Author

Schrooten, A.F.

Markovitz, B.P.

Place of Publication

Switzerland

Publisher

Springer International Publishing AG

Publication Date

2021

Physical Description

251 pages

Subject

Coping with Chronic Illness-Children

Abstract

This book tells true and poignant stories from both sides of the physician-patient/parent relationship and provides a unique glimpse into how parents and physicians think, feel, and interact. The stories are grouped under four sections: Hope, Compassion, Communication, and Trust.

Each section includes stories contributed by parents from all across the United States and by pediatricians practicing at many of the best children's hospitals throughout the country. The parents tell of interactions with physicians that had a significant impact on them and their child and offer context and insight that promote empathy and reflection. The physicians tell of interactions with patients and families that served as learning moments in their career and promote the humanization of medicine and show there is more to a physician beyond their scientific knowledge and white coat.

The stories are edited by Barry P. Markovitz - a pediatrician specializing in critical care medicine who has been in practice for more than 20 years and by Ann F. Schrooten - the parent of a child born with a chronic complex condition who has more than 15 years of experience interacting with pediatric subspecialists and other healthcare professionals who cared for her son. The editors have written commentaries to the stories to provide an independent perspective on the events and messages conveyed and to encourage reflection, inquiry, and discussion.

In addition to being a valuable resource for pediatricians, pediatric subspecialists, nurses and other healthcare professionals, the book will also appeal to families of children living with complex medical conditions because it shares physician encounters and behaviors many have experienced in the care of their own children. By giving a voice to both parents and physicians, the goal is to create a bridge to better understanding that can improve communication, minimize conflicts, and foster trust and compassion among physicians, patients, and families.

ISBN

9783030680206

Language

English

Material Type

Book

Call Number

EF 850.5 SCH 2021b

Copies

Author

Bernhard, Toni

Place of Publication

Somerville, MA

Publisher

Wisdom Publications

Publication Date

2015

Physical Description

337 pages

Subject

Coping with Chronic Illness

Chronic Illness

Chronic Pain

Abstract

Comfort, understanding, and advice for those who are suffering?and those who care for them.

Chronic illness creates many challenges, from career crises and relationship issues to struggles with self-blame, personal identity, and isolation. Beloved author Toni Bernhard addresses these challenges and many more, using practical examples to illustrate how mindfulness, equanimity, and compassion can help readers make peace with a life turned upside down.

In her characteristic conversational style, Bernhard shows how to cope and make the most of life despite the challenges of chronic illness. Benefit from:

? Mindfulness exercises to mitigate physical and emotional pain

? Concrete advice for negotiating the everyday hurdles of medical appointments, household chores, and social obligations

? Tools for navigating the strains illness can place on relationships

Several chapters are directed toward family and friends of the chronically ill, helping them to understand what their loved one is going through and how they can help.

Humorous and empathetic, Bernhard shares her own struggles and setbacks with unflinching honesty, offering invaluable support in the search to find peace and well-being.

ISBN

9781614292487

Language

English

Material Type

Book

Call Number

EF 850 BER 2015

Copies

Author

Lynne, Kira

Place of Publication

[Canada]

Publisher

Moppet Press

Publication Date

2016

Physical Description

Softcover ; xxv, 361 p.

Subject

Chronic Pain

Relationships

Dating

Abstract

"Having been told by a doctor 20 years ago that I'd never be able to have a relationship due to my chronic pain, and having proved her wrong, I've set out to write a book for those who are living with chronic pain and illness and who have given up on or are struggling with relationships.

"It is possible to live well with chronic pain and illness, and it is possible to form lasting, loving relationships. In my book I provide you with a step-by-step guide to getting the love you want, regardless of your physical condition"--from publisher.

ISBN

9780994993502

Language

English

Material Type

Book

Call Number

FM 830 LYN 2016

Copies

Author

Sileo, Frank J.

Potter, Carol S.

Place of Publication

Washington, DC

Publisher

American Psychological Association

Publication Date

2021

Physical Description

Softcover; 419 pages

Subject

Coping with Chronic Illness-Children

Coping with Chronic Illness in the Family

Coping with Chronic Illness-Young Adult

Abstract

Written by leading mental health professionals, this warm and accessible parenting book for children with chronic illnesses offers clear, practical guidance for all aspects of the journey. It is recommended by professionals at the American Diabetes Association, Invisible Disabilities Association, the Crohn's Colitis Foundation, and other expert national and regional sources.

For all its joys, parenting is a complex job, and when your child has a chronic illness, the stress can feel overwhelming. When your child is diagnosed, you begin a parenting journey filled with strong emotions, difficult choices, confusing words, and interactions with numerous professionals and specialists.

You're focused on ensuring your child gets the best possible treatments for their symptoms, so it's easy to overlook or dismiss the impact the illness can have on your relationships and emotions. This book places your psychological well-being front and center, so you can be the best caregiver possible for your child.

Along with suggestions for making laughter and mindfulness part of your daily self-care routine, it offers guidance for choosing the right therapist for your family, should extra support be needed. Every family's journey with chronic illness is unique, but you don't have to go it alone.

ISBN

9781433833816

Language

English

Material Type

Book

Call Number

EF 850.5 SIL 2021

Copies

Author

McClintock Greenberg, Tamara

Place of Publication

Springville, UT

Publisher

Plain Sight Publishing

Publication Date

2012

Physical Description

Softcover ; xiv, 157 p.

Subject

Chronic Illness

Abstract

"Dr. Tamara Greenberg offers hope and practical advice to those impacted by a loved one's illness with this new book., "When Someone You Love Has a Chronic Illness: Hope and Help for Those Providing Support. Inside, Dr. Greenberg provides easy-to-understand explanations for complicated feelings and behaviors and offers pragmatic strategies for coping effectively and serving your loved one in this time of need.

"Learn how to talk to someone who is ill, what not to do, how to address your loved ones who aren't taking care of themselves, how to help someone in physical pain, and more.

