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Young, sick, and invisible: A skeptic's journey with chronic illness

https://bcch.andornot.com/en/permalink/catalog122237
Bula, Ania. Durham, North Carolina: Pitchstone Publishing , 2016.
Material Type
Book
Call Number
EF 800 BUL 2016
Availability
2 copies, 2 available
"Drawing on her own deeply personal experiences, Ania Bula explores what it is like to live with unseen chronic disabilities. She paints a vibrant picture of what it is like to be diagnosed with two life-long debilitating conditions as a young adult and relates the challenges and frustrations of de…
Author
Bula, Ania
Place of Publication
Durham, North Carolina
Publisher
Pitchstone Publishing
Publication Date
2016
Physical Description
Softcover ; 224 p.
Subject
Chronic Illness
Abstract
"Drawing on her own deeply personal experiences, Ania Bula explores what it is like to live with unseen chronic disabilities. She paints a vibrant picture of what it is like to be diagnosed with two life-long debilitating conditions as a young adult and relates the challenges and frustrations of dealing with predatory alternative medicine practitioners, arrogant doctors, indifferent bureaucracies, and well-meaning friends and family who always seem to say either the wrong thing-or nothing at all. As she discovered, suddenly everyone's aunt is a health expert and everyone's fad diet a cure. Making matters worse, her physical torment quickly translated into mental stresses. Relationships became strained, while others, including all-important romantic ones, never had a chance to start at all. Wading through a constant stream of ignorance and lies, in a desperate attempt to find peace, to stop the pain, and to return to a more normal life, she submits to being stuffed with powders and magic potions, poked and prodded, and even "faith healed." With honesty and humor, she shares her journey of pain, suffering, and, ultimately, coping, both to help others gain some understanding about what it is like to live with chronic illness-and to help those who might similarly suffer feel less alone, so that they too might start living again.
"Drawing on the author's personal experiences with her own physical and mental health struggles, the book explores what it is like to live with chronic disabilities as a young adult"-- Provided by publisher
Notes
Recommended by CCDP
ISBN
9781634310734
Language
English
Material Type
Book
Call Number
EF 800 BUL 2016

Copies

copy 1 BC Children's and Women's Family Library Available
copy 2 BC Children's and Women's Family Library Available
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When someone you love has a chronic illness: Hope and help for those providing support

https://bcch.andornot.com/en/permalink/catalog122265
McClintock Greenberg, Tamara. Springville, UT: Plain Sight Publishing , 2012.
Material Type
Book
Call Number
EF 800 GRE 2012
Availability
1 copy, 1 available
"Dr. Tamara Greenberg offers hope and practical advice to those impacted by a loved one's illness with this new book., "When Someone You Love Has a Chronic Illness: Hope and Help for Those Providing Support. Inside, Dr. Greenberg provides easy-to-understand explanations for complicated feelings and…
Author
McClintock Greenberg, Tamara
Place of Publication
Springville, UT
Publisher
Plain Sight Publishing
Publication Date
2012
Physical Description
Softcover ; xiv, 157 p.
Subject
Chronic Illness
Abstract
"Dr. Tamara Greenberg offers hope and practical advice to those impacted by a loved one's illness with this new book., "When Someone You Love Has a Chronic Illness: Hope and Help for Those Providing Support. Inside, Dr. Greenberg provides easy-to-understand explanations for complicated feelings and behaviors and offers pragmatic strategies for coping effectively and serving your loved one in this time of need.
"Learn how to talk to someone who is ill, what not to do, how to address your loved ones who aren't taking care of themselves, how to help someone in physical pain, and more.
"Above all, Dr. Greenberg delivers important tools for managing the normal anxiety we all feel when someone we love is ill." --From back cover
ISBN
9781599559391
Language
English
Material Type
Book
Call Number
EF 800 GRE 2012

Copies

BC Children's and Women's Family Library Available
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The chronic pain and illness workbook for teens : CBT and mindfulness-based practices to turn the volume down on pain

https://bcch.andornot.com/en/permalink/catalog122615
Zoffness, Rachel, Krane, Elliot J. New Harbinger Publications , 2019.
URL
https://ebookcentral.proquest.com/lib/cwhbc/detail.action?docID=5820414
Material Type
Ebook
Call Number
YOUTH FM 850 ZOF 2019e
This workbook blends cognitive behavioral therapy (CBT) and mindfulness-based stress reduction (MBSR). You will learn how pain affects both your mind and body, how negative emotions can make pain worse, and strategies to help you turn the volume down on your pain, so you can go back to enjoying act…
  1 url  
URL
https://ebookcentral.proquest.com/lib/cwhbc/detail.action?docID=5820414
Author
Zoffness, Rachel
Krane, Elliot J.
Publisher
New Harbinger Publications
Publication Date
2019
Physical Description
eBook (176 pages)
Subject
Coping with Pain
Chronic Pain
Coping with Chronic Illness Young Adult
Abstract
This workbook blends cognitive behavioral therapy (CBT) and mindfulness-based stress reduction (MBSR). You will learn how pain affects both your mind and body, how negative emotions can make pain worse, and strategies to help you turn the volume down on your pain, so you can go back to enjoying activities that you love. You'll also learn mindfulness and relaxation exercises, including belly breathing and body scan to help manage pain in the moment. The exercises and strategies in this book are rooted in research, fun to learn, and easy to practice. For ages 12+.
ISBN
9781684033539
Language
English
Material Type
Ebook
Call Number
YOUTH FM 850 ZOF 2019e
URLs
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The chronic pain and illness workbook for teens : CBT and mindfulness-based practices to turn the volume down on pain

https://bcch.andornot.com/en/permalink/catalog123121
Zoffness, Rachel, Krane, Elliot J. New Harbinger Publications , 2019.
Material Type
Book
Call Number
YOUTH FM 850 ZOF 2019
Availability
1 copy, 0 available
This workbook blends cognitive behavioral therapy (CBT) and mindfulness-based stress reduction (MBSR). You will learn how pain affects both your mind and body, how negative emotions can make pain worse, and strategies to help you turn the volume down on your pain, so you can go back to enjoying act…
Author
Zoffness, Rachel
Krane, Elliot J.
Publisher
New Harbinger Publications
Publication Date
2019
Physical Description
155 pages
Subject
Coping with Pain
Chronic Pain
Coping with Chronic Illness Young Adult
Abstract
This workbook blends cognitive behavioral therapy (CBT) and mindfulness-based stress reduction (MBSR). You will learn how pain affects both your mind and body, how negative emotions can make pain worse, and strategies to help you turn the volume down on your pain, so you can go back to enjoying activities that you love. You'll also learn mindfulness and relaxation exercises, including belly breathing and body scan to help manage pain in the moment. The exercises and strategies in this book are rooted in research, fun to learn, and easy to practice. For ages 12+.
ISBN
9781684033522
Language
English
Material Type
Book
Call Number
YOUTH FM 850 ZOF 2019

Copies

Copy 1 BC Children's and Women's Family Library On Loan, due Thursday, June 6, 2024
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How to live well with chronic pain and illness: A mindful guide

https://bcch.andornot.com/en/permalink/catalog122440
Bernhard, Toni. Somerville, MA: Wisdom Publications , 2015.
Material Type
Book
Call Number
EF 850 BER 2015
Availability
2 copies, 2 available
Comfort, understanding, and advice for those who are suffering?and those who care for them.; Chronic illness creates many challenges, from career crises and relationship issues to struggles with self-blame, personal identity, and isolation. Beloved author Toni Bernhard addresses these challenges an…
Author
Bernhard, Toni
Place of Publication
Somerville, MA
Publisher
Wisdom Publications
Publication Date
2015
Physical Description
337 pages
Subject
Coping with Chronic Illness
Chronic Illness
Chronic Pain
Abstract
Comfort, understanding, and advice for those who are suffering?and those who care for them.
Chronic illness creates many challenges, from career crises and relationship issues to struggles with self-blame, personal identity, and isolation. Beloved author Toni Bernhard addresses these challenges and many more, using practical examples to illustrate how mindfulness, equanimity, and compassion can help readers make peace with a life turned upside down.
In her characteristic conversational style, Bernhard shows how to cope and make the most of life despite the challenges of chronic illness. Benefit from:
? Mindfulness exercises to mitigate physical and emotional pain
? Concrete advice for negotiating the everyday hurdles of medical appointments, household chores, and social obligations
? Tools for navigating the strains illness can place on relationships
Several chapters are directed toward family and friends of the chronically ill, helping them to understand what their loved one is going through and how they can help.
Humorous and empathetic, Bernhard shares her own struggles and setbacks with unflinching honesty, offering invaluable support in the search to find peace and well-being.
ISBN
9781614292487
Language
English
Material Type
Book
Call Number
EF 850 BER 2015

