Author

Bula, Ania

Place of Publication

Durham, North Carolina

Publisher

Pitchstone Publishing

Publication Date

2016

Physical Description

Softcover ; 224 p.

Subject

Chronic Illness

Abstract

"Drawing on her own deeply personal experiences, Ania Bula explores what it is like to live with unseen chronic disabilities. She paints a vibrant picture of what it is like to be diagnosed with two life-long debilitating conditions as a young adult and relates the challenges and frustrations of dealing with predatory alternative medicine practitioners, arrogant doctors, indifferent bureaucracies, and well-meaning friends and family who always seem to say either the wrong thing-or nothing at all. As she discovered, suddenly everyone's aunt is a health expert and everyone's fad diet a cure. Making matters worse, her physical torment quickly translated into mental stresses. Relationships became strained, while others, including all-important romantic ones, never had a chance to start at all. Wading through a constant stream of ignorance and lies, in a desperate attempt to find peace, to stop the pain, and to return to a more normal life, she submits to being stuffed with powders and magic potions, poked and prodded, and even "faith healed." With honesty and humor, she shares her journey of pain, suffering, and, ultimately, coping, both to help others gain some understanding about what it is like to live with chronic illness-and to help those who might similarly suffer feel less alone, so that they too might start living again.

"Drawing on the author's personal experiences with her own physical and mental health struggles, the book explores what it is like to live with chronic disabilities as a young adult"-- Provided by publisher

Notes

Recommended by CCDP

ISBN

9781634310734

Language

English

Material Type

Book

Call Number

EF 800 BUL 2016

Copies

Author

Bernhard, Toni

Place of Publication

Somerville, MA

Publisher

Wisdom Publications

Publication Date

2018

Physical Description

Softcover ; xvii, 191 p.

Subject

Chronic Illness

Emotional Health

Mental Health

Abstract

"This life-affirming, instructive and thoroughly inspiring book is a must-read for anyone who is, or who might one day be, sick. And it can also be the perfect gift of guidance, encouragement, and uplifting inspiration to family, friends, and loved ones struggling with the many terrifying or disheartening life changes that come so close on the heels of a diagnosis of a chronic condition or even life-threatening illness." --Publisher

Notes

Recommended by CCDP

ISBN

9780861716265

Language

English

Material Type

Book

Call Number

EF 800 BER 2010

Author

Selak, Joy H.

Overman, Steven S.

Edition

2nd Ed

Place of Publication

New York

Publisher

Demos Health

Physical Description

Softcover ; xxviii, 166 p.

Subject

Chronic Illness

Abstract

"You DonÌt Look Sick chronicles one personÌs true-life story of illness and her physicians compassionate commentary as they journey through the four stages of chronic illnessÛGetting Sick, Being Sick, Grief and Acceptance and Living Well. The authors address such practical aspects as hiring a doctor, managing chronic pain, coping with grief and loss of function, winning battles with health and disability insurers, countering the social bias against the chronically ill, and recognizing the limitations of chronic illness care and charting a path for change and more. This warmhearted resource helps you focus on building a meaningful life as opposed to a life of frustration and fear. This book is thoroughly revised and updated based upon feedback from readers of the first edition. The authors have added a new section on Grief and Acceptance, address the passage of the Affordable Health Care Act and Dr. Overman has added practical travel tips that bring organization and focus to each phase of the journey. Designed for people at all stages of the chronic illness journey, this book is also illuminating for caregivers and loved ones"--from the Publisher

ISBN

9781936303427

Language

English

Material Type

Book

Call Number

EF 800 SEL 2013

Copies

Author

Fennell, Patricia A.

Place of Publication

Latham, New York

Publisher

Albany Health Management Publishing

Publication Date

2012

Physical Description

Softcover ; 253 p.

Subject

Chronic Illness

Abstract

This book "brings clarity and order to what feels like an unmanageable and isolating experience. It shows both those who are ill and those who care for them how to live a full and meaningful life despite undeniable difficulties. Using her extensive experience with chronic illness patients, Patricia Fennell has created an original, comprehensive, research-validated approach that considers not only the physical aspects of chronic illness, but the psychological, social, and economic aspects as well"--from the Publisher

ISBN

9780979640711

Language

English

Material Type

Book

Call Number

EF 800 FEN 2012

Copies

Author

Carter, Bryan D.

