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12 records – page 1 of 1.

Partnership guide: A resource to support children to understand and participate when serious illness decisions are considered

https://bcch.andornot.com/en/permalink/catalog122906
Ethics Department and Patient Partners. Vancouver, BC: BC Children's Hospital & BC Women's Hospital + Health Centre , 2020.
URL
http://www.phsa.ca/our-services-site/Documents/Partnership%20Guide%20Susan%20Poitras%20%28c%29%20July%202020.pdf
Material Type
Online
Booklet
This resource from BC Children?s Hospital can support families to explore their perspectives together and incorporate ways to foster the appropriate inclusion of children in healthcare decisions.; The Partnership Guide was developed to improve the guidance, support and participation of children ag…
  1 url  
URL
http://www.phsa.ca/our-services-site/Documents/Partnership%20Guide%20Susan%20Poitras%20%28c%29%20July%202020.pdf
Corporate Author
Ethics Department and Patient Partners
Place of Publication
Vancouver, BC
Publisher
BC Children's Hospital & BC Women's Hospital + Health Centre
Publication Date
2020
Physical Description
21 pages
Subject
Pain Control
Abstract
This resource from BC Children?s Hospital can support families to explore their perspectives together and incorporate ways to foster the appropriate inclusion of children in healthcare decisions.
The Partnership Guide was developed to improve the guidance, support and participation of children aged 7-14 years with serious illness. This education resource provides up to date research knowledge in the area of child participation, pediatric decision making and child-focused activities and interventions to support children with this process.
Fostering the developing autonomy of children is an essential ethical principle and this guide supports the inclusion of children in decision-making to their ability and desire, to participate in decisions that impact their health.
Language
English
Material Type
Online
Booklet
URLs
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Understanding the hospital team: Written by doctors for kids

https://bcch.andornot.com/en/permalink/catalog121424
Renfrew, Ruth, deLoache, Shawn. New York, NY: Jumo , 2018.
Material Type
Booklet
Call Number
JUNIOR GK 210 REN 2018
Availability
1 copy, 1 available
Join Jonathan on his journey to learn about all the people on his health care team who will support him before, during, and after his medical procedure.
Alternate Title
Medikids
Author
Renfrew, Ruth
deLoache, Shawn
Editor
Quigley, Columba
Place of Publication
New York, NY
Publisher
Jumo
Publication Date
2018
Physical Description
Softcover; 8 p.
Series
Medikids
Subject
Hospitals
Hospitalization
Hospitals Services
Children's Health
Children's Health-Pediatrics
Children's Hospitalization
Abstract
Join Jonathan on his journey to learn about all the people on his health care team who will support him before, during, and after his medical procedure.
Language
English
Material Type
Booklet
Call Number
JUNIOR GK 210 REN 2018

Copies

BC Children's and Women's Family Library Available
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No Fears...No Tears: Children with cancer coping with pain [DVD]

https://bcch.andornot.com/en/permalink/catalog110066
Kuttner, Leora (Producer & Director). [Ottawa, ON]: Canadian Cancer Society , 1986.
Material Type
Video
Call Number
FE 550 KUT 1986b
Availability
1 copy, 1 available
A demonstration of various pain management techniques. Children and their parents learn various coping methods for frightening or painful treatment procedures.
  1 image  
Author
Kuttner, Leora (Producer & Director)
Place of Publication
[Ottawa, ON]
Publisher
Canadian Cancer Society
Publication Date
1986
Physical Description
1 DVD: 27:57 min.
Subject
Children with Cancer-Coping
Pain
Abstract
A demonstration of various pain management techniques. Children and their parents learn various coping methods for frightening or painful treatment procedures.
Language
English
Material Type
Video
Call Number
FE 550 KUT 1986b