Copies

copy 1 BC Children's and Women's Family Library Available
copy 2 BC Children's and Women's Family Library Available
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Easy for you to say: Q & A's for teens living with chronic illness or disability

https://bcch.andornot.com/en/permalink/catalog112348
Kaufman, Miriam. [Toronto, ON]: Firefly Books Ltd , 2012. 3rd ed.
Material Type
Book
Call Number
YOUTH EF 850.6 KAU 2012
Availability
1 copy, 1 available
In the 3rd edition, Dr. Miriam Kaufman addresses important topics for teens who are living with chronic conditions or disabilities. The topics include: Anemia, Cancer, Cerebral Palsy, Crohn's Disease, Deafness, Diabetes, Head Injury, Heart Disease, Hemophilia, HIV, Lupus, Muscular Dystrophy, Sickle…
Author
Kaufman, Miriam
Edition
3rd ed
Place of Publication
[Toronto, ON]
Publisher
Firefly Books Ltd
Publication Date
2012
Physical Description
Softcover: 309 p.
Subject
Coping with Chronic Illness
Young Adults
Physical Disability-Coping
Physical Disability. Physically Challenged
Relationships
Abstract
In the 3rd edition, Dr. Miriam Kaufman addresses important topics for teens who are living with chronic conditions or disabilities. The topics include: Anemia, Cancer, Cerebral Palsy, Crohn's Disease, Deafness, Diabetes, Head Injury, Heart Disease, Hemophilia, HIV, Lupus, Muscular Dystrophy, Sickle Cell Anemia, Seizures, Spinal Bifida, Spinal Cord Injuries, and Thyroid Disease.
ISBN
9781770850996
Language
English
Material Type
Book
Call Number
YOUTH EF 850.6 KAU 2012

Copies

Copy 1 BC Children's and Women's Family Library Available
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The chronic illness workbook : Strategies and solutions for taking back your life

https://bcch.andornot.com/en/permalink/catalog122395
Fennell, Patricia A. Latham, New York: Albany Health Management Publishing , 2012.
Material Type
Book
Call Number
EF 800 FEN 2012
Availability
2 copies, 2 available
This book "brings clarity and order to what feels like an unmanageable and isolating experience. It shows both those who are ill and those who care for them how to live a full and meaningful life despite undeniable difficulties. Using her extensive experience with chronic illness patients, Patricia…
  1 image  
Author
Fennell, Patricia A.
Place of Publication
Latham, New York
Publisher
Albany Health Management Publishing
Publication Date
2012
Physical Description
Softcover ; 253 p.
Subject
Chronic Illness
Abstract
This book "brings clarity and order to what feels like an unmanageable and isolating experience. It shows both those who are ill and those who care for them how to live a full and meaningful life despite undeniable difficulties. Using her extensive experience with chronic illness patients, Patricia Fennell has created an original, comprehensive, research-validated approach that considers not only the physical aspects of chronic illness, but the psychological, social, and economic aspects as well"--from the Publisher
ISBN
9780979640711
Language
English
Material Type
Book
Call Number
EF 800 FEN 2012

Copies

copy 1 BC Children's and Women's Family Library Available
copy 2 BC Children's and Women's Family Library Available
Images
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Quand la vie se fragilise: Un guide pour vous et vos proches aidants

https://bcch.andornot.com/en/permalink/catalog114657
Cardinal Remete, France. Montreal, QC: Multimondes Inc. , 2016.
Material Type
Book
Call Number
EF 850 CAR 2016
Availability
1 copy, 1 available
Author
Cardinal Remete, France
Place of Publication
Montreal, QC
Publisher
Multimondes Inc.
Publication Date
2016
Physical Description
Paperback, 311 p.
Subject
Chronic Illness
Coping with Chronic Illness in the Family
ISBN
9782895444916
Language
French
Material Type
Book
Call Number
EF 850 CAR 2016

Copies

copy 1 BC Children's and Women's Family Library Available
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Understanding living with a chronic illness: Written by doctors for kids

https://bcch.andornot.com/en/permalink/catalog121225
Renfrew, Ruth, deLoache, Shawn. New York, NY: Jumo , 2018.
Material Type
Book
Call Number
JUNIOR EF 800 REN 2018
Availability
1 copy, 1 available
Comic book featuring Medikidz, superhero experts on health and illness. Explains how chronic illness can affect individuals and their families.
Author
Renfrew, Ruth
deLoache, Shawn
Editor
Medikidz USA Inc.
Place of Publication
New York, NY
Publisher
Jumo
Publication Date
2018
Physical Description
Softcover; 16 p.
Subject
Chronic Illness
Abstract
Comic book featuring Medikidz, superhero experts on health and illness. Explains how chronic illness can affect individuals and their families.
Language
English
Material Type
Book
Call Number
JUNIOR EF 800 REN 2018

Copies

copy 1 BC Children's and Women's Family Library Available
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When a child has diabetes

https://bcch.andornot.com/en/permalink/catalog106216
Daneman, Denis, Barrett, Shaun, Harrington, Jennifer. [Toronto, ON]: Robert Rose Inc. , 2018. 4th.
Material Type
Book
Call Number
FL 800.5 DAN 2018
Availability
1 copy, 1 available
"This essential guide, with new content based on cutting-edge research and current standards for treatment, is comprehensive, accessible and supportive, and truly aims to help parents, caregivers and children understand diabetes and live happy, healthy lives." [excerpted from cover]
Author
Daneman, Denis
Barrett, Shaun
Harrington, Jennifer
Corporate Author
Hospital for Sick Children
Edition
4th
Place of Publication
[Toronto, ON]
Publisher
Robert Rose Inc.
Publication Date
2018
Physical Description
239 pages : illustrations, diagrammes ; 25 cm
Subject
Diabetes Mellitus-Children
Diabetes Mellitus-Young Adults
Diabetes Mellitus-Coping
Diabetes Mellitus-Diet
Diabetes
Insulin-Dependent Diabetes Mellitus. Type 1 Diabetes
Abstract
"This essential guide, with new content based on cutting-edge research and current standards for treatment, is comprehensive, accessible and supportive, and truly aims to help parents, caregivers and children understand diabetes and live happy, healthy lives." [excerpted from cover]
ISBN
9780778806134
0778806138
Language
English
Material Type
Book
Call Number
FL 800.5 DAN 2018

Copies

copy 1 BC Children's and Women's Family Library Available
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Reaching out to your children when cancer comes to your family: A guide for parents

https://bcch.andornot.com/en/permalink/catalog114589
Slakov, June. [Vancouver, BC?]: BC Cancer Agency , 2016.
Material Type
Book
Call Number
FE 555 SLA 2016
Availability
1 copy, 1 available
This book is for the parents, grandparents, aunts and uncles, teachers, or other support persons, who play a key role in helping children and teens who have a family member living with cancer.
Author
Slakov, June
Place of Publication
[Vancouver, BC?]
Publisher
BC Cancer Agency
Publication Date
2016
Physical Description
Spiral bound, 52 p., ill.
Subject
Children with Cancer-Coping
Children with Cancer-Coping for the Family
Cancer
Abstract
This book is for the parents, grandparents, aunts and uncles, teachers, or other support persons, who play a key role in helping children and teens who have a family member living with cancer.
ISBN
9781896624280
Language
English
Material Type
Book
Call Number
FE 555 SLA 2016

Copies

copy 1 BC Children's and Women's Family Library Available
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Why does mommy hurt? Helping children cope with the challenges of having a caregiver with chronic pain, fibromyalgia,or autoimmune disease

https://bcch.andornot.com/en/permalink/catalog122253
Christy, Elizabeth M., Miller, James G. (illustrator). Denver, Colorado: Outskirts Press, Inc. , 2014.
Material Type
Book
Call Number
JUNIOR EF 850.5 CHR 2014
Availability
1 copy, 1 available
The children of people with chronic illness and pain suffer quietly. "Why Does Mommy Hurt?" is a joyful, yet honest, portrayal of family life burdened with chronic illness. This is a delightful story told by a young boy learning to understand and cope with his mother's illness. The story creates na…
Author
Christy, Elizabeth M.
Miller, James G. (illustrator)
Place of Publication
Denver, Colorado
Publisher
Outskirts Press, Inc.
Publication Date
2014
Physical Description
Softcover ; [18 p.], illustrations
Subject
Chronic Illness
Chronic Pain
Fibromyalgia. Fibrositis
Coping with Chronic Illness-Children
Abstract
The children of people with chronic illness and pain suffer quietly. "Why Does Mommy Hurt?" is a joyful, yet honest, portrayal of family life burdened with chronic illness. This is a delightful story told by a young boy learning to understand and cope with his mother's illness. The story creates natural opportunities for families to talk about both the symptoms of chronic illness, and how they affect family life. Even more importantly, the story puts power into the hands of the children. It also offers a helpful "Tips and Resources" section for parents! This book is appropriate for a wide-variety of illnesses associated with chronic pain, such as: Lupus, Lyme Disease, ME, CFS, Fibromyalgia, Arthritis, Multiple Sclerosis, Autoimmune Disease, and many others.
Notes
Recommended by CCDP
ISBN
9781478732969
Language
English
Material Type
Book
Call Number
JUNIOR EF 850.5 CHR 2014

Copies

BC Children's and Women's Family Library Available
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Trouble with illness, The: How illness and disability affect relationships

https://bcch.andornot.com/en/permalink/catalog122269
Segal, Julia. Philadelphia, PA: Jessica Kingsley Publishers , 2017.
Material Type
Book
Call Number
EF 800 SEG 2017
Availability
2 copies, 2 available
This impressively honest book explores the effects a challenging disability or illness can have on the mind and personal relationships, and how friends, family and professionals can help.; Illness or disability can isolate people by creating vast differences in their experiences where previously th…
Author
Segal, Julia
Place of Publication
Philadelphia, PA
Publisher
Jessica Kingsley Publishers
Publication Date
2017
Physical Description
Softcover ; 312 p.
Subject
Chronic Illness
Disabilities
Relationships
Abstract
This impressively honest book explores the effects a challenging disability or illness can have on the mind and personal relationships, and how friends, family and professionals can help.
Illness or disability can isolate people by creating vast differences in their experiences where previously there were none. Friends and family can find themselves saying the wrong thing or awkwardly avoiding topics as a result. This book takes a candid look at how discomfort caused by an illness can strain a relationship between partners, families and professionals, as well as how understanding feelings of guilt or shame can transform a situation or relationship.
The insights and advice offered in this book can help children and adolescents overcome anxiousness caused by a parent's condition, improve communication between partners and family members, and increase professionals' awareness of how a client feels about their situation.
ISBN
9781785923326
Language
English
Material Type
Book
Call Number
EF 800 SEG 2017

