Author

Bernhard, Toni

Place of Publication

Somerville, MA

Publisher

Wisdom Publications

Publication Date

2015

Physical Description

337 pages

Subject

Coping with Chronic Illness

Chronic Illness

Chronic Pain

Abstract

Comfort, understanding, and advice for those who are suffering?and those who care for them.

Chronic illness creates many challenges, from career crises and relationship issues to struggles with self-blame, personal identity, and isolation. Beloved author Toni Bernhard addresses these challenges and many more, using practical examples to illustrate how mindfulness, equanimity, and compassion can help readers make peace with a life turned upside down.

In her characteristic conversational style, Bernhard shows how to cope and make the most of life despite the challenges of chronic illness. Benefit from:

? Mindfulness exercises to mitigate physical and emotional pain

? Concrete advice for negotiating the everyday hurdles of medical appointments, household chores, and social obligations

? Tools for navigating the strains illness can place on relationships

Several chapters are directed toward family and friends of the chronically ill, helping them to understand what their loved one is going through and how they can help.

Humorous and empathetic, Bernhard shares her own struggles and setbacks with unflinching honesty, offering invaluable support in the search to find peace and well-being.

ISBN

9781614292487

Language

English

Material Type

Book

Call Number

EF 850 BER 2015

Copies

Author

Selak, Joy H.

Overman, Steven S.

Edition

2nd Ed

Place of Publication

New York

Publisher

Demos Health

Physical Description

Softcover ; xxviii, 166 p.

Subject

Chronic Illness

Abstract

"You DonÌt Look Sick chronicles one personÌs true-life story of illness and her physicians compassionate commentary as they journey through the four stages of chronic illnessÛGetting Sick, Being Sick, Grief and Acceptance and Living Well. The authors address such practical aspects as hiring a doctor, managing chronic pain, coping with grief and loss of function, winning battles with health and disability insurers, countering the social bias against the chronically ill, and recognizing the limitations of chronic illness care and charting a path for change and more. This warmhearted resource helps you focus on building a meaningful life as opposed to a life of frustration and fear. This book is thoroughly revised and updated based upon feedback from readers of the first edition. The authors have added a new section on Grief and Acceptance, address the passage of the Affordable Health Care Act and Dr. Overman has added practical travel tips that bring organization and focus to each phase of the journey. Designed for people at all stages of the chronic illness journey, this book is also illuminating for caregivers and loved ones"--from the Publisher

ISBN

9781936303427

Language

English

Material Type

Book

Call Number

EF 800 SEL 2013

Copies

Author

Kabat-Zinn, Jon

Edition

Revised and updated edition

Publisher

Random House

Publication Date

2013

Physical Description

Softcover; 650 pages

Subject

Mindfulness

Chronic Illness

Anxiety

Abstract

Stress. It can sap our energy, undermine our health if we let it, even shorten our lives. It makes us more vulnerable to anxiety and depression, disconnection and disease. Based on Jon Kabat-Zinn's renowned mindfulness-based stress reduction program, this classic, groundbreaking work - which gave rise to a whole new field in medicine and psychology -

shows you how to use medically proven mind-body approaches derived from meditation and yoga to counteract stress, establish greater balance of body and mind, and stimulate well-being and healing. By engaging in these mindfulness practices and integrating them into your life from moment to moment and from day to day, you can learn to manage chronic pain, promote optimal healing, reduce anxiety and feelings of panic, and improve the overall quality of your life, relationships, and social networks. This second edition features results from recent studies on the science of mindfulness, a new Introduction, up-to-date statistics, and an extensive updated reading list. Full Catastrophe Living is a book for the young and the old, the well and the ill, and anyone trying to live a healthier and saner life in our fast-paced world.

ISBN

9780749958411

Language

English

Material Type

Book

Call Number

EG 225 KAB 2013

Copies

Author

Renfrew, Ruth

deLoache, Shawn

Editor

Medikidz USA Inc.

Place of Publication

New York, NY

Publisher

Jumo

Publication Date

2018

Physical Description

Softcover; 16 p.

Subject

Chronic Illness

Abstract

Comic book featuring Medikidz, superhero experts on health and illness. Explains how chronic illness can affect individuals and their families.

Language

English

Material Type

Book

Call Number

JUNIOR EF 800 REN 2018

Copies

Author

Donoghue, Paul J.

Siegel, Mary E.

Place of Publication

New York, NY

Publisher

W.W. Norton & Company, Inc.

Publication Date

2000

Physical Description

Softcover, 304 pages

Subject

Lifestyle changes with chronic illness

Abstract

Unlike a leg in a cast, invisible chronic illness (ICI) has no observable symptoms. Consequently, people who suffer from chronic fatigue, chronic pain, and many other miseries often endure not only the ailment but dismissive and negative reactions from others.

Since its first publication, Sick and Tired of Feeling Sick and Tired has offered hope and coping strategies to thousands of people who suffer from ICI. Paul Donoghue and Mary Siegel teach their readers how to rethink how they themselves view their illness and how to communicate with loved ones and doctors in a way that meets their needs. The authors' understanding makes readers feel they have been heard for the first time.

For this edition, the authors include a new introduction drawing on the experiences of the many people who have responded to the book and to their lectures and television appearances. They expand the definition of ICI to include other ailments such as depression, addiction, and obsessive-compulsive disorders. They bring the resource material, including Web sites, up to the present, and they offer fresh insights on four topics that often emerge: guilt, how ICI affects the family, meaningfulness, and defining acceptance.

Notes

Recommended by CCDP

ISBN

9780393320657

Language

English

Material Type

Book

Call Number

EF 820 DON 2000

Copies

Author

Burch, Vidyamala

Place of Publication

Boulder, CO

Publisher

Sounds True

Publication Date

2010

Subject

Chronic Pain

Mindfulness

Abstract

After two serious spinal injuries, Vidyamala Burch found herself facing the loneliness of disability and chronic pain with few skills or resources to turn to. But instead of giving up, she set out on a mission to embrace her physical challenges with compassion, acceptance, and peace.