"Above all, Dr. Greenberg delivers important tools for managing the normal anxiety we all feel when someone we love is ill." --From back cover

ISBN

9781599559391

Language

English

Material Type

Book

Call Number

EF 800 GRE 2012

Copies

Author

Carter, Bryan D.

Kronenberger, William G.

Scott, Eric L.

Brady, Christine E.

Place of Publication

Oxford, UK

Publisher

Oxford University Press

Publication Date

2020

Physical Description

Softcover; 173 pages

Series

Programs that work

Subject

Coping with Chronic Illness Young Adult

Coping with Chronic Illness

Coping with Chronic Illness-Children

Abstract

Youth with chronic illnesses face challenges that may prove disruptive to physical, psychological, and social development. Based on extensive research and clinical expertise, Children's Health and Illness Recovery Program (CHIRP) is an interdisciplinary cognitive behavioral and family systems-based treatment program designed to maximize the independent functioning of teens with chronic illness.

This Clinician Guide offers a detailed outline for implementing this manualized intervention and provides clear guidance as to the philosophy, pragmatics, and art of working with challenging pediatric conditions. Designed to accompany the CHIRP Teen and Family Workbook, this book addresses specific assessment measures and tools needed to establish a collaborative treatment team approach that incorporates the skills of the CHIRP clinician, primary and specialty care providers, and roles of other healthcare (physical therapists, occupational therapists, etc.) and educational professionals critical to the successful management and treatment of these youth.

ISBN

9780190070267

Language

English

Material Type

Book

Call Number

EF 850.6 CAR 2020b

Copies

Author

Mills, Joyce C.

Chesworth, Michael (Illustrator)

Place of Publication

New York, NY

Publisher

Magination Press

Publication Date

1992

Physical Description

Softcover: ill., 28 p.

Subject

Self-Concept (includes self-esteem)

Amputation. Limb Prosthesis

Children's Health-Accidents and Injuries

Picture Books

Abstract

In this healing story, a little tree loses some of her branches in a storm. She experiences emotions of fear, self-blame, and worry so common to children facing serious medical problems. The little tree in the forest survives the storm and learns that although many branches and leaves were lost, she still has deep roots, a strong trunk and a beautiful heart. Children will discover that they too have strengths and abilities for living happy lives. A relaxation exercise is included.

ISBN

0945354517

Language

English

Material Type

Book

Call Number

JUNIOR CF 200 MIL 1992

Copies

Author

Connell, Wayne

Connell, Sherri

Place of Publication

Parker, Colorado

Publisher

Invisible Disabilities Association

Publication Date

2014

Physical Description

Softcover ; 85 p.

Subject

Chronic Illness

Chronic Pain

Abstract

"Do your loved ones have a hard time understanding your chronic illness or pain, because to them you LOOK fine? But You LOOK Good is a book that gives those living with chronic illness and pain a voice about how they feel, what they need and how others can be an encouragement to them. It is a convenient, informative way to educate loved ones about what people living with ongoing illness and pain struggle with, fight for and need from their friends and family. It is easy to read, gives practical ideas on how loved ones can be supportive and is not too long for readers to lose interest!"--from publisher.

ISBN

9780692258453

Language

English

Material Type

Book

Call Number

FM 830 CON 2014

Copies

Author

Nimmo, Stephanie

Place of Publication

London, UK

Publisher

Jessica Kingsley Publishers

Publication Date

2024

Physical Description

Softcover; 272 pages

Subject

Coping with Chronic Illness-Children

Caregivers-Coping

Caregivers for a Dying Loved One

Abstract

Every parent wants the same thing: for their child to enjoy a long and fulfilling life. But what happens when things don't go according to plan? What happens when parents have to become advocates for their child's healthcare needs? Who decides what is in a child's 'best interests'?

Stephanie Nimmo faced these questions first-hand when her daughter, Daisy, was diagnosed with a life-limiting condition as a baby. Seen through the lens of Stephanie's own experiences, this sensitive book delves into the complex world of medical ethics and pediatric palliative care. From recognizing tipping points to the importance of building relationships with palliative care teams well before crisis, this book explores how medical professionals can better support families throughout their child's care.

Interviews with clinicians and snapshots from the lives of patients' families provide insight into the realities of life on both sides of the hospital bed. Compassionate explanations of the conflicting pressures in the hospital system foster understanding and help medical professionals and families work together.

ISBN

5727227010272

Language

English

Material Type

Book

Call Number

EF 850.5 NIM 2024

Copies

Author

Mackenzie, Angela

Publisher

Global Publishing Group

Publication Date

2014

Subject

Pain Control

Abstract

This book explains how you can make your child's medical procedures less scary and painful. You will learn:

- Secrets to building your confidence in a medical setting,

- Essential steps to help prepare your child for medical tests,

- Practical skills that will transform your child's experience of medical treatment,

- Benefits of collaborating with the health professionals,

- Real gems from the stories of parents who have been there,

- How to avoid the most common mistakes that parents make, and

- Where to get further help if you need it.

ISBN

1922118354

Language

English

Material Type

Book

Call Number

FM 800 MAC 2014

Copies

Author

Fernando, Peter

Place of Publication

Boulder

Publisher

Shambhala Publications, Inc.

Publication Date

2016

Physical Description

Softcover ; ix, 222 p.

Subject

Mindfulness

Mind/Body

Chronic Illness

Chronic Pain

Emotional Health

Self-Concept (includes self-esteem)

Abstract

"'Let your illness be your spiritual teacher!' Make a statement like that to someone who's struggled for years with, say, rheumatoid arthritis, and be prepared for an eye roll (at best). To Peter Fernando's credit, he makes that statement, and no such impulse arises. We believe him because he's been there himself and because he backs up the statements with his own real experiences and with real wisdom from the Buddhist teachings. Fernando starts by defusing the pernicious belief that anyone is somehow responsible for their illness: you're not "wrong" for being sick. Then, having gotten past self-blame, one can begin to learn self-kindness. From there, one moves to mindfulness practices and cultivating body awareness?even if body awareness is distasteful when the body isn't behaving the way you like. Further topics include getting intimate with dark emotions (fear, despair, the scary future, frustration, grief, etc.), learning equanimity (rejoicing in the good fortune of those who don't share your suffering), cultivating healthy relationships in the midst of everything, and practical advice for living with pain. Each chapter comes with one or more practices or guided meditations for putting the teachings into practice"--from publisher.

