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Easy for you to say: Q & A's for teens living with chronic illness or disability

https://bcch.andornot.com/en/permalink/catalog112348
Kaufman, Miriam. [Toronto, ON]: Firefly Books Ltd , 2012. 3rd ed.
Material Type
Book
Call Number
YOUTH EF 850.6 KAU 2012
Availability
1 copy, 1 available
In the 3rd edition, Dr. Miriam Kaufman addresses important topics for teens who are living with chronic conditions or disabilities. The topics include: Anemia, Cancer, Cerebral Palsy, Crohn's Disease, Deafness, Diabetes, Head Injury, Heart Disease, Hemophilia, HIV, Lupus, Muscular Dystrophy, Sickle…
Author
Kaufman, Miriam
Edition
3rd ed
Place of Publication
[Toronto, ON]
Publisher
Firefly Books Ltd
Publication Date
2012
Physical Description
Softcover: 309 p.
Subject
Coping with Chronic Illness
Young Adults
Physical Disability-Coping
Physical Disability. Physically Challenged
Relationships
Abstract
In the 3rd edition, Dr. Miriam Kaufman addresses important topics for teens who are living with chronic conditions or disabilities. The topics include: Anemia, Cancer, Cerebral Palsy, Crohn's Disease, Deafness, Diabetes, Head Injury, Heart Disease, Hemophilia, HIV, Lupus, Muscular Dystrophy, Sickle Cell Anemia, Seizures, Spinal Bifida, Spinal Cord Injuries, and Thyroid Disease.
ISBN
9781770850996
Language
English
Material Type
Book
Call Number
YOUTH EF 850.6 KAU 2012

Copies

Copy 1 BC Children's and Women's Family Library Available
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Questions and answers: Sexual health education for youth with physical disabilities

https://bcch.andornot.com/en/permalink/catalog112793
Public Health Agency of Canada. [Ottawa, ON]: Public Health Agency of Canada , 2013.
URL
https://www.canada.ca/en/public-health/services/infectious-diseases/sexual-health-sexually-transmitted-infections/reports-publications/questions-answers-youth.html
Material Type
Book
Call Number
GA 110 PUB 2013
Availability
1 copy, 1 available
This document provides evidence-informed answers to the most commonly asked questions regarding sexual health education for youth with physical disabilities. The goal of this resource is to assist in the creation of supportive and healthy learning environments for youth with physical disabilities …
  1 url  
URL
https://www.canada.ca/en/public-health/services/infectious-diseases/sexual-health-sexually-transmitted-infections/reports-publications/questions-answers-youth.html
Corporate Author
Public Health Agency of Canada
Place of Publication
[Ottawa, ON]
Publisher
Public Health Agency of Canada
Publication Date
2013
Physical Description
Softcover: 22 p.
Subject
Sexuality
Physical Disability. Physically Challenged
Sexual Health
Abstract
This document provides evidence-informed answers to the most commonly asked questions regarding sexual health education for youth with physical disabilities. The goal of this resource is to assist in the creation of supportive and healthy learning environments for youth with physical disabilities and to support the provision of comprehensive sexual health education that is inclusive of their needs.
Notes
French version also available: Questions and réponses: éducation en matière de santé sexuelle à l'intention des jeunes ayant une incapacité physique
ISBN
9781100544823
Language
English
Material Type
Book
Call Number
GA 110 PUB 2013

Copies

Copy 1 BC Children's and Women's Family Library Available
URLs
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Not so different : What you really want to know about having a disability

https://bcch.andornot.com/en/permalink/catalog121622
Burcaw, Shane, Carr, Matt. New York, NY: Roaring Brook Press , 2017.
Call Number
JUNIOR GN 800 BUR 2017
Shane Burcaw was born with a rare disease called spinal muscular atrophy, which hinders his muscles? growth. As a result, his body hasn?t grown bigger and stronger as he?s gotten older―it?s gotten smaller and weaker instead. This hasn?t stopped him from doing the things he enjoys (like eating…
Author
Burcaw, Shane
Carr, Matt
Place of Publication
New York, NY
Publisher
Roaring Brook Press
Publication Date
2017
Physical Description
40 pages
Subject
Physical Disabilty. Physically Challenged
Abstract
Shane Burcaw was born with a rare disease called spinal muscular atrophy, which hinders his muscles? growth. As a result, his body hasn?t grown bigger and stronger as he?s gotten older―it?s gotten smaller and weaker instead. This hasn?t stopped him from doing the things he enjoys (like eating pizza and playing sports and video games) with the people he loves, but it does mean that he routinely relies on his friends and family for help with everything from brushing his teeth to rolling over in bed.
ISBN
978-1626727717
Language
English
Call Number
JUNIOR GN 800 BUR 2017
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Mia Lee is wheeling through middle school

https://bcch.andornot.com/en/permalink/catalog122264
Shang, Melissa, Shang, Eva. , 2016.
Material Type
Book
Call Number
ELEM GN 800 SHA 2016
Availability
1 copy, 1 available
Hello, sixth grade! Mia Lee is a stop-motion filmmaker with a wheelchair and a lot of sass, trying to survive her new middle school. Which doesn?t seem so easy when she?s running for Video Production Club President against certified Middle School Mean Girl, Angela Vanover. Things get weird when Ang…
Author
Shang, Melissa
Shang, Eva
Publication Date
2016
Physical Description
Softcover ; 107 p.
Subject
Physical Disability. Physically Challenged
Wheelchairs
School
Fiction
Abstract
Hello, sixth grade! Mia Lee is a stop-motion filmmaker with a wheelchair and a lot of sass, trying to survive her new middle school. Which doesn?t seem so easy when she?s running for Video Production Club President against certified Middle School Mean Girl, Angela Vanover. Things get weird when Angela starts being nice to her -- well, when other people are around, at least. But when Mia?s campaign posters for VP Club President mysteriously vanish -- no tape, no poster, no nothin? -- the presidential race gets real. With the help of her brain files, an awesome aide with keys to the whole school, and her friends, Rory, Daniela, and Caroline, Mia finds herself on a mission to prove Angela isn?t just an ordinary middle school mean girl, she?s a thief!
ISBN
9780692746905
Language
English
Material Type
Book
Call Number
ELEM GN 800 SHA 2016

Copies

BC Children's and Women's Family Library Available
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Magic moments : Twelve little stories about disability, family and fairly normal life

https://bcch.andornot.com/en/permalink/catalog113535
Bendall, Lisa. [Toronto, ON]: Twelve Fingers Press , 2015.
Material Type
Book
Call Number
GN 800 BEN 2015
Availability
1 copy, 1 available
This collection of essays, most of them previously published in magazines and newspapers, touches on the joys and challenges of family life. Author Lisa Bendall is married to Ian, who is intelligent, funny and kind... and happens to be quadriplegic. Together they are raising a spectacular daughter.…
Author
Bendall, Lisa
Place of Publication
[Toronto, ON]
Publisher
Twelve Fingers Press
Publication Date
2015
Subject
Physical Disability-Coping
Family
Abstract
This collection of essays, most of them previously published in magazines and newspapers, touches on the joys and challenges of family life. Author Lisa Bendall is married to Ian, who is intelligent, funny and kind... and happens to be quadriplegic. Together they are raising a spectacular daughter. They hold down full-time jobs, share a mortgage, have a dog--just like many other folks. You are invited to share this family's journey, from major milestones to fleeting yet magical moments.
ISBN
9781511752596
Language
English
Material Type
Book
Call Number
GN 800 BEN 2015

Copies

Copy 1 BC Children's and Women's Family Library Available
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Trouble with illness, The: How illness and disability affect relationships

https://bcch.andornot.com/en/permalink/catalog122269
Segal, Julia. Philadelphia, PA: Jessica Kingsley Publishers , 2017.
Material Type
Book
Call Number
EF 800 SEG 2017
Availability
2 copies, 2 available
This impressively honest book explores the effects a challenging disability or illness can have on the mind and personal relationships, and how friends, family and professionals can help.; Illness or disability can isolate people by creating vast differences in their experiences where previously th…
Author
Segal, Julia
Place of Publication
Philadelphia, PA
Publisher
Jessica Kingsley Publishers
Publication Date
2017
Physical Description
Softcover ; 312 p.
Subject
Chronic Illness
Disabilities
Relationships
Abstract
This impressively honest book explores the effects a challenging disability or illness can have on the mind and personal relationships, and how friends, family and professionals can help.
Illness or disability can isolate people by creating vast differences in their experiences where previously there were none. Friends and family can find themselves saying the wrong thing or awkwardly avoiding topics as a result. This book takes a candid look at how discomfort caused by an illness can strain a relationship between partners, families and professionals, as well as how understanding feelings of guilt or shame can transform a situation or relationship.
The insights and advice offered in this book can help children and adolescents overcome anxiousness caused by a parent's condition, improve communication between partners and family members, and increase professionals' awareness of how a client feels about their situation.
ISBN
9781785923326
Language
English
Material Type
Book
Call Number
EF 800 SEG 2017