Living Well with Pain and Illness shares the fruits of her courageous life?s work, teaching us how the practice of mindfulness can help us thrive in the face of health challenges of any kind. Drawing on the wisdom of a dozen years of teaching meditation and a lifetime of study of the benefits of mindful living, Vidyamala encourages readers with insights and instruction in:

The five-step model of mindfulness and how to use it to foster healing

The Breathworks approach to meditation, and how to apply it to health concerns such as migraines, arthritis, and chronic fatigue

Step-by-step techniques, illustrations, and case studies demonstrating how to effectively bring mindfulness into daily life

Chronic pain has been called the modern world?s silent epidemic. Billions are spent every year in an attempt to cope, yet the best solution available may be absolutely free: mindful living. In Living Well with Pain and Illness, Vidyamala Burch presents a work that is at once an inspirational memoir and practical guidebook for using mindfulness to reframe your relationship with physical and emotional suffering.

ISBN

9781591797470

Language

English

Material Type

Book

Call Number

FM 830 BUR 2010

Copies

Author

Zoffness, Rachel

Krane, Elliot J.

Publisher

New Harbinger Publications

Publication Date

2019

Physical Description

155 pages

Subject

Coping with Pain

Chronic Pain

Coping with Chronic Illness Young Adult

Abstract

This workbook blends cognitive behavioral therapy (CBT) and mindfulness-based stress reduction (MBSR). You will learn how pain affects both your mind and body, how negative emotions can make pain worse, and strategies to help you turn the volume down on your pain, so you can go back to enjoying activities that you love. You'll also learn mindfulness and relaxation exercises, including belly breathing and body scan to help manage pain in the moment. The exercises and strategies in this book are rooted in research, fun to learn, and easy to practice. For ages 12+.

ISBN

9781684033522

Language

English

Material Type

Book

Call Number

YOUTH FM 850 ZOF 2019

Copies

Author

Segal, Julia

Place of Publication

Philadelphia, PA

Publisher

Jessica Kingsley Publishers

Publication Date

2017

Physical Description

Softcover ; 312 p.

Subject

Chronic Illness

Disabilities

Relationships

Abstract

This impressively honest book explores the effects a challenging disability or illness can have on the mind and personal relationships, and how friends, family and professionals can help.

Illness or disability can isolate people by creating vast differences in their experiences where previously there were none. Friends and family can find themselves saying the wrong thing or awkwardly avoiding topics as a result. This book takes a candid look at how discomfort caused by an illness can strain a relationship between partners, families and professionals, as well as how understanding feelings of guilt or shame can transform a situation or relationship.

The insights and advice offered in this book can help children and adolescents overcome anxiousness caused by a parent's condition, improve communication between partners and family members, and increase professionals' awareness of how a client feels about their situation.

ISBN

9781785923326

Language

English

Material Type

Book

Call Number

EF 800 SEG 2017

Copies

Author

Kaufman, Miriam

Edition

3rd ed

Place of Publication

[Toronto, ON]

Publisher

Firefly Books Ltd

Publication Date

2012

Physical Description

Softcover: 309 p.

Subject

Coping with Chronic Illness

Young Adults

Physical Disability-Coping

Physical Disability. Physically Challenged

Relationships

Abstract

In the 3rd edition, Dr. Miriam Kaufman addresses important topics for teens who are living with chronic conditions or disabilities. The topics include: Anemia, Cancer, Cerebral Palsy, Crohn's Disease, Deafness, Diabetes, Head Injury, Heart Disease, Hemophilia, HIV, Lupus, Muscular Dystrophy, Sickle Cell Anemia, Seizures, Spinal Bifida, Spinal Cord Injuries, and Thyroid Disease.

ISBN

9781770850996

Language

English

Material Type

Book

Call Number

YOUTH EF 850.6 KAU 2012

Copies

Author

McClintock Greenberg, Tamara

Place of Publication

Springville, UT

Publisher

Plain Sight Publishing

Publication Date

2012

Physical Description

Softcover ; xiv, 157 p.

Subject

Chronic Illness

Abstract

"Dr. Tamara Greenberg offers hope and practical advice to those impacted by a loved one's illness with this new book., "When Someone You Love Has a Chronic Illness: Hope and Help for Those Providing Support. Inside, Dr. Greenberg provides easy-to-understand explanations for complicated feelings and behaviors and offers pragmatic strategies for coping effectively and serving your loved one in this time of need.

"Learn how to talk to someone who is ill, what not to do, how to address your loved ones who aren't taking care of themselves, how to help someone in physical pain, and more.

"Above all, Dr. Greenberg delivers important tools for managing the normal anxiety we all feel when someone we love is ill." --From back cover

ISBN

9781599559391

Language

English

Material Type

Book

Call Number

EF 800 GRE 2012

Copies

Author

Olsher, Sara

Rogers, Jenni

Place of Publication

Happy Valley, OR

Publisher

Mighty and Bright

Publication Date

2023

Physical Description

Softcover; 39 pages

Subject

Coping with Chronic Illness in the Family

Abstract

Join Mia and Stewart as they learn how bodies work, why some bodies don't always feel good, and what to do when someone they love has an illness that won't go away.

ISBN

9798986776538

Language

English

Material Type

Book

Call Number

JUNIOR EF 860 OLS 2023

Copies

Author

Lorig, Kate

Holman, Halsted

Sobel, David

Laurent, Diana

Gonzalez, Virginia

Minor, Marian

Edition

Canadian Edition, 4th

Place of Publication

Boulder, CO

Publisher

Bull Publishing Company

Publication Date

2013

Physical Description

Softcover ; vii, 368 p.

Subject

Chronic Illness

Mental Health/Illness

Fatigue

Pain

Depression

Abstract

"Living a Healthy Life with Chronic Conditions is a proven self-management guide. People with chonic health conditions live most of their lives outside of hospitals and clinics. This book is designed to help them learn the information and skills to manage chronic conditions on a daily basis while doing the things they need and want to do.

"This new edition is completely redesigned for easy reading and fully updated with the latest research and information. The book is a vital resource full of practical tips, suggestions, and strategies to build confidence in managing chronic illness and symptoms, such as fatigue, pain, shortness of breath, disability, and depression. It encourages readers to develop individual approaches to setting goals, making decisions, and finding resources and support"--from Publisher.

