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Success stories from the frontline: Intellectual disabilities and mental health: An anthology of first person stories as submitted by patients and their families

https://bcch.andornot.com/en/permalink/catalog110178
Hombert, Madeline (editor); Friedlander, Robin & Donnelly, Tina (publishers). Port Coquitlam, BC: Friedlander/Donnelly , 2006.
Material Type
Book
Call Number
CD 255 HOM 2006
Availability
1 copy, 1 available
A collection of writing from a dozen parents and those dually diagnosed with developmental and mental health problems. Covers autism, obsessive compulsive disorder (OCD), as well as developmental disabilities.
  1 image  
Author
Hombert, Madeline (editor); Friedlander, Robin & Donnelly, Tina (publishers)
Place of Publication
Port Coquitlam, BC
Publisher
Friedlander/Donnelly
Publication Date
2006
Physical Description
Paperback, 189 p.
Subject
Mental Disorders-Coping for the Family
Developmental Disability
External
Abstract
A collection of writing from a dozen parents and those dually diagnosed with developmental and mental health problems. Covers autism, obsessive compulsive disorder (OCD), as well as developmental disabilities.
Notes
On Sale! Regular price = $15.00
ISBN
0978146700
Language
English
Material Type
Book
Call Number
CD 255 HOM 2006

Copies

Copy 1 BC Children's and Women's Family Library Available
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Easy for you to say: Q & A's for teens living with chronic illness or disability

https://bcch.andornot.com/en/permalink/catalog112348
Kaufman, Miriam. [Toronto, ON]: Firefly Books Ltd , 2012. 3rd ed.
Material Type
Book
Call Number
YOUTH EF 850.6 KAU 2012
Availability
1 copy, 1 available
In the 3rd edition, Dr. Miriam Kaufman addresses important topics for teens who are living with chronic conditions or disabilities. The topics include: Anemia, Cancer, Cerebral Palsy, Crohn's Disease, Deafness, Diabetes, Head Injury, Heart Disease, Hemophilia, HIV, Lupus, Muscular Dystrophy, Sickle…
Author
Kaufman, Miriam
Edition
3rd ed
Place of Publication
[Toronto, ON]
Publisher
Firefly Books Ltd
Publication Date
2012
Physical Description
Softcover: 309 p.
Subject
Coping with Chronic Illness
Young Adults
Physical Disability-Coping
Physical Disability. Physically Challenged
Relationships
Abstract
In the 3rd edition, Dr. Miriam Kaufman addresses important topics for teens who are living with chronic conditions or disabilities. The topics include: Anemia, Cancer, Cerebral Palsy, Crohn's Disease, Deafness, Diabetes, Head Injury, Heart Disease, Hemophilia, HIV, Lupus, Muscular Dystrophy, Sickle Cell Anemia, Seizures, Spinal Bifida, Spinal Cord Injuries, and Thyroid Disease.
ISBN
9781770850996
Language
English
Material Type
Book
Call Number
YOUTH EF 850.6 KAU 2012

Copies

Copy 1 BC Children's and Women's Family Library Available
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Accessing the future: A disability-themed speculative fiction anthology

https://bcch.andornot.com/en/permalink/catalog122543
Futurefire.net , 2015.
Material Type
Book
Call Number
YOUTH GN 800 ALL 2015
Availability
1 copy, 1 available
"The fifteen authors and nine artists in this volume bring us beautiful, speculative stories of disability and mental illness in the future. Teeming with space pirates, battle robots, interstellar travel and genetically engineered creatures, every story and image is a quality, crafted work of scien…
Editor
Allan, Kathryn
Al-Ayad, Djibril
Publisher
Futurefire.net
Publication Date
2015
Physical Description
233 pages
Subject
Physical Disability. Physically Challenged
Mental Health/Illness
Abstract
"The fifteen authors and nine artists in this volume bring us beautiful, speculative stories of disability and mental illness in the future. Teeming with space pirates, battle robots, interstellar travel and genetically engineered creatures, every story and image is a quality, crafted work of science fiction in its own right, as thrilling and fascinating as it is worthy and important. These are stories about people with disabilities in all of their complexity and diversity, that scream with passion and intensity. These are stories that refuse to go gently."
ISBN
9780957397545
Language
English
Material Type
Book
Call Number
YOUTH GN 800 ALL 2015

Copies

copy 1 BC Children's and Women's Family Library Available
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Not so different : What you really want to know about having a disability

https://bcch.andornot.com/en/permalink/catalog121622
Burcaw, Shane, Carr, Matt. New York, NY: Roaring Brook Press , 2017.
Call Number
JUNIOR GN 800 BUR 2017
Shane Burcaw was born with a rare disease called spinal muscular atrophy, which hinders his muscles? growth. As a result, his body hasn?t grown bigger and stronger as he?s gotten older―it?s gotten smaller and weaker instead. This hasn?t stopped him from doing the things he enjoys (like eating…
Author
Burcaw, Shane
Carr, Matt
Place of Publication
New York, NY
Publisher
Roaring Brook Press
Publication Date
2017
Physical Description
40 pages
Subject
Physical Disabilty. Physically Challenged
Abstract
Shane Burcaw was born with a rare disease called spinal muscular atrophy, which hinders his muscles? growth. As a result, his body hasn?t grown bigger and stronger as he?s gotten older―it?s gotten smaller and weaker instead. This hasn?t stopped him from doing the things he enjoys (like eating pizza and playing sports and video games) with the people he loves, but it does mean that he routinely relies on his friends and family for help with everything from brushing his teeth to rolling over in bed.
ISBN
978-1626727717
Language
English
Call Number
JUNIOR GN 800 BUR 2017
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Surviving schizophrenia : A family manual

https://bcch.andornot.com/en/permalink/catalog122367
Torrey, E. Fuller. Harper Perennial , 2019. 7th ed.
Material Type
Book
Call Number
CD 620 TOR 2019
Availability
1 copy, 1 available
"Since its first publication in 1983, Surviving Schizophrenia has become the standard reference book on the disease and has helped thousands of patients, their families, and mental health professionals.; "In clear language, this much-praised and important book describes the nature, causes, symptoms…
Author
Torrey, E. Fuller
Edition
7th ed.
Publisher
Harper Perennial
Publication Date
2019
Physical Description
Softcover ; xxii, 496 p.
Subject
Schizophrenia
Schizophrenia -Coping for the Family
Abstract
"Since its first publication in 1983, Surviving Schizophrenia has become the standard reference book on the disease and has helped thousands of patients, their families, and mental health professionals.
"In clear language, this much-praised and important book describes the nature, causes, symptoms, treatment, and course of schizophrenia and also explores living with it from both the patient's and the family's point of view. This new, completely updated seventh edition includes the latest research findings on what causes the illness, as well as information about the newest drugs for treatment, and answers the questions most often asked by families, consumers, and providers"--from the Publisher.
ISBN
9780062880802
Language
English
Material Type
Book
Call Number
CD 620 TOR 2019

Copies

BC Children's and Women's Family Library Available
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Questions and answers: Sexual health education for youth with physical disabilities

https://bcch.andornot.com/en/permalink/catalog112793
Public Health Agency of Canada. [Ottawa, ON]: Public Health Agency of Canada , 2013.
URL
https://www.canada.ca/en/public-health/services/infectious-diseases/sexual-health-sexually-transmitted-infections/reports-publications/questions-answers-youth.html
Material Type
Book
Call Number
GA 110 PUB 2013
Availability
1 copy, 1 available
This document provides evidence-informed answers to the most commonly asked questions regarding sexual health education for youth with physical disabilities. The goal of this resource is to assist in the creation of supportive and healthy learning environments for youth with physical disabilities …
  1 url  
URL
https://www.canada.ca/en/public-health/services/infectious-diseases/sexual-health-sexually-transmitted-infections/reports-publications/questions-answers-youth.html
Corporate Author
Public Health Agency of Canada
Place of Publication
[Ottawa, ON]
Publisher
Public Health Agency of Canada
Publication Date
2013
Physical Description
Softcover: 22 p.
Subject
Sexuality
Physical Disability. Physically Challenged
Sexual Health
Abstract
This document provides evidence-informed answers to the most commonly asked questions regarding sexual health education for youth with physical disabilities. The goal of this resource is to assist in the creation of supportive and healthy learning environments for youth with physical disabilities and to support the provision of comprehensive sexual health education that is inclusive of their needs.
Notes
French version also available: Questions and réponses: éducation en matière de santé sexuelle à l'intention des jeunes ayant une incapacité physique
ISBN
9781100544823
Language
English
Material Type
Book
Call Number
GA 110 PUB 2013

