Author

Nimmo, Stephanie

Place of Publication

London, UK

Publisher

Jessica Kingsley Publishers

Publication Date

2024

Physical Description

Softcover; 272 pages

Subject

Coping with Chronic Illness-Children

Caregivers-Coping

Caregivers for a Dying Loved One

Abstract

Every parent wants the same thing: for their child to enjoy a long and fulfilling life. But what happens when things don't go according to plan? What happens when parents have to become advocates for their child's healthcare needs? Who decides what is in a child's 'best interests'?

Stephanie Nimmo faced these questions first-hand when her daughter, Daisy, was diagnosed with a life-limiting condition as a baby. Seen through the lens of Stephanie's own experiences, this sensitive book delves into the complex world of medical ethics and pediatric palliative care. From recognizing tipping points to the importance of building relationships with palliative care teams well before crisis, this book explores how medical professionals can better support families throughout their child's care.

Interviews with clinicians and snapshots from the lives of patients' families provide insight into the realities of life on both sides of the hospital bed. Compassionate explanations of the conflicting pressures in the hospital system foster understanding and help medical professionals and families work together.

ISBN

5727227010272

Language

English

Material Type

Book

Call Number

EF 850.5 NIM 2024

Copies

Author

Carter, Bryan D.

Kronenberger, William G.

Scott, Eric L.

Brady, Christine E.

Place of Publication

Oxford, UK

Publisher

Oxford University Press

Publication Date

2020

Physical Description

Softcover; 173 pages

Series

Programs that work

Subject

Coping with Chronic Illness Young Adult

Coping with Chronic Illness

Coping with Chronic Illness-Children

Abstract

Youth with chronic illnesses face challenges that may prove disruptive to physical, psychological, and social development. Based on extensive research and clinical expertise, Children's Health and Illness Recovery Program (CHIRP) is an interdisciplinary cognitive behavioral and family systems-based treatment program designed to maximize the independent functioning of teens with chronic illness.

This Clinician Guide offers a detailed outline for implementing this manualized intervention and provides clear guidance as to the philosophy, pragmatics, and art of working with challenging pediatric conditions. Designed to accompany the CHIRP Teen and Family Workbook, this book addresses specific assessment measures and tools needed to establish a collaborative treatment team approach that incorporates the skills of the CHIRP clinician, primary and specialty care providers, and roles of other healthcare (physical therapists, occupational therapists, etc.) and educational professionals critical to the successful management and treatment of these youth.

ISBN

9780190070267

Language

English

Material Type

Book

Call Number

EF 850.6 CAR 2020b

Copies

Author

Carter, Bryan D.

Kronenberger, William G.

Scott, Eric L.

Place of Publication

Oxford, UK

Publisher

Oxford University Press

Publication Date

2020

Physical Description

Softcover; 113 pages

Series

Programs that work

Subject

Coping with Chronic Illness Young Adult

Coping with Chronic Illness

Coping with Chronic Illness-Children

Abstract

Children and adolescents with chronic illnesses, particularly those accompanied by debilitating, painful, and/or fatiguing symptoms, face challenges that may prove disruptive to physical, psychological, and social development. Based on extensive research and clinical expertise, Children's Health and Illness Recovery Program (CHIRP) is an effective treatment program designed to build and maintain independence in young people with chronic illness.

This Teen and Family Workbook provides proven treatment activities designed to combat the additional stress faced by youth coping with long-term health problems. These tasks target key areas for improvement in physical functioning, school functioning, and personal functioning and support the creation of new tools for managing the impact of illness, such as stress management, coping and relaxation techniques, and communication skills. In-session and take-home activities outlined in this workbook are meant to accompany the companion CHIRP Clinician Guide. With the use of this workbook and supported by a network of clinicians, healthcare specialists, and school professionals, adolescents and their families can return to a better quality of life.

ISBN

9780190070472

Language

English

Material Type

Book

Call Number

EF 850.6 CAR 2020

Copies