ISBN

9781611802634

Language

English

Material Type

Book

Call Number

EF 850 FER 2016

Copies

Author

Yasuda, Patrice M.

Ievers-Landis, Carolyn E.

Rose, Chad A.

Place of Publication

Glen Head, NY

Publisher

Human Growth Foundation

Publication Date

2016

Physical Description

44 pages

Subject

Bullying

Abstract

Written for children and parents, this anti-bullying program clarifies what is and is not bullying, and helps you develop an anti-bullying plan.

Includes a list of resources for children and teens that may experience bullying.

Language

English

Material Type

Book

Call Number

BE 965 YAS 2016

Copies

Author

Grollman, Earl A.

Edition

Rev. ed. of: Explaining death to children. 1967.

Place of Publication

[Boston, MA]

Publisher

Beacon Press

Publication Date

1995

Physical Description

xii; 238 p.

Subject

Grief. Bereavement

Coping with Death

Children's Emotions

Emotional Health

Abstract

This is a comprehensive resource for parents, teachers, counselors, health-care professionals, clergy and others concerned about the children in their lives. Suggests ways of explaining death to children and teens from a number of perspectives eg. philosophical, cultural and religious.

ISBN

080702306X

Language

English

Material Type

Book

Call Number

GV 200 GRO 1995

Copies

Author

Coaklly, Rachael

Publisher

Yale University Press

Publication Date

2016

Physical Description

Softcover ; xxiv, 325 p.

Subject

Children's Health - Pain Control

Chronic Pain

Pain

Abstract

"Parents of a child in pain want nothing more than to offer immediate comfort. But a child with chronic or recurring pain requires much more. His or her parents need skills and strategies not only for increasing comfort but also for helping their child deal with an array of pain-related challenges, such as school disruption, sleep disturbance, and difficulties with peers. This essential guide, written by an expert in pediatric pain management, is the practical, accessible, and comprehensive resource that families and caregivers have been awaiting. It offers in-the-moment strategies for managing a child?s pain along with expert advice for fostering long-term comfort.

"Dr. Rachael Coakley, a clinical pediatric psychologist who works exclusively with families of children with chronic or recurrent pain, provides a set of research-proven strategies?some surprisingly counter-intuitive?to achieve positive results quickly and lastingly. Whether the pain is disease-related, the result of an injury or surgery, or caused by another condition or syndrome, this book offers what every parent of a child in pain most needs: effective methods for reversing the cycle of chronic pain"--from the Publisher.

ISBN

9780300204650

Language

English

Material Type

Book

Call Number

GK 285 COA 2016

Copies

Author

Kuttner, Leora

Carlson, Torie

Place of Publication

[Vancouver], BC

Publisher

BC Children's Hospital

Publication Date

2022

Physical Description

Softcover : 29 pages

Subject

Pain Control

Mind/Body

Abstract

This book features reflections and case studies by clinicians trained to use a range of mind-body techniques that have been shown, through research, to relieve pain and anxiety and to empower children and their parents to cope with distressing invasive procedures and medical interventions.

Language

English

Material Type

Book

Call Number

FM 820 KUT 2022

Copies

Author

Burch, Vidyamala

Place of Publication

Boulder, CO

Publisher

Sounds True

Publication Date

2010

Subject

Chronic Pain

Mindfulness

Abstract

After two serious spinal injuries, Vidyamala Burch found herself facing the loneliness of disability and chronic pain with few skills or resources to turn to. But instead of giving up, she set out on a mission to embrace her physical challenges with compassion, acceptance, and peace.

Living Well with Pain and Illness shares the fruits of her courageous life?s work, teaching us how the practice of mindfulness can help us thrive in the face of health challenges of any kind. Drawing on the wisdom of a dozen years of teaching meditation and a lifetime of study of the benefits of mindful living, Vidyamala encourages readers with insights and instruction in:

The five-step model of mindfulness and how to use it to foster healing

The Breathworks approach to meditation, and how to apply it to health concerns such as migraines, arthritis, and chronic fatigue

Step-by-step techniques, illustrations, and case studies demonstrating how to effectively bring mindfulness into daily life

Chronic pain has been called the modern world?s silent epidemic. Billions are spent every year in an attempt to cope, yet the best solution available may be absolutely free: mindful living. In Living Well with Pain and Illness, Vidyamala Burch presents a work that is at once an inspirational memoir and practical guidebook for using mindfulness to reframe your relationship with physical and emotional suffering.

ISBN

9781591797470

Language

English

Material Type

Book

Call Number

FM 830 BUR 2010

Copies

Author

Cory, Jill

McAndless-Davis

Place of Publication

New York, NY

Publisher

New American Library

Publication Date

2016

Physical Description

173 pages

Subject

Abusive Relationships

Battering. Spouse Abuse. Partner Abuse/Domestic Violence

Battering. Spouse Abuse. Partner Abuse-Coping

Abstract

What do you do when the one you love hurts you? If you are wondering about whether you are experiencing abuse from a partner or unsure if your damaged relationship can be fixed, finding answers can seem daunting--or even impossible. This book can help answer your questions, using exercises and resources to help you make sense of your relationship, addressing all forms of abuse including verbal, emotional, financial, sexual and physical.

ISBN

9780425274286

Language

English

Material Type

Book

Call Number

CE 100 COR 2016

Copies

Author

Renfrew, Ruth

deLoache, Shawn

Editor

Medikidz USA Inc.

Place of Publication

New York, NY

Publisher

Jumo

Publication Date

2018

Physical Description

Softcover; 16 p.

