 2016
Availability
2 copies, 2 available
What do you do when the one you love hurts you? If you are wondering about whether you are experiencing abuse from a partner or unsure if your damaged relationship can be fixed, finding answers can seem daunting--or even impossible. This book can help answer your questions, using exercises and reso…
Author
Cory, Jill
McAndless-Davis
Place of Publication
New York, NY
Publisher
New American Library
Publication Date
2016
Physical Description
173 pages
Subject
Abusive Relationships
Battering. Spouse Abuse. Partner Abuse/Domestic Violence
Battering. Spouse Abuse. Partner Abuse-Coping
Abstract
What do you do when the one you love hurts you? If you are wondering about whether you are experiencing abuse from a partner or unsure if your damaged relationship can be fixed, finding answers can seem daunting--or even impossible. This book can help answer your questions, using exercises and resources to help you make sense of your relationship, addressing all forms of abuse including verbal, emotional, financial, sexual and physical.
ISBN
9780425274286
Language
English
Material Type
Book
Call Number
CE 100 COR 2016

Copies

copy 1 BC Children's and Women's Family Library Available
copy 2 BC Children's and Women's Family Library Available
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Understanding living with a chronic illness: Written by doctors for kids

https://bcch.andornot.com/en/permalink/catalog121225
Renfrew, Ruth, deLoache, Shawn. New York, NY: Jumo , 2018.
Material Type
Book
Call Number
JUNIOR EF 800 REN 2018
Availability
1 copy, 1 available
Comic book featuring Medikidz, superhero experts on health and illness. Explains how chronic illness can affect individuals and their families.
Author
Renfrew, Ruth
deLoache, Shawn
Editor
Medikidz USA Inc.
Place of Publication
New York, NY
Publisher
Jumo
Publication Date
2018
Physical Description
Softcover; 16 p.
Subject
Chronic Illness
Abstract
Comic book featuring Medikidz, superhero experts on health and illness. Explains how chronic illness can affect individuals and their families.
Language
English
Material Type
Book
Call Number
JUNIOR EF 800 REN 2018

Copies

copy 1 BC Children's and Women's Family Library Available
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The chronic pain and illness workbook for teens : CBT and mindfulness-based practices to turn the volume down on pain

https://bcch.andornot.com/en/permalink/catalog122615
Zoffness, Rachel, Krane, Elliot J. New Harbinger Publications , 2019.
URL
https://ebookcentral.proquest.com/lib/cwhbc/detail.action?docID=5820414
Material Type
Ebook
Call Number
YOUTH FM 850 ZOF 2019e
This workbook blends cognitive behavioral therapy (CBT) and mindfulness-based stress reduction (MBSR). You will learn how pain affects both your mind and body, how negative emotions can make pain worse, and strategies to help you turn the volume down on your pain, so you can go back to enjoying act…
  1 url  
URL
https://ebookcentral.proquest.com/lib/cwhbc/detail.action?docID=5820414
Author
Zoffness, Rachel
Krane, Elliot J.
Publisher
New Harbinger Publications
Publication Date
2019
Physical Description
eBook (176 pages)
Subject
Coping with Pain
Chronic Pain
Coping with Chronic Illness Young Adult
Abstract
This workbook blends cognitive behavioral therapy (CBT) and mindfulness-based stress reduction (MBSR). You will learn how pain affects both your mind and body, how negative emotions can make pain worse, and strategies to help you turn the volume down on your pain, so you can go back to enjoying activities that you love. You'll also learn mindfulness and relaxation exercises, including belly breathing and body scan to help manage pain in the moment. The exercises and strategies in this book are rooted in research, fun to learn, and easy to practice. For ages 12+.
ISBN
9781684033539
Language
English
Material Type
Ebook
Call Number
YOUTH FM 850 ZOF 2019e
URLs
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The chronic pain and illness workbook for teens : CBT and mindfulness-based practices to turn the volume down on pain