ISBN

97819396693498

Language

English

Material Type

Book

Call Number

EF 800 LOR 2013

Copies

Author

Webster, Lisa

Holman, Halsted

Laurent, Diana

Minor, Marian

Place of Publication

Boulder, CO

Publisher

Bull Publishing Company

Publication Date

2015

Physical Description

Softcover ; vii, 366 p., 1 CD

Subject

Chronic Pain

Abstract

"This book is designed to help you manage your pain so that you can get on with living a satisfying, fulfilling life. Chronic pain includes many types of conditions from a variety of causes. Despite these differences, all readers of this book have one very important thing in common ? you are living with pain every day. To help you discover strategies and skills that will make a difference, this book emphasizes four concepts:

"1. Each person with chronic pain is unique. There is no one treatment or approach that is right for everybody.

"2. There are a number of things you can do to feel better. These things will not eliminate pain, but they will help you to better manage pain, and help you to become more active and more involved in life.

"3. With knowledge and experimentation, you are the best judge of which self-management tools and techniques are best for you.

"4. The responsibility for managing your chronic pain day-to-day rests with you, not anybody else. Many people can be of help to you ? your family and friends, your health care team. But, in the end, the responsibility for self-management is yours.

"Acknowledging that overcoming chronic pain is a daily challenge, this book provides you with the self-management tools to help you meet that challenge"--from Publisher

ISBN

9781936693771

Language

English

Material Type

Book

Call Number

FM 830 WEB 2015

Copies

Author

Carter, Bryan D.

Kronenberger, William G.

Scott, Eric L.

Brady, Christine E.

Place of Publication

Oxford, UK

Publisher

Oxford University Press

Publication Date

2020

Physical Description

Softcover; 173 pages

Series

Programs that work

Subject

Coping with Chronic Illness Young Adult

Coping with Chronic Illness

Coping with Chronic Illness-Children

Abstract

Youth with chronic illnesses face challenges that may prove disruptive to physical, psychological, and social development. Based on extensive research and clinical expertise, Children's Health and Illness Recovery Program (CHIRP) is an interdisciplinary cognitive behavioral and family systems-based treatment program designed to maximize the independent functioning of teens with chronic illness.

This Clinician Guide offers a detailed outline for implementing this manualized intervention and provides clear guidance as to the philosophy, pragmatics, and art of working with challenging pediatric conditions. Designed to accompany the CHIRP Teen and Family Workbook, this book addresses specific assessment measures and tools needed to establish a collaborative treatment team approach that incorporates the skills of the CHIRP clinician, primary and specialty care providers, and roles of other healthcare (physical therapists, occupational therapists, etc.) and educational professionals critical to the successful management and treatment of these youth.

ISBN

9780190070267

Language

English

Material Type

Book

Call Number

EF 850.6 CAR 2020b

Copies

Author

Bula, Ania

Place of Publication

Durham, North Carolina

Publisher

Pitchstone Publishing

Publication Date

2016

Physical Description

Softcover ; 224 p.

Subject

Chronic Illness

Abstract

"Drawing on her own deeply personal experiences, Ania Bula explores what it is like to live with unseen chronic disabilities. She paints a vibrant picture of what it is like to be diagnosed with two life-long debilitating conditions as a young adult and relates the challenges and frustrations of dealing with predatory alternative medicine practitioners, arrogant doctors, indifferent bureaucracies, and well-meaning friends and family who always seem to say either the wrong thing-or nothing at all. As she discovered, suddenly everyone's aunt is a health expert and everyone's fad diet a cure. Making matters worse, her physical torment quickly translated into mental stresses. Relationships became strained, while others, including all-important romantic ones, never had a chance to start at all. Wading through a constant stream of ignorance and lies, in a desperate attempt to find peace, to stop the pain, and to return to a more normal life, she submits to being stuffed with powders and magic potions, poked and prodded, and even "faith healed." With honesty and humor, she shares her journey of pain, suffering, and, ultimately, coping, both to help others gain some understanding about what it is like to live with chronic illness-and to help those who might similarly suffer feel less alone, so that they too might start living again.

"Drawing on the author's personal experiences with her own physical and mental health struggles, the book explores what it is like to live with chronic disabilities as a young adult"-- Provided by publisher

Notes

Recommended by CCDP

ISBN

9781634310734

Language

English

Material Type

Book

Call Number

EF 800 BUL 2016

Copies

Author

Kivowitz, Barbara

Weisman, Roanne

Place of Publication

Petaluma, CA

Publisher

Roundtree Press

Publication Date

2013

Physical Description

Softcover; 192 pages

Subject

Chronic Illness

Abstract

For those who find themselves at the intersection of lifetime love and overwhelming obligation, the right path is often painful and difficult to find. When illness invades the couple relationship, partners ask themselves and each other some really hard questions: "What do I want to do for this person whom I have loved for many years?" "How much of my life do I give up to take care of my beloved?" "How do I sit by my beloved's side and watch her suffer?" While writing In Sickness as in Health, authors Barbara Kivowitz and Roanne Weisman learned through interviews with many couples, as well as with medical, spiritual, legal, rehabilitation and psychological experts, that couples find their own ways to deal with illnesses and catastrophic injuries.

ISBN

9781937359133

Language

English

Material Type

Book

Call Number

EF 800 KIV 2013

Copies

Author

Carter, Bryan D.

Kronenberger, William G.

Scott, Eric L.

Place of Publication

Oxford, UK

Publisher

Oxford University Press

Publication Date

2020

Physical Description

Softcover; 113 pages

Series

Programs that work

Subject

Coping with Chronic Illness Young Adult

Coping with Chronic Illness

Coping with Chronic Illness-Children

Abstract

Children and adolescents with chronic illnesses, particularly those accompanied by debilitating, painful, and/or fatiguing symptoms, face challenges that may prove disruptive to physical, psychological, and social development. Based on extensive research and clinical expertise, Children's Health and Illness Recovery Program (CHIRP) is an effective treatment program designed to build and maintain independence in young people with chronic illness.

This Teen and Family Workbook provides proven treatment activities designed to combat the additional stress faced by youth coping with long-term health problems. These tasks target key areas for improvement in physical functioning, school functioning, and personal functioning and support the creation of new tools for managing the impact of illness, such as stress management, coping and relaxation techniques, and communication skills. In-session and take-home activities outlined in this workbook are meant to accompany the companion CHIRP Clinician Guide. With the use of this workbook and supported by a network of clinicians, healthcare specialists, and school professionals, adolescents and their families can return to a better quality of life.

