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6 records – page 1 of 1.

Partnership guide: A resource to support children to understand and participate when serious illness decisions are considered

https://bcch.andornot.com/en/permalink/catalog122906
Ethics Department and Patient Partners. Vancouver, BC: BC Children's Hospital & BC Women's Hospital + Health Centre , 2020.
URL
http://www.cw.bc.ca/library/pdf/pamphlets/BC-Childrens-Partnership-Guide.pdf
Material Type
Online
Booklet
This resource from BC Children?s Hospital can support families to explore their perspectives together and incorporate ways to foster the appropriate inclusion of children in healthcare decisions.; The Partnership Guide was developed to improve the guidance, support and participation of children ag…
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  1 url  
URL
http://www.cw.bc.ca/library/pdf/pamphlets/BC-Childrens-Partnership-Guide.pdf
Corporate Author
Ethics Department and Patient Partners
Place of Publication
Vancouver, BC
Publisher
BC Children's Hospital & BC Women's Hospital + Health Centre
Publication Date
2020
Physical Description
21 pages
Subject
Pain Control
Abstract
This resource from BC Children?s Hospital can support families to explore their perspectives together and incorporate ways to foster the appropriate inclusion of children in healthcare decisions.
The Partnership Guide was developed to improve the guidance, support and participation of children aged 7-14 years with serious illness. This education resource provides up to date research knowledge in the area of child participation, pediatric decision making and child-focused activities and interventions to support children with this process.
Fostering the developing autonomy of children is an essential ethical principle and this guide supports the inclusion of children in decision-making to their ability and desire, to participate in decisions that impact their health.
Language
English
Material Type
Online
Booklet
URLs
http://www.cw.bc.ca/library/pdf/pamphlets/BC-Childrens-Partnership-Guide.pdf
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Understanding the hospital team: Written by doctors for kids

https://bcch.andornot.com/en/permalink/catalog121424
Renfrew, Ruth, deLoache, Shawn. New York, NY: Jumo , 2018.
Material Type
Booklet
Call Number
JUNIOR GK 210 REN 2018
Availability
1 copy, 1 available
Join Jonathan on his journey to learn about all the people on his health care team who will support him before, during, and after his medical procedure.
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Alternate Title
Medikids
Author
Renfrew, Ruth
deLoache, Shawn
Editor
Quigley, Columba
Place of Publication
New York, NY
Publisher
Jumo
Publication Date
2018
Physical Description
Softcover; 8 p.
Series
Medikids
Subject
Hospitals
Hospitalization
Hospitals Services
Children's Health
Children's Health-Pediatrics
Children's Hospitalization
Abstract
Join Jonathan on his journey to learn about all the people on his health care team who will support him before, during, and after his medical procedure.
Language
English
Material Type
Booklet
Call Number
JUNIOR GK 210 REN 2018

Copies

BC Children's and Women's Family Library Available
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Understanding type 1 diabetes in the family: Written by doctors for kids

https://bcch.andornot.com/en/permalink/catalog121350
Renfrew, Ruth, deLoache, Shawn. New York, NY: Jumo , 2018.
Material Type
Booklet
Call Number
JUNIOR FL 800 REN 2018
Availability
1 copy, 1 available
In graphic novel format, the Medikidz, superheroes from the planet Mediland, help Caitlin and Daniel understand diabetes and how it can affect them and their family.
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Alternate Title
Medikids
Author
Renfrew, Ruth
deLoache, Shawn
Editor
Quigley, Columba
Ferreira, Marcelo
Place of Publication
New York, NY
Publisher
Jumo
Publication Date
2018
Physical Description
Softcover; 12 p.
Series
Medikids
Subject
Diabetes
Diabetes Mellitus - Children
Diabetes Mellitus - Young Adults
Abstract
In graphic novel format, the Medikidz, superheroes from the planet Mediland, help Caitlin and Daniel understand diabetes and how it can affect them and their family.
Language
English
Material Type
Booklet
Call Number
JUNIOR FL 800 REN 2018