https://bcch.andornot.com/en/permalink/catalog123121
Zoffness, Rachel, Krane, Elliot J. New Harbinger Publications , 2019.
Material Type
Book
Call Number
YOUTH FM 850 ZOF 2019
Availability
1 copy, 1 available
This workbook blends cognitive behavioral therapy (CBT) and mindfulness-based stress reduction (MBSR). You will learn how pain affects both your mind and body, how negative emotions can make pain worse, and strategies to help you turn the volume down on your pain, so you can go back to enjoying act…
Author
Zoffness, Rachel
Krane, Elliot J.
Publisher
New Harbinger Publications
Publication Date
2019
Physical Description
155 pages
Subject
Coping with Pain
Chronic Pain
Coping with Chronic Illness Young Adult
Abstract
This workbook blends cognitive behavioral therapy (CBT) and mindfulness-based stress reduction (MBSR). You will learn how pain affects both your mind and body, how negative emotions can make pain worse, and strategies to help you turn the volume down on your pain, so you can go back to enjoying activities that you love. You'll also learn mindfulness and relaxation exercises, including belly breathing and body scan to help manage pain in the moment. The exercises and strategies in this book are rooted in research, fun to learn, and easy to practice. For ages 12+.
ISBN
9781684033522
Language
English
Material Type
Book
Call Number
YOUTH FM 850 ZOF 2019

Copies

Copy 1 BC Children's and Women's Family Library Available
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Giving hope: Conversations with children about illness, death, and loss

https://bcch.andornot.com/en/permalink/catalog124599
Lister, Elena, Schwartzman, Michael. New York, NY: Penguin Random house , 2022.
Material Type
Book
Call Number
GV 100 LIS 2022
Availability
1 copy, 0 available
Just as death is inevitable, talking about death is an inevitable part of parenting. Drs. Lister and Schwartzman offer us the way to have conversations that are as much about life as they are about death; conversations that anyone who parents, teaches, or counsels children can have. Giving Hope is …
Author
Lister, Elena
Schwartzman, Michael
Place of Publication
New York, NY
Publisher
Penguin Random house
Publication Date
2022
Physical Description
Hardcover; 275 pages
Subject
Death and Dying
Grief. Bereavement
Suicide
Death and dying-Children
Abstract
Just as death is inevitable, talking about death is an inevitable part of parenting. Drs. Lister and Schwartzman offer us the way to have conversations that are as much about life as they are about death; conversations that anyone who parents, teaches, or counsels children can have. Giving Hope is a must-have resource that expands our understanding of how to prepare for, initiate, and facilitate these personal and profound conversations. The approach is honest, practical, and compassionate, and will benefit a grieving child now and in the future. Giving Hope gives us tools to make our children's experiences positive and life-affirming.
ISBN
9780593419151
Language
English
Material Type
Book
Call Number
GV 100 LIS 2022

Copies

BC Children's and Women's Family Library On Loan, due Friday, April 12, 2024
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A time to decide, a time to heal : For parents making difficult decisions about babies they love

https://bcch.andornot.com/en/permalink/catalog123187
Minnick, Molly A., Delp, Kathleen J., Miotti, Mary C. Pineapple Press , 2012. 5th ed.
Material Type
Book
Call Number
GH 330 MIN 2012
Availability
1 copy, 0 available
For parents who have received a fetal diagnosis during pregnancy, and are deciding (or have decided) whether to interrupt the pregnancy. Supports grieving parents, and provides information on:; - The decision-making process,; - Taking control,; - The hospital experience,; - Couples healing together…
Author
Minnick, Molly A.
Delp, Kathleen J.
Miotti, Mary C.
Edition
5th ed
Publisher
Pineapple Press
Publication Date
2012
Physical Description
112 pages
Subject
Genetic Counseling
Abortion-Coping
Grief. Bereavement
Pregnancy Complications
Pregnancy Loss. Miscarriage
Abstract
For parents who have received a fetal diagnosis during pregnancy, and are deciding (or have decided) whether to interrupt the pregnancy. Supports grieving parents, and provides information on:
- The decision-making process,
- Taking control,
- The hospital experience,
- Couples healing together and healing apart,
- The days and weeks afterward, and
- The months and years that follow.
ISBN
1878526291
Language
English
Material Type
Book
Call Number
GH 330 MIN 2012

