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Shared Struggles: Stories from parents and pediatricians caring for children with serious illnesses

https://bcch.andornot.com/en/permalink/catalog124220
Schrooten, A.F., Markovitz, B.P. Switzerland: Springer International Publishing AG , 2021.
URL
https://ebookcentral.proquest.com/lib/cwhbc/detail.action?docID=6578034
Material Type
Ebook
Call Number
EF 850.5 SCH 2021e
This book tells true and poignant stories from both sides of the physician-patient/parent relationship and provides a unique glimpse into how parents and physicians think, feel, and interact. The stories are grouped under four sections: Hope, Compassion, Communication, and Trust.; Each section incl…
  1 url  
URL
https://ebookcentral.proquest.com/lib/cwhbc/detail.action?docID=6578034
Author
Schrooten, A.F.
Markovitz, B.P.
Place of Publication
Switzerland
Publisher
Springer International Publishing AG
Publication Date
2021
Subject
Coping with Chronic Illness-Children
Abstract
This book tells true and poignant stories from both sides of the physician-patient/parent relationship and provides a unique glimpse into how parents and physicians think, feel, and interact. The stories are grouped under four sections: Hope, Compassion, Communication, and Trust.
Each section includes stories contributed by parents from all across the United States and by pediatricians practicing at many of the best children's hospitals throughout the country. The parents tell of interactions with physicians that had a significant impact on them and their child and offer context and insight that promote empathy and reflection. The physicians tell of interactions with patients and families that served as learning moments in their career and promote the humanization of medicine and show there is more to a physician beyond their scientific knowledge and white coat.
The stories are edited by Barry P. Markovitz - a pediatrician specializing in critical care medicine who has been in practice for more than 20 years and by Ann F. Schrooten - the parent of a child born with a chronic complex condition who has more than 15 years of experience interacting with pediatric subspecialists and other healthcare professionals who cared for her son. The editors have written commentaries to the stories to provide an independent perspective on the events and messages conveyed and to encourage reflection, inquiry, and discussion.
In addition to being a valuable resource for pediatricians, pediatric subspecialists, nurses and other healthcare professionals, the book will also appeal to families of children living with complex medical conditions because it shares physician encounters and behaviors many have experienced in the care of their own children. By giving a voice to both parents and physicians, the goal is to create a bridge to better understanding that can improve communication, minimize conflicts, and foster trust and compassion among physicians, patients, and families.
ISBN
9783030680206
Language
English
Material Type
Ebook
Call Number
EF 850.5 SCH 2021e
URLs
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Children's Health and Illness Recovery Program (CHIRP): Clinician guide

https://bcch.andornot.com/en/permalink/catalog124615
Carter, Bryan D., Kronenberger, William G., Scott, Eric L., Brady, Christine E. Oxford, UK: Oxford University Press , 2020.
Material Type
Book
Call Number
EF 850.6 CAR 2020b
Availability
1 copy, 1 available
Youth with chronic illnesses face challenges that may prove disruptive to physical, psychological, and social development. Based on extensive research and clinical expertise, Children's Health and Illness Recovery Program (CHIRP) is an interdisciplinary cognitive behavioral and family systems-based…
Author
Carter, Bryan D.
Kronenberger, William G.
Scott, Eric L.
Brady, Christine E.
Place of Publication
Oxford, UK
Publisher
Oxford University Press
Publication Date
2020
Physical Description
Softcover; 173 pages
Series
Programs that work
Subject
Coping with Chronic Illness Young Adult
Coping with Chronic Illness
Coping with Chronic Illness-Children
Abstract
Youth with chronic illnesses face challenges that may prove disruptive to physical, psychological, and social development. Based on extensive research and clinical expertise, Children's Health and Illness Recovery Program (CHIRP) is an interdisciplinary cognitive behavioral and family systems-based treatment program designed to maximize the independent functioning of teens with chronic illness.
This Clinician Guide offers a detailed outline for implementing this manualized intervention and provides clear guidance as to the philosophy, pragmatics, and art of working with challenging pediatric conditions. Designed to accompany the CHIRP Teen and Family Workbook, this book addresses specific assessment measures and tools needed to establish a collaborative treatment team approach that incorporates the skills of the CHIRP clinician, primary and specialty care providers, and roles of other healthcare (physical therapists, occupational therapists, etc.) and educational professionals critical to the successful management and treatment of these youth.
ISBN
9780190070267
Language
English
Material Type
Book
Call Number
EF 850.6 CAR 2020b

Copies

BC Children's and Women's Family Library Available
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Children's Health and Illness Recovery Program (CHIRP): Teen and family workbook

https://bcch.andornot.com/en/permalink/catalog124614
Carter, Bryan D., Kronenberger, William G., Scott, Eric L. Oxford, UK: Oxford University Press , 2020.
Material Type
Book
Call Number
EF 850.6 CAR 2020
Availability
1 copy, 1 available
Children and adolescents with chronic illnesses, particularly those accompanied by debilitating, painful, and/or fatiguing symptoms, face challenges that may prove disruptive to physical, psychological, and social development. Based on extensive research and clinical expertise, Children's Health an…
Author
Carter, Bryan D.
Kronenberger, William G.
Scott, Eric L.
Place of Publication
Oxford, UK
Publisher
Oxford University Press
Publication Date
2020
Physical Description
Softcover; 113 pages
Series
Programs that work
Subject
Coping with Chronic Illness Young Adult
Coping with Chronic Illness
Coping with Chronic Illness-Children
Abstract
Children and adolescents with chronic illnesses, particularly those accompanied by debilitating, painful, and/or fatiguing symptoms, face challenges that may prove disruptive to physical, psychological, and social development. Based on extensive research and clinical expertise, Children's Health and Illness Recovery Program (CHIRP) is an effective treatment program designed to build and maintain independence in young people with chronic illness.
This Teen and Family Workbook provides proven treatment activities designed to combat the additional stress faced by youth coping with long-term health problems. These tasks target key areas for improvement in physical functioning, school functioning, and personal functioning and support the creation of new tools for managing the impact of illness, such as stress management, coping and relaxation techniques, and communication skills. In-session and take-home activities outlined in this workbook are meant to accompany the companion CHIRP Clinician Guide. With the use of this workbook and supported by a network of clinicians, healthcare specialists, and school professionals, adolescents and their families can return to a better quality of life.
ISBN
9780190070472
Language
English
Material Type
Book
Call Number
EF 850.6 CAR 2020

Copies

BC Children's and Women's Family Library Available
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When your child has a chronic medical illness: A guide for the parenting journey

https://bcch.andornot.com/en/permalink/catalog123817
Sileo, Frank J., Potter, Carol S. Washington, DC: American Psychological Association , 2021.
Material Type
Book
Call Number
EF 850.5 SIL 2021
Availability
1 copy, 1 available
Written by leading mental health professionals, this warm and accessible parenting book for children with chronic illnesses offers clear, practical guidance for all aspects of the journey. It is recommended by professionals at the American Diabetes Association, Invisible Disabilities Association, t…
Author
Sileo, Frank J.
Potter, Carol S.
Place of Publication
Washington, DC
Publisher
American Psychological Association
Publication Date
2021
Physical Description
Softcover; 419 pages
Subject
Coping with Chronic Illness-Children
Coping with Chronic Illness in the Family
Coping with Chronic Illness-Young Adult
Abstract
Written by leading mental health professionals, this warm and accessible parenting book for children with chronic illnesses offers clear, practical guidance for all aspects of the journey. It is recommended by professionals at the American Diabetes Association, Invisible Disabilities Association, the Crohn's Colitis Foundation, and other expert national and regional sources.
For all its joys, parenting is a complex job, and when your child has a chronic illness, the stress can feel overwhelming. When your child is diagnosed, you begin a parenting journey filled with strong emotions, difficult choices, confusing words, and interactions with numerous professionals and specialists.
You're focused on ensuring your child gets the best possible treatments for their symptoms, so it's easy to overlook or dismiss the impact the illness can have on your relationships and emotions. This book places your psychological well-being front and center, so you can be the best caregiver possible for your child.
Along with suggestions for making laughter and mindfulness part of your daily self-care routine, it offers guidance for choosing the right therapist for your family, should extra support be needed. Every family's journey with chronic illness is unique, but you don't have to go it alone.
ISBN
9781433833816
Language
English
Material Type
Book
Call Number
EF 850.5 SIL 2021

Copies

BC Children's and Women's Family Library Available
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How to live well with chronic pain and illness: A mindful guide

https://bcch.andornot.com/en/permalink/catalog122440
Bernhard, Toni. Somerville, MA: Wisdom Publications , 2015.
Material Type
Book
Call Number
EF 850 BER 2015
Availability
2 copies, 2 available
Comfort, understanding, and advice for those who are suffering?and those who care for them.; Chronic illness creates many challenges, from career crises and relationship issues to struggles with self-blame, personal identity, and isolation. Beloved author Toni Bernhard addresses these challenges an…
Author
Bernhard, Toni
Place of Publication
Somerville, MA
Publisher
Wisdom Publications
Publication Date
2015
Physical Description
337 pages
Subject
Coping with Chronic Illness
Chronic Illness
Chronic Pain
Abstract
Comfort, understanding, and advice for those who are suffering?and those who care for them.
Chronic illness creates many challenges, from career crises and relationship issues to struggles with self-blame, personal identity, and isolation. Beloved author Toni Bernhard addresses these challenges and many more, using practical examples to illustrate how mindfulness, equanimity, and compassion can help readers make peace with a life turned upside down.
In her characteristic conversational style, Bernhard shows how to cope and make the most of life despite the challenges of chronic illness. Benefit from:
? Mindfulness exercises to mitigate physical and emotional pain
? Concrete advice for negotiating the everyday hurdles of medical appointments, household chores, and social obligations
? Tools for navigating the strains illness can place on relationships
Several chapters are directed toward family and friends of the chronically ill, helping them to understand what their loved one is going through and how they can help.
Humorous and empathetic, Bernhard shares her own struggles and setbacks with unflinching honesty, offering invaluable support in the search to find peace and well-being.
ISBN
9781614292487
Language
English
Material Type
Book
Call Number
EF 850 BER 2015