Kronenberger, William G.

Scott, Eric L.

Brady, Christine E.

Place of Publication

Oxford, UK

Publisher

Oxford University Press

Publication Date

2020

Physical Description

Softcover; 173 pages

Series

Programs that work

Subject

Coping with Chronic Illness Young Adult

Coping with Chronic Illness

Coping with Chronic Illness-Children

Abstract

Youth with chronic illnesses face challenges that may prove disruptive to physical, psychological, and social development. Based on extensive research and clinical expertise, Children's Health and Illness Recovery Program (CHIRP) is an interdisciplinary cognitive behavioral and family systems-based treatment program designed to maximize the independent functioning of teens with chronic illness.

This Clinician Guide offers a detailed outline for implementing this manualized intervention and provides clear guidance as to the philosophy, pragmatics, and art of working with challenging pediatric conditions. Designed to accompany the CHIRP Teen and Family Workbook, this book addresses specific assessment measures and tools needed to establish a collaborative treatment team approach that incorporates the skills of the CHIRP clinician, primary and specialty care providers, and roles of other healthcare (physical therapists, occupational therapists, etc.) and educational professionals critical to the successful management and treatment of these youth.

ISBN

9780190070267

Language

English

Material Type

Book

Call Number

EF 850.6 CAR 2020b

Copies

Author

Coaklly, Rachael

Publisher

Yale University Press

Publication Date

2016

Physical Description

Softcover ; xxiv, 325 p.

Subject

Children's Health - Pain Control

Chronic Pain

Pain

Abstract

"Parents of a child in pain want nothing more than to offer immediate comfort. But a child with chronic or recurring pain requires much more. His or her parents need skills and strategies not only for increasing comfort but also for helping their child deal with an array of pain-related challenges, such as school disruption, sleep disturbance, and difficulties with peers. This essential guide, written by an expert in pediatric pain management, is the practical, accessible, and comprehensive resource that families and caregivers have been awaiting. It offers in-the-moment strategies for managing a child?s pain along with expert advice for fostering long-term comfort.

"Dr. Rachael Coakley, a clinical pediatric psychologist who works exclusively with families of children with chronic or recurrent pain, provides a set of research-proven strategies?some surprisingly counter-intuitive?to achieve positive results quickly and lastingly. Whether the pain is disease-related, the result of an injury or surgery, or caused by another condition or syndrome, this book offers what every parent of a child in pain most needs: effective methods for reversing the cycle of chronic pain"--from the Publisher.

ISBN

9780300204650

Language

English

Material Type

Book

Call Number

GK 285 COA 2016

Copies

Author

Donoghue, Paul J.

Siegel, Mary E.

Place of Publication

New York, NY

Publisher

W.W. Norton & Company, Inc.

Publication Date

2000

Physical Description

Softcover, 304 pages

Subject

Lifestyle changes with chronic illness

Abstract

Unlike a leg in a cast, invisible chronic illness (ICI) has no observable symptoms. Consequently, people who suffer from chronic fatigue, chronic pain, and many other miseries often endure not only the ailment but dismissive and negative reactions from others.

Since its first publication, Sick and Tired of Feeling Sick and Tired has offered hope and coping strategies to thousands of people who suffer from ICI. Paul Donoghue and Mary Siegel teach their readers how to rethink how they themselves view their illness and how to communicate with loved ones and doctors in a way that meets their needs. The authors' understanding makes readers feel they have been heard for the first time.

For this edition, the authors include a new introduction drawing on the experiences of the many people who have responded to the book and to their lectures and television appearances. They expand the definition of ICI to include other ailments such as depression, addiction, and obsessive-compulsive disorders. They bring the resource material, including Web sites, up to the present, and they offer fresh insights on four topics that often emerge: guilt, how ICI affects the family, meaningfulness, and defining acceptance.

Notes

Recommended by CCDP

ISBN

9780393320657

Language

English

Material Type

Book

Call Number

EF 820 DON 2000

Copies

Author

Christy, Elizabeth M.

