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The chronic pain and illness workbook for teens : CBT and mindfulness-based practices to turn the volume down on pain

https://bcch.andornot.com/en/permalink/catalog122615
Zoffness, Rachel, Krane, Elliot J. New Harbinger Publications , 2019.
URL
https://ebookcentral.proquest.com/lib/cwhbc/detail.action?docID=5820414
Material Type
Ebook
Call Number
YOUTH FM 850 ZOF 2019e
This workbook blends cognitive behavioral therapy (CBT) and mindfulness-based stress reduction (MBSR). You will learn how pain affects both your mind and body, how negative emotions can make pain worse, and strategies to help you turn the volume down on your pain, so you can go back to enjoying act…
  1 url  
URL
https://ebookcentral.proquest.com/lib/cwhbc/detail.action?docID=5820414
Author
Zoffness, Rachel
Krane, Elliot J.
Publisher
New Harbinger Publications
Publication Date
2019
Physical Description
eBook (176 pages)
Subject
Coping with Pain
Chronic Pain
Coping with Chronic Illness Young Adult
Abstract
This workbook blends cognitive behavioral therapy (CBT) and mindfulness-based stress reduction (MBSR). You will learn how pain affects both your mind and body, how negative emotions can make pain worse, and strategies to help you turn the volume down on your pain, so you can go back to enjoying activities that you love. You'll also learn mindfulness and relaxation exercises, including belly breathing and body scan to help manage pain in the moment. The exercises and strategies in this book are rooted in research, fun to learn, and easy to practice. For ages 12+.
ISBN
9781684033539
Language
English
Material Type
Ebook
Call Number
YOUTH FM 850 ZOF 2019e
URLs
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The chronic pain and illness workbook for teens : CBT and mindfulness-based practices to turn the volume down on pain

https://bcch.andornot.com/en/permalink/catalog123121
Zoffness, Rachel, Krane, Elliot J. New Harbinger Publications , 2019.
Material Type
Book
Call Number
YOUTH FM 850 ZOF 2019
Availability
1 copy, 1 available
This workbook blends cognitive behavioral therapy (CBT) and mindfulness-based stress reduction (MBSR). You will learn how pain affects both your mind and body, how negative emotions can make pain worse, and strategies to help you turn the volume down on your pain, so you can go back to enjoying act…
Author
Zoffness, Rachel
Krane, Elliot J.
Publisher
New Harbinger Publications
Publication Date
2019
Physical Description
155 pages
Subject
Coping with Pain
Chronic Pain
Coping with Chronic Illness Young Adult
Abstract
This workbook blends cognitive behavioral therapy (CBT) and mindfulness-based stress reduction (MBSR). You will learn how pain affects both your mind and body, how negative emotions can make pain worse, and strategies to help you turn the volume down on your pain, so you can go back to enjoying activities that you love. You'll also learn mindfulness and relaxation exercises, including belly breathing and body scan to help manage pain in the moment. The exercises and strategies in this book are rooted in research, fun to learn, and easy to practice. For ages 12+.
ISBN
9781684033522
Language
English
Material Type
Book
Call Number
YOUTH FM 850 ZOF 2019

Copies

Copy 1 BC Children's and Women's Family Library Available
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Living Well with Pain and Illness: The Mindful Way to Free Yourself from Suffering

https://bcch.andornot.com/en/permalink/catalog123953
Burch, Vidyamala. Boulder, CO: Sounds True , 2010.
Material Type
Book
Call Number
FM 830 BUR 2010
Availability
1 copy, 1 available
After two serious spinal injuries, Vidyamala Burch found herself facing the loneliness of disability and chronic pain with few skills or resources to turn to. But instead of giving up, she set out on a mission to embrace her physical challenges with compassion, acceptance, and peace.; Living Well w…
Author
Burch, Vidyamala
Place of Publication
Boulder, CO
Publisher
Sounds True
Publication Date
2010
Subject
Chronic Pain
Mindfulness
Abstract
After two serious spinal injuries, Vidyamala Burch found herself facing the loneliness of disability and chronic pain with few skills or resources to turn to. But instead of giving up, she set out on a mission to embrace her physical challenges with compassion, acceptance, and peace.
Living Well with Pain and Illness shares the fruits of her courageous life?s work, teaching us how the practice of mindfulness can help us thrive in the face of health challenges of any kind. Drawing on the wisdom of a dozen years of teaching meditation and a lifetime of study of the benefits of mindful living, Vidyamala encourages readers with insights and instruction in:
The five-step model of mindfulness and how to use it to foster healing
The Breathworks approach to meditation, and how to apply it to health concerns such as migraines, arthritis, and chronic fatigue
Step-by-step techniques, illustrations, and case studies demonstrating how to effectively bring mindfulness into daily life
Chronic pain has been called the modern world?s silent epidemic. Billions are spent every year in an attempt to cope, yet the best solution available may be absolutely free: mindful living. In Living Well with Pain and Illness, Vidyamala Burch presents a work that is at once an inspirational memoir and practical guidebook for using mindfulness to reframe your relationship with physical and emotional suffering.
ISBN
9781591797470
Language
English
Material Type
Book
Call Number
FM 830 BUR 2010

Copies

copy 1 BC Children's and Women's Family Library Available
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When your child has a chronic medical illness: A guide for the parenting journey

https://bcch.andornot.com/en/permalink/catalog123817
Sileo, Frank J., Potter, Carol S. Washington, DC: American Psychological Association , 2021.
Material Type
Book
Call Number
EF 850.5 SIL 2021
Availability
1 copy, 1 available
Written by leading mental health professionals, this warm and accessible parenting book for children with chronic illnesses offers clear, practical guidance for all aspects of the journey. It is recommended by professionals at the American Diabetes Association, Invisible Disabilities Association, t…
Author
Sileo, Frank J.
Potter, Carol S.
Place of Publication
Washington, DC
Publisher
American Psychological Association
Publication Date
2021
Physical Description
Softcover; 419 pages
Subject
Coping with Chronic Illness-Children
Coping with Chronic Illness in the Family
Coping with Chronic Illness-Young Adult
Abstract
Written by leading mental health professionals, this warm and accessible parenting book for children with chronic illnesses offers clear, practical guidance for all aspects of the journey. It is recommended by professionals at the American Diabetes Association, Invisible Disabilities Association, the Crohn's Colitis Foundation, and other expert national and regional sources.
For all its joys, parenting is a complex job, and when your child has a chronic illness, the stress can feel overwhelming. When your child is diagnosed, you begin a parenting journey filled with strong emotions, difficult choices, confusing words, and interactions with numerous professionals and specialists.
You're focused on ensuring your child gets the best possible treatments for their symptoms, so it's easy to overlook or dismiss the impact the illness can have on your relationships and emotions. This book places your psychological well-being front and center, so you can be the best caregiver possible for your child.
Along with suggestions for making laughter and mindfulness part of your daily self-care routine, it offers guidance for choosing the right therapist for your family, should extra support be needed. Every family's journey with chronic illness is unique, but you don't have to go it alone.
ISBN
9781433833816
Language
English
Material Type
Book
Call Number
EF 850.5 SIL 2021

Copies

BC Children's and Women's Family Library Available
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But you look good: How to encourage and understand people living with illness and pain

https://bcch.andornot.com/en/permalink/catalog122282
Connell, Wayne, Connell, Sherri. Parker, Colorado: Invisible Disabilities Association , 2014.
Material Type
Book
Call Number
FM 830 CON 2014
Availability
2 copies, 2 available
"Do your loved ones have a hard time understanding your chronic illness or pain, because to them you LOOK fine? But You LOOK Good is a book that gives those living with chronic illness and pain a voice about how they feel, what they need and how others can be an encouragement to them. It is a conv…
Author
Connell, Wayne
Connell, Sherri
Place of Publication
Parker, Colorado
Publisher
Invisible Disabilities Association
Publication Date
2014
Physical Description
Softcover ; 85 p.
Subject
Chronic Illness
Chronic Pain
Abstract
"Do your loved ones have a hard time understanding your chronic illness or pain, because to them you LOOK fine? But You LOOK Good is a book that gives those living with chronic illness and pain a voice about how they feel, what they need and how others can be an encouragement to them. It is a convenient, informative way to educate loved ones about what people living with ongoing illness and pain struggle with, fight for and need from their friends and family. It is easy to read, gives practical ideas on how loved ones can be supportive and is not too long for readers to lose interest!"--from publisher.
ISBN
9780692258453
Language
English
Material Type
Book
Call Number
FM 830 CON 2014

Copies

copy 1 BC Children's and Women's Family Library Available
copy 2 BC Children's and Women's Family Library Available
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You don't look sick! : Living well with invisible chronic illness

https://bcch.andornot.com/en/permalink/catalog122326
Selak, Joy H., Overman, Steven S. New York: Demos Health 2nd Ed.
Material Type
Book
Call Number
EF 800 SEL 2013
Availability
2 copies, 2 available
"You Don√åt Look Sick chronicles one person√ås true-life story of illness and her physicians compassionate commentary as they journey through the four stages of chronic illness√õGetting Sick, Being Sick, Grief and Acceptance and Living Well. The authors address such practical aspe…
Author
Selak, Joy H.
Overman, Steven S.
Edition
2nd Ed
Place of Publication
New York
Publisher
Demos Health
Physical Description
Softcover ; xxviii, 166 p.
Subject
Chronic Illness
Abstract
"You DonÌt Look Sick chronicles one personÌs true-life story of illness and her physicians compassionate commentary as they journey through the four stages of chronic illnessÛGetting Sick, Being Sick, Grief and Acceptance and Living Well. The authors address such practical aspects as hiring a doctor, managing chronic pain, coping with grief and loss of function, winning battles with health and disability insurers, countering the social bias against the chronically ill, and recognizing the limitations of chronic illness care and charting a path for change and more. This warmhearted resource helps you focus on building a meaningful life as opposed to a life of frustration and fear. This book is thoroughly revised and updated based upon feedback from readers of the first edition. The authors have added a new section on Grief and Acceptance, address the passage of the Affordable Health Care Act and Dr. Overman has added practical travel tips that bring organization and focus to each phase of the journey. Designed for people at all stages of the chronic illness journey, this book is also illuminating for caregivers and loved ones"--from the Publisher
ISBN
9781936303427
Language
English
Material Type
Book
Call Number
EF 800 SEL 2013

