Author

Kinchlea, Daniel

Bañas, Ar-Em

Publication Date

2023

Physical Description

Paperback; [no pagination]

Subject

Autoimmune Diseases

Abstract

Written by 9-year-old Daniel Kinchlea, this story is all about the first fire dragon and their search for help. The story mirrors Daniel's own understanding of his diagnosis journey as a young child.

About the author: At one year old, Daniel was diagnosed with a rare autoinflammatory disease. Caused by one or more genetic mutations, some of Daniel's symptoms include ongoing high fevers, rashes that cover his body, a rare blood disorder called macrophage activation system, Crohn's Disease, systemic arthritis, and interstitial lung disease.

His concept for the book was inspired by his unique experience as a rare disease patient and advocate.

ISBN

9798374718621

Language

English

Material Type

Book

Call Number

JUNIOR FF 300 KIN 2023

Copies

Author

Brown, Ian

Place of Publication

[Toronto, ON]

Publisher

Vintage Canada

Publication Date

2010

Physical Description

Softcover; 295 p.

Subject

Parenting Children with Disabilities

Parenting Children with Physical Disabilities

Genetic Disorders

Abstract

This book tells the story of a father's personal journey and search for his disabled son. The author's son was born with a rare genetic mutation: at thirteen, his son weighs only 54 pounds, wears diapers, cannot speak and needs to wear special cuffs on his arms so that he cannot harm himself. Written with honesty and humour, this award winning book began as a Globe and Mail series.

ISBN

9780679310099

Language

English

Material Type

Book

Call Number

GK 655 BRO 2009

Copies