Copies

copy 1 BC Children's and Women's Family Library Available
copy 2 BC Children's and Women's Family Library Available
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How to be sick: A buddhist-inspired guide for the chronically ill and their caregivers

https://bcch.andornot.com/en/permalink/catalog122239
Bernhard, Toni. Somerville, MA: Wisdom Publications , 2018.
Material Type
Book
Call Number
EF 800 BER 2010
"This life-affirming, instructive and thoroughly inspiring book is a must-read for anyone who is, or who might one day be, sick. And it can also be the perfect gift of guidance, encouragement, and uplifting inspiration to family, friends, and loved ones struggling with the many terrifying or dishea…
Author
Bernhard, Toni
Place of Publication
Somerville, MA
Publisher
Wisdom Publications
Publication Date
2018
Physical Description
Softcover ; xvii, 191 p.
Subject
Chronic Illness
Emotional Health
Mental Health
Abstract
"This life-affirming, instructive and thoroughly inspiring book is a must-read for anyone who is, or who might one day be, sick. And it can also be the perfect gift of guidance, encouragement, and uplifting inspiration to family, friends, and loved ones struggling with the many terrifying or disheartening life changes that come so close on the heels of a diagnosis of a chronic condition or even life-threatening illness." --Publisher
Notes
Recommended by CCDP
ISBN
9780861716265
Language
English
Material Type
Book
Call Number
EF 800 BER 2010
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In Sickness as in Health: Helping Couples Cope with the Complexities of Illness

https://bcch.andornot.com/en/permalink/catalog124001
Kivowitz, Barbara, Weisman, Roanne. Petaluma, CA: Roundtree Press , 2013.
Material Type
Book
Call Number
EF 800 KIV 2013
Availability
1 copy, 1 available
For those who find themselves at the intersection of lifetime love and overwhelming obligation, the right path is often painful and difficult to find. When illness invades the couple relationship, partners ask themselves and each other some really hard questions: "What do I want to do for this pers…
Author
Kivowitz, Barbara
Weisman, Roanne
Place of Publication
Petaluma, CA
Publisher
Roundtree Press
Publication Date
2013
Physical Description
Softcover; 192 pages
Subject
Chronic Illness
Abstract
For those who find themselves at the intersection of lifetime love and overwhelming obligation, the right path is often painful and difficult to find. When illness invades the couple relationship, partners ask themselves and each other some really hard questions: "What do I want to do for this person whom I have loved for many years?" "How much of my life do I give up to take care of my beloved?" "How do I sit by my beloved's side and watch her suffer?" While writing In Sickness as in Health, authors Barbara Kivowitz and Roanne Weisman learned through interviews with many couples, as well as with medical, spiritual, legal, rehabilitation and psychological experts, that couples find their own ways to deal with illnesses and catastrophic injuries.
ISBN
9781937359133
Language
English
Material Type
Book
Call Number
EF 800 KIV 2013

Copies

copy 1 BC Children's and Women's Family Library Available
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Helping your child manage medical and surgical procedures [Vietnamese]

https://bcch.andornot.com/en/permalink/catalog112461
Child Life Department. [Vancouver, BC?]: BC Children's Hospital , 2013.
URL
http://www.cw.bc.ca/library/pdf/pamphlets/BCCH1209V_HelpingYourChildManageSurgical_2013.pdf
Material Type
Handout
Online
Call Number
BCCH1209V
Written in Vietnamese, this pamphlet includes helpful tips for parents about helping children cope with medical procedures and surgery.
  1 image     1 url  
URL
http://www.cw.bc.ca/library/pdf/pamphlets/BCCH1209V_HelpingYourChildManageSurgical_2013.pdf
Website Notes
Click on the link above to view/print.
Corporate Author
Child Life Department
Place of Publication
[Vancouver, BC?]
Publisher
BC Children's Hospital
Publication Date
2013
Physical Description
PDF file: 2 p.
Subject
Surgery-Coping
Abstract
Written in Vietnamese, this pamphlet includes helpful tips for parents about helping children cope with medical procedures and surgery.
Language
Vietnamese
Material Type
Handout
Online
Call Number
BCCH1209V
Images
URLs
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Helping your child manage medical and surgical procedures [Traditional Chinese]

https://bcch.andornot.com/en/permalink/catalog112460
Child Life Department. [Vancouver, BC?]: BC Children's Hospital , 2013.
URL
http://www.cw.bc.ca/library/pdf/pamphlets/BCCH1209TCh_HelpingYourChildManageSurgical_2013.pdf
Material Type
Pamphlet
Online
Call Number
BCCH1209TCh
Written in Traditional Chinese, this pamphlet includes helpful tips for parents about helping children cope with medical procedures and surgery.
  1 image     1 url  
URL
http://www.cw.bc.ca/library/pdf/pamphlets/BCCH1209TCh_HelpingYourChildManageSurgical_2013.pdf
Website Notes
Click on the link above to view/print.
Corporate Author
Child Life Department
Place of Publication
[Vancouver, BC?]
Publisher
BC Children's Hospital
Publication Date
2013
Physical Description
PDF file: 2 p.
Subject
Surgery-Coping
Abstract
Written in Traditional Chinese, this pamphlet includes helpful tips for parents about helping children cope with medical procedures and surgery.
Language
Chinese-Traditional
Material Type
Pamphlet
Online
Call Number
BCCH1209TCh
Images
URLs
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Complex Regional Pain Syndrome (CRPS) explained: For teenagers, by teenagers

https://bcch.andornot.com/en/permalink/catalog111592
Lauder, G.R., Massey, Roslyn. Bloomington, IN: Xlibris Corporation , 2010.
Material Type
Book
Call Number
YOUTH FM 630 LAU 2010a
Availability
11 copies, 11 available
This book provides clear information for teenagers who develop Complex Regional Pain Syndrome (CRPS). It can be used as a tool to aid the early recognition of CRPS and implement the necessary team approach to management. Medical terms have been explained in a way that can be easily understood. The …
  1 image  
Author
Lauder, G.R.
Massey, Roslyn
Place of Publication
Bloomington, IN
Publisher
Xlibris Corporation
Publication Date
2010
Physical Description
Softcover, 100 pages.
Subject
Reflex Sympathetic Dystrophy. Causalgia
Coping with Pain
Coping with Chronic Illness Young Adult
Pain
Abstract
This book provides clear information for teenagers who develop Complex Regional Pain Syndrome (CRPS). It can be used as a tool to aid the early recognition of CRPS and implement the necessary team approach to management. Medical terms have been explained in a way that can be easily understood. The authors asked a focus group of teenagers? which included those who have been treated for CRPS ? to provide their feedback.
ISBN
9781453589953
Language
English
Material Type
Book
Call Number
YOUTH FM 630 LAU 2010a

Copies

Copy 1 BC Children's and Women's Family Library Available
Copy 2 BC Children's and Women's Family Library Available
Copy 3 BC Children's and Women's Family Library Available
Copy 4 BC Children's and Women's Family Library Available
Copy 5 BC Children's and Women's Family Library Available
Copy 6 BC Children's and Women's Family Library Available
Copy 7 BC Children's and Women's Family Library Available
Copy 8 BC Children's and Women's Family Library Available
Copy 10 BC Children's and Women's Family Library Available
Copy 11 BC Children's and Women's Family Library Available
copy 9 BC Children's and Women's Family Library Available
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But you look good: How to encourage and understand people living with illness and pain

https://bcch.andornot.com/en/permalink/catalog122282
Connell, Wayne, Connell, Sherri. Parker, Colorado: Invisible Disabilities Association , 2014.
Material Type
Book
Call Number
FM 830 CON 2014
Availability
2 copies, 2 available
"Do your loved ones have a hard time understanding your chronic illness or pain, because to them you LOOK fine? But You LOOK Good is a book that gives those living with chronic illness and pain a voice about how they feel, what they need and how others can be an encouragement to them. It is a conv…
Author
Connell, Wayne
Connell, Sherri
Place of Publication
Parker, Colorado
Publisher
Invisible Disabilities Association
Publication Date
2014
Physical Description
Softcover ; 85 p.
Subject
Chronic Illness
Chronic Pain
Abstract
"Do your loved ones have a hard time understanding your chronic illness or pain, because to them you LOOK fine? But You LOOK Good is a book that gives those living with chronic illness and pain a voice about how they feel, what they need and how others can be an encouragement to them. It is a convenient, informative way to educate loved ones about what people living with ongoing illness and pain struggle with, fight for and need from their friends and family. It is easy to read, gives practical ideas on how loved ones can be supportive and is not too long for readers to lose interest!"--from publisher.
ISBN
9780692258453
Language
English
Material Type
Book
Call Number
FM 830 CON 2014