Copies

BC Children's and Women's Family Library Available
copy 2 BC Children's and Women's Family Library Available
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Full Catastrophe Living: How to Cope with Stress, Pain, and Illness Using Mindfulness Meditation

https://bcch.andornot.com/en/permalink/catalog123942
Kabat-Zinn, Jon. Random House , 2013. Revised and updated edition.
Material Type
Book
Call Number
EG 225 KAB 2013
Availability
1 copy, 1 available
Stress. It can sap our energy, undermine our health if we let it, even shorten our lives. It makes us more vulnerable to anxiety and depression, disconnection and disease. Based on Jon Kabat-Zinn's renowned mindfulness-based stress reduction program, this classic, groundbreaking work - which gave …
Author
Kabat-Zinn, Jon
Edition
Revised and updated edition
Publisher
Random House
Publication Date
2013
Physical Description
Softcover; 650 pages
Subject
Mindfulness
Chronic Illness
Anxiety
Abstract
Stress. It can sap our energy, undermine our health if we let it, even shorten our lives. It makes us more vulnerable to anxiety and depression, disconnection and disease. Based on Jon Kabat-Zinn's renowned mindfulness-based stress reduction program, this classic, groundbreaking work - which gave rise to a whole new field in medicine and psychology -
shows you how to use medically proven mind-body approaches derived from meditation and yoga to counteract stress, establish greater balance of body and mind, and stimulate well-being and healing. By engaging in these mindfulness practices and integrating them into your life from moment to moment and from day to day, you can learn to manage chronic pain, promote optimal healing, reduce anxiety and feelings of panic, and improve the overall quality of your life, relationships, and social networks. This second edition features results from recent studies on the science of mindfulness, a new Introduction, up-to-date statistics, and an extensive updated reading list. Full Catastrophe Living is a book for the young and the old, the well and the ill, and anyone trying to live a healthier and saner life in our fast-paced world.
ISBN
9780749958411
Language
English
Material Type
Book
Call Number
EG 225 KAB 2013

Copies

copy 1 BC Children's and Women's Family Library Available
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Children's Health and Illness Recovery Program (CHIRP): Clinician guide

https://bcch.andornot.com/en/permalink/catalog124615
Carter, Bryan D., Kronenberger, William G., Scott, Eric L., Brady, Christine E. Oxford, UK: Oxford University Press , 2020.
Material Type
Book
Call Number
EF 850.6 CAR 2020b
Availability
1 copy, 1 available
Youth with chronic illnesses face challenges that may prove disruptive to physical, psychological, and social development. Based on extensive research and clinical expertise, Children's Health and Illness Recovery Program (CHIRP) is an interdisciplinary cognitive behavioral and family systems-based…
Author
Carter, Bryan D.
Kronenberger, William G.
Scott, Eric L.
Brady, Christine E.
Place of Publication
Oxford, UK
Publisher
Oxford University Press
Publication Date
2020
Physical Description
Softcover; 173 pages
Series
Programs that work
Subject
Coping with Chronic Illness Young Adult
Coping with Chronic Illness
Coping with Chronic Illness-Children
Abstract
Youth with chronic illnesses face challenges that may prove disruptive to physical, psychological, and social development. Based on extensive research and clinical expertise, Children's Health and Illness Recovery Program (CHIRP) is an interdisciplinary cognitive behavioral and family systems-based treatment program designed to maximize the independent functioning of teens with chronic illness.
This Clinician Guide offers a detailed outline for implementing this manualized intervention and provides clear guidance as to the philosophy, pragmatics, and art of working with challenging pediatric conditions. Designed to accompany the CHIRP Teen and Family Workbook, this book addresses specific assessment measures and tools needed to establish a collaborative treatment team approach that incorporates the skills of the CHIRP clinician, primary and specialty care providers, and roles of other healthcare (physical therapists, occupational therapists, etc.) and educational professionals critical to the successful management and treatment of these youth.
ISBN
9780190070267
Language
English
Material Type
Book
Call Number
EF 850.6 CAR 2020b

Copies

BC Children's and Women's Family Library Available
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Finding freedom in illness: A guide to cultivating deep well-being through mindfulness and self-compassion

https://bcch.andornot.com/en/permalink/catalog122283
Fernando, Peter. Boulder: Shambhala Publications, Inc. , 2016.
Material Type
Book
Call Number
EF 850 FER 2016
Availability
1 copy, 1 available
"'Let your illness be your spiritual teacher!' Make a statement like that to someone who's struggled for years with, say, rheumatoid arthritis, and be prepared for an eye roll (at best). To Peter Fernando's credit, he makes that statement, and no such impulse arises. We believe him because he's bee…
Author
Fernando, Peter
Place of Publication
Boulder
Publisher
Shambhala Publications, Inc.
Publication Date
2016
Physical Description
Softcover ; ix, 222 p.
Subject
Mindfulness
Mind/Body
Chronic Illness
Chronic Pain
Emotional Health
Self-Concept (includes self-esteem)
Abstract
"'Let your illness be your spiritual teacher!' Make a statement like that to someone who's struggled for years with, say, rheumatoid arthritis, and be prepared for an eye roll (at best). To Peter Fernando's credit, he makes that statement, and no such impulse arises. We believe him because he's been there himself and because he backs up the statements with his own real experiences and with real wisdom from the Buddhist teachings. Fernando starts by defusing the pernicious belief that anyone is somehow responsible for their illness: you're not "wrong" for being sick. Then, having gotten past self-blame, one can begin to learn self-kindness. From there, one moves to mindfulness practices and cultivating body awareness?even if body awareness is distasteful when the body isn't behaving the way you like. Further topics include getting intimate with dark emotions (fear, despair, the scary future, frustration, grief, etc.), learning equanimity (rejoicing in the good fortune of those who don't share your suffering), cultivating healthy relationships in the midst of everything, and practical advice for living with pain. Each chapter comes with one or more practices or guided meditations for putting the teachings into practice"--from publisher.
ISBN
9781611802634
Language
English
Material Type
Book
Call Number
EF 850 FER 2016

Copies

BC Children's and Women's Family Library Available
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Understanding living with a chronic illness: Written by doctors for kids

https://bcch.andornot.com/en/permalink/catalog121225
Renfrew, Ruth, deLoache, Shawn. New York, NY: Jumo , 2018.
Material Type
Book
Call Number
JUNIOR EF 800 REN 2018
Availability
1 copy, 1 available
Comic book featuring Medikidz, superhero experts on health and illness. Explains how chronic illness can affect individuals and their families.
Author
Renfrew, Ruth
deLoache, Shawn
Editor
Medikidz USA Inc.
Place of Publication
New York, NY
Publisher
Jumo
Publication Date
2018
Physical Description
Softcover; 16 p.
Subject
Chronic Illness
Abstract
Comic book featuring Medikidz, superhero experts on health and illness. Explains how chronic illness can affect individuals and their families.
Language
English
Material Type
Book
Call Number
JUNIOR EF 800 REN 2018

Copies

copy 1 BC Children's and Women's Family Library Available
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Full catastrophe living: Using the wisdom of your body and mind to face stress, pain, and illness

https://bcch.andornot.com/en/permalink/catalog124512
Kabat-Zinn, Jon. New York, NY: Random House Audio , 2008. Tenth anniversary edition.
Material Type
CD
Audio
Call Number
EG 225 KAB 2008
Availability
1 copy, 1 available
Stress. It can sap our energy, undermine our health if we let it, even shorten our lives. It makes us more vulnerable to anxiety and depression, disconnection and disease. Now, based on Dr. Jon Kabat-Zinn's renowned mindfulness-based stress reduction program, this groundbreaking audiobook shows yo…
Author
Kabat-Zinn, Jon
Edition
Tenth anniversary edition
Place of Publication
New York, NY
Publisher
Random House Audio
Publication Date
2008
Physical Description
5 CD set
Subject
Mindfulness
Chronic Illness
Anxiety
Abstract
Stress. It can sap our energy, undermine our health if we let it, even shorten our lives. It makes us more vulnerable to anxiety and depression, disconnection and disease. Now, based on Dr. Jon Kabat-Zinn's renowned mindfulness-based stress reduction program, this groundbreaking audiobook shows you how to use natural, medically proven methods to soothe and heal your body, mind, and spirit.
Recommended by CCDP
Language
English
Material Type
CD
Audio
Call Number
EG 225 KAB 2008

Copies

BC Children's and Women's Family Library Available
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Easy for you to say: Q & A's for teens living with chronic illness or disability

https://bcch.andornot.com/en/permalink/catalog112348
Kaufman, Miriam. [Toronto, ON]: Firefly Books Ltd , 2012. 3rd ed.
Material Type
Book
Call Number
YOUTH EF 850.6 KAU 2012
Availability
1 copy, 1 available
In the 3rd edition, Dr. Miriam Kaufman addresses important topics for teens who are living with chronic conditions or disabilities. The topics include: Anemia, Cancer, Cerebral Palsy, Crohn's Disease, Deafness, Diabetes, Head Injury, Heart Disease, Hemophilia, HIV, Lupus, Muscular Dystrophy, Sickle…
Author
Kaufman, Miriam
Edition
3rd ed
Place of Publication
[Toronto, ON]
Publisher
Firefly Books Ltd
Publication Date
2012
Physical Description
Softcover: 309 p.
Subject
Coping with Chronic Illness
Young Adults
Physical Disability-Coping
Physical Disability. Physically Challenged
Relationships
Abstract
In the 3rd edition, Dr. Miriam Kaufman addresses important topics for teens who are living with chronic conditions or disabilities. The topics include: Anemia, Cancer, Cerebral Palsy, Crohn's Disease, Deafness, Diabetes, Head Injury, Heart Disease, Hemophilia, HIV, Lupus, Muscular Dystrophy, Sickle Cell Anemia, Seizures, Spinal Bifida, Spinal Cord Injuries, and Thyroid Disease.
ISBN
9781770850996
Language
English
Material Type
Book
Call Number
YOUTH EF 850.6 KAU 2012

