URL

https://muscle.ca/wp-content/uploads/2019/09/DMDstandardsofcare-EN.pdf

Corporate Author

Muscular Dystrophy Canada

Place of Publication

Toronto, ON

Publisher

Muscular Dystrophy Canada

Publication Date

2019

Subject

Muscular Dystrophy

Abstract

This guide for families summarizes the results of an international consensus on the medical care of Duchenne muscular dystrophy (DMD). This effort was supported by the US Centers for Disease Control and Prevention (CDC), in collaboration with patient advocacy groups and the TREAT-NMD network. The main document is published in Lancet Neurology.

The recommendations are based on an extensive study by 84 international experts in DMD diagnosis and care chosen to represent a broad range of specialties. They independently ?rated? methods of care used in the management of DMD to say how ?necessary?, ?appropriate? or ?inappropriate? each one was at different stages of the course of DMD. In total they considered more than 70,000 different scenarios. This allowed them to establish guidelines that the majority agreed represented the best practice for DMD care.

Language

English

Material Type

Booklet

Online

URL

http://www.cw.bc.ca/library/pdf/Pamphlets/girlsspeakout.pdf

Website Notes

Click on the link above to view/print.

Author

Godard, Louise

Cory, Jill

Armstrong, Naomi et all.

Editor

Sullivan, Lana

Pederson, Ann

Pigeon, Marguerite

Place of Publication

[Vancouver, BC?]

Publisher

BC Women's Hospital + Health Centre

Publication Date

2016

Physical Description

PDF file, 129 p., ill.

Subject

Violence Prevention

Women's Health

Abstract

This resource provides information about violence and BC Women's Hospital and Health Centre, Girls Speak Out program, its curriculum and some recommended websites about this topic. It's aimed to support women with experiences of violence.

ISBN

0000000001234

Language

English

Material Type

Online

Booklet

URL

https://hollandbloorview.ca/services/programs-services/cp-booklet

Corporate Author

Holland Bloorview Kids Rehabilitation Hospital

Place of Publication

Toronto, ON

Publisher

Holland Bloorview Kids Rehabilitation Hospital

Physical Description

PDF; 23 pages

Subject

Cerebral Palsy

Abstract

From the authors:

"Many parents ask us, What can I read about cerebral palsy? This booklet was written to answer that very question. We hope this booklet will help explain what cerebral palsy (CP) is and what supports Holland Bloorview can offer."

Note: Pages 1-15 contain general information that may be helpful to families outside Ontario.

Language

English

Material Type

Booklet

Online

URL

http://www.cw.bc.ca/library/pdf/pamphlets/BC-Childrens-Partnership-Guide.pdf

Corporate Author

Ethics Department and Patient Partners

Place of Publication

Vancouver, BC

Publisher

BC Children's Hospital & BC Women's Hospital + Health Centre

Publication Date

2020

Physical Description

21 pages

Subject

Pain Control

Abstract

This resource from BC Children?s Hospital can support families to explore their perspectives together and incorporate ways to foster the appropriate inclusion of children in healthcare decisions.

The Partnership Guide was developed to improve the guidance, support and participation of children aged 7-14 years with serious illness. This education resource provides up to date research knowledge in the area of child participation, pediatric decision making and child-focused activities and interventions to support children with this process.

Fostering the developing autonomy of children is an essential ethical principle and this guide supports the inclusion of children in decision-making to their ability and desire, to participate in decisions that impact their health.

Language

English

Material Type

Online

Booklet

URL

https://scisexualhealth.ca/wp-content/uploads/2015/05/Pregnancy-and-SCI-booklet-V7.pdf

Corporate Author

Vancouver Coastal Health Sexual Rehabilitation Service

BC Women's Hospital and Health Centre Maternal Fetal Medicine Service

Rick Hansen Institute

Spinal Cord Injury BC (SCI BC)

Place of Publication

[Vancouver, BC?]

Publisher

Spinal Cord Injury Organization of BC

Publication Date

2015

Subject

Spinal Cord Injuries

Pregnancy/Childbirth

Prenatal Care

Postnatal Care

Abstract

We have created this booklet to highlight a number of key topics for women with SCI (spinal cord injury) and their families to consider during the perinatal period, defined as the time before conceiving (pre-conception), pregnancy, labour, delivery and postpartum (the first few days and weeks after a baby is born).

The topics covered in this guide are designed as a place to start the conversation with your health care providers as part of planning for your care.

Language

English

Material Type

Booklet

Online

Pregnancy and SCI booklet.pdf

Read PDF Download PDF

URL

https://www.lls.org/sites/default/files/2021-05/PS41_Understanding_Lab_Imaging_0120FINAL.pdf

Corporate Author

The Leukemia & Lymphoma Society

Place of Publication

White Plains, NY

Publisher

The Leukemia & Lymphoma Society

Publication Date

2020

Physical Description

PDF; 60 pages

Subject

Cancer-Diagnosis

Laboratory Tests/Values

Leukemia

Lymphoma

Abstract

Learn more about how lab and imaging tests are used to help detect (diagnose) and treat blood cancers (types of leukemia, lymphoma, myeloma, myelodysplastic syndromes and myeloproliferative disorders). Includes tips to help keep track of test results and a handout with suggested questions to ask your health provider.

Language

English

Material Type

Booklet

Online

Copies

URL

https://arthritis.ca/getmedia/42e31329-43c9-433b-89fb-7e3fc4f30493/ChildhoodArthritis_July23_2020.pdf

Corporate Author

Arthritis Society

Responsibility

Revised by Shirley ML Tse, MD, FRCPC , Associate Professor, University of Toronto, Program Director, Division of Rheumatology, SickKids. *Review support by Pamela Jarvis, RSSW, Arthritis Society and Michelle Bridge, OT Reg. (Ont.), ACPAC, Arthritis Society.

Edition

6th ed.

Place of Publication

Toronto, ON

Publisher

Arthritis Society

Publication Date

2020

Physical Description

PDF; 24 pages

Subject

Juvenile Idiopathic Arthritis

Juvenile Rheumatoid Arthritis

Abstract

You, Your Child [and] Arthritis is a valuable resource for families of children with juvenile arthritis (JA). This guide provides the information parents/caregivers need to understand their child?s disease and to feel comfortable caring for them. It also covers the different types of juvenile arthritis, current treatments including medications, and other important elements of treatment, such as physiotherapy and occupational therapy. In addition, there are important sections for parents/caregivers learning to cope with a child who has a chronic disease. Pediatric rheumatology teams across Canada recommend and endorse this resource for all families of children with arthritis.

Language

English

Material Type

Booklet

Online