Copies

copy 1 BC Children's and Women's Family Library Available
copy 2 BC Children's and Women's Family Library Available
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Just ask: Be different, be brave, be you

https://bcch.andornot.com/en/permalink/catalog123981
Sotomayor, Sonia, Lopez, Rafael [ill.]. New York, NY: Penguin Random house , 2019.
Material Type
Book
Call Number
JUNIOR GK 100 SOT 2019
Availability
3 copies, 3 available
Feeling different, especially as a kid, can be tough. But in the same way that different types of plants and flowers make a garden more beautiful and enjoyable, different types of people make our world more vibrant and wonderful.; In Just Ask, United States Supreme Court Justice Sonia Sotomayor cel…
Author
Sotomayor, Sonia
Lopez, Rafael [ill.]
Place of Publication
New York, NY
Publisher
Penguin Random house
Publication Date
2019
Physical Description
Hardcover
Subject
Children's Health. Pediatrics
Autism Spectrum Disorder (includes Asperger Syndrome)
Diabetes
Asthma
Physical Disability. Physically Challenged
Blindness
Deafness
Dyslexia
Stuttering
Tourette Syndrome. Gilles De La Tourette Syndrome
Attention Deficit Disorder. Hyperactivity
Allergies
Down Syndrome
Abstract
Feeling different, especially as a kid, can be tough. But in the same way that different types of plants and flowers make a garden more beautiful and enjoyable, different types of people make our world more vibrant and wonderful.
In Just Ask, United States Supreme Court Justice Sonia Sotomayor celebrates the different abilities kids (and people of all ages) have. Using her own experience as a child who was diagnosed with diabetes, Justice Sotomayor writes about children with all sorts of challenges--and looks at the special powers those kids have as well. As the kids work together to build a community garden, asking questions of each other along the way, this book encourages readers to do the same: When we come across someone who is different from us but we're not sure why, all we have to do is Just Ask.
ISBN
9780525514121
Language
English
Material Type
Book
Call Number
JUNIOR GK 100 SOT 2019

Copies

copy 1 BC Children's and Women's Family Library Available
copy 2 BC Children's and Women's Family Library Available
copy 3 BC Children's and Women's Family Library Available
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Living a healthy life with chronic conditions: For ongoing physical and mental health conditions

https://bcch.andornot.com/en/permalink/catalog122290
Lorig, Kate, Holman, Halsted, Sobel, David, Laurent, Diana, Gonzalez, Virginia, Minor, Marian. Boulder, CO: Bull Publishing Company , 2013. Canadian Edition, 4th.
Material Type
Book
Call Number
EF 800 LOR 2013
Availability
2 copies, 2 available
"Living a Healthy Life with Chronic Conditions is a proven self-management guide. People with chonic health conditions live most of their lives outside of hospitals and clinics. This book is designed to help them learn the information and skills to manage chronic conditions on a daily basis while d…
Author
Lorig, Kate
Holman, Halsted
Sobel, David
Laurent, Diana
Gonzalez, Virginia
Minor, Marian
Edition
Canadian Edition, 4th
Place of Publication
Boulder, CO
Publisher
Bull Publishing Company
Publication Date
2013
Physical Description
Softcover ; vii, 368 p.
Subject
Chronic Illness
Mental Health/Illness
Fatigue
Pain
Depression
Abstract
"Living a Healthy Life with Chronic Conditions is a proven self-management guide. People with chonic health conditions live most of their lives outside of hospitals and clinics. This book is designed to help them learn the information and skills to manage chronic conditions on a daily basis while doing the things they need and want to do.
"This new edition is completely redesigned for easy reading and fully updated with the latest research and information. The book is a vital resource full of practical tips, suggestions, and strategies to build confidence in managing chronic illness and symptoms, such as fatigue, pain, shortness of breath, disability, and depression. It encourages readers to develop individual approaches to setting goals, making decisions, and finding resources and support"--from Publisher.
ISBN
97819396693498
Language
English
Material Type
Book
Call Number
EF 800 LOR 2013

Copies

BC Children's and Women's Family Library Available
copy 2 BC Children's and Women's Family Library Available
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The boy in the moon: A father's search for his disabled son

https://bcch.andornot.com/en/permalink/catalog111520
Brown, Ian. [Toronto, ON]: Vintage Canada , 2010.
Material Type
Book
Call Number
GK 655 BRO 2009
Availability
1 copy, 1 available
This book tells the story of a father's personal journey and search for his disabled son. The author's son was born with a rare genetic mutation: at thirteen, his son weighs only 54 pounds, wears diapers, cannot speak and needs to wear special cuffs on his arms so that he cannot harm himself. Writ…
Author
Brown, Ian
Place of Publication
[Toronto, ON]
Publisher
Vintage Canada
Publication Date
2010
Physical Description
Softcover; 295 p.
Subject
Parenting Children with Disabilities
Parenting Children with Physical Disabilities
Genetic Disorders
Abstract
This book tells the story of a father's personal journey and search for his disabled son. The author's son was born with a rare genetic mutation: at thirteen, his son weighs only 54 pounds, wears diapers, cannot speak and needs to wear special cuffs on his arms so that he cannot harm himself. Written with honesty and humour, this award winning book began as a Globe and Mail series.
ISBN
9780679310099
Language
English
Material Type
Book
Call Number
GK 655 BRO 2009

Copies

Copy 1 BC Children's and Women's Family Library Available
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Happy endings, new beginnings: Navigating postpartum disorders

https://bcch.andornot.com/en/permalink/catalog113014
Feingold, Susan Benjamin. Far Hills, NJ: New Horizon Press , 2013.
Material Type
Book
Call Number
GH 410 FEI 2013
Availability
1 copy, 1 available
In Happy Endings, New Beginnings, Dr. Feingold presents her unique approach for navigating the journey through postpartum disorders. Guiding women through the challenges, feelings and distressing symptoms, she leads them to a new view of the postpartum experience and how to make it a positive, life…
Author
Feingold, Susan Benjamin
Place of Publication
Far Hills, NJ
Publisher
New Horizon Press
Publication Date
2013
Physical Description
Softcover: 195 p.
Subject
Postpartum Depression
Mental Health/Illness
Abstract
In Happy Endings, New Beginnings, Dr. Feingold presents her unique approach for navigating the journey through postpartum disorders. Guiding women through the challenges, feelings and distressing symptoms, she leads them to a new view of the postpartum experience and how to make it a positive, life-changing event. Here is an inspirational book filled with fascinating true stories of women Dr. Feingold has coached through post-birth disorders to take control of their new lives and find lasting fulfillment, as she did in her own life. It also provides a new perspective for therapists and other health professionals treating women during this critical period.
ISBN
9780882824024
Language
English
Material Type
Book
Call Number
GH 410 FEI 2013

Copies

Copy 1 BC Children's and Women's Family Library Available
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How to be sick: A buddhist-inspired guide for the chronically ill and their caregivers

https://bcch.andornot.com/en/permalink/catalog122239
Bernhard, Toni. Somerville, MA: Wisdom Publications , 2018.
Material Type
Book
Call Number
EF 800 BER 2010
Availability
1 copy, 0 available
"This life-affirming, instructive and thoroughly inspiring book is a must-read for anyone who is, or who might one day be, sick. And it can also be the perfect gift of guidance, encouragement, and uplifting inspiration to family, friends, and loved ones struggling with the many terrifying or dishea…
Author
Bernhard, Toni
Place of Publication
Somerville, MA
Publisher
Wisdom Publications
Publication Date
2018
Physical Description
Softcover ; xvii, 191 p.
Subject
Chronic Illness
Emotional Health
Mental Health
Abstract
"This life-affirming, instructive and thoroughly inspiring book is a must-read for anyone who is, or who might one day be, sick. And it can also be the perfect gift of guidance, encouragement, and uplifting inspiration to family, friends, and loved ones struggling with the many terrifying or disheartening life changes that come so close on the heels of a diagnosis of a chronic condition or even life-threatening illness." --Publisher
Notes
Recommended by CCDP
ISBN
9780861716265
Language
English
Material Type
Book
Call Number
EF 800 BER 2010

Copies

BC Children's and Women's Family Library On Loan, due Friday, January 5, 2024
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Siblings: Brothers and sisters of children with disability

https://bcch.andornot.com/en/permalink/catalog124360
Strohm, Kate. Miline, Ill.: Wakefield Press , 2014. Revised edition.
Material Type
Book
Call Number
GK 665 STR 2014
Availability
1 copy, 1 available
Siblings tells what it is like to grow up with a brother or sister with a disability or illness. The siblings of children with a disability are often the overlooked ones in families struggling to cope.; Kate Strohm, a sibling herself, bravely shares the story of her journey from isolation and confu…
Author
Strohm, Kate
Edition
Revised edition
Place of Publication
Miline, Ill.
Publisher
Wakefield Press
Publication Date
2014
Physical Description
Paperback; 249 pages
Subject
Siblings of Children with Disabilities
Abstract
Siblings tells what it is like to grow up with a brother or sister with a disability or illness. The siblings of children with a disability are often the overlooked ones in families struggling to cope.
Kate Strohm, a sibling herself, bravely shares the story of her journey from isolation and confusion to greater understanding and acceptance. She provides a forum for other siblings to describe their challenges and provides them with strategies to make sense of their experiences.
Through the workshops she has presented around Australia and overseas, Kate has been able to incorporate the experience and wisdom of many families and professionals, and provide clear tools for parents and practitioners to support brothers and sisters of those with a disability.
ISBN
9781743052334
Language
English
Material Type
Book
Call Number
GK 665 STR 2014