Copies

Copy 2 BC Children's and Women's Family Library Available
Images
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Understanding type 1 diabetes in the family: Written by doctors for kids

https://bcch.andornot.com/en/permalink/catalog121350
Renfrew, Ruth, deLoache, Shawn. New York, NY: Jumo , 2018.
Material Type
Booklet
Call Number
JUNIOR FL 800 REN 2018
Availability
1 copy, 1 available
In graphic novel format, the Medikidz, superheroes from the planet Mediland, help Caitlin and Daniel understand diabetes and how it can affect them and their family.
Alternate Title
Medikids
Author
Renfrew, Ruth
deLoache, Shawn
Editor
Quigley, Columba
Ferreira, Marcelo
Place of Publication
New York, NY
Publisher
Jumo
Publication Date
2018
Physical Description
Softcover; 12 p.
Series
Medikids
Subject
Diabetes
Diabetes Mellitus - Children
Diabetes Mellitus - Young Adults
Abstract
In graphic novel format, the Medikidz, superheroes from the planet Mediland, help Caitlin and Daniel understand diabetes and how it can affect them and their family.
Language
English
Material Type
Booklet
Call Number
JUNIOR FL 800 REN 2018

Copies

Copy 1 BC Children's and Women's Family Library Available
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On the path to possibility: A guide book for children, youth and families living with cerebral palsy

https://bcch.andornot.com/en/permalink/catalog123830
Holland Bloorview Kids Rehabilitation Hospital. Toronto, ON: Holland Bloorview Kids Rehabilitation Hospital
URL
https://hollandbloorview.ca/services/programs-services/cp-booklet
Material Type
Booklet
Online
From the authors:; "Many parents ask us, What can I read about cerebral palsy? This booklet was written to answer that very question. We hope this booklet will help explain what cerebral palsy (CP) is and what supports Holland Bloorview can offer."; Note: Pages 1-15 contain general information that…
  1 url  
URL
https://hollandbloorview.ca/services/programs-services/cp-booklet
Corporate Author
Holland Bloorview Kids Rehabilitation Hospital
Place of Publication
Toronto, ON
Publisher
Holland Bloorview Kids Rehabilitation Hospital
Physical Description
PDF; 23 pages
Subject
Cerebral Palsy
Abstract
From the authors:
"Many parents ask us, What can I read about cerebral palsy? This booklet was written to answer that very question. We hope this booklet will help explain what cerebral palsy (CP) is and what supports Holland Bloorview can offer."
Note: Pages 1-15 contain general information that may be helpful to families outside Ontario.
Language
English
Material Type
Booklet
Online
URLs
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Complex pain: What to do when pain won't go away (DVD)

https://bcch.andornot.com/en/permalink/catalog108356
Complex Pain Team, BC Children’s Hospital. [Vancouver, BC?]: Children's and Women's Health Centre of BC , 2003.
Material Type
Video
Call Number
FM 800 COM 2003b
Availability
1 copy, 1 available
In this program three youths tell their stories about mastering complex pain and returning to wellness. Whether or not their pain is visible, or is associated with a known medical condition, they provide unique perspectives on minimizing the impact of pain on daily living. All have worked with a mu…
  1 image  
Author
Complex Pain Team, BC Children’s Hospital
Place of Publication
[Vancouver, BC?]
Publisher
Children's and Women's Health Centre of BC
Publication Date
2003
Physical Description
1 DVD : 17:30 min.
Subject
Pain
Abstract
In this program three youths tell their stories about mastering complex pain and returning to wellness. Whether or not their pain is visible, or is associated with a known medical condition, they provide unique perspectives on minimizing the impact of pain on daily living. All have worked with a multidisciplinary health care team, using pharmaceutical, physiotherapy and psychological strategies, yet they differ on the aspects they found most helpful. These stories are validating and inspirational for youth with complex pain, their families, teachers and care providers.
This is an award winning DVD at the 2006 7th International Symposium on Pediatric Pain Mediafestival.
Notes
On Sale! Original price = $25.00
ISBN
0000000000005
Language
English
Material Type
Video
Call Number
FM 800 COM 2003b