Subject

Chronic Illness

Abstract

Comic book featuring Medikidz, superhero experts on health and illness. Explains how chronic illness can affect individuals and their families.

Language

English

Material Type

Book

Call Number

JUNIOR EF 800 REN 2018

Copies

Author

Zoffness, Rachel

Krane, Elliot J.

Publisher

New Harbinger Publications

Publication Date

2019

Physical Description

155 pages

Subject

Coping with Pain

Chronic Pain

Coping with Chronic Illness Young Adult

Abstract

This workbook blends cognitive behavioral therapy (CBT) and mindfulness-based stress reduction (MBSR). You will learn how pain affects both your mind and body, how negative emotions can make pain worse, and strategies to help you turn the volume down on your pain, so you can go back to enjoying activities that you love. You'll also learn mindfulness and relaxation exercises, including belly breathing and body scan to help manage pain in the moment. The exercises and strategies in this book are rooted in research, fun to learn, and easy to practice. For ages 12+.

ISBN

9781684033522

Language

English

Material Type

Book

Call Number

YOUTH FM 850 ZOF 2019

Copies

Author

Minnick, Molly A.

Delp, Kathleen J.

Miotti, Mary C.

Edition

5th ed

Publisher

Pineapple Press

Publication Date

2012

Physical Description

112 pages

Subject

Genetic Counseling

Abortion-Coping

Grief. Bereavement

Pregnancy Complications

Pregnancy Loss. Miscarriage

Abstract

For parents who have received a fetal diagnosis during pregnancy, and are deciding (or have decided) whether to interrupt the pregnancy. Supports grieving parents, and provides information on:

- The decision-making process,

- Taking control,

- The hospital experience,

- Couples healing together and healing apart,

- The days and weeks afterward, and

- The months and years that follow.

ISBN

1878526291

Language

English

Material Type

Book

Call Number

GH 330 MIN 2012

Copies

Author

Lister, Elena

Schwartzman, Michael

Place of Publication

New York, NY

Publisher

Penguin Random house

Publication Date

2022

Physical Description

Hardcover; 275 pages

Subject

Death and Dying

Grief. Bereavement

Suicide

Death and dying-Children

Abstract

Just as death is inevitable, talking about death is an inevitable part of parenting. Drs. Lister and Schwartzman offer us the way to have conversations that are as much about life as they are about death; conversations that anyone who parents, teaches, or counsels children can have. Giving Hope is a must-have resource that expands our understanding of how to prepare for, initiate, and facilitate these personal and profound conversations. The approach is honest, practical, and compassionate, and will benefit a grieving child now and in the future. Giving Hope gives us tools to make our children's experiences positive and life-affirming.

ISBN

9780593419151

Language

English

Material Type

Book

Call Number

GV 100 LIS 2022

Copies

Author

Kaufman, Miriam

Silverberg, Cory

Odette, Fran

Place of Publication

San Francisco, CA

Publisher

Cleis Press

Publication Date

2007

Physical Description

Softcover, 345 p.

Subject

Developmental Disabilities

Sexuality

Abstract

The Ultimate Guide to Sex and Disability is the first complete sex guide for people who live with disabilities, pain, illness, or chronic conditions. Useful for absolutely everyone, regardless of age, gender, or sexual orientation, the book addresses a wide range of disabilities - from chronic fatigue, back pain, and asthma to spinal cord injury, hearing and visual impairment, multiple sclerosis, and more.

Notes

Recommended by CCDP

ISBN

9781573443043

Language

English

Material Type

Book

Call Number

GA 110 KAU 2007

Copies

Author

Slakov, June

Place of Publication

[Vancouver, BC?]

Publisher

BC Cancer Agency

Publication Date

2016

Physical Description

Spiral bound, 52 p., ill.

Subject

Children with Cancer-Coping

Children with Cancer-Coping for the Family

Cancer

Abstract

This book is for the parents, grandparents, aunts and uncles, teachers, or other support persons, who play a key role in helping children and teens who have a family member living with cancer.

ISBN

9781896624280

Language

English

Material Type

Book

Call Number

FE 555 SLA 2016

Copies

Author

Carter, Bryan D.

Kronenberger, William G.

Scott, Eric L.

Place of Publication

Oxford, UK

Publisher

Oxford University Press

Publication Date

2020

Physical Description

Softcover; 113 pages

Series

Programs that work

Subject

Coping with Chronic Illness Young Adult

Coping with Chronic Illness

Coping with Chronic Illness-Children

Abstract

Children and adolescents with chronic illnesses, particularly those accompanied by debilitating, painful, and/or fatiguing symptoms, face challenges that may prove disruptive to physical, psychological, and social development. Based on extensive research and clinical expertise, Children's Health and Illness Recovery Program (CHIRP) is an effective treatment program designed to build and maintain independence in young people with chronic illness.

This Teen and Family Workbook provides proven treatment activities designed to combat the additional stress faced by youth coping with long-term health problems. These tasks target key areas for improvement in physical functioning, school functioning, and personal functioning and support the creation of new tools for managing the impact of illness, such as stress management, coping and relaxation techniques, and communication skills. In-session and take-home activities outlined in this workbook are meant to accompany the companion CHIRP Clinician Guide. With the use of this workbook and supported by a network of clinicians, healthcare specialists, and school professionals, adolescents and their families can return to a better quality of life.

ISBN

9780190070472

Language

English

Material Type

Book

Call Number

EF 850.6 CAR 2020

Copies

Author

Segal, Julia

Place of Publication

Philadelphia, PA

Publisher

Jessica Kingsley Publishers

Publication Date

2017

Physical Description

Softcover ; 312 p.

Subject

Chronic Illness

Disabilities

Relationships

Abstract

This impressively honest book explores the effects a challenging disability or illness can have on the mind and personal relationships, and how friends, family and professionals can help.

Illness or disability can isolate people by creating vast differences in their experiences where previously there were none. Friends and family can find themselves saying the wrong thing or awkwardly avoiding topics as a result. This book takes a candid look at how discomfort caused by an illness can strain a relationship between partners, families and professionals, as well as how understanding feelings of guilt or shame can transform a situation or relationship.