Miller, James G. (illustrator)

Place of Publication

Denver, Colorado

Publisher

Outskirts Press, Inc.

Publication Date

2014

Physical Description

Softcover ; [18 p.], illustrations

Subject

Chronic Illness

Chronic Pain

Fibromyalgia. Fibrositis

Coping with Chronic Illness-Children

Abstract

The children of people with chronic illness and pain suffer quietly. "Why Does Mommy Hurt?" is a joyful, yet honest, portrayal of family life burdened with chronic illness. This is a delightful story told by a young boy learning to understand and cope with his mother's illness. The story creates natural opportunities for families to talk about both the symptoms of chronic illness, and how they affect family life. Even more importantly, the story puts power into the hands of the children. It also offers a helpful "Tips and Resources" section for parents! This book is appropriate for a wide-variety of illnesses associated with chronic pain, such as: Lupus, Lyme Disease, ME, CFS, Fibromyalgia, Arthritis, Multiple Sclerosis, Autoimmune Disease, and many others.

Notes

Recommended by CCDP

ISBN

9781478732969

Language

English

Material Type

Book

Call Number

JUNIOR EF 850.5 CHR 2014

Copies

Author

Cooper, Celeste

Miller, Jeffrey

Place of Publication

Rochester, VT

Publisher

Healing Arts Press

Publication Date

2010

Physical Description

Softcover ; xiv, 433 p.

Subject

Chronic Fatigue Syndrome

Fibromyalgia. Fibrositis

Myofascial Pain Syndrome

Mind/Body

Abstract

Fibromyalgia, chronic myofascial pain, and chronic fatigue are often seen as interchangeable conditions, a belief held even by many health care providers. Nothing could be further from the truth-however, they do often coexist. Knowing if more than one of these disorders is present is extremely important, because the treatment for one of them can often exacerbate the problems caused by the others. Written by a registered nurse and a psychologist who has been treating these conditions since 1994, this book presents an integrative medical approach to these three disorders with a strong emphasis on utilizing and strengthening the mind-body connection to restore well-being. The authors begin with clear diagnostic guidelines for each condition and reference the latest scientific research on what causes these illnesses. Because many medical practitioners are relatively unfamiliar with these disorders, it can take several medical visits to arrive at a definitive diagnosis. Clear communication with medical personnel is key to diagnostic success. This book provides invaluable advice on how to describe symptoms, document health history, and keep a log of medical appointments. Included are interactive worksheets to facilitate these activities. The authors provide a thorough guide to numerous treatment options-from diet, exercise, and herbs to mindfulness meditation, yoga, and nonsteroidal anti-inflammatory drugs (NSAIDs). They also offer techniques to dispel the "brain fog" that these illnesses can create, offer guidance on the psychological issues that accompany these chronic pain disorders, and provide advice on how to build a personal support team. The final chapter gives advice on how to navigate the health care system, including step-by-step instructions for preparing an application to the Social Security Administration for disability benefits. An extensive resource section provides a wealth of contact information for helpful agencies and organizations, good sources for medical supplies, and a wide selection of suggested further reading. In short, this integrative treatment guide will open the door not only to physical recovery but also to emotional, mental, and spiritual well-being.

ISBN

9781594773235

Language

English

Material Type

Book

Call Number

FB 500 COO 2010

Copies

Author

Kabat-Zinn, Jon

Edition

Revised and updated edition

Publisher

Random House

Publication Date

2013

Physical Description

Softcover; 650 pages

Subject

Mindfulness

Chronic Illness

Anxiety

Abstract

Stress. It can sap our energy, undermine our health if we let it, even shorten our lives. It makes us more vulnerable to anxiety and depression, disconnection and disease. Based on Jon Kabat-Zinn's renowned mindfulness-based stress reduction program, this classic, groundbreaking work - which gave rise to a whole new field in medicine and psychology -

shows you how to use medically proven mind-body approaches derived from meditation and yoga to counteract stress, establish greater balance of body and mind, and stimulate well-being and healing. By engaging in these mindfulness practices and integrating them into your life from moment to moment and from day to day, you can learn to manage chronic pain, promote optimal healing, reduce anxiety and feelings of panic, and improve the overall quality of your life, relationships, and social networks. This second edition features results from recent studies on the science of mindfulness, a new Introduction, up-to-date statistics, and an extensive updated reading list. Full Catastrophe Living is a book for the young and the old, the well and the ill, and anyone trying to live a healthier and saner life in our fast-paced world.

