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5 records – page 1 of 1.

The boy in the moon: A father's search for his disabled son

https://bcch.andornot.com/en/permalink/catalog111520
Brown, Ian. [Toronto, ON]: Vintage Canada , 2010.
Material Type
Book
Call Number
GK 655 BRO 2009
Availability
1 copy, 1 available
This book tells the story of a father's personal journey and search for his disabled son. The author's son was born with a rare genetic mutation: at thirteen, his son weighs only 54 pounds, wears diapers, cannot speak and needs to wear special cuffs on his arms so that he cannot harm himself. Writ…
Author
Brown, Ian
Place of Publication
[Toronto, ON]
Publisher
Vintage Canada
Publication Date
2010
Physical Description
Softcover; 295 p.
Subject
Parenting Children with Disabilities
Parenting Children with Physical Disabilities
Genetic Disorders
Abstract
This book tells the story of a father's personal journey and search for his disabled son. The author's son was born with a rare genetic mutation: at thirteen, his son weighs only 54 pounds, wears diapers, cannot speak and needs to wear special cuffs on his arms so that he cannot harm himself. Written with honesty and humour, this award winning book began as a Globe and Mail series.
ISBN
9780679310099
Language
English
Material Type
Book
Call Number
GK 655 BRO 2009

Copies

Copy 1 BC Children's and Women's Family Library Available
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Energy makers & mito kids: A little book about mitochondrial disease

https://bcch.andornot.com/en/permalink/catalog111554
Wells, Deobrah Besinger. Rutherford, NJ: Mito Kids Rock , 2008.
Material Type
Book
Call Number
JUNIOR FA 500 WEL 2008
Availability
1 copy, 1 available
This illustrated easy-to-read book is a tool to explain Mitochondrial disease to the people in your community: in your child's classroom, with neighbors, extended family members and friends. About children with all degrees of abilities, it helps them understand the variable issues that children wit…
Alternate Title
Energy makers and mito kids
Author
Wells, Deobrah Besinger
Place of Publication
Rutherford, NJ
Publisher
Mito Kids Rock
Publication Date
2008
Physical Description
Softcover: [32 p.]
Subject
Metabolic Disorders
Nervous System/Nervous System Diseases-Children
Genetic Disorders
Nervous System/Nervous System Diseases. Neurology
Abstract
This illustrated easy-to-read book is a tool to explain Mitochondrial disease to the people in your community: in your child's classroom, with neighbors, extended family members and friends. About children with all degrees of abilities, it helps them understand the variable issues that children with Mitochondrial Disease face.
Language
English
Material Type
Book
Call Number
JUNIOR FA 500 WEL 2008

Copies

copy 1 BC Children's and Women's Family Library Available
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Fidélie et Annabelle : La trisomie

https://bcch.andornot.com/en/permalink/catalog114110
Marleau, Brigitte. Montreal, QC: Boomerang , 2014.
Material Type
Book
Call Number
JUNIOR GI 310 MAR 2014
Availability
1 copy, 1 available
La trisomie « Moi, c'est Fidélie et Annabelle, c'est mon amie. Annabelle a sept ans et elle a la trisomie. Quand j'étais petite, je pensais que la trisomie, c'était comme une maladie... Que si le docteur lui donnait des antibiotiques, eh bien! elle ne serait plus trisomique. Ma maman m'a dit que ça…
Alternate Title
[Fidelie et Annabelle : La trisomie]
Author
Marleau, Brigitte
Place of Publication
Montreal, QC
Publisher
Boomerang
Publication Date
2014
Physical Description
Hardcover, 25 p.
Series
Au coeur des differences
Subject
Genetic Disorders
Down Syndrome
Abstract
La trisomie « Moi, c'est Fidélie et Annabelle, c'est mon amie. Annabelle a sept ans et elle a la trisomie. Quand j'étais petite, je pensais que la trisomie, c'était comme une maladie... Que si le docteur lui donnait des antibiotiques, eh bien! elle ne serait plus trisomique. Ma maman m'a dit que ça ne se guérissait pas, mais de toute façon, moi, je l'aime comme ça, Annabelle. »
ISBN
9782895957478
Language
French
Material Type
Book
Call Number
JUNIOR GI 310 MAR 2014

Copies

Copy 1 BC Children's and Women's Family Library Available
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Mind and body : Answers to your questions

https://bcch.andornot.com/en/permalink/catalog113526
Canadian Down Syndrome Society. Calgary, AB: Canadian Down Syndrome Society , 2014.
URL
www.cdss.ca
Call Number
GI 310 CAN 2014
Availability
1 copy, 1 available
Mind and Body is a book written for self-advocates covering topics such as the male and female body, relationships, sexual safety, pregnancy, and abuse, plus much more. We wanted to make the most comprehensive sexuality resource there is for individuals with disabilities, so we collaborated with pr…
  1 url  
URL
www.cdss.ca
Corporate Author
Canadian Down Syndrome Society
Place of Publication
Calgary, AB
Publisher
Canadian Down Syndrome Society
Publication Date
2014
Physical Description
Letter from CDSS
Subject
Down Syndrome
Genetic Disorders
Abstract
Mind and Body is a book written for self-advocates covering topics such as the male and female body, relationships, sexual safety, pregnancy, and abuse, plus much more. We wanted to make the most comprehensive sexuality resource there is for individuals with disabilities, so we collaborated with professionals in the sexual education field.
Language
English
Call Number
GI 310 CAN 2014

Copies

Copy 1 BC Children's and Women's Family Library Available
URLs
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The VHL Handbook: What You Need to Know about VHL

https://bcch.andornot.com/en/permalink/catalog124004
VHL Alliance. Boston, MA: VHL Alliance , 2020. 6th edition.
Material Type
Book
Call Number
GI 300 VHL 2020
Availability
1 copy, 1 available
Written in ?lay language?, the handbook contains the most up-to-date information about diagnosing and treating VHL. It is an essential guidebook for living and thriving with VHL.
Author
VHL Alliance
Edition
6th edition
Place of Publication
Boston, MA
Publisher
VHL Alliance
Publication Date
2020
Physical Description
Softcover; 124 pages
Subject
Genetic Disorders
Abstract
Written in ?lay language?, the handbook contains the most up-to-date information about diagnosing and treating VHL. It is an essential guidebook for living and thriving with VHL.
ISBN
9798686298330
Language
English
Material Type
Book
Call Number
GI 300 VHL 2020

Copies

copy 1 BC Children's and Women's Family Library Available
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