Copies

BC Children's and Women's Family Library Available
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Billy's sister: Life when your sibling has a disability

https://bcch.andornot.com/en/permalink/catalog123303
Leving, Jessica, Sfar, Wiem [illustrator]. The Center for Siblings of People with Disabilities , 2019.
Material Type
Book
Call Number
JUNIOR GK 665 LEV 2019
Availability
1 copy, 1 available
Growing up with a sibling who has a disability can be hard. But it can also be... awesome! Based on the author's real-life experiences, this unique and touching children's book explores how siblings of kids with disabilities are special, too. Created with the support of licensed clinical social wor…
Author
Leving, Jessica
Sfar, Wiem [illustrator]
Publisher
The Center for Siblings of People with Disabilities
Publication Date
2019
Physical Description
36 p.
Series
A Project of The Center for Siblings of People with Disabilities
Subject
Sibling Relationships
Siblings of Children with Disabilities
Abstract
Growing up with a sibling who has a disability can be hard. But it can also be... awesome! Based on the author's real-life experiences, this unique and touching children's book explores how siblings of kids with disabilities are special, too. Created with the support of licensed clinical social workers with the aim of helping siblings of kids with disabilities identify, express and process their feelings. This book is intended to be read with a parent or trusted adult and spark family discussions you'll keep coming back to.
For ages 3-8.
ISBN
9798618220682
Language
English
Material Type
Book
Call Number
JUNIOR GK 665 LEV 2019

Copies

BC Children's and Women's Family Library Available
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Receiving David: The gift of a son who taught us how to live and love

https://bcch.andornot.com/en/permalink/catalog111626
Knol, Faye. Grand Rapids, Michigan: William B. Eerdmans Publishing Company , 2010.
Material Type
Book
Call Number
GK 655 KNO 2010
Availability
1 copy, 1 available
David Knol was born dangerously premature and wasn?t expected to live more than a few hours. He not only survived but went on to live a life full of joy and blessing, despite severe physical and intellectual disabilities. In this memoir, David's mother shares the story of David's life and the remar…
Author
Knol, Faye
Place of Publication
Grand Rapids, Michigan
Publisher
William B. Eerdmans Publishing Company
Publication Date
2010
Physical Description
Softcover: 163 p.
Subject
Parenting Children with Developmental Disabilities
Parenting Children with Disabilities
Parenting Children with Physical Disabilities
Developmental Disability
Intensive Care Units-Neonatal. Infants
Abstract
David Knol was born dangerously premature and wasn?t expected to live more than a few hours. He not only survived but went on to live a life full of joy and blessing, despite severe physical and intellectual disabilities. In this memoir, David's mother shares the story of David's life and the remarkable gifts he taught those around him during his 22 years.
ISBN
9780802865434
Language
English
Material Type
Book
Call Number
GK 655 KNO 2010

Copies

Copy 1 BC Children's and Women's Family Library Available
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Far from the tree: Parents, children, and the search for identity

https://bcch.andornot.com/en/permalink/catalog112354
Solomon, Andrew. [Toronto, ON]: Scribner , 2012.
Material Type
Book
Call Number
GK 600 SOL 2012
Availability
1 copy, 1 available
Andrew Solomon tells the stories of parents who not only learn to deal with their exceptional children but also find profound meaning in doing so. He writes about families coping with deafness, dwarfism, Down syndrome, autism, schizophrenia, multiple severe disabilities, with children who are prodi…
Author
Solomon, Andrew
Place of Publication
[Toronto, ON]
Publisher
Scribner
Publication Date
2012
Physical Description
Hardcover: 702 p.
Subject
Parenting Children with Developmental Disabilities
Parenting Children with Disabilities
Relationships
Parenting
Parenting Children with Physical Disabilities
Abstract
Andrew Solomon tells the stories of parents who not only learn to deal with their exceptional children but also find profound meaning in doing so. He writes about families coping with deafness, dwarfism, Down syndrome, autism, schizophrenia, multiple severe disabilities, with children who are prodigies, who are conceived in rape, who become criminals, who are transgender. While each of these characteristics is potentially isolating, the experience of difference within families is universal, as are the triumphs of love Solomon documents in every chapter.
ISBN
9780743236713
Language
English
Material Type
Book
Call Number
GK 600 SOL 2012

Copies

Copy 2 BC Children's and Women's Family Library Available
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101 ways to make friends: Ideas and conversation starters for people with disabilities and their supporters

https://bcch.andornot.com/en/permalink/catalog112347
Johannes, Aaron, Stanfield, Susan. [Vancouver, BC?]: Spectrum Press , 2011.
Material Type
Book
Call Number
CF 300 JOH 2011
Availability
1 copy, 1 available
Authors Susan Stanfield and Aaron Johannes use their 50+ years of experience of working with folks with disabilities to offer this compendium of simple, practical strategies for expanding and deepening relationships.; The ideas were generated by folks with disabilities, their families, and those wh…
Author
Johannes, Aaron
Stanfield, Susan
Place of Publication
[Vancouver, BC?]
Publisher
Spectrum Press
Publication Date
2011
Physical Description
Softcover: [108 p.]
Subject
Friendship
Social Behaviour (includes boundaries)
Social Skills
Relationships
Developmental Disability
Abstract
Authors Susan Stanfield and Aaron Johannes use their 50+ years of experience of working with folks with disabilities to offer this compendium of simple, practical strategies for expanding and deepening relationships.
The ideas were generated by folks with disabilities, their families, and those who support them. This tool book is for those interested in one of the final questions about community living: how to support folks to develop real, lasting relationships.
ISBN
9781257056446
Language
English
Material Type
Book
Call Number
CF 300 JOH 2011

Copies

Copy 1 BC Children's and Women's Family Library Available
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101 ways to facilitate making friends: How to engage and deepen support networks for people with disabilities

https://bcch.andornot.com/en/permalink/catalog112346
Johannes, Aaron, Reynolds, Jim, Stanfield, Susan. [Vancouver, BC?]: Spectrum Press , 2011.
Material Type
Book
Call Number
CF 300 WAY 2011
Availability
1 copy, 1 available
On its own or as a companion to the book "101 Ways to Make Friends: Ideas and conversation starters for people with disabilities", this collection of strategies is for parents, leaders and teachers of all kinds. It's a book about being a friend, learning ways to make a contribution to community, an…
Author
Johannes, Aaron
Reynolds, Jim
Stanfield, Susan
Place of Publication
[Vancouver, BC?]
Publisher
Spectrum Press
Publication Date
2011
Physical Description
Softcover: 198 p.
Subject
Friendship
Social Behaviour (includes boundaries)
Social Skills
Relationships
Developmental Disability
Abstract
On its own or as a companion to the book "101 Ways to Make Friends: Ideas and conversation starters for people with disabilities", this collection of strategies is for parents, leaders and teachers of all kinds. It's a book about being a friend, learning ways to make a contribution to community, and what it means to be a good friend or neighbour, son or daughter, brother or sister, etc.
ISBN
9781257060504
Language
English
Material Type
Book
Call Number
CF 300 WAY 2011

Copies

Copy 1 BC Children's and Women's Family Library Available
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Quand la vie se fragilise: Un guide pour vous et vos proches aidants

https://bcch.andornot.com/en/permalink/catalog114657
Cardinal Remete, France. Montreal, QC: Multimondes Inc. , 2016.
Material Type
Book
Call Number
EF 850 CAR 2016
Availability
1 copy, 1 available
Author
Cardinal Remete, France
Place of Publication
Montreal, QC
Publisher
Multimondes Inc.
Publication Date
2016
Physical Description
Paperback, 311 p.
Subject
Chronic Illness
Coping with Chronic Illness in the Family
ISBN
9782895444916
Language
French
Material Type
Book
Call Number
EF 850 CAR 2016

Copies

copy 1 BC Children's and Women's Family Library Available
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How to live well with chronic pain and illness: A mindful guide

https://bcch.andornot.com/en/permalink/catalog122440
Bernhard, Toni. Somerville, MA: Wisdom Publications , 2015.
Material Type
Book
Call Number
EF 850 BER 2015
Availability
2 copies, 2 available
Comfort, understanding, and advice for those who are suffering?and those who care for them.; Chronic illness creates many challenges, from career crises and relationship issues to struggles with self-blame, personal identity, and isolation. Beloved author Toni Bernhard addresses these challenges an…
Author
Bernhard, Toni
Place of Publication
Somerville, MA
Publisher
Wisdom Publications
Publication Date
2015
Physical Description
337 pages
Subject
Coping with Chronic Illness
Chronic Illness
Chronic Pain
Abstract
Comfort, understanding, and advice for those who are suffering?and those who care for them.
Chronic illness creates many challenges, from career crises and relationship issues to struggles with self-blame, personal identity, and isolation. Beloved author Toni Bernhard addresses these challenges and many more, using practical examples to illustrate how mindfulness, equanimity, and compassion can help readers make peace with a life turned upside down.
In her characteristic conversational style, Bernhard shows how to cope and make the most of life despite the challenges of chronic illness. Benefit from:
? Mindfulness exercises to mitigate physical and emotional pain
? Concrete advice for negotiating the everyday hurdles of medical appointments, household chores, and social obligations
? Tools for navigating the strains illness can place on relationships
Several chapters are directed toward family and friends of the chronically ill, helping them to understand what their loved one is going through and how they can help.
Humorous and empathetic, Bernhard shares her own struggles and setbacks with unflinching honesty, offering invaluable support in the search to find peace and well-being.
ISBN
9781614292487
Language
English
Material Type
Book
Call Number
EF 850 BER 2015