Copies

Copy 1 BC Children's and Women's Family Library Available
URLs
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Scribble and paste: A creative journal if cancer comes to your family

https://bcch.andornot.com/en/permalink/catalog114783
Hankinson, Sara Prins, Janes, Karen. [Vancouver, BC?]: BC Cancer Agency , 2016.
Material Type
Book
Call Number
FE 555 HAN 2016b
Availability
1 copy, 1 available
This journal is an activity book developed by an Art Therapist with the Patient and Family Counselling Program and an Oncology Nursing Practice Leader with the BC Cancer Agency. It is designed for older children, ages 10 and up, to help them learn creative ways of coping when a family member is liv…
Author
Hankinson, Sara Prins
Janes, Karen
Place of Publication
[Vancouver, BC?]
Publisher
BC Cancer Agency
Publication Date
2016
Physical Description
Paperback, 64 p., ill.
Subject
Cancer
Cancer - Coping
Children with Cancer-Coping for the Family
Abstract
This journal is an activity book developed by an Art Therapist with the Patient and Family Counselling Program and an Oncology Nursing Practice Leader with the BC Cancer Agency. It is designed for older children, ages 10 and up, to help them learn creative ways of coping when a family member is living with cancer. This activity book can provide a starting point for older children and families to talk about cancer. The activities in the book can also provide a child with ways to discover more about themselves, their family, their strengths and the support around them. Suitable for ages 10 and up.
ISBN
9781896624273
Language
English
Material Type
Book
Call Number
FE 555 HAN 2016b

Copies

copy 1 BC Children's and Women's Family Library Available
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Time for me: An activity book for kids when someone in the family has cancer

https://bcch.andornot.com/en/permalink/catalog111577
Slakov, June, Janes, Karen. [Vancouver, BC?]: BC Cancer Agency , 2003. Revised.
URL
http://www.cw.bc.ca/library/pdf/TimeForMe.pdf
Material Type
Book
Call Number
FE 550 SLA 2004
Availability
1 copy, 1 available
This activity book was written by a former Art Therapist with the Patient and Family Counselling Program and an Oncology Nursing Practice Leader with the BC Cancer Agency. It is designed for children, ages 6 to 12, to help them learn, creative ways of coping when a family member is living with can…
  1 image     1 url  
URL
http://www.cw.bc.ca/library/pdf/TimeForMe.pdf
Website Notes
Click on the link above to view.
Author
Slakov, June
Janes, Karen
Edition
Revised
Place of Publication
[Vancouver, BC?]
Publisher
BC Cancer Agency
Publication Date
2003
Physical Description
Softcover (spiralbound): 50 p.
Subject
Children with Cancer
Children with Cancer-Coping
Children with Cancer-Coping for the Family
Children with Cancer-Coping for the Parents
Children with Cancer-Coping for the Siblings
Children Coping with Family Illness
Cancer
Abstract
This activity book was written by a former Art Therapist with the Patient and Family Counselling Program and an Oncology Nursing Practice Leader with the BC Cancer Agency. It is designed for children, ages 6 to 12, to help them learn, creative ways of coping when a family member is living with cancer. This activity book can provide a starting point for children and families to talk about cancer. The activities in the book can provide a child with choices in creative tools to learn and grow through the family’s experience with cancer.
ISBN
1896624103
Language
English
Material Type
Book
Call Number
FE 550 SLA 2004

Copies

Copy 1 BC Children's and Women's Family Library Available
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URLs
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Reaching out to your children when cancer comes to your family: A guide for parents

https://bcch.andornot.com/en/permalink/catalog114589
Slakov, June. [Vancouver, BC?]: BC Cancer Agency , 2016.
Material Type
Book
Call Number
FE 555 SLA 2016
Availability
1 copy, 1 available
This book is for the parents, grandparents, aunts and uncles, teachers, or other support persons, who play a key role in helping children and teens who have a family member living with cancer.
Author
Slakov, June
Place of Publication
[Vancouver, BC?]
Publisher
BC Cancer Agency
Publication Date
2016
Physical Description
Spiral bound, 52 p., ill.
Subject
Children with Cancer-Coping
Children with Cancer-Coping for the Family
Cancer
Abstract
This book is for the parents, grandparents, aunts and uncles, teachers, or other support persons, who play a key role in helping children and teens who have a family member living with cancer.
ISBN
9781896624280
Language
English
Material Type
Book
Call Number
FE 555 SLA 2016

Copies

copy 1 BC Children's and Women's Family Library Available
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Mentalization in the family

https://bcch.andornot.com/en/permalink/catalog122731
Rasmussen, Heino, Oestergaard Hagelquist, Janne. Taylor & Francis Group , 2020.
URL
https://ebookcentral.proquest.com/lib/cwhbc/detail.action?docID=6247183
Material Type
Ebook
Call Number
CF 500 RAS 2020
Mentalization is the idea that understanding a person's mental state can help you understand their behaviour. This book explores how mental states relate to attachment style, internal regulation, emotional compass, and parenting. It also offers tips on play, boundaries, sexuality, and sibling relat…
  1 url  
URL
https://ebookcentral.proquest.com/lib/cwhbc/detail.action?docID=6247183
Author
Rasmussen, Heino
Oestergaard Hagelquist, Janne
Publisher
Taylor & Francis Group
Publication Date
2020
Subject
Family
Abstract
Mentalization is the idea that understanding a person's mental state can help you understand their behaviour. This book explores how mental states relate to attachment style, internal regulation, emotional compass, and parenting. It also offers tips on play, boundaries, sexuality, and sibling relationships.
ISBN
9781000057836
Language
English
Material Type
Ebook
Call Number
CF 500 RAS 2020
URLs
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Attainment's learning to work: A collection of stories about life and work

https://bcch.andornot.com/en/permalink/catalog121909
Ramsey Musselwhite, Caroline, Beck Richardson, Laurel. Verona, WI: Attainment Company, Inc. , 2009.
Material Type
Book
Call Number
YOUTH GL 830 RAM 2009
Availability
1 copy, 1 available
Learning to Work provides engaging and age-appropriate reading material for older beginning readers. The stories are intended for older students who are not yet reading conventionally for a variety of reasons, including cognitive delays and significant learning disabilities. Along with building rea…
Author
Ramsey Musselwhite, Caroline
Beck Richardson, Laurel
Corporate Author
Attainment Company, Inc.
Place of Publication
Verona, WI
Publisher
Attainment Company, Inc.
Publication Date
2009
Physical Description
Softcover ; 248 p.
Subject
Learning Differences. Learning Disabilities
Social Behaviour (includes boundaries)
Child Social Behaviour
Relationships
Social Skills
Abstract
Learning to Work provides engaging and age-appropriate reading material for older beginning readers. The stories are intended for older students who are not yet reading conventionally for a variety of reasons, including cognitive delays and significant learning disabilities. Along with building reading skills, these work-themed stories also help middle school or high school students who face decisions about work life--showing people with disabilities as role models in different work settings.
ISBN
9781578616947
Language
English
Material Type
Book
Call Number
YOUTH GL 830 RAM 2009

Copies

Copy 1 BC Children's and Women's Family Library Available
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What happens when someone I love doesn't feel good: A book about illness that won't go away

https://bcch.andornot.com/en/permalink/catalog124827
Olsher, Sara, Rogers, Jenni. Happy Valley, OR: Mighty and Bright , 2023.
Material Type
Book
Call Number
JUNIOR EF 860 OLS 2023
Availability
2 copies, 1 available
Join Mia and Stewart as they learn how bodies work, why some bodies don't always feel good, and what to do when someone they love has an illness that won't go away.
Author
Olsher, Sara
Rogers, Jenni
Place of Publication
Happy Valley, OR
Publisher
Mighty and Bright
Publication Date
2023
Physical Description
Softcover; 39 pages
Subject
Coping with Chronic Illness in the Family
Abstract
Join Mia and Stewart as they learn how bodies work, why some bodies don't always feel good, and what to do when someone they love has an illness that won't go away.
ISBN
9798986776538
Language
English
Material Type
Book
Call Number
JUNIOR EF 860 OLS 2023

Copies

copy 1 BC Children's and Women's Family Library On Loan, due Friday, May 17, 2024
copy 2 BC Children's and Women's Family Library Available
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Billy's sister: Life when your sibling has a disability

https://bcch.andornot.com/en/permalink/catalog123303
Leving, Jessica, Sfar, Wiem [illustrator]. The Center for Siblings of People with Disabilities , 2019.
Material Type
Book
Call Number
JUNIOR GK 665 LEV 2019
Availability
1 copy, 1 available
Growing up with a sibling who has a disability can be hard. But it can also be... awesome! Based on the author's real-life experiences, this unique and touching children's book explores how siblings of kids with disabilities are special, too. Created with the support of licensed clinical social wor…
Author
Leving, Jessica
Sfar, Wiem [illustrator]
Publisher
The Center for Siblings of People with Disabilities
Publication Date
2019
Physical Description
36 p.
Series
A Project of The Center for Siblings of People with Disabilities
Subject
Sibling Relationships
Siblings of Children with Disabilities
Abstract
Growing up with a sibling who has a disability can be hard. But it can also be... awesome! Based on the author's real-life experiences, this unique and touching children's book explores how siblings of kids with disabilities are special, too. Created with the support of licensed clinical social workers with the aim of helping siblings of kids with disabilities identify, express and process their feelings. This book is intended to be read with a parent or trusted adult and spark family discussions you'll keep coming back to.
For ages 3-8.
ISBN
9798618220682
Language
English
Material Type
Book
Call Number
JUNIOR GK 665 LEV 2019