Copies

Copy 1 BC Children's and Women's Family Library Available
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Aches, pains, and love: A guide to dating and relationships for those with chronic pain and illness

https://bcch.andornot.com/en/permalink/catalog122281
Lynne, Kira. [Canada]: Moppet Press , 2016.
Material Type
Book
Call Number
FM 830 LYN 2016
Availability
1 copy, 1 available
"Having been told by a doctor 20 years ago that I'd never be able to have a relationship due to my chronic pain, and having proved her wrong, I've set out to write a book for those who are living with chronic pain and illness and who have given up on or are struggling with relationships.; "It is po…
Author
Lynne, Kira
Place of Publication
[Canada]
Publisher
Moppet Press
Publication Date
2016
Physical Description
Softcover ; xxv, 361 p.
Subject
Chronic Pain
Relationships
Dating
Abstract
"Having been told by a doctor 20 years ago that I'd never be able to have a relationship due to my chronic pain, and having proved her wrong, I've set out to write a book for those who are living with chronic pain and illness and who have given up on or are struggling with relationships.
"It is possible to live well with chronic pain and illness, and it is possible to form lasting, loving relationships. In my book I provide you with a step-by-step guide to getting the love you want, regardless of your physical condition"--from publisher.
ISBN
9780994993502
Language
English
Material Type
Book
Call Number
FM 830 LYN 2016

Copies

BC Children's and Women's Family Library Available
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Why does mommy hurt? Helping children cope with the challenges of having a caregiver with chronic pain, fibromyalgia,or autoimmune disease

https://bcch.andornot.com/en/permalink/catalog122253
Christy, Elizabeth M., Miller, James G. (illustrator). Denver, Colorado: Outskirts Press, Inc. , 2014.
Material Type
Book
Call Number
JUNIOR EF 850.5 CHR 2014
Availability
1 copy, 1 available
The children of people with chronic illness and pain suffer quietly. "Why Does Mommy Hurt?" is a joyful, yet honest, portrayal of family life burdened with chronic illness. This is a delightful story told by a young boy learning to understand and cope with his mother's illness. The story creates na…
Author
Christy, Elizabeth M.
Miller, James G. (illustrator)
Place of Publication
Denver, Colorado
Publisher
Outskirts Press, Inc.
Publication Date
2014
Physical Description
Softcover ; [18 p.], illustrations
Subject
Chronic Illness
Chronic Pain
Fibromyalgia. Fibrositis
Coping with Chronic Illness-Children
Abstract
The children of people with chronic illness and pain suffer quietly. "Why Does Mommy Hurt?" is a joyful, yet honest, portrayal of family life burdened with chronic illness. This is a delightful story told by a young boy learning to understand and cope with his mother's illness. The story creates natural opportunities for families to talk about both the symptoms of chronic illness, and how they affect family life. Even more importantly, the story puts power into the hands of the children. It also offers a helpful "Tips and Resources" section for parents! This book is appropriate for a wide-variety of illnesses associated with chronic pain, such as: Lupus, Lyme Disease, ME, CFS, Fibromyalgia, Arthritis, Multiple Sclerosis, Autoimmune Disease, and many others.
Notes
Recommended by CCDP
ISBN
9781478732969
Language
English
Material Type
Book
Call Number
JUNIOR EF 850.5 CHR 2014

Copies

BC Children's and Women's Family Library Available
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How to be sick: A buddhist-inspired guide for the chronically ill and their caregivers

https://bcch.andornot.com/en/permalink/catalog122239
Bernhard, Toni. Somerville, MA: Wisdom Publications , 2018.
Material Type
Book
Call Number
EF 800 BER 2010
Availability
1 copy, 0 available
"This life-affirming, instructive and thoroughly inspiring book is a must-read for anyone who is, or who might one day be, sick. And it can also be the perfect gift of guidance, encouragement, and uplifting inspiration to family, friends, and loved ones struggling with the many terrifying or dishea…
Author
Bernhard, Toni
Place of Publication
Somerville, MA
Publisher
Wisdom Publications
Publication Date
2018
Physical Description
Softcover ; xvii, 191 p.
Subject
Chronic Illness
Emotional Health
Mental Health
Abstract
"This life-affirming, instructive and thoroughly inspiring book is a must-read for anyone who is, or who might one day be, sick. And it can also be the perfect gift of guidance, encouragement, and uplifting inspiration to family, friends, and loved ones struggling with the many terrifying or disheartening life changes that come so close on the heels of a diagnosis of a chronic condition or even life-threatening illness." --Publisher
Notes
Recommended by CCDP
ISBN
9780861716265
Language
English
Material Type
Book
Call Number
EF 800 BER 2010

Copies

BC Children's and Women's Family Library On Loan, due Friday, January 5, 2024
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Sick and tired of feeling sick and tired: Living with invisible chronic illness

https://bcch.andornot.com/en/permalink/catalog125122
Donoghue, Paul J., Siegel, Mary E. New York, NY: W.W. Norton & Company, Inc. , 2000.
Material Type
Book
Call Number
EF 820 DON 2000
Availability
1 copy, 0 available
Unlike a leg in a cast, invisible chronic illness (ICI) has no observable symptoms. Consequently, people who suffer from chronic fatigue, chronic pain, and many other miseries often endure not only the ailment but dismissive and negative reactions from others.; Since its first publication, Sick and…
Author
Donoghue, Paul J.
Siegel, Mary E.
Place of Publication
New York, NY
Publisher
W.W. Norton & Company, Inc.
Publication Date
2000
Physical Description
Softcover, 304 pages
Subject
Lifestyle changes with chronic illness
Abstract
Unlike a leg in a cast, invisible chronic illness (ICI) has no observable symptoms. Consequently, people who suffer from chronic fatigue, chronic pain, and many other miseries often endure not only the ailment but dismissive and negative reactions from others.
Since its first publication, Sick and Tired of Feeling Sick and Tired has offered hope and coping strategies to thousands of people who suffer from ICI. Paul Donoghue and Mary Siegel teach their readers how to rethink how they themselves view their illness and how to communicate with loved ones and doctors in a way that meets their needs. The authors' understanding makes readers feel they have been heard for the first time.
For this edition, the authors include a new introduction drawing on the experiences of the many people who have responded to the book and to their lectures and television appearances. They expand the definition of ICI to include other ailments such as depression, addiction, and obsessive-compulsive disorders. They bring the resource material, including Web sites, up to the present, and they offer fresh insights on four topics that often emerge: guilt, how ICI affects the family, meaningfulness, and defining acceptance.
Notes
Recommended by CCDP
ISBN
9780393320657
Language
English
Material Type
Book
Call Number
EF 820 DON 2000

Copies

BC Children's and Women's Family Library On Loan, due Friday, April 26, 2024
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Children's Health and Illness Recovery Program (CHIRP): Teen and family workbook

https://bcch.andornot.com/en/permalink/catalog124614
Carter, Bryan D., Kronenberger, William G., Scott, Eric L. Oxford, UK: Oxford University Press , 2020.
Material Type
Book
Call Number
EF 850.6 CAR 2020
Availability
1 copy, 1 available
Children and adolescents with chronic illnesses, particularly those accompanied by debilitating, painful, and/or fatiguing symptoms, face challenges that may prove disruptive to physical, psychological, and social development. Based on extensive research and clinical expertise, Children's Health an…
Author
Carter, Bryan D.
Kronenberger, William G.
Scott, Eric L.
Place of Publication
Oxford, UK
Publisher
Oxford University Press
Publication Date
2020
Physical Description
Softcover; 113 pages
Series
Programs that work
Subject
Coping with Chronic Illness Young Adult
Coping with Chronic Illness
Coping with Chronic Illness-Children
Abstract
Children and adolescents with chronic illnesses, particularly those accompanied by debilitating, painful, and/or fatiguing symptoms, face challenges that may prove disruptive to physical, psychological, and social development. Based on extensive research and clinical expertise, Children's Health and Illness Recovery Program (CHIRP) is an effective treatment program designed to build and maintain independence in young people with chronic illness.
This Teen and Family Workbook provides proven treatment activities designed to combat the additional stress faced by youth coping with long-term health problems. These tasks target key areas for improvement in physical functioning, school functioning, and personal functioning and support the creation of new tools for managing the impact of illness, such as stress management, coping and relaxation techniques, and communication skills. In-session and take-home activities outlined in this workbook are meant to accompany the companion CHIRP Clinician Guide. With the use of this workbook and supported by a network of clinicians, healthcare specialists, and school professionals, adolescents and their families can return to a better quality of life.
ISBN
9780190070472
Language
English
Material Type
Book
Call Number
EF 850.6 CAR 2020