Copies

copy 1 BC Children's and Women's Family Library Available
copy 2 BC Children's and Women's Family Library Available
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Understanding living with a chronic illness: Written by doctors for kids

https://bcch.andornot.com/en/permalink/catalog121225
Renfrew, Ruth, deLoache, Shawn. New York, NY: Jumo , 2018.
Material Type
Book
Call Number
JUNIOR EF 800 REN 2018
Availability
1 copy, 1 available
Comic book featuring Medikidz, superhero experts on health and illness. Explains how chronic illness can affect individuals and their families.
Author
Renfrew, Ruth
deLoache, Shawn
Editor
Medikidz USA Inc.
Place of Publication
New York, NY
Publisher
Jumo
Publication Date
2018
Physical Description
Softcover; 16 p.
Subject
Chronic Illness
Abstract
Comic book featuring Medikidz, superhero experts on health and illness. Explains how chronic illness can affect individuals and their families.
Language
English
Material Type
Book
Call Number
JUNIOR EF 800 REN 2018

Copies

copy 1 BC Children's and Women's Family Library Available
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Young, sick, and invisible: A skeptic's journey with chronic illness

https://bcch.andornot.com/en/permalink/catalog122237
Bula, Ania. Durham, North Carolina: Pitchstone Publishing , 2016.
Material Type
Book
Call Number
EF 800 BUL 2016
Availability
1 copy, 1 available
"Drawing on her own deeply personal experiences, Ania Bula explores what it is like to live with unseen chronic disabilities. She paints a vibrant picture of what it is like to be diagnosed with two life-long debilitating conditions as a young adult and relates the challenges and frustrations of de…
Author
Bula, Ania
Place of Publication
Durham, North Carolina
Publisher
Pitchstone Publishing
Publication Date
2016
Physical Description
Softcover ; 224 p.
Subject
Chronic Illness
Abstract
"Drawing on her own deeply personal experiences, Ania Bula explores what it is like to live with unseen chronic disabilities. She paints a vibrant picture of what it is like to be diagnosed with two life-long debilitating conditions as a young adult and relates the challenges and frustrations of dealing with predatory alternative medicine practitioners, arrogant doctors, indifferent bureaucracies, and well-meaning friends and family who always seem to say either the wrong thing-or nothing at all. As she discovered, suddenly everyone's aunt is a health expert and everyone's fad diet a cure. Making matters worse, her physical torment quickly translated into mental stresses. Relationships became strained, while others, including all-important romantic ones, never had a chance to start at all. Wading through a constant stream of ignorance and lies, in a desperate attempt to find peace, to stop the pain, and to return to a more normal life, she submits to being stuffed with powders and magic potions, poked and prodded, and even "faith healed." With honesty and humor, she shares her journey of pain, suffering, and, ultimately, coping, both to help others gain some understanding about what it is like to live with chronic illness-and to help those who might similarly suffer feel less alone, so that they too might start living again.
"Drawing on the author's personal experiences with her own physical and mental health struggles, the book explores what it is like to live with chronic disabilities as a young adult"-- Provided by publisher
Notes
Recommended by CCDP
ISBN
9781634310734
Language
English
Material Type
Book
Call Number
EF 800 BUL 2016

Copies

copy 1 BC Children's and Women's Family Library Available
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When someone you love has a chronic illness: Hope and help for those providing support

https://bcch.andornot.com/en/permalink/catalog122265
McClintock Greenberg, Tamara. Springville, UT: Plain Sight Publishing , 2012.
Material Type
Book
Call Number
EF 800 GRE 2012
Availability
1 copy, 1 available
"Dr. Tamara Greenberg offers hope and practical advice to those impacted by a loved one's illness with this new book., "When Someone You Love Has a Chronic Illness: Hope and Help for Those Providing Support. Inside, Dr. Greenberg provides easy-to-understand explanations for complicated feelings and…
Author
McClintock Greenberg, Tamara
Place of Publication
Springville, UT
Publisher
Plain Sight Publishing
Publication Date
2012
Physical Description
Softcover ; xiv, 157 p.
Subject
Chronic Illness
Abstract
"Dr. Tamara Greenberg offers hope and practical advice to those impacted by a loved one's illness with this new book., "When Someone You Love Has a Chronic Illness: Hope and Help for Those Providing Support. Inside, Dr. Greenberg provides easy-to-understand explanations for complicated feelings and behaviors and offers pragmatic strategies for coping effectively and serving your loved one in this time of need.
"Learn how to talk to someone who is ill, what not to do, how to address your loved ones who aren't taking care of themselves, how to help someone in physical pain, and more.
"Above all, Dr. Greenberg delivers important tools for managing the normal anxiety we all feel when someone we love is ill." --From back cover
ISBN
9781599559391
Language
English
Material Type
Book
Call Number
EF 800 GRE 2012

Copies

BC Children's and Women's Family Library Available
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The chronic illness workbook : Strategies and solutions for taking back your life

https://bcch.andornot.com/en/permalink/catalog122395
Fennell, Patricia A. Latham, New York: Albany Health Management Publishing , 2012.
Material Type
Book
Call Number
EF 800 FEN 2012
Availability
2 copies, 2 available
This book "brings clarity and order to what feels like an unmanageable and isolating experience. It shows both those who are ill and those who care for them how to live a full and meaningful life despite undeniable difficulties. Using her extensive experience with chronic illness patients, Patricia…
  1 image  
Author
Fennell, Patricia A.
Place of Publication
Latham, New York
Publisher
Albany Health Management Publishing
Publication Date
2012
Physical Description
Softcover ; 253 p.
Subject
Chronic Illness
Abstract
This book "brings clarity and order to what feels like an unmanageable and isolating experience. It shows both those who are ill and those who care for them how to live a full and meaningful life despite undeniable difficulties. Using her extensive experience with chronic illness patients, Patricia Fennell has created an original, comprehensive, research-validated approach that considers not only the physical aspects of chronic illness, but the psychological, social, and economic aspects as well"--from the Publisher
ISBN
9780979640711
Language
English
Material Type
Book
Call Number
EF 800 FEN 2012

Copies

copy 1 BC Children's and Women's Family Library Available
copy 2 BC Children's and Women's Family Library Available
Images
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In Sickness as in Health: Helping Couples Cope with the Complexities of Illness

https://bcch.andornot.com/en/permalink/catalog124001
Kivowitz, Barbara, Weisman, Roanne. Petaluma, CA: Roundtree Press , 2013.
Material Type
Book
Call Number
EF 800 KIV 2013
Availability
1 copy, 1 available
For those who find themselves at the intersection of lifetime love and overwhelming obligation, the right path is often painful and difficult to find. When illness invades the couple relationship, partners ask themselves and each other some really hard questions: "What do I want to do for this pers…
Author
Kivowitz, Barbara
Weisman, Roanne
Place of Publication
Petaluma, CA
Publisher
Roundtree Press
Publication Date
2013
Physical Description
Softcover; 192 pages
Subject
Chronic Illness
Abstract
For those who find themselves at the intersection of lifetime love and overwhelming obligation, the right path is often painful and difficult to find. When illness invades the couple relationship, partners ask themselves and each other some really hard questions: "What do I want to do for this person whom I have loved for many years?" "How much of my life do I give up to take care of my beloved?" "How do I sit by my beloved's side and watch her suffer?" While writing In Sickness as in Health, authors Barbara Kivowitz and Roanne Weisman learned through interviews with many couples, as well as with medical, spiritual, legal, rehabilitation and psychological experts, that couples find their own ways to deal with illnesses and catastrophic injuries.
ISBN
9781937359133
Language
English
Material Type
Book
Call Number
EF 800 KIV 2013

Copies

copy 1 BC Children's and Women's Family Library Available
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Why does mommy hurt? Helping children cope with the challenges of having a caregiver with chronic pain, fibromyalgia,or autoimmune disease

https://bcch.andornot.com/en/permalink/catalog122253
Christy, Elizabeth M., Miller, James G. (illustrator). Denver, Colorado: Outskirts Press, Inc. , 2014.
Material Type
Book
Call Number
JUNIOR EF 850.5 CHR 2014
Availability
1 copy, 1 available
The children of people with chronic illness and pain suffer quietly. "Why Does Mommy Hurt?" is a joyful, yet honest, portrayal of family life burdened with chronic illness. This is a delightful story told by a young boy learning to understand and cope with his mother's illness. The story creates na…
Author
Christy, Elizabeth M.
Miller, James G. (illustrator)
Place of Publication
Denver, Colorado
Publisher
Outskirts Press, Inc.
Publication Date
2014
Physical Description
Softcover ; [18 p.], illustrations
Subject
Chronic Illness
Chronic Pain
Fibromyalgia. Fibrositis
Coping with Chronic Illness-Children
Abstract
The children of people with chronic illness and pain suffer quietly. "Why Does Mommy Hurt?" is a joyful, yet honest, portrayal of family life burdened with chronic illness. This is a delightful story told by a young boy learning to understand and cope with his mother's illness. The story creates natural opportunities for families to talk about both the symptoms of chronic illness, and how they affect family life. Even more importantly, the story puts power into the hands of the children. It also offers a helpful "Tips and Resources" section for parents! This book is appropriate for a wide-variety of illnesses associated with chronic pain, such as: Lupus, Lyme Disease, ME, CFS, Fibromyalgia, Arthritis, Multiple Sclerosis, Autoimmune Disease, and many others.
Notes
Recommended by CCDP
ISBN
9781478732969
Language
English
Material Type
Book
Call Number
JUNIOR EF 850.5 CHR 2014