ISBN

9780190070472

Language

English

Material Type

Book

Call Number

EF 850.6 CAR 2020

Copies

Author

Fennell, Patricia A.

Place of Publication

Latham, New York

Publisher

Albany Health Management Publishing

Publication Date

2012

Physical Description

Softcover ; 253 p.

Subject

Chronic Illness

Abstract

This book "brings clarity and order to what feels like an unmanageable and isolating experience. It shows both those who are ill and those who care for them how to live a full and meaningful life despite undeniable difficulties. Using her extensive experience with chronic illness patients, Patricia Fennell has created an original, comprehensive, research-validated approach that considers not only the physical aspects of chronic illness, but the psychological, social, and economic aspects as well"--from the Publisher

ISBN

9780979640711

Language

English

Material Type

Book

Call Number

EF 800 FEN 2012

Copies

Author

Sileo, Frank J.

Potter, Carol S.

Place of Publication

Washington, DC

Publisher

American Psychological Association

Publication Date

2021

Physical Description

Softcover; 419 pages

Subject

Coping with Chronic Illness-Children

Coping with Chronic Illness in the Family

Coping with Chronic Illness-Young Adult

Abstract

Written by leading mental health professionals, this warm and accessible parenting book for children with chronic illnesses offers clear, practical guidance for all aspects of the journey. It is recommended by professionals at the American Diabetes Association, Invisible Disabilities Association, the Crohn's Colitis Foundation, and other expert national and regional sources.

For all its joys, parenting is a complex job, and when your child has a chronic illness, the stress can feel overwhelming. When your child is diagnosed, you begin a parenting journey filled with strong emotions, difficult choices, confusing words, and interactions with numerous professionals and specialists.

You're focused on ensuring your child gets the best possible treatments for their symptoms, so it's easy to overlook or dismiss the impact the illness can have on your relationships and emotions. This book places your psychological well-being front and center, so you can be the best caregiver possible for your child.

Along with suggestions for making laughter and mindfulness part of your daily self-care routine, it offers guidance for choosing the right therapist for your family, should extra support be needed. Every family's journey with chronic illness is unique, but you don't have to go it alone.

ISBN

9781433833816

Language

English

Material Type

Book

Call Number

EF 850.5 SIL 2021

Copies

Author

Christy, Elizabeth M.

Miller, James G. (illustrator)

Place of Publication

Denver, Colorado

Publisher

Outskirts Press, Inc.

Publication Date

2014

Physical Description

Softcover ; [18 p.], illustrations

Subject

Chronic Illness

Chronic Pain

Fibromyalgia. Fibrositis

Coping with Chronic Illness-Children

Abstract

The children of people with chronic illness and pain suffer quietly. "Why Does Mommy Hurt?" is a joyful, yet honest, portrayal of family life burdened with chronic illness. This is a delightful story told by a young boy learning to understand and cope with his mother's illness. The story creates natural opportunities for families to talk about both the symptoms of chronic illness, and how they affect family life. Even more importantly, the story puts power into the hands of the children. It also offers a helpful "Tips and Resources" section for parents! This book is appropriate for a wide-variety of illnesses associated with chronic pain, such as: Lupus, Lyme Disease, ME, CFS, Fibromyalgia, Arthritis, Multiple Sclerosis, Autoimmune Disease, and many others.

Notes

Recommended by CCDP

ISBN

9781478732969

Language

English

Material Type

Book

Call Number

JUNIOR EF 850.5 CHR 2014

Copies

Author

Bernhard, Toni

Place of Publication

Somerville, MA

Publisher

Wisdom Publications

Publication Date

2018

Physical Description

Softcover ; xvii, 191 p.

Subject

Chronic Illness

Emotional Health

Mental Health

Abstract

"This life-affirming, instructive and thoroughly inspiring book is a must-read for anyone who is, or who might one day be, sick. And it can also be the perfect gift of guidance, encouragement, and uplifting inspiration to family, friends, and loved ones struggling with the many terrifying or disheartening life changes that come so close on the heels of a diagnosis of a chronic condition or even life-threatening illness." --Publisher

Notes

Recommended by CCDP

ISBN

9780861716265

Language

English

Material Type

Book

Call Number

EF 800 BER 2010

Copies

Author

Lynne, Kira

Place of Publication

[Canada]

Publisher

Moppet Press

Publication Date

2016

Physical Description

Softcover ; xxv, 361 p.

Subject

Chronic Pain

Relationships

Dating

Abstract

"Having been told by a doctor 20 years ago that I'd never be able to have a relationship due to my chronic pain, and having proved her wrong, I've set out to write a book for those who are living with chronic pain and illness and who have given up on or are struggling with relationships.

"It is possible to live well with chronic pain and illness, and it is possible to form lasting, loving relationships. In my book I provide you with a step-by-step guide to getting the love you want, regardless of your physical condition"--from publisher.

ISBN

9780994993502

Language

English

Material Type

Book

Call Number

FM 830 LYN 2016

Copies

Author

Fernando, Peter

Place of Publication

Boulder

Publisher

Shambhala Publications, Inc.

Publication Date

2016

Physical Description

Softcover ; ix, 222 p.

Subject

Mindfulness

Mind/Body

Chronic Illness

Chronic Pain

Emotional Health

Self-Concept (includes self-esteem)

Abstract

"'Let your illness be your spiritual teacher!' Make a statement like that to someone who's struggled for years with, say, rheumatoid arthritis, and be prepared for an eye roll (at best). To Peter Fernando's credit, he makes that statement, and no such impulse arises. We believe him because he's been there himself and because he backs up the statements with his own real experiences and with real wisdom from the Buddhist teachings. Fernando starts by defusing the pernicious belief that anyone is somehow responsible for their illness: you're not "wrong" for being sick. Then, having gotten past self-blame, one can begin to learn self-kindness. From there, one moves to mindfulness practices and cultivating body awareness?even if body awareness is distasteful when the body isn't behaving the way you like. Further topics include getting intimate with dark emotions (fear, despair, the scary future, frustration, grief, etc.), learning equanimity (rejoicing in the good fortune of those who don't share your suffering), cultivating healthy relationships in the midst of everything, and practical advice for living with pain. Each chapter comes with one or more practices or guided meditations for putting the teachings into practice"--from publisher.

