Author

Amarante, Candace

Reed, Dave (Illust.)

Tsimicalis, Argerie (Ed.)

Place of Publication

Canada

Publisher

Tellwell Talent

Publication Date

2022

Physical Description

Softcover, 126 pages

Subject

Osteogenesis Imperfecta

Abstract

Ashling has broken her bones one hundred times. She was born with osteogenesis imperfecta (OI), a rare bone disorder, which makes her bones very fragile and brittle. Because of her condition, Ashling is in chronic pain and is often hospitalized.

Sixteen-year-old Ashling witnesses her eight-year-old sister, Skylar, fall and break her leg during ski practice. For the first time, Skylar experiences what Ashling goes through on a regular basis. Ashling helps Skylar deal with her pain the same way she usually does: by using her dream machine, a machine that conjures up stories of imaginary worlds to distract her from pain.

"Skylar: the rainbow seeker" is a riveting tale of rainbows, a talking mole, a wily fox and a sport-shoe crazed leprechaun, through which Ashling not only distracts her sister but also cleverly reveals a sad truth: because of her injury, Skylar will be unable to ski for the rest of the season nor accept a sponsorship from one of the biggest alpine ski companies to participate in an exclusive summer ski camp.

ISBN

9780228846529

Language

English

Material Type

Book

Call Number

YOUTH GI 365 AMA 2022

Copies

Author

Kinchlea, Daniel

Bañas, Ar-Em

Publication Date

2023

Physical Description

Paperback; [no pagination]

Subject

Autoimmune Diseases

Abstract

Written by 9-year-old Daniel Kinchlea, this story is all about the first fire dragon and their search for help. The story mirrors Daniel's own understanding of his diagnosis journey as a young child.

About the author: At one year old, Daniel was diagnosed with a rare autoinflammatory disease. Caused by one or more genetic mutations, some of Daniel's symptoms include ongoing high fevers, rashes that cover his body, a rare blood disorder called macrophage activation system, Crohn's Disease, systemic arthritis, and interstitial lung disease.

His concept for the book was inspired by his unique experience as a rare disease patient and advocate.

ISBN

9798374718621

Language

English

Material Type

Book

Call Number

JUNIOR FF 300 KIN 2023

Copies

URL

https://ebookcentral.proquest.com/lib/cwhbc/detail.action?docID=6039015

Author

Hansen, Emma

Publisher

Greystone Books

Publication Date

2020

Subject

Pregnancy Loss. Miscarriage

Abstract

Emma Hansen is 39 weeks and 6 days pregnant when she feels her baby go quiet inside of her. At the hospital, her worst fears are confirmed: doctors explain that her baby has died, and she will need to deliver him, still.

Hansen gives birth to her son, Reid, amidst an avalanche of grief. Nine days later, she publishes a candid essay on her website sharing photos from the delivery room. Much to her surprise, her essay goes viral, sparking positive reactions around the world. Still shares what comes next: a struggle with grief and confusion alongside a desire to better understand stillbirth, which is experienced by more than two million women annually, but rarely talked about in public.

ISBN

9781771643924

Language

English

Material Type

Ebook

Call Number

GH 330 HAN 2020

Author

Hinshaw, Stephen P.

Place of Publication

New York, NY

Publisher

Guilford Press

Publication Date

2022

Physical Description

Hardcover; 276 pages ; 23 cm

Subject

Attention Deficit Disorder. Hyperactivity

Abstract

Parenting a daughter with attention-deficit/hyperactivity disorder (ADHD) is no easy path - especially because of the myth that the disorder is rare to nonexistent in girls. From pioneering researcher Stephen P. Hinshaw, this empowering guide provides vital information and advice to help you understand and meet your daughter's needs. Dr. Hinshaw delivers up-to-date facts on what ADHD is, why symptoms often appear differently in girls than in boys, why girls with ADHD behave the way they do, how to get an accurate diagnosis, and what treatments are most effective. There is so much pressure on girls to be "perfect" - and for those with ADHD, it feels especially hard to measure up. Learn concrete steps you can take to support your daughter's success from preschool through high school and beyond, while nurturing her confidence and self-worth.

ISBN

9781462547517

Language

English

Material Type

Book

Call Number

FM 265 HIN 2022

Copies