The insights and advice offered in this book can help children and adolescents overcome anxiousness caused by a parent's condition, improve communication between partners and family members, and increase professionals' awareness of how a client feels about their situation.

ISBN

9781785923326

Language

English

Material Type

Book

Call Number

EF 800 SEG 2017

Copies

Author

Toner, Jaqueline B.

McDonnell, Janet [ill.]

Place of Publication

Washington, DC

Publisher

Magination Press

Publication Date

2021

Physical Description

Softcover; 80 pages

Series

What-to-do guides for kids

Subject

Anxiety. Anxiety Disorders

Abstract

This book tackles children's feelings of anxiety around current events and what is portrayed in the news. Scary news is an inevitable part of life. This book can support and guide efforts to help scary news seem a bit more manageable for young people.

Whether from television news reports, the car radio, digital media, or adult discussions, children are often bombarded with information about the world around them. When the events being described include violence, extreme weather events, a disease outbreak, or discussions of more dispersed threats such as climate change, children may become frightened and overwhelmed. Parents and caregivers can be prepared to help them understand and process the messages around them by using this book.

This book provides a way to help children put scary events into perspective. And, if children start to worry or become anxious about things they've heard, there are ideas to help them calm down and cope. This book also helps children identify reporters' efforts to add excitement to the story which may also make threats seem more imminent, universal, and extreme.

Read and complete the activities with your child to help them to understand the news in context - who, what, where, when, how - as a means of introducing a sense of perspective.

ISBN

9781433836978

Language

English

Material Type

Book

Call Number

ELEM CD 420 TON 2021

Copies

Author

Tejpar, Serena

Lalani, Anoosha [ill.]

Tejpar, Iman [ill.]

Place of Publication

Ann Arbor, MI

Publisher

Loving Healing Press

Publication Date

2022

Physical Description

Softcover; no pagination

Subject

Children's Hospitalization

Trauma Survivors

Abstract

Research has shown that building resilience in the face of adversity or challenges helps children and young people develop effective coping strategies and improve long-term outcomes across a spectrum of illnesses. You Are So Much More reminds children who have gone through or are going through an illness or injury, that they are indeed so much more. Trauma survivor and medical student Serena Tejpar shares a story of inspiration, reflection, and encouragement that can be read over and over again.

Includes a final word on common concerns and questions children may have while in hospital.

Notes

For ages 4 - 8

ISBN

9781615996322

Language

English

Material Type

Book

Call Number

JUNIOR GK 210 TEJ 2022

Copies

Author

Olsher, Sara

Rogers, Jenni

Place of Publication

Happy Valley, OR

Publisher

Mighty and Bright

Publication Date

2023

Physical Description

Softcover; 39 pages

Subject

Coping with Chronic Illness in the Family

Abstract

Join Mia and Stewart as they learn how bodies work, why some bodies don't always feel good, and what to do when someone they love has an illness that won't go away.

ISBN

9798986776538

Language

English

Material Type

Book

Call Number

JUNIOR EF 860 OLS 2023

Copies

Author

Bernhard, Toni

Place of Publication

Somerville, MA

Publisher

Wisdom Publications

Publication Date

2018

Physical Description

Softcover ; xvii, 191 p.

Subject

Chronic Illness

Emotional Health

Mental Health

Abstract

"This life-affirming, instructive and thoroughly inspiring book is a must-read for anyone who is, or who might one day be, sick. And it can also be the perfect gift of guidance, encouragement, and uplifting inspiration to family, friends, and loved ones struggling with the many terrifying or disheartening life changes that come so close on the heels of a diagnosis of a chronic condition or even life-threatening illness." --Publisher

Notes

Recommended by CCDP

ISBN

9780861716265

Language

English

Material Type

Book

Call Number

EF 800 BER 2010

Copies

Author

Moseley, GL

Butler, DS

Place of Publication

Adelaide, Australia

Publisher

Noigroup Publications

Publication Date

2015

Physical Description

Softcover ; 49 p., ill., 8 pads of coloured stickies

Subject

Pain

Pain Control

Chronic Pain

Abstract

"The Explain Pain Handbook: Protectometer is a key element in the Explain Pain toolkit. An easily accessible book for people experiencing pain, it introduces the Protectometer, a ground breaking pain treatment tool.

"The Explain Pain Handbook: Protectometer helps you understand your personal pain formula, identify your DIMs (Danger in Me) and SIMs (Safety in Me) and provides six clear strategies for recovery from pain.

"This is your personal workbook. The Explain Pain Handbook: Protectometer is a stand-alone resource but if you want to delve deeper, Explain Pain is the ideal companion with clear links provided throughout"--from the Publisher

Notes

Recommended by CCDP

ISBN

9780975091098

Language

English

Material Type

Book

Call Number

FM 800 MOS 2015

Copies

Author

Christie, Phil

Duncan, Margaret

Fidler, Ruth

Healy, Zara

Place of Publication

London, UK

Publisher

Jessica Kingsley Publishers

Publication Date

2012

Physical Description

Softcover : 206 pages

Series

JKP Essentials Series

Subject

Autism Spectrum Disorder (includes Asperger Syndrome)

Abstract

Pathological Demand Avoidance Syndrome (PDA) is a developmental disorder that is being increasingly recognized as part of the autism spectrum. The main characteristic is a continued resistance to the ordinary demands of life through strategies of social manipulation, which originates from an anxiety-driven need to be in control.

This straightforward guide is written collaboratively by professionals and parents to give a complete overview of PDA. Starting with an exploration into the syndrome, it goes on to answer the immediate questions triggered when a child is first diagnosed, and uses case examples throughout to illustrate the impact of the condition on different areas of the child's life. Early intervention options and workable strategies for managing PDA positively will make day-to-day life easier for the child, their family and peers. New problems faced in the teenage years and how to assist a successful transition from adolescence to adulthood are also tackled. The book concludes with a valuable resources list.

