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8 records – page 1 of 1.

The diagnosis and management of Duchenne Muscular Dystrophy: A guide for families

https://bcch.andornot.com/en/permalink/catalog123812
Muscular Dystrophy Canada. Toronto, ON: Muscular Dystrophy Canada , 2019.
URL
https://muscle.ca/wp-content/uploads/2019/09/DMDstandardsofcare-EN.pdf
Material Type
Booklet
Online
This guide for families summarizes the results of an international consensus on the medical care of Duchenne muscular dystrophy (DMD). This effort was supported by the US Centers for Disease Control and Prevention (CDC), in collaboration with patient advocacy groups and the TREAT-NMD network. The m…
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  1 url  
URL
https://muscle.ca/wp-content/uploads/2019/09/DMDstandardsofcare-EN.pdf
Corporate Author
Muscular Dystrophy Canada
Place of Publication
Toronto, ON
Publisher
Muscular Dystrophy Canada
Publication Date
2019
Subject
Muscular Dystrophy
Abstract
This guide for families summarizes the results of an international consensus on the medical care of Duchenne muscular dystrophy (DMD). This effort was supported by the US Centers for Disease Control and Prevention (CDC), in collaboration with patient advocacy groups and the TREAT-NMD network. The main document is published in Lancet Neurology.
The recommendations are based on an extensive study by 84 international experts in DMD diagnosis and care chosen to represent a broad range of specialties. They independently ?rated? methods of care used in the management of DMD to say how ?necessary?, ?appropriate? or ?inappropriate? each one was at different stages of the course of DMD. In total they considered more than 70,000 different scenarios. This allowed them to establish guidelines that the majority agreed represented the best practice for DMD care.
Language
English
Material Type
Booklet
Online
URLs
https://muscle.ca/wp-content/uploads/2019/09/DMDstandardsofcare-EN.pdf
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On the path to possibility: A guide book for children, youth and families living with cerebral palsy

https://bcch.andornot.com/en/permalink/catalog123830
Holland Bloorview Kids Rehabilitation Hospital. Toronto, ON: Holland Bloorview Kids Rehabilitation Hospital
URL
https://hollandbloorview.ca/services/programs-services/cp-booklet
Material Type
Booklet
Online
From the authors:; "Many parents ask us, What can I read about cerebral palsy? This booklet was written to answer that very question. We hope this booklet will help explain what cerebral palsy (CP) is and what supports Holland Bloorview can offer."; Note: Pages 1-15 contain general information that…
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  1 url  
URL
https://hollandbloorview.ca/services/programs-services/cp-booklet
Corporate Author
Holland Bloorview Kids Rehabilitation Hospital
Place of Publication
Toronto, ON
Publisher
Holland Bloorview Kids Rehabilitation Hospital
Physical Description
PDF; 23 pages
Subject
Cerebral Palsy
Abstract
From the authors:
"Many parents ask us, What can I read about cerebral palsy? This booklet was written to answer that very question. We hope this booklet will help explain what cerebral palsy (CP) is and what supports Holland Bloorview can offer."
Note: Pages 1-15 contain general information that may be helpful to families outside Ontario.
Language
English
Material Type
Booklet
Online
URLs
https://hollandbloorview.ca/services/programs-services/cp-booklet
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Pregnancy and Spinal Cord Injury : An information booklet for women with SCI