ISBN

9781611802634

Language

English

Material Type

Book

Call Number

EF 850 FER 2016

Copies

Author

Lauder, G.R.

Massey, Roslyn

Place of Publication

Bloomington, IN

Publisher

Xlibris Corporation

Publication Date

2010

Physical Description

Softcover, 100 pages.

Subject

Reflex Sympathetic Dystrophy. Causalgia

Coping with Pain

Coping with Chronic Illness Young Adult

Pain

Abstract

This book provides clear information for teenagers who develop Complex Regional Pain Syndrome (CRPS). It can be used as a tool to aid the early recognition of CRPS and implement the necessary team approach to management. Medical terms have been explained in a way that can be easily understood. The authors asked a focus group of teenagers? which included those who have been treated for CRPS ? to provide their feedback.

ISBN

9781453589953

Language

English

Material Type

Book

Call Number

YOUTH FM 630 LAU 2010a

Copies

Author

Honore, Carl

Place of Publication

Toronto, ON

Publisher

Vintage Canada

Publication Date

2004

Physical Description

Softcover; 310 pages

Subject

Lifestyle changes with chronic illness

Abstract

These days, almost everyone complains about the hectic pace of their lives. We live in a world where speed rules and everyone is under pressure to go faster. But when speed is king, anyone or anything that gets in our way, that slows us down, becomes an enemy. Thanks to speed, we are living in the age of rage.

Carl Honore has discovered a movement that is quickly working its way into the mainstream. Groups of people are developing a recipe for living better in a fast-paced, modern environment by striving for a new balance between fast and slow. In an entertaining and hands-on investigation of this new movement, Honore takes us from a Tantric sex workshop in a trendy neighbourhood in London, England to Bra, Italy, the home of the Slow Food, Slow Cities and Slow Sex movements. He examines how we can continue to live productive lives by embracing the tenets of the slow movement.

ISBN

9780676975727

Language

English

Material Type

Book

Call Number

EF 820 HON 2004

Copies

Author

Schrooten, A.F.

Markovitz, B.P.

Place of Publication

Switzerland

Publisher

Springer International Publishing AG

Publication Date

2021

Physical Description

251 pages

Subject

Coping with Chronic Illness-Children

Abstract

This book tells true and poignant stories from both sides of the physician-patient/parent relationship and provides a unique glimpse into how parents and physicians think, feel, and interact. The stories are grouped under four sections: Hope, Compassion, Communication, and Trust.

Each section includes stories contributed by parents from all across the United States and by pediatricians practicing at many of the best children's hospitals throughout the country. The parents tell of interactions with physicians that had a significant impact on them and their child and offer context and insight that promote empathy and reflection. The physicians tell of interactions with patients and families that served as learning moments in their career and promote the humanization of medicine and show there is more to a physician beyond their scientific knowledge and white coat.

The stories are edited by Barry P. Markovitz - a pediatrician specializing in critical care medicine who has been in practice for more than 20 years and by Ann F. Schrooten - the parent of a child born with a chronic complex condition who has more than 15 years of experience interacting with pediatric subspecialists and other healthcare professionals who cared for her son. The editors have written commentaries to the stories to provide an independent perspective on the events and messages conveyed and to encourage reflection, inquiry, and discussion.

In addition to being a valuable resource for pediatricians, pediatric subspecialists, nurses and other healthcare professionals, the book will also appeal to families of children living with complex medical conditions because it shares physician encounters and behaviors many have experienced in the care of their own children. By giving a voice to both parents and physicians, the goal is to create a bridge to better understanding that can improve communication, minimize conflicts, and foster trust and compassion among physicians, patients, and families.

ISBN

9783030680206

Language

English

Material Type

Book

Call Number

EF 850.5 SCH 2021b

Copies

Author

Kaufman, Miriam

Silverberg, Cory

Odette, Fran

Place of Publication

San Francisco, CA

Publisher

Cleis Press

Publication Date

2007

Physical Description

Softcover, 345 p.

Subject

Developmental Disabilities

Sexuality

Abstract

The Ultimate Guide to Sex and Disability is the first complete sex guide for people who live with disabilities, pain, illness, or chronic conditions. Useful for absolutely everyone, regardless of age, gender, or sexual orientation, the book addresses a wide range of disabilities - from chronic fatigue, back pain, and asthma to spinal cord injury, hearing and visual impairment, multiple sclerosis, and more.

Notes

Recommended by CCDP

ISBN

9781573443043

Language

English

Material Type

Book

Call Number

GA 110 KAU 2007

Copies

Author

Cardinal Remete, France

Place of Publication

Montreal, QC

Publisher

Multimondes Inc.

Publication Date

2016

Physical Description

Paperback, 311 p.

Subject

Chronic Illness

Coping with Chronic Illness in the Family

ISBN

9782895444916

Language

French

Material Type

Book

Call Number

EF 850 CAR 2016

Copies

Author

Johnstone, Matthew

Johnstone, Ainsley

Place of Publication

UK

Publisher

Robinson

Publication Date

2008

Physical Description

Softcover; 80 pages

Subject

Caregivers-Coping

Depression

Abstract

Millions of people will suffer from depression at some stage in their life. The Black Dog affects all relationships be it loved one, work place relations and even on a community level. Many may not have the tools to help support the sufferer and negate looking after their own wellbeing in the process.

This is a must-have guide for the partners, family, friends and colleagues of depression sufferers. It includes practical advice about recognising the symptoms of depression in a loved one, living with a depressed person and helping them to tame their Black Dog.

ISBN

9781845297435

Language

English

Material Type

Book

Call Number

EF 625 JOH 2008

Copies

Author

Levine, Peter

Phillips, Maggie

Place of Publication

Boulder, CO

Publisher

Sounds True

Publication Date

2012

Physical Description

Softcover; 183 pages

Subject

Chronic Pain

Abstract

If you are suffering chronic pain―even after years of surgery, rehabilitation, and medication―only one question matters: How do I find lasting relief? With Freedom from Pain, two pioneers in the field of pain and trauma recovery address a crucial missing factor essential to long-term healing: addressing the unresolved emotional trauma held within the body.