Full of helpful guidance and support, this user-friendly introductory handbook is essential reading for families, carers and anyone who knows a child with PDA

ISBN

9781849050746

Language

English

Material Type

Book

Call Number

FM 272 CHR 2012

Copies

Author

Butler, David S.

Moseley, G. Lorimer

Sunyata (Illustrator)

Place of Publication

Adelaide, Australia

Publisher

Noigroup Publications

Publication Date

2003

Physical Description

Softcover; 129 p.

Subject

Pain

Pain Control

Coping with Pain

Chronic Pain

Abstract

In everyday language accompanied by illustrations, this book discusses how pain responses are produced by the brain: how responses to injury from the autonomic motor and immune systems in your body contribute to pain, and why pain can persist after tissues have had plenty of time to heal. It aims to give clinicians and people in pain tools to learn about the processes involved during pain, and a scientific route to recovery.

Notes

Recommended by CCDP

ISBN

0-9750910-0

Language

English

Material Type

Book

Call Number

FM 800 BUT 2003

Author

Haines, Steve

Standing, Sophie (ill.)

Publisher

Singing Dragon

Publication Date

2015

Physical Description

Graphic novel; [np]

Subject

Chronic Pain

Pain

Pain Control

Coping with Pain

Abstract

This graphic novel answers your questions about pain:

How can I change my pain experience?

What is pain?

How do nerves work?

Answering these questions and more, this research-based book reveals just how strange pain is and how understanding it is often the key to relieving its effects. With gentle humor, it explains pain in an easy-to-understand way and explores our remarkable ability to retrain the brain.

ISBN

9781848192645

Language

English

Material Type

Book

Call Number

FM 830 HAI 2015

Copies

Author

McGonigal, Kelly

Place of Publication

Oakland, CA

Publisher

New Harbinger Publications, Inc.

Publication Date

2009

Physical Description

Softcover: 176 p.

Subject

Pain Control-Complementary Therapies

Pain

Yoga

Abstract

Written by a yoga instructor and former chronic pain sufferer, this resource contains gentle postures and practical strategies for ending pain. Also includes: deep relaxation practices drawn from yogic tradition and psychological techniques for helping the reader dissolve pain.

Table of Contents:

Chapter 1: Understanding your pain

Chapter 2: Yoga: Reuniting body, mind, and spirit

Chapter 3: Breath

Chapter 4: Befriending the body

Chapter 5: Moving the body

Chapter 6: Relaxation

Chapter 7: Meditation

Chapter 8: Your personal yoga program

ISBN

9781572246898

Language

English

Material Type

Book

Call Number

FM 820 MCG 2009

Copies

Author

Finando, Donna

Place of Publication

Rochester, VT

Publisher

Healing Arts Press

Publication Date

2005

Physical Description

Softcover ; 200 p., ill.

Subject

Muscles. Muscle Diseases

Pain

Pain Control

Abstract

"The vast majority of physical injuries incurred by active people begin with muscular injuries that are not addressed by the conventional medical approach to orthopedic care. Injuries of this type are generally too minor to warrant splinting, casting, or medication and often do not prevent participation in physical activities. They do, however, produce noticeable discomfort and, over time, frequently lead to more severe injuries.

"In Trigger Point Self-Care Manual Donna Finando presents methods for the healing and prevention of musculature injuries. She identifies the causes of and remedies for areas of muscular tightness and restriction and details many self-care techniques, including precise self-massage, stretching, and the use of wet heat and/or ice. In the fully illustrated reference section, organized by body part, she identifies the pain associated with trigger points in each muscle of the body and provides instructions for palpating, treating, and stretching the muscle in order to release it"--from the back cover.

ISBN

9781594770807

Language

English

Material Type

Book

Call Number

FM 820 FIN 2005

Copies

Author

Miles, Brenda

Wong, Nicole

Place of Publication

Washington, DC

Publisher

Magination Press

Publication Date

2006

Physical Description

Hardcover; unpaged : col. ill.

Subject

Pain

Picture Books

Abstract

This illustrated book is a tool for introducing children to the idea of using their imaginations to cope with pain.

Notes

Ages 4-8

ISBN

1591473853

Language

English

Material Type

Book

Call Number

JUNIOR FM 800 MIL 2006

Copies

Author

Rice Doran, Patricia

Amabile, Christine L.

Tumminaro, Tiffany

Korbmacher, Heather

Pohlman, Diana

Place of Publication

Philadelphia, PA

Publisher

Jessica Kingsley Publishers

Publication Date

2019

Physical Description

Softcover ; 160 p.

Subject

Neuropsychology

PANDAS

PANS

Obsessive-Compulsive Disorders

Streptococcus

Encephalitis

Abstract

Having a child who suddenly develops PANDAS (Pediatric Autoimmune Neuropsychiatric Disorders Associated with Strep), PANS (Pediatric Acute-onset Neuropsychiatric Syndrome) or related conditions such as encephalitis can be a daunting challenge for parents. This clear guide explains the symptoms and diagnosis of PANDAS and PANS, with treatment options and recommended strategies for supporting children at home, at school, and in community settings. The book covers key symptoms including OCD, tics, anxiety, sensory issues and personality changes, with practical advice on medical management, nutrition, lifestyle, and addressing social and behavioural needs. Each chapter also includes handy sidebars with key information to remember, and action steps for overcoming challenges, managing relapse, family self-care and providing children with the best possible support.

ISBN

9781785927683

Language

English

Material Type

Book

Call Number

FM 315 RIC 2019

Copies

Author

Charon, Rita

Place of Publication

Oxford, UK

Publisher

Oxford University Press

Publication Date

2006

Physical Description

Softcover, 265 pages.

Subject

Narrative medicine.

Patient - Health Care Practitioner Relations. Doctor - Patient Relations.

Abstract

In this important and long-awaited book Rita Charon provides a comprehensive and systematic introduction to the conceptual principles underlying narrative medicine, as well as a practical guide for implementing narrative methods in health care. A true milestone in the field, it will interest general readers, and experts in medicine and humanities, and literary theory.