Copies

BC Children's and Women's Family Library Available
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Laisse-moi t'expliquer... La dyspraxie

https://bcch.andornot.com/en/permalink/catalog114608
Philippon, Julie. Quebec, QC: Midi Trente , 2015.
Material Type
Book
Call Number
JUNIOR FM 270 PHI 2015
Availability
1 copy, 1 available
Bonjour ! Je m?appelle Camille. J?ai 9 ans. Je collectionne les figurines, j?adore les chevaux et le théâtre et je suis? très maladroite. En fait, j?ai un handicap qui s?appelle la dyspraxie. Sais-tu ce que c?est ? En fait, la dyspraxie (ou trouble d?acquisition de la coordination) est un trouble n…
Alternate Title
[Laisse-moi t expliquer... La dyspraxie]
Author
Philippon, Julie
Place of Publication
Quebec, QC
Publisher
Midi Trente
Publication Date
2015
Physical Description
Paperback, 39 p., ill.
Subject
Developmental Disability
Abstract
Bonjour ! Je m?appelle Camille. J?ai 9 ans. Je collectionne les figurines, j?adore les chevaux et le théâtre et je suis? très maladroite. En fait, j?ai un handicap qui s?appelle la dyspraxie. Sais-tu ce que c?est ? En fait, la dyspraxie (ou trouble d?acquisition de la coordination) est un trouble neurologique qui affecte la capacité à planifier, à organiser et à automatiser les gestes moteurs pour réaliser une action. En d?autres termes, c?est une difficulté à effectuer les bons mouvements. Destiné aux enfants d?âge scolaire et à leurs parents, cet album documentaire présente, un peu à la manière d?un scrapbook réalisé par un enfant, l?histoire de Camille, qui est dyspraxique. Simple et concret, cet ouvrage de vulgarisation explique aux enfants, dans leurs mots, ce qu?est la dyspraxie. Camille y aborde les difficultés et les questionnements liés à son intégration scolaire, à sa vie de famille et aux divers défis psychosociaux qu?entraîne sa condition. Plusieurs trucs concrets et conseils avisés agrémentent cet ouvrage illustré par les enfants de l?École Saint-Jean-Baptiste à Jonquière.
ISBN
9782923827636
Language
French
Material Type
Book
Call Number
JUNIOR FM 270 PHI 2015

Copies

copy 1 BC Children's and Women's Family Library Available
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75 exercices thérapeutiques pour future maman: Prévenir et soulager les douleurs et l'inconfort liés à la grossesse et à la période postnatale

https://bcch.andornot.com/en/permalink/catalog114333
Fecteau, Emilie. Montreal, QC: Les Editions de L'Homme , 2015.
Material Type
Book
Call Number
GH 270 FEC 2015
Availability
1 copy, 1 available
Grâce aux progrès de la science, nous savons maintenant que le mouvement fait partie intégrante de la santé de la future maman et de son bébé. Or, puisque de grands changements s'opèrent dans le corps de la femme enceinte, la majorité des principes d'entraînement traditionnels ne s'applique plus à …
Alternate Title
[75 exercices therapeutiques pour future maman: Prevenir et soulager les douleurs et l inconfort lies a la grossesse et a la periode postnatale]
Author
Fecteau, Emilie
Place of Publication
Montreal, QC
Publisher
Les Editions de L'Homme
Publication Date
2015
Physical Description
Paperback, 191 p., ill.
Subject
Pregnancy
Prenatal Care-Fitness
Abstract
Grâce aux progrès de la science, nous savons maintenant que le mouvement fait partie intégrante de la santé de la future maman et de son bébé. Or, puisque de grands changements s'opèrent dans le corps de la femme enceinte, la majorité des principes d'entraînement traditionnels ne s'applique plus à sa situation. C'est pourquoi ce livre propose des exercices respectant spécifiquement les besoins musculaires et articulaires qui évoluent au cours des neuf mois de la grossesse et des six mois suivant la naissance de l'enfant. Cet ouvrage contient également de judicieux conseils et de nombreux programmes pour prévenir et soulager les douleurs associées à la grossesse et à la période postnatale, pour prévenir ou éliminer les inconvénients fréquents, pour corriger les problèmes de posture les plus courants et préparer le corps à l'accouchement afin de faciliter le travail. La nouvelle maman pourra ainsi reprendre le contrôle de son corps après l'accouchement et revenir en toute sécurité à l'entraînement ou au sport.
ISBN
9782761941846
Language
French
Material Type
Book
Call Number
GH 270 FEC 2015

Copies

copy 1 BC Children's and Women's Family Library Available
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Mon enfant a une maladie chronique : Stratégies, ressources, moyens

https://bcch.andornot.com/en/permalink/catalog114193
Chartre, Marie-Eve, Gagne, Johanne. Montreal, QC: Éditions du CHU Sainte-Justine , 2014.
Material Type
Book
Call Number
EF 850.5 CHA 2014
Availability
1 copy, 1 available
Dès l?annonce du diagnostic, la maladie chronique d?un enfant devient « l?affaire » de toute la famille. Après le choc, chacun des membres de la cellule familiale doit traverser, à son rythme, le processus d?adaptation à un nouveau mode de vie conditionné par l?état de santé de l?enfant. Ce livre p…
Author
Chartre, Marie-Eve
Gagne, Johanne
Place of Publication
Montreal, QC
Publisher
Éditions du CHU Sainte-Justine
Publication Date
2014
Physical Description
Paperback, 127 p.
Subject
Coping with Chronic Illness-Children
Abstract
Dès l?annonce du diagnostic, la maladie chronique d?un enfant devient « l?affaire » de toute la famille. Après le choc, chacun des membres de la cellule familiale doit traverser, à son rythme, le processus d?adaptation à un nouveau mode de vie conditionné par l?état de santé de l?enfant. Ce livre permet aux parents de mieux comprendre les étapes de ce cheminement émotionnel et social ― pour l?enfant malade, la fratrie, la famille, le couple comme pour eux-mêmes en tant qu?individus ― et d?accompagner chacun en puisant à la fois dans les ressources personnelles et extérieures dont ils peuvent bénéficier.
ISBN
9782896196678
Language
French
Material Type
Book
Call Number
EF 850.5 CHA 2014

Copies

Copy 1 BC Children's and Women's Family Library Available
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But you look good: How to encourage and understand people living with illness and pain

https://bcch.andornot.com/en/permalink/catalog122282
Connell, Wayne, Connell, Sherri. Parker, Colorado: Invisible Disabilities Association , 2014.
Material Type
Book
Call Number
FM 830 CON 2014
Availability
2 copies, 2 available
"Do your loved ones have a hard time understanding your chronic illness or pain, because to them you LOOK fine? But You LOOK Good is a book that gives those living with chronic illness and pain a voice about how they feel, what they need and how others can be an encouragement to them. It is a conv…
Author
Connell, Wayne
Connell, Sherri
Place of Publication
Parker, Colorado
Publisher
Invisible Disabilities Association
Publication Date
2014
Physical Description
Softcover ; 85 p.
Subject
Chronic Illness
Chronic Pain
Abstract
"Do your loved ones have a hard time understanding your chronic illness or pain, because to them you LOOK fine? But You LOOK Good is a book that gives those living with chronic illness and pain a voice about how they feel, what they need and how others can be an encouragement to them. It is a convenient, informative way to educate loved ones about what people living with ongoing illness and pain struggle with, fight for and need from their friends and family. It is easy to read, gives practical ideas on how loved ones can be supportive and is not too long for readers to lose interest!"--from publisher.
ISBN
9780692258453
Language
English
Material Type
Book
Call Number
FM 830 CON 2014

Copies

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Full Catastrophe Living: How to Cope with Stress, Pain, and Illness Using Mindfulness Meditation

https://bcch.andornot.com/en/permalink/catalog123942
Kabat-Zinn, Jon. Random House , 2013. Revised and updated edition.
Material Type
Book
Call Number
EG 225 KAB 2013
Availability
1 copy, 1 available
Stress. It can sap our energy, undermine our health if we let it, even shorten our lives. It makes us more vulnerable to anxiety and depression, disconnection and disease. Based on Jon Kabat-Zinn's renowned mindfulness-based stress reduction program, this classic, groundbreaking work - which gave …
Author
Kabat-Zinn, Jon
Edition
Revised and updated edition
Publisher
Random House
Publication Date
2013
Physical Description
Softcover; 650 pages
Subject
Mindfulness
Chronic Illness
Anxiety
Abstract
Stress. It can sap our energy, undermine our health if we let it, even shorten our lives. It makes us more vulnerable to anxiety and depression, disconnection and disease. Based on Jon Kabat-Zinn's renowned mindfulness-based stress reduction program, this classic, groundbreaking work - which gave rise to a whole new field in medicine and psychology -
shows you how to use medically proven mind-body approaches derived from meditation and yoga to counteract stress, establish greater balance of body and mind, and stimulate well-being and healing. By engaging in these mindfulness practices and integrating them into your life from moment to moment and from day to day, you can learn to manage chronic pain, promote optimal healing, reduce anxiety and feelings of panic, and improve the overall quality of your life, relationships, and social networks. This second edition features results from recent studies on the science of mindfulness, a new Introduction, up-to-date statistics, and an extensive updated reading list. Full Catastrophe Living is a book for the young and the old, the well and the ill, and anyone trying to live a healthier and saner life in our fast-paced world.
ISBN
9780749958411
Language
English
Material Type
Book
Call Number
EG 225 KAB 2013