Copies

Copy 2 BC Children's and Women's Family Library Available
Images
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Dancing with pain

https://bcch.andornot.com/en/permalink/catalog112504
Kuttner, Leora. [Vancouver, BC?]: Dr. Leora Kuttner , 2013.
Material Type
Video
Call Number
FM 800 DAN 2013
Availability
2 copies, 2 available
Coming to grips with chronic pain is a very trying process for teenagers and their families. Dancing with Pain takes us into four teen's experiences dealing with pain from a facial injury, Sickle Cell Disease, CRPS (complex regional pain syndrome) and neck and shoulder trauma.; Combining animation …
  1 image  
Author
Kuttner, Leora
Place of Publication
[Vancouver, BC?]
Publisher
Dr. Leora Kuttner
Publication Date
2013
Physical Description
DVD: 20 min.
Subject
Pain
Coping with Pain
Young Adults
Abstract
Coming to grips with chronic pain is a very trying process for teenagers and their families. Dancing with Pain takes us into four teen's experiences dealing with pain from a facial injury, Sickle Cell Disease, CRPS (complex regional pain syndrome) and neck and shoulder trauma.
Combining animation of the brain's central role and embodiment through dance, we are led into the different stages of their healing, including the experience with their chronic pain team.
Produced and directed by Dr. Leora Kuttner with choreographer Judith Marcuse and dancer Vanessa Goodman, edited by Moira Simpson, with original score by Hal Beckett, this film is to inform and support health care professionals, patients and their families.
Language
English
Material Type
Video
Call Number
FM 800 DAN 2013

Copies

Copy 3 BC Children's and Women's Family Library Available
Copy 1 BC Children's and Women's Family Library Available
Images
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Treatment programme for teens with recurrent abdominal pain: Yoga programme (DVD)

https://bcch.andornot.com/en/permalink/catalog110181
Kuttner, Leora. [Vancouver, BC?]: BC Children's Hospital , 2001.
Material Type
Video
Call Number
YOUTH FK 550 KUT 2001b
Availability
1 copy, 1 available
This yoga program was developed for teens with recurrent abdominal pain--particularly Irritable Bowel Syndrome--as part of a research treatment study at BC Children's Hospital, in Vancouver Canada.
  1 image  
Author
Kuttner, Leora
Place of Publication
[Vancouver, BC?]
Publisher
BC Children's Hospital
Publication Date
2001
Physical Description
DVD; 14:15 min.
Subject
Irritable Bowel Syndrome. Spastic Colon
Yoga
Pain
Abstract
This yoga program was developed for teens with recurrent abdominal pain--particularly Irritable Bowel Syndrome--as part of a research treatment study at BC Children's Hospital, in Vancouver Canada.
Language
English
Material Type
Video
Call Number
YOUTH FK 550 KUT 2001b

Copies

Copy 1 BC Children's and Women's Family Library Available
Images
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The diagnosis and management of Duchenne Muscular Dystrophy: A guide for families

https://bcch.andornot.com/en/permalink/catalog123812
Muscular Dystrophy Canada. Toronto, ON: Muscular Dystrophy Canada , 2019.
URL
https://muscle.ca/wp-content/uploads/2019/09/DMDstandardsofcare-EN.pdf
Material Type
Booklet
Online
This guide for families summarizes the results of an international consensus on the medical care of Duchenne muscular dystrophy (DMD). This effort was supported by the US Centers for Disease Control and Prevention (CDC), in collaboration with patient advocacy groups and the TREAT-NMD network. The m…
  1 url  
URL
https://muscle.ca/wp-content/uploads/2019/09/DMDstandardsofcare-EN.pdf
Corporate Author
Muscular Dystrophy Canada
Place of Publication
Toronto, ON
Publisher
Muscular Dystrophy Canada
Publication Date
2019
Subject
Muscular Dystrophy
Abstract
This guide for families summarizes the results of an international consensus on the medical care of Duchenne muscular dystrophy (DMD). This effort was supported by the US Centers for Disease Control and Prevention (CDC), in collaboration with patient advocacy groups and the TREAT-NMD network. The main document is published in Lancet Neurology.
The recommendations are based on an extensive study by 84 international experts in DMD diagnosis and care chosen to represent a broad range of specialties. They independently ?rated? methods of care used in the management of DMD to say how ?necessary?, ?appropriate? or ?inappropriate? each one was at different stages of the course of DMD. In total they considered more than 70,000 different scenarios. This allowed them to establish guidelines that the majority agreed represented the best practice for DMD care.
Language
English
Material Type
Booklet
Online
URLs
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Eating disorders meal support: Helpful approaches for families