Copies

BC Children's and Women's Family Library Available
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Trouble with illness, The: How illness and disability affect relationships

https://bcch.andornot.com/en/permalink/catalog122269
Segal, Julia. Philadelphia, PA: Jessica Kingsley Publishers , 2017.
Material Type
Book
Call Number
EF 800 SEG 2017
Availability
2 copies, 2 available
This impressively honest book explores the effects a challenging disability or illness can have on the mind and personal relationships, and how friends, family and professionals can help.; Illness or disability can isolate people by creating vast differences in their experiences where previously th…
Author
Segal, Julia
Place of Publication
Philadelphia, PA
Publisher
Jessica Kingsley Publishers
Publication Date
2017
Physical Description
Softcover ; 312 p.
Subject
Chronic Illness
Disabilities
Relationships
Abstract
This impressively honest book explores the effects a challenging disability or illness can have on the mind and personal relationships, and how friends, family and professionals can help.
Illness or disability can isolate people by creating vast differences in their experiences where previously there were none. Friends and family can find themselves saying the wrong thing or awkwardly avoiding topics as a result. This book takes a candid look at how discomfort caused by an illness can strain a relationship between partners, families and professionals, as well as how understanding feelings of guilt or shame can transform a situation or relationship.
The insights and advice offered in this book can help children and adolescents overcome anxiousness caused by a parent's condition, improve communication between partners and family members, and increase professionals' awareness of how a client feels about their situation.
ISBN
9781785923326
Language
English
Material Type
Book
Call Number
EF 800 SEG 2017

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Young, sick, and invisible: A skeptic's journey with chronic illness

https://bcch.andornot.com/en/permalink/catalog122237
Bula, Ania. Durham, North Carolina: Pitchstone Publishing , 2016.
Material Type
Book
Call Number
EF 800 BUL 2016
Availability
1 copy, 1 available
"Drawing on her own deeply personal experiences, Ania Bula explores what it is like to live with unseen chronic disabilities. She paints a vibrant picture of what it is like to be diagnosed with two life-long debilitating conditions as a young adult and relates the challenges and frustrations of de…
Author
Bula, Ania
Place of Publication
Durham, North Carolina
Publisher
Pitchstone Publishing
Publication Date
2016
Physical Description
Softcover ; 224 p.
Subject
Chronic Illness
Abstract
"Drawing on her own deeply personal experiences, Ania Bula explores what it is like to live with unseen chronic disabilities. She paints a vibrant picture of what it is like to be diagnosed with two life-long debilitating conditions as a young adult and relates the challenges and frustrations of dealing with predatory alternative medicine practitioners, arrogant doctors, indifferent bureaucracies, and well-meaning friends and family who always seem to say either the wrong thing-or nothing at all. As she discovered, suddenly everyone's aunt is a health expert and everyone's fad diet a cure. Making matters worse, her physical torment quickly translated into mental stresses. Relationships became strained, while others, including all-important romantic ones, never had a chance to start at all. Wading through a constant stream of ignorance and lies, in a desperate attempt to find peace, to stop the pain, and to return to a more normal life, she submits to being stuffed with powders and magic potions, poked and prodded, and even "faith healed." With honesty and humor, she shares her journey of pain, suffering, and, ultimately, coping, both to help others gain some understanding about what it is like to live with chronic illness-and to help those who might similarly suffer feel less alone, so that they too might start living again.
"Drawing on the author's personal experiences with her own physical and mental health struggles, the book explores what it is like to live with chronic disabilities as a young adult"-- Provided by publisher
Notes
Recommended by CCDP
ISBN
9781634310734
Language
English
Material Type
Book
Call Number
EF 800 BUL 2016

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The chronic illness workbook : Strategies and solutions for taking back your life

https://bcch.andornot.com/en/permalink/catalog122395
Fennell, Patricia A. Latham, New York: Albany Health Management Publishing , 2012.
Material Type
Book
Call Number
EF 800 FEN 2012
Availability
2 copies, 2 available
This book "brings clarity and order to what feels like an unmanageable and isolating experience. It shows both those who are ill and those who care for them how to live a full and meaningful life despite undeniable difficulties. Using her extensive experience with chronic illness patients, Patricia…
  1 image  
Author
Fennell, Patricia A.
Place of Publication
Latham, New York
Publisher
Albany Health Management Publishing
Publication Date
2012
Physical Description
Softcover ; 253 p.
Subject
Chronic Illness
Abstract
This book "brings clarity and order to what feels like an unmanageable and isolating experience. It shows both those who are ill and those who care for them how to live a full and meaningful life despite undeniable difficulties. Using her extensive experience with chronic illness patients, Patricia Fennell has created an original, comprehensive, research-validated approach that considers not only the physical aspects of chronic illness, but the psychological, social, and economic aspects as well"--from the Publisher
ISBN
9780979640711
Language
English
Material Type
Book
Call Number
EF 800 FEN 2012

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When someone you love has a chronic illness: Hope and help for those providing support

https://bcch.andornot.com/en/permalink/catalog122265
McClintock Greenberg, Tamara. Springville, UT: Plain Sight Publishing , 2012.
Material Type
Book
Call Number
EF 800 GRE 2012
Availability
1 copy, 1 available
"Dr. Tamara Greenberg offers hope and practical advice to those impacted by a loved one's illness with this new book., "When Someone You Love Has a Chronic Illness: Hope and Help for Those Providing Support. Inside, Dr. Greenberg provides easy-to-understand explanations for complicated feelings and…
Author
McClintock Greenberg, Tamara
Place of Publication
Springville, UT
Publisher
Plain Sight Publishing
Publication Date
2012
Physical Description
Softcover ; xiv, 157 p.
Subject
Chronic Illness
Abstract
"Dr. Tamara Greenberg offers hope and practical advice to those impacted by a loved one's illness with this new book., "When Someone You Love Has a Chronic Illness: Hope and Help for Those Providing Support. Inside, Dr. Greenberg provides easy-to-understand explanations for complicated feelings and behaviors and offers pragmatic strategies for coping effectively and serving your loved one in this time of need.
"Learn how to talk to someone who is ill, what not to do, how to address your loved ones who aren't taking care of themselves, how to help someone in physical pain, and more.
"Above all, Dr. Greenberg delivers important tools for managing the normal anxiety we all feel when someone we love is ill." --From back cover
ISBN
9781599559391
Language
English
Material Type
Book
Call Number
EF 800 GRE 2012

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BC Children's and Women's Family Library Available
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Living a healthy life with chronic conditions: For ongoing physical and mental health conditions

https://bcch.andornot.com/en/permalink/catalog122290
Lorig, Kate, Holman, Halsted, Sobel, David, Laurent, Diana, Gonzalez, Virginia, Minor, Marian. Boulder, CO: Bull Publishing Company , 2013. Canadian Edition, 4th.
Material Type
Book
Call Number
EF 800 LOR 2013
Availability
2 copies, 2 available
"Living a Healthy Life with Chronic Conditions is a proven self-management guide. People with chonic health conditions live most of their lives outside of hospitals and clinics. This book is designed to help them learn the information and skills to manage chronic conditions on a daily basis while d…
Author
Lorig, Kate
Holman, Halsted
Sobel, David
Laurent, Diana
Gonzalez, Virginia
Minor, Marian
Edition
Canadian Edition, 4th
Place of Publication
Boulder, CO
Publisher
Bull Publishing Company
Publication Date
2013
Physical Description
Softcover ; vii, 368 p.
Subject
Chronic Illness
Mental Health/Illness
Fatigue
Pain
Depression
Abstract
"Living a Healthy Life with Chronic Conditions is a proven self-management guide. People with chonic health conditions live most of their lives outside of hospitals and clinics. This book is designed to help them learn the information and skills to manage chronic conditions on a daily basis while doing the things they need and want to do.
"This new edition is completely redesigned for easy reading and fully updated with the latest research and information. The book is a vital resource full of practical tips, suggestions, and strategies to build confidence in managing chronic illness and symptoms, such as fatigue, pain, shortness of breath, disability, and depression. It encourages readers to develop individual approaches to setting goals, making decisions, and finding resources and support"--from Publisher.
ISBN
97819396693498
Language
English
Material Type
Book
Call Number
EF 800 LOR 2013

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What happens when someone I love doesn't feel good: A book about illness that won't go away

https://bcch.andornot.com/en/permalink/catalog124827
Olsher, Sara, Rogers, Jenni. Happy Valley, OR: Mighty and Bright , 2023.
Material Type
Book
Call Number
JUNIOR EF 860 OLS 2023
Availability
2 copies, 1 available
Join Mia and Stewart as they learn how bodies work, why some bodies don't always feel good, and what to do when someone they love has an illness that won't go away.
Author
Olsher, Sara
Rogers, Jenni
Place of Publication
Happy Valley, OR
Publisher
Mighty and Bright
Publication Date
2023
Physical Description
Softcover; 39 pages
Subject
Coping with Chronic Illness in the Family
Abstract
Join Mia and Stewart as they learn how bodies work, why some bodies don't always feel good, and what to do when someone they love has an illness that won't go away.
ISBN
9798986776538
Language
English
Material Type
Book
Call Number
JUNIOR EF 860 OLS 2023

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Complex Regional Pain Syndrome (CRPS) explained: For teenagers, by teenagers

https://bcch.andornot.com/en/permalink/catalog111592
Lauder, G.R., Massey, Roslyn. Bloomington, IN: Xlibris Corporation , 2010.
Material Type
Book
Call Number
YOUTH FM 630 LAU 2010a
Availability
11 copies, 11 available
This book provides clear information for teenagers who develop Complex Regional Pain Syndrome (CRPS). It can be used as a tool to aid the early recognition of CRPS and implement the necessary team approach to management. Medical terms have been explained in a way that can be easily understood. The …
  1 image  
Author
Lauder, G.R.
Massey, Roslyn
Place of Publication
Bloomington, IN
Publisher
Xlibris Corporation
Publication Date
2010
Physical Description
Softcover, 100 pages.
Subject
Reflex Sympathetic Dystrophy. Causalgia
Coping with Pain
Coping with Chronic Illness Young Adult
Pain
Abstract
This book provides clear information for teenagers who develop Complex Regional Pain Syndrome (CRPS). It can be used as a tool to aid the early recognition of CRPS and implement the necessary team approach to management. Medical terms have been explained in a way that can be easily understood. The authors asked a focus group of teenagers? which included those who have been treated for CRPS ? to provide their feedback.
ISBN
9781453589953
Language
English
Material Type
Book
Call Number
YOUTH FM 630 LAU 2010a

