Author

Nimmo, Stephanie

Place of Publication

London, UK

Publisher

Jessica Kingsley Publishers

Publication Date

2024

Physical Description

Softcover; 272 pages

Subject

Coping with Chronic Illness-Children

Caregivers-Coping

Caregivers for a Dying Loved One

Abstract

Every parent wants the same thing: for their child to enjoy a long and fulfilling life. But what happens when things don't go according to plan? What happens when parents have to become advocates for their child's healthcare needs? Who decides what is in a child's 'best interests'?

Stephanie Nimmo faced these questions first-hand when her daughter, Daisy, was diagnosed with a life-limiting condition as a baby. Seen through the lens of Stephanie's own experiences, this sensitive book delves into the complex world of medical ethics and pediatric palliative care. From recognizing tipping points to the importance of building relationships with palliative care teams well before crisis, this book explores how medical professionals can better support families throughout their child's care.

Interviews with clinicians and snapshots from the lives of patients' families provide insight into the realities of life on both sides of the hospital bed. Compassionate explanations of the conflicting pressures in the hospital system foster understanding and help medical professionals and families work together.

ISBN

5727227010272

Language

English

Material Type

Book

Call Number

EF 850.5 NIM 2024

Copies

Author

Olsher, Sara

Rogers, Jenni

Place of Publication

Happy Valley, OR

Publisher

Mighty and Bright

Publication Date

2023

Physical Description

Softcover; 39 pages

Subject

Coping with Chronic Illness in the Family

Abstract

Join Mia and Stewart as they learn how bodies work, why some bodies don't always feel good, and what to do when someone they love has an illness that won't go away.

ISBN

9798986776538

Language

English

Material Type

Book

Call Number

JUNIOR EF 860 OLS 2023

Copies

Author

Hammarrenger, Benoit

Place of Publication

TBD

Publisher

Editions Midi trente

Publication Date

2022

Subject

Parenting

Abstract

Dans le cadre de sa pratique comme psychologue et neuropsychologue, Benoît Hammarrenger rencontre souvent des parents qui souhaitent améliorer leurs relations avec leurs enfants et leurs adolescents. Ceux-ci lui racontent alors toutes sortes de situations marquées par des crises, de l'opposition, de la tristesse, de l'anxiété ou de la colère, mais aussi par leur propre sentiment d'impuissance en regard de la distance qu'ils voient s'installer entre les membres de la famille. Or, au fil des ans, Benoît a observé qu'une constante se dégage de toutes les situations de détresse familiale. Cette constante, c'est le besoin de cultiver une meilleure communication, c'est-à-dire une communication profonde et authentique, au-delà des mots, là où se jouent les vrais enjeux. Selon lui, il existe sept clés essentielles à l'établissement d'une communication saine et enrichissante dans la famille :

- Être à l'écoute des émotions des jeunes et se placer en synchronie avec eux

- Laisser une place à la colère en montrant qu'il s'agit d'une émotion légitime

- Cultiver l'empathie et l'esprit d'équipe entre frères et soeurs

- Installer une autorité parentale légitime, que les enfants auront envie de suivre

- Aider les jeunes à mieux connaître leurs parents pour consolider leur lien avec eux

- Composer avec les enjeux spécifiques de l'adolescence

- Tenter de comprendre ce que le jeune vit et cherche vraiment à exprimer, alors que ses habiletés de communication sont encore en construction.

Dans ce nouveau livre accessible et teinté d'humour, Benoît aide les parents à faire alliance avec leur jeune, à créer un climat sain dans la famille... et il en profite pour leur rappeler d'arrêter de parler de bière lorsque leur jeune, lui, parle d'ours

ISBN

9782925213147

Language

French

Material Type

Book

Call Number

GK 600 HAM 2022

Copies

Author

Kuttner, Leora

Carlson, Torie

Place of Publication

[Vancouver], BC

Publisher

BC Children's Hospital

Publication Date

2022

Physical Description

Softcover : 29 pages

Subject

Pain Control

Mind/Body

Abstract

This book features reflections and case studies by clinicians trained to use a range of mind-body techniques that have been shown, through research, to relieve pain and anxiety and to empower children and their parents to cope with distressing invasive procedures and medical interventions.