Copies

BC Children's and Women's Family Library Available
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Family-centered care: Putting it into action: The SPN/ANA guide to family-centered care

https://bcch.andornot.com/en/permalink/catalog112859
Lewandowski, Linda A., Tesler, Mary D. Washington, DC: The Publishing Program of ANA , 2003.
Material Type
Book
Call Number
IA 401 LEW 2003
Availability
1 copy, 1 available
Co-developed by the Society of Pediatric Nurses and the American Nurses Association, this practice-focused handbook is built around family-centered care. This FCC model and standard of pediatric healthcare practice focuses on the child within the context of the child's family as a unit, not on the …
Author
Lewandowski, Linda A.
Tesler, Mary D.
Place of Publication
Washington, DC
Publisher
The Publishing Program of ANA
Publication Date
2003
Physical Description
Softcover: 126 p.
Subject
Family Centred Care
Abstract
Co-developed by the Society of Pediatric Nurses and the American Nurses Association, this practice-focused handbook is built around family-centered care. This FCC model and standard of pediatric healthcare practice focuses on the child within the context of the child's family as a unit, not on the ill or injured child alone. As such, it applies to the care of children and their families across settings and across specialties of neonatal, child, and adolescent healthcare. Evidence-based in its comprehensive literature search and grounded in an expansive concept of family, this guide is a primary reference for any administrator, clinician, educator, or researcher involved in pediatric health care. It is organized by the eight elements of family-centered care as originally described by the Association for the Care of Children's Health (see below) and accompanying practice recommendations. This guide was developed with the assistance of panel of pediatric experts convened by the Society of Pediatric Nurses and input from the Institute for Family-Centered Care. It complements Scope and Standards of Pediatric Nursing Practice, also co-published by SPN and ANA.
ISBN
1558102108
Language
English
Material Type
Book
Call Number
IA 401 LEW 2003

Copies

Copy 1 BC Children's and Women's Family Library Available
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Finding unity in our diversity : Family stories of raising young children who are deaf or hard of hearing

https://bcch.andornot.com/en/permalink/catalog123119
British Columbia (BC) Hands and Voices , 2020.
Material Type
Book
Call Number
FI 400.5 GOW 2020
Availability
1 copy, 1 available
This collection of family stories shares experiences of raising young children who are Deaf and hard of hearing. It brings together articles written by a diverse range of families from British Columbia, Canada. We hope this book provides you with hopeful, insightful stories and practical wisdom.
Editor
Gow, Jennifer
Ho, Amy
Kazemir, Teresa
Shauer, Kim
Publisher
British Columbia (BC) Hands and Voices
Publication Date
2020
Physical Description
107 pages
Subject
Deafness-Children
Deafness-Coping
Hearing. Hard of Hearing
Hearing. Hard of Hearing-Children
Abstract
This collection of family stories shares experiences of raising young children who are Deaf and hard of hearing. It brings together articles written by a diverse range of families from British Columbia, Canada. We hope this book provides you with hopeful, insightful stories and practical wisdom.
ISBN
9781777078706
Language
English
Material Type
Book
Call Number
FI 400.5 GOW 2020

Copies

Copy 1 BC Children's and Women's Family Library Available
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The book of Lua: Stories and wisdom from a little cat with mobility challenges

https://bcch.andornot.com/en/permalink/catalog122028
Sheldon, Dania. [Canada]: Kittenhaus Press
Material Type
Book
Call Number
JUNIOR FM 550 SHE 2018
Availability
2 copies, 2 available
Lua survived a spinal cord injury when she was only a few weeks old, leaving her partially paralyzed. But that hasn't stopped this brave, sassy cat. In The Book of Lua, she talks about what it's like to live with mobility challenges, why she values each day, and the unique relationships and perspec…
Author
Sheldon, Dania
Place of Publication
[Canada]
Publisher
Kittenhaus Press
Physical Description
Hardcover ; 102, illustrations
Subject
Spinal Cord Injuries
Animals
Abstract
Lua survived a spinal cord injury when she was only a few weeks old, leaving her partially paralyzed. But that hasn't stopped this brave, sassy cat. In The Book of Lua, she talks about what it's like to live with mobility challenges, why she values each day, and the unique relationships and perspectives she has formed. Lua believes that being differently abled is an opportunity, not a disability. And she's got cattitude! Welcome to her amazing, quirky world.
ISBN
9780995903906
Language
English
Material Type
Book
Call Number
JUNIOR FM 550 SHE 2018

Copies

BC Children's and Women's Family Library Available
BC Children's and Women's Family Library Available
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Mia Lee is wheeling through middle school

https://bcch.andornot.com/en/permalink/catalog122264
Shang, Melissa, Shang, Eva. , 2016.
Material Type
Book
Call Number
ELEM GN 800 SHA 2016
Availability
1 copy, 1 available
Hello, sixth grade! Mia Lee is a stop-motion filmmaker with a wheelchair and a lot of sass, trying to survive her new middle school. Which doesn?t seem so easy when she?s running for Video Production Club President against certified Middle School Mean Girl, Angela Vanover. Things get weird when Ang…
Author
Shang, Melissa
Shang, Eva
Publication Date
2016
Physical Description
Softcover ; 107 p.
Subject
Physical Disability. Physically Challenged
Wheelchairs
School
Fiction
Abstract
Hello, sixth grade! Mia Lee is a stop-motion filmmaker with a wheelchair and a lot of sass, trying to survive her new middle school. Which doesn?t seem so easy when she?s running for Video Production Club President against certified Middle School Mean Girl, Angela Vanover. Things get weird when Angela starts being nice to her -- well, when other people are around, at least. But when Mia?s campaign posters for VP Club President mysteriously vanish -- no tape, no poster, no nothin? -- the presidential race gets real. With the help of her brain files, an awesome aide with keys to the whole school, and her friends, Rory, Daniela, and Caroline, Mia finds herself on a mission to prove Angela isn?t just an ordinary middle school mean girl, she?s a thief!
ISBN
9780692746905
Language
English
Material Type
Book
Call Number
ELEM GN 800 SHA 2016

Copies

BC Children's and Women's Family Library Available
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What about me?: When brothers and sisters get sick

https://bcch.andornot.com/en/permalink/catalog102858
Peterkin, Allan, Middendorf, Frances (Illustrator). New York, NY: Magination Press , 1992.
Material Type
Book
Call Number
JUNIOR EF 860.5 PET 1992
Availability
2 copies, 2 available
Illustrated book dealing with the many complicated feelings the well child experiences in a situation where a sibling is ill: guilt about having caused the illness, fear that the sibling will die, anger over being left out, anxiety about catching the sickness, and longing for life to return to the …
Author
Peterkin, Allan
Middendorf, Frances (Illustrator)
Place of Publication
New York, NY
Publisher
Magination Press
Publication Date
1992
Physical Description
Softcover: 30 p.
Subject
Children Coping with Family Illness
Sibling Relationships
Picture Books
Abstract
Illustrated book dealing with the many complicated feelings the well child experiences in a situation where a sibling is ill: guilt about having caused the illness, fear that the sibling will die, anger over being left out, anxiety about catching the sickness, and longing for life to return to the way it was.
ISBN
0945354487
Language
English
Material Type
Book
Call Number
JUNIOR EF 860.5 PET 1992

Copies

Copy 1 BC Children's and Women's Family Library Available
Copy 2 BC Children's and Women's Family Library Available
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The boy in the moon: A father's search for his disabled son

https://bcch.andornot.com/en/permalink/catalog111520
Brown, Ian. [Toronto, ON]: Vintage Canada , 2010.
Material Type
Book
Call Number
GK 655 BRO 2009
Availability
1 copy, 1 available
This book tells the story of a father's personal journey and search for his disabled son. The author's son was born with a rare genetic mutation: at thirteen, his son weighs only 54 pounds, wears diapers, cannot speak and needs to wear special cuffs on his arms so that he cannot harm himself. Writ…
Author
Brown, Ian
Place of Publication
[Toronto, ON]
Publisher
Vintage Canada
Publication Date
2010
Physical Description
Softcover; 295 p.
Subject
Parenting Children with Disabilities
Parenting Children with Physical Disabilities
Genetic Disorders
Abstract
This book tells the story of a father's personal journey and search for his disabled son. The author's son was born with a rare genetic mutation: at thirteen, his son weighs only 54 pounds, wears diapers, cannot speak and needs to wear special cuffs on his arms so that he cannot harm himself. Written with honesty and humour, this award winning book began as a Globe and Mail series.
ISBN
9780679310099
Language
English
Material Type
Book
Call Number
GK 655 BRO 2009