Copies

copy 1 BC Children's and Women's Family Library Available
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Parents and professionals partnering for children with disabilities: A dance that matters

https://bcch.andornot.com/en/permalink/catalog112727
Fialka, Janice M., Feldman, Arlene K., Mikus, Karen C. Thousand Oaks, Calif.: Corwin , 2012. Revised Edition.
Material Type
Book
Call Number
GK 655 FIA 2012
Availability
1 copy, 1 available
The authors use a dance metaphor to capture the complexities and possibilities of building strong partnerships between professionals and parents of children with disabilities. This revised edition is rich with real-world stories and examples, refreshing insights, and practical strategies.
Author
Fialka, Janice M.
Feldman, Arlene K.
Mikus, Karen C.
Edition
Revised Edition
Place of Publication
Thousand Oaks, Calif.
Publisher
Corwin
Publication Date
2012
Physical Description
Softcover: 142 p.
Subject
Parenting Children with Developmental Disabilities
Parenting Children with Disabilities
Abstract
The authors use a dance metaphor to capture the complexities and possibilities of building strong partnerships between professionals and parents of children with disabilities. This revised edition is rich with real-world stories and examples, refreshing insights, and practical strategies.
ISBN
9781412966399
Language
English
Material Type
Book
Call Number
GK 655 FIA 2012

Copies

Copy 1 BC Children's and Women's Family Library Available
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Symple Symptom Tracker: Mobile App (iOS)

https://bcch.andornot.com/en/permalink/catalog124794
Symple Health, Inc. , 2019.
URL
https://apps.apple.com/us/app/symple-symptom-tracker/id479818115
Material Type
Online
Use Symple to track how you feel, to monitor your health, and to improve your wellbeing. Designed by both clinicians and regular people, Symple is an enjoyable way to connect to better health.
  1 url  
URL
https://apps.apple.com/us/app/symple-symptom-tracker/id479818115
Corporate Author
Symple Health, Inc.
Publication Date
2019
Physical Description
Mobile App
Subject
Coping with Pain
Coping with Chronic Illness
Abstract
Use Symple to track how you feel, to monitor your health, and to improve your wellbeing. Designed by both clinicians and regular people, Symple is an enjoyable way to connect to better health.
Language
English
Material Type
Online
URLs
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La vie...avant, pendant et après: Les soins palliatifs pédiatriques

https://bcch.andornot.com/en/permalink/catalog114452
Humbert, Nago. Montreal, QC: CHU Sainte-Justine , 2012.
Material Type
Book
Call Number
EF 850.5 HUM 2012 STACKS
Availability
1 copy, 1 available
volution des pratiques médicales inclut dorénavant le développement des soins palliatifs pédiatriques. En effet, la spécificité de la prise en charge des enfants et des adolescents vivant avec une pathologie pouvant menacer leur vie a été démontrée grâce à l'expertise et au travail de réflexion en…
Alternate Title
[La vie avant, pendant et apres: Les soins palliatifs pediatriques]
Author
Humbert, Nago
Place of Publication
Montreal, QC
Publisher
CHU Sainte-Justine
Publication Date
2012
Physical Description
Paperback, 335 p.
Subject
Coping with Chronic Illness-Children
Caregiving
Abstract
volution des pratiques médicales inclut dorénavant le développement des soins palliatifs pédiatriques. En effet, la spécificité de la prise en charge des enfants et des adolescents vivant avec une pathologie pouvant menacer leur vie a été démontrée grâce à l'expertise et au travail de réflexion entrepris et soutenu par des intervenants spécialisés, autant en Amérique du Nord qu'en Europe.
La recherche dans ce domaine soulève certaines problématiques particulières, à la fois sur les plans médical, psychologique, éthique, émotionnel, relationnel et spirituel. En regroupant et en explorant plusieurs d'entre elles - contexte de périnatalité ou de handicap, gestion de la douleur, poursuite de la scolarité, rôle du pédiatre et de l'infirmière, souffrance des membres de la famille et des soignants, décès à l'urgence, impacts des décisions concernant l'alimentation, les niveaux de soins et la non-réanimation, possible conflit opposant famille et équipe de soins, importance du suivi de deuil...-, ce livre contribue à donner à chaque jeune patient un encadrement global et adéquat visant la meilleure qualité de vie possible dans le respect de son développement. Référence essentielle, il témoigne de la complexité des gestes et des décisions des soignants qui, ne pouvant plus guérir la maladie, sont appelés à soulager tous les malaises du petit malade et de sa famille, y comprix ceux de l'âme.
ISBN
9782896196197
Language
French
Material Type
Book
Call Number
EF 850.5 HUM 2012 STACKS

Copies

copy 1 BC Children's and Women's Family Library Available
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Whole body listening Larry at school!

https://bcch.andornot.com/en/permalink/catalog113812
Sautter, Elizabeth, Wilson, Kristen, Hutchison, Eric (ill.). San Jose, CA: Socialthinking.com , 2011.
Material Type
Book
Call Number
GK 850 SAU 2011
Availability
1 copy, 1 available
In this charming comic book, told in poem, the authors, Sautter and Wilson explore how two siblings, Leah and Luka struggle to focus their brains and bodies during the school day. Kindly, a peer mentor helps to explain to these students how they need to use their eyes, hands, feet, heart, brain, et…
Author
Sautter, Elizabeth
Wilson, Kristen
Hutchison, Eric (ill.)
Place of Publication
San Jose, CA
Publisher
Socialthinking.com
Publication Date
2011
Physical Description
Softcover: 28 p.
Subject
Language/Communication
Developmental Disability
Abstract
In this charming comic book, told in poem, the authors, Sautter and Wilson explore how two siblings, Leah and Luka struggle to focus their brains and bodies during the school day. Kindly, a peer mentor helps to explain to these students how they need to use their eyes, hands, feet, heart, brain, etc. to listen in group environments to not only access the information but to work as part of a group.
ISBN
9780982523186
Language
English
Material Type
Book
Call Number
GK 850 SAU 2011

Copies

BC Children's and Women's Family Library Available
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Whole body listening Larry at home!

https://bcch.andornot.com/en/permalink/catalog124624
Sautter, Elizabeth, Wilson, Kristen, Hutchison, Eric [illustrator]. San Jose, CA: Social Thinking , 2011.
Material Type
Book
Call Number
GK 850 WIL 2011
Availability
1 copy, 1 available
Being a good listener means much more than just hearing what is said with the ears. It is important to break down ALL of the components of listening, to teach your kids to listen with their eyes, hands, feet, brains, hearts - indeed their whole bodies!; Designed to stimulate discussions at home and…
Author
Sautter, Elizabeth
Wilson, Kristen
Hutchison, Eric [illustrator]
Place of Publication
San Jose, CA
Publisher
Social Thinking
Publication Date
2011
Physical Description
Softcover; illustrated; 26 pages
Subject
Language/Communication
Developmental Disability
Abstract
Being a good listener means much more than just hearing what is said with the ears. It is important to break down ALL of the components of listening, to teach your kids to listen with their eyes, hands, feet, brains, hearts - indeed their whole bodies!
Designed to stimulate discussions at home and at school about how we listen as a member of our family and in groups, Whole Body Listening Larry at Home teaches children with fun lessons wonderfully illustrated to bring the concepts to life.
This book can [be] read with ALL younger students by parents, teachers, etc. The book can be read with the child and the child can then read the book on his or her own, with siblings, friends, grandparents. Developed from years of using Whole Body Listening Larry to teach children in their practice, speech language pathologists Kristen Wilson and Elizabeth Sautter worked with illustrator Eric Hutchison to make their best lessons work for even the wiggliest child!
ISBN
9780982523179
Language
English
Material Type
Book
Call Number
GK 850 WIL 2011

Copies

BC Children's and Women's Family Library Available
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Quick guide to finding mental health services in BC

https://bcch.andornot.com/en/permalink/catalog113582
BC Mental Health & Substance Use Services. [Vancouver, BC?]: BC Children's Hospital , 2015.
URL
http://www.cw.bc.ca/library/pdf/pamphlets/PHSA404_QuickGuideToFindingMHServicesinBC_2015.pdf
Material Type
Handout
Online
  1 url  
URL
http://www.cw.bc.ca/library/pdf/pamphlets/PHSA404_QuickGuideToFindingMHServicesinBC_2015.pdf
Website Notes
Click on the link above to view/print.
Corporate Author
BC Mental Health & Substance Use Services
Place of Publication
[Vancouver, BC?]
Publisher
BC Children's Hospital
Publication Date
2015
Physical Description
PDF file: 2 p.
Subject
Mental Health
Language
English
Material Type
Handout
Online
URLs
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Finding freedom in illness: A guide to cultivating deep well-being through mindfulness and self-compassion

https://bcch.andornot.com/en/permalink/catalog122283
Fernando, Peter. Boulder: Shambhala Publications, Inc. , 2016.
Material Type
Book
Call Number
EF 850 FER 2016
Availability
1 copy, 1 available
"'Let your illness be your spiritual teacher!' Make a statement like that to someone who's struggled for years with, say, rheumatoid arthritis, and be prepared for an eye roll (at best). To Peter Fernando's credit, he makes that statement, and no such impulse arises. We believe him because he's bee…
Author
Fernando, Peter
Place of Publication
Boulder
Publisher
Shambhala Publications, Inc.
Publication Date
2016
Physical Description
Softcover ; ix, 222 p.
Subject
Mindfulness
Mind/Body
Chronic Illness
Chronic Pain
Emotional Health
Self-Concept (includes self-esteem)
Abstract
"'Let your illness be your spiritual teacher!' Make a statement like that to someone who's struggled for years with, say, rheumatoid arthritis, and be prepared for an eye roll (at best). To Peter Fernando's credit, he makes that statement, and no such impulse arises. We believe him because he's been there himself and because he backs up the statements with his own real experiences and with real wisdom from the Buddhist teachings. Fernando starts by defusing the pernicious belief that anyone is somehow responsible for their illness: you're not "wrong" for being sick. Then, having gotten past self-blame, one can begin to learn self-kindness. From there, one moves to mindfulness practices and cultivating body awareness?even if body awareness is distasteful when the body isn't behaving the way you like. Further topics include getting intimate with dark emotions (fear, despair, the scary future, frustration, grief, etc.), learning equanimity (rejoicing in the good fortune of those who don't share your suffering), cultivating healthy relationships in the midst of everything, and practical advice for living with pain. Each chapter comes with one or more practices or guided meditations for putting the teachings into practice"--from publisher.
ISBN
9781611802634
Language
English
Material Type
Book
Call Number
EF 850 FER 2016