ISBN

9780749958411

Language

English

Material Type

Book

Call Number

EG 225 KAB 2013

Copies

Author

Kabat-Zinn, Jon

Edition

Tenth anniversary edition

Place of Publication

New York, NY

Publisher

Random House Audio

Publication Date

2008

Physical Description

5 CD set

Subject

Mindfulness

Chronic Illness

Anxiety

Abstract

Stress. It can sap our energy, undermine our health if we let it, even shorten our lives. It makes us more vulnerable to anxiety and depression, disconnection and disease. Now, based on Dr. Jon Kabat-Zinn's renowned mindfulness-based stress reduction program, this groundbreaking audiobook shows you how to use natural, medically proven methods to soothe and heal your body, mind, and spirit.

Recommended by CCDP

Language

English

Material Type

CD

Audio

Call Number

EG 225 KAB 2008

Copies

Author

Camerona, Laura

Publisher

Words Worth Repeating

Publication Date

2021

Physical Description

Softcover; 32 pages

Subject

Sibling Relationships

Abstract

"All Siblings Are Important" is a book about all kinds of sibling relationships. This book honors the many feelings that come with being a sibling and is a good conversation starter for caregivers who want to talk to children about the dynamics or feelings happening within a sibling relationship or because of a sibling's struggles.

ISBN

9798987352915

Language

English

Material Type

Book

Call Number

JUNIOR CF 150 CAM 2021

Copies

Author

Olsher, Sara

Rogers, Jenni

Place of Publication

Happy Valley, OR

Publisher

Mighty and Bright

Publication Date

2023

Physical Description

Softcover; 39 pages

Subject

Coping with Chronic Illness in the Family

Abstract

Join Mia and Stewart as they learn how bodies work, why some bodies don't always feel good, and what to do when someone they love has an illness that won't go away.

ISBN

9798986776538

Language

English

Material Type

Book

Call Number

JUNIOR EF 860 OLS 2023

Copies

URL

http://www.phsa.ca/our-services-site/Documents/Partnership%20Guide%20Susan%20Poitras%20%28c%29%20July%202020.pdf

Corporate Author

Ethics Department and Patient Partners

Place of Publication

Vancouver, BC

Publisher

BC Children's Hospital & BC Women's Hospital + Health Centre

Publication Date

2020

Physical Description

21 pages

Subject

Pain Control

Abstract

This resource from BC Children?s Hospital can support families to explore their perspectives together and incorporate ways to foster the appropriate inclusion of children in healthcare decisions.

The Partnership Guide was developed to improve the guidance, support and participation of children aged 7-14 years with serious illness. This education resource provides up to date research knowledge in the area of child participation, pediatric decision making and child-focused activities and interventions to support children with this process.

Fostering the developing autonomy of children is an essential ethical principle and this guide supports the inclusion of children in decision-making to their ability and desire, to participate in decisions that impact their health.

Language

English

Material Type

Online

Booklet

Author

Kabat-Zinn, Jon

Place of Publication

Boulder, CO

Publisher

Sounds True

Publication Date

2010

Physical Description

2 CDs ; 105 minutes

Subject

Pain Control-Complementary Therapies

Mindfulness

Meditation

Chronic Pain

Abstract

We know that practicing mindfulness in everyday life can help us reduce stress and cultivate deep, embodied well-being, but what about its effects on physical and emotional pain, especially when it seems overwhelming or unrelenting? Mindfulness Meditation for Pain Relief is a soothing program with guided meditations and teachings. It opens with an overview of seven fundamental attitudes we can develop to cultivate mindfulness in relationship to chronic pain and its incessant challenges, and follows with concepts and practices including: mindful breathing, working with intense sensations, befriending thoughts and emotions, finding refuge in awareness, and bringing mindfulness into every life.