Copies

Copy 1 BC Children's and Women's Family Library Available
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Childhood leukemia: A guide for families, friends and caregivers

https://bcch.andornot.com/en/permalink/catalog121444
Keene, Nancy. Sebastopool, CA: O'Reilly Media & Childhood Cancer Guides , 2018. 5th edition.
Material Type
Book
Call Number
FE 350.5 KEE 2018
Availability
1 copy, 1 available
Approximately 4,500 children and teens are diagnosed with leukemia in the United States and Canada each year. The illness and its treatment can have a devastating effect on family, friends, classmates, and the larger community. This newly updated edition of Childhood Leukemia contains the informati…
Author
Keene, Nancy
Edition
5th edition
Place of Publication
Sebastopool, CA
Publisher
O'Reilly Media & Childhood Cancer Guides
Publication Date
2018
Physical Description
Paperback; xvi, 476 pages
Subject
Leukemia-Children
Children with Cancer
Children with Cancer-Coping for the Family
Abstract
Approximately 4,500 children and teens are diagnosed with leukemia in the United States and Canada each year. The illness and its treatment can have a devastating effect on family, friends, classmates, and the larger community. This newly updated edition of Childhood Leukemia contains the information and support parents need during this difficult time, including: New treatments such as immunotherapy, tailoring drugs dosages to children's genetic profiles, and ways to deal with side effects. Advice on how to cope with procedures, hospitalization, school, family, and financial issues. Tips for forming a partnership with the medical team. Poignant and practical stories from family members. Updated resources for medical information, emotional support, and financial assistance. Parents who read this book will find understandable medical information and emotional support.
ISBN
9781941089040
Language
English
Material Type
Book
Call Number
FE 350.5 KEE 2018

Copies

BC Children's and Women's Family Library Available
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Developing differently: A guide for parents of young children with global developmental delay, intellectual disability, or autism

https://bcch.andornot.com/en/permalink/catalog123770
Muggleton, Joshua, Attwood, Tony (contributor). London, UK and Philadelphia, PA: Jessica Kingsley Publishers , 2022.
Material Type
Book
Call Number
FM 270 MUG 2022
Availability
1 copy, 0 available
Parenting isn't easy, and parenting a child with a Global Developmental Delay, Intellectual Disability, or Autism can be challenging. However, a lot of parenting strategies are straightforward once you get your head around them. With the right knowledge, environment, interactions, responses and und…
Author
Muggleton, Joshua
Attwood, Tony (contributor)
Place of Publication
London, UK and Philadelphia, PA
Publisher
Jessica Kingsley Publishers
Publication Date
2022
Physical Description
Softcover; 288 pages
Subject
Developmental Disability
Autism Spectrum Disorder (includes Asperger Syndrome)
Abstract
Parenting isn't easy, and parenting a child with a Global Developmental Delay, Intellectual Disability, or Autism can be challenging. However, a lot of parenting strategies are straightforward once you get your head around them. With the right knowledge, environment, interactions, responses and understanding, you can help reduce your child's anxiety, build their confidence, and help them develop learning and communication skills.
Dr Joshua Muggleton provides a comprehensive, step-by-step parenting plan that will support you to embed good practice at home from day one. These strategies are designed to work across all neurodevelopmental conditions, and take into account co-occurring conditions such as ADHD, meaning none of the advice in the book requires your child to have a specific diagnosis. Also included are downloadable examples of charts, how-to guides for creating visual resources tailored to your child's individual needs, and bonus downloadable chapters on sleep and siblings.[See introduction for link.]
ISBN
9781787759978
Language
English
Material Type
Book
Call Number
FM 270 MUG 2022

Copies

BC Children's and Women's Family Library On Loan, due Friday, April 19, 2024
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Life will never be dull: The little book of autism adventures

https://bcch.andornot.com/en/permalink/catalog122737
Brownson, Deborah, Rebello-Tindall, Michelle. Jessica Kingsley Publishers , 2020.
URL
https://ebookcentral.proquest.com/lib/cwhbc/detail.action?docID=6201150
Material Type
Ebook
Call Number
FM 272 BRO 2020
This delightful book is a light-hearted, playful and sincere look at life with an autistic child. Humorous illustrations depict those unique moments that every autistic child's family will recognise, and gently remind the reader to take care of themselves and appreciate the many wonderful experienc…
  1 url  
URL
https://ebookcentral.proquest.com/lib/cwhbc/detail.action?docID=6201150
Author
Brownson, Deborah
Rebello-Tindall, Michelle
Publisher
Jessica Kingsley Publishers
Publication Date
2020
Subject
Autism Spectrum Disorder (includes Asperger Syndrome)
Abstract
This delightful book is a light-hearted, playful and sincere look at life with an autistic child. Humorous illustrations depict those unique moments that every autistic child's family will recognise, and gently remind the reader to take care of themselves and appreciate the many wonderful experiences of being a mother, father, brother or sister to an autistic person.
ISBN
9781787753235
Language
English
Material Type
Ebook
Call Number
FM 272 BRO 2020
URLs
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Free family content: Sleep stories and meditations from Calm.com

https://bcch.andornot.com/en/permalink/catalog124743
Calm.
URL
https://www.calm.com/app/class/Best-of-Free-Family-Friendly-Content
Material Type
Online
Audio
Free family content from Calm.com. This page features sleep stories and meditations. You do not need to download the Calm app or create an account. You can play these from your Internet browser.
  1 url  
URL
https://www.calm.com/app/class/Best-of-Free-Family-Friendly-Content
Corporate Author
Calm
Subject
Meditation
Mindfulness
Abstract
Free family content from Calm.com. This page features sleep stories and meditations. You do not need to download the Calm app or create an account. You can play these from your Internet browser.
Language
English
Material Type
Online
Audio
URLs
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Mike, Jesse Unaapik, McCluskey, Kerry, Lishchenko, Lenny [ill.]. Iqaluit, NU: Inhabit Media , 2017.
Material Type
Book
Call Number
JUNIOR CF 500 MIK 2017
Availability
1 copy, 1 available
Talittuq is excited to start his first day of grade two. He is looking forward to the new school year, but as he meets his friends again for the first time after summer vacation, he notices that a lot of his friends? families are very different from his own. Some have one mom and one dad, and some …
Author
Mike, Jesse Unaapik
McCluskey, Kerry
Lishchenko, Lenny [ill.]
Place of Publication
Iqaluit, NU
Publisher
Inhabit Media
Publication Date
2017
Physical Description
Softcover; 25 pages
Subject
Family
Abstract
Talittuq is excited to start his first day of grade two. He is looking forward to the new school year, but as he meets his friends again for the first time after summer vacation, he notices that a lot of his friends? families are very different from his own. Some have one mom and one dad, and some have only a mom. Some kids live with their grandparents. Some live with two dads or two moms. As Talittuq hears about all the fun his friends have had with their families, he learns that families come in many different shapes and sizes, and what holds them all together is love!
ISBN
9781772271614
Language
English
Material Type
Book
Call Number
JUNIOR CF 500 MIK 2017

Copies

BC Children's and Women's Family Library Available
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That's like me!: Stories about amazing people with learning differences

https://bcch.andornot.com/en/permalink/catalog111752
Lauren, J. New York, NY: Star Bright Books, Inc. , 2009.
Material Type
Book
Call Number
YOUTH FM 261 LAU 2009
Availability
1 copy, 1 available
This book is a collection of first-person accounts of successful people who learn differently. Whether is was reading, math, writing, or speech problems, each person shares his or her inspiring story of facing the challenge of school, while pursuing personal goals. A resource list for adults and st…
Author
Lauren, J.
Place of Publication
New York, NY
Publisher
Star Bright Books, Inc.
Publication Date
2009
Physical Description
Softcover: (unpaged)
Subject
Learning Differences. Learning Disabilities
Learning
Abstract
This book is a collection of first-person accounts of successful people who learn differently. Whether is was reading, math, writing, or speech problems, each person shares his or her inspiring story of facing the challenge of school, while pursuing personal goals. A resource list for adults and students is included, as well as a place for kids to write their own success stories.
ISBN
9781595722089
Language
English
Material Type
Book
Call Number
YOUTH FM 261 LAU 2009