Copies

BC Children's and Women's Family Library Available
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Sex ed for people with I/DD

https://bcch.andornot.com/en/permalink/catalog124174
National Council on Radiation Protection and Measurements. Washington, DC: National Council on Independant Living , 2019.
URL
https://www.youtube.com/playlist?list=PLuEvYNNQ-dHeVhbyeJHx9s8oqsvBk621v
Material Type
Video
Online
This YouTube playlist includes 10 informational videos on sex education for people with intellectual and/or developmental disabilities.
  1 url  
URL
https://www.youtube.com/playlist?list=PLuEvYNNQ-dHeVhbyeJHx9s8oqsvBk621v
Corporate Author
National Council on Radiation Protection and Measurements
Place of Publication
Washington, DC
Publisher
National Council on Independant Living
Publication Date
2019
Subject
Intellectual disability
Developmental Disabilities
Sex Education
Sexuality
Abstract
This YouTube playlist includes 10 informational videos on sex education for people with intellectual and/or developmental disabilities.
Language
English
Material Type
Video
Online
URLs
Show Less

La santé mentale : Vers un bonheur sous contrôle

https://bcch.andornot.com/en/permalink/catalog122063
Bellahsen, Mathiu. Paris: La Fabrique , 2014.
Material Type
Book
Call Number
CA 220 BEL 2014
Availability
1 copy, 1 available
De la déprime au « bonheur intérieur brut », de la souffrance au travail aux « gérontotechnologies » permettant de réussir son vieillissement, de la possibilité de « sortie de crise » à « la maximalisation de son capital santé mentale », le spectre de la santé mentale occupe désormais des pans de p…
Alternate Title
[La sante mentale : Vers un bonheur sous controle]
Author
Bellahsen, Mathiu
Place of Publication
Paris
Publisher
La Fabrique
Publication Date
2014
Physical Description
Paperback ; 186 p.
Subject
Mental Health
Happiness
Abstract
De la déprime au « bonheur intérieur brut », de la souffrance au travail aux « gérontotechnologies » permettant de réussir son vieillissement, de la possibilité de « sortie de crise » à « la maximalisation de son capital santé mentale », le spectre de la santé mentale occupe désormais des pans de plus en plus importants de nos vies. En quelques années, elle sera passée du champ psychiatrique au champ économique, se départissant de son aura négative associée à la folie pour revêtir les habits attrayants de la « santé mentale positive ».Cerner ses métamorphoses devient une nécessité politique puisqu?en son nom se dessinent de nouvelles politiques publiques ayant pour perspective énoncée le bonheur, le bien-être et une vie réussie pour tous les citoyens. Pour autant, peut-on détacher cette recherche de bien-être du contexte général traversant notre société ? Promouvoir la qualité de la vie alors que dans le même temps les conditions de vie des populations se dégradent, prétendre à la déstigmatisation alors que de nouveaux processus ségrégatifs se développent : ces paradoxes dévoileraient-ils le nouveau visage de la santé mentale en tant qu?opérateur de légitimation de la rationalité néolibérale ? Si nous devrons nous élever contre ces injonctions au bonheur, de bien-être et de vie réussie « du berceau à la tombe », ce sera pour mieux analyser ce que recouvrent ces entités présentées comme « naturelles », comme mesures de bon sens allant de soi, avec pour objectifs énoncés de faciliter, d?optimiser voire
ISBN
9782358720595
Language
French
Material Type
Book
Call Number
CA 220 BEL 2014

Copies

BC Children's and Women's Family Library Available
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Self-compassion for parents: Nurture your child by caring for yourself

https://bcch.andornot.com/en/permalink/catalog123628
Pollak, Susan M. Guildford Press , 2019.
Material Type
Book
Call Number
GK 600 POL 2019
Availability
2 copies, 2 available
Parenting is hard. That's why self-compassion is so important. In this empathic resource, mindfulness expert and psychologist Susan M. Pollak helps you let go of constant self-judgment and treat yourself with the same kindness and caring you strive to offer your kids. Simple yet powerful guided med…
Author
Pollak, Susan M.
Publisher
Guildford Press
Publication Date
2019
Physical Description
Softcover : 246 pages
Subject
Parenting
Mental Health
Abstract
Parenting is hard. That's why self-compassion is so important. In this empathic resource, mindfulness expert and psychologist Susan M. Pollak helps you let go of constant self-judgment and treat yourself with the same kindness and caring you strive to offer your kids. Simple yet powerful guided meditation techniques (most under three minutes long) are easy to practice while doing the dishes, driving to work, or soothing a fussy baby. Learn to respond to your own imperfections like a supportive friend, not a harsh critic. You will find yourself happier and more energized--and will discover new reserves of patience and appreciation for your kids.
ISBN
9781462533091
Language
English
Material Type
Book
Call Number
GK 600 POL 2019

Copies

copy 1 BC Children's and Women's Family Library Available
copy 2 BC Children's and Women's Family Library Available
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Caged in chaos: A dyspraxic guide to breaking free

https://bcch.andornot.com/en/permalink/catalog120588
Biggs, Victoria. London: Jessica Kingsley Publishers , 2014.
Material Type
Book
Call Number
YOUTH FM 270 BIG 2014
Availability
1 copy, 1 available
Written by a teenager with dyspraxia, this practical guide helps young adults with dyspraxia and those around them get to grips with the social, physical and psychological chaos caused by developmental co-ordination disorders. The new edition of this award-winning book includes an update from the a…
Author
Biggs, Victoria
Place of Publication
London
Publisher
Jessica Kingsley Publishers
Publication Date
2014
Physical Description
soft cover; 216 page
Subjects
Movement disorders
Adolescent
Subject
Developmental Disability
Abstract
Written by a teenager with dyspraxia, this practical guide helps young adults with dyspraxia and those around them get to grips with the social, physical and psychological chaos caused by developmental co-ordination disorders. The new edition of this award-winning book includes an update from the author on how dyspraxia affects her now as an adult.
ISBN
9781849054744
Language
English
Material Type
Book
Call Number
YOUTH FM 270 BIG 2014

Copies

Copy 1 BC Children's and Women's Family Library Available
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Giles, Gail. Somerville, MA: Candlewick Press , 2014.
Material Type
Book
Call Number
YOUTH FM 270 GIL 2014
Availability
1 copy, 1 available
Graduating from their school's special education program, Quincy and Biddy are placed together in their first independent apartment and discover unexpected things they have in common in the face of past challenges and a harrowing trauma.
Author
Giles, Gail
Place of Publication
Somerville, MA
Publisher
Candlewick Press
Publication Date
2014
Subject
Mental Disorders
Disabilities
Friendship
Trauma Survivors
Abstract
Graduating from their school's special education program, Quincy and Biddy are placed together in their first independent apartment and discover unexpected things they have in common in the face of past challenges and a harrowing trauma.
ISBN
9780763662677
Language
English
Material Type
Book
Call Number
YOUTH FM 270 GIL 2014

Copies

Copy 1 BC Children's and Women's Family Library Available
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Building resilience in children and teens : Giving kids roots and wings

https://bcch.andornot.com/en/permalink/catalog113528
Jablow, Martha, Ginsburg, Kenneth. Elk Grove Village, IL: American Academy of Pediatrics , 2015. 3rd ed.
Material Type
Book
Call Number
GK 600 JAB 2015
Availability
1 copy, 1 available
This book offers coping strategies for facing the combined elements of academic performance, high achievement standards, media messages, peer pressure, and family tension.
Author
Jablow, Martha
Ginsburg, Kenneth
Edition
3rd ed.
Place of Publication
Elk Grove Village, IL
Publisher
American Academy of Pediatrics
Publication Date
2015
Subject
Parenting
Children Mental Health
Abstract
This book offers coping strategies for facing the combined elements of academic performance, high achievement standards, media messages, peer pressure, and family tension.
ISBN
9781581108668
Language
English
Material Type
Book
Call Number
GK 600 JAB 2015

Copies

Copy 1 BC Children's and Women's Family Library Available
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Mon premier livre de méditation

https://bcch.andornot.com/en/permalink/catalog113932
Dumont, Dominique. Saint-Lambert, QC: Les Editions Heritage , 2013.
Material Type
Book
Call Number
JUNIOR EG 220 DUM 2013
Availability
1 copy, 1 available
Ce livre de méditation pour enfants propose un voyage de détente à travers les saisons. Grâce à différents exercices illustrés, petits et grands pourront s'amuser tout en profitant des nombreux bienfaits de cette pratique millénaire. La méditation apaise l'anxiété et procure un bien-être intérieur …
Alternate Title
[Mon premier livre de meditation]
Author
Dumont, Dominique
Place of Publication
Saint-Lambert, QC
Publisher
Les Editions Heritage
Publication Date
2013
Physical Description
Hardcover, 31 p.
Subject
Meditation
Children Mental Health
Abstract
Ce livre de méditation pour enfants propose un voyage de détente à travers les saisons. Grâce à différents exercices illustrés, petits et grands pourront s'amuser tout en profitant des nombreux bienfaits de cette pratique millénaire. La méditation apaise l'anxiété et procure un bien-être intérieur incomparable. Elle favorise également la concentration.
ISBN
9782896864171
Language
French
Material Type
Book
Call Number
JUNIOR EG 220 DUM 2013