Copies

copy 1 BC Children's and Women's Family Library Available
copy 2 BC Children's and Women's Family Library Available
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Giving Midazolam in the nose when your child has prolonged seizures

https://bcch.andornot.com/en/permalink/catalog111599
BCCH Neurosciences Nursing Department. [Vancouver, BC?]: BC Children's Hospital , 2010.
URL
http://www.cw.bc.ca/library/pdf/Pamphlets/BCCH1583_GivingMidazolamNose_2011.pdf
Material Type
Pamphlet
Call Number
BCCH1583
This pamphlet was developed by the Neurosciences Nursing Department at BC Children's Hospital to provide information to families about administering Midazolam in the nose.
  1 image     1 url  
URL
http://www.cw.bc.ca/library/pdf/Pamphlets/BCCH1583_GivingMidazolamNose_2011.pdf
Website Notes
Please click on the link above to view file.
Corporate Author
BCCH Neurosciences Nursing Department
Place of Publication
[Vancouver, BC?]
Publisher
BC Children's Hospital
Publication Date
2010
Physical Description
1 PDF file: p.1
Subject
Drug Therapy-Children
Abstract
This pamphlet was developed by the Neurosciences Nursing Department at BC Children's Hospital to provide information to families about administering Midazolam in the nose.
Language
English
Material Type
Pamphlet
Call Number
BCCH1583
Images
URLs
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Giving Midazolam in the cheek when your child has prolonged seizures

https://bcch.andornot.com/en/permalink/catalog111598
BCCH Neurosciences Nursing Department. [Vancouver, BC?]: BC Children's Hospital , 2010.
URL
http://www.cw.bc.ca/library/pdf/Pamphlets/BCCH1584_GivingMidazolamInTheCheek_2011.pdf
Material Type
Pamphlet
Call Number
BCCH1584
This pamphlet was developed by the Neurosciences Nursing Department at BC Children's Hospital to provide information to families about administering Midazolam in the cheek.
  1 image     1 url  
URL
http://www.cw.bc.ca/library/pdf/Pamphlets/BCCH1584_GivingMidazolamInTheCheek_2011.pdf
Website Notes
Please click on the link above to view file.
Corporate Author
BCCH Neurosciences Nursing Department
Place of Publication
[Vancouver, BC?]
Publisher
BC Children's Hospital
Publication Date
2010
Physical Description
1 PDF file: p.1
Subject
Drug Therapy-Children
Seizure Disorders-Children
Seizure Disorders-Drug Therapy
Abstract
This pamphlet was developed by the Neurosciences Nursing Department at BC Children's Hospital to provide information to families about administering Midazolam in the cheek.
Language
English
Material Type
Pamphlet
Call Number
BCCH1584
Images
URLs
Show Less

Mon enfant a une maladie chronique : Stratégies, ressources, moyens

https://bcch.andornot.com/en/permalink/catalog114193
Chartre, Marie-Eve, Gagne, Johanne. Montreal, QC: Éditions du CHU Sainte-Justine , 2014.
Material Type
Book
Call Number
EF 850.5 CHA 2014
Availability
1 copy, 1 available
Dès l?annonce du diagnostic, la maladie chronique d?un enfant devient « l?affaire » de toute la famille. Après le choc, chacun des membres de la cellule familiale doit traverser, à son rythme, le processus d?adaptation à un nouveau mode de vie conditionné par l?état de santé de l?enfant. Ce livre p…
Author
Chartre, Marie-Eve
Gagne, Johanne
Place of Publication
Montreal, QC
Publisher
Éditions du CHU Sainte-Justine
Publication Date
2014
Physical Description
Paperback, 127 p.
Subject
Coping with Chronic Illness-Children
Abstract
Dès l?annonce du diagnostic, la maladie chronique d?un enfant devient « l?affaire » de toute la famille. Après le choc, chacun des membres de la cellule familiale doit traverser, à son rythme, le processus d?adaptation à un nouveau mode de vie conditionné par l?état de santé de l?enfant. Ce livre permet aux parents de mieux comprendre les étapes de ce cheminement émotionnel et social ― pour l?enfant malade, la fratrie, la famille, le couple comme pour eux-mêmes en tant qu?individus ― et d?accompagner chacun en puisant à la fois dans les ressources personnelles et extérieures dont ils peuvent bénéficier.
ISBN
9782896196678
Language
French
Material Type
Book
Call Number
EF 850.5 CHA 2014

Copies

Copy 1 BC Children's and Women's Family Library Available
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Full Catastrophe Living: How to Cope with Stress, Pain, and Illness Using Mindfulness Meditation

https://bcch.andornot.com/en/permalink/catalog123942
Kabat-Zinn, Jon. Random House , 2013. Revised and updated edition.
Material Type
Book
Call Number
EG 225 KAB 2013
Availability
1 copy, 1 available
Stress. It can sap our energy, undermine our health if we let it, even shorten our lives. It makes us more vulnerable to anxiety and depression, disconnection and disease. Based on Jon Kabat-Zinn's renowned mindfulness-based stress reduction program, this classic, groundbreaking work - which gave …
Author
Kabat-Zinn, Jon
Edition
Revised and updated edition
Publisher
Random House
Publication Date
2013
Physical Description
Softcover; 650 pages
Subject
Mindfulness
Chronic Illness
Anxiety
Abstract
Stress. It can sap our energy, undermine our health if we let it, even shorten our lives. It makes us more vulnerable to anxiety and depression, disconnection and disease. Based on Jon Kabat-Zinn's renowned mindfulness-based stress reduction program, this classic, groundbreaking work - which gave rise to a whole new field in medicine and psychology -
shows you how to use medically proven mind-body approaches derived from meditation and yoga to counteract stress, establish greater balance of body and mind, and stimulate well-being and healing. By engaging in these mindfulness practices and integrating them into your life from moment to moment and from day to day, you can learn to manage chronic pain, promote optimal healing, reduce anxiety and feelings of panic, and improve the overall quality of your life, relationships, and social networks. This second edition features results from recent studies on the science of mindfulness, a new Introduction, up-to-date statistics, and an extensive updated reading list. Full Catastrophe Living is a book for the young and the old, the well and the ill, and anyone trying to live a healthier and saner life in our fast-paced world.
ISBN
9780749958411
Language
English
Material Type
Book
Call Number
EG 225 KAB 2013

Copies

copy 1 BC Children's and Women's Family Library Available
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La vie...avant, pendant et après: Les soins palliatifs pédiatriques

https://bcch.andornot.com/en/permalink/catalog114452
Humbert, Nago. Montreal, QC: CHU Sainte-Justine , 2012.
Material Type
Book
Call Number
EF 850.5 HUM 2012 STACKS
Availability
1 copy, 1 available
volution des pratiques médicales inclut dorénavant le développement des soins palliatifs pédiatriques. En effet, la spécificité de la prise en charge des enfants et des adolescents vivant avec une pathologie pouvant menacer leur vie a été démontrée grâce à l'expertise et au travail de réflexion en…
Alternate Title
[La vie avant, pendant et apres: Les soins palliatifs pediatriques]
Author
Humbert, Nago
Place of Publication
Montreal, QC
Publisher
CHU Sainte-Justine
Publication Date
2012
Physical Description
Paperback, 335 p.
Subject
Coping with Chronic Illness-Children
Caregiving
Abstract
volution des pratiques médicales inclut dorénavant le développement des soins palliatifs pédiatriques. En effet, la spécificité de la prise en charge des enfants et des adolescents vivant avec une pathologie pouvant menacer leur vie a été démontrée grâce à l'expertise et au travail de réflexion entrepris et soutenu par des intervenants spécialisés, autant en Amérique du Nord qu'en Europe.
La recherche dans ce domaine soulève certaines problématiques particulières, à la fois sur les plans médical, psychologique, éthique, émotionnel, relationnel et spirituel. En regroupant et en explorant plusieurs d'entre elles - contexte de périnatalité ou de handicap, gestion de la douleur, poursuite de la scolarité, rôle du pédiatre et de l'infirmière, souffrance des membres de la famille et des soignants, décès à l'urgence, impacts des décisions concernant l'alimentation, les niveaux de soins et la non-réanimation, possible conflit opposant famille et équipe de soins, importance du suivi de deuil...-, ce livre contribue à donner à chaque jeune patient un encadrement global et adéquat visant la meilleure qualité de vie possible dans le respect de son développement. Référence essentielle, il témoigne de la complexité des gestes et des décisions des soignants qui, ne pouvant plus guérir la maladie, sont appelés à soulager tous les malaises du petit malade et de sa famille, y comprix ceux de l'âme.
ISBN
9782896196197
Language
French
Material Type
Book
Call Number
EF 850.5 HUM 2012 STACKS

Copies

copy 1 BC Children's and Women's Family Library Available
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When your child hurts : Effective strategies to increase comfort, reduce stress, and break the cycle of chronic pain

https://bcch.andornot.com/en/permalink/catalog122357
Coaklly, Rachael. Yale University Press , 2016.
Material Type
Book
Call Number
GK 285 COA 2016
Availability
1 copy, 1 available
"Parents of a child in pain want nothing more than to offer immediate comfort. But a child with chronic or recurring pain requires much more. His or her parents need skills and strategies not only for increasing comfort but also for helping their child deal with an array of pain-related challenges,…
Author
Coaklly, Rachael
Publisher
Yale University Press
Publication Date
2016
Physical Description
Softcover ; xxiv, 325 p.
Subject
Children's Health - Pain Control
Chronic Pain
Pain
Abstract
"Parents of a child in pain want nothing more than to offer immediate comfort. But a child with chronic or recurring pain requires much more. His or her parents need skills and strategies not only for increasing comfort but also for helping their child deal with an array of pain-related challenges, such as school disruption, sleep disturbance, and difficulties with peers. This essential guide, written by an expert in pediatric pain management, is the practical, accessible, and comprehensive resource that families and caregivers have been awaiting. It offers in-the-moment strategies for managing a child?s pain along with expert advice for fostering long-term comfort.
"Dr. Rachael Coakley, a clinical pediatric psychologist who works exclusively with families of children with chronic or recurrent pain, provides a set of research-proven strategies?some surprisingly counter-intuitive?to achieve positive results quickly and lastingly. Whether the pain is disease-related, the result of an injury or surgery, or caused by another condition or syndrome, this book offers what every parent of a child in pain most needs: effective methods for reversing the cycle of chronic pain"--from the Publisher.
ISBN
9780300204650
Language
English
Material Type
Book
Call Number
GK 285 COA 2016