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Ultimate guide to sex and disability: For all of us who live with disabilities, chronic pain and illness

https://bcch.andornot.com/en/permalink/catalog114030
Kaufman, Miriam, Silverberg, Cory, Odette, Fran. San Francisco, CA: Cleis Press , 2007.
Material Type
Book
Call Number
GA 110 KAU 2007
Availability
2 copies, 2 available
The Ultimate Guide to Sex and Disability is the first complete sex guide for people who live with disabilities, pain, illness, or chronic conditions. Useful for absolutely everyone, regardless of age, gender, or sexual orientation, the book addresses a wide range of disabilities - from chronic fati…
Author
Kaufman, Miriam
Silverberg, Cory
Odette, Fran
Place of Publication
San Francisco, CA
Publisher
Cleis Press
Publication Date
2007
Physical Description
Softcover, 345 p.
Subject
Developmental Disabilities
Sexuality
Abstract
The Ultimate Guide to Sex and Disability is the first complete sex guide for people who live with disabilities, pain, illness, or chronic conditions. Useful for absolutely everyone, regardless of age, gender, or sexual orientation, the book addresses a wide range of disabilities - from chronic fatigue, back pain, and asthma to spinal cord injury, hearing and visual impairment, multiple sclerosis, and more.
Notes
Recommended by CCDP
ISBN
9781573443043
Language
English
Material Type
Book
Call Number
GA 110 KAU 2007

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Living a healthy life with chronic pain

https://bcch.andornot.com/en/permalink/catalog122278
Webster, Lisa, Holman, Halsted, Laurent, Diana, Minor, Marian. Boulder, CO: Bull Publishing Company , 2015.
Material Type
Book
Call Number
FM 830 WEB 2015
Availability
2 copies, 2 available
"This book is designed to help you manage your pain so that you can get on with living a satisfying, fulfilling life. Chronic pain includes many types of conditions from a variety of causes. Despite these differences, all readers of this book have one very important thing in common ? you are living…
Author
Webster, Lisa
Holman, Halsted
Laurent, Diana
Minor, Marian
Place of Publication
Boulder, CO
Publisher
Bull Publishing Company
Publication Date
2015
Physical Description
Softcover ; vii, 366 p., 1 CD
Subject
Chronic Pain
Abstract
"This book is designed to help you manage your pain so that you can get on with living a satisfying, fulfilling life. Chronic pain includes many types of conditions from a variety of causes. Despite these differences, all readers of this book have one very important thing in common ? you are living with pain every day. To help you discover strategies and skills that will make a difference, this book emphasizes four concepts:
"1. Each person with chronic pain is unique. There is no one treatment or approach that is right for everybody.
"2. There are a number of things you can do to feel better. These things will not eliminate pain, but they will help you to better manage pain, and help you to become more active and more involved in life.
"3. With knowledge and experimentation, you are the best judge of which self-management tools and techniques are best for you.
"4. The responsibility for managing your chronic pain day-to-day rests with you, not anybody else. Many people can be of help to you ? your family and friends, your health care team. But, in the end, the responsibility for self-management is yours.
"Acknowledging that overcoming chronic pain is a daily challenge, this book provides you with the self-management tools to help you meet that challenge"--from Publisher
ISBN
9781936693771
Language
English
Material Type
Book
Call Number
FM 830 WEB 2015

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Quand la vie se fragilise: Un guide pour vous et vos proches aidants

https://bcch.andornot.com/en/permalink/catalog114657
Cardinal Remete, France. Montreal, QC: Multimondes Inc. , 2016.
Material Type
Book
Call Number
EF 850 CAR 2016
Availability
1 copy, 1 available
Author
Cardinal Remete, France
Place of Publication
Montreal, QC
Publisher
Multimondes Inc.
Publication Date
2016
Physical Description
Paperback, 311 p.
Subject
Chronic Illness
Coping with Chronic Illness in the Family
ISBN
9782895444916
Language
French
Material Type
Book
Call Number
EF 850 CAR 2016

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Cognitive therapy for chronic pain: A step-by-step guide

https://bcch.andornot.com/en/permalink/catalog122287
Thorn, Beverly E. New York: The Guilford Press 2nd Ed.
Material Type
Book
Call Number
FM 880 THO 2017
Availability
2 copies, 2 available
This book contains 10 treatment modules that draw on proven cognitive-behavioral therapy (CBT) strategies. It includes 58 reproducible client handouts and assessment tools.
Author
Thorn, Beverly E.
Edition
2nd Ed.
Place of Publication
New York
Publisher
The Guilford Press
Physical Description
Softcover ; xx, 353 p.
Subject
Cognitive Therapy
Chronic Pain
Abstract
This book contains 10 treatment modules that draw on proven cognitive-behavioral therapy (CBT) strategies. It includes 58 reproducible client handouts and assessment tools.
ISBN
9781462531691
Language
English
Material Type
Book
Call Number
FM 880 THO 2017

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Symple Symptom Tracker: Mobile App (iOS)

https://bcch.andornot.com/en/permalink/catalog124794
Symple Health, Inc. , 2019.
URL
https://apps.apple.com/us/app/symple-symptom-tracker/id479818115
Material Type
Online
Use Symple to track how you feel, to monitor your health, and to improve your wellbeing. Designed by both clinicians and regular people, Symple is an enjoyable way to connect to better health.
  1 url  
URL
https://apps.apple.com/us/app/symple-symptom-tracker/id479818115
Corporate Author
Symple Health, Inc.
Publication Date
2019
Physical Description
Mobile App
Subject
Coping with Pain
Coping with Chronic Illness
Abstract
Use Symple to track how you feel, to monitor your health, and to improve your wellbeing. Designed by both clinicians and regular people, Symple is an enjoyable way to connect to better health.
Language
English
Material Type
Online
URLs
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In Sickness as in Health: Helping Couples Cope with the Complexities of Illness

https://bcch.andornot.com/en/permalink/catalog124001
Kivowitz, Barbara, Weisman, Roanne. Petaluma, CA: Roundtree Press , 2013.
Material Type
Book
Call Number
EF 800 KIV 2013
Availability
1 copy, 1 available
For those who find themselves at the intersection of lifetime love and overwhelming obligation, the right path is often painful and difficult to find. When illness invades the couple relationship, partners ask themselves and each other some really hard questions: "What do I want to do for this pers…
Author
Kivowitz, Barbara
Weisman, Roanne
Place of Publication
Petaluma, CA
Publisher
Roundtree Press
Publication Date
2013
Physical Description
Softcover; 192 pages
Subject
Chronic Illness
Abstract
For those who find themselves at the intersection of lifetime love and overwhelming obligation, the right path is often painful and difficult to find. When illness invades the couple relationship, partners ask themselves and each other some really hard questions: "What do I want to do for this person whom I have loved for many years?" "How much of my life do I give up to take care of my beloved?" "How do I sit by my beloved's side and watch her suffer?" While writing In Sickness as in Health, authors Barbara Kivowitz and Roanne Weisman learned through interviews with many couples, as well as with medical, spiritual, legal, rehabilitation and psychological experts, that couples find their own ways to deal with illnesses and catastrophic injuries.
ISBN
9781937359133
Language
English
Material Type
Book
Call Number
EF 800 KIV 2013

Copies

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Shared Struggles: Stories from parents and pediatricians caring for children with serious illnesses

https://bcch.andornot.com/en/permalink/catalog124220
Schrooten, A.F., Markovitz, B.P. Switzerland: Springer International Publishing AG , 2021.
URL
https://ebookcentral.proquest.com/lib/cwhbc/detail.action?docID=6578034
Material Type
Ebook
Call Number
EF 850.5 SCH 2021e
This book tells true and poignant stories from both sides of the physician-patient/parent relationship and provides a unique glimpse into how parents and physicians think, feel, and interact. The stories are grouped under four sections: Hope, Compassion, Communication, and Trust.; Each section incl…
  1 url  
URL
https://ebookcentral.proquest.com/lib/cwhbc/detail.action?docID=6578034
Author
Schrooten, A.F.
Markovitz, B.P.
Place of Publication
Switzerland
Publisher
Springer International Publishing AG
Publication Date
2021
Subject
Coping with Chronic Illness-Children
Abstract
This book tells true and poignant stories from both sides of the physician-patient/parent relationship and provides a unique glimpse into how parents and physicians think, feel, and interact. The stories are grouped under four sections: Hope, Compassion, Communication, and Trust.
Each section includes stories contributed by parents from all across the United States and by pediatricians practicing at many of the best children's hospitals throughout the country. The parents tell of interactions with physicians that had a significant impact on them and their child and offer context and insight that promote empathy and reflection. The physicians tell of interactions with patients and families that served as learning moments in their career and promote the humanization of medicine and show there is more to a physician beyond their scientific knowledge and white coat.
The stories are edited by Barry P. Markovitz - a pediatrician specializing in critical care medicine who has been in practice for more than 20 years and by Ann F. Schrooten - the parent of a child born with a chronic complex condition who has more than 15 years of experience interacting with pediatric subspecialists and other healthcare professionals who cared for her son. The editors have written commentaries to the stories to provide an independent perspective on the events and messages conveyed and to encourage reflection, inquiry, and discussion.
In addition to being a valuable resource for pediatricians, pediatric subspecialists, nurses and other healthcare professionals, the book will also appeal to families of children living with complex medical conditions because it shares physician encounters and behaviors many have experienced in the care of their own children. By giving a voice to both parents and physicians, the goal is to create a bridge to better understanding that can improve communication, minimize conflicts, and foster trust and compassion among physicians, patients, and families.
ISBN
9783030680206
Language
English
Material Type
Ebook
Call Number
EF 850.5 SCH 2021e
URLs
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Shared Struggles: Stories from parents and pediatricians caring for children with serious illnesses