Copies

copy 1 BC Children's and Women's Family Library Available
copy 2 BC Children's and Women's Family Library Available
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Why does mommy hurt? Helping children cope with the challenges of having a caregiver with chronic pain, fibromyalgia,or autoimmune disease

https://bcch.andornot.com/en/permalink/catalog122253
Christy, Elizabeth M., Miller, James G. (illustrator). Denver, Colorado: Outskirts Press, Inc. , 2014.
Material Type
Book
Call Number
JUNIOR EF 850.5 CHR 2014
Availability
1 copy, 1 available
The children of people with chronic illness and pain suffer quietly. "Why Does Mommy Hurt?" is a joyful, yet honest, portrayal of family life burdened with chronic illness. This is a delightful story told by a young boy learning to understand and cope with his mother's illness. The story creates na…
Author
Christy, Elizabeth M.
Miller, James G. (illustrator)
Place of Publication
Denver, Colorado
Publisher
Outskirts Press, Inc.
Publication Date
2014
Physical Description
Softcover ; [18 p.], illustrations
Subject
Chronic Illness
Chronic Pain
Fibromyalgia. Fibrositis
Coping with Chronic Illness-Children
Abstract
The children of people with chronic illness and pain suffer quietly. "Why Does Mommy Hurt?" is a joyful, yet honest, portrayal of family life burdened with chronic illness. This is a delightful story told by a young boy learning to understand and cope with his mother's illness. The story creates natural opportunities for families to talk about both the symptoms of chronic illness, and how they affect family life. Even more importantly, the story puts power into the hands of the children. It also offers a helpful "Tips and Resources" section for parents! This book is appropriate for a wide-variety of illnesses associated with chronic pain, such as: Lupus, Lyme Disease, ME, CFS, Fibromyalgia, Arthritis, Multiple Sclerosis, Autoimmune Disease, and many others.
Notes
Recommended by CCDP
ISBN
9781478732969
Language
English
Material Type
Book
Call Number
JUNIOR EF 850.5 CHR 2014

Copies

BC Children's and Women's Family Library Available
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What happens when someone I love doesn't feel good: A book about illness that won't go away

https://bcch.andornot.com/en/permalink/catalog124827
Olsher, Sara, Rogers, Jenni. Happy Valley, OR: Mighty and Bright , 2023.
Material Type
Book
Call Number
JUNIOR EF 860 OLS 2023
Availability
2 copies, 1 available
Join Mia and Stewart as they learn how bodies work, why some bodies don't always feel good, and what to do when someone they love has an illness that won't go away.
Author
Olsher, Sara
Rogers, Jenni
Place of Publication
Happy Valley, OR
Publisher
Mighty and Bright
Publication Date
2023
Physical Description
Softcover; 39 pages
Subject
Coping with Chronic Illness in the Family
Abstract
Join Mia and Stewart as they learn how bodies work, why some bodies don't always feel good, and what to do when someone they love has an illness that won't go away.
ISBN
9798986776538
Language
English
Material Type
Book
Call Number
JUNIOR EF 860 OLS 2023

Copies

copy 1 BC Children's and Women's Family Library On Loan, due Friday, May 17, 2024
copy 2 BC Children's and Women's Family Library Available
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The chronic pain and illness workbook for teens : CBT and mindfulness-based practices to turn the volume down on pain

https://bcch.andornot.com/en/permalink/catalog122615
Zoffness, Rachel, Krane, Elliot J. New Harbinger Publications , 2019.
URL
https://ebookcentral.proquest.com/lib/cwhbc/detail.action?docID=5820414
Material Type
Ebook
Call Number
YOUTH FM 850 ZOF 2019e
This workbook blends cognitive behavioral therapy (CBT) and mindfulness-based stress reduction (MBSR). You will learn how pain affects both your mind and body, how negative emotions can make pain worse, and strategies to help you turn the volume down on your pain, so you can go back to enjoying act…
  1 url  
URL
https://ebookcentral.proquest.com/lib/cwhbc/detail.action?docID=5820414
Author
Zoffness, Rachel
Krane, Elliot J.
Publisher
New Harbinger Publications
Publication Date
2019
Physical Description
eBook (176 pages)
Subject
Coping with Pain
Chronic Pain
Coping with Chronic Illness Young Adult
Abstract
This workbook blends cognitive behavioral therapy (CBT) and mindfulness-based stress reduction (MBSR). You will learn how pain affects both your mind and body, how negative emotions can make pain worse, and strategies to help you turn the volume down on your pain, so you can go back to enjoying activities that you love. You'll also learn mindfulness and relaxation exercises, including belly breathing and body scan to help manage pain in the moment. The exercises and strategies in this book are rooted in research, fun to learn, and easy to practice. For ages 12+.
ISBN
9781684033539
Language
English
Material Type
Ebook
Call Number
YOUTH FM 850 ZOF 2019e
URLs
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The chronic pain and illness workbook for teens : CBT and mindfulness-based practices to turn the volume down on pain

https://bcch.andornot.com/en/permalink/catalog123121
Zoffness, Rachel, Krane, Elliot J. New Harbinger Publications , 2019.
Material Type
Book
Call Number
YOUTH FM 850 ZOF 2019
Availability
1 copy, 1 available
This workbook blends cognitive behavioral therapy (CBT) and mindfulness-based stress reduction (MBSR). You will learn how pain affects both your mind and body, how negative emotions can make pain worse, and strategies to help you turn the volume down on your pain, so you can go back to enjoying act…
Author
Zoffness, Rachel
Krane, Elliot J.
Publisher
New Harbinger Publications
Publication Date
2019
Physical Description
155 pages
Subject
Coping with Pain
Chronic Pain
Coping with Chronic Illness Young Adult
Abstract
This workbook blends cognitive behavioral therapy (CBT) and mindfulness-based stress reduction (MBSR). You will learn how pain affects both your mind and body, how negative emotions can make pain worse, and strategies to help you turn the volume down on your pain, so you can go back to enjoying activities that you love. You'll also learn mindfulness and relaxation exercises, including belly breathing and body scan to help manage pain in the moment. The exercises and strategies in this book are rooted in research, fun to learn, and easy to practice. For ages 12+.
ISBN
9781684033522
Language
English
Material Type
Book
Call Number
YOUTH FM 850 ZOF 2019

Copies

Copy 1 BC Children's and Women's Family Library Available
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Anything for my child: Making impossible decisions for medically complex children

https://bcch.andornot.com/en/permalink/catalog124865
Nimmo, Stephanie. London, UK: Jessica Kingsley Publishers , 2024.
Material Type
Book
Call Number
EF 850.5 NIM 2024
Availability
1 copy, 1 available
Every parent wants the same thing: for their child to enjoy a long and fulfilling life. But what happens when things don't go according to plan? What happens when parents have to become advocates for their child's healthcare needs? Who decides what is in a child's 'best interests'?; Stephanie Nimmo…
Author
Nimmo, Stephanie
Place of Publication
London, UK
Publisher
Jessica Kingsley Publishers
Publication Date
2024
Physical Description
Softcover; 272 pages
Subject
Coping with Chronic Illness-Children
Caregivers-Coping
Caregivers for a Dying Loved One
Abstract
Every parent wants the same thing: for their child to enjoy a long and fulfilling life. But what happens when things don't go according to plan? What happens when parents have to become advocates for their child's healthcare needs? Who decides what is in a child's 'best interests'?
Stephanie Nimmo faced these questions first-hand when her daughter, Daisy, was diagnosed with a life-limiting condition as a baby. Seen through the lens of Stephanie's own experiences, this sensitive book delves into the complex world of medical ethics and pediatric palliative care. From recognizing tipping points to the importance of building relationships with palliative care teams well before crisis, this book explores how medical professionals can better support families throughout their child's care.
Interviews with clinicians and snapshots from the lives of patients' families provide insight into the realities of life on both sides of the hospital bed. Compassionate explanations of the conflicting pressures in the hospital system foster understanding and help medical professionals and families work together.
ISBN
5727227010272
Language
English
Material Type
Book
Call Number
EF 850.5 NIM 2024