Copies

BC Children's and Women's Family Library Available
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Finding freedom in illness: A guide to cultivating deep well-being through mindfulness and self-compassion

https://bcch.andornot.com/en/permalink/catalog122283
Fernando, Peter. Boulder: Shambhala Publications, Inc. , 2016.
Material Type
Book
Call Number
EF 850 FER 2016
Availability
1 copy, 1 available
"'Let your illness be your spiritual teacher!' Make a statement like that to someone who's struggled for years with, say, rheumatoid arthritis, and be prepared for an eye roll (at best). To Peter Fernando's credit, he makes that statement, and no such impulse arises. We believe him because he's bee…
Author
Fernando, Peter
Place of Publication
Boulder
Publisher
Shambhala Publications, Inc.
Publication Date
2016
Physical Description
Softcover ; ix, 222 p.
Subject
Mindfulness
Mind/Body
Chronic Illness
Chronic Pain
Emotional Health
Self-Concept (includes self-esteem)
Abstract
"'Let your illness be your spiritual teacher!' Make a statement like that to someone who's struggled for years with, say, rheumatoid arthritis, and be prepared for an eye roll (at best). To Peter Fernando's credit, he makes that statement, and no such impulse arises. We believe him because he's been there himself and because he backs up the statements with his own real experiences and with real wisdom from the Buddhist teachings. Fernando starts by defusing the pernicious belief that anyone is somehow responsible for their illness: you're not "wrong" for being sick. Then, having gotten past self-blame, one can begin to learn self-kindness. From there, one moves to mindfulness practices and cultivating body awareness?even if body awareness is distasteful when the body isn't behaving the way you like. Further topics include getting intimate with dark emotions (fear, despair, the scary future, frustration, grief, etc.), learning equanimity (rejoicing in the good fortune of those who don't share your suffering), cultivating healthy relationships in the midst of everything, and practical advice for living with pain. Each chapter comes with one or more practices or guided meditations for putting the teachings into practice"--from publisher.
ISBN
9781611802634
Language
English
Material Type
Book
Call Number
EF 850 FER 2016

Copies

BC Children's and Women's Family Library Available
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Symple Symptom Tracker: Mobile App (iOS)

https://bcch.andornot.com/en/permalink/catalog124794
Symple Health, Inc. , 2019.
URL
https://apps.apple.com/us/app/symple-symptom-tracker/id479818115
Material Type
Online
Use Symple to track how you feel, to monitor your health, and to improve your wellbeing. Designed by both clinicians and regular people, Symple is an enjoyable way to connect to better health.
  1 url  
URL
https://apps.apple.com/us/app/symple-symptom-tracker/id479818115
Corporate Author
Symple Health, Inc.
Publication Date
2019
Physical Description
Mobile App
Subject
Coping with Pain
Coping with Chronic Illness
Abstract
Use Symple to track how you feel, to monitor your health, and to improve your wellbeing. Designed by both clinicians and regular people, Symple is an enjoyable way to connect to better health.
Language
English
Material Type
Online
URLs
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Aches, pains, and love: A guide to dating and relationships for those with chronic pain and illness

https://bcch.andornot.com/en/permalink/catalog122281
Lynne, Kira. [Canada]: Moppet Press , 2016.
Material Type
Book
Call Number
FM 830 LYN 2016
Availability
1 copy, 1 available
"Having been told by a doctor 20 years ago that I'd never be able to have a relationship due to my chronic pain, and having proved her wrong, I've set out to write a book for those who are living with chronic pain and illness and who have given up on or are struggling with relationships.; "It is po…
Author
Lynne, Kira
Place of Publication
[Canada]
Publisher
Moppet Press
Publication Date
2016
Physical Description
Softcover ; xxv, 361 p.
Subject
Chronic Pain
Relationships
Dating
Abstract
"Having been told by a doctor 20 years ago that I'd never be able to have a relationship due to my chronic pain, and having proved her wrong, I've set out to write a book for those who are living with chronic pain and illness and who have given up on or are struggling with relationships.
"It is possible to live well with chronic pain and illness, and it is possible to form lasting, loving relationships. In my book I provide you with a step-by-step guide to getting the love you want, regardless of your physical condition"--from publisher.
ISBN
9780994993502
Language
English
Material Type
Book
Call Number
FM 830 LYN 2016

Copies

BC Children's and Women's Family Library Available
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Childhood cancer: A parent's guide to solid tumor cancers

https://bcch.andornot.com/en/permalink/catalog114729
Spurgeon, Anne, Keene, Nancy. Bellingham, WA: Childhood Cancer Guides , 2016. 3rd edition.
Material Type
Book
Call Number
FE 500 SPU 2016
Availability
1 copy, 1 available
This book includes essential information for families and friends of children diagnosed with cancer, including how to: understand the diagnosis, get excellent treatment, cope with side effects, find emotional support and identifying helpful resources. Woven through the text are true stories from mo…
Author
Spurgeon, Anne
Keene, Nancy
Edition
3rd edition
Place of Publication
Bellingham, WA
Publisher
Childhood Cancer Guides
Publication Date
2016
Physical Description
Paperback, 549 p.
Subject
Children with Cancer
Children with Cancer-Copin
Children with Cancer-Coping for Siblings
Children with Cancer-Coping for the Family
Cancer
Abstract
This book includes essential information for families and friends of children diagnosed with cancer, including how to: understand the diagnosis, get excellent treatment, cope with side effects, find emotional support and identifying helpful resources. Woven through the text are true stories from more than 150 children with cancer, their siblings, and their parents.
ISBN
9781941089903
Language
English
Material Type
Book
Call Number
FE 500 SPU 2016

Copies

copy 1 BC Children's and Women's Family Library Available
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Scribble and paste: A creative journal if cancer comes to your family

https://bcch.andornot.com/en/permalink/catalog114783
Hankinson, Sara Prins, Janes, Karen. [Vancouver, BC?]: BC Cancer Agency , 2016.
Material Type
Book
Call Number
FE 555 HAN 2016b
Availability
1 copy, 1 available
This journal is an activity book developed by an Art Therapist with the Patient and Family Counselling Program and an Oncology Nursing Practice Leader with the BC Cancer Agency. It is designed for older children, ages 10 and up, to help them learn creative ways of coping when a family member is liv…
Author
Hankinson, Sara Prins
Janes, Karen
Place of Publication
[Vancouver, BC?]
Publisher
BC Cancer Agency
Publication Date
2016
Physical Description
Paperback, 64 p., ill.
Subject
Cancer
Cancer - Coping
Children with Cancer-Coping for the Family
Abstract
This journal is an activity book developed by an Art Therapist with the Patient and Family Counselling Program and an Oncology Nursing Practice Leader with the BC Cancer Agency. It is designed for older children, ages 10 and up, to help them learn creative ways of coping when a family member is living with cancer. This activity book can provide a starting point for older children and families to talk about cancer. The activities in the book can also provide a child with ways to discover more about themselves, their family, their strengths and the support around them. Suitable for ages 10 and up.
ISBN
9781896624273
Language
English
Material Type
Book
Call Number
FE 555 HAN 2016b

Copies

copy 1 BC Children's and Women's Family Library Available
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Living a healthy life with chronic conditions: For ongoing physical and mental health conditions

https://bcch.andornot.com/en/permalink/catalog122290
Lorig, Kate, Holman, Halsted, Sobel, David, Laurent, Diana, Gonzalez, Virginia, Minor, Marian. Boulder, CO: Bull Publishing Company , 2013. Canadian Edition, 4th.
Material Type
Book
Call Number
EF 800 LOR 2013
Availability
2 copies, 2 available
"Living a Healthy Life with Chronic Conditions is a proven self-management guide. People with chonic health conditions live most of their lives outside of hospitals and clinics. This book is designed to help them learn the information and skills to manage chronic conditions on a daily basis while d…
Author
Lorig, Kate
Holman, Halsted
Sobel, David
Laurent, Diana
Gonzalez, Virginia
Minor, Marian
Edition
Canadian Edition, 4th
Place of Publication
Boulder, CO
Publisher
Bull Publishing Company
Publication Date
2013
Physical Description
Softcover ; vii, 368 p.
Subject
Chronic Illness
Mental Health/Illness
Fatigue
Pain
Depression
Abstract
"Living a Healthy Life with Chronic Conditions is a proven self-management guide. People with chonic health conditions live most of their lives outside of hospitals and clinics. This book is designed to help them learn the information and skills to manage chronic conditions on a daily basis while doing the things they need and want to do.
"This new edition is completely redesigned for easy reading and fully updated with the latest research and information. The book is a vital resource full of practical tips, suggestions, and strategies to build confidence in managing chronic illness and symptoms, such as fatigue, pain, shortness of breath, disability, and depression. It encourages readers to develop individual approaches to setting goals, making decisions, and finding resources and support"--from Publisher.
ISBN
97819396693498
Language
English
Material Type
Book
Call Number
EF 800 LOR 2013