https://bcch.andornot.com/en/permalink/catalog121784
Vancouver Coastal Health Sexual Rehabilitation Service, BC Women's Hospital and Health Centre Maternal Fetal Medicine Service, Rick Hansen Institute, Spinal Cord Injury BC (SCI BC). [Vancouver, BC?]: Spinal Cord Injury Organization of BC , 2015.
URL
https://scisexualhealth.ca/wp-content/uploads/2015/05/Pregnancy-and-SCI-booklet-V7.pdf
Material Type
Booklet
Online
We have created this booklet to highlight a number of key topics for women with SCI (spinal cord injury) and their families to consider during the perinatal period, defined as the time before conceiving (pre-conception), pregnancy, labour, delivery and postpartum (the first few days and weeks after…
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  1 document     1 url  
URL
https://scisexualhealth.ca/wp-content/uploads/2015/05/Pregnancy-and-SCI-booklet-V7.pdf
Corporate Author
Vancouver Coastal Health Sexual Rehabilitation Service
BC Women's Hospital and Health Centre Maternal Fetal Medicine Service
Rick Hansen Institute
Spinal Cord Injury BC (SCI BC)
Place of Publication
[Vancouver, BC?]
Publisher
Spinal Cord Injury Organization of BC
Publication Date
2015
Subject
Spinal Cord Injuries
Pregnancy/Childbirth
Prenatal Care
Postnatal Care
Abstract
We have created this booklet to highlight a number of key topics for women with SCI (spinal cord injury) and their families to consider during the perinatal period, defined as the time before conceiving (pre-conception), pregnancy, labour, delivery and postpartum (the first few days and weeks after a baby is born).
The topics covered in this guide are designed as a place to start the conversation with your health care providers as part of planning for your care.
Language
English
Material Type
Booklet
Online
Documents
thumbnail

Pregnancy and SCI booklet.pdf

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URLs
https://scisexualhealth.ca/wp-content/uploads/2015/05/Pregnancy-and-SCI-booklet-V7.pdf
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Release the Butterfly: A Handbook for Parents & Caregivers of Children with Ichthyosis

https://bcch.andornot.com/en/permalink/catalog124005
Foundation for Ichthyosis and Related Skin Types. Colmar, PA: Foundation for Ichthyosis and Related Skin Types , 2014. 4th edition.
Material Type
Booklet
Call Number
FO 365 FOU 2014
Availability
1 copy, 1 available
More Information
Author
Foundation for Ichthyosis and Related Skin Types
Edition
4th edition
Place of Publication
Colmar, PA
Publisher
Foundation for Ichthyosis and Related Skin Types
Publication Date
2014
Physical Description
52 pages
Subject
Ichthyosis
Language
English
Material Type
Booklet
Call Number
FO 365 FOU 2014

Copies

copy 1 BC Children's and Women's Family Library Available
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Understanding congenital heart defects: Written by doctors for kids

https://bcch.andornot.com/en/permalink/catalog121916
Maxwell, Kimberley, deLoache, Shawn. New York, NY: Jumo , 2018.
Material Type
Booklet
Call Number
JUNIOR FD 500 MAX 2018
Availability
1 copy, 1 available
Join Corey on his journey to learn about how the heart works, different types of congenital heart defects, and how heart defect symptoms are treated.
More Information
Alternate Title
Medikids
Author
Maxwell, Kimberley
deLoache, Shawn
Editor
Quigley, Columba
Place of Publication
New York, NY
Publisher
Jumo
Publication Date
2018
Physical Description
Softcover; 16 p.
Series
Medikids
Subject
Congenital Heart Diseases
Abstract
Join Corey on his journey to learn about how the heart works, different types of congenital heart defects, and how heart defect symptoms are treated.
Language
English
Material Type
Booklet
Call Number
JUNIOR FD 500 MAX 2018

Copies

BC Children's and Women's Family Library Available
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You, your child, and arthritis