Copies

BC Children's and Women's Family Library Available
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Mon enfant a une maladie chronique : Stratégies, ressources, moyens

https://bcch.andornot.com/en/permalink/catalog114193
Chartre, Marie-Eve, Gagne, Johanne. Montreal, QC: Éditions du CHU Sainte-Justine , 2014.
Material Type
Book
Call Number
EF 850.5 CHA 2014
Availability
1 copy, 1 available
Dès l?annonce du diagnostic, la maladie chronique d?un enfant devient « l?affaire » de toute la famille. Après le choc, chacun des membres de la cellule familiale doit traverser, à son rythme, le processus d?adaptation à un nouveau mode de vie conditionné par l?état de santé de l?enfant. Ce livre p…
Author
Chartre, Marie-Eve
Gagne, Johanne
Place of Publication
Montreal, QC
Publisher
Éditions du CHU Sainte-Justine
Publication Date
2014
Physical Description
Paperback, 127 p.
Subject
Coping with Chronic Illness-Children
Abstract
Dès l?annonce du diagnostic, la maladie chronique d?un enfant devient « l?affaire » de toute la famille. Après le choc, chacun des membres de la cellule familiale doit traverser, à son rythme, le processus d?adaptation à un nouveau mode de vie conditionné par l?état de santé de l?enfant. Ce livre permet aux parents de mieux comprendre les étapes de ce cheminement émotionnel et social ― pour l?enfant malade, la fratrie, la famille, le couple comme pour eux-mêmes en tant qu?individus ― et d?accompagner chacun en puisant à la fois dans les ressources personnelles et extérieures dont ils peuvent bénéficier.
ISBN
9782896196678
Language
French
Material Type
Book
Call Number
EF 850.5 CHA 2014

Copies

Copy 1 BC Children's and Women's Family Library Available
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Little tree: A story for children with serious medical problems

https://bcch.andornot.com/en/permalink/catalog102854
Mills, Joyce C., Chesworth, Michael (Illustrator). New York, NY: Magination Press , 1992.
Material Type
Book
Call Number
JUNIOR CF 200 MIL 1992
Availability
1 copy, 1 available
In this healing story, a little tree loses some of her branches in a storm. She experiences emotions of fear, self-blame, and worry so common to children facing serious medical problems. The little tree in the forest survives the storm and learns that although many branches and leaves were lost, sh…
Author
Mills, Joyce C.
Chesworth, Michael (Illustrator)
Place of Publication
New York, NY
Publisher
Magination Press
Publication Date
1992
Physical Description
Softcover: ill., 28 p.
Subject
Self-Concept (includes self-esteem)
Amputation. Limb Prosthesis
Children's Health-Accidents and Injuries
Picture Books
Abstract
In this healing story, a little tree loses some of her branches in a storm. She experiences emotions of fear, self-blame, and worry so common to children facing serious medical problems. The little tree in the forest survives the storm and learns that although many branches and leaves were lost, she still has deep roots, a strong trunk and a beautiful heart. Children will discover that they too have strengths and abilities for living happy lives. A relaxation exercise is included.
ISBN
0945354517
Language
English
Material Type
Book
Call Number
JUNIOR CF 200 MIL 1992

Copies

BC Children's and Women's Family Library Available
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Quand la vie se fragilise: Un guide pour vous et vos proches aidants

https://bcch.andornot.com/en/permalink/catalog114657
Cardinal Remete, France. Montreal, QC: Multimondes Inc. , 2016.
Material Type
Book
Call Number
EF 850 CAR 2016
Availability
1 copy, 1 available
Author
Cardinal Remete, France
Place of Publication
Montreal, QC
Publisher
Multimondes Inc.
Publication Date
2016
Physical Description
Paperback, 311 p.
Subject
Chronic Illness
Coping with Chronic Illness in the Family
ISBN
9782895444916
Language
French
Material Type
Book
Call Number
EF 850 CAR 2016

Copies

copy 1 BC Children's and Women's Family Library Available
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La vie...avant, pendant et après: Les soins palliatifs pédiatriques

https://bcch.andornot.com/en/permalink/catalog114452
Humbert, Nago. Montreal, QC: CHU Sainte-Justine , 2012.
Material Type
Book
Call Number
EF 850.5 HUM 2012 STACKS
Availability
1 copy, 1 available
volution des pratiques médicales inclut dorénavant le développement des soins palliatifs pédiatriques. En effet, la spécificité de la prise en charge des enfants et des adolescents vivant avec une pathologie pouvant menacer leur vie a été démontrée grâce à l'expertise et au travail de réflexion en…
Alternate Title
[La vie avant, pendant et apres: Les soins palliatifs pediatriques]
Author
Humbert, Nago
Place of Publication
Montreal, QC
Publisher
CHU Sainte-Justine
Publication Date
2012
Physical Description
Paperback, 335 p.
Subject
Coping with Chronic Illness-Children
Caregiving
Abstract
volution des pratiques médicales inclut dorénavant le développement des soins palliatifs pédiatriques. En effet, la spécificité de la prise en charge des enfants et des adolescents vivant avec une pathologie pouvant menacer leur vie a été démontrée grâce à l'expertise et au travail de réflexion entrepris et soutenu par des intervenants spécialisés, autant en Amérique du Nord qu'en Europe.
La recherche dans ce domaine soulève certaines problématiques particulières, à la fois sur les plans médical, psychologique, éthique, émotionnel, relationnel et spirituel. En regroupant et en explorant plusieurs d'entre elles - contexte de périnatalité ou de handicap, gestion de la douleur, poursuite de la scolarité, rôle du pédiatre et de l'infirmière, souffrance des membres de la famille et des soignants, décès à l'urgence, impacts des décisions concernant l'alimentation, les niveaux de soins et la non-réanimation, possible conflit opposant famille et équipe de soins, importance du suivi de deuil...-, ce livre contribue à donner à chaque jeune patient un encadrement global et adéquat visant la meilleure qualité de vie possible dans le respect de son développement. Référence essentielle, il témoigne de la complexité des gestes et des décisions des soignants qui, ne pouvant plus guérir la maladie, sont appelés à soulager tous les malaises du petit malade et de sa famille, y comprix ceux de l'âme.
ISBN
9782896196197
Language
French
Material Type
Book
Call Number
EF 850.5 HUM 2012 STACKS

Copies

copy 1 BC Children's and Women's Family Library Available
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Symple Symptom Tracker: Mobile App (iOS)

https://bcch.andornot.com/en/permalink/catalog124794
Symple Health, Inc. , 2019.
URL
https://apps.apple.com/us/app/symple-symptom-tracker/id479818115
Material Type
Online
Use Symple to track how you feel, to monitor your health, and to improve your wellbeing. Designed by both clinicians and regular people, Symple is an enjoyable way to connect to better health.
  1 url  
URL
https://apps.apple.com/us/app/symple-symptom-tracker/id479818115
Corporate Author
Symple Health, Inc.
Publication Date
2019
Physical Description
Mobile App
Subject
Coping with Pain
Coping with Chronic Illness
Abstract
Use Symple to track how you feel, to monitor your health, and to improve your wellbeing. Designed by both clinicians and regular people, Symple is an enjoyable way to connect to better health.
Language
English
Material Type
Online
URLs
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Our heartbreaking choices: Forty-six women share their stories of interrupting a much-wanted pregnancy

https://bcch.andornot.com/en/permalink/catalog123307
iUniverse , 2008.
Material Type
Book
Call Number
GE 250 BRO 2008
Availability
1 copy, 1 available
This book is about abortion, but more specifically, about abortions sought due to a poor prenatal diagnosis or due to serious maternal health complications. This book contains 46 personal stories, each one from a woman who decided to interrupt a much-wanted and oftentimes much-planned pregnancy. Th…
Editor
Brooks, Christine
Publisher
iUniverse
Publication Date
2008
Physical Description
420 p.
Subject
Abortion-Coping
Pregnancy Complications
Abstract
This book is about abortion, but more specifically, about abortions sought due to a poor prenatal diagnosis or due to serious maternal health complications. This book contains 46 personal stories, each one from a woman who decided to interrupt a much-wanted and oftentimes much-planned pregnancy. There is very little societal support for parents who make this decision, which leaves most parents to deal with their sadness and grief alone.
ISBN
9780595530472
Language
English
Material Type
Book
Call Number
GE 250 BRO 2008

Copies

BC Children's and Women's Family Library Available
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Easy for you to say: Q & A's for teens living with chronic illness or disability

https://bcch.andornot.com/en/permalink/catalog112348
Kaufman, Miriam. [Toronto, ON]: Firefly Books Ltd , 2012. 3rd ed.
Material Type
Book
Call Number
YOUTH EF 850.6 KAU 2012
Availability
1 copy, 1 available
In the 3rd edition, Dr. Miriam Kaufman addresses important topics for teens who are living with chronic conditions or disabilities. The topics include: Anemia, Cancer, Cerebral Palsy, Crohn's Disease, Deafness, Diabetes, Head Injury, Heart Disease, Hemophilia, HIV, Lupus, Muscular Dystrophy, Sickle…
Author
Kaufman, Miriam
Edition
3rd ed
Place of Publication
[Toronto, ON]
Publisher
Firefly Books Ltd
Publication Date
2012
Physical Description
Softcover: 309 p.
Subject
Coping with Chronic Illness
Young Adults
Physical Disability-Coping
Physical Disability. Physically Challenged
Relationships
Abstract
In the 3rd edition, Dr. Miriam Kaufman addresses important topics for teens who are living with chronic conditions or disabilities. The topics include: Anemia, Cancer, Cerebral Palsy, Crohn's Disease, Deafness, Diabetes, Head Injury, Heart Disease, Hemophilia, HIV, Lupus, Muscular Dystrophy, Sickle Cell Anemia, Seizures, Spinal Bifida, Spinal Cord Injuries, and Thyroid Disease.
ISBN
9781770850996
Language
English
Material Type
Book
Call Number
YOUTH EF 850.6 KAU 2012