Copies

BC Children's and Women's Family Library Available
copy 2 BC Children's and Women's Family Library Available
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Your child has had a tonsillectomy

https://bcch.andornot.com/en/permalink/catalog114273
Department of Anesthesiology, the Acute Pain Service, the Division of Pediatric Otolaryngology. [Vancouver, BC?]: BC Children's Hospital , 2017.
URL
http://www.cw.bc.ca/library/pdf/pamphlets/BCCH1026A_PainMedTonsillectomy.pdf
Material Type
Handout
Online
This pamphlets contains nursing discharge instructions for your child after surgery. It also explains how to care for your child after surgery, and when to get help.
  1 url  
URL
http://www.cw.bc.ca/library/pdf/pamphlets/BCCH1026A_PainMedTonsillectomy.pdf
Corporate Author
Department of Anesthesiology, the Acute Pain Service, the Division of Pediatric Otolaryngology
Place of Publication
[Vancouver, BC?]
Publisher
BC Children's Hospital
Publication Date
2017
Physical Description
PDF: 2 pages
Subject
Tonsillitis
Tonsillitis. Tonsils & Adenoids
Childcare
Children's Health-Surgery
Abstract
This pamphlets contains nursing discharge instructions for your child after surgery. It also explains how to care for your child after surgery, and when to get help.
Language
English
Material Type
Handout
Online
URLs
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Billy's sister: Life when your sibling has a disability

https://bcch.andornot.com/en/permalink/catalog123303
Leving, Jessica, Sfar, Wiem [illustrator]. The Center for Siblings of People with Disabilities , 2019.
Material Type
Book
Call Number
JUNIOR GK 665 LEV 2019
Availability
1 copy, 1 available
Growing up with a sibling who has a disability can be hard. But it can also be... awesome! Based on the author's real-life experiences, this unique and touching children's book explores how siblings of kids with disabilities are special, too. Created with the support of licensed clinical social wor…
Author
Leving, Jessica
Sfar, Wiem [illustrator]
Publisher
The Center for Siblings of People with Disabilities
Publication Date
2019
Physical Description
36 p.
Series
A Project of The Center for Siblings of People with Disabilities
Subject
Sibling Relationships
Siblings of Children with Disabilities
Abstract
Growing up with a sibling who has a disability can be hard. But it can also be... awesome! Based on the author's real-life experiences, this unique and touching children's book explores how siblings of kids with disabilities are special, too. Created with the support of licensed clinical social workers with the aim of helping siblings of kids with disabilities identify, express and process their feelings. This book is intended to be read with a parent or trusted adult and spark family discussions you'll keep coming back to.
For ages 3-8.
ISBN
9798618220682
Language
English
Material Type
Book
Call Number
JUNIOR GK 665 LEV 2019

Copies

BC Children's and Women's Family Library Available
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The grieving child : A parent's guide

https://bcch.andornot.com/en/permalink/catalog123421
Fitzgerald, Helen. Fireside Book , 2019.
Material Type
Book
Call Number
GV 250 FIT 1992
Availability
1 copy, 1 available
Explaining death to a child is one of the most difficult tasks a parent or other relative can face. The Grieving Child offers practical, compassionate advice for helping a child cope with the death of a parent or other loved one. Parents of children from preschool age to the teen years will find mu…
Author
Fitzgerald, Helen
Publisher
Fireside Book
Publication Date
2019
Physical Description
207 p.
Subject
Coping with Death
Grief. Bereavement
Children-Coping with Death and Dying
Abstract
Explaining death to a child is one of the most difficult tasks a parent or other relative can face. The Grieving Child offers practical, compassionate advice for helping a child cope with the death of a parent or other loved one. Parents of children from preschool age to the teen years will find much-needed guidance, covering:
? Helping a child visit the seriously ill or dying
? Using language appropriate to a child's age level
? Selecting useful books about death
? Handling especially difficult situations, including murder and suicide
? Deciding whether a child should attend a funeral
With a new chapter devoted to the special issues of the bereaved toddler, The Grieving Child provides invaluable suggestions for dealing with a child's emotional responses (including anger, guilt, and depression) and helping a child adjust to a new life.
ISBN
9780671767624
Language
English
Material Type
Book
Call Number
GV 250 FIT 1992

Copies

BC Children's and Women's Family Library Available
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Jon's tricky journey : a story for Inuit children with cancer and their families

https://bcch.andornot.com/en/permalink/catalog120829
McCarthy, Patricia. Iqaluit, NU: Inhabit Media , 2017.
Material Type
Book
Call Number
JUNIOR FE 555 MCC 2017
Availability
1 copy, 0 available
Jon loves his life in the North. But when he feels a pain that won't go away, he must go to a children's hospital in the south to find out what is wrong. A doctor there tells Jon he has cancer and will have to stay at the hospital for a while. Suddenly Jon's life is upside down! But with a handful …
Alternate Title
Jaan aullaqsimanirijanga : unikkaaq inungnut nutaqqanut aanniaqaqtunut ilanginnullu
Author
McCarthy, Patricia
Place of Publication
Iqaluit, NU
Publisher
Inhabit Media
Publication Date
2017
Physical Description
Softcover, 69 p.
Subject
Children with Cancer-Coping
Cancer
Cancer-Caregiving
Abstract
Jon loves his life in the North. But when he feels a pain that won't go away, he must go to a children's hospital in the south to find out what is wrong. A doctor there tells Jon he has cancer and will have to stay at the hospital for a while. Suddenly Jon's life is upside down! But with a handful of tricks from the doctors and nurses, and new friends, Jon discovers ways to cope with some of the tricky parts of having cancer. Accompanied by a resource guide for parents and caregivers, including hospital and support information, Jon's Tricky Journey opens a conversation between Inuit children facing a cancer diagnosis and their families to help make a difficult and confusing time more manageable.
ISBN
9781772271454
Language
English
Inuktitut
Material Type
Book
Call Number
JUNIOR FE 555 MCC 2017

Copies

Copy 1 BC Children's and Women's Family Library On Loan, due Monday, March 4, 2024
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Childhood leukemia: A guide for families, friends and caregivers

https://bcch.andornot.com/en/permalink/catalog121444
Keene, Nancy. Sebastopool, CA: O'Reilly Media & Childhood Cancer Guides , 2018. 5th edition.
Material Type
Book
Call Number
FE 350.5 KEE 2018
Availability
1 copy, 1 available
Approximately 4,500 children and teens are diagnosed with leukemia in the United States and Canada each year. The illness and its treatment can have a devastating effect on family, friends, classmates, and the larger community. This newly updated edition of Childhood Leukemia contains the informati…
Author
Keene, Nancy
Edition
5th edition
Place of Publication
Sebastopool, CA
Publisher
O'Reilly Media & Childhood Cancer Guides
Publication Date
2018
Physical Description
Paperback; xvi, 476 pages
Subject
Leukemia-Children
Children with Cancer
Children with Cancer-Coping for the Family
Abstract
Approximately 4,500 children and teens are diagnosed with leukemia in the United States and Canada each year. The illness and its treatment can have a devastating effect on family, friends, classmates, and the larger community. This newly updated edition of Childhood Leukemia contains the information and support parents need during this difficult time, including: New treatments such as immunotherapy, tailoring drugs dosages to children's genetic profiles, and ways to deal with side effects. Advice on how to cope with procedures, hospitalization, school, family, and financial issues. Tips for forming a partnership with the medical team. Poignant and practical stories from family members. Updated resources for medical information, emotional support, and financial assistance. Parents who read this book will find understandable medical information and emotional support.
ISBN
9781941089040
Language
English
Material Type
Book
Call Number
FE 350.5 KEE 2018

Copies

BC Children's and Women's Family Library Available
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Now what ... ? Living with the death of your parent or brother or sister from cancer

https://bcch.andornot.com/en/permalink/catalog112169
Don, Pauline, Young, Rob (Designer). Sydney, Australia: CanTeen , 2011.
URL
http://nowwhat.org.au/
Material Type
Book
Call Number
YOUTH GV 200 DON 2011
Availability
1 copy, 1 available
This book is meant to be like a friend accompanying a child or young adult on their journey of grief after losing a sibling or parent to cancer. This book was created with input from lots of young people who have shared similar experiences. And while it can't give you all the answers you may be loo…
  1 url  
URL
http://nowwhat.org.au/
Author
Don, Pauline
Young, Rob (Designer)
Corporate Author
The Australian Organisation for Young People Living with Cancer
Place of Publication
Sydney, Australia
Publisher
CanTeen
Publication Date
2011
Physical Description
Spiral bound soft cover: 66 p.
Subject
Cancer-Coping
Young Adults
Grief. Bereavement
Death and Dying
Abstract
This book is meant to be like a friend accompanying a child or young adult on their journey of grief after losing a sibling or parent to cancer. This book was created with input from lots of young people who have shared similar experiences. And while it can't give you all the answers you may be looking for, it may help you find something that helps you make sense of the space you're now in.
ISBN
9780980463743
Language
English
Material Type
Book
Call Number
YOUTH GV 200 DON 2011