Copies

BC Children's and Women's Family Library On Loan, due Friday, March 8, 2024
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Ultimate guide to sex and disability: For all of us who live with disabilities, chronic pain and illness

https://bcch.andornot.com/en/permalink/catalog114030
Kaufman, Miriam, Silverberg, Cory, Odette, Fran. San Francisco, CA: Cleis Press , 2007.
Material Type
Book
Call Number
GA 110 KAU 2007
Availability
2 copies, 2 available
The Ultimate Guide to Sex and Disability is the first complete sex guide for people who live with disabilities, pain, illness, or chronic conditions. Useful for absolutely everyone, regardless of age, gender, or sexual orientation, the book addresses a wide range of disabilities - from chronic fati…
Author
Kaufman, Miriam
Silverberg, Cory
Odette, Fran
Place of Publication
San Francisco, CA
Publisher
Cleis Press
Publication Date
2007
Physical Description
Softcover, 345 p.
Subject
Developmental Disabilities
Sexuality
Abstract
The Ultimate Guide to Sex and Disability is the first complete sex guide for people who live with disabilities, pain, illness, or chronic conditions. Useful for absolutely everyone, regardless of age, gender, or sexual orientation, the book addresses a wide range of disabilities - from chronic fatigue, back pain, and asthma to spinal cord injury, hearing and visual impairment, multiple sclerosis, and more.
Notes
Recommended by CCDP
ISBN
9781573443043
Language
English
Material Type
Book
Call Number
GA 110 KAU 2007

Copies

Copy 1 BC Children's and Women's Family Library Available
copy 2 BC Children's and Women's Family Library Available
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If your adolescent has an eating disorder: An essential resource for parents

https://bcch.andornot.com/en/permalink/catalog122734
Walsh, B. Timothy., Glasofer, Deborah R. Oxford University Press, Inc. , 2020. 2nd.
URL
https://ebookcentral.proquest.com/lib/cwhbc/detail.action?docID=6207056
Material Type
Ebook
Call Number
BB 500 WAL 2020
This book is an authoritative guide to understanding and helping a teenager with anorexia nervosa, bulimia nervosa, binge eating disorder, avoidant/restrictive food intake disorder, or other eating disorders. It combines the latest science--including the newest treatments and most up-to-date resear…
  1 url  
URL
https://ebookcentral.proquest.com/lib/cwhbc/detail.action?docID=6207056
Author
Walsh, B. Timothy.
Glasofer, Deborah R.
Edition
2nd
Publisher
Oxford University Press, Inc.
Publication Date
2020
Subject
Eating Disorders
Anorexia Nervosa
Bulimia
Parenting
Young Adults-Mental Health. Psychology
Abstract
This book is an authoritative guide to understanding and helping a teenager with anorexia nervosa, bulimia nervosa, binge eating disorder, avoidant/restrictive food intake disorder, or other eating disorders. It combines the latest science--including the newest treatments and most up-to-date research findings on eating disorders--with the practical wisdom of parents who have been in the trenches raising teens with eating disorders.
ISBN
9780190076832
Language
English
Material Type
Ebook
Call Number
BB 500 WAL 2020
URLs
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Reaching out to your children when cancer comes to your family: A guide for parents

https://bcch.andornot.com/en/permalink/catalog114589
Slakov, June. [Vancouver, BC?]: BC Cancer Agency , 2016.
Material Type
Book
Call Number
FE 555 SLA 2016
Availability
1 copy, 1 available
This book is for the parents, grandparents, aunts and uncles, teachers, or other support persons, who play a key role in helping children and teens who have a family member living with cancer.
Author
Slakov, June
Place of Publication
[Vancouver, BC?]
Publisher
BC Cancer Agency
Publication Date
2016
Physical Description
Spiral bound, 52 p., ill.
Subject
Children with Cancer-Coping
Children with Cancer-Coping for the Family
Cancer
Abstract
This book is for the parents, grandparents, aunts and uncles, teachers, or other support persons, who play a key role in helping children and teens who have a family member living with cancer.
ISBN
9781896624280
Language
English
Material Type
Book
Call Number
FE 555 SLA 2016