ISBN

9781604076639

Language

English

Material Type

Book

CD

Call Number

FM 830 LEV 2012

Copies

Author

Butler, David S.

Moseley, G. Lorimer

Sunyata (Illustrator)

Place of Publication

Adelaide, Australia

Publisher

Noigroup Publications

Publication Date

2003

Physical Description

Softcover; 129 p.

Subject

Pain

Pain Control

Coping with Pain

Chronic Pain

Abstract

In everyday language accompanied by illustrations, this book discusses how pain responses are produced by the brain: how responses to injury from the autonomic motor and immune systems in your body contribute to pain, and why pain can persist after tissues have had plenty of time to heal. It aims to give clinicians and people in pain tools to learn about the processes involved during pain, and a scientific route to recovery.

Notes

Recommended by CCDP

ISBN

0-9750910-0

Language

English

Material Type

Book

Call Number

FM 800 BUT 2003

Author

Moseley, GL

Butler, DS

Place of Publication

Adelaide, Australia

Publisher

Noigroup Publications

Publication Date

2015

Physical Description

Softcover ; 49 p., ill., 8 pads of coloured stickies

Subject

Pain

Pain Control

Chronic Pain

Abstract

"The Explain Pain Handbook: Protectometer is a key element in the Explain Pain toolkit. An easily accessible book for people experiencing pain, it introduces the Protectometer, a ground breaking pain treatment tool.

"The Explain Pain Handbook: Protectometer helps you understand your personal pain formula, identify your DIMs (Danger in Me) and SIMs (Safety in Me) and provides six clear strategies for recovery from pain.

"This is your personal workbook. The Explain Pain Handbook: Protectometer is a stand-alone resource but if you want to delve deeper, Explain Pain is the ideal companion with clear links provided throughout"--from the Publisher

Notes

Recommended by CCDP

ISBN

9780975091098

Language

English

Material Type

Book

Call Number

FM 800 MOS 2015

Copies

Author

Haines, Steve

Standing, Sophie (ill.)

Publisher

Singing Dragon

Publication Date

2015

Physical Description

Graphic novel; [np]

Subject

Chronic Pain

Pain

Pain Control

Coping with Pain

Abstract

This graphic novel answers your questions about pain:

How can I change my pain experience?

What is pain?

How do nerves work?

Answering these questions and more, this research-based book reveals just how strange pain is and how understanding it is often the key to relieving its effects. With gentle humor, it explains pain in an easy-to-understand way and explores our remarkable ability to retrain the brain.

ISBN

9781848192645

Language

English

Material Type

Book

Call Number

FM 830 HAI 2015

Copies

Editor

Pearson, Neil

Prosko, Shelly

Sullivan, Marlysa

Place of Publication

Philadelphia

Publisher

Singing Dragon

Publication Date

2019

Physical Description

Hardcover ; 320 p.

Subject

Chronic Pain

Yoga

Complementary Therapies

Abstract

This book takes an integrated approach to pain rehabilitation and combines pain science, rehabilitation and yoga with evidence-based approaches from respected contributors. They demonstrate how to integrate the concepts, philosophies and practices of yoga and pain science in working with people in pain. The book expounds on the movement to a more patient-valued, partnership-based biopsychosocial-spiritual model of healthcare in which the patient is an active and empowered participant, as opposed to a model in which the healthcare provider is 'fixing' the passive patient.

ISBN

9781848193970

Language

Editions Heritage

Material Type

Book

Call Number

FM 880 PEA 2019

Copies

Author

Thorn, Beverly E.

Edition

2nd Ed.

Place of Publication

New York

Publisher

The Guilford Press

Physical Description

Softcover ; xx, 353 p.

Subject

Cognitive Therapy

Chronic Pain

Abstract

This book contains 10 treatment modules that draw on proven cognitive-behavioral therapy (CBT) strategies. It includes 58 reproducible client handouts and assessment tools.

ISBN

9781462531691

Language

English

Material Type

Book

Call Number

FM 880 THO 2017

Copies

Author

Coaklly, Rachael

Publisher

Yale University Press

Publication Date

2016

Physical Description

Softcover ; xxiv, 325 p.

Subject

Children's Health - Pain Control

Chronic Pain

Pain

Abstract

"Parents of a child in pain want nothing more than to offer immediate comfort. But a child with chronic or recurring pain requires much more. His or her parents need skills and strategies not only for increasing comfort but also for helping their child deal with an array of pain-related challenges, such as school disruption, sleep disturbance, and difficulties with peers. This essential guide, written by an expert in pediatric pain management, is the practical, accessible, and comprehensive resource that families and caregivers have been awaiting. It offers in-the-moment strategies for managing a child?s pain along with expert advice for fostering long-term comfort.

"Dr. Rachael Coakley, a clinical pediatric psychologist who works exclusively with families of children with chronic or recurrent pain, provides a set of research-proven strategies?some surprisingly counter-intuitive?to achieve positive results quickly and lastingly. Whether the pain is disease-related, the result of an injury or surgery, or caused by another condition or syndrome, this book offers what every parent of a child in pain most needs: effective methods for reversing the cycle of chronic pain"--from the Publisher.

ISBN

9780300204650

Language

English

Material Type

Book

Call Number

GK 285 COA 2016

Copies

Author

Chartre, Marie-Eve

Gagne, Johanne

Place of Publication

Montreal, QC

Publisher

Éditions du CHU Sainte-Justine

Publication Date

2014

Physical Description

Paperback, 127 p.

Subject

Coping with Chronic Illness-Children

Abstract

Dès l?annonce du diagnostic, la maladie chronique d?un enfant devient « l?affaire » de toute la famille. Après le choc, chacun des membres de la cellule familiale doit traverser, à son rythme, le processus d?adaptation à un nouveau mode de vie conditionné par l?état de santé de l?enfant. Ce livre permet aux parents de mieux comprendre les étapes de ce cheminement émotionnel et social ― pour l?enfant malade, la fratrie, la famille, le couple comme pour eux-mêmes en tant qu?individus ― et d?accompagner chacun en puisant à la fois dans les ressources personnelles et extérieures dont ils peuvent bénéficier.