Copies

Copy 1 BC Children's and Women's Family Library Available
URLs
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No days off: My life with type 1 diabetes and journey to the NHL

https://bcch.andornot.com/en/permalink/catalog124667
Domi, Max. Toronto: Simon & Schuster Canada , 2019.
Material Type
Book
Call Number
YOUTH FL 800.6 DOM 2019
Availability
1 copy, 1 available
Growing up the son of a professional hockey player - Tie Domi - Max saw from an early age what it took to make the NHL: grit, talent, and the support of a team. Over countless hours in the garage, at the rink, and in the gym, Max chased his dream. It seemed that Max was born to be on the ice.; But …
Author
Domi, Max
Place of Publication
Toronto
Publisher
Simon & Schuster Canada
Publication Date
2019
Physical Description
Paperback; 209p.
Subject
Diabetes Mellitus - Young Adults
Abstract
Growing up the son of a professional hockey player - Tie Domi - Max saw from an early age what it took to make the NHL: grit, talent, and the support of a team. Over countless hours in the garage, at the rink, and in the gym, Max chased his dream. It seemed that Max was born to be on the ice.
But then, when he was twelve years old, Max started getting sick. And sicker. Eventually, he and his family learned the truth: Max had type 1 diabetes.
Overnight, Max and his family found their lives upended. All Max wanted was to be a normal kid, but suddenly, the simplest things - a game of basketball with friends, a family meal, a school field trip - were complicated with a thousand different considerations.
As he struggled to find his new normal, Max slowly began to realize that overcoming his disease demanded the same qualities that it took to be a hockey player - mental and physical toughness, maturity, and the love and care of family and friends. Bit by bit, he learned - sometimes the hard way - not just to control his diabetes, but to turn it into an advantage. If managing his disease was going to demand that Max be stronger, more prepared, and more disciplined than anyone else, then he wouldn't just be good at those things: he'd be the best. He'd do whatever it took to move him closer to his dream of playing in the NHL.
ISBN
9781982155896
Language
English
Material Type
Book
Call Number
YOUTH FL 800.6 DOM 2019

Copies

BC Children's and Women's Family Library Available
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My adventures with fox and owl: A creative journal for kids with cancer in the familly

https://bcch.andornot.com/en/permalink/catalog114316
Hankinson, Sara Prins, Janes, Karen. [Vancouver, BC?]: BC Cancer Agency , 2016.
Material Type
Book
Call Number
FE 555 HAN 2016
Availability
2 copies, 2 available
This journal is an activity book developed by an Art Therapist with the Patient and Family Counselling Program and an Oncology Nursing Practice Leader with the BC Cancer Agency. It is designed for children, ages 5 to 9, to help them learn creative ways of coping when a family member is living with …
Author
Hankinson, Sara Prins
Janes, Karen
Place of Publication
[Vancouver, BC?]
Publisher
BC Cancer Agency
Publication Date
2016
Physical Description
Paperback, 68 p., ill.
Subject
Children with Cancer-Coping for the Family
Cancer
Cancer - Coping
Abstract
This journal is an activity book developed by an Art Therapist with the Patient and Family Counselling Program and an Oncology Nursing Practice Leader with the BC Cancer Agency. It is designed for children, ages 5 to 9, to help them learn creative ways of coping when a family member is living with cancer. This activity book can provide a starting point for children and families to talk about cancer. The activities in the book can provide a child with choices in creative tools to learn and grow through the family's experience with cancer.
ISBN
9781896624266
Language
English
Material Type
Book
Call Number
FE 555 HAN 2016

Copies

c.1 BC Children's and Women's Family Library Available
c.2 BC Children's and Women's Family Library Available
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Planet Cancer: The frequently bizarre yet always informative experiences and thoughts of your fellow natives

https://bcch.andornot.com/en/permalink/catalog112001
Lyons Press , 2010.
Material Type
Book
Call Number
YOUTH FE 250 ADA 2010
Availability
1 copy, 1 available
Planet Cancer is an honest, down-to-earth guide to living in this new world, from Diagnosis to Post-Treatment. Each chapter is informed by Planet Cancer’s voice—authoritative, funny, friendly, no-nonsense. Experts address issues from all sides around bedrock “What It’s Really Like” essays: deeply p…
Publisher
Lyons Press
Publication Date
2010
Physical Description
Paperback: 272 p.
Subject
Cancer-Coping
Young Adults
Abstract
Planet Cancer is an honest, down-to-earth guide to living in this new world, from Diagnosis to Post-Treatment. Each chapter is informed by Planet Cancer’s voice—authoritative, funny, friendly, no-nonsense. Experts address issues from all sides around bedrock “What It’s Really Like” essays: deeply personal, unflinching, and often hilarious pieces written by people who actually experienced on Planet Cancer things like banking sperm, adopting a child, or undergoing brain radiation. The book, enlivened with quotes and real-life stories from Planet Cancer members, gives the uninitiated a sense of community and removes some of the mystery and fear of the unknown.
Language
English
Material Type
Book
Call Number
YOUTH FE 250 ADA 2010

Copies

Copy 1 BC Children's and Women's Family Library Available
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Everybody stay calm : How to support your young child through medical tests and procedures

https://bcch.andornot.com/en/permalink/catalog123090
Mackenzie, Angela. Global Publishing Group , 2014.
Material Type
Book
Call Number
FM 800 MAC 2014
Availability
1 copy, 1 available
This book explains how you can make your child's medical procedures less scary and painful. You will learn:; - Secrets to building your confidence in a medical setting,; - Essential steps to help prepare your child for medical tests,; - Practical skills that will transform your child's experience o…
Author
Mackenzie, Angela
Publisher
Global Publishing Group
Publication Date
2014
Subject
Pain Control
Abstract
This book explains how you can make your child's medical procedures less scary and painful. You will learn:
- Secrets to building your confidence in a medical setting,
- Essential steps to help prepare your child for medical tests,
- Practical skills that will transform your child's experience of medical treatment,
- Benefits of collaborating with the health professionals,
- Real gems from the stories of parents who have been there,
- How to avoid the most common mistakes that parents make, and
- Where to get further help if you need it.
ISBN
1922118354
Language
English
Material Type
Book
Call Number
FM 800 MAC 2014

Copies

BC Children's and Women's Family Library Available
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Magic moments : Twelve little stories about disability, family and fairly normal life

https://bcch.andornot.com/en/permalink/catalog113535
Bendall, Lisa. [Toronto, ON]: Twelve Fingers Press , 2015.
Material Type
Book
Call Number
GN 800 BEN 2015
Availability
1 copy, 1 available
This collection of essays, most of them previously published in magazines and newspapers, touches on the joys and challenges of family life. Author Lisa Bendall is married to Ian, who is intelligent, funny and kind... and happens to be quadriplegic. Together they are raising a spectacular daughter.…
Author
Bendall, Lisa
Place of Publication
[Toronto, ON]
Publisher
Twelve Fingers Press
Publication Date
2015
Subject
Physical Disability-Coping
Family
Abstract
This collection of essays, most of them previously published in magazines and newspapers, touches on the joys and challenges of family life. Author Lisa Bendall is married to Ian, who is intelligent, funny and kind... and happens to be quadriplegic. Together they are raising a spectacular daughter. They hold down full-time jobs, share a mortgage, have a dog--just like many other folks. You are invited to share this family's journey, from major milestones to fleeting yet magical moments.
ISBN
9781511752596
Language
English
Material Type
Book
Call Number
GN 800 BEN 2015

Copies

Copy 1 BC Children's and Women's Family Library Available
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"Mon frère n'est plus connecté dans sa tête": La schizophrénie

https://bcch.andornot.com/en/permalink/catalog114661
Deroin, Christine. Paris, France: Oskar Editeurs , 2015.
Material Type
Book
Call Number
YOUTH CD 626 DER 2015
Availability
1 copy, 1 available
Présentation de la série "Pas de panique !" Cette collection a été créée pour sensibiliser les adolescents face aux différentes maladies psychiatriques dont peuvent souffrir des membres de leur famille (parents, frères, soeurs, amis proches).
Alternate Title
"Mon frere n est plus connecte dans sa tete": La schizophrenie
Author
Deroin, Christine
Place of Publication
Paris, France
Publisher
Oskar Editeurs
Publication Date
2015
Physical Description
Paperback, 94 p.
Subject
Schizophrenia
Schizophrenia -Coping for the Family
Abstract
Présentation de la série "Pas de panique !" Cette collection a été créée pour sensibiliser les adolescents face aux différentes maladies psychiatriques dont peuvent souffrir des membres de leur famille (parents, frères, soeurs, amis proches).
ISBN
9791021403475
Language
French
Material Type
Book
Call Number
YOUTH CD 626 DER 2015

Copies

Copy 1 BC Children's and Women's Family Library Available
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Surviving schizophrenia : A family manual

https://bcch.andornot.com/en/permalink/catalog122367
Torrey, E. Fuller. Harper Perennial , 2019. 7th ed.
Material Type
Book
Call Number
CD 620 TOR 2019
Availability
1 copy, 1 available
"Since its first publication in 1983, Surviving Schizophrenia has become the standard reference book on the disease and has helped thousands of patients, their families, and mental health professionals.; "In clear language, this much-praised and important book describes the nature, causes, symptoms…
Author
Torrey, E. Fuller
Edition
7th ed.
Publisher
Harper Perennial
Publication Date
2019
Physical Description
Softcover ; xxii, 496 p.
Subject
Schizophrenia
Schizophrenia -Coping for the Family
Abstract
"Since its first publication in 1983, Surviving Schizophrenia has become the standard reference book on the disease and has helped thousands of patients, their families, and mental health professionals.
"In clear language, this much-praised and important book describes the nature, causes, symptoms, treatment, and course of schizophrenia and also explores living with it from both the patient's and the family's point of view. This new, completely updated seventh edition includes the latest research findings on what causes the illness, as well as information about the newest drugs for treatment, and answers the questions most often asked by families, consumers, and providers"--from the Publisher.
ISBN
9780062880802
Language
English
Material Type
Book
Call Number
CD 620 TOR 2019