Language

English

Material Type

Book

Call Number

FM 820 KUT 2022

Copies

Author

Schrooten, A.F.

Markovitz, B.P.

Place of Publication

Switzerland

Publisher

Springer International Publishing AG

Publication Date

2021

Physical Description

251 pages

Subject

Coping with Chronic Illness-Children

Abstract

This book tells true and poignant stories from both sides of the physician-patient/parent relationship and provides a unique glimpse into how parents and physicians think, feel, and interact. The stories are grouped under four sections: Hope, Compassion, Communication, and Trust.

Each section includes stories contributed by parents from all across the United States and by pediatricians practicing at many of the best children's hospitals throughout the country. The parents tell of interactions with physicians that had a significant impact on them and their child and offer context and insight that promote empathy and reflection. The physicians tell of interactions with patients and families that served as learning moments in their career and promote the humanization of medicine and show there is more to a physician beyond their scientific knowledge and white coat.

The stories are edited by Barry P. Markovitz - a pediatrician specializing in critical care medicine who has been in practice for more than 20 years and by Ann F. Schrooten - the parent of a child born with a chronic complex condition who has more than 15 years of experience interacting with pediatric subspecialists and other healthcare professionals who cared for her son. The editors have written commentaries to the stories to provide an independent perspective on the events and messages conveyed and to encourage reflection, inquiry, and discussion.

In addition to being a valuable resource for pediatricians, pediatric subspecialists, nurses and other healthcare professionals, the book will also appeal to families of children living with complex medical conditions because it shares physician encounters and behaviors many have experienced in the care of their own children. By giving a voice to both parents and physicians, the goal is to create a bridge to better understanding that can improve communication, minimize conflicts, and foster trust and compassion among physicians, patients, and families.

ISBN

9783030680206

Language

English

Material Type

Book

Call Number

EF 850.5 SCH 2021b

Copies

Author

Sileo, Frank J.

Potter, Carol S.

Place of Publication

Washington, DC

Publisher

American Psychological Association

Publication Date

2021

Physical Description

Softcover; 419 pages

Subject

Coping with Chronic Illness-Children

Coping with Chronic Illness in the Family

Coping with Chronic Illness-Young Adult

Abstract

Written by leading mental health professionals, this warm and accessible parenting book for children with chronic illnesses offers clear, practical guidance for all aspects of the journey. It is recommended by professionals at the American Diabetes Association, Invisible Disabilities Association, the Crohn's Colitis Foundation, and other expert national and regional sources.

For all its joys, parenting is a complex job, and when your child has a chronic illness, the stress can feel overwhelming. When your child is diagnosed, you begin a parenting journey filled with strong emotions, difficult choices, confusing words, and interactions with numerous professionals and specialists.

You're focused on ensuring your child gets the best possible treatments for their symptoms, so it's easy to overlook or dismiss the impact the illness can have on your relationships and emotions. This book places your psychological well-being front and center, so you can be the best caregiver possible for your child.

Along with suggestions for making laughter and mindfulness part of your daily self-care routine, it offers guidance for choosing the right therapist for your family, should extra support be needed. Every family's journey with chronic illness is unique, but you don't have to go it alone.

ISBN

9781433833816

Language

English

Material Type

Book

Call Number

EF 850.5 SIL 2021

Copies

Author

Anderson

Place of Publication

[Victoria, BC?]

Publisher

Tellwell Talent

Publication Date

2020

Physical Description

25 pages

Subject

Chronic Fatigue Syndrome

Abstract

What You See is Not How I Feel is a visually simple overview of how living with Chronic Fatigue feels. It opens conversation, clears misperceptions, and encourages understanding rather than judgement. Appropriate for children, adults, and professionals, and those with similar chronic illnesses; Fibromyalgia, Lyme, Multiple Sclerosis, Myalgic Encephalomyelitis, and Systemic Exertion Intolerance Disease.