Copies

copy 1 BC Children's and Women's Family Library Available
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Children's Health and Illness Recovery Program (CHIRP): Teen and family workbook

https://bcch.andornot.com/en/permalink/catalog124614
Carter, Bryan D., Kronenberger, William G., Scott, Eric L. Oxford, UK: Oxford University Press , 2020.
Material Type
Book
Call Number
EF 850.6 CAR 2020
Availability
1 copy, 1 available
Children and adolescents with chronic illnesses, particularly those accompanied by debilitating, painful, and/or fatiguing symptoms, face challenges that may prove disruptive to physical, psychological, and social development. Based on extensive research and clinical expertise, Children's Health an…
Author
Carter, Bryan D.
Kronenberger, William G.
Scott, Eric L.
Place of Publication
Oxford, UK
Publisher
Oxford University Press
Publication Date
2020
Physical Description
Softcover; 113 pages
Series
Programs that work
Subject
Coping with Chronic Illness Young Adult
Coping with Chronic Illness
Coping with Chronic Illness-Children
Abstract
Children and adolescents with chronic illnesses, particularly those accompanied by debilitating, painful, and/or fatiguing symptoms, face challenges that may prove disruptive to physical, psychological, and social development. Based on extensive research and clinical expertise, Children's Health and Illness Recovery Program (CHIRP) is an effective treatment program designed to build and maintain independence in young people with chronic illness.
This Teen and Family Workbook provides proven treatment activities designed to combat the additional stress faced by youth coping with long-term health problems. These tasks target key areas for improvement in physical functioning, school functioning, and personal functioning and support the creation of new tools for managing the impact of illness, such as stress management, coping and relaxation techniques, and communication skills. In-session and take-home activities outlined in this workbook are meant to accompany the companion CHIRP Clinician Guide. With the use of this workbook and supported by a network of clinicians, healthcare specialists, and school professionals, adolescents and their families can return to a better quality of life.
ISBN
9780190070472
Language
English
Material Type
Book
Call Number
EF 850.6 CAR 2020

Copies

BC Children's and Women's Family Library Available
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Mindfulness meditation for pain relief: Guided practices for reclaiming your body and your life

https://bcch.andornot.com/en/permalink/catalog125143
Kabat-Zinn, Jon. Boulder, CO: Sounds True , 2010.
Material Type
Audio
CD
Call Number
FM 880 KAB 2010
Availability
1 copy, 1 available
We know that practicing mindfulness in everyday life can help us reduce stress and cultivate deep, embodied well-being, but what about its effects on physical and emotional pain, especially when it seems overwhelming or unrelenting? Mindfulness Meditation for Pain Relief is a soothing program with …
Author
Kabat-Zinn, Jon
Place of Publication
Boulder, CO
Publisher
Sounds True
Publication Date
2010
Physical Description
2 CDs ; 105 minutes
Subject
Pain Control-Complementary Therapies
Mindfulness
Meditation
Chronic Pain
Abstract
We know that practicing mindfulness in everyday life can help us reduce stress and cultivate deep, embodied well-being, but what about its effects on physical and emotional pain, especially when it seems overwhelming or unrelenting? Mindfulness Meditation for Pain Relief is a soothing program with guided meditations and teachings. It opens with an overview of seven fundamental attitudes we can develop to cultivate mindfulness in relationship to chronic pain and its incessant challenges, and follows with concepts and practices including: mindful breathing, working with intense sensations, befriending thoughts and emotions, finding refuge in awareness, and bringing mindfulness into every life.
Notes
Recommended by CCDP
ISBN
9781591797401
Language
English
Material Type
Audio
CD
Call Number
FM 880 KAB 2010

Copies

BC Children's and Women's Family Library Available
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Trouble with illness, The: How illness and disability affect relationships