Copies

Copy 1 BC Children's and Women's Family Library Available
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Understanding living with a chronic illness: Written by doctors for kids

https://bcch.andornot.com/en/permalink/catalog121225
Renfrew, Ruth, deLoache, Shawn. New York, NY: Jumo , 2018.
Material Type
Book
Call Number
JUNIOR EF 800 REN 2018
Availability
1 copy, 1 available
Comic book featuring Medikidz, superhero experts on health and illness. Explains how chronic illness can affect individuals and their families.
Author
Renfrew, Ruth
deLoache, Shawn
Editor
Medikidz USA Inc.
Place of Publication
New York, NY
Publisher
Jumo
Publication Date
2018
Physical Description
Softcover; 16 p.
Subject
Chronic Illness
Abstract
Comic book featuring Medikidz, superhero experts on health and illness. Explains how chronic illness can affect individuals and their families.
Language
English
Material Type
Book
Call Number
JUNIOR EF 800 REN 2018

Copies

copy 1 BC Children's and Women's Family Library Available
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Young, sick, and invisible: A skeptic's journey with chronic illness

https://bcch.andornot.com/en/permalink/catalog122237
Bula, Ania. Durham, North Carolina: Pitchstone Publishing , 2016.
Material Type
Book
Call Number
EF 800 BUL 2016
Availability
1 copy, 1 available
"Drawing on her own deeply personal experiences, Ania Bula explores what it is like to live with unseen chronic disabilities. She paints a vibrant picture of what it is like to be diagnosed with two life-long debilitating conditions as a young adult and relates the challenges and frustrations of de…
Author
Bula, Ania
Place of Publication
Durham, North Carolina
Publisher
Pitchstone Publishing
Publication Date
2016
Physical Description
Softcover ; 224 p.
Subject
Chronic Illness
Abstract
"Drawing on her own deeply personal experiences, Ania Bula explores what it is like to live with unseen chronic disabilities. She paints a vibrant picture of what it is like to be diagnosed with two life-long debilitating conditions as a young adult and relates the challenges and frustrations of dealing with predatory alternative medicine practitioners, arrogant doctors, indifferent bureaucracies, and well-meaning friends and family who always seem to say either the wrong thing-or nothing at all. As she discovered, suddenly everyone's aunt is a health expert and everyone's fad diet a cure. Making matters worse, her physical torment quickly translated into mental stresses. Relationships became strained, while others, including all-important romantic ones, never had a chance to start at all. Wading through a constant stream of ignorance and lies, in a desperate attempt to find peace, to stop the pain, and to return to a more normal life, she submits to being stuffed with powders and magic potions, poked and prodded, and even "faith healed." With honesty and humor, she shares her journey of pain, suffering, and, ultimately, coping, both to help others gain some understanding about what it is like to live with chronic illness-and to help those who might similarly suffer feel less alone, so that they too might start living again.
"Drawing on the author's personal experiences with her own physical and mental health struggles, the book explores what it is like to live with chronic disabilities as a young adult"-- Provided by publisher
Notes
Recommended by CCDP
ISBN
9781634310734
Language
English
Material Type
Book
Call Number
EF 800 BUL 2016

Copies

copy 1 BC Children's and Women's Family Library Available
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In Sickness as in Health: Helping Couples Cope with the Complexities of Illness

https://bcch.andornot.com/en/permalink/catalog124001
Kivowitz, Barbara, Weisman, Roanne. Petaluma, CA: Roundtree Press , 2013.
Material Type
Book
Call Number
EF 800 KIV 2013
Availability
1 copy, 1 available
For those who find themselves at the intersection of lifetime love and overwhelming obligation, the right path is often painful and difficult to find. When illness invades the couple relationship, partners ask themselves and each other some really hard questions: "What do I want to do for this pers…
Author
Kivowitz, Barbara
Weisman, Roanne
Place of Publication
Petaluma, CA
Publisher
Roundtree Press
Publication Date
2013
Physical Description
Softcover; 192 pages
Subject
Chronic Illness
Abstract
For those who find themselves at the intersection of lifetime love and overwhelming obligation, the right path is often painful and difficult to find. When illness invades the couple relationship, partners ask themselves and each other some really hard questions: "What do I want to do for this person whom I have loved for many years?" "How much of my life do I give up to take care of my beloved?" "How do I sit by my beloved's side and watch her suffer?" While writing In Sickness as in Health, authors Barbara Kivowitz and Roanne Weisman learned through interviews with many couples, as well as with medical, spiritual, legal, rehabilitation and psychological experts, that couples find their own ways to deal with illnesses and catastrophic injuries.
ISBN
9781937359133
Language
English
Material Type
Book
Call Number
EF 800 KIV 2013

Copies

copy 1 BC Children's and Women's Family Library Available
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Trouble with illness, The: How illness and disability affect relationships

https://bcch.andornot.com/en/permalink/catalog122269
Segal, Julia. Philadelphia, PA: Jessica Kingsley Publishers , 2017.
Material Type
Book
Call Number
EF 800 SEG 2017
Availability
2 copies, 2 available
This impressively honest book explores the effects a challenging disability or illness can have on the mind and personal relationships, and how friends, family and professionals can help.; Illness or disability can isolate people by creating vast differences in their experiences where previously th…
Author
Segal, Julia
Place of Publication
Philadelphia, PA
Publisher
Jessica Kingsley Publishers
Publication Date
2017
Physical Description
Softcover ; 312 p.
Subject
Chronic Illness
Disabilities
Relationships
Abstract
This impressively honest book explores the effects a challenging disability or illness can have on the mind and personal relationships, and how friends, family and professionals can help.
Illness or disability can isolate people by creating vast differences in their experiences where previously there were none. Friends and family can find themselves saying the wrong thing or awkwardly avoiding topics as a result. This book takes a candid look at how discomfort caused by an illness can strain a relationship between partners, families and professionals, as well as how understanding feelings of guilt or shame can transform a situation or relationship.
The insights and advice offered in this book can help children and adolescents overcome anxiousness caused by a parent's condition, improve communication between partners and family members, and increase professionals' awareness of how a client feels about their situation.
ISBN
9781785923326
Language
English
Material Type
Book
Call Number
EF 800 SEG 2017

Copies

copy 1 BC Children's and Women's Family Library Available
copy 2 BC Children's and Women's Family Library Available
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You don't look sick! : Living well with invisible chronic illness

https://bcch.andornot.com/en/permalink/catalog122326
Selak, Joy H., Overman, Steven S. New York: Demos Health 2nd Ed.
Material Type
Book
Call Number
EF 800 SEL 2013
Availability
2 copies, 2 available
"You Don√Ã¥t Look Sick chronicles one person√Ã¥s true-life story of illness and her physicians compassionate commentary as they journey through the four stages of chronic illness√õGetting Sick, Being Sick, Grief and Acceptance and Living Well. The authors address such practical aspe…
Author
Selak, Joy H.
Overman, Steven S.
Edition
2nd Ed
Place of Publication
New York
Publisher
Demos Health
Physical Description
Softcover ; xxviii, 166 p.
Subject
Chronic Illness
Abstract
"You DonÌt Look Sick chronicles one personÌs true-life story of illness and her physicians compassionate commentary as they journey through the four stages of chronic illnessÛGetting Sick, Being Sick, Grief and Acceptance and Living Well. The authors address such practical aspects as hiring a doctor, managing chronic pain, coping with grief and loss of function, winning battles with health and disability insurers, countering the social bias against the chronically ill, and recognizing the limitations of chronic illness care and charting a path for change and more. This warmhearted resource helps you focus on building a meaningful life as opposed to a life of frustration and fear. This book is thoroughly revised and updated based upon feedback from readers of the first edition. The authors have added a new section on Grief and Acceptance, address the passage of the Affordable Health Care Act and Dr. Overman has added practical travel tips that bring organization and focus to each phase of the journey. Designed for people at all stages of the chronic illness journey, this book is also illuminating for caregivers and loved ones"--from the Publisher
ISBN
9781936303427
Language
English
Material Type
Book
Call Number
EF 800 SEL 2013

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BC Children's and Women's Family Library Available
copy 2 BC Children's and Women's Family Library Available
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The chronic illness workbook : Strategies and solutions for taking back your life

https://bcch.andornot.com/en/permalink/catalog122395
Fennell, Patricia A. Latham, New York: Albany Health Management Publishing , 2012.
Material Type
Book
Call Number
EF 800 FEN 2012
Availability
2 copies, 2 available
This book "brings clarity and order to what feels like an unmanageable and isolating experience. It shows both those who are ill and those who care for them how to live a full and meaningful life despite undeniable difficulties. Using her extensive experience with chronic illness patients, Patricia…
  1 image  
Author
Fennell, Patricia A.
Place of Publication
Latham, New York
Publisher
Albany Health Management Publishing
Publication Date
2012
Physical Description
Softcover ; 253 p.
Subject
Chronic Illness
Abstract
This book "brings clarity and order to what feels like an unmanageable and isolating experience. It shows both those who are ill and those who care for them how to live a full and meaningful life despite undeniable difficulties. Using her extensive experience with chronic illness patients, Patricia Fennell has created an original, comprehensive, research-validated approach that considers not only the physical aspects of chronic illness, but the psychological, social, and economic aspects as well"--from the Publisher
ISBN
9780979640711
Language
English
Material Type
Book
Call Number
EF 800 FEN 2012