ISBN

9780195340228

Language

English

Material Type

Book

Call Number

IA 400 CHA 2006

Copies

Author

Thorn, Beverly E.

Edition

2nd Ed.

Place of Publication

New York

Publisher

The Guilford Press

Physical Description

Softcover ; xx, 353 p.

Subject

Cognitive Therapy

Chronic Pain

Abstract

This book contains 10 treatment modules that draw on proven cognitive-behavioral therapy (CBT) strategies. It includes 58 reproducible client handouts and assessment tools.

ISBN

9781462531691

Language

English

Material Type

Book

Call Number

FM 880 THO 2017

Copies

Author

Schnackenberg, Nicole

Monzani, Benedetta

Jassi, Amita

Place of Publication

London, Eng.

Publisher

Jessica Kingsley Publishers

Publication Date

2020

Physical Description

Softcover; 237 pages

Subject

Obsessive-Compulsive Disorders

Abstract

The first book offering support for parents and carers of children and young people with Body Dysmorphic Disorder (BDD), this guidebook explains the condition as well as the impact that it may have in education settings, family life and socialisation.

The guide begins by explaining how and why BDD emerges, before moving onto an exploration of how the mental health condition presents itself emotionally, psychologically, physically and behaviourally. It then offers practical advice and guidance for parents and carers on talking to their child about BDD, seeking professional treatment, considering medication, managing social media use, working with schools to build a recovery team and more.

The Parents' Guide to Body Dysmorphic Disorder is an essential guidebook for parents of children and young people with BDD.

ISBN

9781787751132

Language

English

Material Type

Book

Call Number

CD 800 SCH 2020

Copies

Author

Dyrbjerg, Pernille

Vedel, Maria

Place of Publication

London, UK

Publisher

Jessica Kingsley Publishers

Publication Date

2007

Physical Description

Hardcover: 125 p.: col. ill.

Subject

Autism Spectrum Disorder (includes Asperger Syndrome)

Autism

Abstract

This illustrated guide discusses educational support aids and strategies for children with autism. It builds on the need for visual support and visual structure, covering such areas as hygiene, dressing routines, preparation for school and meatimes, and establishing daily and weekly schedules.

ISBN

9781843104575

Language

English

Material Type

Book

Call Number

FM 272 DYR 2007

Copies

Author

Gratton, Finn V.

Place of Publication

London, UK

Publisher

Jessica Kingsley Publishers

Publication Date

2020

Physical Description

softcover; 239 pages

Subject

Gender Reassignment

Autism Spectrum Disorder (includes Asperger Syndrome)

Gay, Lesbian, Bisexual and Transgendered Issues

Young Adults Sexuality

Abstract

Providing advice on how professionals working with autistic trans youth and adults can tailor their practice to best serve their clients and how parents can support their trans autistic children, this book increases awareness of the large overlap between trans identities and autism.

By including chapters on gender diversity basics, neuroqueer trauma and how to support neuroqueer individuals, this book sets out strategies for creating more effective support that takes into account the unique experiences of trans people on the spectrum. Written by a therapist who identifies as neuroqueer, this book is the perfect companion for professionals who want to increase their knowledge of the experiences and needs of their trans autistic clients.

ISBN

9781785928031

Language

English

Material Type

Book

Call Number

GK 716 GRA 2020

Copies

Author

Freeland, Claire A.B

Toner, Jaqueline B.

McDonnell, Janet [ill]

Place of Publication

Washington, DC

Publisher

Magination Press

Publication Date

2019

Physical Description

Softcover; 88 pages

Series

What to Do When

Subject

Phobic Disorders

Anxiety. Anxiety Disorders

Abstract

Lots of kids are a little afraid of some things, like heights or spiders. But some kids are so afraid that it stops them from having fun. Does this sound like you?

If your fear is getting in the way of everyday activities, this book is for you!

What to Do When Fear Interferes guides children and their parents through overcoming phobias using strategies and techniques based on cognitive-behavioral principles.

This interactive self-help book is the complete resource for educating, motivating, and empowering children to overcome their fears ? so they can blast off to new adventures!

ISBN

9781433829741

Language

English

Material Type

Book

Call Number

JUNIOR CD 440 FRE 2019

Copies

Author

Bula, Ania

Place of Publication

Durham, North Carolina

Publisher

Pitchstone Publishing

Publication Date

2016

Physical Description

Softcover ; 224 p.

Subject

Chronic Illness

Abstract

"Drawing on her own deeply personal experiences, Ania Bula explores what it is like to live with unseen chronic disabilities. She paints a vibrant picture of what it is like to be diagnosed with two life-long debilitating conditions as a young adult and relates the challenges and frustrations of dealing with predatory alternative medicine practitioners, arrogant doctors, indifferent bureaucracies, and well-meaning friends and family who always seem to say either the wrong thing-or nothing at all. As she discovered, suddenly everyone's aunt is a health expert and everyone's fad diet a cure. Making matters worse, her physical torment quickly translated into mental stresses. Relationships became strained, while others, including all-important romantic ones, never had a chance to start at all. Wading through a constant stream of ignorance and lies, in a desperate attempt to find peace, to stop the pain, and to return to a more normal life, she submits to being stuffed with powders and magic potions, poked and prodded, and even "faith healed." With honesty and humor, she shares her journey of pain, suffering, and, ultimately, coping, both to help others gain some understanding about what it is like to live with chronic illness-and to help those who might similarly suffer feel less alone, so that they too might start living again.