https://bcch.andornot.com/en/permalink/catalog122269
Segal, Julia. Philadelphia, PA: Jessica Kingsley Publishers , 2017.
Material Type
Book
Call Number
EF 800 SEG 2017
Availability
2 copies, 2 available
This impressively honest book explores the effects a challenging disability or illness can have on the mind and personal relationships, and how friends, family and professionals can help.; Illness or disability can isolate people by creating vast differences in their experiences where previously th…
Author
Segal, Julia
Place of Publication
Philadelphia, PA
Publisher
Jessica Kingsley Publishers
Publication Date
2017
Physical Description
Softcover ; 312 p.
Subject
Chronic Illness
Disabilities
Relationships
Abstract
This impressively honest book explores the effects a challenging disability or illness can have on the mind and personal relationships, and how friends, family and professionals can help.
Illness or disability can isolate people by creating vast differences in their experiences where previously there were none. Friends and family can find themselves saying the wrong thing or awkwardly avoiding topics as a result. This book takes a candid look at how discomfort caused by an illness can strain a relationship between partners, families and professionals, as well as how understanding feelings of guilt or shame can transform a situation or relationship.
The insights and advice offered in this book can help children and adolescents overcome anxiousness caused by a parent's condition, improve communication between partners and family members, and increase professionals' awareness of how a client feels about their situation.
ISBN
9781785923326
Language
English
Material Type
Book
Call Number
EF 800 SEG 2017

Copies

copy 1 BC Children's and Women's Family Library Available
copy 2 BC Children's and Women's Family Library Available
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What to do when the news scares you: A kid's guide to understanding current events

https://bcch.andornot.com/en/permalink/catalog124315
Toner, Jaqueline B., McDonnell, Janet [ill.]. Washington, DC: Magination Press , 2021.
Material Type
Book
Call Number
ELEM CD 420 TON 2021
Availability
1 copy, 1 available
This book tackles children's feelings of anxiety around current events and what is portrayed in the news. Scary news is an inevitable part of life. This book can support and guide efforts to help scary news seem a bit more manageable for young people.; Whether from television news reports, the car …
Author
Toner, Jaqueline B.
McDonnell, Janet [ill.]
Place of Publication
Washington, DC
Publisher
Magination Press
Publication Date
2021
Physical Description
Softcover; 80 pages
Series
What-to-do guides for kids
Subject
Anxiety. Anxiety Disorders
Abstract
This book tackles children's feelings of anxiety around current events and what is portrayed in the news. Scary news is an inevitable part of life. This book can support and guide efforts to help scary news seem a bit more manageable for young people.
Whether from television news reports, the car radio, digital media, or adult discussions, children are often bombarded with information about the world around them. When the events being described include violence, extreme weather events, a disease outbreak, or discussions of more dispersed threats such as climate change, children may become frightened and overwhelmed. Parents and caregivers can be prepared to help them understand and process the messages around them by using this book.
This book provides a way to help children put scary events into perspective. And, if children start to worry or become anxious about things they've heard, there are ideas to help them calm down and cope. This book also helps children identify reporters' efforts to add excitement to the story which may also make threats seem more imminent, universal, and extreme.
Read and complete the activities with your child to help them to understand the news in context - who, what, where, when, how - as a means of introducing a sense of perspective.
ISBN
9781433836978
Language
English
Material Type
Book
Call Number
ELEM CD 420 TON 2021

Copies

BC Children's and Women's Family Library Available
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You Are So Much More: An Inspiration for Children Healing from Illness or Injury

https://bcch.andornot.com/en/permalink/catalog123768
Tejpar, Serena, Lalani, Anoosha [ill.], Tejpar, Iman [ill.]. Ann Arbor, MI: Loving Healing Press , 2022.
Material Type
Book
Call Number
JUNIOR GK 210 TEJ 2022
Availability
1 copy, 1 available
Research has shown that building resilience in the face of adversity or challenges helps children and young people develop effective coping strategies and improve long-term outcomes across a spectrum of illnesses. You Are So Much More reminds children who have gone through or are going through an i…
Author
Tejpar, Serena
Lalani, Anoosha [ill.]
Tejpar, Iman [ill.]
Place of Publication
Ann Arbor, MI
Publisher
Loving Healing Press
Publication Date
2022
Physical Description
Softcover; no pagination
Subject
Children's Hospitalization
Trauma Survivors
Abstract
Research has shown that building resilience in the face of adversity or challenges helps children and young people develop effective coping strategies and improve long-term outcomes across a spectrum of illnesses. You Are So Much More reminds children who have gone through or are going through an illness or injury, that they are indeed so much more. Trauma survivor and medical student Serena Tejpar shares a story of inspiration, reflection, and encouragement that can be read over and over again.
Includes a final word on common concerns and questions children may have while in hospital.
Notes
For ages 4 - 8
ISBN
9781615996322
Language
English
Material Type
Book
Call Number
JUNIOR GK 210 TEJ 2022