https://bcch.andornot.com/en/permalink/catalog123813
Arthritis Society. Toronto, ON: Arthritis Society , 2020. 6th ed.
URL
https://arthritis.ca/getmedia/42e31329-43c9-433b-89fb-7e3fc4f30493/ChildhoodArthritis_July23_2020.pdf
Material Type
Booklet
Online
You, Your Child [and] Arthritis is a valuable resource for families of children with juvenile arthritis (JA). This guide provides the information parents/caregivers need to understand their child?s disease and to feel comfortable caring for them. It also covers the different types of juvenile arthr…
More Information
  1 url  
URL
https://arthritis.ca/getmedia/42e31329-43c9-433b-89fb-7e3fc4f30493/ChildhoodArthritis_July23_2020.pdf
Corporate Author
Arthritis Society
Responsibility
Revised by Shirley ML Tse, MD, FRCPC , Associate Professor, University of Toronto, Program Director, Division of Rheumatology, SickKids. *Review support by Pamela Jarvis, RSSW, Arthritis Society and Michelle Bridge, OT Reg. (Ont.), ACPAC, Arthritis Society.
Edition
6th ed.
Place of Publication
Toronto, ON
Publisher
Arthritis Society
Publication Date
2020
Physical Description
PDF; 24 pages
Subject
Juvenile Idiopathic Arthritis
Juvenile Rheumatoid Arthritis
Abstract
You, Your Child [and] Arthritis is a valuable resource for families of children with juvenile arthritis (JA). This guide provides the information parents/caregivers need to understand their child?s disease and to feel comfortable caring for them. It also covers the different types of juvenile arthritis, current treatments including medications, and other important elements of treatment, such as physiotherapy and occupational therapy. In addition, there are important sections for parents/caregivers learning to cope with a child who has a chronic disease. Pediatric rheumatology teams across Canada recommend and endorse this resource for all families of children with arthritis.
Language
English
Material Type
Booklet
Online
URLs
https://arthritis.ca/getmedia/42e31329-43c9-433b-89fb-7e3fc4f30493/ChildhoodArthritis_July23_2020.pdf
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Understanding type 1 diabetes in the family: Written by doctors for kids

https://bcch.andornot.com/en/permalink/catalog121350
Renfrew, Ruth, deLoache, Shawn. New York, NY: Jumo , 2018.
Material Type
Booklet
Call Number
JUNIOR FL 800 REN 2018
Availability
1 copy, 1 available
In graphic novel format, the Medikidz, superheroes from the planet Mediland, help Caitlin and Daniel understand diabetes and how it can affect them and their family.
More Information
Alternate Title
Medikids
Author
Renfrew, Ruth
deLoache, Shawn
Editor
Quigley, Columba
Ferreira, Marcelo
Place of Publication
New York, NY
Publisher
Jumo
Publication Date
2018
Physical Description
Softcover; 12 p.
Series
Medikids
Subject
Diabetes
Diabetes Mellitus - Children
Diabetes Mellitus - Young Adults
Abstract
In graphic novel format, the Medikidz, superheroes from the planet Mediland, help Caitlin and Daniel understand diabetes and how it can affect them and their family.
Language
English
Material Type
Booklet
Call Number
JUNIOR FL 800 REN 2018

Copies

Copy 1 BC Children's and Women's Family Library Available
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Cannabis talk kit: Know how to talk with your teen

https://bcch.andornot.com/en/permalink/catalog120198
Drug Free Kids Canada. [Toronto, ON]: Drug Free Kids Canada , 2016.
URL
https://www.drugfreekidscanada.org/wp-content/uploads/pdf/Cannabis-Talk-Kit_EN.pdf
Material Type
Booklet
Call Number
DB 650 DRU 2016
Availability
1 copy, 1 available
This talk kit is designed to help families have an open dialogue with teenagers about any issue, but cannabis in particular.
More Information
  1 url  
URL
https://www.drugfreekidscanada.org/wp-content/uploads/pdf/Cannabis-Talk-Kit_EN.pdf
Corporate Author
Drug Free Kids Canada
Place of Publication
[Toronto, ON]
Publisher
Drug Free Kids Canada
Publication Date
2016
Physical Description
Softcover, 23 p.
Subject
Marijuana. Pot
Abstract
This talk kit is designed to help families have an open dialogue with teenagers about any issue, but cannabis in particular.
Language
English
Material Type
Booklet
Call Number
DB 650 DRU 2016

Copies

Copy 1 BC Children's and Women's Family Library Available
URLs
https://www.drugfreekidscanada.org/wp-content/uploads/pdf/Cannabis-Talk-Kit_EN.pdf
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8 records – page 1 of 1.