https://bcch.andornot.com/en/permalink/catalog123758
Schrooten, A.F., Markovitz, B.P. Switzerland: Springer International Publishing AG , 2021.
Material Type
Book
Call Number
EF 850.5 SCH 2021b
Availability
1 copy, 1 available
This book tells true and poignant stories from both sides of the physician-patient/parent relationship and provides a unique glimpse into how parents and physicians think, feel, and interact. The stories are grouped under four sections: Hope, Compassion, Communication, and Trust.; Each section incl…
Author
Schrooten, A.F.
Markovitz, B.P.
Place of Publication
Switzerland
Publisher
Springer International Publishing AG
Publication Date
2021
Physical Description
251 pages
Subject
Coping with Chronic Illness-Children
Abstract
This book tells true and poignant stories from both sides of the physician-patient/parent relationship and provides a unique glimpse into how parents and physicians think, feel, and interact. The stories are grouped under four sections: Hope, Compassion, Communication, and Trust.
Each section includes stories contributed by parents from all across the United States and by pediatricians practicing at many of the best children's hospitals throughout the country. The parents tell of interactions with physicians that had a significant impact on them and their child and offer context and insight that promote empathy and reflection. The physicians tell of interactions with patients and families that served as learning moments in their career and promote the humanization of medicine and show there is more to a physician beyond their scientific knowledge and white coat.
The stories are edited by Barry P. Markovitz - a pediatrician specializing in critical care medicine who has been in practice for more than 20 years and by Ann F. Schrooten - the parent of a child born with a chronic complex condition who has more than 15 years of experience interacting with pediatric subspecialists and other healthcare professionals who cared for her son. The editors have written commentaries to the stories to provide an independent perspective on the events and messages conveyed and to encourage reflection, inquiry, and discussion.
In addition to being a valuable resource for pediatricians, pediatric subspecialists, nurses and other healthcare professionals, the book will also appeal to families of children living with complex medical conditions because it shares physician encounters and behaviors many have experienced in the care of their own children. By giving a voice to both parents and physicians, the goal is to create a bridge to better understanding that can improve communication, minimize conflicts, and foster trust and compassion among physicians, patients, and families.
ISBN
9783030680206
Language
English
Material Type
Book
Call Number
EF 850.5 SCH 2021b

Copies

BC Children's and Women's Family Library Available
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Conquering your child's chronic pain: A pediatrician's guide for reclaiming a normal childhood

https://bcch.andornot.com/en/permalink/catalog108816
Zeltzer, Lonnie K., Schlank, Christina Blackett. New York, NY: HarperCollins Publishers Ltd. , c2005. 1st ed.
Material Type
Book
Call Number
FM 830 ZEL 2005
Availability
1 copy, 0 available
This is a guide to control the pain that plagues a child from headaches to arthritis, irritable bowel syndrome, fibromyalgia, and more. Explains how to soothe the nervous system, reactivate the body's natural pain control mechanisms, determine which medications are most effective, implement relaxat…
Author
Zeltzer, Lonnie K.
Schlank, Christina Blackett
Edition
1st ed.
Place of Publication
New York, NY
Publisher
HarperCollins Publishers Ltd.
Publication Date
c2005
Physical Description
Papeback; xvi, 299 p.
Subject
Chronic Pain
Children's Health. Pediatrics
Abstract
This is a guide to control the pain that plagues a child from headaches to arthritis, irritable bowel syndrome, fibromyalgia, and more. Explains how to soothe the nervous system, reactivate the body's natural pain control mechanisms, determine which medications are most effective, implement relaxation techniques and reduce parents' guilt.
ISBN
9780060570170
Language
English
Material Type
Book
Call Number
FM 830 ZEL 2005

Copies

BC Children's and Women's Family Library On Loan, due Friday, November 24, 2023
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Integrative therapies for fibromyalgia, chronic fatigue syndrome, and myofascial pain : The mind-body connection

https://bcch.andornot.com/en/permalink/catalog122289
Cooper, Celeste, Miller, Jeffrey. Rochester, VT: Healing Arts Press , 2010.
Material Type
Book
Call Number
FB 500 COO 2010
Availability
2 copies, 2 available
Fibromyalgia, chronic myofascial pain, and chronic fatigue are often seen as interchangeable conditions, a belief held even by many health care providers. Nothing could be further from the truth-however, they do often coexist. Knowing if more than one of these disorders is present is extremely impo…
Author
Cooper, Celeste
Miller, Jeffrey
Place of Publication
Rochester, VT
Publisher
Healing Arts Press
Publication Date
2010
Physical Description
Softcover ; xiv, 433 p.
Subject
Chronic Fatigue Syndrome
Fibromyalgia. Fibrositis
Myofascial Pain Syndrome
Mind/Body
Abstract
Fibromyalgia, chronic myofascial pain, and chronic fatigue are often seen as interchangeable conditions, a belief held even by many health care providers. Nothing could be further from the truth-however, they do often coexist. Knowing if more than one of these disorders is present is extremely important, because the treatment for one of them can often exacerbate the problems caused by the others. Written by a registered nurse and a psychologist who has been treating these conditions since 1994, this book presents an integrative medical approach to these three disorders with a strong emphasis on utilizing and strengthening the mind-body connection to restore well-being. The authors begin with clear diagnostic guidelines for each condition and reference the latest scientific research on what causes these illnesses. Because many medical practitioners are relatively unfamiliar with these disorders, it can take several medical visits to arrive at a definitive diagnosis. Clear communication with medical personnel is key to diagnostic success. This book provides invaluable advice on how to describe symptoms, document health history, and keep a log of medical appointments. Included are interactive worksheets to facilitate these activities. The authors provide a thorough guide to numerous treatment options-from diet, exercise, and herbs to mindfulness meditation, yoga, and nonsteroidal anti-inflammatory drugs (NSAIDs). They also offer techniques to dispel the "brain fog" that these illnesses can create, offer guidance on the psychological issues that accompany these chronic pain disorders, and provide advice on how to build a personal support team. The final chapter gives advice on how to navigate the health care system, including step-by-step instructions for preparing an application to the Social Security Administration for disability benefits. An extensive resource section provides a wealth of contact information for helpful agencies and organizations, good sources for medical supplies, and a wide selection of suggested further reading. In short, this integrative treatment guide will open the door not only to physical recovery but also to emotional, mental, and spiritual well-being.
ISBN
9781594773235
Language
English
Material Type
Book
Call Number
FB 500 COO 2010

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Navigating life with chronic pain

https://bcch.andornot.com/en/permalink/catalog122739
Lavin, Robert A., Clayton, Sara, Zilliox, Lindsay. Oxford Univerity Press , 2020.
URL
https://ebookcentral.proquest.com/lib/cwhbc/detail.action?docID=6176683
Material Type
Ebook
Call Number
FM 830 LAV 2020
Accessible, comprehensive, and up-to-date information about the challenges patients, family, and caregivers face when confronted by chronic pain. You will learn how to take control of your chronic pain using a variety of tools, like behavioral, exercise and nutritional approaches, medications, alte…
  1 url  
URL
https://ebookcentral.proquest.com/lib/cwhbc/detail.action?docID=6176683
Author
Lavin, Robert A.
Clayton, Sara
Zilliox, Lindsay
Publisher
Oxford Univerity Press
Publication Date
2020
Series
Brain and Life Books
Subject
Chronic Pain
Abstract
Accessible, comprehensive, and up-to-date information about the challenges patients, family, and caregivers face when confronted by chronic pain. You will learn how to take control of your chronic pain using a variety of tools, like behavioral, exercise and nutritional approaches, medications, alternative treatments (yoga and tai chi), and injections or surgery.
ISBN
9780190619701
Language
English
Material Type
Ebook
Call Number
FM 830 LAV 2020
URLs
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Chronic pelvic pain interdisciplinary program

https://bcch.andornot.com/en/permalink/catalog114215
BC Women's Centre for Pelvic Pain & Endometriosis. [Vancouver, BC?]: BC Women's Hospital + Health Centre , 2015.
URL
http://www.cw.bc.ca/library/pdf/pamphlets/ChronicPelvicPain-Intro-to-Program_v4_Nov2015.pdf
Material Type
Handout
Online
  1 url  
URL
http://www.cw.bc.ca/library/pdf/pamphlets/ChronicPelvicPain-Intro-to-Program_v4_Nov2015.pdf
Website Notes
Click the link to view or print.
Corporate Author
BC Women's Centre for Pelvic Pain & Endometriosis
Place of Publication
[Vancouver, BC?]
Publisher
BC Women's Hospital + Health Centre
Publication Date
2015
Physical Description
PDF file, 2 p.
Subject
Chronic Pain
Pain Control
Language
English
Material Type
Handout
Online
URLs
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Managing chronic pelvic pain through diet

https://bcch.andornot.com/en/permalink/catalog114203
BC Women's Centre for Pelvic Pain & Endometriosis. [Vancouver, BC?]: BC Women's Hospital + Health Centre , 2015.
URL
http://www.cw.bc.ca/library/pdf/pamphlets/ChronicPelvicPain-diet_2015_Nov.pdf
Material Type
Handout
Online
Regardless of whether your chronic pain includes endometriosis, IC, or IBS, or a combination of all of these, following an anti-inflammatory diet can help to reduce the intensity of the pain you are experiencing. It is also essential to include lifestyle changes, such as increased activity and exer…
  1 url  
URL
http://www.cw.bc.ca/library/pdf/pamphlets/ChronicPelvicPain-diet_2015_Nov.pdf
Website Notes
Click on the link above to view/print.
Corporate Author
BC Women's Centre for Pelvic Pain & Endometriosis
Place of Publication
[Vancouver, BC?]
Publisher
BC Women's Hospital + Health Centre
Publication Date
2015
Physical Description
PDF file, 5 p.
Subject
Chronic Pain
Pain Control
Abstract
Regardless of whether your chronic pain includes endometriosis, IC, or IBS, or a combination of all of these, following an anti-inflammatory diet can help to reduce the intensity of the pain you are experiencing. It is also essential to include lifestyle changes, such as increased activity and exercise as well as stress reduction. Stress reduction helps to calm the nervous system, which can then reduce inflammation and pain.
Language
English
Material Type
Handout
Online
URLs
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Ten tips for caregivers of a child or youth with chronic pain