Copies

Copy 1 BC Children's and Women's Family Library Available
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On the path to possibility: A guide book for children, youth and families living with cerebral palsy

https://bcch.andornot.com/en/permalink/catalog123830
Holland Bloorview Kids Rehabilitation Hospital. Toronto, ON: Holland Bloorview Kids Rehabilitation Hospital
URL
https://hollandbloorview.ca/services/programs-services/cp-booklet
Material Type
Booklet
Online
From the authors:; "Many parents ask us, What can I read about cerebral palsy? This booklet was written to answer that very question. We hope this booklet will help explain what cerebral palsy (CP) is and what supports Holland Bloorview can offer."; Note: Pages 1-15 contain general information that…
More Information
  1 url  
URL
https://hollandbloorview.ca/services/programs-services/cp-booklet
Corporate Author
Holland Bloorview Kids Rehabilitation Hospital
Place of Publication
Toronto, ON
Publisher
Holland Bloorview Kids Rehabilitation Hospital
Physical Description
PDF; 23 pages
Subject
Cerebral Palsy
Abstract
From the authors:
"Many parents ask us, What can I read about cerebral palsy? This booklet was written to answer that very question. We hope this booklet will help explain what cerebral palsy (CP) is and what supports Holland Bloorview can offer."
Note: Pages 1-15 contain general information that may be helpful to families outside Ontario.
Language
English
Material Type
Booklet
Online
URLs
https://hollandbloorview.ca/services/programs-services/cp-booklet
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The diagnosis and management of Duchenne Muscular Dystrophy: A guide for families

https://bcch.andornot.com/en/permalink/catalog123812
Muscular Dystrophy Canada. Toronto, ON: Muscular Dystrophy Canada , 2019.
URL
https://muscle.ca/wp-content/uploads/2019/09/DMDstandardsofcare-EN.pdf
Material Type
Booklet
Online
This guide for families summarizes the results of an international consensus on the medical care of Duchenne muscular dystrophy (DMD). This effort was supported by the US Centers for Disease Control and Prevention (CDC), in collaboration with patient advocacy groups and the TREAT-NMD network. The m…
More Information
  1 url  
URL
https://muscle.ca/wp-content/uploads/2019/09/DMDstandardsofcare-EN.pdf
Corporate Author
Muscular Dystrophy Canada
Place of Publication
Toronto, ON
Publisher
Muscular Dystrophy Canada
Publication Date
2019
Subject
Muscular Dystrophy
Abstract
This guide for families summarizes the results of an international consensus on the medical care of Duchenne muscular dystrophy (DMD). This effort was supported by the US Centers for Disease Control and Prevention (CDC), in collaboration with patient advocacy groups and the TREAT-NMD network. The main document is published in Lancet Neurology.
The recommendations are based on an extensive study by 84 international experts in DMD diagnosis and care chosen to represent a broad range of specialties. They independently ?rated? methods of care used in the management of DMD to say how ?necessary?, ?appropriate? or ?inappropriate? each one was at different stages of the course of DMD. In total they considered more than 70,000 different scenarios. This allowed them to establish guidelines that the majority agreed represented the best practice for DMD care.
Language
English
Material Type
Booklet
Online
URLs
https://muscle.ca/wp-content/uploads/2019/09/DMDstandardsofcare-EN.pdf
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Release the Butterfly: A Handbook for Parents & Caregivers of Children with Ichthyosis

https://bcch.andornot.com/en/permalink/catalog124005
Foundation for Ichthyosis and Related Skin Types. Colmar, PA: Foundation for Ichthyosis and Related Skin Types , 2014. 4th edition.
Material Type
Booklet
Call Number
FO 365 FOU 2014
Availability
1 copy, 1 available
More Information
Author
Foundation for Ichthyosis and Related Skin Types
Edition
4th edition
Place of Publication
Colmar, PA
Publisher
Foundation for Ichthyosis and Related Skin Types
Publication Date
2014
Physical Description
52 pages
Subject
Ichthyosis
Language
English
Material Type
Booklet
Call Number
FO 365 FOU 2014

Copies

copy 1 BC Children's and Women's Family Library Available
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6 records – page 1 of 1.