Copies

copy 1 BC Children's and Women's Family Library Available
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Aggression in young children: the interactive guide to observing, understanding and intervening

https://bcch.andornot.com/en/permalink/catalog111595
Gervais, Jean, Tremblay, Richard E., Mager, Jean-Pierre, Fournier, Monique. Montreal, QC: National Film Board of Canada , 2010.
Material Type
Video
Call Number
CA 250 GER 2010
Availability
1 copy, 1 available
Is hitting, biting and bullying normal behaviour in young children? When does such behaviour start? What can you do to make sure it doesn't continue? Or will it stop on its own? Why are some children more aggressive than others? When should you start to worry?; This interactive 2-disc DVD set uses …
Author
Gervais, Jean
Tremblay, Richard E.
Mager, Jean-Pierre
Fournier, Monique
Corporate Author
Universite de Montreal
Place of Publication
Montreal, QC
Publisher
National Film Board of Canada
Publication Date
2010
Physical Description
2 DVDs: 180-240 min
Subject
Anger
Children's Anger
Children's Emotions
Abstract
Is hitting, biting and bullying normal behaviour in young children? When does such behaviour start? What can you do to make sure it doesn't continue? Or will it stop on its own? Why are some children more aggressive than others? When should you start to worry?
This interactive 2-disc DVD set uses direct observations filmed in natural settings and includes exercises, quizzes and interviews with experts in childhood aggression.
ISBN
9819324228
Language
English
Material Type
Video
Call Number
CA 250 GER 2010

Copies

Copy 1 BC Children's and Women's Family Library Available
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All about ADHD: A family resource for helping your child succeed with ADHD

https://bcch.andornot.com/en/permalink/catalog122599
Phelan, Thomas W. Sourcebooks , 2017. 3rd ed.
URL
https://ebookcentral.proquest.com/lib/cwhbc/detail.action?docID=5320190
Material Type
Ebook
Call Number
FM 265 PHE 2017
This is a comprehensive guide to ADHD's symptoms, diagnosis, and treatment in children and adults, including information including basic symptoms and their effects on school, work, home, and personal relationships; the differences in ADHD between boys and girls; counseling, school interventions, be…
  1 url  
URL
https://ebookcentral.proquest.com/lib/cwhbc/detail.action?docID=5320190
Author
Phelan, Thomas W.
Edition
3rd ed.
Publisher
Sourcebooks
Publication Date
2017
Physical Description
1 eBook (258 pages)
Subject
Attention Deficit Disorder. Hyperactivity
Abstract
This is a comprehensive guide to ADHD's symptoms, diagnosis, and treatment in children and adults, including information including basic symptoms and their effects on school, work, home, and personal relationships; the differences in ADHD between boys and girls; counseling, school interventions, behavior management, and social skills training; and research-based tips and techniques.
ISBN
9781492637882
Language
English
Material Type
Ebook
Call Number
FM 265 PHE 2017
URLs
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What happens when someone I love doesn't feel good: A book about illness that won't go away

https://bcch.andornot.com/en/permalink/catalog124827
Olsher, Sara, Rogers, Jenni. Happy Valley, OR: Mighty and Bright , 2023.
Material Type
Book
Call Number
JUNIOR EF 860 OLS 2023
Availability
2 copies, 1 available
Join Mia and Stewart as they learn how bodies work, why some bodies don't always feel good, and what to do when someone they love has an illness that won't go away.
Author
Olsher, Sara
Rogers, Jenni
Place of Publication
Happy Valley, OR
Publisher
Mighty and Bright
Publication Date
2023
Physical Description
Softcover; 39 pages
Subject
Coping with Chronic Illness in the Family
Abstract
Join Mia and Stewart as they learn how bodies work, why some bodies don't always feel good, and what to do when someone they love has an illness that won't go away.
ISBN
9798986776538
Language
English
Material Type
Book
Call Number
JUNIOR EF 860 OLS 2023