https://bcch.andornot.com/en/permalink/catalog113153
Complex Pain Service. Vancouver, BC: BC Children's Hospital , 2022.
URL
http://www.cw.bc.ca/library/pdf/pamphlets/BCCH-10-Tips-Chronic-Pain.pdf
Material Type
Pamphlet
Online
This handout provides helpful tips for parents or caregivers of a child or youth with chronic pain. Also includes a recommended resource list.
  1 url  
URL
http://www.cw.bc.ca/library/pdf/pamphlets/BCCH-10-Tips-Chronic-Pain.pdf
Website Notes
Click on the link to view/print.
Alternate Title
10 tips for caregivers of a child or youth with chronic pain
Corporate Author
Complex Pain Service
Place of Publication
Vancouver, BC
Publisher
BC Children's Hospital
Publication Date
2022
Physical Description
PDF: 2 p.
Subject
Pain
Chronic Pain
Abstract
This handout provides helpful tips for parents or caregivers of a child or youth with chronic pain. Also includes a recommended resource list.
Language
English
Material Type
Pamphlet
Online
URLs
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Butler, David S., Moseley, G. Lorimer, Sunyata (Illustrator). Adelaide, Australia: Noigroup Publications , 2003.
Material Type
Book
Call Number
FM 800 BUT 2003
In everyday language accompanied by illustrations, this book discusses how pain responses are produced by the brain: how responses to injury from the autonomic motor and immune systems in your body contribute to pain, and why pain can persist after tissues have had plenty of time to heal. It aims t…
Author
Butler, David S.
Moseley, G. Lorimer
Sunyata (Illustrator)
Place of Publication
Adelaide, Australia
Publisher
Noigroup Publications
Publication Date
2003
Physical Description
Softcover; 129 p.
Subject
Pain
Pain Control
Coping with Pain
Chronic Pain
Abstract
In everyday language accompanied by illustrations, this book discusses how pain responses are produced by the brain: how responses to injury from the autonomic motor and immune systems in your body contribute to pain, and why pain can persist after tissues have had plenty of time to heal. It aims to give clinicians and people in pain tools to learn about the processes involved during pain, and a scientific route to recovery.
Notes
Recommended by CCDP
ISBN
0-9750910-0
Language
English
Material Type
Book
Call Number
FM 800 BUT 2003
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Pain is Really Strange

https://bcch.andornot.com/en/permalink/catalog123332
Haines, Steve, Standing, Sophie (ill.). Singing Dragon , 2015.
Material Type
Book
Call Number
FM 830 HAI 2015
Availability
1 copy, 1 available
This graphic novel answers your questions about pain:; How can I change my pain experience?; What is pain?; How do nerves work?; Answering these questions and more, this research-based book reveals just how strange pain is and how understanding it is often the key to relieving its effects. With gen…
Author
Haines, Steve
Standing, Sophie (ill.)
Publisher
Singing Dragon
Publication Date
2015
Physical Description
Graphic novel; [np]
Subject
Chronic Pain
Pain
Pain Control
Coping with Pain
Abstract
This graphic novel answers your questions about pain:
How can I change my pain experience?
What is pain?
How do nerves work?
Answering these questions and more, this research-based book reveals just how strange pain is and how understanding it is often the key to relieving its effects. With gentle humor, it explains pain in an easy-to-understand way and explores our remarkable ability to retrain the brain.
ISBN
9781848192645
Language
English
Material Type
Book
Call Number
FM 830 HAI 2015

Copies

BC Children's and Women's Family Library Available
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Mon enfant a une maladie chronique : Stratégies, ressources, moyens

https://bcch.andornot.com/en/permalink/catalog114193
Chartre, Marie-Eve, Gagne, Johanne. Montreal, QC: Éditions du CHU Sainte-Justine , 2014.
Material Type
Book
Call Number
EF 850.5 CHA 2014
Availability
1 copy, 1 available
Dès l?annonce du diagnostic, la maladie chronique d?un enfant devient « l?affaire » de toute la famille. Après le choc, chacun des membres de la cellule familiale doit traverser, à son rythme, le processus d?adaptation à un nouveau mode de vie conditionné par l?état de santé de l?enfant. Ce livre p…
Author
Chartre, Marie-Eve
Gagne, Johanne
Place of Publication
Montreal, QC
Publisher
Éditions du CHU Sainte-Justine
Publication Date
2014
Physical Description
Paperback, 127 p.
Subject
Coping with Chronic Illness-Children
Abstract
Dès l?annonce du diagnostic, la maladie chronique d?un enfant devient « l?affaire » de toute la famille. Après le choc, chacun des membres de la cellule familiale doit traverser, à son rythme, le processus d?adaptation à un nouveau mode de vie conditionné par l?état de santé de l?enfant. Ce livre permet aux parents de mieux comprendre les étapes de ce cheminement émotionnel et social ― pour l?enfant malade, la fratrie, la famille, le couple comme pour eux-mêmes en tant qu?individus ― et d?accompagner chacun en puisant à la fois dans les ressources personnelles et extérieures dont ils peuvent bénéficier.
ISBN
9782896196678
Language
French
Material Type
Book
Call Number
EF 850.5 CHA 2014

Copies

Copy 1 BC Children's and Women's Family Library Available
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No tears, no fears... 13 years later: Children coping with pain

https://bcch.andornot.com/en/permalink/catalog109744
Kuttner, Leora (Executive Producer), McDonald, Lawrence (Director). , 1998.
Material Type
DVD
Call Number
FE 550 KUT 1998b
Availability
2 copies, 2 available
Children, now young adults, who participated in pain management program "No Fears No Tears, 1986." discuss the impact of cancer on their lives.
  1 image  
Alternate Title
No fears no tears 13 years later
Author
Kuttner, Leora (Executive Producer)
McDonald, Lawrence (Director)
Publication Date
1998
Physical Description
1 DVD: 46 min.
Subject
Pain
Chronic Pain
Cancer Pain Control-Coping
Abstract
Children, now young adults, who participated in pain management program "No Fears No Tears, 1986." discuss the impact of cancer on their lives.
Language
English
Material Type
DVD
Call Number
FE 550 KUT 1998b

Copies

Copy 2 BC Children's and Women's Family Library Available
Copy 1 BC Children's and Women's Family Library Available
Images
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Yoga for pain relief: Simple practices to calm your mind & heal your chronic pain

https://bcch.andornot.com/en/permalink/catalog111912
McGonigal, Kelly. Oakland, CA: New Harbinger Publications, Inc. , 2009.
Material Type
Book
Call Number
FM 820 MCG 2009
Availability
2 copies, 2 available
Written by a yoga instructor and former chronic pain sufferer, this resource contains gentle postures and practical strategies for ending pain. Also includes: deep relaxation practices drawn from yogic tradition and psychological techniques for helping the reader dissolve pain.; Table of Contents:;…
Author
McGonigal, Kelly
Place of Publication
Oakland, CA
Publisher
New Harbinger Publications, Inc.
Publication Date
2009
Physical Description
Softcover: 176 p.
Subject
Pain Control-Complementary Therapies
Pain
Yoga
Abstract
Written by a yoga instructor and former chronic pain sufferer, this resource contains gentle postures and practical strategies for ending pain. Also includes: deep relaxation practices drawn from yogic tradition and psychological techniques for helping the reader dissolve pain.
Table of Contents:
Chapter 1: Understanding your pain
Chapter 2: Yoga: Reuniting body, mind, and spirit
Chapter 3: Breath
Chapter 4: Befriending the body
Chapter 5: Moving the body
Chapter 6: Relaxation
Chapter 7: Meditation
Chapter 8: Your personal yoga program
ISBN
9781572246898
Language
English
Material Type
Book
Call Number
FM 820 MCG 2009

Copies

copy 2 BC Children's and Women's Family Library Available
copy 1 BC Children's and Women's Family Library Available
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Mindfulness meditation for pain relief: Guided practices for reclaiming your body and your life

https://bcch.andornot.com/en/permalink/catalog125143
Kabat-Zinn, Jon. Boulder, CO: Sounds True , 2010.
Material Type
Audio
CD
Call Number
FM 880 KAB 2010
Availability
1 copy, 1 available
We know that practicing mindfulness in everyday life can help us reduce stress and cultivate deep, embodied well-being, but what about its effects on physical and emotional pain, especially when it seems overwhelming or unrelenting? Mindfulness Meditation for Pain Relief is a soothing program with …
Author
Kabat-Zinn, Jon
Place of Publication
Boulder, CO
Publisher
Sounds True
Publication Date
2010
Physical Description
2 CDs ; 105 minutes
Subject
Pain Control-Complementary Therapies
Mindfulness
Meditation
Chronic Pain
Abstract
We know that practicing mindfulness in everyday life can help us reduce stress and cultivate deep, embodied well-being, but what about its effects on physical and emotional pain, especially when it seems overwhelming or unrelenting? Mindfulness Meditation for Pain Relief is a soothing program with guided meditations and teachings. It opens with an overview of seven fundamental attitudes we can develop to cultivate mindfulness in relationship to chronic pain and its incessant challenges, and follows with concepts and practices including: mindful breathing, working with intense sensations, befriending thoughts and emotions, finding refuge in awareness, and bringing mindfulness into every life.
Notes
Recommended by CCDP
ISBN
9781591797401
Language
English
Material Type
Audio
CD
Call Number
FM 880 KAB 2010