Copies

copy 1 BC Children's and Women's Family Library Available
copy 2 BC Children's and Women's Family Library Available
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Success stories from the frontline: Intellectual disabilities and mental health: An anthology of first person stories as submitted by patients and their families

https://bcch.andornot.com/en/permalink/catalog110178
Hombert, Madeline (editor); Friedlander, Robin & Donnelly, Tina (publishers). Port Coquitlam, BC: Friedlander/Donnelly , 2006.
Material Type
Book
Call Number
CD 255 HOM 2006
Availability
1 copy, 1 available
A collection of writing from a dozen parents and those dually diagnosed with developmental and mental health problems. Covers autism, obsessive compulsive disorder (OCD), as well as developmental disabilities.
  1 image  
Author
Hombert, Madeline (editor); Friedlander, Robin & Donnelly, Tina (publishers)
Place of Publication
Port Coquitlam, BC
Publisher
Friedlander/Donnelly
Publication Date
2006
Physical Description
Paperback, 189 p.
Subject
Mental Disorders-Coping for the Family
Developmental Disability
External
Abstract
A collection of writing from a dozen parents and those dually diagnosed with developmental and mental health problems. Covers autism, obsessive compulsive disorder (OCD), as well as developmental disabilities.
Notes
On Sale! Regular price = $15.00
ISBN
0978146700
Language
English
Material Type
Book
Call Number
CD 255 HOM 2006

Copies

Copy 1 BC Children's and Women's Family Library Available
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When someone you love has a chronic illness: Hope and help for those providing support

https://bcch.andornot.com/en/permalink/catalog122265
McClintock Greenberg, Tamara. Springville, UT: Plain Sight Publishing , 2012.
Material Type
Book
Call Number
EF 800 GRE 2012
Availability
1 copy, 1 available
"Dr. Tamara Greenberg offers hope and practical advice to those impacted by a loved one's illness with this new book., "When Someone You Love Has a Chronic Illness: Hope and Help for Those Providing Support. Inside, Dr. Greenberg provides easy-to-understand explanations for complicated feelings and…
Author
McClintock Greenberg, Tamara
Place of Publication
Springville, UT
Publisher
Plain Sight Publishing
Publication Date
2012
Physical Description
Softcover ; xiv, 157 p.
Subject
Chronic Illness
Abstract
"Dr. Tamara Greenberg offers hope and practical advice to those impacted by a loved one's illness with this new book., "When Someone You Love Has a Chronic Illness: Hope and Help for Those Providing Support. Inside, Dr. Greenberg provides easy-to-understand explanations for complicated feelings and behaviors and offers pragmatic strategies for coping effectively and serving your loved one in this time of need.
"Learn how to talk to someone who is ill, what not to do, how to address your loved ones who aren't taking care of themselves, how to help someone in physical pain, and more.
"Above all, Dr. Greenberg delivers important tools for managing the normal anxiety we all feel when someone we love is ill." --From back cover
ISBN
9781599559391
Language
English
Material Type
Book
Call Number
EF 800 GRE 2012

Copies

BC Children's and Women's Family Library Available
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But you look good: How to encourage and understand people living with illness and pain

https://bcch.andornot.com/en/permalink/catalog122282
Connell, Wayne, Connell, Sherri. Parker, Colorado: Invisible Disabilities Association , 2014.
Material Type
Book
Call Number
FM 830 CON 2014
Availability
2 copies, 2 available
"Do your loved ones have a hard time understanding your chronic illness or pain, because to them you LOOK fine? But You LOOK Good is a book that gives those living with chronic illness and pain a voice about how they feel, what they need and how others can be an encouragement to them. It is a conv…
Author
Connell, Wayne
Connell, Sherri
Place of Publication
Parker, Colorado
Publisher
Invisible Disabilities Association
Publication Date
2014
Physical Description
Softcover ; 85 p.
Subject
Chronic Illness
Chronic Pain
Abstract
"Do your loved ones have a hard time understanding your chronic illness or pain, because to them you LOOK fine? But You LOOK Good is a book that gives those living with chronic illness and pain a voice about how they feel, what they need and how others can be an encouragement to them. It is a convenient, informative way to educate loved ones about what people living with ongoing illness and pain struggle with, fight for and need from their friends and family. It is easy to read, gives practical ideas on how loved ones can be supportive and is not too long for readers to lose interest!"--from publisher.
ISBN
9780692258453
Language
English
Material Type
Book
Call Number
FM 830 CON 2014

Copies

copy 1 BC Children's and Women's Family Library Available
copy 2 BC Children's and Women's Family Library Available
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How to be sick: A buddhist-inspired guide for the chronically ill and their caregivers

https://bcch.andornot.com/en/permalink/catalog122239
Bernhard, Toni. Somerville, MA: Wisdom Publications , 2018.
Material Type
Book
Call Number
EF 800 BER 2010
Availability
1 copy, 0 available
"This life-affirming, instructive and thoroughly inspiring book is a must-read for anyone who is, or who might one day be, sick. And it can also be the perfect gift of guidance, encouragement, and uplifting inspiration to family, friends, and loved ones struggling with the many terrifying or dishea…
Author
Bernhard, Toni
Place of Publication
Somerville, MA
Publisher
Wisdom Publications
Publication Date
2018
Physical Description
Softcover ; xvii, 191 p.
Subject
Chronic Illness
Emotional Health
Mental Health
Abstract
"This life-affirming, instructive and thoroughly inspiring book is a must-read for anyone who is, or who might one day be, sick. And it can also be the perfect gift of guidance, encouragement, and uplifting inspiration to family, friends, and loved ones struggling with the many terrifying or disheartening life changes that come so close on the heels of a diagnosis of a chronic condition or even life-threatening illness." --Publisher
Notes
Recommended by CCDP
ISBN
9780861716265
Language
English
Material Type
Book
Call Number
EF 800 BER 2010

Copies

BC Children's and Women's Family Library On Loan, due Friday, January 5, 2024
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Sick and tired of feeling sick and tired: Living with invisible chronic illness

https://bcch.andornot.com/en/permalink/catalog125122
Donoghue, Paul J., Siegel, Mary E. New York, NY: W.W. Norton & Company, Inc. , 2000.
Material Type
Book
Call Number
EF 820 DON 2000
Availability
1 copy, 0 available
Unlike a leg in a cast, invisible chronic illness (ICI) has no observable symptoms. Consequently, people who suffer from chronic fatigue, chronic pain, and many other miseries often endure not only the ailment but dismissive and negative reactions from others.; Since its first publication, Sick and…
Author
Donoghue, Paul J.
Siegel, Mary E.
Place of Publication
New York, NY
Publisher
W.W. Norton & Company, Inc.
Publication Date
2000
Physical Description
Softcover, 304 pages
Subject
Lifestyle changes with chronic illness
Abstract
Unlike a leg in a cast, invisible chronic illness (ICI) has no observable symptoms. Consequently, people who suffer from chronic fatigue, chronic pain, and many other miseries often endure not only the ailment but dismissive and negative reactions from others.
Since its first publication, Sick and Tired of Feeling Sick and Tired has offered hope and coping strategies to thousands of people who suffer from ICI. Paul Donoghue and Mary Siegel teach their readers how to rethink how they themselves view their illness and how to communicate with loved ones and doctors in a way that meets their needs. The authors' understanding makes readers feel they have been heard for the first time.
For this edition, the authors include a new introduction drawing on the experiences of the many people who have responded to the book and to their lectures and television appearances. They expand the definition of ICI to include other ailments such as depression, addiction, and obsessive-compulsive disorders. They bring the resource material, including Web sites, up to the present, and they offer fresh insights on four topics that often emerge: guilt, how ICI affects the family, meaningfulness, and defining acceptance.
Notes
Recommended by CCDP
ISBN
9780393320657
Language
English
Material Type
Book
Call Number
EF 820 DON 2000

Copies

BC Children's and Women's Family Library On Loan, due Friday, April 26, 2024
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On children and death: How children and their parents can and do cope with death

https://bcch.andornot.com/en/permalink/catalog106781
Kubler-Ross, Elisabeth. New York, NY: Simon & Schuster , 1983.
Material Type
Book
Call Number
GV 255 KUB 1983
Availability
1 copy, 1 available
This book is based on a decade of working with dying children and was written to help parents and families cope with the terminal illness or sudden death of a child. It speaks directly to the fears, doubts, anger, confusion, and anguish that parents and families are faced with.
Author
Kubler-Ross, Elisabeth
Place of Publication
New York, NY
Publisher
Simon & Schuster
Publication Date
1983
Physical Description
Softcover: 271 pages
Subject
Coping with a Child's Death
Grief. Bereavement
Coping with Death
Children-Coping with Death and Dying
Abstract
This book is based on a decade of working with dying children and was written to help parents and families cope with the terminal illness or sudden death of a child. It speaks directly to the fears, doubts, anger, confusion, and anguish that parents and families are faced with.
ISBN
0-684-83939-3
Language
English
Material Type
Book
Call Number
GV 255 KUB 1983