Copies

copy 1 BC Children's and Women's Family Library On Loan, due Friday, May 17, 2024
copy 2 BC Children's and Women's Family Library Available
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Help your child manage medical & surgical procedures

https://bcch.andornot.com/en/permalink/catalog123689
Health Promotion and Health Literacy Team. Vancouver, BC: BC Children's Hospital , 2022.
URL
http://www.cw.bc.ca/library/pdf/pamphlets/BC-Childrens-Helping-your-Child-Manage-Procedures.pdf
Material Type
Handout
Online
These suggestions can help you and your child manage stress before, during, and after their; procedure.; Some children may need to talk about the procedure and their coping plan several times. Other children just need to prepare once.; You know your child best. Please adapt these suggestions to sui…
  1 url  
URL
http://www.cw.bc.ca/library/pdf/pamphlets/BC-Childrens-Helping-your-Child-Manage-Procedures.pdf
Alternate Title
Help your child manage medical and surgical procedures
Corporate Author
Health Promotion and Health Literacy Team
Place of Publication
Vancouver, BC
Publisher
BC Children's Hospital
Publication Date
2022
Physical Description
PDF; 2 pages
Subject
Pain Control-Complementary Therapies
Pain Control
Abstract
These suggestions can help you and your child manage stress before, during, and after their
procedure.
Some children may need to talk about the procedure and their coping plan several times. Other children just need to prepare once.
You know your child best. Please adapt these suggestions to suit your child?s age, interests, and personality.
Language
English
Material Type
Handout
Online
URLs
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Pain relief in labour

https://bcch.andornot.com/en/permalink/catalog112556
Department of Anesthesiology. Vancouver, BC: BC Women's Hospital + Health Centre , 2023.
URL
http://www.cw.bc.ca/library/pdf/pamphlets/BCW923_PainReliefInLabour.pdf
Material Type
Online
Handout
Call Number
BCW923
Learn about how you can manage your pain during early labour, and active labour. This handout explains the benefits and limitations of comfort measures, like touch and position. It also details benefits, risks and potential side effects of medical pain relief measures, like epidurals.
  1 image     1 url  
URL
http://www.cw.bc.ca/library/pdf/pamphlets/BCW923_PainReliefInLabour.pdf
Corporate Author
Department of Anesthesiology
Place of Publication
Vancouver, BC
Publisher
BC Women's Hospital + Health Centre
Publication Date
2023
Physical Description
PDF file: 7 p.
Subject
Childbirth
Pain Control
Pain Control-Complementary Therapies
Abstract
Learn about how you can manage your pain during early labour, and active labour. This handout explains the benefits and limitations of comfort measures, like touch and position. It also details benefits, risks and potential side effects of medical pain relief measures, like epidurals.
Language
English
Material Type
Online
Handout
Call Number
BCW923
Images
URLs
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How to be sick: A buddhist-inspired guide for the chronically ill and their caregivers

https://bcch.andornot.com/en/permalink/catalog122239
Bernhard, Toni. Somerville, MA: Wisdom Publications , 2018.
Material Type
Book
Call Number
EF 800 BER 2010
Availability
1 copy, 0 available
"This life-affirming, instructive and thoroughly inspiring book is a must-read for anyone who is, or who might one day be, sick. And it can also be the perfect gift of guidance, encouragement, and uplifting inspiration to family, friends, and loved ones struggling with the many terrifying or dishea…
Author
Bernhard, Toni
Place of Publication
Somerville, MA
Publisher
Wisdom Publications
Publication Date
2018
Physical Description
Softcover ; xvii, 191 p.
Subject
Chronic Illness
Emotional Health
Mental Health
Abstract
"This life-affirming, instructive and thoroughly inspiring book is a must-read for anyone who is, or who might one day be, sick. And it can also be the perfect gift of guidance, encouragement, and uplifting inspiration to family, friends, and loved ones struggling with the many terrifying or disheartening life changes that come so close on the heels of a diagnosis of a chronic condition or even life-threatening illness." --Publisher
Notes
Recommended by CCDP
ISBN
9780861716265
Language
English
Material Type
Book
Call Number
EF 800 BER 2010