Copies

BC Children's and Women's Family Library Available
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La vie...avant, pendant et après: Les soins palliatifs pédiatriques

https://bcch.andornot.com/en/permalink/catalog114452
Humbert, Nago. Montreal, QC: CHU Sainte-Justine , 2012.
Material Type
Book
Call Number
EF 850.5 HUM 2012 STACKS
Availability
1 copy, 1 available
volution des pratiques médicales inclut dorénavant le développement des soins palliatifs pédiatriques. En effet, la spécificité de la prise en charge des enfants et des adolescents vivant avec une pathologie pouvant menacer leur vie a été démontrée grâce à l'expertise et au travail de réflexion en…
Alternate Title
[La vie avant, pendant et apres: Les soins palliatifs pediatriques]
Author
Humbert, Nago
Place of Publication
Montreal, QC
Publisher
CHU Sainte-Justine
Publication Date
2012
Physical Description
Paperback, 335 p.
Subject
Coping with Chronic Illness-Children
Caregiving
Abstract
volution des pratiques médicales inclut dorénavant le développement des soins palliatifs pédiatriques. En effet, la spécificité de la prise en charge des enfants et des adolescents vivant avec une pathologie pouvant menacer leur vie a été démontrée grâce à l'expertise et au travail de réflexion entrepris et soutenu par des intervenants spécialisés, autant en Amérique du Nord qu'en Europe.
La recherche dans ce domaine soulève certaines problématiques particulières, à la fois sur les plans médical, psychologique, éthique, émotionnel, relationnel et spirituel. En regroupant et en explorant plusieurs d'entre elles - contexte de périnatalité ou de handicap, gestion de la douleur, poursuite de la scolarité, rôle du pédiatre et de l'infirmière, souffrance des membres de la famille et des soignants, décès à l'urgence, impacts des décisions concernant l'alimentation, les niveaux de soins et la non-réanimation, possible conflit opposant famille et équipe de soins, importance du suivi de deuil...-, ce livre contribue à donner à chaque jeune patient un encadrement global et adéquat visant la meilleure qualité de vie possible dans le respect de son développement. Référence essentielle, il témoigne de la complexité des gestes et des décisions des soignants qui, ne pouvant plus guérir la maladie, sont appelés à soulager tous les malaises du petit malade et de sa famille, y comprix ceux de l'âme.
ISBN
9782896196197
Language
French
Material Type
Book
Call Number
EF 850.5 HUM 2012 STACKS

Copies

copy 1 BC Children's and Women's Family Library Available
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When your child hurts : Effective strategies to increase comfort, reduce stress, and break the cycle of chronic pain

https://bcch.andornot.com/en/permalink/catalog122357
Coaklly, Rachael. Yale University Press , 2016.
Material Type
Book
Call Number
GK 285 COA 2016
Availability
1 copy, 1 available
"Parents of a child in pain want nothing more than to offer immediate comfort. But a child with chronic or recurring pain requires much more. His or her parents need skills and strategies not only for increasing comfort but also for helping their child deal with an array of pain-related challenges,…
Author
Coaklly, Rachael
Publisher
Yale University Press
Publication Date
2016
Physical Description
Softcover ; xxiv, 325 p.
Subject
Children's Health - Pain Control
Chronic Pain
Pain
Abstract
"Parents of a child in pain want nothing more than to offer immediate comfort. But a child with chronic or recurring pain requires much more. His or her parents need skills and strategies not only for increasing comfort but also for helping their child deal with an array of pain-related challenges, such as school disruption, sleep disturbance, and difficulties with peers. This essential guide, written by an expert in pediatric pain management, is the practical, accessible, and comprehensive resource that families and caregivers have been awaiting. It offers in-the-moment strategies for managing a child?s pain along with expert advice for fostering long-term comfort.
"Dr. Rachael Coakley, a clinical pediatric psychologist who works exclusively with families of children with chronic or recurrent pain, provides a set of research-proven strategies?some surprisingly counter-intuitive?to achieve positive results quickly and lastingly. Whether the pain is disease-related, the result of an injury or surgery, or caused by another condition or syndrome, this book offers what every parent of a child in pain most needs: effective methods for reversing the cycle of chronic pain"--from the Publisher.
ISBN
9780300204650
Language
English
Material Type
Book
Call Number
GK 285 COA 2016

Copies

BC Children's and Women's Family Library Available
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In praise of slow: How a worldwide movement is challenging the cult of speed

https://bcch.andornot.com/en/permalink/catalog124026
Honore, Carl. Toronto, ON: Vintage Canada , 2004.
Material Type
Book
Call Number
EF 820 HON 2004
Availability
1 copy, 1 available
These days, almost everyone complains about the hectic pace of their lives. We live in a world where speed rules and everyone is under pressure to go faster. But when speed is king, anyone or anything that gets in our way, that slows us down, becomes an enemy. Thanks to speed, we are living in the …
Author
Honore, Carl
Place of Publication
Toronto, ON
Publisher
Vintage Canada
Publication Date
2004
Physical Description
Softcover; 310 pages
Subject
Lifestyle changes with chronic illness
Abstract
These days, almost everyone complains about the hectic pace of their lives. We live in a world where speed rules and everyone is under pressure to go faster. But when speed is king, anyone or anything that gets in our way, that slows us down, becomes an enemy. Thanks to speed, we are living in the age of rage.
Carl Honore has discovered a movement that is quickly working its way into the mainstream. Groups of people are developing a recipe for living better in a fast-paced, modern environment by striving for a new balance between fast and slow. In an entertaining and hands-on investigation of this new movement, Honore takes us from a Tantric sex workshop in a trendy neighbourhood in London, England to Bra, Italy, the home of the Slow Food, Slow Cities and Slow Sex movements. He examines how we can continue to live productive lives by embracing the tenets of the slow movement.
ISBN
9780676975727
Language
English
Material Type
Book
Call Number
EF 820 HON 2004

Copies

BC Children's and Women's Family Library Available
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Pain, pain, go away: Helping children with pain

https://bcch.andornot.com/en/permalink/catalog107888
McGrath, Patrick J., Finley, Allen, Ritchie, Judith. [Bethesda, MD]: Association for the Care of Children's Health , 1994.
URL
http://pediatric-pain.ca/wp-content/uploads/2013/04/PPGA2003.pdf
Material Type
Online
This booklet is to teach parents about pain in children and to help them to ask for better care. It tells about sources of pain, how to measure it in children, and pain management.
  1 url  
URL
http://pediatric-pain.ca/wp-content/uploads/2013/04/PPGA2003.pdf
Author
McGrath, Patrick J.
Finley, Allen
Ritchie, Judith
Place of Publication
[Bethesda, MD]
Publisher
Association for the Care of Children's Health
Publication Date
1994
Physical Description
PDF, 15 p.
Subject
Pain
Coping with Pain
Abstract
This booklet is to teach parents about pain in children and to help them to ask for better care. It tells about sources of pain, how to measure it in children, and pain management.
Language
English
Material Type
Online
URLs
Show Less

Anything for my child: Making impossible decisions for medically complex children

https://bcch.andornot.com/en/permalink/catalog124865
Nimmo, Stephanie. London, UK: Jessica Kingsley Publishers , 2024.
Material Type
Book
Call Number
EF 850.5 NIM 2024
Availability
1 copy, 1 available
Every parent wants the same thing: for their child to enjoy a long and fulfilling life. But what happens when things don't go according to plan? What happens when parents have to become advocates for their child's healthcare needs? Who decides what is in a child's 'best interests'?; Stephanie Nimmo…
Author
Nimmo, Stephanie
Place of Publication
London, UK
Publisher
Jessica Kingsley Publishers
Publication Date
2024
Physical Description
Softcover; 272 pages
Subject
Coping with Chronic Illness-Children
Caregivers-Coping
Caregivers for a Dying Loved One
Abstract
Every parent wants the same thing: for their child to enjoy a long and fulfilling life. But what happens when things don't go according to plan? What happens when parents have to become advocates for their child's healthcare needs? Who decides what is in a child's 'best interests'?
Stephanie Nimmo faced these questions first-hand when her daughter, Daisy, was diagnosed with a life-limiting condition as a baby. Seen through the lens of Stephanie's own experiences, this sensitive book delves into the complex world of medical ethics and pediatric palliative care. From recognizing tipping points to the importance of building relationships with palliative care teams well before crisis, this book explores how medical professionals can better support families throughout their child's care.
Interviews with clinicians and snapshots from the lives of patients' families provide insight into the realities of life on both sides of the hospital bed. Compassionate explanations of the conflicting pressures in the hospital system foster understanding and help medical professionals and families work together.
ISBN
5727227010272
Language
English
Material Type
Book
Call Number
EF 850.5 NIM 2024

Copies

BC Children's and Women's Family Library Available
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Pain Squad: Mobile App (iOS)

https://bcch.andornot.com/en/permalink/catalog124821
The Hospital for Sick Children. Toronto, ON: , 2020.
URL
https://apps.apple.com/us/app/pain-squad/id929781246
Material Type
Online
The Pain Squad electronic pain diary is a tool created for kids with cancer to fight back against their pain. Developed by researchers at The Hospital for Sick Children (SickKids), this is an evidence-based pain diary that plays like a game and is recommended for children 8 to 18 years of age with …
  1 url  
URL
https://apps.apple.com/us/app/pain-squad/id929781246
Corporate Author
The Hospital for Sick Children
Place of Publication
Toronto, ON
Publication Date
2020
Physical Description
Mobile App
Subject
Children with Cancer-Coping
Coping with Pain
Abstract
The Pain Squad electronic pain diary is a tool created for kids with cancer to fight back against their pain. Developed by researchers at The Hospital for Sick Children (SickKids), this is an evidence-based pain diary that plays like a game and is recommended for children 8 to 18 years of age with cancer.
Language
English
Material Type
Online
URLs
Show Less

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