Copies

Copy 1 BC Children's and Women's Family Library Available
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Full Catastrophe Living: How to Cope with Stress, Pain, and Illness Using Mindfulness Meditation

https://bcch.andornot.com/en/permalink/catalog123942
Kabat-Zinn, Jon. Random House , 2013. Revised and updated edition.
Material Type
Book
Call Number
EG 225 KAB 2013
Availability
1 copy, 1 available
Stress. It can sap our energy, undermine our health if we let it, even shorten our lives. It makes us more vulnerable to anxiety and depression, disconnection and disease. Based on Jon Kabat-Zinn's renowned mindfulness-based stress reduction program, this classic, groundbreaking work - which gave …
Author
Kabat-Zinn, Jon
Edition
Revised and updated edition
Publisher
Random House
Publication Date
2013
Physical Description
Softcover; 650 pages
Subject
Mindfulness
Chronic Illness
Anxiety
Abstract
Stress. It can sap our energy, undermine our health if we let it, even shorten our lives. It makes us more vulnerable to anxiety and depression, disconnection and disease. Based on Jon Kabat-Zinn's renowned mindfulness-based stress reduction program, this classic, groundbreaking work - which gave rise to a whole new field in medicine and psychology -
shows you how to use medically proven mind-body approaches derived from meditation and yoga to counteract stress, establish greater balance of body and mind, and stimulate well-being and healing. By engaging in these mindfulness practices and integrating them into your life from moment to moment and from day to day, you can learn to manage chronic pain, promote optimal healing, reduce anxiety and feelings of panic, and improve the overall quality of your life, relationships, and social networks. This second edition features results from recent studies on the science of mindfulness, a new Introduction, up-to-date statistics, and an extensive updated reading list. Full Catastrophe Living is a book for the young and the old, the well and the ill, and anyone trying to live a healthier and saner life in our fast-paced world.
ISBN
9780749958411
Language
English
Material Type
Book
Call Number
EG 225 KAB 2013

Copies

copy 1 BC Children's and Women's Family Library Available
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Full catastrophe living: Using the wisdom of your body and mind to face stress, pain, and illness

https://bcch.andornot.com/en/permalink/catalog124512
Kabat-Zinn, Jon. New York, NY: Random House Audio , 2008. Tenth anniversary edition.
Material Type
CD
Audio
Call Number
EG 225 KAB 2008
Availability
1 copy, 1 available
Stress. It can sap our energy, undermine our health if we let it, even shorten our lives. It makes us more vulnerable to anxiety and depression, disconnection and disease. Now, based on Dr. Jon Kabat-Zinn's renowned mindfulness-based stress reduction program, this groundbreaking audiobook shows yo…
Author
Kabat-Zinn, Jon
Edition
Tenth anniversary edition
Place of Publication
New York, NY
Publisher
Random House Audio
Publication Date
2008
Physical Description
5 CD set
Subject
Mindfulness
Chronic Illness
Anxiety
Abstract
Stress. It can sap our energy, undermine our health if we let it, even shorten our lives. It makes us more vulnerable to anxiety and depression, disconnection and disease. Now, based on Dr. Jon Kabat-Zinn's renowned mindfulness-based stress reduction program, this groundbreaking audiobook shows you how to use natural, medically proven methods to soothe and heal your body, mind, and spirit.
Recommended by CCDP
Language
English
Material Type
CD
Audio
Call Number
EG 225 KAB 2008

Copies

BC Children's and Women's Family Library Available
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Partnership guide: A resource to support children to understand and participate when serious illness decisions are considered

https://bcch.andornot.com/en/permalink/catalog122906
Ethics Department and Patient Partners. Vancouver, BC: BC Children's Hospital & BC Women's Hospital + Health Centre , 2020.
URL
http://www.cw.bc.ca/library/pdf/pamphlets/BC-Childrens-Partnership-Guide.pdf
Material Type
Online
Booklet
This resource from BC Children?s Hospital can support families to explore their perspectives together and incorporate ways to foster the appropriate inclusion of children in healthcare decisions.; The Partnership Guide was developed to improve the guidance, support and participation of children ag…
  1 url  
URL
http://www.cw.bc.ca/library/pdf/pamphlets/BC-Childrens-Partnership-Guide.pdf
Corporate Author
Ethics Department and Patient Partners
Place of Publication
Vancouver, BC
Publisher
BC Children's Hospital & BC Women's Hospital + Health Centre
Publication Date
2020
Physical Description
21 pages
Subject
Pain Control
Abstract
This resource from BC Children?s Hospital can support families to explore their perspectives together and incorporate ways to foster the appropriate inclusion of children in healthcare decisions.
The Partnership Guide was developed to improve the guidance, support and participation of children aged 7-14 years with serious illness. This education resource provides up to date research knowledge in the area of child participation, pediatric decision making and child-focused activities and interventions to support children with this process.
Fostering the developing autonomy of children is an essential ethical principle and this guide supports the inclusion of children in decision-making to their ability and desire, to participate in decisions that impact their health.
Language
English
Material Type
Online
Booklet
URLs
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Reaching out to your children when cancer comes to your family: A guide for parents

https://bcch.andornot.com/en/permalink/catalog114589
Slakov, June. [Vancouver, BC?]: BC Cancer Agency , 2016.
Material Type
Book
Call Number
FE 555 SLA 2016
Availability
1 copy, 1 available
This book is for the parents, grandparents, aunts and uncles, teachers, or other support persons, who play a key role in helping children and teens who have a family member living with cancer.
Author
Slakov, June
Place of Publication
[Vancouver, BC?]
Publisher
BC Cancer Agency
Publication Date
2016
Physical Description
Spiral bound, 52 p., ill.
Subject
Children with Cancer-Coping
Children with Cancer-Coping for the Family
Cancer
Abstract
This book is for the parents, grandparents, aunts and uncles, teachers, or other support persons, who play a key role in helping children and teens who have a family member living with cancer.
ISBN
9781896624280
Language
English
Material Type
Book
Call Number
FE 555 SLA 2016

Copies

copy 1 BC Children's and Women's Family Library Available
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Far from the tree: Parents, children, and the search for identity

https://bcch.andornot.com/en/permalink/catalog112354
Solomon, Andrew. [Toronto, ON]: Scribner , 2012.
Material Type
Book
Call Number
GK 600 SOL 2012
Availability
1 copy, 1 available
Andrew Solomon tells the stories of parents who not only learn to deal with their exceptional children but also find profound meaning in doing so. He writes about families coping with deafness, dwarfism, Down syndrome, autism, schizophrenia, multiple severe disabilities, with children who are prodi…
Author
Solomon, Andrew
Place of Publication
[Toronto, ON]
Publisher
Scribner
Publication Date
2012
Physical Description
Hardcover: 702 p.
Subject
Parenting Children with Developmental Disabilities
Parenting Children with Disabilities
Relationships
Parenting
Parenting Children with Physical Disabilities
Abstract
Andrew Solomon tells the stories of parents who not only learn to deal with their exceptional children but also find profound meaning in doing so. He writes about families coping with deafness, dwarfism, Down syndrome, autism, schizophrenia, multiple severe disabilities, with children who are prodigies, who are conceived in rape, who become criminals, who are transgender. While each of these characteristics is potentially isolating, the experience of difference within families is universal, as are the triumphs of love Solomon documents in every chapter.
ISBN
9780743236713
Language
English
Material Type
Book
Call Number
GK 600 SOL 2012

Copies

Copy 2 BC Children's and Women's Family Library Available
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Finding unity in our diversity : Family stories of raising young children who are deaf or hard of hearing

https://bcch.andornot.com/en/permalink/catalog123119
British Columbia (BC) Hands and Voices , 2020.
Material Type
Book
Call Number
FI 400.5 GOW 2020
Availability
1 copy, 1 available
This collection of family stories shares experiences of raising young children who are Deaf and hard of hearing. It brings together articles written by a diverse range of families from British Columbia, Canada. We hope this book provides you with hopeful, insightful stories and practical wisdom.
Editor
Gow, Jennifer
Ho, Amy
Kazemir, Teresa
Shauer, Kim
Publisher
British Columbia (BC) Hands and Voices
Publication Date
2020
Physical Description
107 pages
Subject
Deafness-Children
Deafness-Coping
Hearing. Hard of Hearing
Hearing. Hard of Hearing-Children
Abstract
This collection of family stories shares experiences of raising young children who are Deaf and hard of hearing. It brings together articles written by a diverse range of families from British Columbia, Canada. We hope this book provides you with hopeful, insightful stories and practical wisdom.
ISBN
9781777078706
Language
English
Material Type
Book
Call Number
FI 400.5 GOW 2020

Copies

Copy 1 BC Children's and Women's Family Library Available
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Complex Regional Pain Syndrome (CRPS) explained: For teenagers, by teenagers

https://bcch.andornot.com/en/permalink/catalog111592
Lauder, G.R., Massey, Roslyn. Bloomington, IN: Xlibris Corporation , 2010.
Material Type
Book
Call Number
YOUTH FM 630 LAU 2010a
Availability
11 copies, 11 available
This book provides clear information for teenagers who develop Complex Regional Pain Syndrome (CRPS). It can be used as a tool to aid the early recognition of CRPS and implement the necessary team approach to management. Medical terms have been explained in a way that can be easily understood. The …
  1 image  
Author
Lauder, G.R.
Massey, Roslyn
Place of Publication
Bloomington, IN
Publisher
Xlibris Corporation
Publication Date
2010
Physical Description
Softcover, 100 pages.
Subject
Reflex Sympathetic Dystrophy. Causalgia
Coping with Pain
Coping with Chronic Illness Young Adult
Pain
Abstract
This book provides clear information for teenagers who develop Complex Regional Pain Syndrome (CRPS). It can be used as a tool to aid the early recognition of CRPS and implement the necessary team approach to management. Medical terms have been explained in a way that can be easily understood. The authors asked a focus group of teenagers? which included those who have been treated for CRPS ? to provide their feedback.
ISBN
9781453589953
Language
English
Material Type
Book
Call Number
YOUTH FM 630 LAU 2010a