ISBN

9782896196678

Language

French

Material Type

Book

Call Number

EF 850.5 CHA 2014

Copies

Author

Zeltzer, Lonnie K.

Schlank, Christina Blackett

Edition

1st ed.

Place of Publication

New York, NY

Publisher

HarperCollins Publishers Ltd.

Publication Date

c2005

Physical Description

Papeback; xvi, 299 p.

Subject

Chronic Pain

Children's Health. Pediatrics

Abstract

This is a guide to control the pain that plagues a child from headaches to arthritis, irritable bowel syndrome, fibromyalgia, and more. Explains how to soothe the nervous system, reactivate the body's natural pain control mechanisms, determine which medications are most effective, implement relaxation techniques and reduce parents' guilt.

ISBN

9780060570170

Language

English

Material Type

Book

Call Number

FM 830 ZEL 2005

Copies

Author

Anderson

Place of Publication

[Victoria, BC?]

Publisher

Tellwell Talent

Publication Date

2020

Physical Description

25 pages

Subject

Chronic Fatigue Syndrome

Abstract

What You See is Not How I Feel is a visually simple overview of how living with Chronic Fatigue feels. It opens conversation, clears misperceptions, and encourages understanding rather than judgement. Appropriate for children, adults, and professionals, and those with similar chronic illnesses; Fibromyalgia, Lyme, Multiple Sclerosis, Myalgic Encephalomyelitis, and Systemic Exertion Intolerance Disease.

ISBN

9780228819684

Language

English

Material Type

Book

Call Number

FG 375 AND 2020

YOUTH FG 275 AND 2020

Copies

Author

Wells, Joe

Stringer, Tim [ill.]

Place of Publication

London, UK and Philadelphia, PA

Publisher

Jessica Kingsley Publishers

Publication Date

2022

Physical Description

Softcover; 191 pages

Subject

Autism Spectrum Disorder (includes Asperger Syndrome)

Abstract

This collection of illustrated portraits celebrates the lives of influential neurodivergent figures who have achieved amazing things in recent times.

Showcasing these 30 incredible people, the extraordinary stories in this book show that the things they've achieved, created and inspired they did not despite being different but because they are different. From politicians, activists and journalists to YouTubers, DJs and poets, this book highlights a wide range of exciting career paths for neurodivergent readers.

ISBN

9781787758421

Language

English

Material Type

Book

Call Number

YOUTH FM 272 WEL 2022

Copies

Author

Grose, Anouchka

Bohémier, Lauriane [ill.]

Place of Publication

New York, NY

Publisher

Magic Cat Publishing

Publication Date

2024

Physical Description

Hardcover, 96 pages

Subject

Anxiety

Abstract

How does climate change make you feel? Sad? Afraid? Powerless? Guilty? Manage your eco-anxiety with this helpful guide. Drawing on years of experience as a psychoanalyst, Anouchka Grose shares cutting-edge insights on how to manage your eco-anxiety. Find out how to validate your emotions and build your resilience. Discover the comfort that can be found in your community. Understand and face your eco-anxiety with ten accessible steps. A "tool kit" at the end of each step shows you ways to build on that knowledge and take action. You'll finish this book feeling equipped with solutions and practical advice to help you be kinder to the planet . . . and yourself.

ISBN

9781419771361

Language

English

Material Type

Book

Call Number

YOUTH CD 420 GRO 2024

Copies

Alternate Title

[La vie avant, pendant et apres: Les soins palliatifs pediatriques]

Author

Humbert, Nago

Place of Publication

Montreal, QC

Publisher

CHU Sainte-Justine

Publication Date

2012

Physical Description

Paperback, 335 p.

Subject

Coping with Chronic Illness-Children

Caregiving

Abstract

volution des pratiques médicales inclut dorénavant le développement des soins palliatifs pédiatriques. En effet, la spécificité de la prise en charge des enfants et des adolescents vivant avec une pathologie pouvant menacer leur vie a été démontrée grâce à l'expertise et au travail de réflexion entrepris et soutenu par des intervenants spécialisés, autant en Amérique du Nord qu'en Europe.

La recherche dans ce domaine soulève certaines problématiques particulières, à la fois sur les plans médical, psychologique, éthique, émotionnel, relationnel et spirituel. En regroupant et en explorant plusieurs d'entre elles - contexte de périnatalité ou de handicap, gestion de la douleur, poursuite de la scolarité, rôle du pédiatre et de l'infirmière, souffrance des membres de la famille et des soignants, décès à l'urgence, impacts des décisions concernant l'alimentation, les niveaux de soins et la non-réanimation, possible conflit opposant famille et équipe de soins, importance du suivi de deuil...-, ce livre contribue à donner à chaque jeune patient un encadrement global et adéquat visant la meilleure qualité de vie possible dans le respect de son développement. Référence essentielle, il témoigne de la complexité des gestes et des décisions des soignants qui, ne pouvant plus guérir la maladie, sont appelés à soulager tous les malaises du petit malade et de sa famille, y comprix ceux de l'âme.

ISBN

9782896196197

Language

French

Material Type

Book

Call Number

EF 850.5 HUM 2012 STACKS

Copies

Author

Cooper, Celeste

Miller, Jeffrey

Place of Publication

Rochester, VT

Publisher

Healing Arts Press

Publication Date

2010

Physical Description

Softcover ; xiv, 433 p.