Copies

Copy 1 BC Children's and Women's Family Library Available
Show Less

The Sedated Auditory Brainstem Response (ABR) Test (English)

https://bcch.andornot.com/en/permalink/catalog112499
Audiology and Speech Language Pathology Department. [Vancouver, BC?]: BC Children's Hospital , 2016.
URL
http://www.cw.bc.ca/library/pdf/pamphlets/BCCH1641_SedatedAuditoryBrainstemResponseTest_2016_Feb.pdf
Material Type
Online
Handout
Call Number
BCCH1641
This pamphlet provides information about the Auditory Brainstem Response (ABR) Test, which measures how the hearing nerve and brainstem respond to sounds. It includes how the test is done, explains why your child must be asleep during the test, and eating and drinking instructions.
  1 image     1 url  
URL
http://www.cw.bc.ca/library/pdf/pamphlets/BCCH1641_SedatedAuditoryBrainstemResponseTest_2016_Feb.pdf
Website Notes
Click on the link above to view/print.
Corporate Author
Audiology and Speech Language Pathology Department
Place of Publication
[Vancouver, BC?]
Publisher
BC Children's Hospital
Publication Date
2016
Physical Description
PDF file: 2 p.
Subject
Brain
Diagnostic Tests/Procedures. Physical Diagnosis
Hearing. Hard of Hearing-Children
Abstract
This pamphlet provides information about the Auditory Brainstem Response (ABR) Test, which measures how the hearing nerve and brainstem respond to sounds. It includes how the test is done, explains why your child must be asleep during the test, and eating and drinking instructions.
Language
English
Material Type
Online
Handout
Call Number
BCCH1641
Images
URLs
Show Less

Auditory Brainstem Response (ABR) Test (English)

https://bcch.andornot.com/en/permalink/catalog112500
Audiology and Speech Language Pathology Department. [Vancouver, BC?]: BC Children's Hospital , 2016.
URL
http://www.cw.bc.ca/library/pdf/pamphlets/BCCH1659_AuditoryBrainstemResponseTest_2016_Feb.pdf
Material Type
Handout
Online
Call Number
BCCH1659
This 1 page pamphlet for parents explains what an Auditory Brainstem Response (ABR) test is, and what you can do to prepare for the test.
  1 image     1 url  
URL
http://www.cw.bc.ca/library/pdf/pamphlets/BCCH1659_AuditoryBrainstemResponseTest_2016_Feb.pdf
Website Notes
Click on the link above to view/print.
Corporate Author
Audiology and Speech Language Pathology Department
Place of Publication
[Vancouver, BC?]
Publisher
BC Children's Hospital
Publication Date
2016
Physical Description
PDF file: 1 p.
Subject
Diagnostic Tests/Procedures. Physical Diagnosis
Brain
Hearing. Hard of Hearing-Children
Abstract
This 1 page pamphlet for parents explains what an Auditory Brainstem Response (ABR) test is, and what you can do to prepare for the test.
Language
English
Material Type
Handout
Online
Call Number
BCCH1659
Images
URLs
Show Less

Auditory Brainstem Response (ABR) Test (Punjabi)

https://bcch.andornot.com/en/permalink/catalog114470
Audiology and Speech Language Pathology Department. [Vancouver, BC?]: BC Children's Hospital , 2016.
URL
http://www.cw.bc.ca/library/pdf/pamphlets/BCCH1659P_UnsedatedABR_2016_Jul.pdf
Material Type
Handout
Online
Call Number
BCCH1659-P
This 1 page pamphlet for parents explains what an Auditory Brainstem Response (ABR) test is, and what you can do to prepare for the test in Punjabi.
  1 image     1 url  
URL
http://www.cw.bc.ca/library/pdf/pamphlets/BCCH1659P_UnsedatedABR_2016_Jul.pdf
Website Notes
Click on the link above to view/print.
Corporate Author
Audiology and Speech Language Pathology Department
Place of Publication
[Vancouver, BC?]
Publisher
BC Children's Hospital
Publication Date
2016
Physical Description
PDF file: 1 p.
Subject
Diagnostic Tests/Procedures. Physical Diagnosis
Brain
Hearing. Hard of Hearing-Children
Abstract
This 1 page pamphlet for parents explains what an Auditory Brainstem Response (ABR) test is, and what you can do to prepare for the test in Punjabi.
Notes
BCCH1659-P
Language
Punjabi
Material Type
Handout
Online
Call Number
BCCH1659-P
Images
URLs
Show Less

Auditory Brainstem Response (ABR) Test (Simplified Chinese)

https://bcch.andornot.com/en/permalink/catalog114471
Audiology and Speech Language Pathology Department. [Vancouver, BC?]: BC Children's Hospital , 2016.
URL
http://www.cw.bc.ca/library/pdf/pamphlets/BCCH1659SCh_UnsedatedABR_2016_Jul.pdf
Material Type
Handout
Online
Call Number
BCCH1659-SCH
This 1 page pamphlet for parents explains what an Auditory Brainstem Response (ABR) test is, and what you can do to prepare for the test in Simplified Chinese.
  1 image     1 url  
URL
http://www.cw.bc.ca/library/pdf/pamphlets/BCCH1659SCh_UnsedatedABR_2016_Jul.pdf
Website Notes
Click on the link above to view/print.
Corporate Author
Audiology and Speech Language Pathology Department
Place of Publication
[Vancouver, BC?]
Publisher
BC Children's Hospital
Publication Date
2016
Physical Description
PDF file: 1 p.
Subject
Diagnostic Tests/Procedures. Physical Diagnosis
Brain
Hearing. Hard of Hearing-Children
Abstract
This 1 page pamphlet for parents explains what an Auditory Brainstem Response (ABR) test is, and what you can do to prepare for the test in Simplified Chinese.
Notes
BCCH1659-SCH
Language
Simplified Chinese
Material Type
Handout
Online
Call Number
BCCH1659-SCH
Images
URLs
Show Less

Auditory Brainstem Response (ABR) Test (Traditional Chinese)

https://bcch.andornot.com/en/permalink/catalog114472
Audiology and Speech Language Pathology Department. [Vancouver, BC?]: BC Children's Hospital , 2016.
URL
http://www.cw.bc.ca/library/pdf/pamphlets/BCCH1659TCh_UnsedatedABR_2016_Jul.pdf
Material Type
Handout
Online
Call Number
BCCH1659-TCH
This 1 page pamphlet for parents explains what an Auditory Brainstem Response (ABR) test is, and what you can do to prepare for the test in Traditional Chinese.
  1 image     1 url  
URL
http://www.cw.bc.ca/library/pdf/pamphlets/BCCH1659TCh_UnsedatedABR_2016_Jul.pdf
Website Notes
Click on the link above to view/print.
Corporate Author
Audiology and Speech Language Pathology Department
Place of Publication
[Vancouver, BC?]
Publisher
BC Children's Hospital
Publication Date
2016
Physical Description
PDF file: 1 p.
Subject
Diagnostic Tests/Procedures. Physical Diagnosis
Brain
Hearing. Hard of Hearing-Children
Abstract
This 1 page pamphlet for parents explains what an Auditory Brainstem Response (ABR) test is, and what you can do to prepare for the test in Traditional Chinese.
Notes
BCCH1659-TCH
Language
Traditional Chinese
Material Type
Handout
Online
Call Number
BCCH1659-TCH
Images
URLs
Show Less

The Sedated Auditory Brainstem Response (ABR) Test (Punjabi)

https://bcch.andornot.com/en/permalink/catalog114473
Audiology and Speech Language Pathology Department. [Vancouver, BC?]: BC Children's Hospital , 2016.
URL
http://www.cw.bc.ca/library/pdf/pamphlets/BCCH1641P_SedatedAuditoryBrainstemResponse_2016.pdf
Material Type
Handout
Online
Call Number
BCCH1641-P
This pamphlet provides information about the Auditory Brainstem Response (ABR) Test, which measures how the hearing nerve and brainstem respond to sounds. It includes how the test is done, explains why your child must be asleep during the test, and eating and drinking instructions in Punjabi.
  1 image     1 url  
URL
http://www.cw.bc.ca/library/pdf/pamphlets/BCCH1641P_SedatedAuditoryBrainstemResponse_2016.pdf
Website Notes
Click on the link above to view/print.
Corporate Author
Audiology and Speech Language Pathology Department
Place of Publication
[Vancouver, BC?]
Publisher
BC Children's Hospital
Publication Date
2016
Physical Description
PDF file: 2 p.
Subject
Brain
Diagnostic Tests/Procedures. Physical Diagnosis
Hearing. Hard of Hearing-Children
Abstract
This pamphlet provides information about the Auditory Brainstem Response (ABR) Test, which measures how the hearing nerve and brainstem respond to sounds. It includes how the test is done, explains why your child must be asleep during the test, and eating and drinking instructions in Punjabi.
Notes
BCCH1641-P
Language
Punjabi
Material Type
Handout
Online
Call Number
BCCH1641-P
Images
URLs
Show Less

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