ISBN

9780228819684

Language

English

Material Type

Book

Call Number

FG 375 AND 2020

YOUTH FG 275 AND 2020

Copies

Author

deLoache, Shawn

Maxwell, Kimberley

Editor

Medikidz USA Inc.

Place of Publication

New York, NY

Publisher

Jumo

Publication Date

2020

Physical Description

Softcover; 11 p.

Subject

Chronic Kidney Failure

Abstract

Comic book featuring Medikidz, superhero experts on health and illness. Explains what happens inside the body when a person has chronic kidney disease. Also explains how treatments work, and why eating healthy food is important.

Ages 7-12

ISBN

9781644551561

Language

English

Material Type

Book

Call Number

JUNIOR FP 440 DEL 2020

Copies

Author

Carter, Bryan D.

Kronenberger, William G.

Scott, Eric L.

Place of Publication

Oxford, UK

Publisher

Oxford University Press

Publication Date

2020

Physical Description

Softcover; 113 pages

Series

Programs that work

Subject

Coping with Chronic Illness Young Adult

Coping with Chronic Illness

Coping with Chronic Illness-Children

Abstract

Children and adolescents with chronic illnesses, particularly those accompanied by debilitating, painful, and/or fatiguing symptoms, face challenges that may prove disruptive to physical, psychological, and social development. Based on extensive research and clinical expertise, Children's Health and Illness Recovery Program (CHIRP) is an effective treatment program designed to build and maintain independence in young people with chronic illness.

This Teen and Family Workbook provides proven treatment activities designed to combat the additional stress faced by youth coping with long-term health problems. These tasks target key areas for improvement in physical functioning, school functioning, and personal functioning and support the creation of new tools for managing the impact of illness, such as stress management, coping and relaxation techniques, and communication skills. In-session and take-home activities outlined in this workbook are meant to accompany the companion CHIRP Clinician Guide. With the use of this workbook and supported by a network of clinicians, healthcare specialists, and school professionals, adolescents and their families can return to a better quality of life.

ISBN

9780190070472

Language

English

Material Type

Book

Call Number

EF 850.6 CAR 2020

Copies

Author

Carter, Bryan D.

Kronenberger, William G.

Scott, Eric L.

Brady, Christine E.

Place of Publication

Oxford, UK

Publisher

Oxford University Press

Publication Date

2020

Physical Description

Softcover; 173 pages

Series

Programs that work

Subject

Coping with Chronic Illness Young Adult

Coping with Chronic Illness

Coping with Chronic Illness-Children

Abstract

Youth with chronic illnesses face challenges that may prove disruptive to physical, psychological, and social development. Based on extensive research and clinical expertise, Children's Health and Illness Recovery Program (CHIRP) is an interdisciplinary cognitive behavioral and family systems-based treatment program designed to maximize the independent functioning of teens with chronic illness.

This Clinician Guide offers a detailed outline for implementing this manualized intervention and provides clear guidance as to the philosophy, pragmatics, and art of working with challenging pediatric conditions. Designed to accompany the CHIRP Teen and Family Workbook, this book addresses specific assessment measures and tools needed to establish a collaborative treatment team approach that incorporates the skills of the CHIRP clinician, primary and specialty care providers, and roles of other healthcare (physical therapists, occupational therapists, etc.) and educational professionals critical to the successful management and treatment of these youth.

ISBN

9780190070267

Language

English

Material Type

Book

Call Number

EF 850.6 CAR 2020b

Copies

Alternate Title

On ne se comprend plus ! : traverser sans dommage la periode des portes qui claquent entre 12 et 17 ans

Author

Filliozat, Isabelle

Place of Publication

Marabout, DL

Publisher

Vanves

Publication Date

2019

Physical Description

Softcover ; 249 p.