Notes

Recommended by CCDP

ISBN

9781591797401

Language

English

Material Type

Audio

CD

Call Number

FM 880 KAB 2010

Copies

Author

Levine, Peter

Phillips, Maggie

Place of Publication

Boulder, CO

Publisher

Sounds True

Publication Date

2012

Physical Description

Softcover; 183 pages

Subject

Chronic Pain

Abstract

If you are suffering chronic pain―even after years of surgery, rehabilitation, and medication―only one question matters: How do I find lasting relief? With Freedom from Pain, two pioneers in the field of pain and trauma recovery address a crucial missing factor essential to long-term healing: addressing the unresolved emotional trauma held within the body.

ISBN

9781604076639

Language

English

Material Type

Book

CD

Call Number

FM 830 LEV 2012

Copies

Author

Butler, David S.

Moseley, G. Lorimer

Sunyata (Illustrator)

Place of Publication

Adelaide, Australia

Publisher

Noigroup Publications

Publication Date

2003

Physical Description

Softcover; 129 p.

Subject

Pain

Pain Control

Coping with Pain

Chronic Pain

Abstract

In everyday language accompanied by illustrations, this book discusses how pain responses are produced by the brain: how responses to injury from the autonomic motor and immune systems in your body contribute to pain, and why pain can persist after tissues have had plenty of time to heal. It aims to give clinicians and people in pain tools to learn about the processes involved during pain, and a scientific route to recovery.

Notes

Recommended by CCDP

ISBN

0-9750910-0

Language

English

Material Type

Book

Call Number

FM 800 BUT 2003

Copies

Author

Moseley, GL

Butler, DS

Place of Publication

Adelaide, Australia

Publisher

Noigroup Publications

Publication Date

2015

Physical Description

Softcover ; 49 p., ill., 8 pads of coloured stickies

Subject

Pain

Pain Control

Chronic Pain

Abstract

"The Explain Pain Handbook: Protectometer is a key element in the Explain Pain toolkit. An easily accessible book for people experiencing pain, it introduces the Protectometer, a ground breaking pain treatment tool.

"The Explain Pain Handbook: Protectometer helps you understand your personal pain formula, identify your DIMs (Danger in Me) and SIMs (Safety in Me) and provides six clear strategies for recovery from pain.

"This is your personal workbook. The Explain Pain Handbook: Protectometer is a stand-alone resource but if you want to delve deeper, Explain Pain is the ideal companion with clear links provided throughout"--from the Publisher

Notes

Recommended by CCDP

ISBN

9780975091098

Language

English

Material Type

Book

Call Number

FM 800 MOS 2015

Copies

Author

Haines, Steve

Standing, Sophie (ill.)

Publisher

Singing Dragon

Publication Date

2015

Physical Description

Graphic novel; [np]

Subject

Chronic Pain

Pain

Pain Control

Coping with Pain

Abstract

This graphic novel answers your questions about pain:

How can I change my pain experience?

What is pain?

How do nerves work?

Answering these questions and more, this research-based book reveals just how strange pain is and how understanding it is often the key to relieving its effects. With gentle humor, it explains pain in an easy-to-understand way and explores our remarkable ability to retrain the brain.

ISBN

9781848192645

Language

English

Material Type

Book

Call Number

FM 830 HAI 2015

Copies

Author

McGonigal, Kelly

Place of Publication

Oakland, CA

Publisher

New Harbinger Publications, Inc.

Publication Date

2009

Physical Description

Softcover: 176 p.

Subject

Pain Control-Complementary Therapies

Pain

Yoga

Abstract

Written by a yoga instructor and former chronic pain sufferer, this resource contains gentle postures and practical strategies for ending pain. Also includes: deep relaxation practices drawn from yogic tradition and psychological techniques for helping the reader dissolve pain.

Table of Contents:

Chapter 1: Understanding your pain

Chapter 2: Yoga: Reuniting body, mind, and spirit

Chapter 3: Breath

Chapter 4: Befriending the body

Chapter 5: Moving the body

Chapter 6: Relaxation

Chapter 7: Meditation

Chapter 8: Your personal yoga program

ISBN

9781572246898

Language

English

Material Type

Book

Call Number

FM 820 MCG 2009

Copies