Copies

Copy 1 BC Children's and Women's Family Library Available
Copy 2 BC Children's and Women's Family Library Available
Copy 3 BC Children's and Women's Family Library Available
Copy 4 BC Children's and Women's Family Library Available
Copy 5 BC Children's and Women's Family Library Available
Copy 6 BC Children's and Women's Family Library Available
Copy 7 BC Children's and Women's Family Library Available
Copy 8 BC Children's and Women's Family Library Available
Copy 10 BC Children's and Women's Family Library Available
Copy 11 BC Children's and Women's Family Library Available
copy 9 BC Children's and Women's Family Library Available
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Eating disorders don't discriminate: Stories of illness, hope and recovery from diverse voices

https://bcch.andornot.com/en/permalink/catalog125284
Nwuba, Chukwuemeka [eds], Spinn, Bailey [eds.]. London, UK: Jessica Kingsley Publishers , 2024.
Material Type
Book
Call Number
BB 500 NWU 2024
Availability
1 copy, 1 available
This honest collection directly confronts stereotypes and misconceptions about what eating disorders look like and who they impact. Tapping into sources of expert knowledge throughout, the accounts showcase how you can begin to understand your own journey of body acceptance and recovery and support…
Author
Nwuba, Chukwuemeka [eds]
Spinn, Bailey [eds.]
Place of Publication
London, UK
Publisher
Jessica Kingsley Publishers
Publication Date
2024
Physical Description
Softcover, 304 pages
Subject
Eating Disorders
Abstract
This honest collection directly confronts stereotypes and misconceptions about what eating disorders look like and who they impact. Tapping into sources of expert knowledge throughout, the accounts showcase how you can begin to understand your own journey of body acceptance and recovery and support those struggling in silence.
ISBN
9781839976995
Language
English
Material Type
Book
Call Number
BB 500 NWU 2024

Copies

1 BC Children's and Women's Family Library Available
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Bereaved children and teens: A support guide for parents and professionals

https://bcch.andornot.com/en/permalink/catalog102989
Grollman, Earl A. [Boston, MA]: Beacon Press , 1995. Rev. ed. of: Explaining death to children. 1967. .
Material Type
Book
Call Number
GV 200 GRO 1995
Availability
1 copy, 1 available
This is a comprehensive resource for parents, teachers, counselors, health-care professionals, clergy and others concerned about the children in their lives. Suggests ways of explaining death to children and teens from a number of perspectives eg. philosophical, cultural and religious.
Author
Grollman, Earl A.
Edition
Rev. ed. of: Explaining death to children. 1967.
Place of Publication
[Boston, MA]
Publisher
Beacon Press
Publication Date
1995
Physical Description
xii; 238 p.
Subject
Grief. Bereavement
Coping with Death
Children's Emotions
Emotional Health
Abstract
This is a comprehensive resource for parents, teachers, counselors, health-care professionals, clergy and others concerned about the children in their lives. Suggests ways of explaining death to children and teens from a number of perspectives eg. philosophical, cultural and religious.
ISBN
080702306X
Language
English
Material Type
Book
Call Number
GV 200 GRO 1995

Copies

Copy 1 BC Children's and Women's Family Library Available
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Gentle willow: A story for children about dying

https://bcch.andornot.com/en/permalink/catalog104059
Mills, Joyce C., Chesworth, Michael (Illustrator). Washington, DC: Magination Press , 1993.
Material Type
Book
Call Number
JUNIOR GV 250 MIL 1993
Availability
1 copy, 1 available
A comforting story which helps children deal with the their own death, death of friends, a family member, or even pets. A loving and tender tale that addresses our feelings of sadness, love, disbelief, and anger.
Author
Mills, Joyce C.
Chesworth, Michael (Illustrator)
Place of Publication
Washington, DC
Publisher
Magination Press
Publication Date
1993
Physical Description
Hardcover, col. ill. (unpaged).
Subject
Coping with Death
Children and Grief
Children-Coping with Death and Dying
Abstract
A comforting story which helps children deal with the their own death, death of friends, a family member, or even pets. A loving and tender tale that addresses our feelings of sadness, love, disbelief, and anger.
ISBN
945354541
Language
English
Material Type
Book
Call Number
JUNIOR GV 250 MIL 1993

Copies

Copy 1 BC Children's and Women's Family Library Available
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Seizure associated with fever - caring for your child: Advice for parents and families

https://bcch.andornot.com/en/permalink/catalog106229
Emergency Department. [Vancouver, BC?]: BC Children's Hospital , 2012.
URL
http://www.cw.bc.ca/library/pdf/pamphlets/BCCH1008_SeizureWithFever_2012.pdf
Material Type
Handout
Online
Call Number
BCCH1008
Explains what a seizure is, what you should and should not do when your child is having a seizure.
  1 image     1 url  
URL
http://www.cw.bc.ca/library/pdf/pamphlets/BCCH1008_SeizureWithFever_2012.pdf
Website Notes
Click the link to view or print.
Corporate Author
Emergency Department
Place of Publication
[Vancouver, BC?]
Publisher
BC Children's Hospital
Publication Date
2012
Physical Description
PDF file: 1 p.
Subject
Seizure Disorders-Children
Fever
Abstract
Explains what a seizure is, what you should and should not do when your child is having a seizure.
Language
English
Material Type
Handout
Online
Call Number
BCCH1008
Images
URLs
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Growing up shared : How parents can share smarter on social media - and what you can do to keep your family safe in a no-privacy world

https://bcch.andornot.com/en/permalink/catalog122736
Steinberg, Stacey. Sourcebooks , 2020.
URL
https://ebookcentral.proquest.com/lib/cwhbc/detail.action?docID=6203120
Material Type
Ebook
Call Number
GK 650 STE 2020
Growing Up Shared investigates the benefits and risks of sharing our kids' lives on social media, and will help any parent decide on the right path for their family to follow in the online world.
  1 url  
URL
https://ebookcentral.proquest.com/lib/cwhbc/detail.action?docID=6203120
Author
Steinberg, Stacey
Publisher
Sourcebooks
Publication Date
2020
Subject
Parenting
Internet
Abstract
Growing Up Shared investigates the benefits and risks of sharing our kids' lives on social media, and will help any parent decide on the right path for their family to follow in the online world.
ISBN
9781492698128
Language
English
Material Type
Ebook
Call Number
GK 650 STE 2020
URLs
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BCW 693 Caring for yourself after the loss of your baby

https://bcch.andornot.com/en/permalink/catalog111829
Maternal Newborn Program. [Vancouver, BC?]: BC Women's Hospital & Health Centre , 2020.
URL
http://www.cw.bc.ca/library/pdf/pamphlets/BCW693_Caringforyourselfafterthelossofyourbaby.pdf
Material Type
Handout
Online
Call Number
BCW693
This booklet provides information on what to expect physically and emotionally as you deal with the immediate stages of grief in the hours, days and weeks after giving birth.; This booklet is a companion to the bcwomens.ca website.; Keywords have been highlighted in each section under 'resources + …
  1 image     1 url  
URL
http://www.cw.bc.ca/library/pdf/pamphlets/BCW693_Caringforyourselfafterthelossofyourbaby.pdf
Corporate Author
Maternal Newborn Program
Place of Publication
[Vancouver, BC?]
Publisher
BC Women's Hospital & Health Centre
Publication Date
2020
Physical Description
PDF: 20 p.
Subject
Grief. Bereavement
Coping with a Child's Death
Coping with Pain
Coping with Death
Abstract
This booklet provides information on what to expect physically and emotionally as you deal with the immediate stages of grief in the hours, days and weeks after giving birth.
This booklet is a companion to the bcwomens.ca website.
Keywords have been highlighted in each section under 'resources + support' to help you find related information.
Language
English
Material Type
Handout
Online
Call Number
BCW693
Images
URLs
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Caring for a child with fever: Advice for parents and caregivers

https://bcch.andornot.com/en/permalink/catalog112333
Emergency Department. [Vancouver, BC?]: BC Children's Hospital , 2012.
URL
http://www.cw.bc.ca/library/pdf/pamphlets/BCCH1002_CaringForChildWithFever_2012.pdf
Material Type
Handout
Online
Call Number
BCCH1002
This pamphlet offers advice for parents and caregivers on how to know if your child has a fever, what you can do at home, and how it's diagnosed by a doctor.
  1 image     1 url  
URL
http://www.cw.bc.ca/library/pdf/pamphlets/BCCH1002_CaringForChildWithFever_2012.pdf
Website Notes
Click the link to view or print.
Corporate Author
Emergency Department
Place of Publication
[Vancouver, BC?]
Publisher
BC Children's Hospital
Publication Date
2012
Physical Description
PDF file: 2 p.
Subject
Fever
Abstract
This pamphlet offers advice for parents and caregivers on how to know if your child has a fever, what you can do at home, and how it's diagnosed by a doctor.
Language
English
Material Type
Handout
Online
Call Number
BCCH1002
Images
URLs
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Caring for yourself after surgery to correct scoliosis