Copies

Copy 1 BC Children's and Women's Family Library Available
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"Mon frère n'est plus connecté dans sa tête": La schizophrénie

https://bcch.andornot.com/en/permalink/catalog114661
Deroin, Christine. Paris, France: Oskar Editeurs , 2015.
Material Type
Book
Call Number
YOUTH CD 626 DER 2015
Availability
1 copy, 1 available
Présentation de la série "Pas de panique !" Cette collection a été créée pour sensibiliser les adolescents face aux différentes maladies psychiatriques dont peuvent souffrir des membres de leur famille (parents, frères, soeurs, amis proches).
Alternate Title
"Mon frere n est plus connecte dans sa tete": La schizophrenie
Author
Deroin, Christine
Place of Publication
Paris, France
Publisher
Oskar Editeurs
Publication Date
2015
Physical Description
Paperback, 94 p.
Subject
Schizophrenia
Schizophrenia -Coping for the Family
Abstract
Présentation de la série "Pas de panique !" Cette collection a été créée pour sensibiliser les adolescents face aux différentes maladies psychiatriques dont peuvent souffrir des membres de leur famille (parents, frères, soeurs, amis proches).
ISBN
9791021403475
Language
French
Material Type
Book
Call Number
YOUTH CD 626 DER 2015

Copies

Copy 1 BC Children's and Women's Family Library Available
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Siblings: Brothers and sisters of children with disability

https://bcch.andornot.com/en/permalink/catalog124360
Strohm, Kate. Miline, Ill.: Wakefield Press , 2014. Revised edition.
Material Type
Book
Call Number
GK 665 STR 2014
Availability
1 copy, 1 available
Siblings tells what it is like to grow up with a brother or sister with a disability or illness. The siblings of children with a disability are often the overlooked ones in families struggling to cope.; Kate Strohm, a sibling herself, bravely shares the story of her journey from isolation and confu…
Author
Strohm, Kate
Edition
Revised edition
Place of Publication
Miline, Ill.
Publisher
Wakefield Press
Publication Date
2014
Physical Description
Paperback; 249 pages
Subject
Siblings of Children with Disabilities
Abstract
Siblings tells what it is like to grow up with a brother or sister with a disability or illness. The siblings of children with a disability are often the overlooked ones in families struggling to cope.
Kate Strohm, a sibling herself, bravely shares the story of her journey from isolation and confusion to greater understanding and acceptance. She provides a forum for other siblings to describe their challenges and provides them with strategies to make sense of their experiences.
Through the workshops she has presented around Australia and overseas, Kate has been able to incorporate the experience and wisdom of many families and professionals, and provide clear tools for parents and practitioners to support brothers and sisters of those with a disability.
ISBN
9781743052334
Language
English
Material Type
Book
Call Number
GK 665 STR 2014

Copies

BC Children's and Women's Family Library Available
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My adventures with fox and owl: A creative journal for kids with cancer in the familly

https://bcch.andornot.com/en/permalink/catalog114316
Hankinson, Sara Prins, Janes, Karen. [Vancouver, BC?]: BC Cancer Agency , 2016.
Material Type
Book
Call Number
FE 555 HAN 2016
Availability
2 copies, 2 available
This journal is an activity book developed by an Art Therapist with the Patient and Family Counselling Program and an Oncology Nursing Practice Leader with the BC Cancer Agency. It is designed for children, ages 5 to 9, to help them learn creative ways of coping when a family member is living with …
Author
Hankinson, Sara Prins
Janes, Karen
Place of Publication
[Vancouver, BC?]
Publisher
BC Cancer Agency
Publication Date
2016
Physical Description
Paperback, 68 p., ill.
Subject
Children with Cancer-Coping for the Family
Cancer
Cancer - Coping
Abstract
This journal is an activity book developed by an Art Therapist with the Patient and Family Counselling Program and an Oncology Nursing Practice Leader with the BC Cancer Agency. It is designed for children, ages 5 to 9, to help them learn creative ways of coping when a family member is living with cancer. This activity book can provide a starting point for children and families to talk about cancer. The activities in the book can provide a child with choices in creative tools to learn and grow through the family's experience with cancer.
ISBN
9781896624266
Language
English
Material Type
Book
Call Number
FE 555 HAN 2016

Copies

c.1 BC Children's and Women's Family Library Available
c.2 BC Children's and Women's Family Library Available
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All kinds of friends, even green!

https://bcch.andornot.com/en/permalink/catalog108370
Senisi, Ellen B. [Bethesda, MD]: Woodbine House , 2002. 1st ed.
Material Type
Book
Call Number
JUNIOR FM 505 SEN 2002
Availability
1 copy, 1 available
In a school assignment, seven-year-old Moses, who has spina bifida and uses a wheelchair, reflects that his neighbor's disabled iguana resembles him because they both have figured out how to get where they want to be in different ways than those around them.
Author
Senisi, Ellen B.
Edition
1st ed.
Place of Publication
[Bethesda, MD]
Publisher
Woodbine House
Publication Date
2002
Physical Description
Hardcover, col. ill.; (unpaged).
Subject
Spina Bifida. Neural Tube Defects
Friendship
Physical Disability. Physically Challenged
Picture Books
Abstract
In a school assignment, seven-year-old Moses, who has spina bifida and uses a wheelchair, reflects that his neighbor's disabled iguana resembles him because they both have figured out how to get where they want to be in different ways than those around them.
ISBN
1890627356
Language
English
Material Type
Book
Call Number
JUNIOR FM 505 SEN 2002

Copies

Copy 1 BC Children's and Women's Family Library Available
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A quick and easy guide to sex and disability

https://bcch.andornot.com/en/permalink/catalog124125
Andrews, A. Portland, OR: Limerence Press , 2021.
Material Type
Book
Call Number
YOUTH GA 110 AND 2021
Availability
1 copy, 1 available
This easy-to-read comic book guide covers the basics of disability sexuality, common myths about disabled bodies, communication tips, and practical suggestions for having the best sexual experience possible.
Author
Andrews, A.
Place of Publication
Portland, OR
Publisher
Limerence Press
Publication Date
2021
Physical Description
Paperback; 70p.; Graphic novel
Subject
Disabilities
Sex Education
Sexual Health
LGBTQ
Abstract
This easy-to-read comic book guide covers the basics of disability sexuality, common myths about disabled bodies, communication tips, and practical suggestions for having the best sexual experience possible.
ISBN
9781620106945
Language
English
Material Type
Book
Call Number
YOUTH GA 110 AND 2021

Copies

BC Children's and Women's Family Library Available
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Gentle willow: A story for children about dying

https://bcch.andornot.com/en/permalink/catalog104059
Mills, Joyce C., Chesworth, Michael (Illustrator). Washington, DC: Magination Press , 1993.
Material Type
Book
Call Number
JUNIOR GV 250 MIL 1993
Availability
1 copy, 1 available
A comforting story which helps children deal with the their own death, death of friends, a family member, or even pets. A loving and tender tale that addresses our feelings of sadness, love, disbelief, and anger.
Author
Mills, Joyce C.
Chesworth, Michael (Illustrator)
Place of Publication
Washington, DC
Publisher
Magination Press
Publication Date
1993
Physical Description
Hardcover, col. ill. (unpaged).
Subject
Coping with Death
Children and Grief
Children-Coping with Death and Dying
Abstract
A comforting story which helps children deal with the their own death, death of friends, a family member, or even pets. A loving and tender tale that addresses our feelings of sadness, love, disbelief, and anger.
ISBN
945354541
Language
English
Material Type
Book
Call Number
JUNIOR GV 250 MIL 1993

Copies

Copy 1 BC Children's and Women's Family Library Available
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Trouble with illness, The: How illness and disability affect relationships

https://bcch.andornot.com/en/permalink/catalog122269
Segal, Julia. Philadelphia, PA: Jessica Kingsley Publishers , 2017.
Material Type
Book
Call Number
EF 800 SEG 2017
Availability
2 copies, 2 available
This impressively honest book explores the effects a challenging disability or illness can have on the mind and personal relationships, and how friends, family and professionals can help.; Illness or disability can isolate people by creating vast differences in their experiences where previously th…
Author
Segal, Julia
Place of Publication
Philadelphia, PA
Publisher
Jessica Kingsley Publishers
Publication Date
2017
Physical Description
Softcover ; 312 p.
Subject
Chronic Illness
Disabilities
Relationships
Abstract
This impressively honest book explores the effects a challenging disability or illness can have on the mind and personal relationships, and how friends, family and professionals can help.
Illness or disability can isolate people by creating vast differences in their experiences where previously there were none. Friends and family can find themselves saying the wrong thing or awkwardly avoiding topics as a result. This book takes a candid look at how discomfort caused by an illness can strain a relationship between partners, families and professionals, as well as how understanding feelings of guilt or shame can transform a situation or relationship.
The insights and advice offered in this book can help children and adolescents overcome anxiousness caused by a parent's condition, improve communication between partners and family members, and increase professionals' awareness of how a client feels about their situation.
ISBN
9781785923326
Language
English
Material Type
Book
Call Number
EF 800 SEG 2017