Copies

BC Children's and Women's Family Library On Loan, due Friday, January 5, 2024
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Explain pain handbook : Protectometer

https://bcch.andornot.com/en/permalink/catalog122355
Moseley, GL, Butler, DS. Adelaide, Australia: Noigroup Publications , 2015.
Material Type
Book
Call Number
FM 800 MOS 2015
Availability
3 copies, 2 available
"The Explain Pain Handbook: Protectometer is a key element in the Explain Pain toolkit. An easily accessible book for people experiencing pain, it introduces the Protectometer, a ground breaking pain treatment tool.; "The Explain Pain Handbook: Protectometer helps you understand your personal pain …
Author
Moseley, GL
Butler, DS
Place of Publication
Adelaide, Australia
Publisher
Noigroup Publications
Publication Date
2015
Physical Description
Softcover ; 49 p., ill., 8 pads of coloured stickies
Subject
Pain
Pain Control
Chronic Pain
Abstract
"The Explain Pain Handbook: Protectometer is a key element in the Explain Pain toolkit. An easily accessible book for people experiencing pain, it introduces the Protectometer, a ground breaking pain treatment tool.
"The Explain Pain Handbook: Protectometer helps you understand your personal pain formula, identify your DIMs (Danger in Me) and SIMs (Safety in Me) and provides six clear strategies for recovery from pain.
"This is your personal workbook. The Explain Pain Handbook: Protectometer is a stand-alone resource but if you want to delve deeper, Explain Pain is the ideal companion with clear links provided throughout"--from the Publisher
Notes
Recommended by CCDP
ISBN
9780975091098
Language
English
Material Type
Book
Call Number
FM 800 MOS 2015

Copies

copy 1 BC Children's and Women's Family Library On Loan, due Friday, May 10, 2024
copy 2 BC Children's and Women's Family Library Available
copy 3 BC Children's and Women's Family Library Available
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Managing chronic pelvic pain through diet

https://bcch.andornot.com/en/permalink/catalog114203
BC Women's Centre for Pelvic Pain & Endometriosis. [Vancouver, BC?]: BC Women's Hospital + Health Centre , 2015.
URL
http://www.cw.bc.ca/library/pdf/pamphlets/ChronicPelvicPain-diet_2015_Nov.pdf
Material Type
Handout
Online
Regardless of whether your chronic pain includes endometriosis, IC, or IBS, or a combination of all of these, following an anti-inflammatory diet can help to reduce the intensity of the pain you are experiencing. It is also essential to include lifestyle changes, such as increased activity and exer…
  1 url  
URL
http://www.cw.bc.ca/library/pdf/pamphlets/ChronicPelvicPain-diet_2015_Nov.pdf
Website Notes
Click on the link above to view/print.
Corporate Author
BC Women's Centre for Pelvic Pain & Endometriosis
Place of Publication
[Vancouver, BC?]
Publisher
BC Women's Hospital + Health Centre
Publication Date
2015
Physical Description
PDF file, 5 p.
Subject
Chronic Pain
Pain Control
Abstract
Regardless of whether your chronic pain includes endometriosis, IC, or IBS, or a combination of all of these, following an anti-inflammatory diet can help to reduce the intensity of the pain you are experiencing. It is also essential to include lifestyle changes, such as increased activity and exercise as well as stress reduction. Stress reduction helps to calm the nervous system, which can then reduce inflammation and pain.
Language
English
Material Type
Handout
Online
URLs
Show Less

Chronic pelvic pain interdisciplinary program

https://bcch.andornot.com/en/permalink/catalog114215
BC Women's Centre for Pelvic Pain & Endometriosis. [Vancouver, BC?]: BC Women's Hospital + Health Centre , 2015.
URL
http://www.cw.bc.ca/library/pdf/pamphlets/ChronicPelvicPain-Intro-to-Program_v4_Nov2015.pdf
Material Type
Handout
Online
  1 url  
URL
http://www.cw.bc.ca/library/pdf/pamphlets/ChronicPelvicPain-Intro-to-Program_v4_Nov2015.pdf
Website Notes
Click the link to view or print.
Corporate Author
BC Women's Centre for Pelvic Pain & Endometriosis
Place of Publication
[Vancouver, BC?]
Publisher
BC Women's Hospital + Health Centre
Publication Date
2015
Physical Description
PDF file, 2 p.
Subject
Chronic Pain
Pain Control
Language
English
Material Type
Handout
Online
URLs
Show Less

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