https://bcch.andornot.com/en/permalink/catalog103204
Department of Orthopedic Surgery. [Vancouver, BC?]: BC Children's Hospital , 2014.
URL
http://www.cw.bc.ca/library/pdf/pamphlets/BCCH1052_CaringForChildAfterScoliosisSurgery_2014_Sept.pdf
Material Type
Handout
Online
Call Number
BCCH1052
Describes caring for yourself after having scoliosis surgery. Includes: going back to school; care of the incision (scar); aches, pains and funny feelings; wearing braces and eating well.
  1 image     1 url  
URL
http://www.cw.bc.ca/library/pdf/pamphlets/BCCH1052_CaringForChildAfterScoliosisSurgery_2014_Sept.pdf
Website Notes
click on the link below to view/print
Corporate Author
Department of Orthopedic Surgery
Place of Publication
[Vancouver, BC?]
Publisher
BC Children's Hospital
Publication Date
2014
Physical Description
PDF file
Subject
Scoliosis. Lordosis
Surgery-Coping
Abstract
Describes caring for yourself after having scoliosis surgery. Includes: going back to school; care of the incision (scar); aches, pains and funny feelings; wearing braces and eating well.
Language
English
Material Type
Handout
Online
Call Number
BCCH1052
Images
URLs
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Caring for your child after cleft palate surgery

https://bcch.andornot.com/en/permalink/catalog103355
Cleft Palate Program. [Vancouver, BC?]: BC Children's Hospital , 2009.
URL
http://www.cw.bc.ca/library/pdf/pamphlets/BCCH1216_CleftPalateSurgery_2009_Apr.pdf
Material Type
Handout
Online
Call Number
BCCH1216
Information on how to care for your child after cleft palate surgery including feeding, mouth care, ear and throat care, and pain management.
  1 image     1 url  
URL
http://www.cw.bc.ca/library/pdf/pamphlets/BCCH1216_CleftPalateSurgery_2009_Apr.pdf
Corporate Author
Cleft Palate Program
Place of Publication
[Vancouver, BC?]
Publisher
BC Children's Hospital
Publication Date
2009
Subject
Cleft Lip. Cleft Palate
Home Care-Children
Surgery-Coping
Craniofacial Conditions
Abstract
Information on how to care for your child after cleft palate surgery including feeding, mouth care, ear and throat care, and pain management.
Language
English
Material Type
Handout
Online
Call Number
BCCH1216
Images
URLs
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Caring for your child after cleft lip surgery

https://bcch.andornot.com/en/permalink/catalog103356
Cleft Palate Program. [Vancouver, BC?]: BC Children's Hospital , 2009.
URL
http://www.cw.bc.ca/library/pdf/pamphlets/BCCH1217_CleftLipSurgery_2009_Apr.pdf
Material Type
Handout
Online
Call Number
BCCH1217
Information on how to care for your child after cleft lip surgery including feeding, healing and incision care, pain management, and orthodontic appliances.
  1 image     1 url  
URL
http://www.cw.bc.ca/library/pdf/pamphlets/BCCH1217_CleftLipSurgery_2009_Apr.pdf
Corporate Author
Cleft Palate Program
Place of Publication
[Vancouver, BC?]
Publisher
BC Children's Hospital
Publication Date
2009
Subject
Cleft Lip. Cleft Palate
Home Care-Children
Surgery-Coping
Craniofacial Conditions
Abstract
Information on how to care for your child after cleft lip surgery including feeding, healing and incision care, pain management, and orthodontic appliances.
Language
English
Material Type
Handout
Online
Call Number
BCCH1217
Images
URLs
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Caring for your child's chest wound

https://bcch.andornot.com/en/permalink/catalog112249
Cardiology Department. [Vancouver, BC?]: BC Children's Hospital , 2017.
URL
http://www.cw.bc.ca/library/PDF/pamphlets/BCCH1638CaringForChildsChestWound.pdf
Material Type
Handout
Online
Call Number
BCCH1638
This one page pamphlet describes the recommended steps to care for your child's chest wound.
  1 image     1 url  
URL
http://www.cw.bc.ca/library/PDF/pamphlets/BCCH1638CaringForChildsChestWound.pdf
Corporate Author
Cardiology Department
Place of Publication
[Vancouver, BC?]
Publisher
BC Children's Hospital
Publication Date
2017
Physical Description
PDF file: 1 p.
Subject
Heart/Heart Diseases-Children
Heart/Heart Diseases. Cardiology
Heart Diseases-Surgery. Coronary Surgery
Surgery-Coping
Abstract
This one page pamphlet describes the recommended steps to care for your child's chest wound.
Language
English
Material Type
Handout
Online
Call Number
BCCH1638
Images
URLs
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Finding freedom in illness: A guide to cultivating deep well-being through mindfulness and self-compassion

https://bcch.andornot.com/en/permalink/catalog122283
Fernando, Peter. Boulder: Shambhala Publications, Inc. , 2016.
Material Type
Book
Call Number
EF 850 FER 2016
Availability
1 copy, 1 available
"'Let your illness be your spiritual teacher!' Make a statement like that to someone who's struggled for years with, say, rheumatoid arthritis, and be prepared for an eye roll (at best). To Peter Fernando's credit, he makes that statement, and no such impulse arises. We believe him because he's bee…
Author
Fernando, Peter
Place of Publication
Boulder
Publisher
Shambhala Publications, Inc.
Publication Date
2016
Physical Description
Softcover ; ix, 222 p.
Subject
Mindfulness
Mind/Body
Chronic Illness
Chronic Pain
Emotional Health
Self-Concept (includes self-esteem)
Abstract
"'Let your illness be your spiritual teacher!' Make a statement like that to someone who's struggled for years with, say, rheumatoid arthritis, and be prepared for an eye roll (at best). To Peter Fernando's credit, he makes that statement, and no such impulse arises. We believe him because he's been there himself and because he backs up the statements with his own real experiences and with real wisdom from the Buddhist teachings. Fernando starts by defusing the pernicious belief that anyone is somehow responsible for their illness: you're not "wrong" for being sick. Then, having gotten past self-blame, one can begin to learn self-kindness. From there, one moves to mindfulness practices and cultivating body awareness?even if body awareness is distasteful when the body isn't behaving the way you like. Further topics include getting intimate with dark emotions (fear, despair, the scary future, frustration, grief, etc.), learning equanimity (rejoicing in the good fortune of those who don't share your suffering), cultivating healthy relationships in the midst of everything, and practical advice for living with pain. Each chapter comes with one or more practices or guided meditations for putting the teachings into practice"--from publisher.
ISBN
9781611802634
Language
English
Material Type
Book
Call Number
EF 850 FER 2016

Copies

BC Children's and Women's Family Library Available
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Caring for your child with croup: Advice for parents and caregivers

https://bcch.andornot.com/en/permalink/catalog112334
Emergency Department. [Vancouver, BC?]: BC Children's Hospital , 2012.
URL
http://www.cw.bc.ca/library/pdf/pamphlets/BCCH1651_Croup_2012.pdf
Material Type
Handout
Online
Call Number
BCCH1651
This pamphlet offers advice to parents and caregivers on how to care for your child with croup. It explains croup, the symptoms, what you can do at home, how it's diagnosed and also how it's treated.
  1 image     1 url  
URL
http://www.cw.bc.ca/library/pdf/pamphlets/BCCH1651_Croup_2012.pdf
Website Notes
Click the link to view or print.
Corporate Author
Emergency Department
Place of Publication
[Vancouver, BC?]
Publisher
BC Children's Hospital
Publication Date
2012
Physical Description
PDF file: 2 p.
Subject
Viral Diseases
Abstract
This pamphlet offers advice to parents and caregivers on how to care for your child with croup. It explains croup, the symptoms, what you can do at home, how it's diagnosed and also how it's treated.
Language
English
Material Type
Handout
Online
Call Number
BCCH1651
Images
URLs
Show Less

Caring for your colicky baby: Advice for parents & caregivers

https://bcch.andornot.com/en/permalink/catalog112373
Emergency Department. [Vancouver, BC?]: BC Children's Hospital , 2012.
URL
http://www.cw.bc.ca/library/pdf/pamphlets/BCCH1299_Colic_2012.pdf
Material Type
Handout
Online
Call Number
BCCH1299
Advice sheet for parents on how to take care of your baby when he or she has colic. Includes tips on what you can do to help, when to see your family doctor, and when to bring your baby to the Emergency Deparment.
  1 image     1 url  
URL
http://www.cw.bc.ca/library/pdf/pamphlets/BCCH1299_Colic_2012.pdf
Website Notes
Click the link to view or print.
Corporate Author
Emergency Department
Place of Publication
[Vancouver, BC?]
Publisher
BC Children's Hospital
Publication Date
2012
Physical Description
PDF file: 2 p.
Subject
Infants
Parenting
Abstract
Advice sheet for parents on how to take care of your baby when he or she has colic. Includes tips on what you can do to help, when to see your family doctor, and when to bring your baby to the Emergency Deparment.
Language
English
Material Type
Handout
Online
Call Number
BCCH1299
Images
URLs
Show Less

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