Copies

copy 1 BC Children's and Women's Family Library Available
copy 2 BC Children's and Women's Family Library Available
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Ultimate guide to sex and disability: For all of us who live with disabilities, chronic pain and illness

https://bcch.andornot.com/en/permalink/catalog114030
Kaufman, Miriam, Silverberg, Cory, Odette, Fran. San Francisco, CA: Cleis Press , 2007.
Material Type
Book
Call Number
GA 110 KAU 2007
Availability
2 copies, 2 available
The Ultimate Guide to Sex and Disability is the first complete sex guide for people who live with disabilities, pain, illness, or chronic conditions. Useful for absolutely everyone, regardless of age, gender, or sexual orientation, the book addresses a wide range of disabilities - from chronic fati…
Author
Kaufman, Miriam
Silverberg, Cory
Odette, Fran
Place of Publication
San Francisco, CA
Publisher
Cleis Press
Publication Date
2007
Physical Description
Softcover, 345 p.
Subject
Developmental Disabilities
Sexuality
Abstract
The Ultimate Guide to Sex and Disability is the first complete sex guide for people who live with disabilities, pain, illness, or chronic conditions. Useful for absolutely everyone, regardless of age, gender, or sexual orientation, the book addresses a wide range of disabilities - from chronic fatigue, back pain, and asthma to spinal cord injury, hearing and visual impairment, multiple sclerosis, and more.
Notes
Recommended by CCDP
ISBN
9781573443043
Language
English
Material Type
Book
Call Number
GA 110 KAU 2007

Copies

Copy 1 BC Children's and Women's Family Library Available
copy 2 BC Children's and Women's Family Library Available
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Quand la vie se fragilise: Un guide pour vous et vos proches aidants

https://bcch.andornot.com/en/permalink/catalog114657
Cardinal Remete, France. Montreal, QC: Multimondes Inc. , 2016.
Material Type
Book
Call Number
EF 850 CAR 2016
Availability
1 copy, 1 available
Author
Cardinal Remete, France
Place of Publication
Montreal, QC
Publisher
Multimondes Inc.
Publication Date
2016
Physical Description
Paperback, 311 p.
Subject
Chronic Illness
Coping with Chronic Illness in the Family
ISBN
9782895444916
Language
French
Material Type
Book
Call Number
EF 850 CAR 2016

Copies

copy 1 BC Children's and Women's Family Library Available
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Little tree: A story for children with serious medical problems

https://bcch.andornot.com/en/permalink/catalog102854
Mills, Joyce C., Chesworth, Michael (Illustrator). New York, NY: Magination Press , 1992.
Material Type
Book
Call Number
JUNIOR CF 200 MIL 1992
Availability
1 copy, 1 available
In this healing story, a little tree loses some of her branches in a storm. She experiences emotions of fear, self-blame, and worry so common to children facing serious medical problems. The little tree in the forest survives the storm and learns that although many branches and leaves were lost, sh…
Author
Mills, Joyce C.
Chesworth, Michael (Illustrator)
Place of Publication
New York, NY
Publisher
Magination Press
Publication Date
1992
Physical Description
Softcover: ill., 28 p.
Subject
Self-Concept (includes self-esteem)
Amputation. Limb Prosthesis
Children's Health-Accidents and Injuries
Picture Books
Abstract
In this healing story, a little tree loses some of her branches in a storm. She experiences emotions of fear, self-blame, and worry so common to children facing serious medical problems. The little tree in the forest survives the storm and learns that although many branches and leaves were lost, she still has deep roots, a strong trunk and a beautiful heart. Children will discover that they too have strengths and abilities for living happy lives. A relaxation exercise is included.
ISBN
0945354517
Language
English
Material Type
Book
Call Number
JUNIOR CF 200 MIL 1992

Copies

BC Children's and Women's Family Library Available
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Shared Struggles: Stories from parents and pediatricians caring for children with serious illnesses

https://bcch.andornot.com/en/permalink/catalog124220
Schrooten, A.F., Markovitz, B.P. Switzerland: Springer International Publishing AG , 2021.
URL
https://ebookcentral.proquest.com/lib/cwhbc/detail.action?docID=6578034
Material Type
Ebook
Call Number
EF 850.5 SCH 2021e
This book tells true and poignant stories from both sides of the physician-patient/parent relationship and provides a unique glimpse into how parents and physicians think, feel, and interact. The stories are grouped under four sections: Hope, Compassion, Communication, and Trust.; Each section incl…
  1 url  
URL
https://ebookcentral.proquest.com/lib/cwhbc/detail.action?docID=6578034
Author
Schrooten, A.F.
Markovitz, B.P.
Place of Publication
Switzerland
Publisher
Springer International Publishing AG
Publication Date
2021
Subject
Coping with Chronic Illness-Children
Abstract
This book tells true and poignant stories from both sides of the physician-patient/parent relationship and provides a unique glimpse into how parents and physicians think, feel, and interact. The stories are grouped under four sections: Hope, Compassion, Communication, and Trust.
Each section includes stories contributed by parents from all across the United States and by pediatricians practicing at many of the best children's hospitals throughout the country. The parents tell of interactions with physicians that had a significant impact on them and their child and offer context and insight that promote empathy and reflection. The physicians tell of interactions with patients and families that served as learning moments in their career and promote the humanization of medicine and show there is more to a physician beyond their scientific knowledge and white coat.
The stories are edited by Barry P. Markovitz - a pediatrician specializing in critical care medicine who has been in practice for more than 20 years and by Ann F. Schrooten - the parent of a child born with a chronic complex condition who has more than 15 years of experience interacting with pediatric subspecialists and other healthcare professionals who cared for her son. The editors have written commentaries to the stories to provide an independent perspective on the events and messages conveyed and to encourage reflection, inquiry, and discussion.
In addition to being a valuable resource for pediatricians, pediatric subspecialists, nurses and other healthcare professionals, the book will also appeal to families of children living with complex medical conditions because it shares physician encounters and behaviors many have experienced in the care of their own children. By giving a voice to both parents and physicians, the goal is to create a bridge to better understanding that can improve communication, minimize conflicts, and foster trust and compassion among physicians, patients, and families.
ISBN
9783030680206
Language
English
Material Type
Ebook
Call Number
EF 850.5 SCH 2021e
URLs
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Shared Struggles: Stories from parents and pediatricians caring for children with serious illnesses

https://bcch.andornot.com/en/permalink/catalog123758
Schrooten, A.F., Markovitz, B.P. Switzerland: Springer International Publishing AG , 2021.
Material Type
Book
Call Number
EF 850.5 SCH 2021b
Availability
1 copy, 1 available
This book tells true and poignant stories from both sides of the physician-patient/parent relationship and provides a unique glimpse into how parents and physicians think, feel, and interact. The stories are grouped under four sections: Hope, Compassion, Communication, and Trust.; Each section incl…
Author
Schrooten, A.F.
Markovitz, B.P.
Place of Publication
Switzerland
Publisher
Springer International Publishing AG
Publication Date
2021
Physical Description
251 pages
Subject
Coping with Chronic Illness-Children
Abstract
This book tells true and poignant stories from both sides of the physician-patient/parent relationship and provides a unique glimpse into how parents and physicians think, feel, and interact. The stories are grouped under four sections: Hope, Compassion, Communication, and Trust.
Each section includes stories contributed by parents from all across the United States and by pediatricians practicing at many of the best children's hospitals throughout the country. The parents tell of interactions with physicians that had a significant impact on them and their child and offer context and insight that promote empathy and reflection. The physicians tell of interactions with patients and families that served as learning moments in their career and promote the humanization of medicine and show there is more to a physician beyond their scientific knowledge and white coat.
The stories are edited by Barry P. Markovitz - a pediatrician specializing in critical care medicine who has been in practice for more than 20 years and by Ann F. Schrooten - the parent of a child born with a chronic complex condition who has more than 15 years of experience interacting with pediatric subspecialists and other healthcare professionals who cared for her son. The editors have written commentaries to the stories to provide an independent perspective on the events and messages conveyed and to encourage reflection, inquiry, and discussion.
In addition to being a valuable resource for pediatricians, pediatric subspecialists, nurses and other healthcare professionals, the book will also appeal to families of children living with complex medical conditions because it shares physician encounters and behaviors many have experienced in the care of their own children. By giving a voice to both parents and physicians, the goal is to create a bridge to better understanding that can improve communication, minimize conflicts, and foster trust and compassion among physicians, patients, and families.
ISBN
9783030680206
Language
English
Material Type
Book
Call Number
EF 850.5 SCH 2021b

