topic:"Coping with Chronic Illness-Children" found 2 records

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Anything for my child: Making impossible decisions for medically complex children

https://bcch.andornot.com/en/permalink/catalog124865

Nimmo, Stephanie. London, UK: Jessica Kingsley Publishers , 2024.

Material Type: Book

Call Number: EF 850.5 NIM 2024

Availability: 1 copy, 1 available

Every parent wants the same thing: for their child to enjoy a long and fulfilling life. But what happens when things don't go according to plan? What happens when parents have to become advocates for their child's healthcare needs? Who decides what is in a child's 'best interests'?; Stephanie Nimmo…

Author: Nimmo, Stephanie

Place of Publication: London, UK

Publisher: Jessica Kingsley Publishers

Publication Date: 2024

Physical Description: Softcover; 272 pages

Subject: Coping with Chronic Illness-Children; Caregivers-Coping; Caregivers for a Dying Loved One

Abstract: Every parent wants the same thing: for their child to enjoy a long and fulfilling life. But what happens when things don't go according to plan? What happens when parents have to become advocates for their child's healthcare needs? Who decides what is in a child's 'best interests'?; Stephanie Nimmo faced these questions first-hand when her daughter, Daisy, was diagnosed with a life-limiting condition as a baby. Seen through the lens of Stephanie's own experiences, this sensitive book delves into the complex world of medical ethics and pediatric palliative care. From recognizing tipping points to the importance of building relationships with palliative care teams well before crisis, this book explores how medical professionals can better support families throughout their child's care.; Interviews with clinicians and snapshots from the lives of patients' families provide insight into the realities of life on both sides of the hospital bed. Compassionate explanations of the conflicting pressures in the hospital system foster understanding and help medical professionals and families work together.

ISBN: 5727227010272

Language: English

Material Type: Book

Call Number: EF 850.5 NIM 2024

Copies

BC Children's and Women's Family Library

Available

When your child has a chronic medical illness: A guide for the parenting journey

https://bcch.andornot.com/en/permalink/catalog123817

Sileo, Frank J., Potter, Carol S. Washington, DC: American Psychological Association , 2021.

Material Type: Book

Call Number: EF 850.5 SIL 2021

Availability: 1 copy, 1 available

Written by leading mental health professionals, this warm and accessible parenting book for children with chronic illnesses offers clear, practical guidance for all aspects of the journey. It is recommended by professionals at the American Diabetes Association, Invisible Disabilities Association, t…

Author: Sileo, Frank J.; Potter, Carol S.

Place of Publication: Washington, DC

Publisher: American Psychological Association

Publication Date: 2021

Physical Description: Softcover; 419 pages

Subject: Coping with Chronic Illness-Children; Coping with Chronic Illness in the Family; Coping with Chronic Illness-Young Adult

Abstract: Written by leading mental health professionals, this warm and accessible parenting book for children with chronic illnesses offers clear, practical guidance for all aspects of the journey. It is recommended by professionals at the American Diabetes Association, Invisible Disabilities Association, the Crohn's Colitis Foundation, and other expert national and regional sources.; For all its joys, parenting is a complex job, and when your child has a chronic illness, the stress can feel overwhelming. When your child is diagnosed, you begin a parenting journey filled with strong emotions, difficult choices, confusing words, and interactions with numerous professionals and specialists.; You're focused on ensuring your child gets the best possible treatments for their symptoms, so it's easy to overlook or dismiss the impact the illness can have on your relationships and emotions. This book places your psychological well-being front and center, so you can be the best caregiver possible for your child.; Along with suggestions for making laughter and mindfulness part of your daily self-care routine, it offers guidance for choosing the right therapist for your family, should extra support be needed. Every family's journey with chronic illness is unique, but you don't have to go it alone.

ISBN: 9781433833816

Language: English

Material Type: Book

Call Number: EF 850.5 SIL 2021

Copies

BC Children's and Women's Family Library

Available