Subject

Young Adults Health Promotion

Young Adults-Mental Health. Psychology

Young Adults-Psychological Development

Young Adults-Education

Parenting

Abstract

Appréhender et tempérer les troubles de l'adolescence. Tous les ados ne se ressemblent pas. Certains vivent cette période repliés dans leur chambre, d'autres ne cessent de sortir. Certains perdent tout intérêt pour les études, d'autres sont toujours premiers, certains ont le joint aux lèvres dès le lever, d'autres n'y toucheraient pour rien au monde et d'autres encore oscillent entre les deux extrêmes. Il reste que certains traits se dégagent et que tous vivent une période complexe. Crise ? Oui, en quelque sorte. L'adolescent traverse une crise, une transformation. L'adolescence inquiète parce que les risques sont effectivement là. Et pour traverser cette étape, Les ados ont besoin de leurs parents. A leurs côtés et non en face d'eux. Conçu comme les précédents - par tranche d'âge -, ce livre explore la psychologie des adolescents, ainsi que certaines composantes biologiques et physiologiques, et aide ainsi à poser un regard nouveau sur les motivations de leurs comportements.

ISBN

9782709658614

Language

French

Material Type

Book

Call Number

GL 300 FIL 2017

Copies

Author

Telgemeier, Raina

Place of Publication

New York, NY

Publisher

Graphix

Publication Date

2019

Physical Description

Paperback; graphic novel; 211p.

Subject

Anxiety

Stress

Children's Anxiety

Children's Emotions

Chronic Illness

Abstract

Raina wakes up one night with a terrible upset stomach. Her mom has one, too, so it's probably just a bug. Raina eventually returns to school, where she's dealing with the usual highs and lows: friends, not-friends, and classmates who think the school year is just one long gross-out session. It soon becomes clear that Raina's tummy trouble isn't going away... and it coincides with her worries about food, school, and changing friendships.

ISBN

9780545852500

Language

English

Material Type

Book

Call Number

JUNIOR CD 420 TEL 2019

Copies

Editor

Pearson, Neil

Prosko, Shelly

Sullivan, Marlysa

Place of Publication

Philadelphia

Publisher

Singing Dragon

Publication Date

2019

Physical Description

Hardcover ; 320 p.

Subject

Chronic Pain

Yoga

Complementary Therapies

Abstract

This book takes an integrated approach to pain rehabilitation and combines pain science, rehabilitation and yoga with evidence-based approaches from respected contributors. They demonstrate how to integrate the concepts, philosophies and practices of yoga and pain science in working with people in pain. The book expounds on the movement to a more patient-valued, partnership-based biopsychosocial-spiritual model of healthcare in which the patient is an active and empowered participant, as opposed to a model in which the healthcare provider is 'fixing' the passive patient.

ISBN

9781848193970

Language

Editions Heritage

Material Type

Book

Call Number

FM 880 PEA 2019

Copies

Author

Zoffness, Rachel

Krane, Elliot J.

Publisher

New Harbinger Publications

Publication Date

2019

Physical Description

155 pages

Subject

Coping with Pain

Chronic Pain

Coping with Chronic Illness Young Adult

Abstract

This workbook blends cognitive behavioral therapy (CBT) and mindfulness-based stress reduction (MBSR). You will learn how pain affects both your mind and body, how negative emotions can make pain worse, and strategies to help you turn the volume down on your pain, so you can go back to enjoying activities that you love. You'll also learn mindfulness and relaxation exercises, including belly breathing and body scan to help manage pain in the moment. The exercises and strategies in this book are rooted in research, fun to learn, and easy to practice. For ages 12+.

ISBN

9781684033522

Language

English

Material Type

Book

Call Number

YOUTH FM 850 ZOF 2019

Copies

Author

Bernhard, Toni

Place of Publication

Somerville, MA

Publisher

Wisdom Publications

Publication Date

2018

Physical Description

Softcover ; xvii, 191 p.

Subject

Chronic Illness

Emotional Health

Mental Health

Abstract

"This life-affirming, instructive and thoroughly inspiring book is a must-read for anyone who is, or who might one day be, sick. And it can also be the perfect gift of guidance, encouragement, and uplifting inspiration to family, friends, and loved ones struggling with the many terrifying or disheartening life changes that come so close on the heels of a diagnosis of a chronic condition or even life-threatening illness." --Publisher

Notes

Recommended by CCDP

ISBN

9780861716265

Language

English

Material Type

Book

Call Number

EF 800 BER 2010

Copies

Author

Maxwell, Kimberley

deLoache, Shawn

Editor

Medikidz USA Inc.