Subject

Chronic Fatigue Syndrome

Fibromyalgia. Fibrositis

Myofascial Pain Syndrome

Mind/Body

Abstract

Fibromyalgia, chronic myofascial pain, and chronic fatigue are often seen as interchangeable conditions, a belief held even by many health care providers. Nothing could be further from the truth-however, they do often coexist. Knowing if more than one of these disorders is present is extremely important, because the treatment for one of them can often exacerbate the problems caused by the others. Written by a registered nurse and a psychologist who has been treating these conditions since 1994, this book presents an integrative medical approach to these three disorders with a strong emphasis on utilizing and strengthening the mind-body connection to restore well-being. The authors begin with clear diagnostic guidelines for each condition and reference the latest scientific research on what causes these illnesses. Because many medical practitioners are relatively unfamiliar with these disorders, it can take several medical visits to arrive at a definitive diagnosis. Clear communication with medical personnel is key to diagnostic success. This book provides invaluable advice on how to describe symptoms, document health history, and keep a log of medical appointments. Included are interactive worksheets to facilitate these activities. The authors provide a thorough guide to numerous treatment options-from diet, exercise, and herbs to mindfulness meditation, yoga, and nonsteroidal anti-inflammatory drugs (NSAIDs). They also offer techniques to dispel the "brain fog" that these illnesses can create, offer guidance on the psychological issues that accompany these chronic pain disorders, and provide advice on how to build a personal support team. The final chapter gives advice on how to navigate the health care system, including step-by-step instructions for preparing an application to the Social Security Administration for disability benefits. An extensive resource section provides a wealth of contact information for helpful agencies and organizations, good sources for medical supplies, and a wide selection of suggested further reading. In short, this integrative treatment guide will open the door not only to physical recovery but also to emotional, mental, and spiritual well-being.

ISBN

9781594773235

Language

English

Material Type

Book

Call Number

FB 500 COO 2010

Copies

Author

Johannes, Aaron

Reynolds, Jim

Stanfield, Susan

Place of Publication

[Vancouver, BC?]

Publisher

Spectrum Press

Publication Date

2011

Physical Description

Softcover: 198 p.

Subject

Friendship

Social Behaviour (includes boundaries)

Social Skills

Relationships

Developmental Disability

Abstract

On its own or as a companion to the book "101 Ways to Make Friends: Ideas and conversation starters for people with disabilities", this collection of strategies is for parents, leaders and teachers of all kinds. It's a book about being a friend, learning ways to make a contribution to community, and what it means to be a good friend or neighbour, son or daughter, brother or sister, etc.

ISBN

9781257060504

Language

English

Material Type

Book

Call Number

CF 300 WAY 2011

Copies

Author

Telgemeier, Raina

Place of Publication

New York, NY

Publisher

Graphix

Publication Date

2019

Physical Description

Paperback; graphic novel; 211p.

Subject

Anxiety

Stress

Children's Anxiety

Children's Emotions

Chronic Illness

Abstract

Raina wakes up one night with a terrible upset stomach. Her mom has one, too, so it's probably just a bug. Raina eventually returns to school, where she's dealing with the usual highs and lows: friends, not-friends, and classmates who think the school year is just one long gross-out session. It soon becomes clear that Raina's tummy trouble isn't going away... and it coincides with her worries about food, school, and changing friendships.

ISBN

9780545852500

Language

English

Material Type

Book

Call Number

JUNIOR CD 420 TEL 2019

Copies

Author

Malik, Reshad

deLoache, Shawn

Editor

Quigley, Columba

Hunt, Tom

Gallagher, Alfie

Place of Publication

New York, NY

Publisher

Jumo

Publication Date

2018

Physical Description

16 p. : col. ill. ; 12 cm

Subject

Attention Deficit Disorder. Hyperactivity

Abstract

Join Vincent on his journey to learn more about how attention deficit hyperactivity disorder works in the brain and how ADHD is treated.

Language

English

Material Type

Book

Call Number

JUNIOR FM 265 MAL 2018

Copies

Author

Satkunarasa, Shen

deLoache, Shawn

Editor

Medikidz USA Inc.

Place of Publication

New York, NY

Publisher

Jumo

Publication Date

2018

Physical Description

Softcover; 16 p.

Subject

Epilepsy

Abstract

Comic book featuring Medikidz, superhero experts on health and illness. Explains how epilepsy and epilepsy medicines can affect children and youth, and how to cope.

Language

English

Material Type

Book

Call Number

JUNIOR FM 475 SAT 2018

Copies

Author

Tejpar, Serena

Lalani, Anoosha [ill.]

Tejpar, Iman [ill.]

Place of Publication

Ann Arbor, MI

Publisher

Loving Healing Press

Publication Date

2022

Physical Description

Softcover; no pagination

Subject

Children's Hospitalization

Trauma Survivors

Abstract

Research has shown that building resilience in the face of adversity or challenges helps children and young people develop effective coping strategies and improve long-term outcomes across a spectrum of illnesses. You Are So Much More reminds children who have gone through or are going through an illness or injury, that they are indeed so much more. Trauma survivor and medical student Serena Tejpar shares a story of inspiration, reflection, and encouragement that can be read over and over again.

Includes a final word on common concerns and questions children may have while in hospital.

Notes

For ages 4 - 8

ISBN

9781615996322

Language

English

Material Type

Book

Call Number

JUNIOR GK 210 TEJ 2022

Copies

Author

Thomas, Pat.

Place of Publication

Hauppauge, NY

Publisher

Barron's Educational Series, Inc.

Publication Date

2001

Physical Description

Softcover: 29 p.

Subject

Grief. Bereavement

Children and Grief

Picture Books

Abstract

A picture book which explores the difficult issue of death for young children. Children's feelings and questions about this sensitive subject are looked at in a simple but realistic way. This book helps them understand their loss and to come to terms with their feelings. It promotes interaction between children, parents, and teachers on personal, social, and emotional issues.

ISBN

0764117645

Language

English

Material Type

Book

Call Number

JUNIOR GV 200 THO 2001

Copies

Author

Jassi, Amita

Corporate Author

National and Specialist OCD, BDD, and Related Disorders Services for Young People, Maudsley Hospital

Place of Publication

London, Eng.

Publisher

Jessica Kingsley Publishers

Publication Date

2019

Physical Description

Softcover; 83 pages

Subject

Obsessive-Compulsive Disorders

Abstract

The first book for teens that explains the causes and impact of body dysmorphic disorder (BDD). The book is interspersed with accounts and artwork from young people with BDD, along with perspectives of their families. BDD is a debilitating mental health disorder, and this book gives advice on treatment including CBT and medication, and shows where to get help.

It increases awareness, provides solidarity for people with BDD, and alerts others to key signs and symptoms so they can prevent further suffering. It also includes a short section for families and professionals on what they can do to help, making this the go-to book for professionals and families to recommend to teens, as well an invaluable resource for young people themselves.

ISBN

9781785924569

Language

English

Material Type

Book

Call Number

YOUTH CD 800 NAT 2019

Copies