Copies

BC Children's and Women's Family Library Available
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When Aiden Became a Brother

https://bcch.andornot.com/en/permalink/catalog124030
Lukoff, Kyle, Juanita, Kaylani [ill.]. New York, NY: Lee & Low Books , 2019.
Material Type
Book
Call Number
JUNIOR GK 716 LUK 2019
Availability
1 copy, 1 available
When Aidan was born, everyone thought he was a girl. His parents gave him a pretty name, his room looked like a girl's room, and he wore clothes that other girls liked wearing. After he realized he was a trans boy, Aidan and his parents fixed the parts of life that didn't fit anymore, and he settle…
Author
Lukoff, Kyle
Juanita, Kaylani [ill.]
Place of Publication
New York, NY
Publisher
Lee & Low Books
Publication Date
2019
Physical Description
Hardcover
Subject
Children's Gender Identity and Expression
Sibling Relationships
Family
Abstract
When Aidan was born, everyone thought he was a girl. His parents gave him a pretty name, his room looked like a girl's room, and he wore clothes that other girls liked wearing. After he realized he was a trans boy, Aidan and his parents fixed the parts of life that didn't fit anymore, and he settled happily into his new life. Then Mom and Dad announce that they're going to have another baby, and Aidan wants to do everything he can to make things right for his new sibling from the beginning?from choosing the perfect name to creating a beautiful room to picking out the cutest onesie. But what does "making things right" actually mean? And what happens if he messes up? With a little help, Aidan comes to understand that mistakes can be fixed with honesty and communication, and that he already knows the most important thing about being a big brother: how to love with his whole self. When Aidan Became a Brother is a heartwarming book that will resonate with transgender children, reassure any child concerned about becoming an older sibling, and celebrate the many transitions a family can experience.
ISBN
9781620148372
Language
English
Material Type
Book
Call Number
JUNIOR GK 716 LUK 2019

Copies

copy 1 BC Children's and Women's Family Library Available
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Preparing your child for surgery

https://bcch.andornot.com/en/permalink/catalog112395
Child Life Department. [Vancouver, BC?]: BC Children's Hospital , 2013.
URL
http://www.cw.bc.ca/library/pdf/pamphlets/BCCH1653_PreparingYourChildForSurgery_2013.pdf
Material Type
Pamphlet
Online
Call Number
BCCH1653
This pamphlet offers tips and strategies for helping your child prepare for surgery. There's separate sections with tips for infants, toddlers, preschooler age children, school-age children, and teens.
  1 image     1 url  
URL
http://www.cw.bc.ca/library/pdf/pamphlets/BCCH1653_PreparingYourChildForSurgery_2013.pdf
Website Notes
Click on the link above to view/print.
Corporate Author
Child Life Department
Place of Publication
[Vancouver, BC?]
Publisher
BC Children's Hospital
Publication Date
2013
Physical Description
PDF file: 2 p.
Subject
Surgery-Coping
Children's Emotions
Children's Health-Surgery
Abstract
This pamphlet offers tips and strategies for helping your child prepare for surgery. There's separate sections with tips for infants, toddlers, preschooler age children, school-age children, and teens.
Language
English
Material Type
Pamphlet
Online
Call Number
BCCH1653
Images
URLs
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How to nourish your child through an eating disorder : A simple, plate-by-plate approach to rebuilding a healthy relationship with food

https://bcch.andornot.com/en/permalink/catalog123060
Crosbie, Casey, Sterling, Wendy, Golden, Neville H., Lock, James. , 2018.
URL
https://ebookcentral.proquest.com/lib/cwhbc/detail.action?docID=5491211
Material Type
Ebook
Call Number
BB 500 CRO 2018
This innovative and easy-to-implement visual approach demonstrates balanced meals with the optimal ratio of nutrients. The plate-by-plate method is rooted in the leading psychological approach to ED, family-based treatment (FBT), which enables parents to treat their child at home rather than send t…
  1 url  
URL
https://ebookcentral.proquest.com/lib/cwhbc/detail.action?docID=5491211
Author
Crosbie, Casey
Sterling, Wendy
Golden, Neville H.
Lock, James
Editor
Experiment LLC
Publication Date
2018
Physical Description
eBook, 326 pages
Subject
Eating Disorders
Nutrition
Family Therapy
Abstract
This innovative and easy-to-implement visual approach demonstrates balanced meals with the optimal ratio of nutrients. The plate-by-plate method is rooted in the leading psychological approach to ED, family-based treatment (FBT), which enables parents to treat their child at home rather than send them to an expensive in-patient program. Paired with therapy, this essential guide covers everything parents need to know about nutrition, plus the warning signs and potential health risks, how to talk about weight changes and set goals for treatment, and how to incorporate structure at mealtimes.
ISBN
9781615194513
Language
English
Material Type
Ebook
Call Number
BB 500 CRO 2018
URLs
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Preparing your child for surgery [Vietnamese]

https://bcch.andornot.com/en/permalink/catalog112480
Child Life Department. [Vancouver, BC?]: BC Children's Hospital , 2013.
URL
http://www.cw.bc.ca/library/pdf/pamphlets/BCCH1653V_PreparingYourChildForSurgery_2013.pdf
Material Type
Pamphlet
Online
Call Number
BCCH1653V
Written in Vietnamese, this pamphlet offers tips and strategies for helping your child prepare for surgery. There's separate sections with tips for infants, toddlers, preschooler age children, school-age children, and teens.
  1 image     1 url  
URL
http://www.cw.bc.ca/library/pdf/pamphlets/BCCH1653V_PreparingYourChildForSurgery_2013.pdf
Website Notes
Click on the link above to view/print.
Corporate Author
Child Life Department
Place of Publication
[Vancouver, BC?]
Publisher
BC Children's Hospital
Publication Date
2013
Physical Description
PDF file: 2 p.
Subject
Surgery-Coping
Children's Emotions
Children's Health-Surgery
Abstract
Written in Vietnamese, this pamphlet offers tips and strategies for helping your child prepare for surgery. There's separate sections with tips for infants, toddlers, preschooler age children, school-age children, and teens.
Language
Vietnamese
Material Type
Pamphlet
Online
Call Number
BCCH1653V
Images
URLs
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Preparing your child for surgery [Punjabi]

https://bcch.andornot.com/en/permalink/catalog112483
Child Life Department. [Vancouver, BC?]: BC Children's Hospital , 2013.
URL
http://www.cw.bc.ca/library/pdf/pamphlets/BCCH1653P_PreparingYourChildForSurgery_2013.pdf
Material Type
Pamphlet
Online
Call Number
BCCH1653P
Written in Punjabi, this pamphlet offers tips and strategies for helping your child prepare for surgery. There's separate sections with tips for infants, toddlers, preschooler age children, school-age children, and teens.
  1 image     1 url  
URL
http://www.cw.bc.ca/library/pdf/pamphlets/BCCH1653P_PreparingYourChildForSurgery_2013.pdf
Website Notes
Click on the link above to view/print.
Corporate Author
Child Life Department
Place of Publication
[Vancouver, BC?]
Publisher
BC Children's Hospital
Publication Date
2013
Physical Description
PDF file: 2 p.
Subject
Surgery-Coping
Children's Emotions
Children's Health-Surgery
Abstract
Written in Punjabi, this pamphlet offers tips and strategies for helping your child prepare for surgery. There's separate sections with tips for infants, toddlers, preschooler age children, school-age children, and teens.
Language
Punjabi
Material Type
Pamphlet
Online
Call Number
BCCH1653P
Images
URLs
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Guts: A graphic novel

https://bcch.andornot.com/en/permalink/catalog124112
Telgemeier, Raina. New York, NY: Graphix , 2019.
Material Type
Book
Call Number
JUNIOR CD 420 TEL 2019
Availability
1 copy, 0 available
Raina wakes up one night with a terrible upset stomach. Her mom has one, too, so it's probably just a bug. Raina eventually returns to school, where she's dealing with the usual highs and lows: friends, not-friends, and classmates who think the school year is just one long gross-out session. It soo…
Author
Telgemeier, Raina
Place of Publication
New York, NY
Publisher
Graphix
Publication Date
2019
Physical Description
Paperback; graphic novel; 211p.
Subject
Anxiety
Stress
Children's Anxiety
Children's Emotions
Chronic Illness
Abstract
Raina wakes up one night with a terrible upset stomach. Her mom has one, too, so it's probably just a bug. Raina eventually returns to school, where she's dealing with the usual highs and lows: friends, not-friends, and classmates who think the school year is just one long gross-out session. It soon becomes clear that Raina's tummy trouble isn't going away... and it coincides with her worries about food, school, and changing friendships.
ISBN
9780545852500
Language
English
Material Type
Book
Call Number
JUNIOR CD 420 TEL 2019

Copies

BC Children's and Women's Family Library Missing On Loan, due Tuesday, April 16, 2024
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