Copies

BC Children's and Women's Family Library Available
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Children's Health and Illness Recovery Program (CHIRP): Teen and family workbook

https://bcch.andornot.com/en/permalink/catalog124614
Carter, Bryan D., Kronenberger, William G., Scott, Eric L. Oxford, UK: Oxford University Press , 2020.
Material Type
Book
Call Number
EF 850.6 CAR 2020
Availability
1 copy, 1 available
Children and adolescents with chronic illnesses, particularly those accompanied by debilitating, painful, and/or fatiguing symptoms, face challenges that may prove disruptive to physical, psychological, and social development. Based on extensive research and clinical expertise, Children's Health an…
Author
Carter, Bryan D.
Kronenberger, William G.
Scott, Eric L.
Place of Publication
Oxford, UK
Publisher
Oxford University Press
Publication Date
2020
Physical Description
Softcover; 113 pages
Series
Programs that work
Subject
Coping with Chronic Illness Young Adult
Coping with Chronic Illness
Coping with Chronic Illness-Children
Abstract
Children and adolescents with chronic illnesses, particularly those accompanied by debilitating, painful, and/or fatiguing symptoms, face challenges that may prove disruptive to physical, psychological, and social development. Based on extensive research and clinical expertise, Children's Health and Illness Recovery Program (CHIRP) is an effective treatment program designed to build and maintain independence in young people with chronic illness.
This Teen and Family Workbook provides proven treatment activities designed to combat the additional stress faced by youth coping with long-term health problems. These tasks target key areas for improvement in physical functioning, school functioning, and personal functioning and support the creation of new tools for managing the impact of illness, such as stress management, coping and relaxation techniques, and communication skills. In-session and take-home activities outlined in this workbook are meant to accompany the companion CHIRP Clinician Guide. With the use of this workbook and supported by a network of clinicians, healthcare specialists, and school professionals, adolescents and their families can return to a better quality of life.
ISBN
9780190070472
Language
English
Material Type
Book
Call Number
EF 850.6 CAR 2020

Copies

BC Children's and Women's Family Library Available
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Energy makers & mito kids: A little book about mitochondrial disease

https://bcch.andornot.com/en/permalink/catalog111554
Wells, Deobrah Besinger. Rutherford, NJ: Mito Kids Rock , 2008.
Material Type
Book
Call Number
JUNIOR FA 500 WEL 2008
Availability
1 copy, 1 available
This illustrated easy-to-read book is a tool to explain Mitochondrial disease to the people in your community: in your child's classroom, with neighbors, extended family members and friends. About children with all degrees of abilities, it helps them understand the variable issues that children wit…
Alternate Title
Energy makers and mito kids
Author
Wells, Deobrah Besinger
Place of Publication
Rutherford, NJ
Publisher
Mito Kids Rock
Publication Date
2008
Physical Description
Softcover: [32 p.]
Subject
Metabolic Disorders
Nervous System/Nervous System Diseases-Children
Genetic Disorders
Nervous System/Nervous System Diseases. Neurology
Abstract
This illustrated easy-to-read book is a tool to explain Mitochondrial disease to the people in your community: in your child's classroom, with neighbors, extended family members and friends. About children with all degrees of abilities, it helps them understand the variable issues that children with Mitochondrial Disease face.
Language
English
Material Type
Book
Call Number
JUNIOR FA 500 WEL 2008

Copies

copy 1 BC Children's and Women's Family Library Available
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When your child has a chronic medical illness: A guide for the parenting journey

https://bcch.andornot.com/en/permalink/catalog123817
Sileo, Frank J., Potter, Carol S. Washington, DC: American Psychological Association , 2021.
Material Type
Book
Call Number
EF 850.5 SIL 2021
Availability
1 copy, 1 available
Written by leading mental health professionals, this warm and accessible parenting book for children with chronic illnesses offers clear, practical guidance for all aspects of the journey. It is recommended by professionals at the American Diabetes Association, Invisible Disabilities Association, t…
Author
Sileo, Frank J.
Potter, Carol S.
Place of Publication
Washington, DC
Publisher
American Psychological Association
Publication Date
2021
Physical Description
Softcover; 419 pages
Subject
Coping with Chronic Illness-Children
Coping with Chronic Illness in the Family
Coping with Chronic Illness-Young Adult
Abstract
Written by leading mental health professionals, this warm and accessible parenting book for children with chronic illnesses offers clear, practical guidance for all aspects of the journey. It is recommended by professionals at the American Diabetes Association, Invisible Disabilities Association, the Crohn's Colitis Foundation, and other expert national and regional sources.
For all its joys, parenting is a complex job, and when your child has a chronic illness, the stress can feel overwhelming. When your child is diagnosed, you begin a parenting journey filled with strong emotions, difficult choices, confusing words, and interactions with numerous professionals and specialists.
You're focused on ensuring your child gets the best possible treatments for their symptoms, so it's easy to overlook or dismiss the impact the illness can have on your relationships and emotions. This book places your psychological well-being front and center, so you can be the best caregiver possible for your child.
Along with suggestions for making laughter and mindfulness part of your daily self-care routine, it offers guidance for choosing the right therapist for your family, should extra support be needed. Every family's journey with chronic illness is unique, but you don't have to go it alone.
ISBN
9781433833816
Language
English
Material Type
Book
Call Number
EF 850.5 SIL 2021

Copies

BC Children's and Women's Family Library Available
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Our heartbreaking choices: Forty-six women share their stories of interrupting a much-wanted pregnancy

https://bcch.andornot.com/en/permalink/catalog123307
iUniverse , 2008.
Material Type
Book
Call Number
GE 250 BRO 2008
Availability
1 copy, 1 available
This book is about abortion, but more specifically, about abortions sought due to a poor prenatal diagnosis or due to serious maternal health complications. This book contains 46 personal stories, each one from a woman who decided to interrupt a much-wanted and oftentimes much-planned pregnancy. Th…
Editor
Brooks, Christine
Publisher
iUniverse
Publication Date
2008
Physical Description
420 p.
Subject
Abortion-Coping
Pregnancy Complications
Abstract
This book is about abortion, but more specifically, about abortions sought due to a poor prenatal diagnosis or due to serious maternal health complications. This book contains 46 personal stories, each one from a woman who decided to interrupt a much-wanted and oftentimes much-planned pregnancy. There is very little societal support for parents who make this decision, which leaves most parents to deal with their sadness and grief alone.
ISBN
9780595530472
Language
English
Material Type
Book
Call Number
GE 250 BRO 2008

Copies

BC Children's and Women's Family Library Available
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Brothers and sisters: The power of growing up together

https://bcch.andornot.com/en/permalink/catalog113698
Family Support Institute of BC. [New Westminster, BC]: Family Support Institute of BC , 2015.
Material Type
Book
Call Number
CF 150 FAM 2015
Availability
1 copy, 1 available
Corporate Author
Family Support Institute of BC
Place of Publication
[New Westminster, BC]
Publisher
Family Support Institute of BC
Publication Date
2015
Physical Description
75 p.
Subject
Siblings of Children with Disabilities
Family
ISBN
9780969694410
Language
English
Material Type
Book
Call Number
CF 150 FAM 2015

Copies

Copy 2 BC Children's and Women's Family Library Available
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Show me what my friends can see: A developmental guide for parents of babies with severely impaired sight and their professional advisors

https://bcch.andornot.com/en/permalink/catalog106911
Sonksen, Patricia, Stiff, Blanche. London, UK: Institute of Child Health , 1991.
Material Type
Book
Call Number
FH 300 SON 1991
Availability
1 copy, 1 available
A book aimed at helping parents of visually impaired babies by providing activities and play ideas.
Author
Sonksen, Patricia
Stiff, Blanche
Place of Publication
London, UK
Publisher
Institute of Child Health
Publication Date
1991
Physical Description
Paperback, 64 p.
Subject
Vision/Vision Disorders. Visual Impairments
Child Development
Blindness
Blindness-Coping
Parenting Children with Disabilities
Parenting Children with Physical Disabilities
Abstract
A book aimed at helping parents of visually impaired babies by providing activities and play ideas.
ISBN
095175260
Language
English
Material Type
Book
Call Number
FH 300 SON 1991

Copies

Copy 4 BC Children's and Women's Family Library Available
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How to talk so little kids will listen : A survival guide to life with children ages 2-7

https://bcch.andornot.com/en/permalink/catalog122907
Faber, Joanna, King, Julie. New York, NY: Scribner , 2017.
Material Type
Book
Call Number
GK 600 FAB 2017
Availability
2 copies, 2 available
For more than thirty-five years, parents have turned to How to Talk So Kids Will Listen & Listen So Kids Will Talk for its respectful and effective solutions to the unending challenges of raising children. Now, in response to growing demand, Adele's daughter, Joanna Faber, along with Julie King, ta…
Author
Faber, Joanna
King, Julie
Place of Publication
New York, NY
Publisher
Scribner
Publication Date
2017
Physical Description
Softcover: 409 p.
Subject
Parenting
Relationships-Parent/Child
Communication
Language/Communication
Abstract
For more than thirty-five years, parents have turned to How to Talk So Kids Will Listen & Listen So Kids Will Talk for its respectful and effective solutions to the unending challenges of raising children. Now, in response to growing demand, Adele's daughter, Joanna Faber, along with Julie King, tailor How to Talk's powerful communication skills to parents of children ages two to seven.
Faber and King, each a parenting expert in her own right, share their wisdom accumulated over years of conducting How To Talk workshops with parents, teachers, and pediatricians. With a lively combination of storytelling, cartoons, and observations from their workshops, they provide concrete tools and tips that will transform your relationship with the children in your life.
What do you do with a little kid who won't brush her teeth?screams in his car seat?pinches the baby...refuses to eat vegetables?throws books in the library...runs rampant in the supermarket? Organized by common challenges and conflicts, this book is an essential manual of communication strategies, including a chapter that addresses the special needs of children with sensory processing and autism spectrum disorders.
This user-friendly guide will empower parents and caregivers of young children to forge rewarding, joyful relationships with terrible two-year-olds, truculent three-year-olds, ferocious four-year-olds, foolhardy five-year-olds, self-centered six-year-olds, and the occasional semi-civilized seven-year-old.
ISBN
9781501131639
Language
English
Material Type
Book
Call Number
GK 600 FAB 2017