Place of Publication

New York, NY

Publisher

Jumo

Publication Date

2018

Physical Description

Softcover; 16 p.

Subject

Chronic Myelocytic Leukemia. Chronic Myelogenous Leukemia. Chronic Granulocytic Lukemia

Abstract

Comic book featuring Medikidz, superhero experts on health and illness. Explores how chronic myeloid leukemia affects the body, and how different treatments work.

Language

English

Material Type

Book

Call Number

JUNIOR FE 354 MAX 2018

Copies

Author

Renfrew, Ruth

deLoache, Shawn

Editor

Medikidz USA Inc.

Place of Publication

New York, NY

Publisher

Jumo

Publication Date

2018

Physical Description

Softcover; 16 p.

Subject

Chronic Illness

Abstract

Comic book featuring Medikidz, superhero experts on health and illness. Explains how chronic illness can affect individuals and their families.

Language

English

Material Type

Book

Call Number

JUNIOR EF 800 REN 2018

Copies

Author

Godin, Nathalie

Place of Publication

Saint Lambert, QC

Publisher

La Roupille

Publication Date

2018

Physical Description

Softcover ; 396 p.

Subject

Pain

Abstract

Grâce à son approche accessible et personnelle, l'auteure, elle-même atteinte de douleur chronique causée par la fibromyalgie, partage avec nous ses recherches, apprentissages et expériences des vingt dernières années. Elle nous propose une foule d'astuces pour apprivoiser la souffrance au quotidien et apprendre à s'en faire une alliée.

ISBN

9782924304150

Language

French

Material Type

Book

Call Number

FM 830 GOD 2018

Copies

Author

Oliva-Hemker, Maria (ed.)

Ziring, David (ed.)

Bousvaros, Athos (ed.)

Corporate Author

North American Society for Pediatric Gastroenterology, Hepatology and Nutrition

Place of Publication

Baltimore, MD

Publisher

Johns Hopkins Press

Publication Date

2017

Physical Description

Softcover, 278 p.

Subject

Inflammatory Bowel Disease

Inflammatory Bowel Disease-Coping

Inflammatory Bowel Disease-Therapy

Inflammatory Bowel. Disease-Diet

Pain

Abstract

In this book, an expert team of pediatric gastroenterologists explains the symptoms, diagnoses, and treatments associated with Crohn disease, ulcerative colitis, and indeterminate colitis to help parents and children cope with the challenges of IBD. Also provides parents with practical advice on how to tell their children about their IBD and discusses the challenges children may face at school and in their social lives, especially as they grow older. Also includes information on IBD medications, complementary treatments, and suggestions for further reading.

ISBN

9781421423517

1421423510

Language

English

Material Type

Book

Call Number

FK 620 OLI 2017

Copies

Alternate Title

[Bientot ados !: petit guide sans tabou de la puberte]

Author

Bailey, Jacqui

Naylor, Sarah

Place of Publication

France

Publisher

Casterman

Publication Date

2017

Physical Description

Hardcover ; 79 p., illustrations

Subject

Young Adults-Life Transitions

Puberty

Abstract

Tu as dix ans, un peu plus, un peu moins, et tu sais déjà que, dans la grande famille humaine, garçons et filles ne sont pas tout à fait pareils. Tu sais aussi, bien sûr, que les enfants ne naissent pas dans les choux.Mais as-tu idée de ce qui t'attend bientôt ? La puberté ! D'incroyables changements te guettent, qui bouleverseront ton corps... de la tête aux pieds.C'est cette période vraiment pas comme les autres que cet ouvrage présente en répondant à toutes les questions qui te tracassent.Avec franchise et bonne humeur, ce livre parle de toi, de moi... de nous tous !

ISBN

9782203141384

Language

French

Material Type

Book

Call Number

JUNIOR GK 305 BAI 2017

Copies