"Drawing on the author's personal experiences with her own physical and mental health struggles, the book explores what it is like to live with chronic disabilities as a young adult"-- Provided by publisher

Notes

Recommended by CCDP

ISBN

9781634310734

Language

English

Material Type

Book

Call Number

EF 800 BUL 2016

Copies

Author

Kivowitz, Barbara

Weisman, Roanne

Place of Publication

Petaluma, CA

Publisher

Roundtree Press

Publication Date

2013

Physical Description

Softcover; 192 pages

Subject

Chronic Illness

Abstract

For those who find themselves at the intersection of lifetime love and overwhelming obligation, the right path is often painful and difficult to find. When illness invades the couple relationship, partners ask themselves and each other some really hard questions: "What do I want to do for this person whom I have loved for many years?" "How much of my life do I give up to take care of my beloved?" "How do I sit by my beloved's side and watch her suffer?" While writing In Sickness as in Health, authors Barbara Kivowitz and Roanne Weisman learned through interviews with many couples, as well as with medical, spiritual, legal, rehabilitation and psychological experts, that couples find their own ways to deal with illnesses and catastrophic injuries.

ISBN

9781937359133

Language

English

Material Type

Book

Call Number

EF 800 KIV 2013

Copies

Author

Vining, Eileen

Doerrer, Sarah

Habela, Christa

Hartman, Adam

Kelley, Sarah

Kossoff, Eric

Salorio, Cynthia

Singhi, Samantha

Stafstrom, Carl

Edition

Fourth edition

Place of Publication

Baltimore, MD

Publisher

John Hopkins University Press

Publication Date

2023

Physical Description

Softcover; 353 pages

Subject

Seizure Disorders-Children

Abstract

For more than 30 years, parents, caregivers, and health care providers have trusted Seizures and Epilepsy in Children to provide comprehensive, science-based information and practical answers to the most common questions about these conditions. In this new edition, completely revised and updated, a team of experts from Johns Hopkins Medicine offers guidance on:

- diagnostic testing and the latest treatments

- recommendations for the best devices, apps, and websites

- driving, health insurance, and playing sports

- navigating school and other environments

- mental health issues and counseling

- coping with disability

- side effects from medications

This new edition also features dedicated chapters on diet, complementary and alternative medicine, and rescue medicines.

ISBN

9781421445090

Language

English

Material Type

Book

Call Number

FM 470.5 VIN 2023

Copies

Author

Zeltzer, Lonnie K.

Schlank, Christina Blackett

Edition

1st ed.

Place of Publication

New York, NY

Publisher

HarperCollins Publishers Ltd.

Publication Date

c2005

Physical Description

Papeback; xvi, 299 p.

Subject

Chronic Pain

Children's Health. Pediatrics

Abstract

This is a guide to control the pain that plagues a child from headaches to arthritis, irritable bowel syndrome, fibromyalgia, and more. Explains how to soothe the nervous system, reactivate the body's natural pain control mechanisms, determine which medications are most effective, implement relaxation techniques and reduce parents' guilt.

ISBN

9780060570170

Language

English

Material Type

Book

Call Number

FM 830 ZEL 2005

Copies

Author

Sedley, Ben

Coyne, Lisa

Place of Publication

Oakland, CA

Publisher

New Harbinger Publications

Publication Date

2020

Physical Description

Softcover; 105 pages

Subject

Obsessive-Compulsive Disorders

Abstract

An OCD book just for you?full of powerful tools and engaging illustrations to help you live the life you want to live, instead of being controlled by OCD.

Do you have thoughts that seem loud? Do your worries spiral out of control and then suck you in? Do intrusive thoughts show up and make you scared of doing certain things?or not doing things?a certain way? Do you ever get a feeling like something bad might happen? Does this loud stuff make you feel alone, or worse?crazy? First, you aren?t alone?even if it sometimes feels that way. And second, you are not crazy. But you might be struggling with obsessive-compulsive disorder (OCD). And while OCD can be difficult, you don?t have to let it have power over you. Instead, you can live a life full of meaning, great relationships and joy with the help of this book.

In Stuff That?s Loud, you?ll learn exposure and response prevention (ERP), and ideas from acceptance and commitment therapy (ACT) to help you break free from loud, spiralling OCD thoughts and behaviors

ISBN

9781684035366

Language

English

Material Type

Book

Call Number

YOUTH CD 810 SED 2020

Copies

Author

Lafrance, Adele

Miller, Ashley

Carlson, Patrick [Ill.]

Place of Publication

New York, NY

Publisher

Routledge Taylor & Francis Group

Publication Date

2020

Physical Description

259 p.

Subject

Parenting

Abstract

What to Say to Kids When Nothing Seems to Work offers parents an effective, step-by-step guide to some of the most common struggles for kids aged 5-12. Written by mental health professionals with over 30 years' experience listening to kids' thoughts and feelings, this book provides a framework to explore new ways of responding to your child that will help them calm down faster and boost their resilience to stress.

With a dose of humor and plenty of real-life examples, the authors will guide you to "build a bridge" into your child's world to make sense of their emotions and behavior. Sample scenarios and scripts are provided for you to customize based on your caregiving style and your child's personality. These are then followed by concrete support strategies to help you manage current and future situations in a way that leaves everyone feeling better. Chapters are organized by common kid-related issues so you can quickly find what's relevant to you.

Suitable for parents, grandparents, and other caregivers of children and pre-teens, as well as professionals working closely with families, What to Say to Kids When Nothing Seems to Work is an accessible resource for efficiently navigating the twists, turns, and sometimes total chaos of life with kids.

ISBN

9781138344631

Language

English

Material Type

Book

Call Number

GK 600 LAF 2020

Copies

Author

Huebner, Dawn

Matthews, Bonnie

Place of Publication

Washington, DC

Publisher

Magination Press

Publication Date

2006

Physical Description

Paperback, 80 p. : ill.

Series

"What to do" Guides for Kids

Subject

Anxiety. Anxiety Disorders

Picture Books

Anxiety

Abstract

This illustrated book guides children and parents through the cognitive-behavioral techniques most often used in the treatment of anxiety. Concepts and strategies are introduced through metaphors and illustrations, which made them easy to understand.

Notes

*Ages 6-12

ISBN

1591473144

Language

English

Material Type

Book

Call Number

JUNIOR CD 420 HUB 2006

Copies