Copies

copy 2 BC Children's and Women's Family Library Available
copy 3 BC Children's and Women's Family Library Available
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Receiving David: The gift of a son who taught us how to live and love

https://bcch.andornot.com/en/permalink/catalog111626
Knol, Faye. Grand Rapids, Michigan: William B. Eerdmans Publishing Company , 2010.
Material Type
Book
Call Number
GK 655 KNO 2010
Availability
1 copy, 1 available
David Knol was born dangerously premature and wasn?t expected to live more than a few hours. He not only survived but went on to live a life full of joy and blessing, despite severe physical and intellectual disabilities. In this memoir, David's mother shares the story of David's life and the remar…
Author
Knol, Faye
Place of Publication
Grand Rapids, Michigan
Publisher
William B. Eerdmans Publishing Company
Publication Date
2010
Physical Description
Softcover: 163 p.
Subject
Parenting Children with Developmental Disabilities
Parenting Children with Disabilities
Parenting Children with Physical Disabilities
Developmental Disability
Intensive Care Units-Neonatal. Infants
Abstract
David Knol was born dangerously premature and wasn?t expected to live more than a few hours. He not only survived but went on to live a life full of joy and blessing, despite severe physical and intellectual disabilities. In this memoir, David's mother shares the story of David's life and the remarkable gifts he taught those around him during his 22 years.
ISBN
9780802865434
Language
English
Material Type
Book
Call Number
GK 655 KNO 2010

Copies

Copy 1 BC Children's and Women's Family Library Available
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Breathr: Mindful Moments: Mobile App (iOS)

https://bcch.andornot.com/en/permalink/catalog124783
PHSA, Centre for Mindfulness. Vancouver, BC: , 2023.
URL
https://apps.apple.com/ca/app/breathr-mindful-moments/id1213963384
Material Type
Online
Breathr offers a variety of mindfulness practices and guided meditations that can be used anywhere, anytime, such as body scans, guided breathing, walking meditation, and self-compassion practices. The app was developed by the BC Children's Centre for Mindfulness and BC Children's Kelty Mental Heal…
  1 url  
URL
https://apps.apple.com/ca/app/breathr-mindful-moments/id1213963384
Corporate Author
PHSA
Centre for Mindfulness
Place of Publication
Vancouver, BC
Publication Date
2023
Physical Description
Mobile App
Subject
Mindfulness
Anxiety. Anxiety Disorders
Abstract
Breathr offers a variety of mindfulness practices and guided meditations that can be used anywhere, anytime, such as body scans, guided breathing, walking meditation, and self-compassion practices. The app was developed by the BC Children's Centre for Mindfulness and BC Children's Kelty Mental Health Resource Centre.
Language
English
Material Type
Online
URLs
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Breathr: Mindful Moments: Mobile App (Android)

https://bcch.andornot.com/en/permalink/catalog124784
PHSA, Centre for Mindfulness. Vancouver, BC: , 2023.
URL
https://play.google.com/store/apps/details?id=ca.phsa.breathrapp&hl=en_US
Material Type
Online
Breathr offers a variety of mindfulness practices and guided meditations that can be used anywhere, anytime, such as body scans, guided breathing, walking meditation, and self-compassion practices. The app was developed by the BC Children's Centre for Mindfulness and BC Children's Kelty Mental Heal…
  1 url  
URL
https://play.google.com/store/apps/details?id=ca.phsa.breathrapp&hl=en_US
Corporate Author
PHSA
Centre for Mindfulness
Place of Publication
Vancouver, BC
Publication Date
2023
Physical Description
Mobile App
Subject
Mindfulness
Anxiety. Anxiety Disorders
Abstract
Breathr offers a variety of mindfulness practices and guided meditations that can be used anywhere, anytime, such as body scans, guided breathing, walking meditation, and self-compassion practices. The app was developed by the BC Children's Centre for Mindfulness and BC Children's Kelty Mental Health Resource Centre.
Language
English
Material Type
Online
URLs
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Missing our baby: A story of life and love for children who have lost a sibling due to pregnancy or infant loss

https://bcch.andornot.com/en/permalink/catalog125106
Pelletier, Annie. Sudbury, ON: Independently published , 2023.
Material Type
Book
Call Number
JUNIOR GV 259 PEL 2023
Availability
1 copy, 1 available
In this inspiring story, a child tells us how they feel after losing their baby brother. Their grief journey is brought to life through illustrations, giving us a glimpse into their inner world. Helpful strategies and tips are also included.
Author
Pelletier, Annie
Place of Publication
Sudbury, ON
Publisher
Independently published
Publication Date
2023
Physical Description
Softcover; 50 pages
Subject
Coping with a Sibling's Death
Pregnancy Loss. Miscarriage.
Abstract
In this inspiring story, a child tells us how they feel after losing their baby brother. Their grief journey is brought to life through illustrations, giving us a glimpse into their inner world. Helpful strategies and tips are also included.
ISBN
9798389765191
Language
English
Material Type
Book
Call Number
JUNIOR GV 259 PEL 2023

Copies

BC Children's and Women's Family Library Available
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I am not sick I don't need help!: How to help someone with mental illness accept treatment

https://bcch.andornot.com/en/permalink/catalog113057
Amador, Xavier. Peconic, NY: Vida Press , 2007. 2nd ed.
Material Type
Book
Call Number
CD 255 AMA 2007
Availability
1 copy, 1 available
About 50% of all people with schizophrenia and manic-depression do not understand that they are ill and refuse treatment. Whether you are a family member or a therapist, in this book you will find hope in what the new research is revealing about the problem of poor insight into illness.; Prepare to…
Author
Amador, Xavier
Edition
2nd ed.
Place of Publication
Peconic, NY
Publisher
Vida Press
Publication Date
2007
Physical Description
Softcover: 168 p.
Subject
Mental Disorders
Mental Disorders-Coping for the Family
Mental Disorders-Therapy
Abstract
About 50% of all people with schizophrenia and manic-depression do not understand that they are ill and refuse treatment. Whether you are a family member or a therapist, in this book you will find hope in what the new research is revealing about the problem of poor insight into illness.
Prepare to be surprised and to have new hope. There is much you can do to conquer denial.
ISBN
978096771892751995
Language
English
Material Type
Book
Call Number
CD 255 AMA 2007

Copies

copy 1 BC Children's and Women's Family Library Available
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Jon's tricky journey : a story for Inuit children with cancer and their families

https://bcch.andornot.com/en/permalink/catalog120829
McCarthy, Patricia. Iqaluit, NU: Inhabit Media , 2017.
Material Type
Book
Call Number
JUNIOR FE 555 MCC 2017
Availability
1 copy, 0 available
Jon loves his life in the North. But when he feels a pain that won't go away, he must go to a children's hospital in the south to find out what is wrong. A doctor there tells Jon he has cancer and will have to stay at the hospital for a while. Suddenly Jon's life is upside down! But with a handful …
Alternate Title
Jaan aullaqsimanirijanga : unikkaaq inungnut nutaqqanut aanniaqaqtunut ilanginnullu
Author
McCarthy, Patricia
Place of Publication
Iqaluit, NU
Publisher
Inhabit Media
Publication Date
2017
Physical Description
Softcover, 69 p.
Subject
Children with Cancer-Coping
Cancer
Cancer-Caregiving
Abstract
Jon loves his life in the North. But when he feels a pain that won't go away, he must go to a children's hospital in the south to find out what is wrong. A doctor there tells Jon he has cancer and will have to stay at the hospital for a while. Suddenly Jon's life is upside down! But with a handful of tricks from the doctors and nurses, and new friends, Jon discovers ways to cope with some of the tricky parts of having cancer. Accompanied by a resource guide for parents and caregivers, including hospital and support information, Jon's Tricky Journey opens a conversation between Inuit children facing a cancer diagnosis and their families to help make a difficult and confusing time more manageable.
ISBN
9781772271454
Language
English
Inuktitut
Material Type
Book
Call Number
JUNIOR FE 555 MCC 2017

Copies

Copy 1 BC Children's and Women's Family Library On Loan, due Monday, March 4, 2024
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