https://bcch.andornot.com/en/permalink/catalog112228
Provincial Specialized Eating Disorders Program for Children and Adolescents. [Vancouver, BC?]: Provincial Health Services Authority , 2012.
URL
http://www.youtube.com/watch?v=pPSLdUUlTWE&list=FLGHwOGU4HVQi4ImFfYsItJg&index=1
Material Type
Video
Call Number
BB 500 EAT 2012
Availability
1 copy, 1 available
Eating disorders in the family can make meal times extremely difficult for youth, parents, and siblings. This video demonstrates strategies that can be used before, during, and after meals to provide structure and support for youth with eating disorders. The strategies presented in this video are s…
  1 image     1 url  
URL
http://www.youtube.com/watch?v=pPSLdUUlTWE&list=FLGHwOGU4HVQi4ImFfYsItJg&index=1
Author
Provincial Specialized Eating Disorders Program for Children and Adolescents
Place of Publication
[Vancouver, BC?]
Publisher
Provincial Health Services Authority
Publication Date
2012
Physical Description
DVD: 35 min.
Subject
Eating Disorders
Anorexia Nervosa
Bulimia
Abstract
Eating disorders in the family can make meal times extremely difficult for youth, parents, and siblings. This video demonstrates strategies that can be used before, during, and after meals to provide structure and support for youth with eating disorders. The strategies presented in this video are supported by research and can help meal times go more smoothly, with less anxiety and fewer arguments, and at the same time, help youth to complete their meals.
Parents and caregivers share their experiences with four stages of providing meal support: meal planning, meal preparation, supported eating, and post meal.
The video includes scenarios demonstrating how parents and caregivers can use the strategies presented to provide structure and support during meal times to youth at home.
Notes
NOTE: Replaces the 2006 version "Introduction to Effective Meal Support for Family & Friends"
Language
English
Material Type
Video
Call Number
BB 500 EAT 2012

Copies

Copy 1 BC Children's and Women's Family Library Available
Images
URLs
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Release the Butterfly: A Handbook for Parents & Caregivers of Children with Ichthyosis

https://bcch.andornot.com/en/permalink/catalog124005
Foundation for Ichthyosis and Related Skin Types. Colmar, PA: Foundation for Ichthyosis and Related Skin Types , 2014. 4th edition.
Material Type
Booklet
Call Number
FO 365 FOU 2014
Availability
1 copy, 1 available
Author
Foundation for Ichthyosis and Related Skin Types
Edition
4th edition
Place of Publication
Colmar, PA
Publisher
Foundation for Ichthyosis and Related Skin Types
Publication Date
2014
Physical Description
52 pages
Subject
Ichthyosis
Language
English
Material Type
Booklet
Call Number
FO 365 FOU 2014

Copies

copy 1 BC Children's and Women's Family Library Available
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Aggression in young children: the interactive guide to observing, understanding and intervening

https://bcch.andornot.com/en/permalink/catalog111595
Gervais, Jean, Tremblay, Richard E., Mager, Jean-Pierre, Fournier, Monique. Montreal, QC: National Film Board of Canada , 2010.
Material Type
Video
Call Number
CA 250 GER 2010
Availability
1 copy, 1 available
Is hitting, biting and bullying normal behaviour in young children? When does such behaviour start? What can you do to make sure it doesn't continue? Or will it stop on its own? Why are some children more aggressive than others? When should you start to worry?; This interactive 2-disc DVD set uses …
Author
Gervais, Jean
Tremblay, Richard E.
Mager, Jean-Pierre
Fournier, Monique
Corporate Author
Universite de Montreal
Place of Publication
Montreal, QC
Publisher
National Film Board of Canada
Publication Date
2010
Physical Description
2 DVDs: 180-240 min
Subject
Anger
Children's Anger
Children's Emotions
Abstract
Is hitting, biting and bullying normal behaviour in young children? When does such behaviour start? What can you do to make sure it doesn't continue? Or will it stop on its own? Why are some children more aggressive than others? When should you start to worry?
This interactive 2-disc DVD set uses direct observations filmed in natural settings and includes exercises, quizzes and interviews with experts in childhood aggression.
ISBN
9819324228
Language
English
Material Type
Video
Call Number
CA 250 GER 2010

Copies

Copy 1 BC Children's and Women's Family Library Available
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12 records – page 1 of 1.